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Hospital denying girl kidney transplant because she's "mentally retarded", mom says
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windy
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RE: Hospital denying girl kidney transplant because she's "mentally retarded", mom says
Chrissy Rivera's daughter, Amelia, has Wolf-Hirschhorn Syndrome. Kidney problems often occur with this condition, as do developmental and/or intellectual disabilities.
Amelia needs a kidney transplant within 6 months to a year.
Otherwise, she may die.
Rivera says Children's Hospital of Philadelphia (CHOP) is refusing to give Amelia the transplant because she is "mentally retarded" and "has brain damage". Rivera says a doctor told the family Amelia was "not eligible because of her quality of life, because of her mental delays".
The whole story is here:
http://www.wolfhirschhorn.org/2012/01/am...rick-walls
Anyone who wants to protest CHOP's actions?
CHOP's main toll-free number is 1-800-879-2467.
Dr. Susan Furth is the Chief of the Nephrology (kidney medicine) Department. Contact her at:
1-267-426-7099
Furths@email.chop.edu
everyone deserves the chance to live
True,
she is a beautiful little girl. I am confused by the "Story" I read the blog, I saw a bunch of "news" stories (fox etc., ) reporting is so poorly done. They are making the doctors the bad guys - I think it is possible that the real bad guy is the insurance company. There are stipualtions as to whether or not an insurance company will pay for a transplant based on a checlist. The checklist looks a lot like that "list" noted in the blog, Hep C, HIV - -the shocking part is that Mental impairment is on that list. (I should not be shocked, yet I am).
Anyway, who knows - I think it all comes down to money (aka resources)... the hospital has to follow guidelines if it wants money.
similar (I theororize here) to how public schools only get federal funding if they follow certain guidelines...
there is no mention of money and I think that is the elephant in the room - transplants cost hundreds of thousands of dollars...
I think the girl deserves to have one - what about all those "Right to lifers" that say they want respect and dignity from conception to the grave? I do not know why some of these same people are against the right to have health care coverage...
sorry if anyone thinks this is a tangent.
(Not going to debate any of this)
Yes new pioneering treatments of adult to children kidney tranplants are done now and have been done - I note that the word pioneering is still attached to the procedure.. in the insurance industry "pioneering" used to mean it was not paid for yet by most insurance companies....
By the way, I have multiple relatives who had wonderful care at CHOP (I also looked into it for my one son).
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| 01-23-2012 03:21 PM |
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Magneto
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RE: Hospital denying girl kidney transplant because she's "mentally retarded", mom says
Well, the issue is sorted then from an availability standpoint, if it's possible to transplant organs from adults to children. Are you sure about the price tag, though? It would seem excessive, for a routine procedure...
http://needsmoremarshmallows.blogspot.co.uk/
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| 01-23-2012 03:36 PM |
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Gedrene
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RE: Hospital denying girl kidney transplant because she's "mentally retarded", mom says
Are you sure about the price tag, though? It would seem excessive, for a routine procedure...
If money was an issue it would have already been brought up in the source. Why say excessive? Does a girl's life have a price on its head?
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| 01-23-2012 03:41 PM |
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Magneto
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RE: Hospital denying girl kidney transplant because she's "mentally retarded", mom says
Hmmm. I can see the reason for not giving her a transplant, if there are limited amounts and hers will fail in 12 years (though by that time we're likely to have artificial ones) - it's the dreadful Algebra of Necessity. However, if they're willing to find their own donor, then I see no reason that it should not be done, unless the medications she will have to take will, indeed, be sufficiently dangerous as to pose more of a risk. Still, I think on balance that she should have the transplant, as the probability of death without it is much higher than the probability of death with it, should the family be able to locate a donor.
It's easy to base your decisions on emotions rather than dispassionate logic, but also rather foolish.
If the donor has to be another child, then the only realistic source of kidneys is dead children, like I said before - of which, thankfully, there are very few. It is exceedingly likely that there are more children in need of a transplant than there are transplants available, then. It's not that speculative.
Ahem - http://www.chop.edu/service/kidney-trans...-unos.html and http://www.unos.org/. The second link is particularly informative.
Of course I don't know how many children at CHOP need a transplant. Neither do you, Gedrene.
http://needsmoremarshmallows.blogspot.co.uk/
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| 01-23-2012 03:44 PM |
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windy
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RE: Hospital denying girl kidney transplant because she's "mentally retarded", mom says
Probably wrong on the $ for a kidney transplant- my sil had a heart transplant... I will look it up... I was thinking add the word pediatric and double the costs...
(just recalling 15 years ago having natural childbirth not even an aspirin "Cost" 13,000 dollars...)
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| 01-23-2012 03:46 PM |
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windy
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RE: Hospital denying girl kidney transplant because she's "mentally retarded", mom says
no info out there... 1997: cut and pasted :
• The cost of kidney dialysis averages about $44,000 per year per patient (Univ of Maryland, 1993 data)
• Kidney transplant procedure costs can range widely but most average from $25,000 to $150,000 (Emory)
• $38,000 for a kidney transplant (Health Care Technology)
• Random posts throughout the web ($50,000)
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| 01-23-2012 03:57 PM |
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M
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RE: Hospital denying girl kidney transplant because she's "mentally retarded", mom says
I think I should go to the driver licence office to get the form for organ donation. I was reading about some woman who has been waiting 8 years for a kidney transplant. I do not care if I am dead for organ donation. I am just afraid that some hospital might kill me for my organs or if I was travelling somewhere they got that information and killed me for my organs. My dogtags have drug allergies and blood type on them though so that might be enough information to kill me.
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| 01-23-2012 03:57 PM |
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windy
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RE: Hospital denying girl kidney transplant because she's "mentally retarded", mom says
I have nice happy kidneys (not a drinker at all) I am an organ donor - BUT I tend to think "they" keep you alive LONGER as a donor- they "keep" you "alive" so it can be a living to living donor for kidney... (works better).
So, in case they thought I was brain dead, I'd have a chance to wake up. eeK!
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| 01-23-2012 04:01 PM |
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Gedrene
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RE: Hospital denying girl kidney transplant because she's "mentally retarded", mom says
If the donor has to be another child, then the only realistic source of kidneys is dead children
I have already shown you the part of the source where it says there was no reason the doctors gave for refusing treatment other than the child is mentally disabled.
Windy has already said that children can receive adult kidneys and the use of the term 'poineering' for the treatment was for all intents and purposes a euphemism by insurance companies
Availability is then of course not a problem because the parents said they or a relative from a large family can donate.
This post was last modified: 01-23-2012 04:16 PM by Gedrene.
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| 01-23-2012 04:12 PM |
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Magneto
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RE: Hospital denying girl kidney transplant because she's "mentally retarded", mom says
Oh, I give up arguing with you Gedrene, because you're so stuck in your false beliefs that there's no point.
http://needsmoremarshmallows.blogspot.co.uk/
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| 01-23-2012 04:24 PM |
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Gedrene
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RE: Hospital denying girl kidney transplant because she's "mentally retarded", mom says
Oh, I give up arguing with you Gedrene, because you're so stuck in your false beliefs that there's no point.
I have just politely reminded you that you have ignored a quote that I provided. So your complaint is hypocritical. If you don't get your way you seem to either change the argument you make or throw insults around.
But you never admit being wrong.
You accuse me of false beliefs? Earlier you were claiming that in the source the hospital said there were not enough kidneys. It never did any such thing. Earlier you were justifying a mentally retarded girl's death on the false belief that the Hospital needed to make a choice when it was simply being eugenicist and disallowing treatment. How heartless that you accuse me of false belief!
This post was last modified: 01-23-2012 04:39 PM by Gedrene.
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| 01-23-2012 04:35 PM |
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Ana54
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RE: Hospital denying girl kidney transplant because she's "mentally retarded", mom says
I can imagine a mother in anger telling her child "If you don't get good grades, that means you didn't deserve that transplant."
Genocide is defined as "any of the following acts committed with intent to destroy, in whole or in part, a national, ethnical, racial, social, political, economic, intellectual, familial, genetic, or religious group, as such: killing members of the group; causing serious bodily or mental harm to members of the group; deliberately inflicting on the group conditions of life calculated to bring about its physical destruction in whole or in part; imposing measures intended to prevent births within the group; [and] forcibly transferring children of the group to another group."
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| 01-23-2012 05:37 PM |
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bookmaniac
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RE: Hospital denying girl kidney transplant because she's "mentally retarded", mom says
Ana54
I can imagine a mother in anger telling her child "If you don't get good grades, that means you didn't deserve that transplant."
--------------------------------------------------------------------------------
thats a scary thought
This post was last modified: 01-23-2012 05:42 PM by bookmaniac.
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| 01-23-2012 05:41 PM |
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Magneto
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RE: Hospital denying girl kidney transplant because she's "mentally retarded", mom says
Gedrene, I await evidence that the hospital is motivated by eugenics. I saw no such motivation in the article. Your hypothetical eugenics program doesn't exist.
Please, if you're going to quote me, do quote my full post. A text without a context is a pretext for a proof text. :p
_________________________________
If someone is the recipient of a transplant, they've got a moral duty to, at the very least, not mess up their body and need another one
http://needsmoremarshmallows.blogspot.co.uk/
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| 01-23-2012 06:01 PM |
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Gedrene
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RE: Hospital denying girl kidney transplant because she's "mentally retarded", mom says
Your hypothetical eugenics program doesn't exist.
Quit using hyperbole to trap me. I said that deciding that a child doesn't deserve a kidney transplant because they are mentally retarded IS eugenics
Claiming I said anything about some eugenics programme is just a selfish attempt to corner me.
Please, if you're going to quote me, do quote my full post.
This coming from a man who refuses to back up any of his accusations with quotes at all.
Maybe you don't understand what a quote is: It's a quote, not a whole source. You have been distorting what I say all day. The above part is evidence of that.
This post was last modified: 01-23-2012 06:40 PM by Gedrene.
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| 01-23-2012 06:36 PM |
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