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Autism Speaks
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Mytelli!
Posts: 452
Group: Registered
Joined: Mar 2011
Status:
Away
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RE: Autism Speaks
Hey, Pika, I'll try and ask this question as clearly as I can this time:
What would Autism Speak have to do for AFF to forgive them?
frkn hell you guys can be bloody hypocrytical
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| 09-22-2011 12:56 AM |
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cynara
Posts: 2,262
Group: Registered
Joined: Feb 2010
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Offline
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RE: Autism Speaks
Hey, Pika, I'll try and ask this question as clearly as I can this time:
What would Autism Speak have to do for AFF to forgive them?
frkn hell you guys can be bloody hypocrytical
Maybe thats because apparently AFF is TM's website now lol
When I am an old woman, I shall wear purple with a red hat that doesn't go, and doesn't suit me.And I shall spend my pension on brandy and summer gloves and satin candles, and say we've no money for butter.I shall sit down on the pavement when I am tired and gobble up samples in shops and press alarm bells and run my stick along the public railings and make up for the sobriety of my youth.I shall go out in my slippers in the rain and pick the flowers in other people's gardens. And learn to spit...
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| 09-22-2011 01:00 AM |
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tambourine-man
Banned
Posts: 534
Group: Banned
Joined: Jul 2011
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Offline
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RE: Autism Speaks
Hey, Pika, I'll try and ask this question as clearly as I can this time:
What would Autism Speak have to do for AFF to forgive them?
frkn hell you guys can be bloody hypocrytical
Maybe thats because apparently AFF is TM's website now lol
That is incredibly unfair to Amy and Gareth, who have worked so hard to create this wonderful community and spread the message of autistic self-advocacy. It is unfair to PJ who is an exceptional administrator.
I posted some articles, all of which I have worked all day long, day after day to produce.
I'm not an administrator, I'm a very hard working member. That is all. My opinions are my own. My effort is for this website and the opportunity to continue doing what I love.
I deleted a post (with nothing in it I might add). I worked incredibly hard to produce this Autism Speaks interview. I'm not a spy, as flattering as the suggestion is. I wish someone was paying me, but alas, no one is.
I LIVE AT HOME WITH MY PARENTS! I am no one special. I am merely a passionate, hardworking autistic young man.
Check out my Facebook page for links to my featured column on WrongPlanet, my blog for "In Their Own Words," magazine articles, etc...
http://www.facebook.com/pages/John-Scott...8723228267
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| 09-22-2011 01:07 AM |
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Mytelli!
Posts: 452
Group: Registered
Joined: Mar 2011
Status:
Away
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RE: Autism Speaks
You know what? That would be fine by me. At least he says and does things, and doesn't just ignore people when difficult questions are asked. I think that would be a 100% improvement.
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| 09-22-2011 01:10 AM |
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skyblue1
Activist
  
Posts: 20,694
Group: Activists
Joined: Jan 2008
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RE: Autism Speaks
You know what? That would be fine by me. At least he says and does things, and doesn't just ignore people when difficult questions are asked. I think that would be a 100% improvement.
what she means is that he listed AFF as his website in his profile at WP
I'm not anti-social; I'm just not user friendly
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| 09-22-2011 01:17 AM |
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cynara
Posts: 2,262
Group: Registered
Joined: Feb 2010
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RE: Autism Speaks
well, we differ. It bothers me that others may think he has anything to do with running AFF.
In profiles, the section for Websites is meant for your own personal site. AFF is not HIS site.
Oooh sky posted while I was still typing, the reply was for mytelli lol
When I am an old woman, I shall wear purple with a red hat that doesn't go, and doesn't suit me.And I shall spend my pension on brandy and summer gloves and satin candles, and say we've no money for butter.I shall sit down on the pavement when I am tired and gobble up samples in shops and press alarm bells and run my stick along the public railings and make up for the sobriety of my youth.I shall go out in my slippers in the rain and pick the flowers in other people's gardens. And learn to spit...
This post was last modified: 09-22-2011 01:22 AM by cynara.
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| 09-22-2011 01:19 AM |
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Bloke
Posts: 2,186
Group: Registered
Joined: Jul 2010
Status:
Away
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RE: Autism Speaks
I think you still have some valid criticisms, but you also have a beginning.
No one at Autism Speaks is openly hostile to anyone in these Internet communities. My experience suggests they are willing to listen, and this interview is to me more evidence of that.
I have no doubt they are reading these responses, so this is a chance to open a constructive dialogue.
What now?
No one is hostile to people from Autism Internet communities? Give me an hour of home truths in a "sitdown". then there would be at least one person. Besides you think THIS kind of thing is easily explained away
http://www.youtube.com/v/HDdcDlQVYtM
http://www.autismspeaks.org/inthenews/au...roject.php
http://www.autismspeaks.org/docs/video/A...elease.pdf
What? They "made mistakes and have grown"? Please spare me. I am no child and I do not believe in fairytales
In your case, less "tetchy", perhaps, and more "overbearing, obnoxious arsehole", if it's all the same with you, Bloke. Is it ok? Oh, good! 
http://www.youtube.com/watch?v=bFEoMO0pc7k
"Aint nobody got time for that"
This post was last modified: 09-22-2011 01:35 AM by Bloke.
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| 09-22-2011 01:32 AM |
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tambourine-man
Banned
Posts: 534
Group: Banned
Joined: Jul 2011
Status:
Offline
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RE: Autism Speaks
You know what? That would be fine by me. At least he says and does things, and doesn't just ignore people when difficult questions are asked. I think that would be a 100% improvement.
what she means is that he listed AFF as his website in his profile at WP
That is completely untrue! I listed the article as mine because it was made clear to me that it was not meant to represent AFF.
Check out my Facebook page for links to my featured column on WrongPlanet, my blog for "In Their Own Words," magazine articles, etc...
http://www.facebook.com/pages/John-Scott...8723228267
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| 09-22-2011 01:35 AM |
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tambourine-man
Banned
Posts: 534
Group: Banned
Joined: Jul 2011
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RE: Autism Speaks
And yes, there is a link to AFF in my profie on wrongplanet (a site I rarely frequent) only because I want to get my writing exposed. I have every right to do this, I worked very hard on it.
Why would you deny me my efforts? I've invested a great deal of effort in this site. Perhaps, instead of harassing me, you all could do something meaningful in the name of self-advocacy.
Autism Speaks, who so many of you have bickered about, has volunteered to listen to you all on this thread, and instead, you are bickering about me.
Do any of you want anything more than to squabble uselessly?
Once again, thank you to everyone who contributed and everyone who has voiced their appreciation for my efforts. The rest of you... find something productive to do.
Check out my Facebook page for links to my featured column on WrongPlanet, my blog for "In Their Own Words," magazine articles, etc...
http://www.facebook.com/pages/John-Scott...8723228267
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| 09-22-2011 01:43 AM |
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Marcia
Posts: 7,523
Group: Registered
Joined: Feb 2008
Status:
Away
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RE: Autism Speaks
well, we differ. It bothers me that others may think he has anything to do with running AFF.
In profiles, the section for Websites is meant for your own personal site. AFF is not HIS site.
As with many profiles, the layout is fixed and restrictive so people often provide information isn't an exact fit for the pro forma. Lots of members at WP list websites which they are involved in, but which they don't run.
If anyone cares to follow the link from WP they'll see someone who is actively and enthusiastically doing stuff, and getting criticised by others over minor, petty details.
We are all made in God's image! Celebrate our diversity of gifts!
"Aspies For Freedom chooses to oppose all forms of prejudice and bigotry."
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| 09-22-2011 01:47 AM |
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Mytelli!
Posts: 452
Group: Registered
Joined: Mar 2011
Status:
Away
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RE: Autism Speaks
Cheers for the interveiw TM
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| 09-22-2011 01:48 AM |
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tambourine-man
Banned
Posts: 534
Group: Banned
Joined: Jul 2011
Status:
Offline
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RE: Autism Speaks
Hey, Pika, I'll try and ask this question as clearly as I can this time:
What would Autism Speak have to do for AFF to forgive them?
frkn hell you guys can be bloody hypocrytical
Maybe thats because apparently AFF is TM's website now lol
That is incredibly unfair to Amy and Gareth, who have worked so hard to create this wonderful community and spread the message of autistic self-advocacy. It is unfair to PJ who is an exceptional administrator.
I posted some articles, all of which I have worked all day long, day after day to produce.
I'm not an administrator, I'm a very hard working member. That is all. My opinions are my own. My effort is for this website and the opportunity to continue doing what I love.
I deleted a post (with nothing in it I might add). I worked incredibly hard to produce this Autism Speaks interview. I'm not a spy, as flattering as the suggestion is. I wish someone was paying me, but alas, no one is.
I LIVE AT HOME WITH MY PARENTS! I am no one special. I am merely a passionate, hardworking autistic young man.
Oh, and I mustn't forget BardWolf.
Check out my Facebook page for links to my featured column on WrongPlanet, my blog for "In Their Own Words," magazine articles, etc...
http://www.facebook.com/pages/John-Scott...8723228267
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| 09-22-2011 01:54 AM |
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Mytelli!
Posts: 452
Group: Registered
Joined: Mar 2011
Status:
Away
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RE: Autism Speaks
Autism Speaks, who so many of you have bickered about, has volunteered to listen to you all on this thread, and instead, you are bickering about me.
Well, no, we're just assuming they're going to check up on the responses. It's not like they're going to give a reply.
What we're doind here is figuring out how we feel about the situation.
If they want to listen, they can come here and talk. We're not going to put up a show for someone hiding in the bushes and watching us through binoculars. They can bring the candy to us. Then we can tell them what we think of it.
On a side note:
Pika, Gareth, Bardwolf anyone in the admin staff:
What would Autism Speaks have to do to be forgiven?
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| 09-22-2011 02:05 AM |
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tambourine-man
Banned
Posts: 534
Group: Banned
Joined: Jul 2011
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Offline
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RE: Autism Speaks
And Sky, it is a bit ridiculous to go attacking me on wrongplanet just because you have been told to cease doing so here.
Why don't you do something productive? Like working on your nonprofit organization, which was a very good idea.
Check out my Facebook page for links to my featured column on WrongPlanet, my blog for "In Their Own Words," magazine articles, etc...
http://www.facebook.com/pages/John-Scott...8723228267
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| 09-22-2011 02:11 AM |
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Duckfetishgirl
Posts: 9,433
Group: Registered
Joined: Jul 2009
Status:
Away
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RE: Autism Speaks
I don't understand why people feel the way they do about tambourine-man. He seems like a good guy. An optimistic, energetic puppy eager to help advocate for autism. People are nervous he is working for Autism Speaks. I don't think he is. People fear what is different and he seems to have come here out of nowhere, but you have to start somewhere. When I was new here people weren't all that nice to me because I was weird and admitted my butthole obsession and assumed I was a troll. I am "different". Always have been. Isn't that part of having aspergers? And maybe tam-man is biting off more than he can chew with this. I don't know.
I have a gift for enraging people, but if I ever bore you it will be with a knife.

http://www.youtube.com/watch?v=0Qmud3AsmMM
If I offended you, please let me know via pm. I tend to do it without realizing it. I can be clueless as to how my humor comes across. Please be nice about it.
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| 09-22-2011 02:13 AM |
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