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Autism Speaks
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BardWolf



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Post: #151
RE: Autism Speaks

Quote:
How is that different than treating potentially impairing symptoms of autism? Don't autistics, like ADHD people, want more of a positive recognition in society. Stand up... Make yourselves know as the brilliant compliment to society you all are


You sound privileged. This reads too much like 'you uppity retards are acting so selfish and ungrateful, can't you see this neurotypical organization is trying to help you?"



09-22-2011 11:52 PM
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Post: #152
RE: Autism Speaks

Time to get out the red pen.

Halfspie Wrote:
I used to be very against the fundamentals that Autism Speaks seems to have established.


What do you mean by "fundamentals"? Their promotion of dangerous quack remedies such as chelation and ABA? Their endorsement of the fraudulent claims made by Andrew Wakefield regarding a purported link between vaccines and autism? Their complete lack of respect for the basic personal and intellectual rights of the autistic individual?

Do you now support their endorsement of quack remedies, fraudulent researchers and abuse of human rights?

Your wording makes your sentences very difficult to parse.

Halfspie Wrote:
I think that autism is one of the most beneficial and enlightening aspects to life.


What is this I don't even

Halfspie Wrote:
Through tambourine-man's research and determination to reveal the truth, I now have come to the conclusion that Autism Speaks isn't looking to make autism an extinct "disorder".


The truth is that Dana Marnane is essentially Autism Speak's head of Marketing and Communication. It would be naive in the extreme to take anything she says at face value.

Here's a very simple bit of research you can do yourself. Click here and scroll down to the entry about Dana Marnane. Look what it says underneath her picture.



"Epidemic". Straight from the horse's mouth. Sickening.

Halfspie Wrote:
Autism Speaks knows the value in each autistic individual.


I wouldn't be surprised if they have a full breakdown of the dollar value of each autistic individual in the promotional material that they send out to their customers in the pharma/biomed industry.

Halfspie Wrote:
This organization is wanting to amplify all of these great peoples' talents and enable your abilities by making life a little easier.


Go and look at one of those lists of exceptional individuals from history who were possibly autistic. Did any of them need the help of Autism Speaks to amplify their talents and enable their abilities? No.

Halfspie Wrote:
ADHD kids take adderall to help with hyper-active symptoms... How is that different than treating potentially impairing symptoms of autism?


I'm willing to hazard a guess that it's totally different since ADHD and autism are different conditions.

Halfspie Wrote:
Don't autistics, like ADHD people, want more of a positive recognition in society.


I want a job that lasts more than six months and to be left the hell alone to persue my interests. What I do with my talents is my own business. I don't exist to serve others.

Halfspie Wrote:
Stand up... Make yourselves know as the brilliant compliment to society you all are.  Smile


The fact that so many of us reach adulthood with our sanity intact with no external intervention whatsoever is not a compliment to society.

The fact that so many of us are made to feel deficient, broken, useless and a burden is a damning indictment of society's ignorance.


Some people just need a high-five.

In the face.

With a chair.
09-23-2011 12:08 AM
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BardWolf



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Post: #153
RE: Autism Speaks

Quote:
What do you mean by "fundamentals"? Their promotion of dangerous quack remedies such as chelation and ABA? Their endorsement of the fraudulent claims made by Andrew Wakefield regarding a purported link between vaccines and autism?


Citation Needed.

First off, lets clarify something. Chelation is actual medical procedure that is used to detox the body from heavy-metals. Chelation isn't a "quack remedy", however it's application to an autist is based off 'quack science'. Call it semantics, but before you say "Chelation is bullshit" try to double check your facts. Last time I checked, chelation does help folks with heavy metal poisoning.

Also ABA is not a dangerous remedy it's actually base on psychological principles. It can be if applied incorrectly but itself isn't dangerous. Call it biased because I have observe several ABA therapy sessions at my job and the child is always unharmed.

Also state your sources where AutSpks supports Wakefield.



09-23-2011 12:19 AM
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cynara



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Post: #154
RE: Autism Speaks

Halfspie Wrote:
I used to be very against the fundamentals that Autism Speaks seems to have established. I think that autism is one of the most beneficial and enlightening aspects to life. Through tambourine-man's research and determination to reveal the truth, I now have come to the conclusion that Autism Speaks isn't looking to make autism an extinct "disorder". Autism Speaks knows the value in each autistic individual. This organization is wanting to amplify all of these great peoples' talents and enable your abilities by making life a little easier. ADHD kids take adderall to help with hyper-active symptoms... How is that different than treating potentially impairing symptoms of autism? Don't autistics, like ADHD people, want more of a positive recognition in society. Stand up... Make yourselves know as the brilliant compliment to society you all are.  Smile


Your opinion is based on what your brother believes he knows about AutSpks, simple as that. In one post you have shown that your brother is not as unbiased and impartial as he has presented himself.
I dont believe any good will come of this people.

The excitable puppy has left the door open and the boogeyman is coming up the path

sighs and leaves thread til the time comes to return with a big helping of                                                                                                                                                                        




When I am an old woman, I shall wear purple with a red hat that doesn't go, and doesn't suit me.And I shall spend my pension on brandy and summer gloves and satin candles, and say we've no money for butter.I shall sit down on the pavement when I am tired and gobble up samples in shops and press alarm bells and run my stick along the public railings and make up for the sobriety of my youth.I shall go out in my slippers in the rain and pick the flowers in other people's gardens. And learn to spit...
09-23-2011 12:50 AM
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tambourine-man
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Post: #155
RE: Autism Speaks

You guys,

Please leave my kid sis alone. She is just trying to stick up for her big brother. You are right, she doesn't know much about this whole situation, but it really upsets her to see so many people bashing me.

We've been through a lot and I love her dearly. Have a heart. Bash me all you want but please her out of it.


Check out my Facebook page for links to my featured column on WrongPlanet, my blog for "In Their Own Words," magazine articles, etc...

http://www.facebook.com/pages/John-Scott...8723228267

This post was last modified: 09-23-2011 01:01 AM by tambourine-man.

09-23-2011 12:59 AM
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Duckfetishgirl



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Post: #156
RE: Autism Speaks

BardWolf Wrote:

Quote:
How is that different than treating potentially impairing symptoms of autism? Don't autistics, like ADHD people, want more of a positive recognition in society. Stand up... Make yourselves know as the brilliant compliment to society you all are


You sound privileged. This reads too much like 'you uppity retards are acting so selfish and ungrateful, can't you see this neurotypical organization is trying to help you?"


I didn't read that out of it. I don't think she is being insulting.


I have a gift for enraging people, but if I ever bore you it will be with a knife.

http://www.youtube.com/watch?v=0Qmud3AsmMM

If I offended you, please let me know via pm. I tend to do it without realizing it. I can be clueless as to how my humor comes across. Please be nice about it.

09-23-2011 01:03 AM
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BardWolf



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Post: #157
RE: Autism Speaks

Quote:
...leave my kid sis alone. She is just trying to stick up for her big brother. You are right, she doesn't know much about this whole situation, but it really upsets her to see so many people bashing me.


Caveat Forumus.

Your sister posted her ill-informed patronizing comment on a massive forum filled with butthurt an angry auties. She made her bed, she is gonna lie in it. I don't give a damn if she is your sister, she needs to be a grown up and take responsibility for her words.



09-23-2011 01:05 AM
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tambourine-man
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Post: #158
RE: Autism Speaks

BardWolf Wrote:

Quote:
...leave my kid sis alone. She is just trying to stick up for her big brother. You are right, she doesn't know much about this whole situation, but it really upsets her to see so many people bashing me.


Caveat Forumus.

Your sister posted her ill-informed patronizing comment on a massive forum filled with butthurt an angry auties. She made her bed, she is gonna lie in it. I don't give a damn if she is your sister, she needs to be a grown up and take responsibility for her words.


She has done nothing but love and support me for exactly who I am. She would never want to see me any other way.

She is a wonderful person who has embraced my autism more than anyone I know.

BardWolf, I'm surprised at you.


Check out my Facebook page for links to my featured column on WrongPlanet, my blog for "In Their Own Words," magazine articles, etc...

http://www.facebook.com/pages/John-Scott...8723228267

09-23-2011 01:10 AM
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OtaBenga
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Post: #159
RE: Autism Speaks

Not surprised by anything. It's been clear this guy is just using AFF to promote his own interests and pose as an ally.

Attention whores should never be trusted.

09-23-2011 01:18 AM
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BardWolf



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Post: #160
RE: Autism Speaks

Quote:
She has done nothing but love and support me for exactly who I am. She would never want to see me any other way.

She is a wonderful person who has embraced my autism more than anyone I know.

BardWolf, I'm surprised at you.


I don't care if she is your biggest fan. I am still gonna call her out on her crap. She was patronizing to the rest of the forum.

in other words.


Look Scotty I like you I really do. But I am not going to curt-tail my feelings or what is right just to make you feel good.



09-23-2011 01:19 AM
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skyblue1
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Post: #161
RE: Autism Speaks

This thread has served its purpose

time to shut it down, before it becomes meaningless

vote #1


I'm not anti-social; I'm just not user friendly
09-23-2011 01:22 AM
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Post: #162
RE: Autism Speaks

BardWolf Wrote:
[quote]Citation Needed.

Also state your sources where AutSpks supports Wakefield.


I am going to be completely level with you and state that I cannot at this time point to any specific quotations, and I am not going to go looking for them because I have spent so much time reading about Autism Speaks over the last few months that I am now sick of the subject and I am beginning to feel my IQ dropping several points every time I visit their site. However, it's there, somewhere.  

tambourine-man Wrote:
We've been through a lot and I love her dearly. Have a heart. Bash me all you want but please her out of it.


Is this directed at me?


Some people just need a high-five.

In the face.

With a chair.
09-23-2011 01:33 AM
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tambourine-man
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Post: #163
RE: Autism Speaks

BardWolf Wrote:

Quote:
How is that different than treating potentially impairing symptoms of autism? Don't autistics, like ADHD people, want more of a positive recognition in society. Stand up... Make yourselves know as the brilliant compliment to society you all are


You sound privileged. This reads too much like 'you uppity retards are acting so selfish and ungrateful, can't you see this neurotypical organization is trying to help you?"


Well, instead of taking advantage of an opportunity you are attacking a tongue tied idealistic, 19 year old girl. She didn't intend to be patronizing, I assure you. She knows how much this site means to me.  

However, if your interpretation of her comment is correct, you are doing a very good job of proving her dead right.

We've all been bullied...end the cycle. That isn't what she meant.


Check out my Facebook page for links to my featured column on WrongPlanet, my blog for "In Their Own Words," magazine articles, etc...

http://www.facebook.com/pages/John-Scott...8723228267

09-23-2011 01:35 AM
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tambourine-man
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Post: #164
RE: Autism Speaks

Now that big brother has intervened, I'm out of this discussion again.


Check out my Facebook page for links to my featured column on WrongPlanet, my blog for "In Their Own Words," magazine articles, etc...

http://www.facebook.com/pages/John-Scott...8723228267

09-23-2011 01:36 AM
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Post: #165
RE: Autism Speaks

tambourine-man Wrote:
Well, instead of taking advantage of an opportunity you are attacking a tongue tied idealistic, 19 year old girl. She didn't intend to be patronizing, I assure you. She knows how much this site means to me.  

However, if your interpretation of her comment is correct, you are doing a very good job of proving her dead right.

We've all been bullied...end the cycle. That isn't what she meant.


Nobody here is bullying you or your sister.

What kind of response to her post would you find preferable?


Some people just need a high-five.

In the face.

With a chair.
09-23-2011 01:37 AM
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