ACTION ALERT:  

What Does Community Mean To You? Let Medicaid Know!
  
Greetings!  

What does community mean to you? For some people, this question doesn't mean much but for the hundreds of thousands of Americans receiving Medicaid Home and Community Based Services (HCBS), the meaning of community has huge implications. Last year, the State of Missouri attempted to use Medicaid dollars allocated to serving individuals with disabilities in the community for the construction of group homes on the grounds of an institution. The Center for Medicare and Medicaid Services (CMS) quite rightly refused to allow Missouri to use Medicaid HCBS funding for this plan, as the purpose of the HCBS program is to help people avoid institutionalization, not to support settings that further segregate people from their communities.

Now our friends at CMS are trying to put in place strong minimum standards for HCBS settings, to prevent what almost happened in Missouri from occurring in the future. CMS has proposed regulations which would prevent HCBS dollars going to institutional facilities, settings which are on the grounds of an institution, settings which are segregated on the basis of disability and settings which have the characteristics of an institution, such as lack of privacy or rules about when people can eat and sleep. This is an unprecedented opportunity for the disability community to support a real minimum standard for community living.

We need your help to make these standards a reality. CMS' proposed rulemaking (available here) is only open for comments for four more days (it closes this Tuesday, June 14th at 5 PM) and we know that the usual suspects in the institution and nursing home industry have already written in opposing any standards for how HCBS dollars are used. We need people to write in to tell CMS that community living does not occur on the grounds of an institution and doesn't include arbitrary restrictions on the rights of people with disabilities.

Here's what you can do:

1.     Write in to CMS and tell them that you SUPPORT the proposed rulemaking by going to: http://www.regulations.gov/#!submitComme...-0071-0302

2.     Don't hesitate to add in your thoughts about what Community should mean and make suggestions about things that CMS could add to their proposed rulemaking. If you're looking for ideas, don't hesitate to use ASAN's comments as an example. You can feel free to use our language if it makes it easier. Our comments are available here: http://www.autisticadvocacy.org/modules/...itemid=153

3.     Send a copy of this advocacy alert to your friends and colleagues encouraging them to write in too - the more people who write in - be they people with disabilities, parents, professionals or just supportive allies - the stronger our position will be. Help us get the word out!

Remember to write in by THIS TUESDAY June 14th at 5 PM. This is a critical opportunity to have our voices heard and we shouldn't let it pass us by. Remember, Nothing About Us, Without Us!

Regards,

The Autistic Self Advocacy Network



The Autistic Self-Advocacy Network (ASAN) is a non-profit organization run by and for Autistic people, fighting for disability rights in the world of autism. Working in fields such as public policy, media representation, research and systems change, ASAN hopes to empower Autistic people across the world to take control of their own lives and the future of our common community.

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http://www.aspiesforfreedom.com/showthre...?tid=22664

This post was last modified: 06-11-2011 05:22 PM by skyblue1 .

  
ACTION ALERT:  

One Day More! (To Support Real Community Living)


Greetings!  

In the hit musical Les Miserables, the song "One Day More!" highlights the imminent nature of social change, as characters with conflicting views each sing about how tomorrow's events will change the course of history. Although we're not in revolutionary France, what you do in the next day can still have historic impact for people with disabilities and our families. As you may have heard, the Center for Medicare and Medicaid Services (CMS) is trying to put in place real new standards to make sure that providers can't use Home and Community Based Services dollars to fund institutions in all but name. The usual suspects in the institution and nursing home industry are fighting back, trying to prevent any minimum standards on how they do business. Tomorrow at 5 PM Eastern Standard Time, the opportunity for public comment on CMS' proposed rulemaking will close. This is our very last chance to be heard - our very last chance to speak up in support of some basic rules of the road to make sure funding for community living can't be stolen by the institutions industry.

Here's what you can do:

1.     Write in to CMS and tell them that you SUPPORT the proposed rulemaking by going to: http://www.regulations.gov/#!submitComme...-0071-0302

2.     Don't hesitate to add in your thoughts about what Community should mean and make suggestions about things that CMS could add to their proposed rulemaking. If you're looking for ideas, don't hesitate to use ASAN's comments as an example. You can feel free to use our language if it makes it easier. Our comments are available here: http://www.autisticadvocacy.org/modules/...itemid=153

3.     Send a copy of this advocacy alert to your friends and colleagues encouraging them to write in too - the more people who write in - be they people with disabilities, parents, professionals or just supportive allies - the stronger our position will be. Help us get the word out! You can use the social media tools at the top of this e-mail to help tell people to write in before the deadline through facebook, twitter and more!

Remember that tomorrow (Tuesday, the 14th) at 5 PM EST is the very last chance to speak up! This is a critical opportunity to have our voices heard and we shouldn't let it pass us by. Remember, Nothing About Us, Without Us!

Regards,

The Autistic Self Advocacy Network



The Autistic Self-Advocacy Network (ASAN) is a non-profit organization run by and for Autistic people, fighting for disability rights in the world of autism. Working in fields such as public policy, media representation, research and systems change, ASAN hopes to empower Autistic people across the world to take control of their own lives and the future of our common community.