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GF/CF diet:  good or bad
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live_with_it



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Post: #61
RE: GF/CF diet:  good or bad

[quote=Ivar T]
Can you explain what is so questionable about the study I linked to?

Ivar I've already explained this once. In any case the urine tests do not provide definitive proof either way.

I'm thinking of drawing an end to my contribution here.

I'm shortly going to reply to a post from Gareth and concede to some points he made. I'll be using quotes from the Sunderland protocol which agree with his remarks. I'm afraid. They are the main source of my information on all this. I'm sorry they upset you so much.

02-11-2009 05:49 PM
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live_with_it



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Post: #62
RE: GF/CF diet:  good or bad

Gareth Wrote:
One point about diets:
Unless you know you have an intolerance (do a short-term test of the GF/CF diet or get a full blood panel etc) it is likely that you will end missing out on some nutrients. Exclusion diets have the issue in many cases that people take anecdotal evidence as fact and then proceed to eliminate whole food groups. This tends to be worse among parents fiddling with their kid's diets, but it's a risk in all age groups.

Long story short: there's no confirmed evidence that autistics have food intolerances in the majority of cases, if you find that you do have some food intolerances then talk to a dietician who is unbiased (not someone who pushes GF/CF as relating to autism - an unbiased diet specialist). The key is to only go this path if you need to, and if you must then try and make up for the nutrients you'll be missing out on.


I’ve just been rereading the latest version of the Sunderland Protocol (http://centres.sunderland.ac.uk/autism/r...s/durham2/ ) which his my source of information on the GFCF diet and I’d like to make some concessions to the points you raised.

The Sunderland people also advise caution on exclusionary diets:

“We would stress, yet again, that removal of staple elements of the diet are likely to result in reduced intake of vitamins and minerals and other essential nutrients. A good, balanced, supplement system should be instituted. This is best done with the active input of a knowledgeable professional who is sympathetic to and understanding of these approaches. Without appropriate levels of these essential nutrient elements the normal metabolic processes of digestion and absorption will be severely impaired in any case.”

I wouldn’t encourage anybody on this forum to go the GFCF diet without the advice of a professional dietician.

On the question of evidence that the diet works they say:
“There are no rigorous scientific studies that demonstrate effectiveness in ameliorating the symptoms of autism but there are numerous anecdotal reports that support its effectiveness.”
You’re still talking about “food intolerances” but I’m giving up the will to live on all this.

02-11-2009 06:07 PM
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tinkadill



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Post: #63
RE: GF/CF diet:  good or bad

To be fair, I think online forums are the wrong place to discuss some conmplex issues and no matter what you say some one will miss interpret etc. It then becomes a pedantic battle of  picking on each individual word used etc. rather than an open minded debate.

And i am not reffering to this thread in particular (or for that matter this forum which is better than most)

But it is a general principal!

02-11-2009 07:02 PM
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Aeolienne



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Post: #64
RE: GF/CF diet:  good or bad

live_with_it Wrote:
I’m grateful to you guys Tinkadill, Aeolienne, Chamuel - for being open-minded and willing to consider the GFCF diet

I've been called many things in my time, but never open-minded about the GF-CF diet! http://www.aspiesforfreedom.com/showthread.php?tid=5996


As the player's breath warms the fipple the tone clears.
It is time to consider how Domenico Scarlatti
condensed so much music into so few bars
with never a crabbed turn or congested cadence,
never a boast or a see-here; and stars and lakes
echo him and the copse drums out his measure,
snow peaks are lifted up in moonlight and twilight
and the sun rises on an acknowledged land.

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02-11-2009 08:02 PM
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tinkadill



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Post: #65
RE: GF/CF diet:  good or bad

I try to be as open minded as possible, it is one of my little obsessions tyring to free your mind from the cultural paradigms we have all been set in.

but I am as capable, if not more so, as anyone at being wrong, jumping to coclusions and being pedantic though i do try to avoid it and will apoligise on request!

02-11-2009 09:07 PM
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Jacquip



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Post: #66
RE: GF/CF diet:  good or bad

SmileHi There Everyone:

I have an autistic four year old called Jordan.  He is non verbal.  Please shed some light for me.  I am NT and I want to know why there is such hype about supplements and stuff for our kids?  Jordan is great and I wouldn't want to change him for the world. I don't view autism as a desease and I believe it is who he is.  I do however have him on the GFCF diet just to make life more comfortable for him. I believe that Gluten gives you guys a sore tummy and casien puts you on a high. This is the only reason I have him on this diet.  He is happy and he knows I love him and I can see he loves me. It has made the world of difference for Jordan because he has many food intolerances Why don't the doctors just try to understand that autism is just another way of being?  There is nothing wrong with it and why should we change it.

Oh Jordan also had liver issues - We have been giving him glutathione and Vitamin C via drip once every two weeks for a while now.

His liver has completely repaired and I can see my boy is happy. This doesn't mean he can have sugar now etc but it means his system is getting healthy.  His test results on other things look the best they every have. We don't give him anything but Nizerol for yeast, glutathione for his liver and NAC to boost his immune system and of course the diet.

My boy is doing great on the dietBig Grin

I am proud to say that Jordan started his first day of school today.
He is not in a typical NT school because that is not how he thinks and we respect that.  He has gone with his tutors who understand (or try too) how he thinks and he is there to teach others as well as how to be shown how we do things too.  His intelligence level is so much higher than ours and he is there to share with others and to be respected for who he is and not what we think he is.

I thank God everyday for Jordan he is a true blessing to us.

I joined this forum to be educated by you guys who live autism, you are the best teachers...please teach me.  NT MomSmile

02-12-2009 09:47 AM
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micgrace
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Post: #67
RE: GF/CF diet:  good or bad

http://www.foodintol.com/celiac.asp This seems to have some scientifically based accurate information available on Gluten /Casein intolerance. It does have an extensive list of research articles listed. Autism is not mentioned.


Rule 1. Never, ever, give up (mind blanks excepted)
Rule 2. Refer to rule 1.
02-12-2009 10:14 AM
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Jacquip



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Post: #68
RE: GF/CF diet:  good or bad

Thanks for the information.  I will have a look at the link.

02-12-2009 10:33 AM
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