Are parents better at creating organizations than autistics?

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Are parents better at creating organizations than autistics?

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EvilZakkie

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RE: Are parents better at creating organizations than autistics?

erkolos Wrote:

... or do they just have a greater need of organizations?

Often get the impression that most autism-related organizations are so parent-dominated that you would think autistic adults didn't exist.

Nowadays there's a few aspies who want to make an organization in Norway devoted to adults on the spectrum. It seems like there might be a need of one, so it would be nice to get some suggestions as we might have trouble figuring out how things could be done.

The main problems right now is that few know other adults on the spectrum and we have some disagreements as to who the organization should be devoted to - I say youth and adults all along the spectrum, others says adults with either HFA or AS.

I honestly don't think it would be too hard for autistics to organise groups, if they could find each other. Parents are able to find each other much more easily due to funded services, such as government run initiatives, charity organisations, and psychology networking.

The other issue is that autistic adults are often encouraged to hide it, whereas parents are encouraged to talk about their children constantly, which makes it much easier for them to find each other.

All the above aside, I still think that if we can get a small number of groups linked by a single organisation (for example, AFF), then the idea will spread.

03-09-2008 12:59 AM