Spurred by an elevated national focus on finding a cure for autism at
a time when more Americans are receiving autism diagnoses than ever
before - about one in 200 - a growing number of autistics are staging
what they say amounts to an ad hoc human rights movement.
Adhoc?? How is it ad hoc?? did harmon put that in? It IS a human rights movement
Autistic Liberation Front buttons and circulate petitions on Web
sites like neurodiversity.com to "defend the dignity of autistic
citizens." The Autistic Advocacy e-mail list, one of dozens that
connect like-minded autistics, has attracted nearly 400 members since
it started last year.
no mention of AFF
"We need acceptance about who we are and the way we are," said Joe, 36, who staged a protest at Jones Beach, on Long Island, while
10,000 people marched to raise money for autism research
recently. "That means you have to get out of the cure mind-set."
That name sound sooo familiar. who is that?
The effort to cure autism, they say, is not like curing cancer, but
like the efforts of a previous age to cure left-handedness. Some
worry that in addition to troublesome interventions, the ultimate
cure will be a genetic test to prevent autistic children from being
WOW we actually got a point across!!
For many parents, however, the autistic self-advocacy movement often
sounds like a threat to the brighter future they envision for their
children. In recent months, the long-simmering argument has erupted
into an online brawl over the most humane way to handle an often
On e-mail lists frequented by autistics, some parents are derided
as "curebies" and portrayed as slaves to conformity, so anxious for
their children to appear normal that they cannot respect their way of
Curebies ??? never heard it!!!
Parents argue that their antagonists are showing a
typical autistic lack of empathy by suggesting that they should not
try to help their children. It is only those whose diagnosis
describes them as "high functioning" or having Asperger's syndrome,
they say, who are opposed to a cure.
I believe I mentioned something along these lines in my protest diary. I knew this what they would say.
"I'm afraid of this movement," said Kit Weintraub, the mother of two
autistic children in Madison, Wis.
This quote is priceless!! and she is not alone. sadly
Ms. Weintraub's son, Nicholas, has benefited greatly from A.B.A., she
said, and she is unapologetic about wanting to remove his remaining
quirks, like his stilted manner of speaking and his wanting to be
Mickey Mouse for Halloween when other 8-year-olds want to be Frodo
from "The Lord of the Rings."
So what is wrong with mickey mouse custome??Overreaction, if u ask me.
The dispute extends even to the basic terminology of autism.
Ms. Weintraub insists on the opposite. "My children have autism, they
are not 'autistics,' " she wrote in her own widely circulated
essay, "A Mother's Perspective." "It is no more normal to be autistic
than it is to have spina bifida."
Dear god!! the mental burden of being ill will severely hurt those poor kids.