Poll: Are any of you worried that the wording - as it stands now -where one must have A, B C & D will actually take YOU (or someone you know) OFF of their the spectrum diagnosis?
Yes
No
This question has been answered on 5 other threads don't bother me
Dumb poll/dumb thread, the DSM-V is still in the process of getting public input and comment and can still change
[Show Results]
 
Post Reply  Post Thread 
DSM-V Last revision was January 2011
Author Message
windy
Activist
***


Posts: 6,636
Group: Activists
Joined: Apr 2008
Status: Offline
Post: #1
DSM-V Last revision was January 2011

I am posting this (new) thread in News and Media because This is currently (for the last year and a half) arguably the most reputable source for how people on the autistic spectrum are being described/portrayed.  (I say reputable meaning as opposed to wikipedia or aut sqks and the like - meaning in court, whose descrption would be believed as most accurate/correct - the DSM )

What do you all think?  Do these words (below) accurately describe many of your nuerologically based differences?

If you have various dx's and one of them is aspergers or HFa or autism, do these words fit you?

Are any of you worried that the wording - as it stands now -where one must have A, B C & D will actually take YOU (or someone you know) OFF of their the spectrum diagnosis?

or lose benefits due to this ?     /- in my country their are none)

Does it feel like you would lose your identity in some way?

Me? I am pleased with the version that is out there this past year and a half. I do not see any negatives - things that make someone dx'd as ASD seem unuseful or a drain etc., Do you?

How about you? Read the below (I am sure you all have already actually) But please read it so it is fresh in your mind...Your thoughts please?


Revised January 26, 2011
Autism Spectrum Disorder

Must meet criteria A, B, C, and D:

A.    Persistent deficits in social communication and social interaction across contexts, not accounted for by general developmental delays, and manifest by all 3 of the following:

1.     Deficits in social-emotional reciprocity; ranging from abnormal social approach and failure of normal back and forth conversation through reduced sharing of interests, emotions, and affect and response to total lack of initiation of social interaction,

2.     Deficits in nonverbal communicative behaviors used for social interaction; ranging from poorly integrated- verbal and nonverbal communication, through abnormalities in eye contact and body-language, or deficits in understanding and use of nonverbal communication, to total lack of facial expression or gestures.

3.     Deficits in developing and maintaining relationships, appropriate to developmental level (beyond those with caregivers); ranging from difficulties adjusting behavior to suit different social contexts through difficulties in sharing imaginative play and  in making friends  to an apparent absence of interest in people

B.    Restricted, repetitive patterns of behavior, interests, or activities as manifested by at least two of  the following:

1.     Stereotyped or repetitive speech, motor movements, or use of objects; (such as simple motor stereotypies, echolalia, repetitive use of objects, or idiosyncratic phrases).  

2.     Excessive adherence to routines, ritualized patterns of verbal or nonverbal behavior, or excessive resistance to change; (such as motoric rituals, insistence on same route or food, repetitive questioning or extreme distress at small changes).

3.     Highly restricted, fixated interests that are abnormal in intensity or focus; (such as strong attachment to or preoccupation with unusual objects, excessively circumscribed or perseverative interests).

4.     Hyper-or hypo-reactivity to sensory input or unusual interest in sensory aspects of environment; (such as apparent indifference to pain/heat/cold, adverse response to specific sounds or textures, excessive smelling or touching of objects, fascination with lights or spinning objects).

C.    Symptoms must be present in early childhood (but may not become fully manifest until social demands exceed limited capacities)

D.         Symptoms together limit and impair everyday functioning.



*****************************************************
Me? I look at the list and say, (for my dx'd son) yup to almost every one - and my son is (supposedly)(probably) (arguably) looked at by (teachers/strangers/doctors as "high" functioning which USED to somehow have some sort of distinction from aspergers.(whcih I could never see) He is officially Aspergers (and yet the Aspergers dx did NOTHING, other dx's had to be added to have him looked at as anything other than a smart kid with repetitive patterns, social delays etc., etc., /which he is MUCH (exponentially) more complicated than that) He is Multiply disabled on paper now - multiple dx's. Meanwhile every thing on the list below is him - in varying degrees OF COURSE.

Should I try a poll?... here it is:

This post was last modified: 05-15-2012 05:07 PM by windy.

05-15-2012 05:02 PM
Find all posts by this user Quote this message in a reply
ForgottenMist



Posts: 1,215
Group: Registered
Joined: Mar 2009
Status: Away
Post: #2
RE: DSM-V Last revision was January 2011

I still don't understand the new criteria or if I meet it. I am confused by it, maybe during childhood I might have met it someway or another (some of the possible signs), but as an adult I may not meet it. This basically serves as a criteria for children and not adults. :S That's just my opinion. They shouldn't had rid of the Asperger's label, I know it will help (the merging) although some aspects of society isn't ready for it.

Overall I am truly indifferent by it. Functioning label wise, I am just maintaining. I am not "low functioning" though, but yet I am not as well established as some (See Sherk, Gareth, Skyblue, and others I forgot to name* for an example of established). I am multiple diagnosis, and that's all there is to it. I just wish back during my public school days that they labeled me as multiple instead of Autistic. Would of been better in the long run. I had more developmental issues not related to the Spectrum than Spectrum issues.

I'll keep reading this thread to see what comes up.

*If I forgot to name ya', then don't feel blue. I just don't remember everyone. :S



(╯°□°)╯︵ ┻━┻  That's a wrap!
No, have a fixed table: ┬──┬ ノ( ゜-゜ノ)
♪I really need my music♪ヽ(´▽`;)/♪

This post was last modified: 05-15-2012 05:40 PM by ForgottenMist.

05-15-2012 05:38 PM
Find all posts by this user Quote this message in a reply
windy
Activist
***


Posts: 6,636
Group: Activists
Joined: Apr 2008
Status: Offline
Post: #3
RE: DSM-V Last revision was January 2011

(Note mariolovesbowser how no one clicks on my threads) 40 "looks" and one post in 8 hours) bump

and I actually want to know to give input during public comment period...

This post was last modified: 05-16-2012 12:15 AM by windy.

05-16-2012 12:13 AM
Find all posts by this user Quote this message in a reply
windy
Activist
***


Posts: 6,636
Group: Activists
Joined: Apr 2008
Status: Offline
Post: #4
RE: DSM-V Last revision was January 2011

24 hours and still one post.

05-16-2012 03:46 PM
Find all posts by this user Quote this message in a reply
Lang



Posts: 6,559
Group: Registered
Joined: Feb 2006
Status: Offline
Post: #5
RE: DSM-V Last revision was January 2011

It probably will not change my life very much.


Brett Erlich Wrote:
Chris Christie is so fat, I was giving a presentation and he ate my pie charts.




All human beings are born free and equal in dignity and rights.   They are endowed with reason and conscience and should act towards one another in a spirit of brotherhood.

PROUD DISRUPTIVE DINGBAT

http://Siochanna.deviantart.com
http://neversubmit.xanga.com/

05-16-2012 09:25 PM
Visit this users website Find all posts by this user Quote this message in a reply
windy
Activist
***


Posts: 6,636
Group: Activists
Joined: Apr 2008
Status: Offline
Post: #6
RE: DSM-V Last revision was January 2011

If the DSM-V stays as it is - version on Autism Spectrum Disorder Jan. 2011 - are you worried?  See poll and read first post, if you please.

05-17-2012 03:27 AM
Find all posts by this user Quote this message in a reply
windy
Activist
***


Posts: 6,636
Group: Activists
Joined: Apr 2008
Status: Offline
Post: #7
RE: DSM-V Last revision was January 2011

windy Wrote:
If the DSM-V stays as it is - version on Autism Spectrum Disorder Jan. 2011 - are you worried?  See poll and read first post, if you please.


Just goes to prove (never know who and why threads get ignored)
3 posters in 3 days... see marioloves bowser ?!

This post was last modified: 05-18-2012 03:17 AM by windy.

05-18-2012 03:15 AM
Find all posts by this user Quote this message in a reply
windy
Activist
***


Posts: 6,636
Group: Activists
Joined: Apr 2008
Status: Offline
Post: #8
RE: DSM-V Last revision was January 2011

windy Wrote:

windy Wrote:
If the DSM-V stays as it is - version on Autism Spectrum Disorder Jan. 2011 - are you worried?  See poll and read first post, if you please.


Just goes to prove (never know who and why threads get ignored)
3 posters in 3 days... see marioloves bowser ?!


Time for the evening bump (no pun intended).

05-19-2012 12:28 AM
Find all posts by this user Quote this message in a reply
skyblue1
Activist
***


Posts: 20,691
Group: Activists
Joined: Jan 2008
Status: Offline
Post: #9
RE: DSM-V Last revision was January 2011

I will see your bump and raise you a bump.


I meet all the criteria for the Revised January 26, 2011
Autism Spectrum Disorder definitions.

Dont care if the new DSM makes me just an HFA

Dont understand why they keep revising the DSM, so frequently.


I'm not anti-social; I'm just not user friendly
05-19-2012 01:01 AM
Visit this users website Find all posts by this user Quote this message in a reply
Shoneh



Posts: 288
Group: Registered
Joined: Oct 2009
Status: Offline
Post: #10
RE: DSM-V Last revision was January 2011

My understanding is that anyone previously diagnosed with any PDD will be grandfathered in.  However, under the new criteria, I would probably be borderline ASD instead of borderline between Asperger's syndrome and PDD-NOS.  They're introducing a new category called "subclinical AS traits" that's a non-diagnosis for people who have enough autistic traits to be outside the range of "normal variation" but not enough to be diagnosed with ASD under the new criteria.  I imagine that it could cause difficulty obtaining accommodations for people at the milder end of the spectrum who need them, especially if they continue to not recognize SID or SPD as a diagnosis.

By the way, you can comment on the proposed new criteria at http://www.dsm5.org and your comments will be read by the committee.

05-19-2012 01:15 AM
Find all posts by this user Quote this message in a reply
windy
Activist
***


Posts: 6,636
Group: Activists
Joined: Apr 2008
Status: Offline
Post: #11
RE: DSM-V Last revision was January 2011

Shoneh Wrote:
My understanding is that anyone previously diagnosed with any PDD will be grandfathered in.  However, under the new criteria, I would probably be borderline ASD instead of borderline between Asperger's syndrome and PDD-NOS.  They're introducing a new category called "subclinical AS traits" that's a non-diagnosis for people who have enough autistic traits to be outside the range of "normal variation" but not enough to be diagnosed with ASD under the new criteria.  I imagine that it could cause difficulty obtaining accommodations for people at the milder end of the spectrum who need them, especially if they continue to not recognize SID or SPD as a diagnosis.

By the way, you can comment on the proposed new criteria at http://www.dsm5.org and your comments will be read by the committee.


Yes, I am looking to try and use some of the data from on here for my comments.

I see 4 votes for yes and 4 for No...but the ones that are worried have not said why they are on here...
I imagine there may be someone but have not met any one yet that is worried... hence the poll ....Are you worried?

( I guess poll is private but there are more votes than posters... I think so far the wording is pretty good, any one think it isn't?)

05-19-2012 02:44 AM
Find all posts by this user Quote this message in a reply
Genesis



Posts: 16,551
Group: Registered
Joined: Jan 2011
Status: Offline
Post: #12
RE: DSM-V Last revision was January 2011

skyblue1  Wrote:
I will see your bump and raise you a bump.


I meet all the criteria for the Revised January 26, 2011
Autism Spectrum Disorder definitions.

Dont care if the new DSM makes me just an HFA

Dont understand why they keep revising the DSM, so frequently.


I never knew the DSM existed till I saw a 1994 copy one time -_-


Red Line
Rolleyes Smile  
叙事詩 
もっとエピック
Actual Date of Joining AFF: Feb 2009
Eamus Catuli [Must we be normal?]
05-19-2012 05:27 AM
Visit this users website Find all posts by this user Quote this message in a reply
Shnoing



Posts: 2,113
Group: Registered
Joined: Jan 2007
Status: Away
Post: #13
RE: DSM-V Last revision was January 2011

I think I don't meet A3 and D criteria at the moment, that is while I have a job. As soon as I'd be unemployed, I'd meet all of the criteria.
What bothers me, though, is that I don't understand what the frame of reference in A is. What's the "appropriate [to] developmental level" of someone with a doctorate and an IQ in the 99th percentile: other doctors with high IQ or a "normal" person with IQ = 100. Because compared to the last ones there won't be deficits, while compared to other doctors there are many.

05-19-2012 03:47 PM
Find all posts by this user Quote this message in a reply
Shoneh



Posts: 288
Group: Registered
Joined: Oct 2009
Status: Offline
Post: #14
RE: DSM-V Last revision was January 2011

windy Wrote:
I see 4 votes for yes and 4 for No...but the ones that are worried have not said why they are on here...
I imagine there may be someone but have not met any one yet that is worried... hence the poll ....Are you worried?


I'm not entirely sure whether I'd meet the reciprocity criterion.  I am known to wind up having one-sided conversations, but I'm not sure if it's really extreme enough to warrant a check there.  Also, the part about impairing daily functioning is very subjective.  I was undiagnosed throughout childhood and most of college, and I live independently and make a pretty good salary without requiring any services.  That being said, the DSM-IV AS criteria had a similar item and it didn't prevent me from being diagnosed.

05-20-2012 04:43 PM
Find all posts by this user Quote this message in a reply
Post Reply  Post Thread 

View a Printable Version
Send this Thread to a Friend
Subscribe to this Thread | Add Thread to Favorites

Forum Jump: