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Room 101: For Rotten Autism Sites - Printable Version

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Room 101: For Rotten Autism Sites - Wolfy - 02-11-2005 05:18 AM

Greetings,

In your search for information you are bound to come across some real stinkers of sites.  Post them here for all to see.


- Wolfy - 02-11-2005 05:21 AM

http://theemergence site.com/Tech/TechIssues-Autism-OCD-Aspergers-ADD.htm

Judge for yourself.  I was in the middle of writing to the guy but I thought if he read my email he might cry or something - lol  :twisted:


- mom2aspiegirl - 02-11-2005 06:31 AM

I don't know of any websites off the top of my head, but it seems like anytime I read an article about autism in any parenting magazine, newspaper, etc the stories are the exact same.
Billly was a perfectly normal, happy baby and then one day  around 18 months of age he started losing speech, wouldn't make eye contact, yadda yadda yadda........

I can't relate to any of this with my child. Can't anyone write about anyother type of autism? We knew from the day she was born that she was just like my husband and my brother in law, we just didn't know that they had aspergers.

Annie


- gwynfryn - 02-12-2005 02:01 AM

Well maybe...but Wolfy, where you perhaps refering to sites like AI?


- Wolfy - 02-12-2005 02:22 AM

Not sure what you mean - theres nothing wrong with AI as far as I know.  What made you ask that?

I was talking about information sites like the one I posted above.


- jerrynewport - 02-12-2005 10:14 AM

So many bad sites, so little time.....

           My unfavorite is the one for FAAAS, aka "Families afflicted with Asperger Syndrome"

                                        Jerry


- Amy - 02-12-2005 11:01 AM

Is that the one with a picture of a head opening up? It is ghastly.


- RamenDragonElok - 02-12-2005 03:21 PM

Man, the one Wolfy posted seriously sucks...we all love amateur psychoanalysis of large groups one hasn't even met.  Mayhap you could return the favor, tell him he only thinks that way because of an unresolved Oedipus Complex.


- Amy - 02-12-2005 05:22 PM

From The Emergence Site -

"That Autism, OCD / OCPD, Asperger's Syndrome, and ADD are the same illness contracted at different ages; more so, that the age of onset determines what will distract the person."

How horribly innaccurate, it makes me cringe. :no


- jerrynewport - 02-12-2005 07:12 PM

Amy Wrote:
Is that the one with a picture of a head opening up? It is ghastly.


        No, but this one has a bust of a head with one hand on the top, in apparent anguish. It is a truly nauseating site, devoted to families who play the victims of "us."

         Worse yet, it hawks the writing of Maxine Aston, who has publicly said that asperger's should be legal grounds to declare somebody an unfit parent.

                                   Jerry Newport


- Lili Marlene - 02-15-2005 05:05 AM

Are Maxine Aston's words in print anywhere, Jerry? I'd like to know the details of where and when she made that statement.


- TheASman - 02-15-2005 06:13 AM

jerrynewport Wrote:

Amy Wrote:
Is that the one with a picture of a head opening up? It is ghastly.


        No, but this one has a bust of a head with one hand on the top, in apparent anguish. It is a truly nauseating site, devoted to families who play the victims of "us."

         Worse yet, it hawks the writing of Maxine Aston, who has publicly said that asperger's should be legal grounds to declare somebody an unfit parent.

                                   Jerry Newport


I think you and amy are talking about the same site!!

http://www.faa as.org

A truly disgusting site. Aspophobic in the extreme!


- TheASman - 02-15-2005 06:17 AM

http://www.aspar .klattu.com.au/


another site.,  Apparently has gotten some irate aspies writing them already


- Lili Marlene - 02-15-2005 07:47 AM

Here is a quote from that appalling FAAS web site

Quote:
"Is anyone listening?...  We, the families with our blistered hearts and souls and damaged psyche, are the end-product of undiagnosed and untreated Asperger's Syndrome.  How many families are suffering out there?  The feelings of rejection and loneliness plays a major role in the lives of the Aspergers' family.  You and your feelings are not recognized by the afflicted person. "


This reminds me of a piece of advice that I once read, from someone who works as a marriage counsellor "We are all ultimately responsible for our own happiness, and we all have to accept responsibility for our own state of mind".

If being in a relationship with someone with AS is so terrible, why don't these whingers simply remove themselves from these relationships?


- Noetic - 02-15-2005 10:46 AM

Amy Wrote:
From The Emergence Site -

"That Autism, OCD / OCPD, Asperger's Syndrome, and ADD are the same illness contracted at different ages; more so, that the age of onset determines what will distract the person."

How horribly innaccurate, it makes me cringe. :no

This really reminds me of Diane Kennedy's book on ADHD and Autism. Never read such utter nonsensical drivel in my life!


- Noetic - 02-15-2005 10:50 AM

Lili Marlene Wrote:
This reminds me of a piece of advice that I once read, from someone who works as a marriage counsellor "We are all ultimately responsible for our own happiness, and we all have to accept responsibility for our own state of mind".

If being in a relationship with someone with AS is so terrible, why don't these whingers simply remove themselves from these relationships?

This has been asked a few times on one of the most notorious (to my knowledge) "anti-AS fora" on Delphi, "AS Partners". (Seriously don't go there if you're easily offended, and don't bother giving them a piece of your mind, they just won't post it) Strangely enough the questions were either ignored or attacked  :roll:

IMHO people like that love to have their "***-pie" (as they call their spouses) around so they have someone to put down and ridicule for their own perverted amusement.  :cry:


- Wolfy - 02-15-2005 02:13 PM

TheASMan Wrote:
http://www.aspar .klattu.com.au/


another site., Apparently has gotten some irate aspies writing them already


Thats a good one.  They say that aspies are claiming that they are discriminating against them.  I wonder if that is true or they just chose to take it that way when they were corrected.  Only one way to find out...


- Wolfy - 02-15-2005 02:45 PM

Ok - I just wrote them a nice email - lets see how that goes.

Quote:
Greetings,

Your site was mentioned in a recent discussion over some of the worse autism-related sites on the web - so I thought I would take a look.

Advocacy aside for the moment, if you can stand a bit of constructive criticism then I must say that your definition of Aspergers Syndrome is clearly written by someone who has no idea what they are talking about except for the basic 'surface' recognition i.e. outward symptoms.  Autism (including AS) is a neurological (or neuro-biological) condition which is present from birth and thought to be genetic.  Your site states or at least gives the impression that it is purely the result of a person's up-bringing.  I refer to the quote on your site which reads 'It's just that those of us who were raised by odd, eccentric parents now have a new name for the old "Family Problem".'  This is absolutely false.  Although those who have support with their problems stand a better chance of being sucessful in life, it does not negate the fact that those problems are there in the first place.  Surely you see the logic in that.

If you want to give an effective advocacy service, you really have to know what you are talking about (which you clearly don't).  I also noticed on your site that some AS visitors claimed discrimination.  At first glance I would not argue this - just that you dont know what AS is.  Most of us take offence when people try to claim that our problems are the result of bad parenting or even just bad behaviour because this is the general view that alot of people have and it is the source of much prejudice - so I can definately see why those other visitors argued their points the way they did.  I, however, prefer to present intelligent arguments in the hope of changing the views of the person I'm talking to.  Hopefully you will have some thigns to think about.  I don't know what the level of awareness in Austrailia is so you might want to look to other countries for information.  Here is a link to get you started : http://www.nas.org.uk




- Lili Marlene - 02-15-2005 04:38 PM

I think the question of the relationship between AS and misbehaviour of different kinds could be an interesting discussion to have. It might bring up questions about free will and morality and genetic determinism and one could also question the assumption that misbehaviour is necessarily a bad thing.


- Lili Marlene - 02-15-2005 04:54 PM

Here's a quote from the Australian web site that whinges about aspie parents

Quote:
Our parents often...

could not "know" us or give us recognition

could not "mirror" us

did not know how to hold us

did not know how to touch us

held us captive to their monologues and obsessions

did not recognise our boundaries ie that we were different from them


I could say the same things about my neurotypical parent. I was raised as though I was an NT like my parent. I was held captive to my NT parent's obsession with attending social events. I remember many long boring miserable hours spent at noisy parties, wishing I could find something interesting to read or play with.

If I had the time I would start a whinger web site for aspie offspring of NT parents.

Quote:
Aspar does not receive
funding or subsidies for its pioneering work.

and I don't think it deserves to either.


- Lili Marlene - 02-15-2005 05:29 PM

Here's an email the probably wont receive any reply:

Quote:
Dear Judy,

I didn't notice any information on your home page about the shortcomings of neurotpical parents as parents of aspie kids. You only seem to be presenting one side of the picture on your web site. You don't mention the mind-numbing lack of intellectual stimulation in many homes run by NT parents, the noise and the chaos, the lack of basic understanding and empathy with aspie offspring displayed by many neurotypical parents, the intolerance of natural autistic behaviours and the denial of the aspie child's real personality and identity. You have forgotten to mention warm and loyal bonds between aspie parents and their aspie offspring, and the many things that some aspie parents do to foster the intellectual development of their offspring. Why are you making so many important omissions? You seem to think all of the skills relevant to parenting are essentially neurotypical skills.

regards

Lili.




- Catffienated - 02-16-2005 08:06 PM

http://autism. 2-b-well.org/
The comment "Ryan is repeating many things he hears" is dumb. Isn't that echolia?
I want to hurt Jean though. Traitor. AAAAAAAAAAAAAahhhh...rrrrrrrrg! I hate autistic people being pro-cure, let alone making $ off of it!


- Jockey - 02-16-2005 10:25 PM

echolalia is a normal stage in the development of nts: it lasts longer (maybe because it has more purpose) in autists.


- jerrynewport - 02-17-2005 01:26 PM

Lili Marlene Wrote:
Are Maxine Aston's words in print anywhere, Jerry? I'd like to know the details of where and when she made that statement.


           I heard it from a friend who is in AANE and ANI. I will ask him about that.

                                   Jerry


- Lili Marlene - 02-21-2005 08:32 AM

I share Jerry's suspicion that many NT partners in dysfunctional relationships with aspies bring their own baggage of issues with them. I seem to know a lot of drunks who have been attached to aspies at one stage or another. And NTs who like to play around and thus find having a socially naive partner a great convenience.

I hate the way Aston has turned this issue into a feminist issue, based on the assumption that most aspies are males.

Did anyone notice any sign of evidence in that article that aspies are actually more violent than NTs? I know we have tempers, but that is not the same as saying we are violent. Another NT assumption about aspies based on NT psychology, not AS psychology.

I gave have roundly criticised Attwood for the piece of writing of his that Aston cited in this article. He did a lot of damage to our image in that interview.


- Brightman - 02-21-2005 04:46 PM

I gave have roundly criticised Attwood for the piece of writing of his that Aston cited in this article. He did a lot of damage to our image in that interview.

He must have done a lot of damage to his own reputation amongst the Autistic community and their supporters?


- Lili Marlene - 02-22-2005 12:55 PM

Oh dear, I've made a mistake. Aston did give a proper reference for this quote

Quote:
Attwood1 describes a spectrum of Asperger's behaviour, from the passive to the arrogant and aggressive, and it is likely to be the latter who perpetrate domestic violence.

and it wasn't the piece of writing that I thought she was refering to. I have read a lot of the book cited and I don't recall much about what Attwood wrote in it about any spectrum of Asperger's behaviour in relationships.

I honestly wouldn't describe either my own or my aspie husband's behaviour in our relationship as either passive or arrogant and aggressive. Sure enough, our behaviour might look unusual to outsiders, but we like it. There is no violence in our relationship.

When I had a couple of NT boyfriends before I met my husband, one certainly could have described my behaviour as passive. I showed not much enthusiasm or initiative in those relationships because I wasn't sure that I wanted to be in them and I didn't know what was going on half the time. The more I read about relationship problems that are supposed to be caused by AS the more I suspect that the main problem is incompatibility between NT and AS rather than AS itself. But most of the experts, including Attwood, write that people with AS have problems with relationships, but they don't tell the full story; people with AS have problems with relationships with neurotypical people.

Here is a link to an Attwood interview about AS and relationships which I do not like, because he describes people with AS as being inadequate in any kind of relationship. I know it isn't the truth.
http://www.autismconnect.org/core_files/interviews/transcripts/tony_attwood.htm


Re: Maxine Aston article on "fitness of male spouses wi - Aeolienne - 03-01-2005 04:29 PM

Maxine Aston Wrote:
Living with Asperger's

Jul 11, 2002

Research supported by the National Autistic Society into the intimate relationships of couples where one partner is affected by Asperger's shows that men with the condition tend to choose partners who are maternal, strong, and with nurturing qualities, often older than themselves. Women are attracted to men who appear to be kind, gentle and slightly immature, and who flatter with obsessive attention.


Kind and gentle: no problem with either of those (but who would be attracted to a man who was unkind and insensitive?)
But immature? No way would I find that attractive. I never liked to see adults behaving immaturely when I was a child (that's why I disliked clowns). My main reasons for giving up on the AS support groups in Windsor and Exeter was because they were dominated by certain immature, annoying individuals - so much for Einstein being a typical Aspie!
And as for obsessive attention - not sure what is meant by this. I personally have no wish to be showered with fripperies and knick-knacks. Can't understand why girls are supposed to get all excited about a bloke owning a particular model of car.


- Gee - 03-01-2005 07:59 PM

i hate that faas site to i aslo read there terrible aspie bashing book about famile sliving with adults with AS.


Re: Maxine Aston article on "fitness of male spouses wi - jerrynewport - 03-01-2005 08:21 PM

Sjjungfru Wrote:
[quote=jerrynewport]

Living with Asperger's

Jul 11, 2002

Research supported by the National Autistic Society into the intimate relationships of couples where one partner is affected by Asperger's shows that men with the condition tend to choose partners who are maternal, strong, and with nurturing qualities, often older than themselves. Women are attracted to men who appear to be kind, gentle and slightly immature, and who flatter with obsessive attention.


         Hey!!  I didn't write that. Maxine Aston did. I quoted her. I get enough criticism without being blamed for stuff I didn't write. Please be more careful about how you quote what people say.

                                 Jerry Newport


- Lili Marlene - 03-02-2005 06:27 PM

I'm not sure what kind of women Aston was referring to in that passage; women who are partners of AS males? women who are AS themselves? The writing was so vague that it is hard to hold her accountable for the stuff she wrote. Very convenient. I'ts all such a huge generalisation that no sensible person would take it seriously, one would hope.


- Atlantian_1 - 03-07-2005 05:09 PM

Maxine Aston's book is quite a bit better than the article, although of course it was written primarily with NT wives as the target audience, with their interests in mind, not the husbands.
An example (page 74) "For some women the main plus point they mention is their (Aspie) partner's gentleness - they feel safe in the knowledge that he is unlikely to ever become violent or hurt them. For others, the most positive thing about them is their faithfulness and the way they do not flirt or appear interested in others sexually."


Another Truly rotten site.... - jerrynewport - 03-11-2005 01:54 AM

Only in FLORIDUH......

             Check this one out:

                          http://www.gnd .org

          GND = Jeff Bradstreet, leading proponent of chelation, who claims to have "successfully treated" over 1600 autistic children.

         It is cloaked in fundamentalist Christian packaging.
The opening video is priceless but I really love the part about Dr Jeff that touts his "knowledge of scripture" as his main qualification to deliver us all from autism.

        Hey, why stop at a cure? Not only do Dr Jeff's clients speak, some of them wind up speaking in tongues!!

                           Enjoy

                      Jerry Newport


Re: Another Truly rotten site.... - MishLuvsHer2Boys - 03-11-2005 02:33 AM

jerrynewport Wrote:
Only in FLORIDUH......

             Check this one out:

                          http://www.gnd .org

          GND = Jeff Bradstreet, leading proponent of chelation, who claims to have "successfully treated" over 1600 autistic children.

         It is cloaked in fundamentalist Christian packaging.
The opening video is priceless but I really love the part about Dr Jeff that touts his "knowledge of scripture" as his main qualification to deliver us all from autism.

        Hey, why stop at a cure? Not only do Dr Jeff's clients speak, some of them wind up speaking in tongues!!

                           Enjoy

                      Jerry Newport


Yeah I see several parents on Babycenter (a parenting site) ASD Board that are 'clients' of his. Ugh!


- ozymandias - 03-11-2005 03:41 AM

Speaking in tongues :shock:   SO what's special about that?  Hell, I do that every morning before the caffeine kicks in!!!  :twisted:


- TheASman - 03-11-2005 05:28 AM

http://www.newlife learning.com/

here is another one. and it seems that stephen shore is featured there!

What is even more amazing , is that stephen shore sits on the board of unlockingautism.org!!!!   the worst of the worst


- jerrynewport - 03-11-2005 12:55 PM

TheASman Wrote:
http://www.newlifelearning.com/

here is another one. and it seems that stephen shore is featured there!

What is even more amazing , is that stephen shore sits on the board of unlockingautism.org!!!!   the worst of the worst


          Steve Shore is a mixed blessing. He doesn't publicly buy into any of the bizarre theories of the boards he is on but he will sit on literally any board in order to use it to line up more speaking appearances. He doesn't get it and I have given up trying to educate him on how what he does is not in our interests. He is a professional autistic poster boy.

          Rather than try to find other peers who can sit on boards and actually make a contribution, Steve is happy to sit on every board in sight and be everyone's token. Totally self serving. I don't make a habit of criticizing my peers in public but this is a warranted exception.

          On the other hand, his presentations and books are very good and he has never embarassed us as some public auties have done.

               Nobody's perfect.

                              Jerry Newport


- TheASman - 03-11-2005 02:51 PM

jerrynewport Wrote:
          On the other hand, his presentations and books are very good and he has never embarassed us as some public auties have done.

               Nobody's perfect.

                              Jerry Newport


No that is true,   I wonder which public auties you refer to??  You never gave one way or another about my protests. I wonder if you are refereing to that? if so please explain what you think and why.


- Aeolienne - 03-11-2005 03:23 PM

Wolfy Wrote:
Room 101


Some property developers are building some luxury flats on a brownfield site next to Exeter Central station. The name of the development? Platform 101.

"We shall meet in the place where there is no darkness..."


- jerrynewport - 03-12-2005 05:23 AM

TheASman Wrote:

jerrynewport Wrote:
          On the other hand, his presentations and books are very good and he has never embarassed us as some public auties have done.

               Nobody's perfect.

                              Jerry Newport


No that is true,   I wonder which public auties you refer to??  You never gave one way or another about my protests. I wonder if you are refereing to that? if so please explain what you think and why.


         I never said anything about what you did because I never noticed it. I certainly don't think protesting embarasses us. I referred to behavior on the part of people not on this list which has set us back, particularly the behavior of some people who were board members of autism organizations.

                    Jerry


- Lili Marlene - 03-12-2005 05:57 PM

Quote from http://www.newlife learning.com/
"Stephen concluded: For anybody on the spectrum there is always a great possibility to improve and move to a lighter end of the spectrum. The challenge is to move them as fast and as far as we can. "

Stay away from THE DARK SIDE! :shock:

Chelation quackery sites are not such a joke, in my opinion. I have read that chelation therapy is unproven and can cause dangerous side effects such as liver or kidney problems. You can't live too long without liver or kidney function.


- Amy - 03-12-2005 09:18 PM

They are basically pumping heavy metals into the childs body, as it is supposed to attract the heavy metals, such as mercury or lead, that are already there.
Who would agree to their child being deliberately injected with heavy metals? :-(


- Wolfy - 03-13-2005 04:55 AM

Check this one.

You just have to read their chat rules.

http://www.support4hope .com/autism/aspergers.htm


- Raeth - 03-13-2005 02:07 PM

Wolfy Wrote:
Check this one.

You just have to read their chat rules.

http://www.support4hope .com/autism/aspergers.htm

I've read them, but I can't see how they make it a rotten site? Could you quote something?


- Lili Marlene - 03-13-2005 04:41 PM

Quote from Support4Hope

Quote:
Some with this affliction are found to be brilliant, absent minded, eccentric, socially enept, sarcastic, and sometimes negative, there are a lot more symptoms of this disorder which makes it much harder to detect without a diagnosis from a professional.

I might be smart-arsed, scatter-brained old kook, but at least I know how to spell!


- Brightman - 03-13-2005 07:26 PM

From: http://www.support4hope .com/autism/aspergers.htm

Asperger's Syndrome is a term that is used for a child or an adult that has some features of autism but does not have the actual disorder.

:roll:



In a socially interactive situation, many people who have Asperger's have problems when it comes to keeping eye contact with a person they are talking to. For example, they may say hello to you and then look away in another direction, and you may get the idea that they are not talking to you, that maybe they are talking to someone else, this is what is known as a "gaze avoidance."

This is virtually impossible in Brighton  :lol:

/weak pun


- Wolfy - 03-14-2005 05:52 AM

Read the defnitions.  The words 'devastating' is definately mentioned.

But I stand by what I said about the chat rules.  I cant be bothered going back to quote them but its basically a case of 'You are here to talk about poor you and be patronised.  Anything else is a violation of our rules.'


- Lili Marlene - 03-14-2005 06:19 PM

In the chat rules it says they will not tolerate arguing and you can't say $#@%, so that excludes me for sure.


- Raeth - 03-15-2005 12:40 AM

Yeah, there is some serious over-ruling there. I did notice that...


- Lili Marlene - 03-15-2005 04:20 AM

I think this qualifies as a rotten autism web site at least because I can never get any of the sidebar links to work. Is it a subscription only site?
http://www.tonyattwood.com.au/


- Brightman - 03-15-2005 09:00 AM

because I can never get any of the sidebar links to work

Works fine for me  :?



What are the parameters for what qualifies as a rotten site?

Also, what right will we have to complain about someone elses harsh opinion of this site if we are slagging off others?


- TheASman - 03-15-2005 07:38 PM

Brightman Wrote:
Also, what right will we have to complain about someone elses harsh opinion of this site if we are slagging off others?


jeesh

always a killjoy in the group eh?


- Amy - 03-15-2005 10:06 PM

If someone has a point, I dont mind.


- TheASman - 03-15-2005 10:08 PM

I was trying to be humourous as well

I am sure brighty got it

LOL


This one is pretty revolting - BluesMom - 03-16-2005 04:00 PM

http://www.autismwebsite .com/ari/index.htm

Let it be said that I am not a believer in the theory that vaccines (or mercury poisoning) cause autism.  But this site is particularly egregious, not only because it dwells on that theory, but also because it propounds the need to "prevent and treat" autism through an ancillary program, "Defeat Autism Now."  

jmb (mom of Blue, 4 1/2, who thinks being autistic is way cool)


- MishLuvsHer2Boys - 03-16-2005 04:07 PM

Ok, Generation Rescue needs to find a home on here since I can't stand them and their statements that Autism, ADHD and such is a myth and is just different levels of mercury poisoning and they even have rescue angels in many areas to help with info and help chelating your child and testing them... so here it is:

http://www.generation rescue.org


- Lili Marlene - 03-16-2005 06:37 PM

One thing that I find so thoroughly irksome about these autism web sites is the emotive language, the kind of language that conjures up mental images of someone wringing out their hanky. Does this particularly apply to autism, or are all web sites about kiddie disorders similarly overwrought?


- jerrynewport - 03-21-2005 09:09 PM

Lili Marlene Wrote:
One thing that I find so thoroughly irksome about these autism web sites is the emotive language, the kind of language that conjures up mental images of someone wringing out their hanky. Does this particularly apply to autism, or are all web sites about kiddie disorders similarly overwrought?


          I reluctantly agree with you. Lots of parents are big on self-pity. They love to play the victim.

                                  Jerry Newport


- BluesMom - 03-21-2005 09:25 PM

Lili Marlene Wrote:
One thing that I find so thoroughly irksome about these autism web sites is the emotive language, the kind of language that conjures up mental images of someone wringing out their hanky. Does this particularly apply to autism, or are all web sites about kiddie disorders similarly overwrought?


I think it is pervasive in our public discourse these days -- everything feels like a "heartbreaking affliction" when you hold the expectation that everything in life should be perfectly aligned with societal expectations and directly under your control -- and that you are a victim if this is not the case.  If it's not the "heartbreak" of autism, it's the heartbreak of deafness or food allergies or just about anything else you can think of.  

And where do they find these TV newscasters who can seemingly summon tears to their eyes on demand, as they interview the parents of the poor afflicted autistic child (or the child with a club foot or a congenitally dislocated elbow or what have you)?  

I wish all those people could understand that my autistic child is FABULOUS.  The only time I felt afflicted was during the diagnosis period when for about a week, the doctors announced that they needed to rule out a brain tumor.  The minute I found out that, no, it was "just" autism, I breathed a sigh of relief and got on with enjoying my weird, wonderful, magical, brilliant, different-from-everyone-else-on-the-planet child.  

But even more importantly, I wish that across the board, we could stop being a society of eager victims, rushing to identify with the latest pathology or syndrome so that we can massage each others self-pity about it.  What is that all about?


- Nemidaelius - 03-23-2005 12:17 AM

I have thought about this for some time.  I am not sure if this is a recent phenomenon, but it seems peop;e will do anything to put themselves in a position of apparent disadvantage or hardship because it gives them ability to bargain/converse from a position of moral strength.  that is how it seems to me anyhow.  It doesnt make much sense.


- Aeolienne - 03-23-2005 11:07 AM

Nemidaelius Wrote:
I am not sure if this is a recent phenomenon, but it seems people will do anything to put themselves in a position of apparent disadvantage or hardship because it gives them ability to bargain/converse from a position of moral strength.


Otherwise known as playing the sympathy card. Princess Diana was particularly fond if this. Watching the infamous Martin Bashir interview nearly a decade ago, I was reminded of Katie Roiphe's polemical book The Morning After: Sex, fear and feminism in which she critcized the willingness of feminists to embrace the role of the victim. Small wonder that Diana was hailed as some great feminist icon!


- MishLuvsHer2Boys - 03-23-2005 03:06 PM

Sjjungfru Wrote:

Nemidaelius Wrote:
I am not sure if this is a recent phenomenon, but it seems people will do anything to put themselves in a position of apparent disadvantage or hardship because it gives them ability to bargain/converse from a position of moral strength.


Otherwise known as playing the sympathy card. Princess Diana was particularly fond if this. Watching the infamous Martin Bashir interview nearly a decade ago, I was reminded of Katie Roiphe's polemical book The Morning After: Sex, fear and feminism in which she critcized the willingness of feminists to embrace the role of the victim. Small wonder that Diana was hailed as some great feminist icon!


Not sure whether it was always the sympathy card she was playing. She was only second in Charles' life, not first, to Camilla and Charles ruined that. I can't see how one could fault her unhappiness knowing that the man she married had rather married his mistress. Charles wasn't exactly innocent of adultery after all.


- Wolfy - 03-25-2005 12:36 AM

Greetings,

This dosent really qualify as an autism site but it pissed me off anyway :-

http://www.socialanxietyins titute.org/asperger.html


- Noetic - 03-25-2005 12:47 AM

Wolfy Wrote:
Greetings,

This dosent really qualify as an autism site but it pissed me off anyway :-

http://www.socialanxietyinstitute .org/asperger.html

Would you mind explaining why? Do you object to the claim that AS is not defined by anxiety and that having social anxiety doesn't make one autistic?


- Wolfy - 03-25-2005 12:53 AM

I object to the fact that it says anxiety is not a part of AS.  This is backed up by all the hyperactive amygdala stuff.  Plus - name me one person here who hasnt experienced severe anxiety as a result of their difficulties.  Name me 5 people here who havent expereinced SOCIAL anxiety as described on that page as a result of their difficulties.


- TheASman - 03-25-2005 01:00 AM

Hey  Wolfy

I often expereinced anxiety when if when I ot coffee at 7-11 and the coffee bar was full of people. Never really knew why. But the crowd of people is disconcerting.


- Nemidaelius - 03-25-2005 02:54 AM

CROWDS = EVIL


- Wolfy - 03-25-2005 03:46 AM

Greetings,

I'm sure everyone agrees with those last 2 replies - I know I do.
And those people are selling books on the subject.  It just underlines the amount of stupidity thats out there - and people are making money from it and peddling their false information to unsuspecting people.


- TheASman - 03-25-2005 04:01 PM

here is a web site that seems pretty innocuous
http://www.thekidsranch.org/

I even like the idea. it just when they explain autism and give statistics like


75-80% of persons with Autism also have mental retardation.

that is suspect


- Mich - 03-25-2005 04:43 PM

Nemidaelius Wrote:
CROWDS = EVIL


I know.


- Jay Shaw - 03-25-2005 06:25 PM

Quote:
Plus - name me one person here who hasnt experienced severe anxiety as a result of their difficulties.


I do not currently experience social anxiety. I tend to avoid social situations mainly because I believe that I have little in common with most people. Social situations do not make me feel particularly nervous, though.


- Noetic - 03-25-2005 09:06 PM

Wolfy Wrote:
I object to the fact that it says anxiety is not a part of AS.  This is backed up by all the hyperactive amygdala stuff.

Anxiety is common but it is not an integral part of it and not required for diagnosis, so there is nothing wrong with stating that while Social Anxiety is defined by anxiety, AS is not.

Putting AS on the same level as a psychological problem that can be overcome with therapy and is based on mild paranoia and self-consciousness seems bizarre to me. There's already enough people with AS who get told they just have some psychological problem (rather than AS) like social anxiety - why should there be more?


Quote:
Plus - name me one person here who hasnt experienced severe anxiety as a result of their difficulties.  Name me 5 people here who havent expereinced SOCIAL anxiety as described on that page as a result of their difficulties.

Sorry, I have no social anxiety. Yes I find eye contact unconfortable but I don't worry endlessly about what others think of me, feel constantly self-conscious and worry about people thinking I am ugly, clumsy, incompetent etc. etc.

I couldn't care less about what others think of me to be honest and most of the time I am not aware of people or what they may or may not think of me.

I know several people with AS or HFA (some in real, more online) who are the same.


- Amy - 03-25-2005 10:44 PM

I think social anxiety is not generally concerned with "what do other people think I look like" and that kind of thing. Maybe you are misunderstanding what social anxiety can mean.

It can be a fear of being near people, fearing that you will be harmed by them, that you are in danger, that you will be put under pressure to talk and have no idea what to say, or have speech difficulties in general.


- Noetic - 03-25-2005 11:01 PM

Amy Wrote:
I think social anxiety is not generally concerned with "what do other people think I look like" and that kind of thing. Maybe you are misunderstanding what social anxiety can mean.

I didn't only mention worries about what I look like, I included much more than that (it is worry about what others think of you, about having to perform etc.).

And I do know what social anxiety is (a German girl on an AS forum has both and I looked into this extensively at the time) and no I have none of those things. (I do have issues with experiencing emotion while being watched - like I can't feel enjoyment or surprise when opening gifts when being watched - but this is only with the very few people I am close to, because unless I am very close to someone I don't register them much in an emotional kind of sense)

Yes there are ways in which people can be "anxious about social encounters" for many reasons (including social ineptitude, multitasking, sensory issues etc.) but that is not the same as the diagnosis of "social anxiety". (See definitions below)

Quote:
Social anxiety is the fear of social situations and the interaction with other people that can automatically bring on feelings of self-consciousness, judgment, evaluation, and inferiority.

Put another way, social anxiety is the fear and anxiety of being judged and evaluated negatively by other people, leading to feelings of inadequacy, embarrassment, humiliation, and depression.

If a person usually becomes anxious in social situations, but seems fine when they are alone, then "social anxiety" may be the problem.

...

Specific and Generalized Social Anxieties

A specific social anxiety would be the fear of speaking in front of groups (only), whereas people with generalized social anxiety are anxious, nervous, and uncomfortable in almost all social situations.

It is much more common for people with social anxiety to have a generalized type of this disorder.  When anticipatory anxiety, worry, indecision, depression, embarrassment, feelings of inferiority, and self-blame are involved across most life situations, a generalized form of social anxiety is at work.

Symptoms of Social Anxiety Disorder

People with social anxiety disorder usually experience significant emotional distress in the following situations:

Being introduced to other people

Being teased or criticized

Being the center of attention

Being watched while doing something

Meeting people in authority ("important people")

Most social encounters, especially with strangers

Going around the room (or table) in a circle and having to say something

Interpersonal relationships, whether friendships or romantic

This list is certainly not a complete list of symptoms -- other feelings have been  associated with social anxiety as well.

The physiological manifestations that accompany social anxiety may include intense fear, racing heart, turning red or blushing, excessive sweating, dry throat and mouth, trembling, swallowing with difficulty, and muscle twitches, particularly about the face and neck.

Constant, intense anxiety that does not go away is the most common feature.

People with social anxiety disorder know that their anxiety is irrational and does not make "head" (i.e., cognitive) sense. Nevertheless, "knowing" something is not  the same thing as "believing" and "feeling" something.

Thus, for people with social anxiety, thoughts and feelings of anxiety persist and show no signs of going away -- despite the fact that socially-anxious people "face their fears" every day of their lives.

Only the appropriate therapy works to alleviate social anxiety disorder, the largest anxiety disorder, and the one that few people know anything about.


And:

Quote:
The Diagnostic and Statistical Manual of the American Psychiatric Association currently defines social anxiety disorder in the following way.  

Please note that while this definition of social anxiety is the most definitive and clear produced to date, there are several potential problems with this definition that will hopefully be addressed by the task forces, editors, and research coordinators of the association as time progresses.

The Current DSM-IV (Abridged) Definition:

A.  A persistent fear of one or more social or performance situations in which the person is exposed to unfamiliar people or to possible scrutiny by others.

The individual fears that he or she will act in a way (or show anxiety symptoms) that will be embarrassing and humiliating.  


B.  Exposure to the feared situation almost invariably provokes anxiety, which may take the form of a situationally bound or situationally pre-disposed Panic Attack.  

C.  The person recognizes that this fear is unreasonable or excessive.

D.  The feared situations are avoided or else are endured with intense anxiety and distress.

E.  The avoidance, anxious anticipation, or distress in the feared social or performance situation(s) interferes significantly with the person's normal routine, occupational (academic) functioning, or social activities or relationships, or there is marked distress about having the phobia.

F.  In individuals under age 18 years, the duration is at least 6 months.

G. The fear or avoidance is not due to direct physiological effects of a substance (e.g., drugs, medications) or a general medical condition not better accounted for by another mental disorder...[/b]


One BIG difference is that someone with AS will still have difficulty interacting with people even when the people are familiar (or the situation is familiar), whereas for someone with social anxiety, it is mostly strangers that tend to be a problem (because of the fear of judgement and scrutiny).


- Amy - 03-25-2005 11:16 PM

Social anxiety does not have to be diagnosed though or follow any criteria. In the same way that sadnes does not have a diagnostic criteria or need to be diagnosed, people can just feel it, and find it unpleasant.


- Noetic - 03-25-2005 11:37 PM

Amy Wrote:
Social anxiety does not have to be diagnosed though or follow any criteria. In the same way that sadnes does not have a diagnostic criteria or need to be diagnosed, people can just feel it, and find it unpleasant.

Yes Amy you can experience "anxiety in social situations" but the website Wolfy referred to deals with "Social Anxiety" according to the DSM, which is defined by worries about how you are perceived, performance anxiety etc.

You are free to make up your own definitions of social anxiety but please accept that when people are discussing what is commonly known as "Social Anxiety", you have to accept that what they say refers to this concept and not the concept you have decided to call "Social Anxiety".

It helps to make clear that you are not talking of *the* Social Anxiety when mentioning it, as this makes things a lot less confusing.

A woman once caused a lot of pain on a German forum because she, who has diagnosed HFA, hurt people by storming on there and declaring that AS was a severe personality disorder etc. etc.

Only weeks later did she admit that she did not understand what "Personality Disorders" were, but just defined PDs as "a personality that is a bit different".

If she had bothered to state this right from the start, she could have avoided a lot of hurt and anger.


- Amy - 03-26-2005 12:13 AM

"You are free to make up your own definitions of social anxiety but please accept that when people are discussing what is commonly known as "Social Anxiety", you have to accept that what they say refers to this concept and not the concept you have decided to call "Social Anxiety"."

I was talking about social anxiety, and not the website Wolfy mentioned. I am not "making up my own definitions" anymore than someone is entitled to say how they percieve sadness, or happiness, we don't need a diagnostic criteria for every emotion.


- Wolfy - 03-26-2005 01:51 AM

Noetic Wrote:
Anxiety is common but it is not an integral part of it and not required for diagnosis, so there is nothing wrong with stating that while Social Anxiety is defined by anxiety, AS is not.


I didnt say anything about AS being defined by anxiety.  My argument is that anxiety is a PART of AS.  It is a 'secondary effect' if you will.  Only a tiny handful dont experience it.  That site implies that all people with AS dont experience anxiety in social situations.  If one was to take that information at face value then they would misdiagnose about 99% of AS cases as social anxiety.

That is my argument.  I really dont knwo how you could have missed my point.


- Noetic - 03-26-2005 12:26 PM

Wolfy Wrote:
I didnt say anything about AS being defined by anxiety.  My argument is that anxiety is a PART of AS.  It is a 'secondary effect' if you will.  Only a tiny handful dont experience it.

I agree with that - but you listed a website that tries to differentiate AS from social phobia by stating that AS is not defined by anxiety as a "rotten autism site". And I'm sorry but AS isn't defined by anxiety, anxiety is not the central symptom in AS! Ergo, the website isn't wrong!


- Wolfy - 03-26-2005 01:48 PM

"If a person experiences undue and irrational anxiety, then the condition is not likely to be Asperger's."

That is like saying that people with AS dont have anxiety.  I have to go slightly out of context to explain this but lets take a look at OCD.  Every single person with AS has some traits of OCD.  Some have the full blown condition, others do not, but all have the same underlying obsessive nature due to the monotropic tendancies of the autistic brain.  What happens when you prevent a person from carrying out some ritual behaviour?  They get agitated and anxious.  This would be considered undue and irrational by an NT.  Does this anxiety mean they are not likely to have AS?


- Noetic - 03-26-2005 05:49 PM

Wolfy Wrote:
"If a person experiences undue and irrational anxiety, then the condition is not likely to be Asperger's."

That is like saying that people with AS dont have anxiety.

Admittedly, they could have worded it better, but are you not perhaps just reading things into it because of your own experiences (of being told you don't have AS because you had OCD or anxiety or something - I don't remember exactly)?

If you look at that text in context they were discussing what is "at the center" of a condition, and with social phobia (as with all anxiety disorders), extreme and often irrational anxiety about social performance is the core common symptom, whereas AS is not defined by any type of anxiety, be that social or otherwise.

Because the gist of that page is still true - if a person's main symptom is chronic anxiety and fears about being judged by others, then it is more likely to be social anxiety than AS.

With AS most do end up experiencing some type of anxiety and some do develop social anxiety, but while many with AS EXPERIENCE these types of problems, AS is not caused by humiliating social experiences and low self esteem (and can therefore not be therapied away).

Perhaps it might be a good idea to E-Mail them to ask if they could clarify this statement, so they change it to "while people with AS can experience anxiety alongside with their symptoms, or as a result thereof, the syndrome itself is not defined by persistent anxiety states, and the social difficulties people with AS can experience are real and not founded on irrational worries".


- Noetic - 03-26-2005 06:23 PM

Amy Wrote:
I was talking about social anxiety, and not the website Wolfy mentioned. I am not "making up my own definitions" anymore than someone is entitled to say how they percieve sadness, or happiness, we don't need a diagnostic criteria for every emotion.

Yes, but "social anxiety" is not an emotion, it is a term for a specific anxiety disorder, and that was the context in which both Wolfy and myself used the term.

"Social Anxiety" is defined by worries about how you are perceived and similar things, worries about being inadequate and so on. It is a diagnostic concept that describes a very specific type of anxiety disorder that is related to social encounters, in particular with unfamiliar people where you worry about being judged and about not being "good enough" for their expectations.

While some with AS also develop "social anxiety", the whole point of that page on the website Wolfy linked to is to point out that there is a big difference between AS and "social anxiety" (which is a common misdiagnosis for AS).

The big difference between the anxieties many with AS feel about social encounters, and Social Anxiety, is that the worries about social performance in AS tend to be founded on genuine social difficulties (and often linked to feelings of confusion, genuine difficulties in holding a conversation, in keeping up etc.), whereas with Social Anxiety they are usually based on exaggerated and sometimes imagined fears and imperfections a person may have.

A person with AS may have difficulty initiating or continuing a conversation, lack body language, become overwhelmed or confused in groups etc. but is not necessarily aware of this nor do they nexessarily need to be sad or anxious about these things (many get by just fine and just avoid those situations where they feel uncomfortable).

For example, a person with AS may attempt to hold a conversation with someone they don't know but struggle when the other person wants to do small talk.

A person with social anxiety disorder on the other hand may not even attempt that conversation because they believe they are not interesting enough, they are bad at talking to people or worry they will mess it up, people will laugh at them, make fun of them, they may dislike them, ridicule them and so on.

However, unless they ALSO have AS or similar, their "weaknesses" are imagined or grossly exaggerated and they are only uncomfortable doing these things with people they don't know (or where they don't know in advance that they will be liked). If they hold the same conversation with someone they are familiar with, they do very well and have no problems keeping up with the conversation, using body language, small talk and so on.


- Amy - 03-26-2005 07:59 PM

Noetic said "Yes, but "social anxiety" is not an emotion, it is a term for a specific anxiety disorder, and that was the context in which both Wolfy and myself used the term."

You are talking about a disorder, social anxiety disorder, I have not used that term in my posts.
I am talking about social anxiety, this is an emotional feeling of being anxious in social situations, I have not spoken about a specific disorder.
It is the difference between someone saying that they feel down, or depressed, and someone being diagnosed with clinical depression.


- Noetic - 03-26-2005 08:43 PM

Amy Wrote:
You are talking about a disorder, social anxiety disorder, I have not used that term in my posts.

Yes I was, and so was the website Wolfy linked to, hence my use of the same term when discussing whether this is or is not the same as AS.

Since you responded to my post and told me I didn't understand the subject, I assumed you had based this judgement on the same terms in which we were discussing social anxiety, i.e. in the context of the condition discussed on the website and by Wolfy and me.


- Wolfy - 03-26-2005 10:42 PM

Greetings,

Having read over the site again, I have to accept that it is more a matter of the wording than what they are actually saying.  

As a mater of interest, the very first time I went to a therapist, his initial reaction was social anxiety - that was before I was fully aware of AS.  All of that was swept aside though when I started having panic attacks - so the emphasis was purely on controlling the general anxiety.  The psychiatrist I saw a while ago only looked at the OCD.  He admitted that he had no understanding of AS or ADHD and said he would welcome information - so the next time I went I took him a whole pile of stuff.  At that point he seemed to have completely forgotten what he said before and seemed surprised that I dared to question his supreme knowledge (and didnt even look at any of the stuff I took him). Basically what they do is look at one set of symptoms and completely ignore the others (the therapist paid no attention to the OCD which completely astonished me).

So I do judge people harshly on these things.


- Catffienated - 03-30-2005 05:39 AM

http://www.generation rescue.org/


- Lili Marlene - 03-30-2005 06:15 AM

Quote from "Generation Rescue"

Quote:
autism and certain other neurodegenerative diseases can be fully and permanently reversed

Since when was autism a degenerative disease? Are we all getting more autistic every year? I guess that means one day I will disappear up my own ...  And I still haven't established contact with any person who has been fully "cured" of autism. Such people exist they say ....


On a different subject, there is one thing that really bothers me about the ASpar web site, that flogs the idea that aspie parents are incompetent parents, and that aspie parents are exactly the same as the web site owner's aspie mother (she obviously has issues).

The thing that bothers me about this site is the apparent credibility that this Judy Singer woman has within Australian academia, the AS community and the disability rights community. Have a look here and you will see what I mean http://www.aspar.klattu .com.au/aspjs.htm

Have I gotten too cynical, or is it true that there are stacks of people out there who mingle with autistics, may even be one themself, make a career out of autism, but despite all this they just go ahead and dump on us anyway?

Here's a quote from the site

Quote:
Judy has some AS traits, but like most children of parents with AS, cannot determine whether they are inherited or learned.


AS can be LEARNED? Then there's hope for us all!

It just goes to prove that one does not need to be an NT to be an autiphobe.


- Noetic - 03-30-2005 10:32 AM

Lili Marlene Wrote:
Here's a quote from the site

Quote:
Judy has some AS traits, but like most children of parents with AS, cannot determine whether they are inherited or learned.


AS can be LEARNED? Then there's hope for us all!


Well it sounds more like they are unable to tell whether a few mild AS-LIKE behaviours or personality aspects are actually AS traits or are due to growing up with an AS parent. (As human beings - in particular NTs who are more likely to imitate etc. - learn things from their parents and pick up habits and behaviours, that is not all that irrational a thing to speculate on)


- Lili Marlene - 03-30-2005 01:55 PM

When you have more than one child you discover how little influence family culture and values has on a child's personality and choice of activities, becuse they all grow up to be very different individuals from exactly the same family. We never taught any of our kids to watch tripe on TV such as "Neighbours" or "American Idol", in fact we heap *** on the kid when one of our children tunes in to this garbage, but it doesn't stop them watching! One of our kids occassionally copies AS stuff from another one of their siblings, but they do a very unconvincing imitation. At my time of life I've concluded that people grow up to be the people that they were programmed to be. Whether or not they hate themselves for it is determined by the way the person chooses to think about themselves, and the way society treats them.

If Singer has a child and a parent with AS, as is stated on the web site, she must have the gene, so I don't know why she clings to the idea that her AS traits are learned (and presumably unlearnable). She's got the gene and got some of the traits. She just needs to ask the Wizard of Oz for the courage to face the truth.


- Noetic - 03-30-2005 02:14 PM

Lili Marlene Wrote:
When you have more than one child you discover how little influence family culture and values has on a child's personality and choice of activities, becuse they all grow up to be very different individuals from exactly the same family. We never taught any of our kids to watch tripe on TV such as "Neighbours" or "American Idol", in fact we heap *** on the kid when one of our children tunes in to this garbage, but it doesn't stop them watching!

That's one thing I dread about having kids! Wink

But back to AS traits - yes of course as you said tastes and suchlike (as in waht they watch on TV) are largely not something they "get" from parents, but surely there are some aspects of behaviour, and some habits, that you pick up from parents (even if they are not biological parents for example)?

Yes in this particular case (Singer) I must admit it is unlikely that it is down to nurture, but there are also many things that kids do pick up from their parents, or learn from them.

For example every family I have ever had dinner with has their own little idiosynchratic ways as far as dinner table rules are concerned, and this seems to carry through at least to some degree (for example people whose families have lax rules generally don't fuss about with eating at the table when they have their own household etc.) so I could well see that an NT who grows up learning more Aspie-type ways of doing things (or structuring things) could pick up some of these ways.

Of course spending a lot of time with other families (sleepovers etc.) can help to broaden this but I suspect some people with AS who don't like being around lots of people may not go to great lengths to deal with having children over or organising for their kids to spend time at other parent's homes, so perhaps this also increases this effect?

(Of course if it is too extreme then it can go the other way!)


- Amy - 03-30-2005 03:00 PM

Peers can have a big influence on kids, especially with things such as popular tv shows and pop groups. If an NT kid feels pressure to fit in, they don't want to be the only one who hasn't watched the latest reality tv show.


- Noetic - 03-30-2005 03:19 PM

Amy Wrote:
Peers can have a big influence on kids, especially with things such as popular tv shows and pop groups. If an NT kid feels pressure to fit in, they don't want to be the only one who hasn't watched the latest reality tv show.

Yeah definitely, but that's also partly something I think an AS parent (who is more likely NOT to agree with the "herd" thinking and perhaps more likely not to want other kids in and out the house all the time) might influence to some degree, partly because there is less understanding of why on earth someone would want to watch something "just because everyone else does", and partly because from what some Mums wit AS said/wrote, it seems there might be a trend to have less children over or be less involved in out of school activities.

So to some degree even NT kids of an AS parent might get less "branding" from peers - on the other hand though it is also possible the "go the other way" to counteract what they perceive as the AS parents "lack of being cool" (perhaps more so than with NT parents), although again one great thing I notice with "more alternative" (not necesarily AS, just more open-minded, green types, anthroposophic/Waldorf etc.) families is that there seems to be so much more self-confidence going. Kids seem happier to be who they are, and less ashamed of not wearing what everyone else does etc.


- Noetic - 03-30-2005 04:19 PM

Lili Marlene Wrote:
I can think of one example of successful indoctirination of our kids with our beliefs. Our kids are all atheists, even more intolerant of religion than us adults are.

Well that's the odd thing with me, because both my parents are atheists (out of sheer disinterest and lack of need for religion more than anything) but they did briefly try to make an effort with me to give me a chance to make up my mind, i.e. they took me to church sometimes and a lot of our local kids' and youth facilities (such as summer camps etc.) are organised by the church and I was sent to a fair few of them. But even though until a certain point (I think it was when "the penny began to drop" for me as far as what religion was actually trying to make us believe!) I was quite "into" it as far as looking things up in the bible and answering questions from the bible etc., it never really stuck with me.

Mind you it was a very progressive vicar (we watched films about the Big Bang and got to debate whether evolution or creationsim made more sense etc.!) who organised most of these events, the only "bible bashers" that were around in that church were a couple who were quite young and rather over-eager with few facts to back up the things they so enthusiastically talked about.


Quote:
But I do not feel confident that this will stick for life, as I believe some scientists have found that religious belief is a highly genetically determined trait, but the genetic determinism effect kicks in at puberty, for some unknown reason. Maybe it is something to do with hormones interacting with the temporal lobes.

Yeah I read about that too, I don't think they have mentioned any particular region of the brain but they did find that there is a predisposition to strong religious belief. I wonder whether there is link between this and the strong belief in UFOs and extrasensory things?

If I remember correctly, Ursula has a brother she deems almost "crazy" who's into all sorts of conspiracy stuff, while she herself is religious. It would be interesting if there was a study looking at those two aspects, rather than just religious beliefs!


- Lili Marlene - 03-30-2005 07:02 PM

V.P. Ramachandran wrote a chapter about the temporal lobes and limbic bits, and their connection with religious fanaticism and asexuality in his book "Phantoms in the brain" (not sure about the title). Richard Cytowic and other synaesthesia experts link temporal lobe epilepsy with belief in supernatural stuff and UFO abduction experiences. Pretty wild stuff.


- Noetic - 03-30-2005 08:05 PM

Lili Marlene Wrote:
V.P. Ramachandran wrote a chapter about the temporal lobes and limbic bits, and their connection with religious fanaticism and asexuality in his book "Phantoms in the brain" (not sure about the title). Richard Cytowic and other synaesthesia experts link temporal lobe epilepsy with belief in supernatural stuff and UFO abduction experiences. Pretty wild stuff.

I've read a shorter version of that before in an article, the title sounds right (at least it sounds familiar!). I'll have a look for that book as I've just run out of reading material AGAIN and will be in Sheffield (= BIG bookstores) this week.


- Lili Marlene - 04-04-2005 11:42 AM

Some people at AI are tossing about the idea that the ASpar web site is villification of a group of people (autistic parents), and might possibly be running foul of Australia's villification laws. I'm not a lawyer, so I don't know.

Whadaya think?

http://www.aspar.klattu .com.au/


- Amy - 04-04-2005 12:25 PM

Wow, that was a very harsh read. :shock:

One point was -

Often, as children we ...

"knew there was 'something' wrong with our AS parent
    *

were often required to parent our parents
    *

often begged our NT parent to leave the AS parent
    *

were miserably unhappy and longed to escape as soon as possible"


As a mother of an NT daughter, with some traits, it was depressing and so negative.


- Lili Marlene - 04-04-2005 12:39 PM

Sites that are set up for people in some kind of relationship with people with AS seem to be totally unconcerned or oblivious of the fact that the NT partner in an AS/ NT marriage can definitely be "the bad guy" or "the less able partner". I guess it would be naive of me to expect more of these people. Crooks, illiterates and drunks do hook themselves up to aspies. I guess they hope to acquire virtue or skills by association.


- Catffienated - 04-18-2005 07:19 PM

http://www.gawker.com/news/media/new-york-times/nyt-unhealthily-obsessed-with-autism-040162.php

"NYT: Unhealthily Obsessed With Autism
Filed under Media : New York Times
After coming across yet another autism article in the Times (this time in the book reviews), were genuinely wondering: which came first, the epidemic or its media?

In the past few months, this unexplained brain disorder which skews language and social skills, and can unloose fierce obsessions has hit a media trifecta. Television news segments, a magazine cover story and a host of newspaper articles have discussed its symptoms, treatments, effects on families and, most controversially, its apparently soaring incidence.

Why so much autism now? [] Is the increase in autism real or the result of revised diagnostic criteria and improved awareness? If the syndrome has become epidemic, is some environmental factor partly to blame?
Muy interesante. But what sort of factor could have a hand in such a complex disorder? We have our suspicions, thanks to a simple internet query for the past year:

Source: The New York Times
Search: autism
Results: 143

Uh-huh. Which raises the question: Who at the Gray Lady has autism in the family? (MoDo and Aspergers dont count.)"
I'm not sure who to be more insulted by, the commented upon article or the person telling me Asperger's isn't autism (Again). At least the NYT acknowledges the autistic movement while this person says we aren't autistic.


- Amy - 05-13-2005 10:16 PM

A site devoted to the eradication of autism...

Entitled "What's going on" - http://www.whats-going-on .net/essays-summary.html#Top

It has such gems as -

"An Autistic person is suffering from malnutrition"

"The Autistic is caught in a terrible trap."

"Clearly, the health of the mother has considerable inlfuence over whether or no a child becomes autistic."

"Everything autistics do is a reflection of their body coping with toxicity: self-injury, stimming, spacing out, toe walking, aggression, hyperactivity - not all autistics exibit all of these behaviours, but many do."


- Catffienated - 05-30-2005 01:31 AM

http://www.sanoviv. com/home.html Severely creepy... Detoxification, colon hydrotherapy, hypothermia, and 'self-vaccination' are cited as treatment methods. And the place has to be in MEXICO...that makes me wonder why they take people from the US to Mexico unless it's *illegal*.


- Catffienated - 06-02-2005 07:04 PM

http://www.autismhelpforyou .com/

This site is not unusual in it's dogged pursuit of mercury as the culprit. However, they are a bit...obsessive and include things like "neural deteriation"! Warning: This page has painful (on the eyes) web design....gah...please somebody buy them "Web Pages that suck!"


- chamoisee - 06-03-2005 12:28 AM

These sites are depressing me. It isn't my fault if people have/have had preconceived expectations of me that turned out to be unrealistic or unreasonable, and if they couldn't appreciate the strengths that I did have. :-/

Isn't there anything that can be done to counter them, aside from individual efforts which go completely unanswered and ignored? I had the naivete to email CAN and expect a reply....lol lol....

The statistic about 80% or more of us being retarded especially bothers me. How can this be accurate if you have a non verbal autie child, how would they accurately asess the kid's intelligence? My son (the as yet undiagnosed aspie) FLUNKED the preschool screening, even though he could have passed it easily. He simply refused to talk, cooperate, or respond. He is very bright....

I would like to be able to quit fuming and *do* something about the widespread ignorance!


- Amy - 06-03-2005 12:44 AM

Well we are doing as much as we can to try and raise awareness as a group and as individuals.

The media are getting the message in some areas, but we do still need much more to drown out the negative noise of CAN and NAAR.


- Bonnie Ventura - 06-03-2005 02:45 PM

chamoisee Wrote:
I would like to be able to quit fuming and *do* something about the widespread ignorance!


Build your own website (or better yet, several of them) to educate people.   Cool   Our efforts are having some impact, but we still need a lot more activist websites.


- M - 06-13-2005 01:20 AM

Bad Asperger's websites

http://www.coachingasperger .com/index.htm

This woman claims to be a certified "coach".  She charges $125/hr for over-the-phone consultations.  

What is she supposed to do for people for $125/hr.  Is the Psychic hotline cheaper?   I bought my tarot cards for $30.


- Wolfy - 06-13-2005 01:54 AM

Greetings,

I was going to say theres not alot wrong with that site but then I noticed the $125 an hour.

I think one of the factors which breeds hostility is the difference on both sides of the Atlantic.  In America everything seems to be financially oriented, no NHS etc.  and that offends some sensibilities over here.

But still - $125 an hour??  Thats INSANE :shock:  :shock:  :shock:


- M - 06-13-2005 05:04 PM

She says she coaches over the phone.  This is what coaching consists of:

"WHAT IS IT LIKE TO BE COACHED?
First let me tell you what it isn't like.  It is not me telling you what to do.  Instead, I ask you questions that prompt you to consider alternatives you haven't considered, and encourage you to take new perspectives.  My purpose is to get you to an "ah ha!" realization, a eureka moment.  I ask questions until my clients exclaim in wonder, "I can't believe it never dawned on me ask myself that.  Now I know what to do next."  You come to new clarity about your life and purpose.

Then we really get down to business and design what to do next.  Maybe you want to schedule time to pursue a new idea and cut some less important items out of your schedule.  Or maybe you want to try a new tactic with a friend or colleague.  Whatever it is, we will make sure you have all the structures in place so that what is most important in your life gets done each week."

So what she really does if help people prioritize their schedules.  So most people with asperger's couldn't afford her to be their talking daytimer.  

"Or maybe you want to try a new tactic with a friend or collegue."
I am beginning to believe that asperger's is becoming a new "glamourized disease".  People read that Bill Gates and Steven Speilberg have asperger's (who knows that is true), they are rich and successful.  Computer programmes all must have it, they falsely assume, and they are smart.  They falsely think that people will think they are smarter if they have asperger's.  I doubt that little shits who make all these computer viruses have asperger's.  I have met some programmer whizzes who are just calculating sarcastic people, not aspies.  They spend alot of time alone programming but they are not loners.

Once she gets someone dependant on her advice, maybe she gets them to sign over all their money.   I had friends who used these types of therapists.  They were always phoning their therapists to get advice and ask them "when he/she said that, what did they mean?"  

What to ask a therapist:  let me see your credentials,  where did you get your training, what types of therapy do you do and how can you help me, what treatments do you offer and how long will it take, how much will it cost?


- monastic - 07-08-2005 03:45 PM

This has got to be one of the top ten worthless anti-autistic sites I have ever seen!  I googled autism and came up with this hate-filled site.

http://66.221.49.64/autismfacts /index.html

The site basically calls folks like us here at AFF liars for stating we are autistic and says some pretty horrible things about us and our wish not to be cured.  Maybe they are trying to get nasty letters sent to them so that they can say, "See what these people are like?"  I've been too mad to send them any email response, to date.   :evil:


- Amy - 07-08-2005 04:23 PM

You are right, the site is awful, they used to have 'dawson' in the url, and a lot of it seems to be hatefully directed at Michelle.


- Bonnie Ventura - 07-22-2005 04:13 PM

Here's a chilling comment from a pro-abortion site (discussing the question of when a soul enters a child's body)

Quote:
Other theories account for a range of situations, including the belief that autistic children are a result of an unensouled body maintaining physical existence.


Not much difference in tone between that and the garbage spewed by anti-Semitic hate groups that accuse Jews of being soulless mud people.

I'm posting an intentionally broken hyperlink:

http: //www. feminista.com/archives/v3n3/lee.html

Because AFF posts are Google-searchable, any link posted here has the effect of raising the page rank of the linked site.  Therefore it's in our best interest not to post working hyperlinks to sites that attack autistics.  We should also post links regularly to sites that support our goals.


- Amy - 07-22-2005 07:48 PM

"Because AFF posts are Google-searchable, any link posted here has the effect of raising the page rank of the linked site. Therefore it's in our best interest not to post working hyperlinks to sites that attack autistics. We should also post links regularly to sites that support our goals."

Very good point Bonnie.

Google gives a higher rating to newly posted links that it finds too.


- ADoyle - 07-25-2005 11:46 PM

monastic Wrote:
This has got to be one of the top ten worthless anti-autistic sites I have ever seen!  I googled autism and came up with this hate-filled site.

http://66.221.49.64/autismfacts /index.html

The site basically calls folks like us here at AFF liars for stating we are autistic and says some pretty horrible things about us and our wish not to be cured.  Maybe they are trying to get nasty letters sent to them so that they can say, "See what these people are like?"  I've been too mad to send them any email response, to date.   :evil:


That is one hateful site, and it's just sick to say that there are no intellegent adult autistics who can communicate. I'm one of those who was extremely shy as a child, yet is above average intellegence. I was only diagnosed within the last year as having Asperger's as an adult because back when I was a child, the only kind of autism people knew about is the low-functioning type, not the extremely high-functioning type that a lot of us have.

The only thing that's being done is getting help with interview skills, this after only having speech therapy in elementary school. When I was a child, people couldn't diagnose me, so I got just speech therapy which helped me to function normally except for handling job interviews. The psychologist who made the diagnosis told me that once I got a job, I'd be able to live independently. During high school and especially college, I got no help from the disabled services because I clearly did not qualify. Maybe if I had been the low-functioning autistic like this person believes every autistic is, then and only then would I have needed those services.


- trixdrew - 08-19-2005 10:16 PM

Quote:
http://www.autismhelpforyou .com/

This site is not unusual in it's dogged pursuit of mercury as the culprit. However, they are a bit...obsessive and include things like "neural deteriation"! Warning: This page has painful (on the eyes) web design....gah...please somebody buy them "Web Pages that suck!"



I could not look at this one for long... it was making me dizzy.


- theosoph - 08-22-2005 07:45 PM

http://autisticbfh.tripod.com

http://autisticbfh.tripod.com/support.html


What do you think of this website?  Some of the posts here made me angry.


- Amy - 08-22-2005 08:06 PM

What didnt you like?


- TheASman - 08-22-2005 08:11 PM

theosoph Wrote:
http://autisticbfh.tripod.com

http://autisticbfh.tripod.com/support.html


What do you think of this website?  Some of the posts here made me angry.



angry cos she speaks the truth???


- theosoph - 08-22-2005 09:09 PM

Amy Wrote:
What didnt you like?


It made me angry at first because I thought she was including AFF as one of the support groups to avoid.  After reading the site further I  see that she is probably a member of this forum and doesn't see AFF as a support group.


- Amy - 08-22-2005 10:17 PM

I am not sure if she is a member of not, but AFF is not a support group.
I know she is a member of the autism assembly.


- theosoph - 08-22-2005 10:56 PM

Amy Wrote:
I am not sure if she is a member of not, but AFF is not a support group.
I know she is a member of the autism assembly.


Many who come here seem to think it's a support group but I see that's it's not.


- ADoyle - 08-25-2005 09:33 AM

http://forums. delphiforums.com/ASPartners

This is being discussed on another forum, but this to me has to be one of the worst hate sites I've seen.


- Amy - 08-25-2005 07:36 PM

It really is astonishingly bad.


- Catffienated - 11-02-2005 01:20 AM

http://www.autism-recoveredchildren.org/ DAN's video of "Recovered autistic children"

edit: WARNING: Upsetting to people who don't like autistics being "experiments"


- Amy - 11-02-2005 10:33 AM

I haven't read it, does she only focus on adhd and autism though?


Edit: I was replying to a different thread/post by mistake.


- JSL - 11-02-2005 10:52 AM

Catffienated Wrote:
http://www.autism-recoveredchildren. org/ DAN's video of "Recovered autistic children"

edit: WARNING: Upsetting to people who don't like autistics being "experiments"


The whole thing seemed like one long Ad. How is a nutritional supplement supposed to stop someone from being autistic? I take flaxseed oil (omega three) and several other things this does not make me any less autistic, along with exercise it helps with mood. I thought the vaccine link had been killed off long before this conference was filmed. I do not know anything about DAN, from what I have seem on this video, I find them very unsettling.


- Noetic - 11-02-2005 01:53 PM

Amy Wrote:
I haven't read it, does she only focus on adhd and autism though?


Edit: I was replying to a different thread/post by mistake.

The Book "The Autism-ADHD connection" focuses on Autism and ADHD, and links both with Bipolar.

I might be too stupid or literal to understand the book, but to me it simply reads like a huge pile of circular argumentation.

1) She believes they are manifestations of the same disorder
2) She "proves" this by equating aspects of Autism with aspects of ADHD (sans explanation why she thinks they are the same!) and expecting people to magically see them as 'the same' (which they are not!).


- JSL - 11-16-2005 02:58 PM

Autism Awareness UK ebay shop

Quote:
Recent survery shows that 90% of pets wear ID, and less 1% of missing children with Autism wear one.


Are they comparing an Autistic child to a pet?


- Amy - 11-16-2005 04:48 PM

Well they also put electronic chips into pets.....


- Noetic - 11-16-2005 09:31 PM

JSL Wrote:
Autism Awareness UK ebay shop

Quote:
Recent survery shows that 90% of pets wear ID, and less 1% of missing children with Autism wear one.


Are they comparing an Autistic child to a pet?

No they are not, they are implying that parents of autistic children who have a tendency to run away (some autistic children are wonderful escape artists and try to run away or break out of the house at any given opportunity, day or night) should make sure that their children have some form of ID on them so they can be returned if they manage to run away.


- JSL - 11-16-2005 11:12 PM

Noetic Wrote:

JSL Wrote:
Autism Awareness UK ebay shop

Quote:
Recent survery shows that 90% of pets wear ID, and less 1% of missing children with Autism wear one.


Are they comparing an Autistic child to a pet?

No they are not, they are implying that parents of autistic children who have a tendency to run away (some autistic children are wonderful escape artists and try to run away or break out of the house at any given opportunity, day or night) should make sure that their children have some form of ID on them so they can be returned if they manage to run away.




I understand the problems involved. I could have written my question better. It appeared to me that they were comparing the actions of a child to a pet. It also could appear that they were comparing a parents common sense towards their pet that they may lack towards their own child.

So the question would be better put as do you think they were comparing an average parents inconsistent behaviour in two situations or saying that their childs actions are like that of a family pet.


- M - 11-17-2005 02:24 AM

I like that idea of Amber Alert better.  -That is any child who is gone missing will be looked out for.


- Noetic - 11-17-2005 11:58 AM

JSL Wrote:
I understand the problems involved. I could have written my question better. It appeared to me that they were comparing the actions of a child to a pet. It also could appear that they were comparing a parents common sense towards their pet that they may lack towards their own child.

Yes it sounded like a rather patronising attempt to get parents to fork out for a product. I do agree that if a child is prone to escaping etc, he or she should be equipped with an ID bracelet or similar thing but there's no need for that kind of advertising. A parent who is worried about their child going missing is feeling rotten enough without being given an added guilt complex by a company or individual trying to make money.


- Joel - 11-22-2005 11:00 PM

Urgh, I've only visited just a few of these sites and I already feel like throwing up in disgust! And to think of that they have the nerve to claim that they're HELPING us...


- Reyima - 12-17-2005 12:40 PM

They ARE helping us....  destroying ourselves. I haven't come across any particularly offensive  or revolting sites or ads, but i do remember a friend of mine reading a piece from a site that in simple terms said:"Children with a form of Autism or ADHD WILL become cold-hearted killers."

That said, the piece was removed, the site dismantled, and it's author sued several times over for slander, discrimination, and (due to one of his other pieces) anti-semitism (the site was dutch, anti-semitism is illegal to the point you can get arrested for shouting anti-semitist sentences here.)

He retracted his statements and articles, claiming something about a bad childhood, when that was disproved, he was forced to pay off a pretty large fine, and was forced to pay compensation to people or their families he had directly named in his statements.

Side note: Anti-semitism, in a simple way to put it, is hatred against the jewish people, after they found the death-camps, and the full scheme hitler had made was found out, they put up a law against anti-semitism here, at the fear of creating the oppertunities of a second holocaust.


- cookieman - 12-18-2005 09:49 AM

http://www.myspace.com/autism_awareness


- cookieman - 12-18-2005 10:13 AM

http://groups.myspace.com/AutismAwareness


- Ryuujin - 12-18-2005 01:34 PM

Noetic Wrote:
No they are not, they are implying that parents of autistic children who have a tendency to run away (some autistic children are wonderful escape artists and try to run away or break out of the house at any given opportunity, day or night) should make sure that their children have some form of ID on them so they can be returned if they manage to run away.


I dunno, I regulary ran away from school, if only because I recieved daily abuse and violence from the other pupils (Literally, every day), and needed to get away simply to chill out, since if I stayed on grounds even in say, the library I'd be picked on; and the teachers banned me from the computers after I was physically beaten up over a computer and when the teacher came in, they said I was mentally unhinged and thrown a monitor on the floor (It'd been knocked on the floor after I was thrown into it. The teachers though heard so many of these rumours, even the headteacher called me a psycho (to my face)), so chilling there wasn't an option.

If someone had physically sent me *back* to school when I was in a state, I'm pretty sure you'd have a repeat of that scene from The Curious case of the Dog in the Midnight or whatever it's called. (Where he hits the policeman and get cautioned after they physically grab him)


- Irish Wolf - 12-27-2005 03:32 PM

After reading all these, I think we need to form a counter-organization (or "organisation", for our UK and Australian friends) to CAN and DAN.  After all, we don't need to be "cured" or "defeated" - although we could use some assistance in adapting to the NT world, and maybe getting it to adapt to us a little.

The name that came to me in half-sleep last night was HAND, for "Help Autistics Now, Dammit!"  The slogan - "We don't need a cure, just a HAND!"  :smile:


- Amy - 12-27-2005 04:23 PM

Well, we already are the counter-organisation to them. There is no other group doing the same, afaik. Some of our members have done protests against them already.

We have threads about them in 'action against pro-cure groups'.


- Corcaigh - 12-27-2005 05:23 PM

Ryuujin Wrote:
I dunno, I regulary ran away from school, if only because I recieved daily abuse and violence from the other pupils (Literally, every day), and needed to get away simply to chill out, since if I stayed on grounds even in say, the library I'd be picked on; and the teachers banned me from the computers after I was physically beaten up over a computer and when the teacher came in, they said I was mentally unhinged and thrown a monitor on the floor (It'd been knocked on the floor after I was thrown into it. The teachers though heard so many of these rumours, even the headteacher called me a psycho (to my face)), so chilling there wasn't an option.


Ryuunjin, that's the story of my son. He never physically escaped from school (he's ten now) but was continuously misunderstood (he had a full diagnosis and complete guidelines for the teachers) and mis-handled by the teaching staff. I do not think he received abuse from the other kids (most of them were more intelligent than the teachers  :wink: ), but certainly from arrogant teaching staff (especially "support" teachers!!!) who thought they knew it all but showed they didn't have a clue.

I love my son the way he is and the only reason why we are working on his anxiety and anger management, at the moment, is because HE feels bad about it, I don't give a toss about what the teachers think. He's been off school for the past month and did not miss it.
We parents weren't hurt or abused by my son, but by the principal (headmaster) of his previous school, who bullied and insulted us several times in a way that makes you think who needs a diagnosis.

This forum is great, keep up the good work guys  :wink:

Martina from Ireland


- MttJocy - 12-31-2005 04:52 AM

I just sent this mailing about the site mentioned in an early post of this thread (http://www.aspar.klattu.com.au/)

Quote:
I have recently seen your website about AS parents of NT children and
find that you seam to feel that all AS people are bad parents to NT
children, in fact I can almost relate to everything you said on your
site in exact inverse that I felt many similar things with my own NT
parents as I am AS such as:

# Their constant attempts to involve me in social interactions I found
stressful, unproductive and throughly undesirable.
# Being forced to endure excessive amounts of cuddling and other
undesirable physical interactions.
# Constantly having them attempt to interpret my needs usually
incorrectly and mostly causing unwanted interaction.
# Having parents constantly springing up unexpected deviations in
routine and spoiling the order I was accustomed to and happy with.
# Put up with the general excessive noise of an NT household, then being
forced into unwanted social interaction when I became distressed at this
with them asking constantly what was wrong
# Have my own space invaded by general noise and unwanted distraction of
the NT parent.
# Constantly being confused and often depressed by the lack of
understandable rules.
# Finding all the time that the parent is unwilling or oblivious to the
fact I did not desire large amounts of physical and social interaction.

I could go on with this list all day but I wont, I was simply trying to
highlight a point that there is another side than the one you are
portraying.

I know for a fact that having discussed this issue with others with AS
both with NT parents and with AS parents that this situation is common
for people who are AS with NT parents and that most of those with AS
parents did not experience so much of this in the home environment
although as all AS people do they did have such problems outside of
home, I am quite sure that most NT with NT parents may be happier to be
with their NT parents than with an AS one however not all such homes are
happy homes.

Anyway the real point of this is to request that you at least stop
implying that AS instantly makes a person a bad parent because as I have
pointed out AS children are in general happier in AS homes so to imply
they are poor parents is clearly unfair.  Also to suggest that AS should
be used against people in a custody hearing is really unfair, Let me ask
you something, how would you feel if you had a child who was autistic
that made similar implications about NT parents that you are making on
your site about AS ones.

Anyway, I would be surprised if I receive a reply to this letter but it
would be nice to receive one, however if not I hope my words will have
had some effect on your opinion of this matter and hopefully on your
opinions of AS peoples parenting ability.

---
M Joyce




- tenaciouscj - 12-31-2005 02:30 PM

I must have been one of the rare autistic kids who craved cuddles and affection but I know many don't like it. AS people should not be thought of as bad parents. Maybe some can be over-rigid but most are very conscientious and would do their very best to do the right thing by their children.


- Lili Marlene - 01-10-2006 05:00 PM

The big problem with most aspie parents is that most of them don't know they are autistic. The big problems with NT parents of aspie kids can be not realising how different their child is to themself, or simply not liking their aspie child, and therefore having little motivation to do any more than lip service as a parent to that child.

I think the worst kinds of parents must be parents who have no marriage or a marriage that stinks, and that is why I think the worst kind of parents for any kid (in terms of neurotype) could be one aspie parent married to one neurotypical parent. One or both are likely to be in a state of clinical depression at any point of time, and conflict and divorce are likely to be issues affecting the family. Marriage is the foundation of family life. If you don't have a good one, don't have kids This condition does not exclude any neurotype from being a parent, only certain individuals.


- Amy - 01-10-2006 05:04 PM

"The big problem with most aspie parents is that most of them don't know they are autistic. The big problems with NT parents of aspie kids can be not realising how different their child is to themself, or simply not liking their aspie child, and therefore having little motivation to do any more than lip service as a parent to that child."

I agree with that.


- otagoaspie - 05-17-2006 12:51 AM

I love this thread! I come across dumb sites ALL the time! I am not sick, suffering, a victim, afflicted or any other lable, i'm happy that i'm highly intelligent and logical, that is not a disorder!!!


- bravesj858 - 05-17-2006 01:02 AM

hating autism.blogspot. com

it's the site by the internet troll.

autism speaks is definley rotten, since they desribe hope as the end of our kind...that's terrible.


- TheyShallKnowNoFear - 05-17-2006 12:46 PM

bravesj858 Wrote:
hating autism.blogspot. com

it's the site by the internet troll.

autism speaks is definley rotten, since they desribe hope as the end of our kind...that's terrible.


It's been mentioned before, that guy definitely has a screw loose. And anger problems. And a massive stick shoved up his ***.


- violet_yoshi - 06-14-2006 05:40 AM

TheyShallKnowNoFear Wrote:

bravesj858 Wrote:
hating autism.blogspot. com

it's the site by the internet troll.

autism speaks is definley rotten, since they desribe hope as the end of our kind...that's terrible.


It's been mentioned before, that guy definitely has a screw loose. And anger problems. And a massive stick shoved up his a**.


Not to mention a possible hard-on for Hitler.


- Lili Marlene - 06-29-2006 12:49 PM

I just stumbled across this site after dooing a Google on the search terms "famous aspies". This bit of @#&* "Famous Loners" came up at number 6 on the results page;
http:// http://www.the antisocialclub.com/asc_page_023.htm (broken link)

I haven't spent much time looking at this site (which is all the time of mine that it deserves), but it seems to mix up the quite different conditions of shyness, autism/AS and social anxiety disorder into one negative stereotype. At first glance it looks like a positive point of view, but the more I read the stupider it looked.

The visual presentation of this site reminds me a lot of Oddizm's really excellent web site. I think this site has copied her style. I think the people who created this site might have borrowed ideas from autistic community sites.


- Vespers - 06-30-2006 07:11 AM

violet_yoshi Wrote:

TheyShallKnowNoFear Wrote:

bravesj858 Wrote:
hating autism.blogspot. com

it's the site by the internet troll.

autism speaks is definley rotten, since they desribe hope as the end of our kind...that's terrible.


It's been mentioned before, that guy definitely has a screw loose. And anger problems. And a massive stick shoved up his a**.


Not to mention a possible hard-on for Hitler.


I just read some of his blogs. Other anti-autism sites make me sad or afraid--this one is just silly. He doesn't even try to prove his assertions, he just repeats them over and over, as if stridency would make up for the fact that he doesn't substantiate his claims.


- Sophist - 07-09-2006 06:44 PM

Avoid this site/psychologist:

Dr. Kathy Marshack

She's a marriage and family therapist, with an Aspie ex-husband, and has generalized everything about her bad marriage onto all Aspies. The first part of this page in her website describing AS isn't bad since it's mainly just spitting back DSM descriptions. But further down is the real kicker where she essentially says we make both terrible partners and parents.

And what's more she's writing a book on how terrible we Aspies are. :roll:


Edit: links to bad sites are broken on the forum


- aspie44.8 - 08-02-2006 12:01 AM

Sophist Wrote:
Avoid this site/psychologist:

Dr. Kathy Marshack

She's a marriage and family therapist, with an Aspie ex-husband, and has generalized everything about her bad marriage onto all Aspies. The first part of this page in her website describing AS isn't bad since it's mainly just spitting back DSM descriptions. But further down is the real kicker where she essentially says we make both terrible partners and parents.

And what's more she's writing a book on how terrible we Aspies are. :roll:


Edit: links to bad sites are broken on the forum


What horrible conditionists people are becoming these days, just like what it says in my signature. It seems as if there has always been nasty, discrimatory bigots ever since language was developed. The first type of discrimination probably was against females. And much much later it was discrimination against black people. And now it is discrimination against homo/bisexual people and anyone with mental disabilities or conditions, mainly autism.


- Gareth - 08-02-2006 01:10 AM

Reading that page made me quite angry - it seems that a lot of people marry or otherwise get involved with someone on the spectrum in a romantic way and then complain about traits which are blatantly obvious.

On AS partners a lot of women complain about their aspie ex husbands and let drop that they were dating them for up to a year. Why they still decided to get married after knowing they weren't compatible is beyond me. Perhaps they thought that they'd change? What disturbs me is how many of these poor men have no contact with their children due to a vengeful NT ex wife - one woman was advised by her solicitor that the judge would never allow an aspie to have contact with their children.

I could rant about this all day, especially as a married man myself.


- ADoyle - 08-04-2006 10:06 AM

Here's a curbie group I just heard about on the radio recently:
http://www.  tacanow.com/(broken link) It's based in California, and they are one of the sponsors of the local CAN walk, and was started by parents who have autistic children.


- Lili Marlene - 08-05-2006 02:59 PM

The home page of the Californian curebie group featured a slide show of artsy, poignant photos of young boys on their own, in places like the beach etc. It's one of the most pervasive cliches of curebie groups' media representations of autistics, as isolated and forlorn little boys "lost in their own world" in photogenic surroundings. This kind of stereotyping of autistics banishes adult and female autistics from public consciousness, while at the same time narrowing-down the image of the typical autistic so that it does not include those people who are quite possibly on the spectrum themselves (parents of autistics), who are the ones creating these images.


- Lili Marlene - 08-05-2006 07:43 PM

Has anyone posted about this before? It's from the "Uncyclopedia" a satire of the Wikipedia. It's supposed to be funny and offensive, but it's just stupid because it describes NT sociopathic traits as AS traits, and that's just plain dumb.

I do think they might be right about the Germans and the Japs, though.

http:// uncyclopedia.org/wiki/Asperger's_Syndrome


- Vespers - 08-06-2006 10:09 AM

I'm really hoping that your mention of "Japs" was supposed to be some sort of joke.


- Lili Marlene - 08-07-2006 06:06 PM

I was half joking, half not joking. There's something odd about the Germans, there's no denying that.


- theosoph - 08-07-2006 06:25 PM

Vespars was referring to your use of the slur "Japs". There's something odd about you, there's no denying that either.


- Lili Marlene - 08-07-2006 07:07 PM

In Australia we have a type of pumpkin known as "Japs", and I bet that name is a reference to our Asian friends. The Japanese have been called many worse things.


- Aeolienne - 08-07-2006 10:15 PM

Lili Marlene Wrote:
There's something odd about the Germans, there's no denying that.

Which is...?


- Vespers - 08-08-2006 06:30 AM

Lili Marlene Wrote:
The Japanese have been called many worse things.


Just because certain slurs are not as bad as others doesn't mean that it's respectful or proper to use them.


- Aeolienne - 08-09-2006 12:54 AM

Als jemand, die ein Achtel Deutschlaenderin durch Abstammung ist, fordere ich eine Erklaerung!


- aspie44.8 - 08-09-2006 02:14 AM

I found this site while googling random aspie sites. I really do not like this site, especially this part of it: http://www.beyond thesquare.org.au/index.php?name=Forums&file=viewtopic&t=11&postdays=0&postorder=asc&start=0. :evil: :evil: :evil: it is about mothers b36tcing about  how difficult their aspie daughters are. i do not like the part when one mom says she feels like putting her daughter in the shower with her clothes on. Another mom says that her son moved out because he couldn't stand his aspie sister. And just from that, i can tell these mothers are very abusive and ignorant. thats why their daughters may be brats. their mothers only think about the negatives of aspergers. i haven't seen a single thing positive that they said. If anyone posted stuff like this about me, I would be VERY ticked off at them for a lifetime. As a 14 y/o aspie myself, I never ever behaved like this recently, exept when my mom criticized me for stupid reasons. I am normally a well-behaved person, even better so than my older "NT" brother, who is a complete jerk.


- Andra - 09-10-2006 07:19 AM

Lili Marlene Wrote:
Has anyone posted about this before? It's from the "Uncyclopedia" a satire of the Wikipedia. It's supposed to be funny and offensive, but it's just stupid because it describes NT sociopathic traits as AS traits, and that's just plain dumb.

I do think they might be right about the Germans and the Japs, though.

http:// uncyclopedia.org/wiki/Asperger's_Syndrome



Its called satire!
The symptoms they describe are not AS symptoms, but NT "traits". They just pathologize them to make a point.
Theyre one our side.


- Ilja - 10-21-2006 05:51 AM

Hello All, ici Ilja,

I didn't checked it's here already, but this is what I found by accident on Awares in the Foyer (therefore it's from a probable misinformed parent or so that's gonna pay GBP 35 to 210 for a lot of BS):

http://www.treating autism com/ (link already broken)
http://www.treating autism conferences.com/site index.htm (link already broken)

Connected to Gen eration Res cue, that says enough already...
Charlatan lectures about HyBaric Oxigene Therapy, Chelation & so on...
They did however found 1 (one) M.D. to give lecture, wow! Pfffrrrttttttt....

Ilja. _\\//


- aspie44.8 - 10-22-2006 05:53 PM

aspie44.8 Wrote:
i do not like the part when one mom says she feels like putting her daughter in the shower with her clothes on. Another mom says that her son moved out because he couldn't stand his aspie sister.

Well, the mom telling her daughter that she was going to throw her in the shower, at least that motivated the daughter to take a shower, which is good. But the brother moving out; it makes him look like he doesn't care at all about his sister, and all he sees from her are negatives. I still don't think this mother is a very good mother, because she doesn't seem to encourage her daughter to have an interest other than television. My family introduced me to the field of art when I was really young, and now I find drawing and painting much more fun than watching television.


- Shutterbunce - 10-25-2006 08:09 PM

My reply to faaas on page one

Quote:
LEt me tell you how asperger's made me a better parent...

When my oldest daughter was born she was 13 weeks early and weighed a mere 2 lbs., 2 oz. She had all sorts of complications, while I, myself was very ill. NEver the less as soon as I was home I  traveled the hours to see and hold her everyday. This was before I had internet access in my own home, but I searched everything I could to learn and help my daughter. When she was home I followed things to the letter to insure her health, including having no visitors and not taking her out for 6 months. She was my obssession, being a good mother, Helping her learn the things the home nurse taught me she needed to catch up.

When she was older And we hadn't been able to get pregnant again, I discoved why. I have a disease call poly cystic ovarian syndrome. So I researched, studied, and found the best why to solve the problem. I went on a strict diet and walked 7 miles a day. I worked hard while still teaching and caring for my oldest. I finally got pregnant and almost lost my son. I learned all I could about not miscarrying.  When he was 2 and had back tracked on some development I took him to the up to three dept. and learned all I could about what was troubling him.

I've managed to deal with some togh things with my kids and I think my Asp. has helped me do what I need. I am a good mother, I do not neglect my kids and and big on hugs, even if I don't need the because I know my kids do.  

Some of the things you say make Aspie parents sound like unreasonable, uncaring alcholics. That is not true.

AOB




- nintendorulez - 10-27-2006 11:41 PM

Lili Marlene Wrote:
Has anyone posted about this before? It's from the "Uncyclopedia" a satire of the Wikipedia. It's supposed to be funny and offensive, but it's just stupid because it describes NT sociopathic traits as AS traits, and that's just plain dumb.

I do think they might be right about the Germans and the Japs, though.

http:// uncyclopedia.org/wiki/Asperger's_Syndrome


I've been a longtime contributor to Uncyclopedia, and I don't find the article offensive at all. It's mildy amusing, but kind of subpar compared to the funniest stuff on that site. And even if I did, I don't think that would merit censorship or pulling the article in any way. Keep in mind the site has other, intentionally offensive articles such as Cancer Porn, ***, Holocaust, I could go on and on.



Also, one person who has taken serious offense to the article has been vandalizing the entire wiki, and demanding that the page be removed. Although many aspies such as myself and nonaspies have explained the situation and debated against him ad nauseum, this person refuses to stop. Perhaps a few fellow aspies here might be willing to fan the flamewar a bit? The full discussion on this article is here:

http://uncyclopedia.org/wiki/Forum:Asperger_Syndrome_is_no_laughing_matter


- Timelord - 10-28-2006 01:58 PM

Andra Wrote:

Lili Marlene Wrote:
Has anyone posted about this before? It's from the "Uncyclopedia" a satire of the Wikipedia. It's supposed to be funny and offensive, but it's just stupid because it describes NT sociopathic traits as AS traits, and that's just plain dumb.

I do think they might be right about the Germans and the Japs, though.

http:// uncyclopedia.org/wiki/Asperger's_Syndrome



Its called satire!
The symptoms they describe are not AS symptoms, but NT "traits". They just pathologize them to make a point.
Theyre one our side.


Completely disagree, Andra. They are not on our side at all. Satire is supposed to be intelligent - and this isn't even close. And it's hardly funny. Not only that, when anyone tries to fix it up, they revert it and ban the person responsible. They're a clique and are Aspie intolerant. I have no doubt about that.


- Timelord - 10-28-2006 02:01 PM

nintendorulez Wrote:
I've been a longtime contributor to Uncyclopedia, and I don't find the article offensive at all. It's mildy amusing, but kind of subpar compared to the funniest stuff on that site. And even if I did, I don't think that would merit censorship or pulling the article in any way. Keep in mind the site has other, intentionally offensive articles such as Cancer Porn, ***, Holocaust, I could go on and on.

Also, one person who has taken serious offense to the article has been vandalizing the entire wiki, and demanding that the page be removed. Although many aspies such as myself and nonaspies have explained the situation and debated against him ad nauseum, this person refuses to stop. Perhaps a few fellow aspies here might be willing to fan the flamewar a bit? The full discussion on this article is here:

http://uncyclopedia.org/wiki/Forum:Asperger_Syndrome_is_no_laughing_matter


Not a good idea at all. That will only make the situation even worse. If an Aspie is raging in there - you'd better stop and let him or her have the last word and ignore them completely. Aspies can't stand not having the last word when they're in that sort of mood.


- Timelord - 10-28-2006 02:52 PM

I had a look at that link, and frankly it looks more like a political bunfight than a debate about Aspergers in a lot of places. Rage aside, the person brought up a number of good points. Also, it would appear he or she wants the article rewritten and not deleted - and I tend to agree.

But - and I think this should be thrown open to the group - Aspies don't take mockery very well as a general rule. There are exceptions of course as there is to every so called rule - but doesn't mockery equal criticism? And isn't criticism an issue for Aspies (in varying degrees of course)? At a guess that would be why this person (and maybe Lili Marlene) have an issue with it. It's a concern for me now that I think of it.

And I also went back through this list, and I can't believe no one has picked up the worst of the lot - Encyclopedia Dramatica! The person on Uncyclopedia mentioned it and I took a look! Holy crap!! If you think you've been offended by the other sites in this thread, you ain't seen nothing until you see that one!  :shock:


- nintendorulez - 10-28-2006 11:27 PM

Timelord Wrote:

Andra Wrote:

Lili Marlene Wrote:
Has anyone posted about this before? It's from the "Uncyclopedia" a satire of the Wikipedia. It's supposed to be funny and offensive, but it's just stupid because it describes NT sociopathic traits as AS traits, and that's just plain dumb.

I do think they might be right about the Germans and the Japs, though.

http:// uncyclopedia.org/wiki/Asperger's_Syndrome



Its called satire!
The symptoms they describe are not AS symptoms, but NT "traits". They just pathologize them to make a point.
Theyre one our side.


Completely disagree, Andra. They are not on our side at all. Satire is supposed to be intelligent - and this isn't even close. And it's hardly funny. Not only that, when anyone tries to fix it up, they revert it and ban the person responsible. They're a clique and are Aspie intolerant. I have no doubt about that.

Erm, I am an aspie and I'm a longtime contributor to the site. They mock everyone and everything, and simply see no reason to make Asperger's an exception. If we did that, we'd have to take down so many of our other intentionally offensive articles. And they don't revert efforts to fix it up, in fact many users are agreeing that the article isn't exactly comedic gold and should be rewritten. What was reverted was the constant page blanking. I have yet to see anyone make an effort to fix up the page, but I would be more than happy to see someone take a crack at rewriting the page. Namely because it'd shut the *** up.



And the reason it devolved into a political bunfight was because the guy somehow tried to compare us Uncyclopedia contributors to: Islamic terrorists, Bush's foreign policy, he made claims that he could sue as the law of his country would apply and not the laws of the country in which Wikia's servers reside (look up the word 'jurisdiction' in a dictionary), etc. I'm gonna go try and remind people what this topic is truly about.


- Timelord - 10-29-2006 12:27 AM

No, don't. The way that forum is going, the Aspie will turn it against you. That's what raging Aspies do unfortunately. They firmly believe in what they are saying and if anyone contradicts them (whether the contradiction is right or wrong) the rage will turn on them. It's gotten way out of hand and it should be locked.

Talking of locked, the article is locked from editing (the raging Aspie noted that) which is preventing anyone from having a shot at it. Of course if the raging Aspie was vandalising it then OK, lock it. Maybe you should have a shot at rewriting it. As it doesn't offend you, I assume humour is a special interest of yours. If there's anything that overcomes the normal (hehe what is normal?) Aspie concerns with things like this it would be that.

What is the history of objections to other supposedly intentionally offensive articles on Uncyclopedia? A lack of humour is something that a lot of different people and cultures suffer from for various reasons - and the reactions are sometimes quite horrific. I noted that this was a key argument of the raging Aspie except that he localised it to Aspergers (which was pretty alarmist albeit not 100 percent false to be honest - he did bring up Martin Bryant which is a controversial point as he hasn't been formally diagnosed with AS - only suspected if that).

Oh - on the lawsuit issue. Be very careful. I know the case the raging Aspie was referring to. A mining magnate and devout Jew Joseph Gutnik was defamed in a book published in Israel. He bought the book in Melbourne and viewed it there. If you look up his name here;
http://www.austlii.edu.au
And look for court decisions, and you'll see that Gutnik had the case heard under Australian law. It does also apply to the Internet and I can back that up personally as I was stalked on the Net by someone from the state of South Australia. Now Internet stalking is legal in South Australia, but not in Victoria (where I reside) where it is noted in the criminal code. I had it heard in a local court in Victoria and I got the order. Now I disagree that the raging Aspie has a case (not knowing what country he lives in doesn't help but his knowledge of the Gutnik case seems to indicate he may be Australian as well) but if he did, it would be under local law. So be careful.


- nintendorulez - 10-29-2006 11:40 PM

Well, that would be due to an individual being defamed/stalked. This is merely satire about a condition, not one person. And parody is protected free speech. Remember the Mohammed cartoons? The lawsuit was thrown out under Danish law.



And the article isn't locked, it's semiprotected. New users and anons can't edit it. (Not sure what constitutes new, I think three days...)


- Timelord - 10-30-2006 12:02 AM

I did see that lawsuit mentioned in the forum. I haven't looked at the link yet though and that will be of interest.

At a guess, it's possible that the raging Aspie is also claiming defamation (which would fall flat on it's face because that can only work if it's personal and this is not). But no matter whether it's defamation or stalking, the precedent that was set was where the offence took place. There the raging Aspie is right. If they saw it on the Internet, the offence took place where he or she saw it. Therefore, local law would apply. I'll try and get a link for you while I'm online.

Good move with the forum. I'll be interested to see what the raging Aspie does next. They won't let it go - not if what I saw yesterday is anything to go by.

Oh - just on that issue of what could happen if an Aspie was offended by it, I'd be looking at the stabbing at McDonalds thread. I'm not trying to back the raging Aspie up (what did you lot call them again?) but it does make for some interesting discussion.


RE: Room 101: For Rotten Autism Sites - Timelord - 12-29-2006 12:51 AM

Should actually add this blog to this thread - this guy's a complete idiot. A bully and a tyrant.

http:// hatingautism. blogspot. com (link broken)

I'm trying everything possible to get this waste of webspace deleted.


RE: Room 101: For Rotten Autism Sites - bravesj858 - 12-29-2006 01:10 AM

Timelord Wrote:
Should actually add this blog to this thread - this guy's a complete idiot. A bully and a tyrant.

http:// hatingautism. blogspot. com (link broken)

I'm trying everything possible to get this waste of webspace deleted.


he's a troll that works for generation rescue run by john best jr.  he often makes havoc for the anti cure folk and isn't very bright at all.  and yes, he's a dope.  he also trolls as "fore sam" saying he's doing all this child abuse for his son to be better.


RE: Room 101: For Rotten Autism Sites - Timelord - 01-03-2007 09:01 AM

Exactly, Brave - which is why just now I fired off an email to his local town office and it's welfare officer. He's downright dangerous and needs to be pulled into line PDQ.


RE: Room 101: For Rotten Autism Sites - DigiModify - 01-07-2007 04:08 PM

Timelord Wrote:

Andra Wrote:

Lili Marlene Wrote:
Has anyone posted about this before? It's from the "Uncyclopedia" a satire of the Wikipedia. It's supposed to be funny and offensive, but it's just stupid because it describes NT sociopathic traits as AS traits, and that's just plain dumb.

I do think they might be right about the Germans and the Japs, though.

http:// uncyclopedia.org/wiki/Asperger's_Syndrome



It´s called satire!
The symptoms they describe are not AS symptoms, but NT "traits". They just pathologize them to make a point.
They´re one our side.


Completely disagree, Andra. They are not on our side at all. Satire is supposed to be intelligent - and this isn't even close. And it's hardly funny. Not only that, when anyone tries to fix it up, they revert it and ban the person responsible. They're a clique and are Aspie intolerant. I have no doubt about that.


I actually tried to edit that article, but it went back to its original form. I used to like that site until I read that article! Anyway, here are two misguiding , underhanded sites that look all cozy, but spread absolute Bull Snap!

http://autismrepairinstitute.com
http://Autism.2-B-well.org

Whitness the scheming for yourself, y'all!


RE: Room 101: For Rotten Autism Sites - SoccerFreak248 - 02-12-2007 04:31 AM

what is OCPD?


RE: - RichardL - 02-15-2007 06:24 AM

theosoph Wrote:
Vespars was referring to your use of the slur "Japs". There's something odd about you, there's no denying that either.


I don't see anything wrong with using the word 'Japs'.


RE: Room 101: For Rotten Autism Sites - aspie44.8 - 03-03-2007 06:06 PM

http://w  ww.petiti onspot.com/petitions/kicko utautisticr etards/signatures

This is the worst autism site you'll ever see. It is full of extremists that think aspies, autistics, and "tards" should either be kicked out of America, or killed off. These people are selfish @$$holes that are sick of paying taxes, losing their jobs, and coming across ugly "tards" that work at fast food resturaunts. They don't give a damn about anyone with disabilities. I can tell these people also hate homosexuals, because of their use of the word "***."

Whoever supported the petition are the ones who should be kicked out of America or die. People who constantly blame things on other people and discriminate other groups of people are the last things we need in America. These people are nothing but mini-Hitlers.


RE: Room 101: For Rotten Autism Sites - guardian001 - 03-03-2007 06:38 PM

quite


RE: Room 101: For Rotten Autism Sites - Guilty - 03-10-2007 05:32 PM

This site for banned a 5 yr old without any explanation!


RE: Room 101: For Rotten Autism Sites - Ivar T - 03-10-2007 05:35 PM

^ shouldn't mess up threads, that only make people think you really are a spammer.


RE: Room 101: For Rotten Autism Sites - Guilty - 03-10-2007 05:51 PM

erkolos Wrote:
^ shouldn't mess up threads, that only make people think you really are a spammer.


When are you going to realize and understand he is 5 ffs


RE: Room 101: For Rotten Autism Sites - silky - 03-17-2007 05:50 PM

Actually this is the first website I've found (with great relief) where Aspies can talk to each other. Seems like most the sites get taken over by parents who want to know how to cure their kids and blow  trumpets for the cause.


RE: Room 101: For Rotten Autism Sites - Lienda Balla - 03-18-2007 12:15 AM

Guilty Wrote:
This site for banned a 5 yr old without any explanation!


Are you so sure that there is no explanation for the claimed ban? I have to wander about your claims. A five year old? yeah, interesting. Are you sure that he wasn't just kept out of some certain forums to spare him talk about blood and reading of cuss words? hmm?

Ok, let's get on with the thread being about OTHER web sights now...


RE: Room 101: For Rotten Autism Sites - Ivar T - 03-18-2007 12:19 AM

Yes, Lienda. This have been discussed in two other threads which was specifically about this. One of them was locked for some reason.


RE: Room 101: For Rotten Autism Sites - Maisie - 05-18-2007 06:45 PM

[url]http://www.parentingaspergers.com/[url]

Looks like doom mongering sensationalism to me. No wonder my Mother thinks there's something wrong with me if this is the type of thing she looks at.


RE: Room 101: For Rotten Autism Sites - Maelstrom - 07-20-2007 04:22 AM

I am just curious, for my own reasons, if anyone has any opinions concerning this site (link broken) :  http://www. aspergerinfo. com/


RE: Room 101: For Rotten Autism Sites - Simen - 07-20-2007 04:34 AM

That site consists for the most part of a forum. I guess that, like here, there are idiots and there are great people, there are clueless people and people who have a clue. I have been reading the forum for years, but I'm not an active member. The place is much more focused on parents and others that don't necessarily have any form of ASD themselves. Other than that, I dunno. I don't see any reason that it should be on a "rotten autism sites" list.


RE: Room 101: For Rotten Autism Sites - Maelstrom - 07-20-2007 01:04 PM

I just mention it because the owner there just banned an Aspie for defending another Aspie against NT's.

I was wondering about what kind of place it really was.


RE: Room 101: For Rotten Autism Sites - tenaciouscj - 08-05-2007 04:00 AM

Has anybody heard of a site called I2? Apparently it is a harcore site for renegade aspies and is said to have all sorts of derogatory comments about women. Some people from it are also in WP and the comments they even posted on WP were a real worry. They also spammed a site which was an offshoot from WP (people trying to get away from them and set up a site where people could be supportive of each other) with porn.


RE: Room 101: For Rotten Autism Sites - garmonbozia - 08-05-2007 04:57 AM

Actually, I've recently registered on I2, and have been visiting every day since.

I don't agree with everything people do on I2 (stirring up crap with other Aspie sites), so I just stay out of those bits.

The only reason I like that site is because it has no limits on the use of language.  It's certainly not "G-rated".  I just use it as a place to vent and satisfy my dark sense of humor, without "tarnishing the ears" of kids on this site.  My first thoughts when I first found it were that it looked like somebody cross-bred an Aspie site with the weird news site that I also visit every day.  I certainly hope I'm not going to get myself caught between the trenches by using multiple Aspie sites.

The weird news site has an occasional autism article, and there are some users there who could use a little attitude adjustment, but I don't try to change them.  (The most recent was the tortoise article.)  I'll stick to my policy of not putting its URL here, but if any adults here want to know which site I'm talking about, PM me.

I saw FAAAS mentioned a few times when I was catching up on this thread.  I've looked at their site a few times (the parts you don't have to pay to see, that is).  That has got to be the most depressing bunch of drivel I've ever seen.  I find it hard to believe the examples they used (e.g. "Oh, my dad's a quantum physicist and it's JUST AWFUL!") are nothing more than exaggerations upon already extreme cases.  They state that they're not on a witch hunt but it sure looks like one to me.  I'm not quite sure what they want from Aspies, because it looks like  according to them Aspies can't do anything right.  FAAAS looks like a bunch of ungrateful brats with grudges against their parents.  (Somebody dial whine-one-one and have them send the waaaambulance.)


RE: Room 101: For Rotten Autism Sites - garmonbozia - 08-05-2007 05:01 AM

I forgot to mention... I've seen a few of the derogatory comments about women on I2, but I stay away from that, too.  There are lots of female users there, and usually they just fire right back.


RE: Room 101: For Rotten Autism Sites - woman from mars - 08-11-2007 02:45 PM

Maelstrom Wrote:
I just mention it because the owner there just banned an Aspie for defending another Aspie against NT's.

I was wondering about what kind of place it really was.

Hello, this is my first post on this forum & I like it Smile
Is there a place here where a person can introduce themselves?Smile

I would like to say in response to Maelstrom, that ' aspergerinfo.com' is an informative site, with many interesting members, like many sites it swings to & fro re. members & the type of members, it isn't mainly for parents although the the ones who are members ask advice from each other & other members on how best to help their child to cope with life.I think most of the members are AS people , who are most definitely against the 'curbie culture'
I am a member of this group.

With regard to the banning of a member,all that I can say is "all is not as it seems."
I would suggest that you could contact one of the moderators if you require any information regarding this issue.


RE: Room 101: For Rotten Autism Sites - couldbecousin - 08-11-2007 02:54 PM

Hello and welcome to woman from mars!  We do have an introduction thread somewhere but it was never stickified (I should do that this weekend!), so new people pop up anywhere and we are always glad to have them.  Smile


RE: Room 101: For Rotten Autism Sites - woman from mars - 08-11-2007 03:03 PM

couldbecousin Wrote:
Hello and welcome to woman from mars!  We do have an introduction thread somewhere but it was never stickified (I should do that this weekend!), so new people pop up anywhere and we are always glad to have them.  Smile

Thank you, I will look out for it.Smile


RE: Room 101: For Rotten Autism Sites - Lucie1 - 09-29-2007 02:14 AM

I used to post in another forum. The forum became depleted in numbers due to many issues.
So the moderator/founder came on in different guises in an attempt to keep the forum moving - good enough goal - I even responded to his posts in an effort to help him. Then he started playing manipulative games with members - banning people on a whim  - social manipulation.
I became annoyed and I posted him a PM stating what I knew. As soon as I did this - I was banned. The moderator is now concerned - he is worried I will create problems for him - I wanted to just forget the other forum - but I am being hassled by him - he is hassling me - and I don't like it. I would rather he left me alone - just to get on with things. I would like to post the name of the forum here, but I realise I risk setting myself up for all sorts of personal attack. I posted as ellen in the other forum. Please leave me alone.


RE: Room 101: For Rotten Autism Sites - Timelord - 09-29-2007 01:27 PM

PM me with the details, Lucie, and I'll see what I can do for you.


RE: Room 101: For Rotten Autism Sites - violet_yoshi - 11-05-2007 03:58 PM

tenaciouscj Wrote:
Has anybody heard of a site called I2? Apparently it is a harcore site for renegade aspies and is said to have all sorts of derogatory comments about women. Some people from it are also in WP and the comments they even posted on WP were a real worry. They also spammed a site which was an offshoot from WP (people trying to get away from them and set up a site where people could be supportive of each other) with porn.


They sound like 4Chan rejects.


RE: Room 101: For Rotten Autism Sites - MadKangaroo - 11-25-2007 06:48 PM

violet_yoshi Wrote:

tenaciouscj Wrote:
Has anybody heard of a site called I2? Apparently it is a harcore site for renegade aspies and is said to have all sorts of derogatory comments about women. Some people from it are also in WP and the comments they even posted on WP were a real worry. They also spammed a site which was an offshoot from WP (people trying to get away from them and set up a site where people could be supportive of each other) with porn.


They sound like 4Chan rejects.


Why dont you go and check out our site for yourselves, before being so quick to pass judgement.
http://www.intensitysquared.com


RE: Room 101: For Rotten Autism Sites - Dark Shamshir X - 11-25-2007 07:03 PM

I find I2 to be the hardcore version of here.  I wonder if I should join there.


RE: Room 101: For Rotten Autism Sites - Kosmonaut - 11-25-2007 07:49 PM

That site sucks


RE: Room 101: For Rotten Autism Sites - MadKangaroo - 11-25-2007 08:29 PM

You forgot the quotation marks, and who you quoted. Thats plagarism of the highest order...


RE: Room 101: For Rotten Autism Sites - MadKangaroo - 11-25-2007 08:32 PM

Lucie1 Wrote:
I used to post in another forum. The forum became depleted in numbers due to many issues.
So the moderator/founder came on in different guises in an attempt to keep the forum moving - good enough goal - I even responded to his posts in an effort to help him. Then he started playing manipulative games with members - banning people on a whim  - social manipulation.
I became annoyed and I posted him a PM stating what I knew. As soon as I did this - I was banned. The moderator is now concerned - he is worried I will create problems for him - I wanted to just forget the other forum - but I am being hassled by him - he is hassling me - and I don't like it. I would rather he left me alone - just to get on with things. I would like to post the name of the forum here, but I realise I risk setting myself up for all sorts of personal attack. I posted as ellen in the other forum. Please leave me alone.

Wrong Planet?


RE: Room 101: For Rotten Autism Sites - Kosmonaut - 11-25-2007 09:12 PM

MadKangaroo Wrote:
You forgot the quotation marks, and who you quoted. Thats plagarism of the highest order...


Hope i dont get sued.


RE: Room 101: For Rotten Autism Sites - MadKangaroo - 11-25-2007 09:27 PM

Kosmonaut Wrote:

MadKangaroo Wrote:
You forgot the quotation marks, and who you quoted. Thats plagarism of the highest order...


Hope i dont get sued.


We both know Planky Boy is a bit protective of his "domain"


RE: Room 101: For Rotten Autism Sites - Kosmonaut - 11-25-2007 09:55 PM

MadKangaroo Wrote:

Kosmonaut Wrote:

MadKangaroo Wrote:
You forgot the quotation marks, and who you quoted. Thats plagarism of the highest order...


Hope i dont get sued.


We both know Planky Boy is a bit protective of his "domain"


Master of his domain.


RE: Room 101: For Rotten Autism Sites - MadKangaroo - 11-25-2007 11:13 PM

Kosmonaut Wrote:

MadKangaroo Wrote:

Kosmonaut Wrote:

MadKangaroo Wrote:
You forgot the quotation marks, and who you quoted. Thats plagarism of the highest order...


Hope i dont get sued.


We both know Planky Boy is a bit protective of his "domain"


Master of his domain.


Nah, he is a small fry. Look at his media "empire"...
Though I cant believe his little fiefdom is worth near $60,000


RE: Room 101: For Rotten Autism Sites - Ian - 11-25-2007 11:40 PM

I'll stick with AFF thanks ;p

It's not great, but it's the best we've got Tongue


RE: Room 101: For Rotten Autism Sites - Kosmonaut - 11-25-2007 11:54 PM

MadKangaroo Wrote:

Kosmonaut Wrote:

MadKangaroo Wrote:

Kosmonaut Wrote:

MadKangaroo Wrote:
You forgot the quotation marks, and who you quoted. Thats plagarism of the highest order...


Hope i dont get sued.


We both know Planky Boy is a bit protective of his "domain"


Master of his domain.


Nah, he is a small fry. Look at his media "empire"...
Though I cant believe his little fiefdom is worth near $60,000

Dunno, i was just thinking of the Seinfeld episode.
http://en.wikipedia.org/wiki/The_Contest


RE: Room 101: For Rotten Autism Sites - Kosmonaut - 11-26-2007 12:01 AM

Ian Wrote:
I'll stick with AFF thanks ;p

It's not great, but it's the best we've got Tongue

It's allowed to visit more than one site.


RE: Room 101: For Rotten Autism Sites - MadKangaroo - 11-26-2007 12:12 AM

Ian Wrote:
I'll stick with AFF thanks ;p

It's not great, but it's the best we've got Tongue


Who said you have to stick exclusively with one forum. Asides I2 has a slightly different purpose to this one.


RE: Room 101: For Rotten Autism Sites - MadKangaroo - 11-26-2007 12:13 AM

Kosmonaut Wrote:

MadKangaroo Wrote:

Kosmonaut Wrote:

MadKangaroo Wrote:

Kosmonaut Wrote:

MadKangaroo Wrote:
You forgot the quotation marks, and who you quoted. Thats plagarism of the highest order...


Hope i dont get sued.


We both know Planky Boy is a bit protective of his "domain"


Master of his domain.


Nah, he is a small fry. Look at his media "empire"...
Though I cant believe his little fiefdom is worth near $60,000

Dunno, i was just thinking of the Seinfeld episode.
http://en.wikipedia.org/wiki/The_Contest

I though Alex was perpetually doing "it".


RE: Room 101: For Rotten Autism Sites - Kosmonaut - 11-26-2007 12:26 AM

MadKangaroo Wrote:

Kosmonaut Wrote:

MadKangaroo Wrote:

Kosmonaut Wrote:

MadKangaroo Wrote:

Kosmonaut Wrote:

MadKangaroo Wrote:
You forgot the quotation marks, and who you quoted. Thats plagarism of the highest order...


Hope i dont get sued.


We both know Planky Boy is a bit protective of his "domain"


Master of his domain.


Nah, he is a small fry. Look at his media "empire"...
Though I cant believe his little fiefdom is worth near $60,000

Dunno, i was just thinking of the Seinfeld episode.
http://en.wikipedia.org/wiki/The_Contest

I though Alex was perpetually doing "it".


Thanks for that image.


RE: Room 101: For Rotten Autism Sites - garmonbozia - 11-26-2007 01:03 AM

MadKangaroo Wrote:
Who said you have to stick exclusively with one forum. Asides I2 has a slightly different purpose to this one.


I like I2.  I can say stuff there that would get me in trouble here.  Tongue  Don't go there if you can't handle a bit of mud-slinging.

Every aspie site has its own niche.


RE: Room 101: For Rotten Autism Sites - calandale - 11-26-2007 06:37 AM

Hell, I heard about this
place through I2. I'm
not a regular here (more
into social interaction than
worrying about my aspiedom,
whatever that is). It's a perfect
place for a spammer like myself.

Plus, the absolute lack of posting
rules means that if I troll (which I
guess I often do), I get called on
it, honestly and plainly. At other places,
my extreme views can't be attacked
quite so directly.


RE: Room 101: For Rotten Autism Sites - maldoror - 11-26-2007 11:25 AM

calandale Wrote:
Hell, I heard about this
place through I2. I'm
not a regular here (more
into social interaction than
worrying about my aspiedom,
whatever that is). It's a perfect
place for a spammer like myself.

Plus, the absolute lack of posting
rules means that if I troll (which I
guess I often do), I get called on
it, honestly and plainly. At other places,
my extreme views can't be attacked
quite so directly.


You might come closer to learning how to get what you want out of life, if you can figure out what your "aspiedom" is.


RE: Room 101: For Rotten Autism Sites - Kosmonaut - 11-26-2007 11:40 AM

maldoror Wrote:

calandale Wrote:
Hell, I heard about this
place through I2. I'm
not a regular here (more
into social interaction than
worrying about my aspiedom,
whatever that is). It's a perfect
place for a spammer like myself.

Plus, the absolute lack of posting
rules means that if I troll (which I
guess I often do), I get called on
it, honestly and plainly. At other places,
my extreme views can't be attacked
quite so directly.


You might come closer to learning how to get what you want out of life, if you can figure out what your "aspiedom" is.


idleness


RE: Room 101: For Rotten Autism Sites - maldoror - 11-26-2007 11:44 AM

Well, that's an attainable goal. Don't think that's what he wants, though.


RE: Room 101: For Rotten Autism Sites - MadKangaroo - 11-26-2007 03:58 PM

Kosmonaut Wrote:

MadKangaroo Wrote:

Kosmonaut Wrote:

MadKangaroo Wrote:

Kosmonaut Wrote:

MadKangaroo Wrote:

Kosmonaut Wrote:

MadKangaroo Wrote:
You forgot the quotation marks, and who you quoted. Thats plagarism of the highest order...


Hope i dont get sued.


We both know Planky Boy is a bit protective of his "domain"


Master of his domain.


Nah, he is a small fry. Look at his media "empire"...
Though I cant believe his little fiefdom is worth near $60,000

Dunno, i was just thinking of the Seinfeld episode.
http://en.wikipedia.org/wiki/The_Contest

I though Alex was perpetually doing "it".


Thanks for that image.


Tis a pleasure, anytime Kosmo, anytime...


RE: Room 101: For Rotten Autism Sites - Pakrat - 11-27-2007 01:44 PM

violet_yoshi Wrote:

tenaciouscj Wrote:
Has anybody heard of a site called I2? Apparently it is a harcore site for renegade aspies and is said to have all sorts of derogatory comments about women. Some people from it are also in WP and the comments they even posted on WP were a real worry. They also spammed a site which was an offshoot from WP (people trying to get away from them and set up a site where people could be supportive of each other) with porn.


They sound like 4Chan rejects.

Is there any particular significance to the yellow slippers Alex has taken to wearing in his avatar? A friend of mine on WP has suggested it had something to do with rusty zippers but surely it wouldn't???


RE: Room 101: For Rotten Autism Sites - sushimilla - 11-28-2007 10:20 AM

why are you all saying mean things about Intensity.Sad *sniff* we are really sad now. you hurt our feelings.


RE: Room 101: For Rotten Autism Sites - Ian - 11-28-2007 01:27 PM

Heh, I like that modesty.


RE: Room 101: For Rotten Autism Sites - Kosmonaut - 11-28-2007 05:44 PM

likewise


RE: Room 101: For Rotten Autism Sites - MadKangaroo - 11-28-2007 07:13 PM

sushimilla Wrote:
why are you all saying mean things about Intensity.Sad *sniff* we are really sad now. you hurt our feelings.


I am sure you are tougher than that Milla Tongue


RE: Room 101: For Rotten Autism Sites - sushimilla - 11-30-2007 12:01 PM

MadKangaroo Wrote:

sushimilla Wrote:
why are you all saying mean things about Intensity.Sad *sniff* we are really sad now. you hurt our feelings.


I am sure you are tougher than that Milla Tongue


we intensians are nothing but big softies. Tongue


RE: Room 101: For Rotten Autism Sites - MadKangaroo - 12-02-2007 03:58 PM

sushimilla Wrote:

MadKangaroo Wrote:

sushimilla Wrote:
why are you all saying mean things about Intensity.Sad *sniff* we are really sad now. you hurt our feelings.


I am sure you are tougher than that Milla Tongue


we intensians are nothing but big softies. Tongue


Oh yeah, I forget about Spokanes Huggies...


RE: - aprilbaker - 12-03-2007 04:12 AM

Catffienated Wrote:
http://autism. 2-b-well.org/
The comment "Ryan is repeating many things he hears" is dumb. Isn't that echolia?
I want to hurt Jean though. Traitor. AAAAAAAAAAAAAahhhh...rrrrrrrrg! I hate autistic people being pro-cure, let alone making $ off of it!


I wemt to that site, and the quote that made me laught the most was this:
Curing Autism is reached when all children who receive vaccinations do not develop autism.


RE: - aprilbaker - 12-03-2007 04:13 AM

aprilbaker Wrote:

Catffienated Wrote:
http://autism. 2-b-well.org/
The comment "Ryan is repeating many things he hears" is dumb. Isn't that echolia?
I want to hurt Jean though. Traitor. AAAAAAAAAAAAAahhhh...rrrrrrrrg! I hate autistic people being pro-cure, let alone making $ off of it!


I went to that site, and the quote that made me laugh the most was this:
Curing Autism is reached when all children who receive vaccinations do not develop autism.




RE: Room 101: For Rotten Autism Sites - bravesj858 - 12-04-2007 11:16 PM

here's one that recently come up: aboutourkids.org/about_us/public_awareness .  their ad campaign 'ransom notes' is utterly offensive, as they go with the view that autism holds people for ransom like abductors.


RE: Room 101: For Rotten Autism Sites - Pakrat - 12-10-2007 12:55 PM

MadKangaroo Wrote:

Kosmonaut Wrote:

MadKangaroo Wrote:
You forgot the quotation marks, and who you quoted. Thats plagarism of the highest order...


Hope i dont get sued.


We both know Planky Boy is a bit protective of his "domain"

The thing that really really really aggravates me about his approach is he is too weak to directly PM a person whose behaviour is bothering him but has to deliver second hand news through one of the moderators. Maybe he is worried he will be out-argued.

In recent months, my estimation of Alex the Plank has gone down many notches.


RE: Room 101: For Rotten Autism Sites - MrCoffee - 01-13-2008 08:02 AM

OK, I just found one.  And no, I didn't set it up:  It's Autismforum dot com (if you accidently type "net", you'll end up on my boring site).  It'll redirect you to the Autism-Nutrition main site.  It has gobs of biochemical warfare stuff, chemical goop, and probably more medical quackery than most any self-respecting Aspie can stand.  Enjoy!

MrCoffee


RE: Room 101: For Rotten Autism Sites - Silver Meteor - 02-24-2008 06:57 PM

Here is directly from the introduction to their bulletin board:

"The FAAAS, Inc. Bulletin Board is a set of online forums intended for the discussion and sharing of information regarding Asperger's Syndrome. This board is intended to deal specifically with the issues of the family members, friends, and loved ones of the affected person.

Please note that this is not a bulletin board for Asperger's individuals themselves. This is also not a board for other types of neurological or behavioral disorders unless they relate to or have a bearing on the Asperger's Syndrome disorder itself."

"After the board administrator has reviewed your information and determines that you are an individual who would benefit from participating in this online community, you will then be sent a link to a special web page where you can pay the yearly membership fee of $29.95."


RE: - tlcoopi7 - 04-10-2008 08:35 AM

Gareth Wrote:
haven't been reading this thread so someone might have already posted this but:
http://www.generation rescue.org

autism, aspergers, ADD and ADHD are all myths and are "on the spectrum of mercury poisoning"


One time, I attended an autism support group meeting with my mom and a woman there supports Generation Rescue and mentioned about a seminar that is related to Generation Rescue that is going to be in my hometown in a few days. A few days after the meeting, my mom talked about it with her sisters (my aunts), saying that she thinks that the woman that supports Generation Rescue is nuts.


RE: Room 101: For Rotten Autism Sites - Carey2 - 04-10-2008 08:49 PM

tlcoopi7 Wrote:

Gareth Wrote:
haven't been reading this thread so someone might have already posted this but:
http://www.generation rescue.org

autism, aspergers, ADD and ADHD are all myths and are "on the spectrum of mercury poisoning"


One time, I attended an autism support group meeting with my mom and a woman there supports Generation Rescue and mentioned about a seminar that is related to Generation Rescue that is going to be in my hometown in a few days. A few days after the meeting, my mom talked about it with her sisters (my aunts), saying that she thinks that the woman that supports Generation Rescue is nuts.


Hi all, a first post, and yes I admin an ASD support forum,(hope you don't think it too rotten)Big Grin

This sounds like someone that I had to ban from my forum in its early days.
No matter what proven facts were given to the lady in question it was all "government nonsense" ..... autism was invented in the early 70's and caused by the mass innnoculation program.etc, etc. Planned mercury poisoning, conspiracies ..... all children need detoxifying to cure them of autism.......Rolleyes

This week I have had this  sent to me, http://www.liafoundation [.com], where they concoct their figures from I have no idea I gave up reading it.
Yet another cause for autism, again they seem to fail to grasp that "Lyme" a disease which seems to have gripped the american imagination rather strongly, is not present at a high incidence rate in much of the world,yet they say that figures show 93% of children with autism also have Lyme disease.

Here in the UK the blame is layed at the MMR vaccination again they will not accept that autism was present long before these vaccines and children that have never had the MMR vaccine have been diagnosed on the spectrum.

Last week I found a thread on a UK forum from someone researching unleaded fuel as the cause of the "autistic epidemic"...... what epidemic?

The incidence of both autism and asperger's syndrome remain the same, all that has changed is the world population is growing and the awareness/diagnosis levels have improved.

We live now in a society that has to lay blame and seek compensation for anything that is not deemed to be "perfect".

I wonder what the world would be like if there were no genetic differences, where would the human race be without people that are "different" and think outside the box?

My 12 year old son is an Aspie and doing fine now with the right help and guidance, I am damn proud of him and what he has overcome .


RE: Room 101: For Rotten Autism Sites - tlcoopi7 - 04-11-2008 06:52 AM

Carey2 Wrote:

We live now in a society that has to lay blame and seek compensation for anything that is not deemed to be "perfect".


I think of it as a way for a person to find fault of something and sue them to get rich quick. Several years ago, several states, including my home state of Illinois, passed laws that prevent someone from suing a fast food resturant for making them fat, they are called the McLawsuit laws. If someone walks into a McDonald's and order the Big Mac Extra Value meal Supersized with a Coke everyday for a month for lunch and gained wait, it is not McDonald's fault, it is the person's fault. The person made the decision to go there and make that order.


RE: Room 101: For Rotten Autism Sites - earthmonkey - 04-11-2008 07:12 AM

Is the UK as bad as the US with over-litigious-ness? It seems like we'd be pretty hard to top. Sad

Someone claimed that autism was invested in the 1970's? Wow, that ignores reality even more than the vaccine-causation "theory" - um, didn't she ever hear of Kanner or Asperger?


RE: Room 101: For Rotten Autism Sites - demolucaspiegirl - 05-19-2008 04:31 PM

This is the worse one I've seen.

Look at it.Don't post though, nothing will get through.He'll delete it if it's anything different then his opinion.

[edit] link deleted, it has been changed to a porn site [couldbecousin]


RE: Room 101: For Rotten Autism Sites - Carey2 - 05-19-2008 09:46 PM

demolucaspiegirl Wrote:

[edit] link deleted, was changed to a porn site [couldbecousin]

This is the worse one I've seen.

Look at it.Don't post though, nothing will get through.He'll delete it if it's anything different then his opinion.


that is hosted on Liquid Web servers............. send an abuse complaint.

abuse@liquidweb.com


RE: Room 101: For Rotten Autism Sites - - 05-19-2008 10:33 PM

what a...charming fellow.


RE: Room 101: For Rotten Autism Sites - andrew_w - 05-20-2008 07:35 AM

demolucaspiegirl Wrote:


[edit] link deleted, was changed to a porn site [couldbecousin]


This is the worse one I've seen.

Look at it.Don't post though, nothing will get through.He'll delete it if it's anything different then his opinion.


He sounds like a troll to me. The best thing to do is ignore him. Don't give him the attention that he wants.


RE: Room 101: For Rotten Autism Sites - woman from mars - 05-20-2008 11:55 PM

demolucaspiegirl Wrote:

[edit] link deleted, was changed to a porn site [couldbecousin]


This is the worse one I've seen.

Look at it.Don't post though, nothing will get through.He'll delete it if it's anything different then his opinion.

There is something wrong in that I am unable to access AFF except via my email account.
Please will a moderator break this link as it is to a PORN website.
Thanks.



RE: Room 101: For Rotten Autism Sites - - 05-20-2008 11:57 PM

just to verify this; the site was, before, a blog.

it has now been switched to a...distasteful..picture.


RE: Room 101: For Rotten Autism Sites - couldbecousin - 05-21-2008 12:12 AM

Thanks for alerting me to the fact that the site was changed...link is gone now.


RE: Room 101: For Rotten Autism Sites - Zed - 05-21-2008 12:43 PM

Carey2 Wrote:

Hi all, a first post, and yes I admin an ASD support forum,(hope you don't think it too rotten)Big Grin

This week I have had this  sent to me, http://www.liafoundation [.com], where they concoct their figures from I have no idea I gave up reading it.


"... it is important to note that borrelia is not the only infection that autistic children have.  Many children also have Mycoplasma, Herpes, Chlamydia, Babesia, Bartonella and many more."

If their kids have all of those infections as well as an ASD, I wouldn't go within a handshake's distance.


RE: Room 101: For Rotten Autism Sites - DigiModify - 05-23-2008 10:53 PM

I have another one. Just a quick note before going to the page: While it may look like this YouTube user supports proper treatment of autistics, he bashes Neurodiversity pretty badly in one of his videos (the one titled 'Autism Curebies Quacks Idiots Maniacs').

PhilC omman der2's YouTu be page

[edit] link broken [couldbecousin]


RE: Room 101: For Rotten Autism Sites - - 05-24-2008 12:10 AM

oh, I don't know, I watched that, and I thought that some of what he said was about right.

we Do use broad strokes.
he is wrong about us not caring about the kids.

and he is right, we do use Curebie as an insult.

he is...too aggressive, but he is making sense.

perhaps we should stop using the terms "Curbie" and "quack". if it turns people off listening, then...


RE: Room 101: For Rotten Autism Sites - skyblue1 - 05-24-2008 01:34 AM

Daily Strength site


RE: Room 101: For Rotten Autism Sites - - 05-24-2008 01:34 AM

*whoosh*


RE: - Celebrindal - 05-26-2008 08:06 PM

Amy Wrote:
From The Emergence Site -

"That Autism, OCD / OCPD, Asperger's Syndrome, and ADD are the same illness contracted at different ages; more so, that the age of onset determines what will distract the person."

How horribly innaccurate, it makes me cringe. :no


Dang... that makes me cringe too Amy....
Uh... I can't remember the exact url...but last term when I was working on my autism research paper I came across this REALLY dumb webpage that "supposedly" had acurate information about ASDs ....

I'll try to hunt it down again...

TTFN
Me


RE: Room 101: For Rotten Autism Sites - Zed - 05-27-2008 01:04 AM

The issues that are addressed on the emergence site do have some validity. For example:
"You'll find that all symptoms reveal, not the source of illness, but rather the onset of illness; not the "cause" of illness, but rather the literal life stage on which a particular symptom, or cluster of symptoms, was once a normal, natural, healthy response to the person's life events."

Almost all of ASD typical behaviours are normal to a certain degree, frequency and intensity at the relevant stage of development. Most people move on whereas some of ours 'stick'. Identifying those allows to work forward and rather than focus on extinguishing behaviour that is no longer functional, we can add consciously add behaviours that are adaptive to our current circumstances.


RE: Room 101: For Rotten Autism Sites - aspieprincess - 06-04-2008 04:37 AM

How about this one:
http://www.kmarshack.com/publications/as/index.html
Probably the most hateful book by a "professional" I have ever read.

Lynne Soraya
Asperger's Diary
http://blogs.psychologytoday.com/blog/aspergers-diary


RE: Room 101: For Rotten Autism Sites - Zed - 06-04-2008 05:00 AM

The Soraya site has some interesting links. One is to safety advice about dealing with law enforcement.
http://www.autismriskmanagement.com/people.html

Persons with autism who are able to navigate the community without assistance should strongly consider developing a personal handout for the police. Remember that the initial uninformed contact with police presents the highest potential for a negative outcome.

Some suggestions to consider during sudden interactions with police:  
Do not attempt to flee  
Do not make sudden movements  
Try to remain calm  
Verbally let officer know you have autism. If nonverbal, use alternative communication tools, such as a simple sign language card, that indicates the need to write  
Obtain permission or signal intentions before reaching into a coat or pants pocket, or reaching into a car glove box    
If unable to answer questions, consider use of a generic or person-specific autism information card  
If you lose the ability to speak when under stress, consider wearing an alert bracelet or necklace that is easy to see--one that lets the reader know you have an information card  
Ask officer to contact an advocate, if necessary and possible  
For the best protection of all involved, the person with autism who has been arrested should, either verbally or through an information card, invoke the right to remain silent and ask to represented by an attorney  
If you are a victim or are reporting a crime, you do not need to have an attorney present to speak to the police, but you may want the police to contact a family member, advocate or friend who can help you through the interview process  
Carry the phone number of an advocacy organization or personal advocate, relative or friend.


RE: Room 101: For Rotten Autism Sites - Jannine Ambitious/Original - 06-15-2008 02:31 PM

hatingautism.blogspot.com


RE: Room 101: For Rotten Autism Sites - Celebrindal - 07-11-2008 08:09 PM

Jannine Ambitious/Original Wrote:
hatingautism.blogspot.com


Damn... that last one really got to me...
and that "Sliver in my Brain" thing comming up soon is really confusing to me... it makes it seem like people with AS are the enemy! Damn thats pure crap plain and simple

TTFN
Me


RE: Room 101: For Rotten Autism Sites - Johanna - 07-20-2008 09:49 PM

I really hate this site: hating autism.blogspot.com. Take out the space and type it in your Address bar and you will go to a very offensive site that preaches that autism is caused by mercury poisoning and that "no sane person opposes curing autism." I have no psychiatric history and I oppose a cure for autism because I don't hate myself. If an autistic wants themselves cured, then they need to see a therapist to work out their problems with self-image. Big Grin Know what I mean?


RE: Room 101: For Rotten Autism Sites - Ethel - 07-20-2008 10:16 PM

Yes, that one's stirred up a lot of angst over the years.  Just don't give them any mroe free publicity, OK?

However, please remember that your opinions and your beliefs stop where you stop and others start.  If I want a cure, I don't need some self-righteous internet stranger ordering me off to see a therapist.  Kindly pull your head in and get over yourself... if YOU don't want a cure, YOU don't want a cure.  What I want is MY business.


RE: Room 101: For Rotten Autism Sites - Johanna - 07-20-2008 10:41 PM

Ethel Wrote:
Yes, that one's stirred up a lot of angst over the years.  Just don't give them any mroe free publicity, OK?

However, please remember that your opinions and your beliefs stop where you stop and others start.  If I want a cure, I don't need some self-righteous internet stranger ordering me off to see a therapist.  Kindly pull your head in and get over yourself... if YOU don't want a cure, YOU don't want a cure.  What I want is MY business.


Let's say that someone you knew wanted to wish away a certain trait of their personality but couldn't and went around moping and sulking and was really depressed about it. Wouldn't you agree that that person would need to see a therapist. That's what I equate being an autistic curebie to because I see autism as a different state of being, not as an illness. About me ordering you off to see a therapist, I didn't say that all autistic curebies should be packed off to see therapists. I said something more about needing to see a therapist. If you don't think you need any advice, simply say "Thanks for the tip, but I don't think I need it." My mother told me that that's the polite way to refuse advice.
P. S. I love the reference to 1984. I forgot to tell you that earlier, Wolfy


RE: Room 101: For Rotten Autism Sites - joesteel64 - 07-20-2008 10:47 PM

ok, so if I read the aforementioned autism hate blog properly.....It won't matter how happy i'll ever be, because I'm suffer from a horrible affliction caused by vaccinations to keep me from getting very nasty diseases....and the only way for me to ever achieve anything in life is to have a cure that doesn't work shoved down my throat (or up a vein)?  

Sorry, don't think so.  I'm just fine learning how to live with AS, thank you very much!  besides, if I had to choose between AS and whooping cough, or measles, or mumps....I'd take the AS Wink

besides you can't cure what isn't a disease Smile  you can provide coping stratedies and such though.




It really gets under my skin when people say such


RE: Room 101: For Rotten Autism Sites - Ethel - 07-20-2008 11:08 PM

Johanna, you waltz in here, start giving speeches more for the benefit of hypothetical google visitors than the actual people on the forum, and start having a go at me because I want to exercise my right to make my own decisions in relation to my health rather than jumping on whichever bandwagon makes me feel righteous.  get over yourself.  Like I said, if I want a cure, that's my business, and maybe it would be polite for YOU to consider that maybe that's based on my own honest analysis of my life, not any hypothetical trauma or self-esteem issues I may or may not have.

And if that isn't polite... to bad.  I'm an Aspie.  I'm blunt.  I call things as I see them.


RE: Room 101: For Rotten Autism Sites - Johanna - 07-20-2008 11:16 PM

I was saying before that if you don't want to take my advice, then you can refuse it politely. I have had enough of feuding with you and having you flame me accusing me of flaming you. If you're going to continue to flame me, then I'm not going to speak to you and you will become the first person on my Ignore list. We don't have to be buddies, but please don't flame me!


RE: Room 101: For Rotten Autism Sites - skyblue1 - 07-21-2008 12:01 AM

Johanna Wrote:
I was saying before that if you don't want to take my advice, then you can refuse it politely. I have had enough of feuding with you and having you flame me accusing me of flaming you. If you're going to continue to flame me, then I'm not going to speak to you and you will become the first person on my Ignore list. We don't have to be buddies, but please don't flame me!

actually you were flaming her


RE: Room 101: For Rotten Autism Sites - Ethel - 07-21-2008 12:16 AM

I am not "flaming" anyone.  I am standing up for myself.  If having a spine makes you hate me, that's just fine by me.


RE: Room 101: For Rotten Autism Sites - Johanna - 07-21-2008 12:19 AM

skyblue1  Wrote:

Johanna Wrote:
I was saying before that if you don't want to take my advice, then you can refuse it politely. I have had enough of feuding with you and having you flame me accusing me of flaming you. If you're going to continue to flame me, then I'm not going to speak to you and you will become the first person on my Ignore list. We don't have to be buddies, but please don't flame me!

actually you were flaming her


*Reads past posts, realizes skyblue1 is right, and hangs head in shame*


RE: Room 101: For Rotten Autism Sites - skyblue1 - 07-21-2008 12:21 AM

Ethel Wrote:
I am not "flaming" anyone.  I am standing up for myself.  If having a spine makes you hate me, that's just fine by me.

ethel , hope you are not thinking that I hate you,I dont.I know you are a respected member here,Iwas speaking to the other person


RE: Room 101: For Rotten Autism Sites - Ethel - 07-21-2008 02:46 AM

Nope... I was refering to the post above yours.  Never mind, all is forgiven.


RE: - johnH - 01-05-2009 04:45 AM

Wolfy Wrote:
"If a person experiences undue and irrational anxiety, then the condition is not likely to be Asperger's."

That is like saying that people with AS dont have anxiety.  I have to go slightly out of context to explain this but lets take a look at OCD.  Every single person with AS has some traits of OCD.  Some have the full blown condition, others do not, but all have the same underlying obsessive nature due to the monotropic tendancies of the autistic brain.  What happens when you prevent a person from carrying out some ritual behaviour?  They get agitated and anxious.  This would be considered undue and irrational by an NT.  Does this anxiety mean they are not likely to have AS?

What makes NT’s different is what I’d like to know.


RE: Room 101: For Rotten Autism Sites - spectrum_rights - 01-15-2009 02:06 PM

Rotten autism sites?

http://www.autismspeaks.|org would be a huge example!


RE: Room 101: For Rotten Autism Sites - spectrum_rights - 01-15-2009 02:08 PM

Remember to break rotten links!

http://www.generation|rescue.org/ is an example.


RE: Room 101: For Rotten Autism Sites - LWiamil - 01-19-2009 11:56 PM

Makes me go on fire.


RE: Room 101: For Rotten Autism Sites - henmonk - 02-12-2009 06:41 PM

Zed Wrote:
The Soraya site has some interesting links. One is to safety advice about dealing with law enforcement.
http://www.autismriskmanagement.com/people.html

Persons with autism who are able to navigate the community without assistance should strongly consider developing a personal handout for the police. Remember that the initial uninformed contact with police presents the highest potential for a negative outcome.

Some suggestions to consider during sudden interactions with police:  
Do not attempt to flee  
Do not make sudden movements  
Try to remain calm  
Verbally let officer know you have autism. If nonverbal, use alternative communication tools, such as a simple sign language card, that indicates the need to write  
Obtain permission or signal intentions before reaching into a coat or pants pocket, or reaching into a car glove box    
If unable to answer questions, consider use of a generic or person-specific autism information card  
If you lose the ability to speak when under stress, consider wearing an alert bracelet or necklace that is easy to see--one that lets the reader know you have an information card  
Ask officer to contact an advocate, if necessary and possible  
For the best protection of all involved, the person with autism who has been arrested should, either verbally or through an information card, invoke the right to remain silent and ask to represented by an attorney  
If you are a victim or are reporting a crime, you do not need to have an attorney present to speak to the police, but you may want the police to contact a family member, advocate or friend who can help you through the interview process  
Carry the phone number of an advocacy organization or personal advocate, relative or friend.


The NAS do a handy little card and leaflet ,which I got through Asperger United a few years ago, had it renewed for about £3 - I think they are still doing them. Has been useful when dealing with the police, council and other 'official' bodies, employers etc so I don't have to expain. I carry it everywhere - has explanation of autism, says this person has autism on the front, and has the advantage of being a 'real' document - not just something I maybe making up.


RE: Room 101: For Rotten Autism Sites - johnH - 02-12-2009 06:52 PM

Please break your URLS thank you.


RE: Room 101: For Rotten Autism Sites - Ana54 - 09-01-2009 11:42 PM

I couldn't be bothered to read the whole thread, but I read about 2/3 of it and I'll comment on what I saw that I need to comment on...


Quote:
Another Truly rotten site....

Only in FLORIDUH......

             Check this one out:

                          http://www.gnd .org

          GND = Jeff Bradstreet, leading proponent of chelation, who claims to have "successfully treated" over 1600 autistic children.

         It is cloaked in fundamentalist Christian packaging.
The opening video is priceless but I really love the part about Dr Jeff that touts his "knowledge of scripture" as his main qualification to deliver us all from autism.

        Hey, why stop at a cure? Not only do Dr Jeff's clients speak, some of them wind up speaking in tongues!!

                           Enjoy

                      Jerry Newport


May they be excommunicated from whatever church they belong to, and any other they try to get into!

Tony Atwood has let us down. As I suspected he would. S-called wise people with common sense on WP said that he did not want to cure us and one said that he was our Professor X.


All those families who say their autistic people don't understand how much they stress and depress their NT relatives with their autism is awful. What are they doing by saying that? Stressing and depressing their autie relatives. And furthermore, they really lay into their autie relatives whe the auties say that the NTs don't understand how much stress they're causing the auties, not just with their NT behavior but with the TRYING TO FORCE THE AUTIES TO BE OR PRETEND TO BE NT.


BluesMom, about the brain tumor thing, my father once said that people with Tourette's Syndrome have brain tumors and that autistics also have benign brain tumors.

Wolfy, anxiety is one of the symptoms for AS (or is it PDD-NOS?) mentioned in the DSM.

Lili Marlene Wrote:
Sites that are set up for people in some kind of relationship with people with AS seem to be totally unconcerned or oblivious of the fact that the NT partner in an AS/ NT marriage can definitely be "the bad guy" or "the less able partner". I guess it would be naive of me to expect more of these people. Crooks, illiterates and drunks do hook themselves up to aspies. I guess they hope to acquire virtue or skills by association.  

One of the many, many things that attracted me to "Stan" was that he was so smart and nice and wise and sweet and kind and I thought I could get all those qualities by being around him, and I was so thrilled that someone like THAT had chosen ME! And he doesn't know if I have an ASD. A few times he said he doubted I did.


Irish Wolf Wrote:
The name that came to me in half-sleep last night was HAND, for "Help Autistics Now, Dammit!"  The slogan - "We don't need a cure, just a HAND!"  :smile:  

That's an excellent idea! I love it!


Corcaigh Wrote:
I love my son the way he is and the only reason why we are working on his anxiety and anger management, at the moment, is because HE feels bad about it, I don't give a toss about what the teachers think. He's been off school for the past month and did not miss it.

Good on you! Way to go! Big Grin


RE: Room 101: For Rotten Autism Sites - Ana54 - 01-24-2010 03:53 AM

I read the first page of this thread and it's all I need to see right now. The silver lining is that at least my bf, when suing me for custody, didn't write or mention that I had an ASD. He blamed my incompetence on schizophrenia and bipolar disorder (whether I have them or not, I do not know; depends on the definition).


RE: Room 101: For Rotten Autism Sites - Ana54 - 01-24-2010 03:53 AM

I mean, he sued me for custody of my son, not for putting me in police custody or anything like that.


RE: - ivanova-aspie - 01-24-2010 08:44 AM

Lili Marlene Wrote:
Here's a quote from the Australian web site that whinges about aspie parents

Quote:
Our parents often...

could not "know" us or give us recognition

could not "mirror" us

did not know how to hold us

did not know how to touch us

held us captive to their monologues and obsessions

did not recognise our boundaries ie that we were different from them


I could say the same things about my neurotypical parent. I was raised as though I was an NT like my parent. I was held captive to my NT parent's obsession with attending social events. I remember many long boring miserable hours spent at noisy parties, wishing I could find something interesting to read or play with.

If I had the time I would start a whinger web site for aspie offspring of NT parents.

Quote:
Aspar does not receive
funding or subsidies for its pioneering work.

and I don't think it deserves to either.


this is one of the reasons i don't want to be a parent.


RE: - raew - 01-24-2010 05:22 PM

mom2aspiegirl Wrote:
I don't know of any websites off the top of my head, but it seems like anytime I read an article about autism in any parenting magazine, newspaper, etc the stories are the exact same.
Billly was a perfectly normal, happy baby and then one day  around 18 months of age he started losing speech, wouldn't make eye contact, yadda yadda yadda........

I can't relate to any of this with my child. Can't anyone write about anyother type of autism? We knew from the day she was born that she was just like my husband and my brother in law, we just didn't know that they had aspergers.

Annie

So agree!


RE: Room 101: For Rotten Autism Sites - Cash_Furniture - 03-24-2010 08:25 PM

Wow.

I think, relative to the sites that are for NT families of Aspies, some of y'all are being unfairly harsh.

It is difficult - emotionally, socially, and financially - to be the parent or sibling of someone on the spectrum.


RE: Room 101: For Rotten Autism Sites - westernwild - 05-04-2010 02:37 AM

Cash_Furniture Wrote:
Wow.

I think, relative to the sites that are for NT families of Aspies, some of y'all are being unfairly harsh.

It is difficult - emotionally, socially, and financially - to be the parent or sibling of someone on the spectrum.


I do not consider it difficult, I consider my aspie son to be the greatest blessing of my life and I wouldn't have him any other way. What I DO consider difficult are people who make his life hard through stigma, discrimination, bias, hatefulness, whining about how "abnormal" ASD are and, expecting everyone to think and act and be the same, and the fascists at FAAAS who would rid the world of every single aspie if they could find a way to do it. And who are going to make my son's adult life very difficult.

To be an aspie/ASD is truly exhausting at times, and navigating daily life can be a real challenge. Yet all they often hear is how hard it is for those WITHOUT such challenges and issues to deal with them. And family often doesn't make any effort to try to communicate in a way the aspie/ASD would understand, they expect the ASD to always change themselves all the time. They have the luxury of walking away from the ASD, even for just a little while, while the aspie has no choice and can't just "walk away" from their brain. How about a little compassion for THEM in always hearing about how hard they are to be with, dealing with such whining, dealing with groups who want to "cure" them as if they're some kind of horrible disease, etc., etc.


RE: Room 101: For Rotten Autism Sites - Cash_Furniture - 05-26-2010 12:18 AM

westernwild Wrote:
I do not consider it difficult, I consider my aspie son to be the greatest blessing of my life and I wouldn't have him any other way.


Whether or not YOU consider it difficult is irrelevant.  Also irrelevant is the degree to which you consider your son to be a blessing to you.  

Hint:  Most of us feel the same way about our little ones.  I'm sure you don't mean to imply that we don't, but the implication is there.

westernwild Wrote:
What I DO consider difficult are people who make his life hard through stigma, discrimination, bias, hatefulness, whining about how "abnormal" ASD are and, expecting everyone to think and act and be the same, and the fascists at FAAAS who would rid the world of every single aspie if they could find a way to do it. And who are going to make my son's adult life very difficult.


What you are saying here is that you do find ibeing the parent of a spectrum child difficult, and you find other people's misconceptions about your son especially vexing.  Thusly, our positions are not exclusive of one another.  

westernwild Wrote:
To be an aspie/ASD is truly exhausting at times, and navigating daily life can be a real challenge. Yet all they often hear is how hard it is for those WITHOUT such challenges and issues to deal with them.


Is that why you're here?  To tell parents of spectrum children how selfish they are?  

westernwild Wrote:
And family often doesn't make any effort to try to communicate in a way the aspie/ASD would understand, they expect the ASD to always change themselves all the time. They have the luxury of walking away from the ASD, even for just a little while, while the aspie has no choice and can't just "walk away" from their brain.


To what family are you referring to in your straw man argument?

westernwild Wrote:
How about a little compassion for THEM in always hearing about how hard they are to be with, dealing with such whining, dealing with groups who want to "cure" them as if they're some kind of horrible disease, etc., etc.


I have such compassion.  Heck, I even evaluate people by what they actually say and do, and not what I imagine they might say and do.

What about you, westernwild?


RE: - raew - 05-26-2010 05:08 AM

Amy Wrote:
Is that the one with a picture of a head opening up? It is ghastly.


It's "Families of Adults Affected by Asperger's Syndrome"

and that picture is ghastly! In their description they say we are "afflicted" and that we have no sympathy for the people in our lives that have to live with us afflicted people.

***blech!***


RE: Room 101: For Rotten Autism Sites - raew - 05-26-2010 05:12 AM

westernwild Wrote:

Cash_Furniture Wrote:
Wow.

I think, relative to the sites that are for NT families of Aspies, some of y'all are being unfairly harsh.

It is difficult - emotionally, socially, and financially - to be the parent or sibling of someone on the spectrum.


I do not consider it difficult, I consider my aspie son to be the greatest blessing of my life and I wouldn't have him any other way.


So do I! I want my son to have a more understanding world, but not to change him. Would I rip out his hair because it's not curly like mine? Or his eyes because of their color? He is who he is, and partly because of me since I am an Aspie too, but more because that is who he was created to be. Yes, it's not easy. Trust me! It's not easy being an Aspie mom with an Aspie kid, but he has a mom that will NEVER reject him and make him think he's damaged, the way that my parents did to me. Anyone that tries to do that is the one that needs to change.


RE: Room 101: For Rotten Autism Sites - westernwild - 05-29-2010 06:35 AM

Cash_Furniture Wrote:

westernwild Wrote:
I do not consider it difficult, I consider my aspie son to be the greatest blessing of my life and I wouldn't have him any other way.


Whether or not YOU consider it difficult is irrelevant.  Also irrelevant is the degree to which you consider your son to be a blessing to you.  

Hint:  Most of us feel the same way about our little ones.  I'm sure you don't mean to imply that we don't, but the implication is there.

westernwild Wrote:
What I DO consider difficult are people who make his life hard through stigma, discrimination, bias, hatefulness, whining about how "abnormal" ASD are and, expecting everyone to think and act and be the same, and the fascists at FAAAS who would rid the world of every single aspie if they could find a way to do it. And who are going to make my son's adult life very difficult.


What you are saying here is that you do find ibeing the parent of a spectrum child difficult, and you find other people's misconceptions about your son especially vexing.  Thusly, our positions are not exclusive of one another.  

westernwild Wrote:
To be an aspie/ASD is truly exhausting at times, and navigating daily life can be a real challenge. Yet all they often hear is how hard it is for those WITHOUT such challenges and issues to deal with them.


Is that why you're here?  To tell parents of spectrum children how selfish they are?  

westernwild Wrote:
And family often doesn't make any effort to try to communicate in a way the aspie/ASD would understand, they expect the ASD to always change themselves all the time. They have the luxury of walking away from the ASD, even for just a little while, while the aspie has no choice and can't just "walk away" from their brain.


To what family are you referring to in your straw man argument?

westernwild Wrote:
How about a little compassion for THEM in always hearing about how hard they are to be with, dealing with such whining, dealing with groups who want to "cure" them as if they're some kind of horrible disease, etc., etc.


I have such compassion.  Heck, I even evaluate people by what they actually say and do, and not what I imagine they might say and do.

What about you, westernwild?


Once again, I repeat that I do not find it difficult to be the parent of an aspie son; in fact, I find it rewarding and interesting. I do not need to join a "woe is me, look at the difficult child life has saddled me with" groups.

If you are the parent of an ASD, then you need to be far more concerned with the very detrimental and damaging effect the likes of FAAAS and Maxine Aston and her CAD nonsense will have on the life of your child, especially in adulthood, as they actively work to promote and promulgate discrimination against aspies in courts, child custody and family life, personal and social relationships and employment, and promote negative stereotypes and misinformation to the public at large, than you do with any detrimental effect on you or the rest of your family. Because, believe me, FAAAS and company are very real threats.


RE: Room 101: For Rotten Autism Sites - westernwild - 05-29-2010 06:41 AM

raew Wrote:

westernwild Wrote:

Cash_Furniture Wrote:
Wow.

I think, relative to the sites that are for NT families of Aspies, some of y'all are being unfairly harsh.

It is difficult - emotionally, socially, and financially - to be the parent or sibling of someone on the spectrum.


I do not consider it difficult, I consider my aspie son to be the greatest blessing of my life and I wouldn't have him any other way.


So do I! I want my son to have a more understanding world, but not to change him. Would I rip out his hair because it's not curly like mine? Or his eyes because of their color? He is who he is, and partly because of me since I am an Aspie too, but more because that is who he was created to be. Yes, it's not easy. Trust me! It's not easy being an Aspie mom with an Aspie kid, but he has a mom that will NEVER reject him and make him think he's damaged, the way that my parents did to me. Anyone that tries to do that is the one that needs to change.


Exactly, thank you!! Some more "traditional" members of my family need to learn this as well.

My husband, my son's stepfather, has some aspie-like traits, but is definitely not an aspie and has not been diagnosed as such, nor would he, as he does not fit enough of the criteria. But there are some people, namely an ex-wife, who is convinced he's an aspie based on their own misinformed perceptions and notions. One major reason for that is that there are too many professionals in this country who still don't fully understand AS and have too superficial a knowledge/understanding of it at this point in time. That is where public education is crucial, and not the hate misinformation campaigns of the likes of FAAAS and Maxine Aston and company.


RE: Room 101: For Rotten Autism Sites - Kapkao - 06-20-2010 10:15 PM

Autism Squawks- who are they?


RE: Room 101: For Rotten Autism Sites - violet_yoshi - 06-24-2010 07:16 AM

http://en.wikipedia.org/wiki/Autism_Speaks


RE: Room 101: For Rotten Autism Sites - Ivar T - 06-24-2010 07:53 AM

I was a little puzzled when I saw that Simon Baron Cohen really has written that the view that autism is a disease is “shared by many but not all scientists.”


RE: Room 101: For Rotten Autism Sites - Quintega - 10-22-2010 11:56 PM

if you want to see a website which is not only run by an idiot but is insulting here is one
http://www.cureforautism.org/

I was and am doing a report and on autism rights and decided to see why this guy was so adamant about his POV from talking I realized he had given up on his boys. Then he not only Questioned if I even had Autsim but claimed I was a moron and that no parent want's a child with Autism despite my mother loves me having it. Either way he is so uneducated in his POV that it astounded me his children could have been HFA but he gave up on them at the age of 3 on his oldest and then the youngest when he was born. What was more insulting was his sole Exuse for his "help site" is because he doesn't know how to potty train an autistic.

And no I'm not asking for help with my report I know the rules I was just making a statement. But I did find something interesting in my research. 97% of LFA is the parents fault ony 3% is born that way it is mostly caused by the parent giving up. these numbers are from interviews I have been doing with both HFA and LFA families and that was astonishing 97% are parental fault who hear the word autism and give up. No I am not placing blame on anyone these were just of 600 autistic families I interviewed in Allentown, Bethlehem, Reading, and Slatinton PA

So I can't say its that way for every one but out of 600. 300 being LFA 300 HFA both sides a large amount of the growth came from parental involvement.

90% of the HFA's I interviewed had parents who were always there and ready to help, talk to teachers and such and showing love and not calling them diseased


RE: Room 101: For Rotten Autism Sites - Amy - 10-23-2010 01:48 AM

Quintega, I am highly dubious about the validity of your study.

For one thing, you even spelled autism wrong in your post!
You cannot state that 'LFA is the parents fault' and nonsense like that. A diagnosis cannot be made at birth so you cannot say if a child was born 'that way' or not.

It's astonishingly ludicrous and disturbing.


RE: Room 101: For Rotten Autism Sites - - 10-23-2010 01:58 AM

Amy pretty much covered it.

I live across the road from a family who have (or had, the family split) an LFA daughter, Holly. They absolutely doted on her, but she still turned out LFA - sweet girl, smart, but incommunicado.

On the other foot, I know someone who was abandoned by both their parents at different stages and were being looked after by the grandparents by the time I met them - bloody smart fellow, undoubtedly AS from his mannerisms and personality.

Remember; Correlation != Causation, and Anecdotal Evidence Isn't.


RE: Room 101: For Rotten Autism Sites - Genesis - 10-23-2010 02:02 AM

Just be careful with your facts Quin....


RE: Room 101: For Rotten Autism Sites - Quintega - 10-23-2010 03:52 AM

I already stated they weren't facts but things I picked up in interviews with families. Also My spelling is known to be bad after doing anything too long my arm sears with pain and inhibits most of my activities. I am fully aware Autism cannot be diagnosed at birth heck I wasn't till I was 12. But this is why I put those numbers up is something isn't right. But on the same token the parents I met with were horrible people. But as too what the bizarrelyness of the study I am doing had an ulterior motive. One was to figure out some form of statistics which I don't exactly understand how out of 300 LFA Students I got all the ones with Parents who made Charles Manson look good. But Anyway the second point of the numbers was a favor for my Cousin who is curious but not too bright we both came from the Same Experimental set of Classes.

We both had seen our Fair share of LFA's but wondered why some of them had lets say their Quirks. I won't go into specifics but the boy who started this question was a boy named Tony I'm going to use that name for privacy sake. His father was wealthy very now this confused me since his son Tony was going to a very poor Public High school the same one I was going to. So After graduating a year later I looked into Tony's Family and found something odd well a lot of things but mostly this. like the Man Who heads up CAN Tony was diagnosed at 1-2 years of age to my knowledge that is far to young to show symptoms.

Now in Tony's case it was correct but I still didn't understand why tony was so much lower then his other LFA class mates. So I interviewed the Father.  who I was amazed to be able to get an interview. The guy told me he Assumed that his son Had Autism since the boys dead mother had it. So I continued talking with him. Turned out he didn't even think of his son as a person just a "leech" that needed no care so he just ignored him and sent him to a low end school. I figured after wards okay this had to be a fluke

But as the year went on I continued trying to figure out why certain class mates both HFA and LFA were having mixed results in these two experimental classes. but each family was the same. I still couldn't figure out how they were diagnosing these kids at ages lower then 3. Then when I finally changed my report to autism rights it dawned on me where these parents were getting info from. Each of the area's had major autism walks sponsored by non other then CAN. then linking in each family I found at least one member of each family usually a relative not direct linage had participated.

I guess from there I jumped the gun and Assumed that these 600 where how it was the rest of the world. I guess I shouldn't assume just from bad luck and the fact I only interview 600 families instead of the total amount in those cities that are registered with diagnosis would be in the tens of thousands in those five cities. Hm I guess I should apologies for Assuming and if I annoyed any one.

So I'm sorry for jumping the gun I am prone to exaggeration its what makes me human.

Trust me I never said nor do I think this is fact


RE: Room 101: For Rotten Autism Sites - darkcode - 10-23-2010 04:11 AM

Quintega Wrote:
I guess I shouldn't assume just from bad luck and the fact I only interview 600 families


Quintega Wrote:
I guess I should apologies for Assuming and if I annoyed any one.

So I'm sorry for jumping the gun I am prone to exaggeration its what makes me human.

Trust me I never said nor do I think this is fact


If you consider most studies draw conclusions from having only about 10 autistic participants, I think your observations have a higher probability of being less exaggerated than most. I think having some recorded data published on this would be nice even though its likely to be an inconvenient truth if its accurate. if its accurate follow up research could possibly point at new ways to help autistics succeed.


RE: Room 101: For Rotten Autism Sites - Amy - 10-23-2010 06:02 AM

Quintega - Your post did give the impression that it was a genuine study and it caused an argument in the chat room as people read it and felt it was real.
I don't see how you can compare the age a child was diagnosed at, what that diagnosis was, and the fact that there was a Cure Autism Now walk held in the same area.

A doctor would not be influenced by that in the same way that a parent would be. I cannot understand your logic on this at all.

As you saying that 97% of children in one group were diagnosed as being HFA, then later their diagnosis was changed to become LFA, and that the cause was that the parents didn't care?

I highly doubt that any of the children's diagnoses were changed. I suspect that you decided if a child seemed LFA or HFA to you as teenagers.
As for the poor public school idea, public schools are not all poor, far from it.


RE: Room 101: For Rotten Autism Sites - Genesis - 10-23-2010 06:22 AM

The public school system that I was in was the top 5% of the country.... which excludes the special ed students and those deemed "unworthy"


RE: Room 101: For Rotten Autism Sites - Quintega - 10-23-2010 01:59 PM

Amy it would help if logic wasn't applied to my thinking it would be difficult. As for the Public School William Allen High-school is the poorest financially only topped by a school in south Philly. I remember being part of fundraisers simply to get walls repaired we lost most of our funding when our sister school Deiruff was his with a low category tornado that destroyed half the schools middle section.

If your asking though how did I come to that conclusion I hate comparing myself to tv but think of the way I think as similar to Dr Spencer Reid from criminal minds. Except I am more comfortable at Psychology then magic and statistics.

In my mind the Study is complete but to others it might make little sense. I did not mean to upset the status quo.

Basically an easy way to draw a way for it to make sense.

300 were LFA diagnosed
150 from high income families
150 from low income families
an equal amount from each nationality in the area
though I only had about 5 girls so that I was upset about

300 were HFA Diagnosed
150 from High income families
150 from low income families
Equal amount of each nationality in the area
3 girls in this case

now before I continue

the nationality in the area's a went to were this

Allentown mostly hispanic
Followed by Blacks
lowest was whites. (I'm not being racist just pointing things out)

Reading mostly split between Minorities on the bad side of Reading
and An whites on the good side though had an Equal amount of hispanics

Bethlehem Basically split between Blacks and Hispanics
Very little white

then Slatington was Basically white with a low balanced amount of the others.
I then interviewed each family then the person with LFA or HFA so I could see for myself how high or low functioning they were.

I then would ask how they learned about their childs Diagnosis and when it was. A large amount of LFA families my percentages may be a bit exaggerated. but they were still in the 80's to 90's were all getting their info From CAN who is sponsored by Autism Speaks.

Now how did I get the parents were affecting them? this was were the personal interview with the Diagnosed came in. I don't know if alot of people with Aspergers can do this but I have an easy time gauging ones intelligence level. Most of the children were quite smart yet I couldn't understand why they were being called Low functioning. So I asked the parents if they would be willing to take their child to be re diagnosed by the Doctor who did it for my family. He confirmed my suspision almost all the LFA's who were re Diagnosed were actually HFA but because the parent's didn't know any better they only went by info they had so the kids were actually being handicapped by their parents.

Now why I say this isn't an official study is more of an odd reason. I did this anonymously so no documents were taken. It was simply to get my college to stop supporting Autism speaks. Which did stop but at the cost I cannot publish this study as I promised all participants including the doctor that it would be completely anonymous.

Now I am sorry I even brought it up I didn't mean to start fights or disagreements I some times do things without thinking and I forgot that only a few of my friends who helped me out knew about the study.

So I would like to apologies in advanced


RE: Room 101: For Rotten Autism Sites - Quintega - 10-23-2010 02:06 PM

I forgot one tid bit though

As for the doctor most of them were going to doctors thats info was given by CAN or Autism speaks chat rooms. When compared with a doctor who was gaining nothing from this I can say I believe it has some merit. But incase people are still confused I learned a long time ago CAN and Autism speaks have doctors one their pay roll how else do you think only the bad side of Autism gets so much publicity


RE: Room 101: For Rotten Autism Sites - RandomGirl - 11-26-2010 09:12 PM

Wolfy Wrote:
http://theemergence site.com/Tech/TechIssues-Autism-OCD-Aspergers-ADD.htm

Judge for yourself.  I was in the middle of writing to the guy but I thought if he read my email he might cry or something - lol  :twisted:


This is what I judge of that site (the autism-is-getting-stuck one):


I couldn't find any good describing words.


RE: Room 101: For Rotten Autism Sites - Semicolon - 11-27-2010 03:37 AM

Age of Autism

http://www.age of autism.com/

It's a standard-issue site touting the dangers of mercury poisoning from vaccines. They are closely linked to another site, known as Safe Minds, with the same views and agenda.

http://safe minds.org/


RE: - Hannah Capps - 11-28-2010 02:59 AM

ozymandias Wrote:
Speaking in tongues :shock:   SO what's special about that?  Hell, I do that every morning before the caffeine kicks in!!!  :twisted:


Untie my bow-tie, who stole my Honda?

Basics of speaking in tongues, not really though just the obtuse gullible ones...I do however discern spirits of the demonic, angelic and humanly kind...that part isn't a joke Smile It is funny though isn't it, I'm of the opinion that Autism is a gift, and not something accursed too those that want too make money as it is the root of all evil...


RE: Room 101: For Rotten Autism Sites - black butterfly - 11-29-2010 01:11 AM

wrongplanet- serioulsy every seccond person says they want to kill themselves

creepy, depressing, all round sad


RE: Room 101: For Rotten Autism Sites - Ana54 - 12-01-2010 10:10 AM

WrongPlanet is curebie now, so add it.


RE: - iridescentblue_2009 - 12-02-2010 09:05 PM

BluesMom Wrote:

Lili Marlene Wrote:
One thing that I find so thoroughly irksome about these autism web sites is the emotive language, the kind of language that conjures up mental images of someone wringing out their hanky. Does this particularly apply to autism, or are all web sites about kiddie disorders similarly overwrought?


I think it is pervasive in our public discourse these days -- everything feels like a "heartbreaking affliction" when you hold the expectation that everything in life should be perfectly aligned with societal expectations and directly under your control -- and that you are a victim if this is not the case.  If it's not the "heartbreak" of autism, it's the heartbreak of deafness or food allergies or just about anything else you can think of.  

And where do they find these TV newscasters who can seemingly summon tears to their eyes on demand, as they interview the parents of the poor afflicted autistic child (or the child with a club foot or a congenitally dislocated elbow or what have you)?  

I wish all those people could understand that my autistic child is FABULOUS.  The only time I felt afflicted was during the diagnosis period when for about a week, the doctors announced that they needed to rule out a brain tumor.  The minute I found out that, no, it was "just" autism, I breathed a sigh of relief and got on with enjoying my weird, wonderful, magical, brilliant, different-from-everyone-else-on-the-planet child.  

But even more importantly, I wish that across the board, we could stop being a society of eager victims, rushing to identify with the latest pathology or syndrome so that we can massage each others self-pity about it.  What is that all about?


I completely agree with the both of you. I hate the conciliatory gaze or sympathetic speeches. I have made it a point to let my children know everday how truly gifted and wonderful they are. How lucky we are to see things in the perspective that we do. The only "devastating" aspect is knowing many will never say just how wonderful my little ones are, simply because of ignorance or misinformation.


RE: Room 101: For Rotten Autism Sites - Lindar - 03-01-2011 06:28 AM

http://www.wiki-autism.com/

Apparently a cure is on the way. >_>


RE: Room 101: For Rotten Autism Sites - Quintega - 03-01-2011 10:17 PM

nothing on that site works and cures are usually lombatomies


RE: Room 101: For Rotten Autism Sites - Some_Bloke - 05-13-2011 06:15 PM

Can't remember the name, but it has some negative sh** about autism. My dad uses it all the time.


RE: Room 101: For Rotten Autism Sites - Dark Shamshir X - 06-18-2011 07:10 AM

Wrong Planet turned traitor for sure.  Also, some mainstream sites would have a good amount of anti-ASD sentiment.  Be wary.


RE: Room 101: For Rotten Autism Sites - Ana54 - 07-04-2011 02:59 AM

Have any of you seen that **** Best's newest blog about Ari Ne'eman?


http://arineeman.blogspot.com/


RE: Room 101: For Rotten Autism Sites - Shrek - 07-04-2011 05:42 AM

johnH Wrote:
Please break your URLS thank you.


Censorship is unAmerican. Or is this British?


RE: Room 101: For Rotten Autism Sites - alcockell - 03-12-2012 10:15 PM

Dark Shamshir X Wrote:
Wrong Planet turned traitor for sure.  Also, some mainstream sites would have a good amount of anti-ASD sentiment.  Be wary.


When did it turn curebie?  Been out of the loop a bit..


RE: Room 101: For Rotten Autism Sites - Aspie Link - 03-14-2012 05:04 AM

Shrek Wrote:

johnH Wrote:
Please break your URLS thank you.


Censorship is unAmerican. Or is this British?


You were right first time around - However, we in Britain have so many things restricted for "the greater good" (or so our government claims) - Remember how regulated our media is? We couldn't even leave off-shore pirates alone like Caroline Wink
(And it seems it may get worst if it wasn't for the fact that BT and TalkTalk stepped in against the Digital Economy Act)
You're lucky in the US for your communication freedoms Smile


RE: Rotten Sites - Peter A. - 09-12-2012 04:51 PM

Wolfy Wrote:
http://theemergence site.com/Tech/TechIssues-Autism-OCD-Aspergers-ADD.htm

Judge for yourself.  I was in the middle of writing to the guy but I thought if he read my email he might cry or something - lol  :twisted:


I actually did write an email to this... person. So unbelievably ignorant, it is truly appalling that he can get away with what almost amounts to libel.


RE: Room 101: For Rotten Autism Sites - Luke Mauser - 09-12-2012 05:17 PM

Describing UK media as 'regulated' in the aftermath of the News of the World Scandal (which also involves BSkyB) is way off-target.


RE: Room 101: For Rotten Autism Sites - fulfillaspieslife - 12-05-2012 04:08 PM

Hi everyone,

If you want to learn more about asperger's syndrom and some facts, here is a pretty good website:

http://leotom BREAK as.com/fulfillas BREAK pies BREAK ife.org/

You can also refer to us on Twitter (AspiBREAK eslife) and Facebook (page BREAK).

Hope this helps ! Wink


RE: Room 101: For Rotten Autism Sites - - 12-05-2012 04:25 PM

fulfillaspieslife Wrote:
blanked


...Not sure if spam. You do know what website you're posting on, and in what thread, right?


RE: Room 101: For Rotten Autism Sites - Grey Area - 12-05-2012 05:28 PM

Shrek Wrote:

johnH Wrote:
Please break your URLS thank you.


Censorship is unAmerican. Or is this British?


Breaking URLs is not censorship. It is just a simple way of preventing the owners of the sites from knowing that they are receiving traffic from AFF.


RE: Room 101: For Rotten Autism Sites - Icarus75 - 01-28-2013 01:45 AM

Autism's Gadfly are a group dedicated to the public opposition of neurodiversity and exposing it as a scam. From what I've read, they also seem to be obsessed with Alex Plank.

http://autismg// adfly.blog spot.co.uk/

Remove space

URL further broken up - Nu




RE: Room 101: For Rotten Autism Sites - - 01-28-2013 02:15 AM

Disclosure; I have defaced one post and edited one post in this thread.


RE: Room 101: For Rotten Autism Sites - Lang - 01-28-2013 02:29 AM

I think xanga's autisable deserves to be mentioned on here.  I've sent posts in myself before, but in general they accept all sorts of nonsense.  Recently, they've gone on an "autism is all in the gut!" binge.  

Honestly, the brain controls the stomach.  Who doesn't know that, in this day and age?