![]() |
|
Aspie son taking a turn for worse? - Printable Version +- Aspies For Freedom (http://www.aspiesforfreedom.com) +-- Forum: General (/forumdisplay.php?fid=48) +--- Forum: Parents (/forumdisplay.php?fid=7) +--- Thread: Aspie son taking a turn for worse? (/showthread.php?tid=4079) |
Aspie son taking a turn for worse? - Donna Mills - 06-21-2006 07:15 AM Hi all, I think my aspie son may be taking a turn for the worse. Diagnosed at age 6, he's now 11 years old. Had all the usual aspie stuff, not noticing body language and thinking literally and all the usual stuff with the syndrome. Now seems to have taken a turn for the worse and I do not know exactly what to do. All of a sudden and just last week he started having temper tantrums. These are not the kicking, screaming, banging the desk kind, rather they are exceptionally violent, lasting anywhere from an hour to over a day. I notice a violent stage of property destruction and vile verbal language getting worse as he gets more agitated. I just had a couple windows in my house broken after throwing things through them. Then he has this catatonic state that lasts until everything calms, about half hour. Other time he acts completely bizarre, silly and so forth a few hours and then calms down. It happened when we grounded him for cursing three days ago. My husband had to wrestle him to the ground so he wouldnt flip over the table. That was the first. The third was just yesterday after I and my husband got in an argument about a bill (nothing even about him) we had received. He was in his room. We started arguing in living room. Before I knew he had the bedroom window busted. He ran outside and we find him walking the street during night. He also threatened violence and suicide. My husband argues with him after we find him. He talks about torturing some rabbit he finds. Then tells my husband if he doesnt shut up that he will stab himself with a knife. Husband tells him -then kill yourself if you want to do it.- He doesnt harm himself and then throws a book at my husband chest. He had three episodes of this. This stuff just started. Never had anything like this before. Im quite scared. Is there any medications that can ease these meltdowns? Has had minor meltdowns before, yelling and banging his hands and whatever. Nothing like this. - gwyn - 06-21-2006 07:43 AM I suspect this is adolescence complicated by asperger's/autism. My son was not diagnosed until he was 17, but I remember his behavior spinning out of control at age 11-13. A couple of times, he became physically aggressive with me and his property destruction took on new dimensions. He was arrested, the schools tried to expell him and he was completely friendless. Medications were tried and discarded because they either did nothing or exacerbated his agitation. However, in the middle of all this, we enrolled him in wrestling. He was really great at it and focussed all his energy in the only sport he really seemed to love. Another positive benefit was that it provided a way for him to earn respect from other kids and boosted his social confidence a lot. For the next couple of years he wrestled every chance he got until he got to high school and was excluded due to poor grades. In other words, maybe it would be helpful to your kid to find an acceptable physical activity to channel that hormonally driven pubescent rage. It is of course not an instant fix, but it made a huge difference in our son. Gwyn - Lili Marlene - 06-21-2006 12:34 PM Is the boy being bullied at school? Has anything changed with this child's relationships? Has the boy been placed on any new drug rececently? I have kids of a similar age group to this boy who all have some autistic traits, but we've never had this kind of stuff happen. Sure our kids are very boisterous and argumentative. No one in our family is on any psych drugs of any kind. Your situation sounds like something very extreme. - Lang - 06-21-2006 02:03 PM Ever tried rock climbing? It's a nice, non-social, physical activity, it teaches problem-solving, and it's a great way to develop the mind and body. Very therapeutic for whatever stress you're feeling at the moment. - Amy - 06-21-2006 02:27 PM I agree about trying rock climbing if possible - this link has a video about it, at the bottom http://www.autisticculture.com/autisticvideo/autismdocumentary.html I think it could be puberty related, but would definitely look at new changes like possible bullying, his own fears or confusion about puberty too. Have you been having more arguments with your husband lately, seems that could be a possible trigger too. If he is already feeling very sensitive then little things could be enough to tip the balance. You must tell your husband not to say things like 'kill yourself then'. I cannot stress that strongly enough. Your husband may be upset at the stabbing comment, but it was coming from a very upset child and does not deserve retaliation. In my own experience the best way to handle these situations are to be as calm as possible and do anything to keep it calm, there is no point shouting or telling him off when he is upset. It will just make it worse and he will not understand what you mean, its better to talk about it calmly and go through it later when he has completely calmed down. Talk through this with your husband too, as it is not unknown for young people to self harm, or think of suicide, and they need a lot of support. - Donna Mills - 06-21-2006 11:36 PM Lili Marlene Wrote: Is the boy being bullied at school? Has anything changed with this child's relationships? Has the boy been placed on any new drug rececently?
- Amy - 06-22-2006 12:01 AM Sounds like the bullying is a major factor. Please face the situation and get him into a better school, if you hated that teacher dont put your son through the same. Please. - Alison - 06-22-2006 03:37 AM No wonder the poor kid is having meltdowns from the stress! A different school might help, and perhaps you and your husband might think about a) not arguing, or b) arguing only when you're sure your son can't overhear it. My mum and dad having arguments were contributing factors to really awful tantrums in my teens; the angry screeching and buzzing was enough to make me want to throw myself off the roof. Alison - Lili Marlene - 06-22-2006 04:23 PM I hope you and your family can find a solution for these issues, and sooner rather than later. I know from talking with family members and friends of my own generation that all of us have vivid memories of our adolescence, and quite a few of us still look back with resentment at things that our parents did wrong, or neglected to do, during that time of our lives. Things that you do now might set the tone of your relationship with your son when he is an adult. - earthmonkey - 06-26-2006 02:09 AM Be very careful about psychiatric drugs. Sometimes they help, sometimes they're ineffective, and sometimes they can have very dangerous effects: suicidal ideation, agitation, sudden outbursts, etc. If these things have only started or only become severe while on the drug, that could very likely be the problem. It would be a good idea to see the prescribing doctor for advice on how to taper off (going off it suddenly, I can tell you first-hand, can make everything worse--much much MUCH worse). Keep in mind, also, that not every doctor is familiar with all possible side effects of the drugs they prescribe and may dismiss concerns about what the drug could be doing. When I approached my doctor about some very serious side effects (including suicidal ideation) from an antidepressant, he doubled the dose, thinking it couldn't be an effect of the drug, and things got considerably worse. I went off suddenly and experienced a hellish withdrawal (even though they say they aren't habit-forming, withdrawal can be very significant). The doctor seemed to think the med couldn't possibly have caused what I told him I thought it was causing, yet later I saw reports in the news that the majority of antidepressants (I think Prozac was the exception) doubled the risk of suicidal ideation. Also keep in mind that even though--in all likelihood; I wasn't there--he wasn't seriously considering killing himself, that doesn't mean it couldn't get serious. And don't ever feel afraid to ask if he's thinking about hurting himself; I read all the time about how that is a good thing to do, that it won't give the person ideas about considering it. Having felt suicidal at young ages (still here and happily living life!), it always was a relief when my parents brought it up, even when I would feel uncomfortable and not want to talk too much about it. I've read several accounts of people on ADHD medications who uncharacteristically began to harm animals, which is something very serious. Please consider what I've written in addition to everyone else's input; I'm hoping for the best for you and your son. - Lestat - 06-28-2006 02:39 AM Something like zopiclone (I'm on that), or a benzo would work well for short term, blazing hell-comes-up type occasions, and far safer than neuroleptic medication, (D2 antagonists/antipsychotics), although clinically, antipsychotics are used for just that sort of situation. They do however, make one feel (or rather, the antithesis of feeling anything at all), like one of the walking dead, and benzos or one of the newer imidazole nonbenzo sedatives are actually pleasant to use, and have far less side effects, so long as addiction is not developed. I would avoid zolpidem though, that stuff, crazy, completely insane stuff, the prescribed dose (10mg) had me TRIPPING hard, and at the end, I remembered little, and it has a great propensity to send people on a pretty heavy trip, where they may do something they later really, REALLY regret. I would try to go for a GABA agonist though to calm him down, if you must medicate, as opposed to antipsychotics, some (most) have truly horrendous side effect possibilities, and do a fairly effective job of turning someone into a drool-monkey. - cybermintz - 07-04-2006 03:13 PM Hiya Donna So sorry you're having an awful time with your son. I've been in a similar situation with a close family member. Windows have been broken, doors smashed, crockery thrown across the room and he has assulted family members on several occassions. My advice is to take him out of school RIGHT NOW. His mental health is more important than his education. Criminals are not allowed to be subected to humilliating or degrading treatment in prison, so why should your boy be subjected to humilliating and degrading treatment by bullies, every day of his school life? Whilst he is at school being bullied, he is trying very hard to "keep a lid" on his anger but when he is at home, where he feels safer, he will take it out on you and your husband. When he is being home educated, there is a very good chance that he will start to pursue his own interests, be they literature, computers, history or science. Some of the most "educated" people that I know dropped out of school in their teens. Staying at school until one is eighteen does not guarantee that someone will get qualifications or a good education. However, if your son stays in that awful place there is a very good chance that he will become a very troubled young man and will probably gain very few qualifications anyway. Another thing that workes, but which is very hard to do, is to never meet his anger with anger. When his is about to throw a meltdown it is because he is overwhelmed and reacting to him will just add more "fuel to the fire". I know that you and your husband are only human, that you want to react when he says hurtful things, when he start slamming doors, when he raises his voice, when he shoves you out of the way. The phrase I use is "That's not acceptable to me and I'm not going to deal with you right now," and then I leave the room. You are not "backing down" or "letting him get away with it". By saying that you find his behaviour unacceptable you have already criticised him. Aspie types are more sensitive to criticism than us NTs so believe me, you've already said enough. It does not matter if you miss a television programme, it does not matter that the food is going cold on the table (as long as the cooker is turned off!) you have to put his needs first. When you leave him he will probably start "trashing" the room. At least he is not hitting you or your husband. In anticipation of this, if you have any breakable valuables I suggest that you pack them away somewhere safe where he does not have easy access. Only use crockery that you don't mind being broken. Put safety film over windows to stop prevent him hurting himself if he puts his fist through them. If you have antique furniture I suggest you put it into storage for the next ten years. Go to Amazon (or similar) and get some books on the subject of Aspergers. I found Maxine Aston's "Aspergers in Love" to be very insiteful, even though it is was not written for parents of Aspie kids. Remember, your world view is very different to his. The things that you find acceptable, he finds intolerable and visa versa. Everything I've said is based on my own family experience. Of course, you might feel that the advice is not right for you or your situation. One thing that is in your favour is that at least you know that your son has Aspergers. Good luck Donna - from someone whose been there. - Lili Marlene - 07-04-2006 04:39 PM Cybermintz wrote Quote: Some of the most "educated" people that I know dropped out of school in their teens.
Quote: It does not matter if you miss a television programme, it does not matter that the food is going cold on the table (as long as the cooker is turned off!) you have to put his needs first.
When you leave him he will probably start "trashing" the room. At least he is not hitting you or your husband. In anticipation of this, if you have any breakable valuables I suggest that you pack them away somewhere safe where he does not have easy access. Only use crockery that you don't mind being broken. Put safety film over windows to stop prevent him hurting himself if he puts his fist through them. If you have antique furniture I suggest you put it into storage for the next ten years.
I think this is going too far to accomodate very bad behaviour. I do not believe autism is an excuse for violence or out of control anger (and I regard myself as an aspie). Sure, it is obvious to me that "anger control" is an area that is a challenge to most aspies, but it is a parent's duty to discipline a child when they are still young and small enough to be under their control. If they don't they could be creating a monster! No child should grow up with the idea that throwing crockery is normal or tolerable behaviour, because it just isn't. Having an aspie child is not an excuse for "dropping your load" with regard to disciplining your child. A tap on the tush never hurt any kid.
- Alison - 07-05-2006 02:49 AM I got my daughter a punching/kick boxing bag and put it up in the back yard for those days when she just wants to kick her frustrations out. A bo staff (length of bamboo) is also a good release for her, she can use it to practise various martial art moves to help her calm down. She now has an area under the pine trees in our back yard that she uses as a personal dojo, and it really helps her to wind down after a school day dealing with the norms and idiots. Alison - cybermintz - 07-12-2006 06:54 PM Hello again Donna! What's the situation been like at your home for the last few weeks? - DW_a_mom - 07-12-2006 07:18 PM I think there are a lot of good points above. Have you implemented them and seen any positive effects? My child is much younger but number 1 for keeping his tantrums down is to control his environment as much as possible so that he (a) feels safe in it and (b) doesn't get overtimulated. You can't expect an Aspie child to learn as many rules at one time as you can an NT child; it is very important to pick your battles. In other words, you may have to allow some cursing in order to focus on dangerous behavior. If there are too many signals and instructions and rules coming in your child is simply going to start ignoring them all. I have long been scared about how we will deal when my son gets to be older and physically stronger. Right now I can physically hold him, but that won't always be the case. Sometimes he just needs to explode. Just needs to. One thing I do know: you get absolutely no where trying to engage or argue with an Aspie in the middle of a tantrum. My son has gone to a different place in those times - he is too busy battling himself to be able to absorb anything from me. You have to let your child finish the battle within himself before you engage him. Otherwise, you just extend the tantrum and feed its power. Create a safe place for your son to go when he needs a tantrum and insist that he carry out his tantrum in that place. He should be able to absorb and follow that rule. But, telling him to stop it or control himself or to listen to you ... useless. This is easy at home; much more difficult away from home. But, see if you can come up with a plan of action for away from home as well. Tell your husband that getting angry with your son at these moments is useless. When the tantrum is over you can issue the preset and expected consequences necessary for everything he broke (I say preset and expected becasue it is important that you be very clear to your son, and that your son know, when he is not in a tantrum, what the consequences will be for certain actions he might take next time he is in one). Calmly, matter of fact. My son understands that he has to take responsibility for his actions while he is out of control, and he has no issue with it once he has calmed down. Your son in entering a tough period in life, when hormones and emotions are racing through him that he doesn't understand and doesn't know how to deal with. Tantrums are one of his ways of releasing that. That doesn't mean you shouldn't work to control his environment to mitigate the tantrums, and that doesn't mean your son shouldn't take responsibility for what he does during his tantrums. But, it should help you understand what is going on and why. Getting angry at your son for having the tantrums isn't going to stop them. If he knew how to stop them he wouldn't have them, it's that simple. Good luck and I hope things improve soon. - Keeley - 07-16-2006 08:00 PM My son is almost 21. We were living in Turkey when he was born. I knew before birth that he was going to be different as I first felt him move at 12 weeks into the pregnancy, which my obstetrician informed me was impossible. As it was my 2nd pregnancy I could distinguish the difference between a baby moving inside me and the after effects of a meal I'd not digested properly! He was diagnosed at 2 with ADHD, then with Asperger's at 4. Bringing him up in Turkey had it's advantages and disadvantages. My marriage was not strong either. However, he was not a child who was agressive. He only came across cruelty when he started school though. He didn't have the cunning to "look out" for himself when other children, aware of his vulnerable condition constantly got him into trouble, or worked him up to such a point that they knew the exact level to back off and act innocent before he snapped and the teacher then stepped in to deal with his outburst. We were legally bound to send him to school. His IQ was over the normal literacy level so he couldn't attend a special needs school. So we used to take it on ourselves to make sure that the teachers at his school knew that we as parents refused to allow him to be subjected to the constant teasing. It worked and his teachers changed. At the end of primary school we took him out of a state school and put him into a private secondary school and there he flourished. He became relaxed, popular and enjoyed going to school for the first time. These children are extremely vulnerable. They have no one to fight their cause but their family. Please do not let your child be bullied. They remember every little incident and can relate it in detail far more easily than any child without Asperger's for years and years. I've gone on a lot so I'll close now, but I can't stress enough how much more these children need their parents' close scrutiny while away at school. They need to understand that the situation they are in is secure, because life is hard enough for them already. I stumbled on this site and joined today. I love it. Thank you all for being here. - Lili Marlene - 07-17-2006 06:51 PM I hope you will feel welcome at this forum, Keeley. I'm glad that you rose to the challenge of dealing with the school bullying. - M&M - 07-17-2006 08:54 PM Keeley Wrote: My son is almost 21. We were living in Turkey when he was born. I knew before birth that he was going to be different as I first felt him move at 12 weeks into the pregnancy, which my obstetrician informed me was impossible. As it was my 2nd pregnancy I could distinguish the difference between a baby moving inside me and the after effects of a meal I'd not digested properly!
He was diagnosed at 2 with ADHD, then with Asperger's at 4. Bringing him up in Turkey had it's advantages and disadvantages. My marriage was not strong either. However, he was not a child who was agressive. He only came across cruelty when he started school though. He didn't have the cunning to "look out" for himself when other children, aware of his vulnerable condition constantly got him into trouble, or worked him up to such a point that they knew the exact level to back off and act innocent before he snapped and the teacher then stepped in to deal with his outburst. We were legally bound to send him to school. His IQ was over the normal literacy level so he couldn't attend a special needs school. So we used to take it on ourselves to make sure that the teachers at his school knew that we as parents refused to allow him to be subjected to the constant teasing. It worked and his teachers changed. At the end of primary school we took him out of a state school and put him into a private secondary school and there he flourished. He became relaxed, popular and enjoyed going to school for the first time. These children are extremely vulnerable. They have no one to fight their cause but their family. Please do not let your child be bullied. They remember every little incident and can relate it in detail far more easily than any child without Asperger's for years and years. I've gone on a lot so I'll close now, but I can't stress enough how much more these children need their parents' close scrutiny while away at school. They need to understand that the situation they are in is secure, because life is hard enough for them already. I stumbled on this site and joined today. I love it. Thank you all for being here.
- xactorofjustess - 07-18-2006 09:26 PM I agree that you should pull your son out of school immediately. I homeschool my AS son and he is a very happy kid. Yes, he has meltdowns, but he has never once been bullied in his life. Being bullied destroys the soul. You are seeing the results of this now. Be very careful with antidepressants, as another poster noted they can cause great havoc that is not easily remedied, and as the doc are coddled by the pharm. companies they remain willfully ignorant. Put everything of value in storage. Film-cover the windows to prevent breakage. Use what he loves as a reward for doing his homeschool assignments. Let him play with younger kids-- maybe he can start earning money as a babysitter. The violence should not be allowed, and you need to protect him from being bullied. There's really no way to do that in a school setting, particularly one where the principal "hates" you. - Lili Marlene - 07-20-2006 11:32 AM Xactorofjustess wrote Quote: Put everything of value in storage. Film-cover the windows to prevent breakage. Use what he loves as a reward for doing his homeschool assignments. Let him play with younger kids-- maybe he can start earning money as a babysitter.
You are assuming that this kid can't be trusted not to smash things up, but you think he would still be suited to playing with younger kids and working as a babysitter? WHAT?
- DW_a_mom - 07-21-2006 03:14 AM Lili Marlene Wrote: Xactorofjustess wrote
Quote: Put everything of value in storage. Film-cover the windows to prevent breakage. Use what he loves as a reward for doing his homeschool assignments. Let him play with younger kids-- maybe he can start earning money as a babysitter.
You are assuming that this kid can't be trusted not to smash things up, but you think he would still be suited to playing with younger kids and working as a babysitter? WHAT?
- Tigger_the_Wing - 07-21-2006 11:31 PM My 13 year old also has had violent meltdowns - it is REALLY important for all the other people around him to stay calm and in control (although I do realise that is extremely difficult). I am lucky that he is much smaller than I am so I am able to hold him and remove any 'weapons' he has armed himself with. I do not believe he wants to carry out any of his threats - he really appreciates us saying, calmly, "We will NOT allow you to do that, however angry you are." as it makes him safe, even though he has lost control. He is now in a much better school where he is allowed to spend as much time in his 'safe place' - the school library - as he wants, whenever he wants. The staff there even unlock the teachers' private resource room for him to use when the library becomes busy. The 'meltdowns' have abated and I am sure that this is because he has more control over his life, which we find extremely important. If you feel that your life is controlled by others, unpredictable and possibly malignant, how are you supposed to cope when you are only thirteen and, as an Aspie, have never understood how or why the world operates as it does? Sorry to go on, I am new to this site and as someone else remarked what a wonderful resource. :grin: - Keeley - 07-22-2006 01:16 PM Thank you for your much needed encouraging words Lili Marlene. Reading the feedback, as well as the posts I've read before, is all so relevant to our own case, I feel positively energised having found you all. My son didn't have outbursts as such of anger or frustration. And I almost wish he did have, because he seemed to just stash it all away and become saddened by it all. For the past year though he's been going to a gym, where he spends 3 hours religiously trying to wear himself out. At least it's helped him finally to be able to use the physical exercise to release his frustrations. Funny thing is too, that we'd been trying to get him to do something like that since primary school, but he'd never wanted to. Asperger's sufferers just hate being pushed into anything, don't they? - Lili Marlene - 07-22-2006 05:46 PM We especially don't like being pushed into thinking of ourselves as "sufferers". :wink: - Keeley - 07-22-2006 09:24 PM Oh but my son's suffering is very real. He only has two people in his world who really understand his trials and I'm one of those two, the other is his elder brother. Everyone else's understanding is superficial. Tolerated so long as he doesn't rock their lives too much. When he asks me at 21 if I think he should try to act normal so people will believe him to be normal it tells me he suffers alright. Given the choice he would change now, so he is a sufferer. If anyone else is offended by my terminology then I'm sorry. But I just assumed that others were as unhappy as my son is and as aware of how different this condition is to other people. - violet_yoshi - 07-23-2006 01:10 AM keeley I'm pretty sure one of the main things your son is "suffering" from, is your inability to accept him as he is. Rather than seeing him merely as an object of pity. He's a person, not a bird with a broken wing. Assuming that someone is suffering, is to assume they are helpless. Which only continues the stigma towards those who are neurodiverse, are all like small little children, who can't do anything or function on their own. This may be the message you are sending to your son. Perhaps if you looked at the ways to help him from the perspective of, how can I help him have control over his behaviour, vs the perspective of oh how he suffers, I'm the only one who can help him. Maybe he wants to feel some sense of independance from you, did you consider that? Maybe your son is trying to act normal, because he feels it will satisfy you. That maybe then you'd stop treating him like a small child who needs mommy there to help him with his tantrums, and more like a man who can take care of himself, despite having some issues. To assume others are as "unhappy" as you have assumed your son to be, is to claim that we all are not humans, that we're like pets that our parents need to take care of. I'm sure you can see how that is offensive to us, since it is a stigma that is still used to today, to convey how we need to be "cured" of our "suffering" when we're functioning just as well, if not better than neurotypicals. Finally Asperger's "sufferers" hate being pushed into anything? Oh I suppose if your son was without Asperger's Syndrome, you would view his choice not to go to the gym as a decision, rather than him being insolent. Try to look at things from his perspective, rather than your own. Think about how you would feel if someone claimed you were suffering, that you don't know what is good for you so you need other people to have total control over your lives. In fact, go to this site: http://isnt.autistics.org/ Perhaps you might gain an understading of what it is like to have who you are as a person, assumed to be something it is not. I don't mean to offend, but I do think that maybe this might help you, like a little sensitivity training. - Lili Marlene - 07-23-2006 01:23 PM Keeley wrote Quote: Oh but my son's suffering is very real. He only has two people in his world who really understand his trials and I'm one of those two, the other is his elder brother. Everyone else's understanding is superficial. Tolerated so long as he doesn't rock their lives too much.
When he asks me at 21 if I think he should try to act normal so people will believe him to be normal it tells me he suffers alright. Given the choice he would change now, so he is a sufferer. If anyone else is offended by my terminology then I'm sorry. But I just assumed that others were as unhappy as my son is and as aware of how different this condition is to other people.
If your son lived on a planet or country of autistics would he still feel any need to "try to act normal", would he still have a tragically limited support base of people who understand what he is all about, and would he still be a sufferer? How long do you think people like your son will be satisfied with living in isolation amongst neurotypical people? I think he deserves and needs something better, quite frankly. - Keeley - 07-23-2006 03:25 PM Well I thought this was a forum for parents to give each other support. You people are the first "community" of Asperger's experienced people I have come across. I think the world I've been living in until now, filled with the people who only hear about Asperger's for the first time when I talk about it, is the one for me. I was clearly wrong to think there would be any communication here. I wish you well. You clearly need all the support you can give eachother. But please try not to be so critical of eachother, because it is clear that eachother is all you have. Good luck! - Alison - 07-23-2006 03:41 PM Oh dear - another "Goodbye for ever!" email. Alison - Lili Marlene - 07-23-2006 03:44 PM Quote: ... Asperger's experienced people ...
Huh? Is that like being a feminine-gender-experienced person or being a heterosexuality-experienced person? Am I going to wake up one day a neurotypical and think "Gee whiz my experience of having Aspergers was a real weird trip, glad I'm normal now!"? :?
- Bonnie Ventura - 07-23-2006 05:12 PM Keeley Wrote: I thought this was a forum for parents to give each other support.
- violet_yoshi - 07-23-2006 08:35 PM I didn't mean to come across as blunt, and if I do come across as blunt it is not because I have Asperger's Syndrome. If I was blunt and NT, people would call it being passionate instead. Oh, but everything considered negative having to do with someone who has something like Asperger's Syndrome, must be due to their condition and lack of understanding, right? Lil' Marlene and I felt it was insensitive, for a person to come to a Asperger's Syndrome support site, and claim that we're sufferers. Which is a common misperception not only of those who are Autistic but who are handicapped. It is that kind of message that makes some people think, that murdering those who are Autistic or handicapped is a mercy killing. That they're saving their child from suffering. We don't suffer, except for the general ignorance of those who refuse to see things from any perspective other than their own. Clearly I think keely might have been one of those moms, who had in past experience was immediately felt sorry for by claiming how much her son was suffering, and in turn she was suffering. When she didn't get her usual response of "awww, it's so hard" and was delt some reality, she didn't know how to handle it other than attack me. Then she went back into victim mode, and acted as if nobody understood her son's suffering, and then left claiming this board wasn't supportive. Support isn't feeling sorry for your child and yourself, and acting as if you're helpless to your child's DX. It's being strong and supporting your child, and seeing them as something beyond just someone with Asperger's Syndrome, and seeing them as a person. Once you do that, you are telling your child they are not a victim of their circumstances, that despite those circumstances they still can live a good life. - Bonnie Ventura - 07-23-2006 10:14 PM violet_yoshi, when I used the word "blunt," I was referring mainly to Lili Marlene, who is blunt and proud of it. :wink: Speaking bluntly is not necessarily a negative thing and doesn't mean that a person lacks understanding. It is just a communication style. I didn't get the impression that Keeley was intentionally being rude or insensitive. Keeley is British, and there is a cultural difference in the use of the word "sufferer." In the United States, the word is often considered politically incorrect, but in the UK, just about anyone with any kind of diagnosis is a "sufferer," and it's not used as a means to get sympathy. - DW_a_mom - 07-24-2006 10:48 PM Keely, I am sorry your initial interchange here didn't end up so well. I guess you are discovering as I discovered early on that there are some sensitive terms around here. And, I assume, that as with me, you simply never knew they were sensitive. That's been part of my education process. I come here to hear, without sugar coating, how the world looks to someone who as Aspergers, as my son does. The outlook is invaluable. If that means I have to learn the hard way that someone is offended by something I see as completely unoffensive, then so be it. It is still useful information, even if I decide it doesn't apply to my own child at all. After all, Aspies are as varied among themselves as the rest of the world. I hope you will stay. There is support here parent to parent, along with a few difficult lessons to learn from those who want us to know what they think our kids might be feeling. If that lesson doesn't apply, ignore it. I respect their right to voice how they feel, but only I can decide if they are right about what I feel. - Alison - 07-25-2006 03:04 AM DW_a_mom Wrote: I guess you are discovering as I discovered early on that there are some sensitive terms around here. And, I assume, that as with me, you simply never knew they were sensitive. That's been part of my education process.
- DW_a_mom - 07-25-2006 10:03 PM Aw, Alison, that's sweet
- Louise18 - 08-28-2006 10:30 PM Yeah 11-13 is going to be the worst of it! - Katness - 08-30-2006 09:34 AM Louise18 Wrote: Yeah 11-13 is going to be the worst of it!
Tantrums yikes! - Celtgirl - 09-06-2006 06:41 AM I can relate to your trouble with violent fits. :wink: My son Aiden has not been "officially" diagnosed though the genetic doctor did admit he has some form of autism. His mental capabilites are fairly normal until he becomes aggitated or confused. :mad: Aiden has speech problems so he gets frustrated when no one can understand him. He does know some sign language that was taught by the therapists when he lost his hearing due to a ruptured ear drum. :evil: :$ ~:-( My son also has thrown rocks at me. He screams like a dying cat & screeches & swears. His eyes turn red making him look like a possesed demon. :twisted: It takes 5 people to hold him down for shots or blood work. :oops: Unfortunatly, I am a single parent which means I have to work & can't always come to teacher meetings. The stress he has caused of late at soccer is making me tired & depressed. I am hoping to find him a team with a mature coach. The coach he has right now is only 16 & doesn't understand about kids with disabilities. His mother insinuated that Aidenwasn't welcome back at practice. There are going to be words with the U9 commissioner about descrimination. I feel is though it is my fault Aiden is this way. The school said I was ADD but I'm probably more like him. I hate being touched & am notorious for swinging at people that sneak up on me. I also have a terrible temper & don't remember what occured after I cool down. Aiden & I are kind of both in our own little worlds when at home. Hopefully Donna you can help your child with his behavior issues. Aiden & I are going to counseling this week for his anger issues. - tenaciouscj - 09-16-2006 06:12 PM Throwing rocks at you is just not on so I hope this anger therapy does some good. - tenaciouscj - 09-16-2006 06:19 PM Oh, this is a real pity - I don't think Keeley said anything offensive at all and I can see where she is coming from about her son as some of us are such perfectionists that we don't see that we are loved and cared for by some people and any achievements we have come to nought because we remember all our mistakes and faux pas so clearly. - mrgrosser - 10-05-2006 10:09 PM Question, I've been reading thru all of this. I am in a relationship with someone who has a little brother with Aspergers. Any of you try good old fashioned discipline instead of using this "Syndrome" as a crutch to fail as a parent? Even a rat learns not to drink from a bottle of water with electricity hooked up to it. Yet you choose to comprimise with these children because they are "different". I have a son of my own who was raised with wooden spoon. Someone once told me to "pick your battles" with a child with AS... Yet, as a parent, why do you need to pick, when you win every one? Don't forget, these are your kids, not your buddies, not your friends, raise them, don't "hang out" with them. It worked for our parents, it can work for you too. - DW_a_mom - 10-05-2006 11:03 PM mrgrosser Wrote: Question, I've been reading thru all of this. I am in a relationship with someone who has a little brother with Aspergers. Any of you try good old fashioned discipline instead of using this "Syndrome" as a crutch to fail as a parent? Even a rat learns not to drink from a bottle of water with electricity hooked up to it. Yet you choose to comprimise with these children because they are "different". I have a son of my own who was raised with wooden spoon. Someone once told me to "pick your battles" with a child with AS... Yet, as a parent, why do you need to pick, when you win every one? Don't forget, these are your kids, not your buddies, not your friends, raise them, don't "hang out" with them. It worked for our parents, it can work for you too.
- rzc1296 - 10-06-2006 02:21 AM DW-a-mom thank you for putting that troll in his place.So many times I have had people tell me "just make your kid mind". You can explain autism or aspergers till you are blue in the face and still someone is going to say "just send him home with me for a while and Ill straighten him out". :mad: I dont pretend to know everything about aspergers but I know you cant just shut it off.People that want to condemn without knowing are the people that have caused my DS to withdraw in public. Belinda - tenaciouscj - 10-06-2006 02:16 PM It's certainly a worry. Mind you, mum used to carry a wooden spoon with her when I was little and we were out and I think she only had to use it once. - violet_yoshi - 10-09-2006 07:23 PM Wow! Go DW! Go DW!...why is saying this starting to remind me of the cartoon Darkwing Duck? j/k :lol: - matt_t - 10-24-2006 03:26 AM the problem with the 11 year old boy, I think, is asperger's combined with adolescence. I remember when I was younger, I used to go CRAZY over frustration with growing up. Girls were especially frustrating because not only was I changing and had no idea what the world was like, but they were changing and some of them were getting bitchy. So that made them even more complex. - tenaciouscj - 10-24-2006 02:33 PM I never understood why boys acted so silly and teased and tormented the girls that they liked. I thought they did it because they didn't like me and got insulted and withdrew even further into my shell. - Alison - 10-25-2006 05:27 AM tenaciouscj Wrote: I never understood why boys acted so silly and teased and tormented the girls that they liked. I thought they did it because they didn't like me and got insulted and withdrew even further into my shell.
- tenaciouscj - 10-25-2006 01:51 PM Yeah, me too and now I look back on all the wasted opportunities (I don't so much mean the boys) but just in general. Re: Aspie son taking a turn for worse? - pammar - 11-02-2006 01:27 AM Donna Mills Wrote: Hi all,
I think my aspie son may be taking a turn for the worse. Diagnosed at age 6, he's now 11 years old. Had all the usual aspie stuff, not noticing body language and thinking literally and all the usual stuff with the syndrome. Now seems to have taken a turn for the worse and I do not know exactly what to do. All of a sudden and just last week he started having temper tantrums. These are not the kicking, screaming, banging the desk kind, rather they are exceptionally violent, lasting anywhere from an hour to over a day. I notice a violent stage of property destruction and vile verbal language getting worse as he gets more agitated. I just had a couple windows in my house broken after throwing things through them. Then he has this catatonic state that lasts until everything calms, about half hour. Other time he acts completely bizarre, silly and so forth a few hours and then calms down. It happened when we grounded him for cursing three days ago. My husband had to wrestle him to the ground so he wouldnt flip over the table. That was the first. The third was just yesterday after I and my husband got in an argument about a bill (nothing even about him) we had received. He was in his room. We started arguing in living room. Before I knew he had the bedroom window busted. He ran outside and we find him walking the street during night. He also threatened violence and suicide. My husband argues with him after we find him. He talks about torturing some rabbit he finds. Then tells my husband if he doesnt shut up that he will stab himself with a knife. Husband tells him -then kill yourself if you want to do it.- He doesnt harm himself and then throws a book at my husband chest. He had three episodes of this. This stuff just started. Never had anything like this before. Im quite scared. Is there any medications that can ease these meltdowns? Has had minor meltdowns before, yelling and banging his hands and whatever. Nothing like this.
I *am* an aspie, and had a bad time during my teens. First of all, on top of Aspergers a mood disorder, bipolar, emerged at that time and wasn't treated. Secondly, school got harder, peer pressure (which I never gave into) drove me crazy, the high school was huge (I hate crowds) and I started cutting class and hanging with some not-so-nice kids. Fortunately, my morals, which I refuse to compromise, forbade me from drugs or early sex, but I did throw some pretty wild tantrums. The more my parents would try to calm me, the more I couldn't. It was best to leave me alone so I could calm myself or they'd escalate. I don't know what was the Aspergers and what was the bipolar, or if it was both. I continued to have unstable moods and tantrums into adulthood until I started medication...for me it's Paxil and Klonopin, which work miracles for my moods. I have no meltdowns anymore. Make sure your child is not experiencing a co-morbid condition. I know it's easier to get a diagnosis of co-morbids in the US than in some other places. I'm not thrilled with everything our country does, but I like our mental healthcare system more than any other countries because we can at least pick and choose our own professionals. And they are not afraid to give us honest labels, such as bipolar, when we are still teens. Without my meds, I'd probably not be able to live in society. It is NOT this way for all or most Aspies though. But it's MY reality.
RE: Aspie son taking a turn for worse? - tenaciouscj - 01-13-2007 08:18 AM I don't know if it's much point just grounding a child for cursing. Children often swear because they hear others doing it and then they think they are "cool" and "tough". It isn't normal for kids to have tantrums that go for a day so some medical help is needed and maybe some medication to calm him down a bit. RE: Aspie son taking a turn for worse? - Pakrat - 02-11-2007 07:24 AM If kids got grounded for cursing, just about every child in existence would be grounded! RE: Aspie son taking a turn for worse? - DigiModify - 03-14-2007 03:38 AM Donna Mills Wrote: Hi all,
I think my aspie son may be taking a turn for the worse. Diagnosed at age 6, he's now 11 years old. Had all the usual aspie stuff, not noticing body language and thinking literally and all the usual stuff with the syndrome. Now seems to have taken a turn for the worse and I do not know exactly what to do. All of a sudden and just last week he started having temper tantrums. These are not the kicking, screaming, banging the desk kind, rather they are exceptionally violent, lasting anywhere from an hour to over a day. I notice a violent stage of property destruction and vile verbal language getting worse as he gets more agitated. I just had a couple windows in my house broken after throwing things through them. Then he has this catatonic state that lasts until everything calms, about half hour. Other time he acts completely bizarre, silly and so forth a few hours and then calms down. It happened when we grounded him for cursing three days ago. My husband had to wrestle him to the ground so he wouldnt flip over the table. That was the first. The third was just yesterday after I and my husband got in an argument about a bill (nothing even about him) we had received. He was in his room. We started arguing in living room. Before I knew he had the bedroom window busted. He ran outside and we find him walking the street during night. He also threatened violence and suicide. My husband argues with him after we find him. He talks about torturing some rabbit he finds. Then tells my husband if he doesnt shut up that he will stab himself with a knife. Husband tells him -then kill yourself if you want to do it.- He doesnt harm himself and then throws a book at my husband chest. He had three episodes of this. This stuff just started. Never had anything like this before. Im quite scared. Is there any medications that can ease these meltdowns? Has had minor meltdowns before, yelling and banging his hands and whatever. Nothing like this.
RE: Aspie son taking a turn for worse? - Pakrat - 04-04-2007 01:18 PM Plus, Aspies often take comments very literally. I think the husband would feel dreadful if his son followed his suggestion (even though it wasn't meant to be taken literally). RE: Aspie son taking a turn for worse? - Nate - 04-19-2007 04:19 PM yeah.. got about halfway through and couldnt finish... yet.. but.. a comment about the suffering thing.. I really think any suffering I or any other Aspie go through is a direct or indirect result of everyone else's reactions to us and actions against us. Everyone else being your typical non understanding individual espcially ones inclined toward bullying or whatever.. It also doesn't help when one of your parents refuses to even acknowledge that anything might be 'wrong' with you, well.. at least 'wrong' as far as the norm is considered. I mean I am different, and ignoring it doesn't make it go away. Actually he almost called the police on me once because I was crying in his house, long story but I think after that he finally realized that he had to be a bit more understanding with me. And yeah.. sorry.. I tend to go off on tangents... I used to have all kinds of problems in high school and i still have problems controlling my emotions when I get very upset, I bang my desk or something. But I used to be worse.. but it didn't help that the school didn't want to deal with me and just stuck me in special education classes and stuff. I got sent to alternative school too.. which I actually liked it better... except for the tie... but I talked them into me staying there and not wearing a tie and that helped some, once I got more stablized, alot thanks to the teacher there, I went back to regular school for the last year. But it was never easy, and all of the 'suffering' was due to all this social stuff and other peoples reactions to me... however I found a few good friends that helped and I have one that helped me since middle school, it makes a difference, because feeling completely alone is practically unbearable, and i could see how some people could become detached and after enough lead to one of those shooting possibly... but its the people around them's fault... maybe not all of them, but several of them. Sorry just random babble.. and no im not a psyco and im not even really violent.. i was just typing out a through trail my brain was on. yeah ok.. I'm going to stop typing now or we'll be here all night... er. day.. er.. whatever. RE: Aspie son taking a turn for worse? - tenaciouscj - 04-20-2007 11:44 AM Some meltdowns are caused by authority people forcing things upon Aspies even when they have been told by the people themselves that they will get upset about it. This has happened to me at work, and maybe a couple of times in school. For instance, I was told I wasn't allowed to talk any more to a case officer who was helping with a return to work programme. I was very upset as he had been very helpful and we seemed to have established a good rapport. Anyway, I begged them not to make me hear him say goodbye over the phone. I told everybody concerned that I'd prefer the goodbye in writing. But no, they thought that would be too "cold and impersonal". I didn't think so, as I could have kept a copy of the e-mail. Anyway, my director took the attitude I just had to "suck it up", and so I was pressured by various people to go to this phone hook-up and when told I wasn't allowed to talk to him any more, went ballistic and punched a hole in the wall with the top of my head. I'm usually a non-violent person and was not going to attack anybody in the room. So, it can be the case that even when we have enough self-knowledge to know what is liable to trigger us off and when there are viable alternatives for authority figures to take, they still have to follow their preconceived notions and then trouble results. RE: Aspie son taking a turn for worse? - nadinebrwn - 08-14-2007 03:41 AM I'm pretty sure if I were in your shoes I'd make a very quick trip to the doctor to see if there was some kind of physical problem, then next to the psychiatrist for some immediate serious professional help. It's obvious how much you love your son. But I think the violence has escalated too far and you need to get professional help. If nothing else, get some counseling for yourself so you can learn how to deal with this in a calm and helpful way. Good luck--I'm really hoping you get some good results pretty soon. PS My AS son loves ju jitsu and has now started to take boxing lessons. Would your son enjoy something like this? RE: Aspie son taking a turn for worse? - Unknown - 04-19-2009 04:24 AM I was punished for this behaviour as a kid and I didn't think it was fair lookng back. I couldn't help myself.........this will eventually grow out of the child as he grows. RE: Aspie son taking a turn for worse? - Pakrat - 04-19-2009 04:29 AM The scary thing is, he might have some mental illness on top of the AS and I think the situation is too much for the parents to cope with on their own. That boy needed professional help and I hope he got it. RE: Aspie son taking a turn for worse? - Unknown - 04-19-2009 04:34 AM me too......I hope he is well supported as well. RE: Aspie son taking a turn for worse? - Pakrat - 04-19-2009 04:39 AM Yes, because this was from a couple of years ago and now the boy would be 13 or 14. He certainly couldn't be allowed to continue with such violent behaviour because the safety of the rest of the family was at stake but it is vital that the reason behind the violence was addressed. RE: Aspie son taking a turn for worse? - Greginjersey - 04-19-2009 03:36 PM Donna Mills Wrote: Hi all,
I think my aspie son may be taking a turn for the worse. Diagnosed at age 6, he's now 11 years old. Had all the usual aspie stuff, not noticing body language and thinking literally and all the usual stuff with the syndrome. Now seems to have taken a turn for the worse and I do not know exactly what to do. All of a sudden and just last week he started having temper tantrums. These are not the kicking, screaming, banging the desk kind, rather they are exceptionally violent, lasting anywhere from an hour to over a day. I notice a violent stage of property destruction and vile verbal language getting worse as he gets more agitated. I just had a couple windows in my house broken after throwing things through them. Then he has this catatonic state that lasts until everything calms, about half hour. Other time he acts completely bizarre, silly and so forth a few hours and then calms down. It happened when we grounded him for cursing three days ago. My husband had to wrestle him to the ground so he wouldnt flip over the table. That was the first. The third was just yesterday after I and my husband got in an argument about a bill (nothing even about him) we had received. He was in his room. We started arguing in living room. Before I knew he had the bedroom window busted. He ran outside and we find him walking the street during night. He also threatened violence and suicide. My husband argues with him after we find him. He talks about torturing some rabbit he finds. Then tells my husband if he doesnt shut up that he will stab himself with a knife. Husband tells him -then kill yourself if you want to do it.- He doesnt harm himself and then throws a book at my husband chest. He had three episodes of this. This stuff just started. Never had anything like this before. Im quite scared. Is there any medications that can ease these meltdowns? Has had minor meltdowns before, yelling and banging his hands and whatever. Nothing like this.
|