Aspies For Freedom
CafePress STILL donating to Autism Speaks....tell them: cut it OUT - Printable Version

+- Aspies For Freedom (http://www.aspiesforfreedom.com)
+-- Forum: General (/forumdisplay.php?fid=48)
+--- Forum: News and media (/forumdisplay.php?fid=2)
+--- Thread: CafePress STILL donating to Autism Speaks....tell them: cut it OUT (/showthread.php?tid=24254)


CafePress STILL donating to Autism Speaks....tell them: cut it OUT - Meega Na La Queesta - 04-12-2012 09:49 AM

CafePress held a poll to determine which 2 "autism organizations" to give a percentage of money from sales of "autismawareness2012" items to in April.

The good news: ASAN was one of the organizations.

The bad news: Autism Speaks was the other.

Interested in telling CafePress why this was a Bad Idea, and why Autism Speaks shouldn't even be a poll option in the future?

http://www.cafepress.com

Scroll down to "Contact Us" under "Customer Service" and use their form.

And please don't buy anything from the "autismawareness2012" tag this April, since you have no way of choosing for your money to only go to ASAN.


RE: CafePress STILL donating to Autism Speaks....tell them: cut it OUT - Hazel - 04-22-2012 05:47 PM

Let them do their own thing. We shouldn't order them to not donate to Autism Speaks.


RE: CafePress STILL donating to Autism Speaks....tell them: cut it OUT - d_olson27 - 04-22-2012 06:39 PM

Hazel Wrote:
Let them do their own thing. We shouldn't order them to not donate to Autism Speaks.


The problem is that Autism Speaks basically controls the message about autism. If we don't get our counter message out there, the only people spreading the message will be comparing autism to a disease. Putting pressure on the donors of the organization to stop is a valid tactic.


RE: CafePress STILL donating to Autism Speaks....tell them: cut it OUT - Hazel - 04-22-2012 08:27 PM

d_olson27 Wrote:

Hazel Wrote:
Let them do their own thing. We shouldn't order them to not donate to Autism Speaks.


The problem is that Autism Speaks basically controls the message about autism. If we don't get our counter message out there, the only people spreading the message will be comparing autism to a disease. Putting pressure on the donors of the organization to stop is a valid tactic.


I really don't think it is, maybe I'm wrong but it just seems like we're controlling them. They're not doing anything wrong to me, if they want to donate to them, they should.


RE: CafePress STILL donating to Autism Speaks....tell them: cut it OUT - d_olson27 - 04-22-2012 08:37 PM

Hazel Wrote:

d_olson27 Wrote:

Hazel Wrote:
Let them do their own thing. We shouldn't order them to not donate to Autism Speaks.


The problem is that Autism Speaks basically controls the message about autism. If we don't get our counter message out there, the only people spreading the message will be comparing autism to a disease. Putting pressure on the donors of the organization to stop is a valid tactic.


I really don't think it is, maybe I'm wrong but it just seems like we're controlling them. They're not doing anything wrong to me, if they want to donate to them, they should.


It's true that CafePress can donate to whichever charities they want. They don't have to stop just because we're emailing them to say we don't like it.

The point is that CafePress is a business, and, as such, they donate to charities for publicity. If any actions they take are creating bad publicity, it would be in their best interest to stop.

To use a somewhat draconian example, imagine if some random hypothetical company were donating to the KKK. They would be free to do as they wish, but it would be very bad publicity for them to do so. My guess is that most people would not think it wrong to contact that company and request that they stop.


RE: CafePress STILL donating to Autism Speaks....tell them: cut it OUT - Hazel - 04-22-2012 08:42 PM

d_olson27 Wrote:

Hazel Wrote:

d_olson27 Wrote:

Hazel Wrote:
Let them do their own thing. We shouldn't order them to not donate to Autism Speaks.


The problem is that Autism Speaks basically controls the message about autism. If we don't get our counter message out there, the only people spreading the message will be comparing autism to a disease. Putting pressure on the donors of the organization to stop is a valid tactic.


I really don't think it is, maybe I'm wrong but it just seems like we're controlling them. They're not doing anything wrong to me, if they want to donate to them, they should.


It's true that CafePress can donate to whichever charities they want. They don't have to stop just because we're emailing them to say we don't like it.

The point is that CafePress is a business, and, as such, they donate to charities for publicity. If any actions they take are creating bad publicity, it would be in their best interest to stop.

To use a somewhat draconian example, imagine if some random hypothetical company were donating to the KKK. They would be free to do as they wish, but it would be very bad publicity for them to do so. My guess is that most people would not think it wrong to contact that company and request that they stop.


Autism Speaks is not like the KKK, I don't care how much you guys hate it.


RE: CafePress STILL donating to Autism Speaks....tell them: cut it OUT - d_olson27 - 04-22-2012 08:45 PM

Hazel Wrote:
Autism Speaks is not like the KKK, I don't care how much you guys hate it.


You missed the point. I never said that Autism Speaks was like the KKK. All I said is that if you don't like the actions that a company is taking, you're absolutely justified in contacting them to tell them how you feel about it.


RE: CafePress STILL donating to Autism Speaks....tell them: cut it OUT - Hazel - 04-22-2012 08:46 PM

d_olson27 Wrote:

Hazel Wrote:
Autism Speaks is not like the KKK, I don't care how much you guys hate it.


You missed the point. I never said that Autism Speaks was like the KKK. All I said is that if you don't like the actions that a company is taking, you're absolutely justified in contacting them to tell them how you feel about it.


Alright, I'd still trust Autism Speaks over you guys though.


RE: CafePress STILL donating to Autism Speaks....tell them: cut it OUT - - 04-22-2012 09:49 PM

Hazel Wrote:

d_olson27 Wrote:

Hazel Wrote:
Autism Speaks is not like the KKK, I don't care how much you guys hate it.


You missed the point. I never said that Autism Speaks was like the KKK. All I said is that if you don't like the actions that a company is taking, you're absolutely justified in contacting them to tell them how you feel about it.


Alright, I'd still trust Autism Speaks over you guys though.


We mostly follow the lead of the ASAN nowadays in regards to US-centric issues.

There's an ASAN chapter near you, at the State Uni, why not go talk to them? They'll be able to present a much better case in person than we can over the internet.


RE: CafePress STILL donating to Autism Speaks....tell them: cut it OUT - skyblue1 - 04-22-2012 09:54 PM

AutSpks doesnt need more contributions.

Collecting an average of 50 million dollars a year, seems like they have already collected more than their share of the pie.


RE: CafePress STILL donating to Autism Speaks....tell them: cut it OUT - Genesis - 04-22-2012 10:53 PM

Hazel Wrote:

d_olson27 Wrote:

Hazel Wrote:
Autism Speaks is not like the KKK, I don't care how much you guys hate it.


You missed the point. I never said that Autism Speaks was like the KKK. All I said is that if you don't like the actions that a company is taking, you're absolutely justified in contacting them to tell them how you feel about it.


Alright, I'd still trust Autism Speaks over you guys though.


Then why come onto this forum?


RE: CafePress STILL donating to Autism Speaks....tell them: cut it OUT - Katie1 - 04-23-2012 09:52 AM

If I remember correctly, Cafe Press, last year was going to donate all the money to Autism Speaks and they were convinced by feedback from the autistic community to allow people to vote for a selection out of a group of autism organizations that included ASAN, to share half of the donations with.  

I can't remember if ASAN won out in the competition last year or not.

This year there were a group of several organizations, that included both autism speaks and asan, and ASAN was selected by those that voted in the poll along with Autism Speaks.

I don't see a problem with writing them to try to convince them not to put autism speaks in the poll, next year, if one doesn't want to see them there, any more than trying to get someone added into the poll as was done last year.  That's a customers preference and right.

But, objectively speaking, from strictly a business perspective, it's not likely that the company will overule a good portion of their customers, in taking Autism Speaks completely out of the poll,  when they were the highest selected organization along with ASAN out of a group of several organizations.

A more reasonable request, if one wants to see the company actually respond with a business based action, might be to take only one winner next year out of the group of competitors, if one doesn't want to see ASAN share the donations with Autism Speaks. It would probably take more than half of the number of individuals that voted, to contact them on this issue, for them to act on a request like that, but if enough effort were put into it, it might happen.

Especially if the company received a considerable greater number of votes for ASAN than they did for Autism Speaks.

Skyblue1 provided a good rationale, to be provided to the company for such a decision to be made, in that ASAN rarely has an avenue to receive donations from the general public, and needs the additional funding, much more than Autism Speaks who is already gaining 50M in donations.

They won't likely make the decision based on the rationale that someone doesn't like autism speaks, because it would be an emotional based, rather than a business based decision, that they would not be able to back up with their customers, who might question the change in policy.


RE: CafePress STILL donating to Autism Speaks....tell them: cut it OUT - M - 04-23-2012 03:13 PM

I was in Toy 'r us last week.  They were asking for money for Autism Speaks.  I wanted to tell the clerk exactly why I was not interested in funding that charity unfortunately I was too busy firstly insisting on a price check and after all that trying to get my change when he short changed me for $5.  Such an imbecile who can't figure out how to give back change with a cashier register that calculates it -- is he even going to know what Autism Speaks is?


RE: CafePress STILL donating to Autism Speaks....tell them: cut it OUT - Xaisede - 04-23-2012 04:42 PM

Hazel Wrote:

d_olson27 Wrote:

Hazel Wrote:
Autism Speaks is not like the KKK, I don't care how much you guys hate it.


You missed the point. I never said that Autism Speaks was like the KKK. All I said is that if you don't like the actions that a company is taking, you're absolutely justified in contacting them to tell them how you feel about it.


Alright, I'd still trust Autism Speaks over you guys though.


Um, ok? What does that mean?


RE: CafePress STILL donating to Autism Speaks....tell them: cut it OUT - nialll - 04-23-2012 11:11 PM

i think the point, and please ignore me if someone already said this, is that we as people with autism should have at least some say as to how charities help us, and which ones we want to help us. we have no power to control anyone, but if an organisation is supporting a charity trying to fund a cure that probably doesn't exist, or does exist and so leads to people aborting their children on the basis that they have a form of autism (like they already do with down's) then i think it's important to have a say in that matter, as plenty of us aren't interested in a cure.

if an organisation learns that, for example, ASAN, is much more popular with actual autistic people than, for example, autism speaks, then hopefully that will influence them to help a charity that seems to be more beneficial to the actual people they are trying to help. to my mind, it's more about having our say, and for that say to be at least considered even if it ultimately isn't taken on board, than trying to tell people what to think, as, like i said, people with autism should have a say about what support they are given by a charity.

hope that made sense, i sort of forgot what i was talking about halfway through...


RE: CafePress STILL donating to Autism Speaks....tell them: cut it OUT - Katie1 - 04-24-2012 02:34 AM

M Wrote:
I was in Toy 'r us last week.  They were asking for money for Autism Speaks.  I wanted to tell the clerk exactly why I was not interested in funding that charity unfortunately I was too busy firstly insisting on a price check and after all that trying to get my change when he short changed me for $5.  Such an imbecile who can't figure out how to give back change with a cashier register that calculates it -- is he even going to know what Autism Speaks is?


Hard to say, he might have been an individual on the spectrum with dyscalculia, trying to make his way in life in a job he wasn't well suited for.

It's probably pretty likely that he knows Autism speaks is a charitable organization associated with Autism, just like all the other causes retail outlets partner in with charitable donations.

However, whether or not he personally cares if you donate, may be unlikely, unless he cares about the issue on a personal basis.  

The store requires him to ask people to donate as part of his job; they don't require him to care about the problems of people associated with the charitible cause.

However your point illustrates a reality in life, that is evidently never going to change.  Those that are neurodiverse, don't carry labels with them that state I have dyscalculia and have problems with numbers, or that I have Aspergers and have difficulty understanding non-verbal communication; it is why some people mistakingly refer to individuals with aspergers as imbeciles, even though their IQ might be 140.

And those of us that are autistic are just as potentially capable of misjudging others who may have neurodiverse conditions from their outward appearances or behaviors, that may be indicative of those neurodiverse conditions.

Awareness is the only path to acceptance, but it never guarantees it, in any human interaction.

That said, I have no idea why the employee made the mistake, and you have a personal right to judge other people based on their behavior.  Every human being does it.


RE: CafePress STILL donating to Autism Speaks....tell them: cut it OUT - Katie1 - 04-24-2012 03:06 AM

nialll Wrote:
i think the point, and please ignore me if someone already said this, is that we as people with autism should have at least some say as to how charities help us, and which ones we want to help us. we have no power to control anyone, but if an organisation is supporting a charity trying to fund a cure that probably doesn't exist, or does exist and so leads to people aborting their children on the basis that they have a form of autism (like they already do with down's) then i think it's important to have a say in that matter, as plenty of us aren't interested in a cure.

if an organisation learns that, for example, ASAN, is much more popular with actual autistic people than, for example, autism speaks, then hopefully that will influence them to help a charity that seems to be more beneficial to the actual people they are trying to help. to my mind, it's more about having our say, and for that say to be at least considered even if it ultimately isn't taken on board, than trying to tell people what to think, as, like i said, people with autism should have a say about what support they are given by a charity.

hope that made sense, i sort of forgot what i was talking about halfway through...


That makes good sense, however it is also good to understand the issue form a larger perspective of why things are the way they are.

In the US, those being statistically identified with autism aren't the minority of autistics actually participating in online communities, however other countries are better at identifying individuals with higher functioning autism.

In the US the 1 in 88 is 8 year olds, in classes for the developmentally disabled.  It is the parents, that are supporting the cause, not the 8 year olds.  So, in the US, it is the organization that supports the parents that gains the most attention in the media.

Until those individuals with higher functioning autism are actually identified in the US, their needs and opinions are not going to be considered on a widescale basis, because for all practical intents in the US, they dont even exist.

In real life, in the US, there is hardly any real awareness of Aspergers in real life.  Sit-coms like Community are where people are getting their information on Aspergers, in the general population.

On the other hand the 1 in 88, are those that in reality are actually in classes for the developmentally disabled, and this is how the US, views Autism.

When the DSMV goes into effect, there is not really going to be much awareness at all of anything but the 1 in 88, as the term aspergers drifts into the past.

However good news for the folks in Europe that follow the ICD10, and provide proper educational awareness of Aspergers in the culture. Aspergers isn't going away in those countries, and awareness is likely only to increase as time goes on.

The reality in the US, is that the culture at large is not only supporting autism speaks, and those organizations similiar to it, the psychiatric and psychological professions are in alignment with the disease model of autism.

I don't have an answer for the issue, but this appears to be the reality of it, in the US.  It's not an even playing ground with other countries, for those that have Aspergers, for awareness and support of those with the condition.

The reality in the US, is when someone questions a person that actually supports Autism Speaks in the general public, they look at them like what right do you have to complain about it, you aren't disabled by autism.  

The DSMV is going to increase that issue of awareness, not decrease it.  There appears to be no way to avoid it; it's part of the fabric of the culture in the US.