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New Definition of Autism May Exclude Many, Study Suggests - Printable Version

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New Definition of Autism May Exclude Many, Study Suggests - skyblue1 - 01-20-2012 01:39 AM

Latest in the news:



Proposed changes in the definition of autism would sharply reduce the skyrocketing rate at which the disorder is diagnosed and may make it harder for many people who would no longer meet the criteria to get health, educational and social services, a new analysis suggests.

The definition is under review by an expert panel appointed by the American Psychiatric Association, which is completing work on the fifth edition of its Diagnostic and Statistical Manual of Mental Disorders. The D.S.M, as the manual is known, is the standard reference for mental disorders, driving research, treatment and insurance decisions.

The study results, presented on Thursday at a meeting of the Icelandic Medical Association, are still preliminary, but they offer the latest and most dramatic estimate of how tightening the criteria for autism could affect the rate of diagnosis. Rates of autism and related disorders like Asperger syndrome have taken off since the early 1980s, to prevalence rates as high as one in 100 children in some places. Many researchers suspect that these numbers are inflated because of vagueness in the current criteria.

“The proposed changes would put an end to the autism epidemic,” said Dr. Fred R. Volkmar, director of the Child Study Center at Yale University School of Medicine and an author of the new analysis. “We would nip it in the bud — think of it that way.”Experts working on the new definition — a group that formerly included Dr. Volkmar — strongly questioned the new estimate. “I don’t know how they’re getting those numbers,” said Catherine Lord, a member of the task force working on the diagnosis.

Previous projections have concluded that far fewer people would be excluded under the proposed diagnosis change, said Dr. Lord, director of the Institute for Brain Development, a joint project of NewYork-Presbyterian Hospital, Weill Cornell Medical College, Columbia University Medical Center and the New York Center for Autism.

Disagreement about the effect of the new definition will almost certainly increase scrutiny of the finer points of the psychiatric association’s changes to the manual The revisions are about 90 percent complete and will be final by December, according to Dr. David J. Kupfer, a professor of psychiatry at the University of Pittsburgh and chairman of the task force making the revisions.

At least a million children and adults have a diagnosis of autism or a related disorder, like Asperger syndrome or “pervasive developmental disorder, not otherwise specified” — or P.D.D.-N.O.S. People with Asperger’s or P.D.D.-N.O.S. endure some of the same social struggles as those with autism but do not meet the definition for the full-blown version. The proposed change would consolidate all three diagnoses under one category, autism spectrum disorder, eliminating Asperger syndrome and P.D.D.-N.O.S. from the manual. Under the current criteria a person can qualify for the diagnosis by exhibiting six or more of 12 behaviors; under the proposed definition, the person would have to exhibit three deficits in social interaction and communication and at least two repetitive behaviors — a much narrower menu.

Dr. Kupfer said the proposed changes were an attempt to clarify these permutations and put them under one name.

Hundreds of thousands of people receive state-backed special services to help offset the disorders’ disabling effects, which include learning and social problems, and the diagnosis is in many ways central to their lives. Close networks of parents have bonded over common experiences with children; and the children, too, may grow to find a sense of their own identity in their struggle with the disorder.

Mary Meyer, of Ramsey, N.J., said that a diagnosis of Asperger syndrome was crucial in getting her daughter, who is 37, access to services that have helped tremendously. “I’m very concerned about the change in diagnosis because I wonder if my daughter would even qualify now,” she said. “She’s on disability, which is partly based on the Asperger’s, and I’m hoping to get her into supportive housing, which also depends on her diagnosis.”

Mark Roithmayr, president of Autism Speaks, an advocacy organization, said that the proposed diagnosis should bring needed clarity but that the effect on services was not yet clear. “We need to carefully monitor the impact of these diagnostic changes on access to services and ensure that no one is being denied the services they need,” Mr. Roithmayr said by e-mail. “Some treatments and services are driven solely by a person’s diagnosis, while other services may depend on other criteria such as age, I.Q. level or medical history.”

In the new analysis, Dr. Volkmar, along with Brian Reichow and James McPartland, both at Yale, used data from a large 1993 study that served as the basis for the current criteria. They focused on 372 children and adults who were among the highest-functioning and found that over all, only 45 percent of them would qualify for the proposed autism spectrum diagnosis now under review. The focus on a high-functioning group may have slightly exaggerated that percentage, the authors acknowledge.

The likelihood of being left out under the new definition depended on the original diagnosis: About a quarter of those identified with classic autism in 1993 would not be so identified under the proposed criteria; about three quarters of those with Asperger’s would not qualify; and 85 percent of those with P.D.D.-N.O.S. would not.

Dr. Volkmar presented the preliminary findings on Thursday. The researchers will publish a broader analysis, based on a larger and more representative sample of 1,000 cases, later this year. Dr. Volkmar said that although the proposed diagnosis would be for disorders on a spectrum and implies a broader net, it focuses tightly on “classically autistic” children on the more severe end of the scale. “The major impact here is on the more cognitively able,” he said.

Dr. Lord said that the study numbers are probably exaggerated because the research team relied on old data, collected by doctors who were not aware of what kinds of behaviors the proposed definition requires. “It’s not that the behaviors didn’t exist, but that they weren’t even asking about them — they wouldn’t show up at all in the data,” Dr. Lord said.

http://www.nytimes.com/2012/01/20/health/research/new-autism-definition-would-exclude-many-study-suggests.html


RE: New Definition of Autism May Exclude Many, Study Suggests - Kapkao - 01-20-2012 02:40 AM

It sounds like a thanksgiving feast!


RE: New Definition of Autism May Exclude Many, Study Suggests - skyblue1 - 01-20-2012 03:00 AM

This may even bring down AutSpks


RE: New Definition of Autism May Exclude Many, Study Suggests - Kapkao - 01-20-2012 03:33 AM

skyblue1  Wrote:
This may even bring down AutSpks


I was referring to my anticipatory response before Thanks.

Because, secretly, I despise the "main" participant.


RE: New Definition of Autism May Exclude Many, Study Suggests - Genesis - 01-20-2012 03:35 AM

skyblue1  Wrote:
This may even bring down AutSpks


How?


RE: New Definition of Autism May Exclude Many, Study Suggests - Kapkao - 01-20-2012 03:44 AM

Genesis Wrote:

skyblue1  Wrote:
This may even bring down AutSpks


How?


Give a more official presentation to 'diagnosis' rather than an individualized one.


RE: New Definition of Autism May Exclude Many, Study Suggests - Kapkao - 01-20-2012 03:46 AM

Note: interactions between ASD and personality disorders are a very likely possibility.


RE: New Definition of Autism May Exclude Many, Study Suggests - Genesis - 01-20-2012 03:50 AM

Kapkao Wrote:
Note: interactions between ASD and personality disorders are a very likely possibility.


Oh duly noted


RE: New Definition of Autism May Exclude Many, Study Suggests - Greginjersey - 01-20-2012 04:20 AM

here is the problem you can claim aspergers is a disability in front of a psychiatrist but it listed under developmental disability or (from birth) now it is a matter of black and white thinking is it something that is barely visable and higher functioning (aspergers) or severely disabled (spina bifida, downs syndrome) something that is visible able to be seen and easily validated the problem with aspergers is that it is a disability that falls within a gray line people with AS appear normal on the outside but function differently this is what pisses me off is how people claim ignorance by saying that aspergers syndrome is an excuse or an attempt to not adapt to change so people would rather say it didn't exist without paying attention to the statistics interacting with others on the spectrum or viewing them from the background seeing where their strengths lie and their weaknesses fall


RE: New Definition of Autism May Exclude Many, Study Suggests - kevout2 - 01-20-2012 04:54 AM

One thing is certain regardless of how the autism spectum is defined.  It will not change the quality of life as people with Asperger Syndrome experience it.  I suppose it would be fine to exclude Asperger Syndrome as a disability.  But neurodiversity is going to have to be embraced by society in general if people with Asperger Syndrome aren't going to experience the hardships associated with Asperger Syndrome (particularly employment issues, being bullied, and being victims of socially saavy deviants).


RE: New Definition of Autism May Exclude Many, Study Suggests - Kapkao - 01-20-2012 05:19 AM

What about aspies who excel at bullying?


RE: New Definition of Autism May Exclude Many, Study Suggests - skyblue1 - 01-20-2012 05:21 AM

Genesis Wrote:

skyblue1  Wrote:
This may even bring down AutSpks


How?


they may run out of victims to pursue, less donations


RE: New Definition of Autism May Exclude Many, Study Suggests - Genesis - 01-20-2012 05:31 AM

skyblue1  Wrote:

Genesis Wrote:

skyblue1  Wrote:
This may even bring down AutSpks


How?


they may run out of victims to pursue, less donations


Maybe.... just maybe


RE: New Definition of Autism May Exclude Many, Study Suggests - 41 6c 79 - 01-20-2012 05:34 AM

Greginjersey Wrote:
here is the problem you can claim aspergers is a disability in front of a psychiatrist but it listed under developmental disability or (from birth) now it is a matter of black and white thinking is it something that is barely visable and higher functioning (aspergers) or severely disabled (spina bifida, downs syndrome) something that is visible able to be seen and easily validated the problem with aspergers is that it is a disability that falls within a gray line people with AS appear normal on the outside but function differently this is what pisses me off is how people claim ignorance by saying that aspergers syndrome is an excuse or an attempt to not adapt to change so people would rather say it didn't exist without paying attention to the statistics interacting with others on the spectrum or viewing them from the background seeing where their strengths lie and their weaknesses fall


Disabled = wheelchair user Therefore if you don't use a wheelchair, you're seen as a fraud.
I sometimes use disabled facilities and sometimes I'm challenged by someone who doesn't see a wheelchair because I don't use one. While I don't consider myself disabled, legally I am, and sometimes I do need things that most people don't.
While I don't receive benefits or have a support worker etc, my family do a lot for me and there are a couple of charities that sometimes give me a nudge in the right direction. When I was young, I gained a great deal from support and courses which would not have been available without a DX.
There are many people who would have problems without a DX, I might if I didn't have my own little network of people.
Hidden disabilities are often misunderstood.

Personally I dislike the current ambiguity of the distinctions between autistic labels.
For example: I'm going for an assessment because I've expired Big Grin If my childhood language delays etc are taken into account, I'll probably be labelled HFA. If not, I'll probably be labelled Aspie. If my faking skills are too good I'll be shown the door. It also depends who does the assessment.
Also, it is after all a spectrum and people don't fit neatly into boxes.

In the UK, the government are scrapping some disability benefits from those who won't complain too much (or will be ignored) in order to save money.
Perhaps the US is taking a slightly different route by reducing the number of legally disabled people there are.


RE: New Definition of Autism May Exclude Many, Study Suggests - kevout2 - 01-20-2012 05:46 AM

41 6c 79 Wrote:

Greginjersey Wrote:
here is the problem you can claim aspergers is a disability in front of a psychiatrist but it listed under developmental disability or (from birth) now it is a matter of black and white thinking is it something that is barely visable and higher functioning (aspergers) or severely disabled (spina bifida, downs syndrome) something that is visible able to be seen and easily validated the problem with aspergers is that it is a disability that falls within a gray line people with AS appear normal on the outside but function differently this is what pisses me off is how people claim ignorance by saying that aspergers syndrome is an excuse or an attempt to not adapt to change so people would rather say it didn't exist without paying attention to the statistics interacting with others on the spectrum or viewing them from the background seeing where their strengths lie and their weaknesses fall


Disabled = wheelchair user Therefore if you don't use a wheelchair, you're seen as a fraud.
I sometimes use disabled facilities and sometimes I'm challenged by someone who doesn't see a wheelchair because I don't use one. While I don't consider myself disabled, legally I am, and sometimes I do need things that most people don't.
While I don't receive benefits or have a support worker etc, my family do a lot for me and there are a couple of charities that sometimes give me a nudge in the right direction. When I was young, I gained a great deal from support and courses which would not have been available without a DX.
There are many people who would have problems without a DX, I might if I didn't have my own little network of people.
Hidden disabilities are often misunderstood.

Personally I dislike the current ambiguity of the distinctions between autistic labels.
For example: I'm going for an assessment because I've expired Big Grin If my childhood language delays etc are taken into account, I'll probably be labelled HFA. If not, I'll probably be labelled Aspie. If my faking skills are too good I'll be shown the door. It also depends who does the assessment.
Also, it is after all a spectrum and people don't fit neatly into boxes.

In the UK, the government are scrapping some disability benefits from those who won't complain too much (or will be ignored) in order to save money.
Perhaps the US is taking a slightly different route by reducing the number of legally disabled people there are.


A point to make (although it doesn't have to do with this thread; just a point made in the post):

Consider the prevalance of able bodied neurotypical people who nonchalantly use handicapped parking spots to park their cars because its convenient or they're in a hurry.  Even worse is such people who will have a handicapped placard or sticker on the car windshield yet such folks aren't disabled at all.  It's OK as long as you don't get caught and have to pay a fine.  Yet the typical Aspie will park far away if that's the only place to find a parking spot.  Then he'll be criticized by others (such as an NT passenger) for parking too far away or not "doing what anybody else would do".


RE: New Definition of Autism May Exclude Many, Study Suggests - Ken G. - 01-20-2012 02:38 PM

Please join the protest against the new definition of Autism:
http://www.facebook.com/notes/grasp/grasp-action-alert-on-the-dsm-v/331472563552863


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-20-2012 02:45 PM

Genesis Wrote:

skyblue1  Wrote:

Genesis Wrote:

skyblue1  Wrote:
This may even bring down AutSpks


How?


they may run out of victims to pursue, less donations


Maybe.... just maybe

Or it could lead to the agressive parents at autism speaks still getting children pushed through and tricking people.


RE: New Definition of Autism May Exclude Many, Study Suggests - 41 6c 79 - 01-20-2012 03:15 PM

^ WOW OMFG, Comic Sans MS.
Haven't seen you in years.
Such a dirty typeface.

And, back to topic.


RE: New Definition of Autism May Exclude Many, Study Suggests - windy - 01-20-2012 04:03 PM

41 6c 79 Wrote:

Greginjersey Wrote:
here is the problem you can claim aspergers is a disability in front of a psychiatrist but it listed under developmental disability or (from birth) now it is a matter of black and white thinking is it something that is barely visable and higher functioning (aspergers) or severely disabled (spina bifida, downs syndrome) something that is visible able to be seen and easily validated the problem with aspergers is that it is a disability that falls within a gray line people with AS appear normal on the outside but function differently this is what pisses me off is how people claim ignorance by saying that aspergers syndrome is an excuse or an attempt to not adapt to change so people would rather say it didn't exist without paying attention to the statistics interacting with others on the spectrum or viewing them from the background seeing where their strengths lie and their weaknesses fall


Disabled = wheelchair user Therefore if you don't use a wheelchair, you're seen as a fraud.
I sometimes use disabled facilities and sometimes I'm challenged by someone who doesn't see a wheelchair because I don't use one. While I don't consider myself disabled, legally I am, and sometimes I do need things that most people don't.
While I don't receive benefits or have a support worker etc, my family do a lot for me and there are a couple of charities that sometimes give me a nudge in the right direction. When I was young, I gained a great deal from support and courses which would not have been available without a DX.
There are many people who would have problems without a DX, I might if I didn't have my own little network of people.
Hidden disabilities are often misunderstood.

Personally I dislike the current ambiguity of the distinctions between autistic labels.
For example: I'm going for an assessment because I've expired Big Grin If my childhood language delays etc are taken into account, I'll probably be labelled HFA. If not, I'll probably be labelled Aspie. If my faking skills are too good I'll be shown the door. It also depends who does the assessment.
Also, it is after all a spectrum and people don't fit neatly into boxes.

In the UK, the government are scrapping some disability benefits from those who won't complain too much (or will be ignored) in order to save money.
Perhaps the US is taking a slightly different route by reducing the number of legally disabled people there are.


QFT... great post


RE: New Definition of Autism May Exclude Many, Study Suggests - Lady_babalon - 01-20-2012 11:38 PM

I am all in favor of this.  

I also foresee a million voices of "warrior parents" who live vicariously through their beleaguered children's supposed "disability" crying out and then being suddenly silenced - oh wait wrong movie.  lol


RE: New Definition of Autism May Exclude Many, Study Suggests - 41 6c 79 - 01-21-2012 12:08 AM

I'm in favour of clarification and a more spectrum friendly definition but not at the expense of people not getting help they might need.

The current system is messy, but as with many things, it has been ironing itself out nicely in some places with small changes here and there.
There are of course, regional variations with over/under diagnosis etc.

Of course, we can only really judge any changes with hindsight.
So I sit on the side lines and observe; like so many times before.


RE: New Definition of Autism May Exclude Many, Study Suggests - 41 6c 79 - 01-21-2012 12:18 AM

I read an argument somewhere about this that there is an autism epidemic just because there are more cases of Asperger's now than there were in the 1980s.
AFAIK Asperger's was not an option for diagnosis until the mid 1990s (96?).
If true then how would there be ANY cases of Asperger's in the 1980s?
For anyone not following my logic: there wouldn't be any.
Just seemed like a really weak argument that didn't say much about anything. Sooo not a fair comparison.


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-21-2012 01:32 AM

The problem is that it's a complex picture. The vagueness of the wording, and of psychology in general, has meant that children have been diagnosed who had no reason to. At the same time those who were the actual targets of the diagnosis were accepted at the same comparable rate.

This DSMV seems set to exclude those who are moderate, but deserving, whilst not really shutting the floodgates for those who by some want, get diagnosed. I have met them on wrongplanet, individuals who advised me to 'fake' autistic traits to get diagnosed. All Americans, sadly. Usually I am infuriated, but that sort of caprice now moves me to pity of those who have to live alongside these social predators.


RE: New Definition of Autism May Exclude Many, Study Suggests - skyblue1 - 01-21-2012 01:44 AM

Wonder how much influence governments and health insurance companies have over the decisions of the group, deciding this matter.

After all it is all about money


RE: New Definition of Autism May Exclude Many, Study Suggests - Kapkao - 01-21-2012 08:52 AM

skyblue1  Wrote:
Wonder how much influence governments and health insurance companies have over the decisions of the group, deciding this matter.

After all it is all about money


:thumbs up:


RE: New Definition of Autism May Exclude Many, Study Suggests - Kapkao - 01-21-2012 09:20 AM

One thing to consider: there are many 'poser' aspies about in the world; that is to say... there are many people who 'wish' they fell in to some arbitrary set of diagnosable symptoms that could explain their problems in life (like an ASD) but can't be diagnosed by any ethical psychiatric professional.


Cluepon: I may be one such person. /shrug


RE: *sigh*, again... - Kapkao - 01-21-2012 09:42 AM

One thing I noticed while attending "blueblooded" school districts (not to be confused with boarding schools) is that otherwise prodigal childhood minds have 'quirks of personality' that might have hindered their ability to socialize while prepubescent. There is (obviously) a correlation between being autodidactic and autistic, however that does NOT mean that all autodidactic or autistic kids have BOTH behavior patterns. The old myth about there being some sort of connection between being really intelligent and having some form of insanity immediately comes to mind. It was a steaming load of bollocks that could NOT be demonstrated in science.

I believe the same is true of Asperger's and being somehow 'intellectually gifted yet dysfunctional in school', in my not so humble opinion.


RE: New Definition of Autism May Exclude Many, Study Suggests - Ken G. - 01-21-2012 02:13 PM

The New York Times has released the following chart, regarding the percentages of folks who will not qualify for a diagnosis under these revisions:
http://www.nytimes.com/interactive/2012/01/20/us/redefining-autism.html
GRASP issued two messages, about protesting this:
http://www.aspiesforfreedom.com/showthread.php?tid=23790


RE: New Definition of Autism May Exclude Many, Study Suggests - 41 6c 79 - 01-21-2012 08:34 PM

It would be more humane to over diagnose than under diagnose.

I've never understood why someone would fake ASDs. NTs usually do this sort of thing for attention no? An attention seeking aspie seems like a bit of an oxymoron. I don't think anyone has ever thought I was "cool" because I'm autistic and if/when people get all sympathetic, I get annoyed and walk away. I really don't understand.


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-21-2012 08:39 PM

41 6c 79 Wrote:
I've never understood why someone would fake ASDs.


I doubt many fake ASDs. They get classified with them if their parent suspects it.

I call it Salem syndrome. It's an American phenomenon mostly. From Witches, to Communists, to ADHD sufferers, anything unusual in America can get people stuck with a label that can only get peeled off with an acetylene torch.


RE: New Definition of Autism May Exclude Many, Study Suggests - 41 6c 79 - 01-21-2012 08:50 PM

@Gedrene
You mean herd mentality?
http://en.wikipedia.org/wiki/Herd_mentality


RE: New Definition of Autism May Exclude Many, Study Suggests - Kapkao - 01-22-2012 12:16 AM

Gedrene Wrote:

41 6c 79 Wrote:
I've never understood why someone would fake ASDs.


I doubt many fake ASDs. They get classified with them if their parent suspects it.

I call it Salem syndrome. It's an American phenomenon mostly. From Witches, to Communists, to ADHD sufferers, anything unusual in America can get people stuck with a label that can only get peeled off with an acetylene torch.


I wonder how Victorians dealt with this... oh that's right... they build empires amongst natives who didn't want anything to do with Brits. Everyone else the 'citizenry' didn't like got thrown in a badly maintained sanitarium or two. Caution; don't sleep in one during the winter!

Please don't do the "us vs them" culture thing with me. Make a politics thread for it.


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-22-2012 12:24 AM

41 6c 79 Wrote:
@Gedrene
You mean herd mentality?
http://en.wikipedia.org/wiki/Herd_mentality


Herd Mentality tends to be a case of precedent following the crowd rather than mean-spiritedness and paranoia.


RE: New Definition of Autism May Exclude Many, Study Suggests - 41 6c 79 - 01-22-2012 12:25 AM

""us Vs them" culture thing"?


RE: New Definition of Autism May Exclude Many, Study Suggests - 41 6c 79 - 01-22-2012 12:28 AM

Gedrene Wrote:

41 6c 79 Wrote:
@Gedrene
You mean herd mentality?
http://en.wikipedia.org/wiki/Herd_mentality


Herd Mentality tends to be a case of precedent following the crowd rather than mean-spiritedness and paranoia.


Ah okay. I see what you mean.


RE: Gedrene being a puttz| cry me a ****ing river - Kapkao - 01-22-2012 12:31 AM

41 6c 79 Wrote:
""us Vs them" culture thing"?


Quote:
I call it Salem syndrome. It's an American phenomenon mostly. From Witches, to Communists, to ADHD sufferers, anything unusual in America can get people stuck with a label that can only get peeled off with an acetylene torch.


Gedrene suggests America is more conformist than Britain at various times in the past and that being 'unique' in America is more of a 'crime' than it is in Britain. This is a joke if ever there was one and political flamebait if ever it was possible in an Autism board.


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-22-2012 12:33 AM

Kapkao Wrote:
Please don't do the "us vs them" culture thing with me. Make a politics thread for it.

You are the one with the us v them attitude. I point out a problem with the psyche of the United States and instantly you jump down my throat with some anti-British mud-slinging.

No wonder you spam so much. It's to cover up that prickly interior.


RE: New Definition of Autism May Exclude Many, Study Suggests - Kapkao - 01-22-2012 12:34 AM

Addendum; as for "meanness" and "paranoia", read up on historical immigration and "Gentleman Jack" along with Oscar Wilde's sodomy trial sometime. It will open your eyes a bit.
George Orwell's criticism of Britain's domestic conduct during WWII also comes to mind.


RE: Gedrene being a puttz| cry me a ****ing river - Gedrene - 01-22-2012 12:36 AM

Kapkao Wrote:

41 6c 79 Wrote:
""us Vs them" culture thing"?


Quote:
I call it Salem syndrome. It's an American phenomenon mostly. From Witches, to Communists, to ADHD sufferers, anything unusual in America can get people stuck with a label that can only get peeled off with an acetylene torch.


Gedrene suggests America is more conformist than Britain at various times in the past and that being 'unique' in America is more of a 'crime' than it is in Britain. This is a joke if ever there was one and political flamebait if ever it was possible in an Autism board.

No, I said that America has a problem with demagogic movements.
The fact that you have to resort to so much hyperbole 'if it ever was possible on an Autism Board' shows you're just paranoically defensive.


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-22-2012 12:38 AM

Kapkao Wrote:
Addendum; as for "meanness" and "paranoia", read up on historical immigration and "Gentleman Jack" along with Oscar Wilde's sodomy trial sometime. It will open your eyes a bit.
George Orwell's criticism of Britain's domestic conduct during WWII also comes to mind.

I wasn't talking about conformity. I was talking about demagogic movements. Could you stop mischaracterizing what I say just because you are intolerant of criticism of the USA?


RE: New Definition of Autism May Exclude Many, Study Suggests - Kapkao - 01-22-2012 12:42 AM

Gedrene Wrote:

Kapkao Wrote:
Addendum; as for "meanness" and "paranoia", read up on historical immigration and "Gentleman Jack" along with Oscar Wilde's sodomy trial sometime. It will open your eyes a bit.
George Orwell's criticism of Britain's domestic conduct during WWII also comes to mind.

I wasn't talking about conformity. I was talking about demagogic movements. Could you stop mischaracterizing what I say just because you are intolerant of criticism of the USA?


Make a politics thread for it next time? Please pretty please? Maybe? Possibly?


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-22-2012 12:45 AM

Kapkao Wrote:
Make a politics thread for it next time? Please pretty please? Maybe? Possibly?

I was responding to 41 6c 79 when I posted that answer. You just had to jump in to put in to petty anglophobic bilge

If I ever want to make a topic I'll post it in the right place.

Currently you are still posting comments in a a thread where a split was made for the express purpose of you commenting on random duff elsewhere. Pot calling kettle black.


RE: New Definition of Autism May Exclude Many, Study Suggests - Kapkao - 01-22-2012 12:51 AM

Gedrene Wrote:

Kapkao Wrote:
Make a politics thread for it next time? Please pretty please? Maybe? Possibly?

I was responding to 41 6c 79 when I posted that answer. You just had to jump in to put in to petty anglophobic bilge

If I ever want to make a topic I'll post it in the right place.

Currently you are still posting comments in a a thread where a split was made for the express purpose of you commenting on random duff elsewhere. Pot calling kettle black.

Good luck, Gedrene. You are going to need it if you wish to take "being playful" into being combative and abrasive...


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-22-2012 12:55 AM

Kapkao Wrote:
Good luck, Gedrene. You are going to need it if you wish to take "being playful" into being combative and abrasive...

You accuse of calling the USA conformist and then go in to some anti-British Empire spiel. Now you're trying hard to ignore any wrongdoing you have made by poisoning the well.

Could you stop harassing me and then hypocritically calling me combatitive and abrasive?


RE: New Definition of Autism May Exclude Many, Study Suggests - Kapkao - 01-22-2012 12:56 AM

Good luck.


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-22-2012 01:00 AM

Stop threatening me.


RE: New Definition of Autism May Exclude Many, Study Suggests - cynara - 01-22-2012 01:00 AM

Kapkao Wrote:
Good luck.


Oooooooh................................... it's on.
The Kappers is riled. Big Grin


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-22-2012 01:01 AM

cynara Wrote:
Oooooooh................................... it's on.
The Kappers is riled. Big Grin

Why are you relishing in the fact that he's threatening me?


RE: New Definition of Autism May Exclude Many, Study Suggests - cynara - 01-22-2012 01:04 AM

I'm not relishing him threatening you because he's not.
Well, not in the way you think anyhow.

If you have him as sussed as you say you do, then you'll know what he's doing.


RE: New Definition of Autism May Exclude Many, Study Suggests - 41 6c 79 - 01-22-2012 01:04 AM

Wow. Duck n cover. Eek.


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-22-2012 01:08 AM

cynara Wrote:
I'm not relishing him threatening you because he's not.
Well, not in the way you think anyhow.

So he isn't but he is. And you're enjoying it but you're not.

cynara Wrote:
If you have him as sussed as you say you do, then you'll know what he's doing.

I didn't make a point of having sussed him. he did of me. So what is he doing pray tell if you actually know what I am thinking?


RE: New Definition of Autism May Exclude Many, Study Suggests - Kapkao - 01-22-2012 01:10 AM

Quote:
something about "threats"


All in favor of nuking the British Empire say "aye"...


(hint: by the time of Nagasaki and Hiroshima, Britain's days as an empire were finished)


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-22-2012 01:18 AM

:/ Really, and he says I am the one doing the us v them mentality.

I don't care if that's a joke, that's tasteless and I am not going to be involved with it any further. Make any crazy rants you want. I am not going to have an argument with a man who suggests nuking Britain just because I said the Red Scare and the Salem trials happened in the USA

You aren't entitled to fight facts with threats.


RE: New Definition of Autism May Exclude Many, Study Suggests - cynara - 01-22-2012 01:20 AM

Gedrene Wrote:

cynara Wrote:
I'm not relishing him threatening you because he's not.
Well, not in the way you think anyhow.

So he isn't but he is. And you're enjoying it but you're not.



Your use of the word "threatening" could be seen to be referring to implied violence against yourself. This is not the case.
And I'm enjoying the sparring.

Gedrene Wrote:

cynara Wrote:
If you have him as sussed as you say you do, then you'll know what he's doing.

I didn't make a point of having sussed him. he did of me. So what is he doing pray tell if you actually know what I am thinking?


You stated in another thread (too lazy to provide proof but others will have seen it) "You had him worked out in two posts"*
He's enjoying the sparring.

*paraphrased


RE: New Definition of Autism May Exclude Many, Study Suggests - 41 6c 79 - 01-22-2012 01:21 AM

Nagasaki and Hiroshima are not something to be proud of; they were and are a massive human tragedy.
Calling for a vote to nuke another country, particularly an allied country with a similar culture is barbaric even on a forum.
The British empire was a bit of a mixed bag to say the least.
This is all history and had nothing to do with anyone here.


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-22-2012 01:25 AM

cynara Wrote:
I'm not relishing him


cynara Wrote:
And I'm enjoying the sparring.




RE: New Definition of Autism May Exclude Many, Study Suggests - cynara - 01-22-2012 01:27 AM

Gedrene Wrote:

cynara Wrote:
I'm not relishing him


cynara Wrote:
And I'm enjoying the sparring.


Your point is.............


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-22-2012 01:31 AM

cynara Wrote:

Gedrene Wrote:

cynara Wrote:
I'm not relishing him


cynara Wrote:
And I'm enjoying the sparring.


Your point is.............

You denied that you relished the threat, now you admit that you do.


RE: New Definition of Autism May Exclude Many, Study Suggests - skyblue1 - 01-22-2012 01:33 AM

Ken G. Wrote:
The New York Times has released the following chart, regarding the percentages of folks who will not qualify for a diagnosis under these revisions:
http://www.nytimes.com/interactive/2012/01/20/us/redefining-autism.html
GRASP issued two messages, about protesting this:
http://www.aspiesforfreedom.com/showthread.php?tid=23790


unfortunately the chart doesnt give a clue about who is in and who is out.

if a child has a DX will they lose their DX or does this only apply to the newly DX`ed children.

I R confuzed


RE: New Definition of Autism May Exclude Many, Study Suggests - Kapkao - 01-22-2012 01:37 AM

Relevant thread is now adversarial "stuff and nonsense"


RE: New Definition of Autism May Exclude Many, Study Suggests - 41 6c 79 - 01-22-2012 01:39 AM

skyblue1  Wrote:

Ken G. Wrote:
The New York Times has released the following chart, regarding the percentages of folks who will not qualify for a diagnosis under these revisions:
http://www.nytimes.com/interactive/2012/01/20/us/redefining-autism.html
GRASP issued two messages, about protesting this:
http://www.aspiesforfreedom.com/showthread.php?tid=23790


unfortunately the chart doesnt give a clue about who is in and who is out.

if a child has a DX will they lose their DX or does this only apply to the newly DX`ed children.

I R confuzed


I would guess probably only newly or revised DX; that's usually the way of things.


RE: New Definition of Autism May Exclude Many, Study Suggests - cynara - 01-22-2012 01:40 AM

@ Gedrene,
Sigh, it wasn't a threat to you as a person, just a declaration of a war of words. And you know it. You have not shrunk away from saying what you think, dont get all pissy when others do the same.
And I'm enjoying the verbal sparring, I dont care what you think of me for that.

You're the one with relish obsession gedrene, I'm more of a branstons girl myself.


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-22-2012 01:45 AM

cynara Wrote:
@ Gedrene,
Sigh, it wasn't a threat to you as a person, just a declaration of a war of words. And you know it.

No I didn't. I thought it was a threat.

cynara Wrote:
You have not shrunk away from saying what you think, dont get all pissy when others do the same.

Kapkao asked for a vote on nuking the UK and went in to several anti-British rants. I said the USA has a few problems with demagouges, such as the red scare.

No point equating the two.


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-22-2012 01:46 AM

41 6c 79 Wrote:

skyblue1  Wrote:

Ken G. Wrote:
The New York Times has released the following chart, regarding the percentages of folks who will not qualify for a diagnosis under these revisions:
http://www.nytimes.com/interactive/2012/01/20/us/redefining-autism.html
GRASP issued two messages, about protesting this:
http://www.aspiesforfreedom.com/showthread.php?tid=23790


unfortunately the chart doesnt give a clue about who is in and who is out.

if a child has a DX will they lose their DX or does this only apply to the newly DX`ed children.

I R confuzed


I would guess probably only newly or revised DX; that's usually the way of things.


Agreed. I don't actually believe that they would force diagnosis if they could though. Although I have been wrong about the psychological community before...


RE: New Definition of Autism May Exclude Many, Study Suggests - cynara - 01-22-2012 01:49 AM

Gedrene Wrote:

cynara Wrote:
You have not shrunk away from saying what you think, dont get all pissy when others do the same.

He asked for a vote on nuking the UK and went in to several anti-British rants. I said the USA has a few problems with demagouges, such as the red scare.

.

Strawman.
Your pissiness was evident long before Kappers nuke post.


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-22-2012 01:54 AM

cynara Wrote:

Gedrene Wrote:

cynara Wrote:
You have not shrunk away from saying what you think, dont get all pissy when others do the same.

He asked for a vote on nuking the UK and went in to several anti-British rants. I said the USA has a few problems with demagouges, such as the red scare.

.

Strawman.

No it isn't.

Kapkao Wrote:
All in favor of nuking the British Empire say "aye"...


(hint: by the time of Nagasaki and Hiroshima, Britain's days as an empire were finished)


cynara Wrote:
Your pissiness was evident long before Kappers nuke post.

Please can you prove what you say rather than just accuse me of things?


RE: New Definition of Autism May Exclude Many, Study Suggests - cynara - 01-22-2012 01:59 AM

Nope, I'm gonna go to bed. I'm not trawling through threads to find quotes, I dont care enough to be arsed to be honest.
Just because I'm not showing any proof doesn't mean it doesn't exist.


RE: New Definition of Autism May Exclude Many, Study Suggests - skyblue1 - 01-22-2012 01:59 AM

41 6c 79 Wrote:

skyblue1  Wrote:

Ken G. Wrote:
The New York Times has released the following chart, regarding the percentages of folks who will not qualify for a diagnosis under these revisions:
http://www.nytimes.com/interactive/2012/01/20/us/redefining-autism.html
GRASP issued two messages, about protesting this:
http://www.aspiesforfreedom.com/showthread.php?tid=23790


unfortunately the chart doesnt give a clue about who is in and who is out.

if a child has a DX will they lose their DX or does this only apply to the newly DX`ed children.

I R confuzed


I would guess probably only newly or revised DX; that's usually the way of things.


I smell conspiracy....someone is not wanting to pay for therapy


RE: New Definition of Autism May Exclude Many, Study Suggests - skyblue1 - 01-22-2012 02:01 AM

cynara Wrote:
I'm gonna go to bed.


sweet dreams


RE: New Definition of Autism May Exclude Many, Study Suggests - cynara - 01-22-2012 02:02 AM

skyblue1  Wrote:

cynara Wrote:
I'm gonna go to bed.


sweet dreams


You too Smile


RE: New Definition of Autism May Exclude Many, Study Suggests - skyblue1 - 01-22-2012 02:04 AM

cynara Wrote:

skyblue1  Wrote:

cynara Wrote:
I'm gonna go to bed.


sweet dreams


You too Smile


meh I gotta work tonight

playing music for drinking folks at the club......yeehaw


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-22-2012 02:09 AM

cynara Wrote:
Just because I'm not showing any proof doesn't mean it doesn't exist.

So you're not going to substantiate your accusations about me?

After denying that you were enjoying what was happening and then claiming that you did later?

Now here is where I actually sound snarky for the first time: What a surprise


RE: New Definition of Autism May Exclude Many, Study Suggests - 41 6c 79 - 01-22-2012 02:14 AM

Gedrene Wrote:

41 6c 79 Wrote:

skyblue1  Wrote:

Ken G. Wrote:
The New York Times has released the following chart, regarding the percentages of folks who will not qualify for a diagnosis under these revisions:
http://www.nytimes.com/interactive/2012/01/20/us/redefining-autism.html
GRASP issued two messages, about protesting this:
http://www.aspiesforfreedom.com/showthread.php?tid=23790


unfortunately the chart doesnt give a clue about who is in and who is out.

if a child has a DX will they lose their DX or does this only apply to the newly DX`ed children.

I R confuzed


I would guess probably only newly or revised DX; that's usually the way of things.


Agreed. I don't actually believe that they would force diagnosis if they could though. Although I have been wrong about the psychological community before...


Also consider that DSM is not the only set of definitions AND an assessing clinical psychologist is not required to stick rigidly to it anyway; they don't now and won't when it changes.


RE: New Definition of Autism May Exclude Many, Study Suggests - Kapkao - 01-22-2012 02:16 AM

I'm going to sleep myself... 'night folks.


RE: New Definition of Autism May Exclude Many, Study Suggests - Gedrene - 01-22-2012 02:19 AM

41 6c 79 Wrote:

Gedrene Wrote:

41 6c 79 Wrote:

skyblue1  Wrote:

Ken G. Wrote:
The New York Times has released the following chart, regarding the percentages of folks who will not qualify for a diagnosis under these revisions:
http://www.nytimes.com/interactive/2012/01/20/us/redefining-autism.html
GRASP issued two messages, about protesting this:
http://www.aspiesforfreedom.com/showthread.php?tid=23790


unfortunately the chart doesnt give a clue about who is in and who is out.

if a child has a DX will they lose their DX or does this only apply to the newly DX`ed children.

I R confuzed


I would guess probably only newly or revised DX; that's usually the way of things.


Agreed. I don't actually believe that they would force diagnosis if they could though. Although I have been wrong about the psychological community before...


Also consider that DSM is not the only set of definitions AND an assessing clinical psychologist is not required to stick rigidly to it anyway; they don't now and won't when it changes.

Indeed. I feel all it shall do is dissuade the timid and allow agressive, manipulative and defensive people the ability to still be diagnosed.


RE: New Definition of Autism May Exclude Many, Study Suggests - skyblue1 - 01-22-2012 02:20 AM

Kapkao Wrote:
I'm going to sleep myself... 'night folks.


WUT?


RE: New Definition of Autism May Exclude Many, Study Suggests - Hannah Capps - 01-23-2012 05:17 AM

Hey all, I just emailed dsm5@psych.org and apa@psych.org Made it a short and thought out email about what I struggle with and how I'd be affected if this revision does go through.

Take the time to email them, its a proactive thing to do and is more then just complaining about the problem but doing something about it. Smile


RE: New Definition of Autism May Exclude Many, Study Suggests - Rockie - 01-23-2012 08:29 PM

It does seem a bit strange.

Most of all though I think this shows how important it is that places like aspiesforfreedom exist.  We can discuss it and figure it out. : )  

Autism is a definition itself... the real experiences of people are what is actually happening.  The headline is a bit overly scientific.  It is reminiscent of the redefining of an animal's scientific name.  Although, again, in some senses the concept of autism is like that, it is a scientific name for a part of the experiences of people.


RE: New Definition of Autism May Exclude Many, Study Suggests - Clicky - 01-24-2012 06:06 AM

Does anyone else think there has been a bit of overaction to this article in the autistic community?

-The actual research paper has not been published yet so the exact methods the researcher used to reach his conclusion are unknown.

-The researcher himself said he would have to take a larger sample size before the research could be published (sample size of 1000 cases he what he will be using for this)

-The researcher had suggested before the research was conducted that the label asperger syndrome should not be removed because he sees autism and asperger syndrome as very different (I did see this on nature.com but now it is saying page not found).

I found this blog entry interesting DSM V under attack


RE: New Definition of Autism May Exclude Many, Study Suggests - Hannah Capps - 01-31-2012 03:48 PM

DSM Letter(s) Read thus far


RE: New Definition of Autism May Exclude Many, Study Suggests - Hannah Capps - 02-02-2012 11:27 PM

update to the DSM 5 part 2 video response: http://youtu.be/NzuJ9ls-FUg


RE: New Definition of Autism May Exclude Many, Study Suggests - Nasa Shill - 02-03-2012 01:18 AM

It almost seems like an attempt to neutralize our community, however conscious or unconscious it is.

The one thing I resist is the idea of people having the power to label and hence to control me.  Perhaps the real fear is that Asperger might actually become a community that people might like or identify with.  This notion seems to threaten people for some reason.

As for me, I continue to be an "Aspie" until my dying day.  I don't let some DSM label created by pharmaceuticals and other forces control who I am or what I am.  That is the definition of a free man (and a free woman).  

kevout2 Wrote:
One thing is certain regardless of how the autism spectum is defined.  It will not change the quality of life as people with Asperger Syndrome experience it.  I suppose it would be fine to exclude Asperger Syndrome as a disability.  But neurodiversity is going to have to be embraced by society in general if people with Asperger Syndrome aren't going to experience the hardships associated with Asperger Syndrome (particularly employment issues, being bullied, and being victims of socially saavy deviants).




RE: New Definition of Autism May Exclude Many, Study Suggests - LNB1771 - 02-08-2012 03:45 AM

kevout2 Wrote:

41 6c 79 Wrote:

Greginjersey Wrote:
here is the problem you can claim aspergers is a disability in front of a psychiatrist but it listed under developmental disability or (from birth) now it is a matter of black and white thinking is it something that is barely visable and higher functioning (aspergers) or severely disabled (spina bifida, downs syndrome) something that is visible able to be seen and easily validated the problem with aspergers is that it is a disability that falls within a gray line people with AS appear normal on the outside but function differently this is what pisses me off is how people claim ignorance by saying that aspergers syndrome is an excuse or an attempt to not adapt to change so people would rather say it didn't exist without paying attention to the statistics interacting with others on the spectrum or viewing them from the background seeing where their strengths lie and their weaknesses fall


Disabled = wheelchair user Therefore if you don't use a wheelchair, you're seen as a fraud.
I sometimes use disabled facilities and sometimes I'm challenged by someone who doesn't see a wheelchair because I don't use one. While I don't consider myself disabled, legally I am, and sometimes I do need things that most people don't.
While I don't receive benefits or have a support worker etc, my family do a lot for me and there are a couple of charities that sometimes give me a nudge in the right direction. When I was young, I gained a great deal from support and courses which would not have been available without a DX.
There are many people who would have problems without a DX, I might if I didn't have my own little network of people.
Hidden disabilities are often misunderstood.

Personally I dislike the current ambiguity of the distinctions between autistic labels.
For example: I'm going for an assessment because I've expired Big Grin If my childhood language delays etc are taken into account, I'll probably be labelled HFA. If not, I'll probably be labelled Aspie. If my faking skills are too good I'll be shown the door. It also depends who does the assessment.
Also, it is after all a spectrum and people don't fit neatly into boxes.

In the UK, the government are scrapping some disability benefits from those who won't complain too much (or will be ignored) in order to save money.
Perhaps the US is taking a slightly different route by reducing the number of legally disabled people there are.


A point to make (although it doesn't have to do with this thread; just a point made in the post):

Consider the prevalance of able bodied neurotypical people who nonchalantly use handicapped parking spots to park their cars because its convenient or they're in a hurry.  Even worse is such people who will have a handicapped placard or sticker on the car windshield yet such folks aren't disabled at all.  It's OK as long as you don't get caught and have to pay a fine.  Yet the typical Aspie will park far away if that's the only place to find a parking spot.  Then he'll be criticized by others (such as an NT passenger) for parking too far away or not "doing what anybody else would do".


I'm just wondering, under what circumstances would an Aspie require the use of a handicapped parking spot if he/she isn't physically handicapped?  Am I missing something?  (quite possible I am)
Thanks,
Lydia


RE: New Definition of Autism May Exclude Many, Study Suggests - LNB1771 - 02-08-2012 03:49 AM

Gedrene Wrote:
The problem is that it's a complex picture. The vagueness of the wording, and of psychology in general, has meant that children have been diagnosed who had no reason to. At the same time those who were the actual targets of the diagnosis were accepted at the same comparable rate.

This DSMV seems set to exclude those who are moderate, but deserving, whilst not really shutting the floodgates for those who by some want, get diagnosed. I have met them on wrongplanet, individuals who advised me to 'fake' autistic traits to get diagnosed. All Americans, sadly. Usually I am infuriated, but that sort of caprice now moves me to pity of those who have to live alongside these social predators.


I find the idea of being advised to "fake" autistic traits quite curious.  I always had operated under the assumption that if someone identified as having an ASD that he or she had a good reason to and didn't need to fake anything.  Perhaps this advice is in reference to the phenomena of people be "too high functioning" to warrant an ASD label, but who still feel as though they fall under the ASD umbrella.  Or is there really a group of people who wish to belong to the Autie/Aspie community for some other reason?  
Lydia


RE: New Definition of Autism May Exclude Many, Study Suggests - kevout2 - 02-08-2012 05:09 AM

LNB1771 Wrote:

kevout2 Wrote:

41 6c 79 Wrote:

Greginjersey Wrote:
here is the problem you can claim aspergers is a disability in front of a psychiatrist but it listed under developmental disability or (from birth) now it is a matter of black and white thinking is it something that is barely visable and higher functioning (aspergers) or severely disabled (spina bifida, downs syndrome) something that is visible able to be seen and easily validated the problem with aspergers is that it is a disability that falls within a gray line people with AS appear normal on the outside but function differently this is what pisses me off is how people claim ignorance by saying that aspergers syndrome is an excuse or an attempt to not adapt to change so people would rather say it didn't exist without paying attention to the statistics interacting with others on the spectrum or viewing them from the background seeing where their strengths lie and their weaknesses fall


Disabled = wheelchair user Therefore if you don't use a wheelchair, you're seen as a fraud.
I sometimes use disabled facilities and sometimes I'm challenged by someone who doesn't see a wheelchair because I don't use one. While I don't consider myself disabled, legally I am, and sometimes I do need things that most people don't.
While I don't receive benefits or have a support worker etc, my family do a lot for me and there are a couple of charities that sometimes give me a nudge in the right direction. When I was young, I gained a great deal from support and courses which would not have been available without a DX.
There are many people who would have problems without a DX, I might if I didn't have my own little network of people.
Hidden disabilities are often misunderstood.

Personally I dislike the current ambiguity of the distinctions between autistic labels.
For example: I'm going for an assessment because I've expired Big Grin If my childhood language delays etc are taken into account, I'll probably be labelled HFA. If not, I'll probably be labelled Aspie. If my faking skills are too good I'll be shown the door. It also depends who does the assessment.
Also, it is after all a spectrum and people don't fit neatly into boxes.

In the UK, the government are scrapping some disability benefits from those who won't complain too much (or will be ignored) in order to save money.
Perhaps the US is taking a slightly different route by reducing the number of legally disabled people there are.


A point to make (although it doesn't have to do with this thread; just a point made in the post):

Consider the prevalance of able bodied neurotypical people who nonchalantly use handicapped parking spots to park their cars because its convenient or they're in a hurry.  Even worse is such people who will have a handicapped placard or sticker on the car windshield yet such folks aren't disabled at all.  It's OK as long as you don't get caught and have to pay a fine.  Yet the typical Aspie will park far away if that's the only place to find a parking spot.  Then he'll be criticized by others (such as an NT passenger) for parking too far away or not "doing what anybody else would do".


I'm just wondering, under what circumstances would an Aspie require the use of a handicapped parking spot if he/she isn't physically handicapped?  Am I missing something?  (quite possible I am)
Thanks,
Lydia


My point is that NTs break rules all the time and get away with it (most of the time).  Contrast this to Aspie tendencies to try to stay in compliance with rules, laws, etc. in order to avoid trouble.  As a driver, I do not deliberately speed or try to run stop signs and red lights.  But alot of other drivers do it and act as if its OK.  (But it's a different story if somebody gets injured or one has to pay a huge fine and go to court.)  I've been criticized for the way I drive all because I drive prudently.  I seem to get in the way of other drivers or can't get to Points A, B and C as fast as one who habitually ignores the rules of the road.  But hell, I don't need legal problems or have to pay any more that what I already pay for auto insurance. I have enough problems in my life, I don't want any unnecessary problems.

I'll try to hit the nail on the head.  About driving laws, rules and regulations, parking is another issue.  I don't need the heartache of parking tickets.  So I'll park far away if I have to.  "Normal" people would just as well park illegally (could be a spot reserved for the handicapped) and take for granted that the probability of getting caught and suffereing the consequences is nil.  (And then if caught, try to find a way out of having 5to pay the consequences.)

To word it another way, an Aspie who isn't physically handicapped is not as likely to park in a handicapped spot because he's in a hurry and takes for granted that if he cheats (in this case, the applicable motorist law), he probably won't get caught.  A typical able-bodied NT in a hurry would ignore the law about parking in a handicapped spot.  Remember that Aspies aren't as inclined to be dishonest; cheat; cut corners, etc.; the way many NT people are.


RE: New Definition of Autism May Exclude Many, Study Suggests - League Girl - 02-08-2012 08:33 AM

Some people who park in the handicapped parking spot are actually disabled. Some of them just don't look like it. How can you tell who is disabled and who isn't when they park in that spot. As far as I know, sometimes people go and pick up their elderly folks and they park in the handicap spot when they get them so they wouldn't have to walk as far to get to the car because they do qualify for that spot so that is why the caregiver has the permit for those spots. But this is most likely to happen at hospitals and anywhere else where an elderly be where they need to be picked up.


RE: New Definition of Autism May Exclude Many, Study Suggests - Lang - 02-08-2012 10:29 AM

League Girl Wrote:
Some people who park in the handicapped parking spot are actually disabled. Some of them just don't look like it. How can you tell who is disabled and who isn't when they park in that spot. As far as I know, sometimes people go and pick up their elderly folks and they park in the handicap spot when they get them so they wouldn't have to walk as far to get to the car because they do qualify for that spot so that is why the caregiver has the permit for those spots. But this is most likely to happen at hospitals and anywhere else where an elderly be where they need to be picked up.


As far as I'm concerned, if you have the permit and it's posted, then you look like you need the spot.  

Some people who need it aren't able to get it.  The system is always imperfect.

There are also those who simply have no respect for this law.  I've seen people park in the no-parking zones between handicapped spaces: the areas where no one is ever allowed to park, because the space is reserved for people with lifts on their cars.  Then, no matter how it is rationalised by the person doing so, people who need the spaces are unable to benefit from them.  This should absolutely be prosecuted.  

There are reports of people parking in handicapped parking who do not need it but simply don't want to be left in the rain.  They then act self-righteously about being prosecuted for breaking a law designed to protect people who have it a lot harder than these people.  Somehow, the fact that someone else's misfortune is not one's fault is an automatic moral high ground for some people.  This impulse is even formally codified by some religions in the idea that disability is some sort of punishment for wickedness.  Actions in response to this should also be prosecuted.  You thing the fact that it rains sometimes is hard?


RE: New Definition of Autism May Exclude Many, Study Suggests - M - 02-08-2012 03:20 PM

"At least a million children and adults have a diagnosis of autism or a related disorder, like Asperger syndrome or “pervasive developmental disorder, not otherwise specified” — or P.D.D.-N.O.S. People with Asperger’s or P.D.D.-N.O.S. endure some of the same social struggles as those with autism but do not meet the definition for the full-blown version. The proposed change would consolidate all three diagnoses under one category, autism spectrum disorder, eliminating Asperger syndrome and P.D.D.-N.O.S. from the manual."

What three diagnoses?  I read Asperger syndrome and PDD-NOS.  What is the third?


RE: New Definition of Autism May Exclude Many, Study Suggests - skyblue1 - 02-09-2012 01:45 AM

from what I understand, aspergers will be folded into the Autism spectrum officially.

To me that means we dont have to be termed HFA with Aspergers, but just HFA


RE: New Definition of Autism May Exclude Many, Study Suggests - M - 02-09-2012 04:17 PM

to be labelled as HFA when I have Asperger's is like being labelled highly functioning schizophrenic.  The stigma would be too great.  People would be fighting diagnosis because once labelled the record never goes away.  Really there should be less stigma about all mental illness and neurodiversity.


RE: New Definition of Autism May Exclude Many, Study Suggests - Hannah Capps - 02-09-2012 09:21 PM

M Wrote:
to be labelled as HFA when I have Asperger's is like being labelled highly functioning schizophrenic.  The stigma would be too great.  People would be fighting diagnosis because once labelled the record never goes away.  Really there should be less stigma about all mental illness and neurodiversity.


My Dx might change to Borderline Personality Disorder...and the aid that I get for talk therapy, medication, and house hold expenses on my end is in danger of being shut off...

I did get a response from the APA by the way, but it was very generic and dear xyz...

http://blessedaretheshallow.tumblr.com/post/17297284549/seems-generic-apa-response

Yea...they don't seem to get that I could very well not have the things that have constructively helped me cope thus far...Nor do they care...or both...it is a life or death thing they hold in there grasp...


RE: New Definition of Autism May Exclude Many, Study Suggests - Walden - 02-09-2012 09:58 PM

thanks for the links...

this is interesting...
from the Simons group mentioned in the response.
"Range of autism:

First, we propose the term autism spectrum disorder because there is widespread agreement that autism is a spectrum that varies among different individuals and even within individuals during their lifetime. It is particularly variable among individuals with different intellectual levels or language abilities.

There have been many attempts to define subgroups within this heterogeneous spectrum. But a key question is whether there are meaningful differences between Asperger syndrome and high-functioning autism, loosely used to describe individuals with good current language and IQ in the average range despite earlier delays."


RE: New Definition of Autism May Exclude Many, Study Suggests - M - 02-10-2012 04:31 PM

It could be very well that having a catch-all diagnosis of autistic spectrum would be likely that any aspie in distress (or otherwise) would be forcibly committed to hospital and medicated. they would be considered to be having a mental illness.  I would not agree with this.  

People with personality disorders actually need some help but they are dismissed as being silly or blamed for their disorder.


RE: New Definition of Autism May Exclude Many, Study Suggests - windy - 02-10-2012 04:47 PM

M Wrote:
It could be very well that having a catch-all diagnosis of autistic spectrum would be likely that any aspie in distress (or otherwise) would be forcibly committed to hospital and medicated. they would be considered to be having a mental illness.  I would not agree with this.  

People with personality disorders actually need some help but they are dismissed as being silly or blamed for their disorder.


The whole concept of the DSM being a psychiatric manual has always confused me to no end.

I just cannot figure out how a set of genetics that create a varying set of personality traits ends up under psychiatry and not neurology...

meanwhile...social psychological harm occurs from being relationally victimized which then can exhibit as a mental illness....


RE: New Definition of Autism May Exclude Many, Study Suggests - Lang - 02-11-2012 06:31 AM

windy Wrote:

M Wrote:
It could be very well that having a catch-all diagnosis of autistic spectrum would be likely that any aspie in distress (or otherwise) would be forcibly committed to hospital and medicated. they would be considered to be having a mental illness.  I would not agree with this.  

People with personality disorders actually need some help but they are dismissed as being silly or blamed for their disorder.


The whole concept of the DSM being a psychiatric manual has always confused me to no end.

I just cannot figure out how a set of genetics that create a varying set of personality traits ends up under psychiatry and not neurology...

meanwhile...social psychological harm occurs from being relationally victimized which then can exhibit as a mental illness....


Eugenicists have been trying to prove that mental illness, criminality and generalized "moral characteristics", resistance to disease, physical strength and so on are (1) all genetic (2) assort by race and (3) assort by class since the nineteenth century.

If at least one mental illness can be linked to genetics, then (1) is in the bag.  If they can get people to ignore the diversity of all human "races" and ethnicities, at least outside their own, then (2) is "very suggestive."  (1) and (2) each imply (3) and so social justice can safely be ignored by the new ruling elite.

Edit: social darwinism is more of what depends on (3), but if the masses can be indoctrinated into its epistemology, along with (1) and (2), then eugenics has all it needs to start building camps.


RE: New Definition of Autism May Exclude Many, Study Suggests - M - 02-12-2012 04:42 PM

Very well the camps might not be built of bricks and barbed wire - they could be constructed of mind dulling medications, periodic incarcerations, unnecessary unemployment, poor housing or homelessness.


RE: New Definition of Autism May Exclude Many, Study Suggests - LNB1771 - 02-15-2012 03:29 AM

kevout2 Wrote:

LNB1771 Wrote:

kevout2 Wrote:

41 6c 79 Wrote:

Greginjersey Wrote:
here is the problem you can claim aspergers is a disability in front of a psychiatrist but it listed under developmental disability or (from birth) now it is a matter of black and white thinking is it something that is barely visable and higher functioning (aspergers) or severely disabled (spina bifida, downs syndrome) something that is visible able to be seen and easily validated the problem with aspergers is that it is a disability that falls within a gray line people with AS appear normal on the outside but function differently this is what pisses me off is how people claim ignorance by saying that aspergers syndrome is an excuse or an attempt to not adapt to change so people would rather say it didn't exist without paying attention to the statistics interacting with others on the spectrum or viewing them from the background seeing where their strengths lie and their weaknesses fall


Disabled = wheelchair user Therefore if you don't use a wheelchair, you're seen as a fraud.
I sometimes use disabled facilities and sometimes I'm challenged by someone who doesn't see a wheelchair because I don't use one. While I don't consider myself disabled, legally I am, and sometimes I do need things that most people don't.
While I don't receive benefits or have a support worker etc, my family do a lot for me and there are a couple of charities that sometimes give me a nudge in the right direction. When I was young, I gained a great deal from support and courses which would not have been available without a DX.
There are many people who would have problems without a DX, I might if I didn't have my own little network of people.
Hidden disabilities are often misunderstood.

Personally I dislike the current ambiguity of the distinctions between autistic labels.
For example: I'm going for an assessment because I've expired Big Grin If my childhood language delays etc are taken into account, I'll probably be labelled HFA. If not, I'll probably be labelled Aspie. If my faking skills are too good I'll be shown the door. It also depends who does the assessment.
Also, it is after all a spectrum and people don't fit neatly into boxes.

In the UK, the government are scrapping some disability benefits from those who won't complain too much (or will be ignored) in order to save money.
Perhaps the US is taking a slightly different route by reducing the number of legally disabled people there are.


A point to make (although it doesn't have to do with this thread; just a point made in the post):

Consider the prevalance of able bodied neurotypical people who nonchalantly use handicapped parking spots to park their cars because its convenient or they're in a hurry.  Even worse is such people who will have a handicapped placard or sticker on the car windshield yet such folks aren't disabled at all.  It's OK as long as you don't get caught and have to pay a fine.  Yet the typical Aspie will park far away if that's the only place to find a parking spot.  Then he'll be criticized by others (such as an NT passenger) for parking too far away or not "doing what anybody else would do".


I'm just wondering, under what circumstances would an Aspie require the use of a handicapped parking spot if he/she isn't physically handicapped?  Am I missing something?  (quite possible I am)
Thanks,
Lydia


My point is that NTs break rules all the time and get away with it (most of the time).  Contrast this to Aspie tendencies to try to stay in compliance with rules, laws, etc. in order to avoid trouble.  As a driver, I do not deliberately speed or try to run stop signs and red lights.  But alot of other drivers do it and act as if its OK.  (But it's a different story if somebody gets injured or one has to pay a huge fine and go to court.)  I've been criticized for the way I drive all because I drive prudently.  I seem to get in the way of other drivers or can't get to Points A, B and C as fast as one who habitually ignores the rules of the road.  But hell, I don't need legal problems or have to pay any more that what I already pay for auto insurance. I have enough problems in my life, I don't want any unnecessary problems.

I'll try to hit the nail on the head.  About driving laws, rules and regulations, parking is another issue.  I don't need the heartache of parking tickets.  So I'll park far away if I have to.  "Normal" people would just as well park illegally (could be a spot reserved for the handicapped) and take for granted that the probability of getting caught and suffereing the consequences is nil.  (And then if caught, try to find a way out of having 5to pay the consequences.)

To word it another way, an Aspie who isn't physically handicapped is not as likely to park in a handicapped spot because he's in a hurry and takes for granted that if he cheats (in this case, the applicable motorist law), he probably won't get caught.  A typical able-bodied NT in a hurry would ignore the law about parking in a handicapped spot.  Remember that Aspies aren't as inclined to be dishonest; cheat; cut corners, etc.; the way many NT people are.


I think I understand.  NTs are more likely to cheat/abuse the system than are Aspies.  I know that like you, I am more likely to just park further away than to try and fight someone for a closer spot.  Otherwise by the time all the aggravation of fighting subsides, I could have parked further away and been in the store already instead of still out looking for the "best" spot.  I think that my driving has improved with age as I've learned that I'll get to where I need to go just as quickly by following the speed limit than by speeding taking into account lights and traffic.  On the open road, however, there might be a time advantage to speeding, but then only if done reasonably (IMHO).
Thanks for answering my question,
Lydia