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Article about how autism awareness is still failing. - Printable Version +- Aspies For Freedom (http://www.aspiesforfreedom.com) +-- Forum: General (/forumdisplay.php?fid=48) +--- Forum: News and media (/forumdisplay.php?fid=2) +---- Forum: AFF News (/forumdisplay.php?fid=62) +---- Thread: Article about how autism awareness is still failing. (/showthread.php?tid=21701) |
Article about how autism awareness is still failing. - Alison - 02-19-2011 01:50 PM The link to this, and the comments that follow are here: http://www.care2.com/causes/health-policy/blog/another-mother-kills-her-autistic-child-is-autism-awareness-really-enough/#comment-1691282 I've commented on this site, gave a serve to Autism Speaks and pimped our own AFF site to those who want a truer representation of what Autism is. And here's the actual article, sans comments: The news about autism this summer has been difficult. A Bronx mother killed her 12-year-old autistic son Wednesday night before taking her own life, the July 29th New York Daily News reports. Last week, a mother in Dallas killed her two young autistic children. Another New York city mother and a mother in Wales killed their autistic sons earlier this year. A Colorado mother killed her baby because she thought he might be autistic. A Chinese mother who admitted to killing her autistic daughter in Canada walked free from prison. And many in the autism community will remember the case of Dr. Karen McCarron, an Indiana woman who killed her young autistic daughter, Katherine, and was sentenced to 36 years in prison in 2008. Hard Questions Are there really more parents---mothers---killing their autistic children? Is it rather that, due to the explosion of interest in autism in the past decade, the media is reporting more about such crimes? I don't know. I'm not sure that we can know. The Rise of Autism Awareness in the Past Decade All the interest in autism in the past couple of years has been fueled by the efforts to raise awareness about autism, by organizations like the Autism Society of America and Autism Speaks. There have been many, many more books, blogs, movies, charity fundraising events, more everything, all with the general belief that, by increasing the amount of information available to the public, people will understand more about autism and things will be better. Things will be better from better services, more understanding in the community, school programs. But is all this autism awareness really helping autistic individuals and their families and caretakers? Or is it just promoting a rather sensationalistic and tragic view of what life with autism is? For myself, I'm sticking with the example of the late Clara Claiborne Park, for whom the 'last word' was 'still love'----love and, for my husband Jim and me, a hectic, difficult, and richly meaningful, and good, life with our son Charlie. RE: Article about how autism awareness is still failing. - MOSBORN - 02-19-2011 03:29 PM If only "Autism Awareness" were the same as "Learning about Autism." "Autism Awareness" seems to be increasing the number of times the word "autism" appears on bumper stickers, but doesn't seem to be increasing the number of people who have an idea of what it is all about. Sometimes it seems to be doing the opposite; that is, it seems like there are more and more people who believe they are "aware" of autism, but in fact have misinformation and distorted views of what autism is. I see a lot of parents of autistic kids joining a different site that is supposed to be supportive, but most of them talk about being "devastated." What if "Autism Awareness" campaigns focused more on messages like "Hey! Some of us see things a lot differently than you do, OK?!" ...instead of "Oh, those poor, wretched freaks..." ? RE: Article about how autism awareness is still failing. - 190 - 02-19-2011 07:50 PM The AS rights movement is useful in the sense of promoting tolerance of autistics / AS people, but it isn't perfect. People will compare the message that they get from the autistic rights movement to what they see on the ground. You can talk about how smart some autistics like Temple Grandin are, but if the autistics that people see are like just plain weird and keep on offending people (inadvertently), then people aren't gonna believe the autistic rights movement. There are some other effects: Firstly, it encourages a victim mentality in many AS people - some of them seem to think they are the only victims and that others don't have problems. Secondly, it encourages a crutch mentality - i.e. oh we've got AS, and so you change and tolerate us on our terms and not we change to adapt to our environment. Hardly anywhere do I see anyone encouraging or giving guidance to Aspies to adapt to their environment, which is why I am here. Thirdly (and the one I seem to hate most) is that the AS community seems to equate giftedness with AS. How not true indeed. After all, it is difficult and time consuming for people to understand with and connect with autism. Don't expect people to bother to find out about by themselves. RE: Article about how autism awareness is still failing. - d_olson27 - 02-19-2011 07:56 PM 190, you could say the same things about any minority rights movement. At first, it never seems like the majority is going to put in the time and energy to understand and connect with the minority in question. What usually ends up happening is the minority does most of the leg-work, and the majority ends up gradually seeing them as equal and valid human beings. RE: Article about how autism awareness is still failing. - violet_yoshi - 02-20-2011 12:39 AM I added my support to the cause. RE: Article about how autism awareness is still failing. - Alison - 02-20-2011 01:58 AM 190 Wrote: Thirdly (and the one I seem to hate most) is that the AS community seems to equate giftedness with AS. How not true indeed.
RE: Article about how autism awareness is still failing. - AspieMomma - 02-20-2011 02:23 AM d_olson27 Wrote: 190, you could say the same things about any minority rights movement. At first, it never seems like the majority is going to put in the time and energy to understand and connect with the minority in question. What usually ends up happening is the minority does most of the leg-work, and the majority ends up gradually seeing them as equal and valid human beings.
RE: Article about how autism awareness is still failing. - Marcia - 02-20-2011 02:50 AM AspieMomma Wrote: d_olson27 Wrote: 190, you could say the same things about any minority rights movement. At first, it never seems like the majority is going to put in the time and energy to understand and connect with the minority in question. What usually ends up happening is the minority does most of the leg-work, and the majority ends up gradually seeing them as equal and valid human beings.
RE: Article about how autism awareness is still failing. - Genesis - 02-20-2011 02:51 AM I think she is trying to say from back then interpretation. RE: Article about how autism awareness is still failing. - Marcia - 02-20-2011 02:55 AM Genesis Wrote: I think she is trying to say from back then interpretation.
RE: Article about how autism awareness is still failing. - Genesis - 02-20-2011 02:57 AM Wow.... was this in and around Glasgow? RE: Article about how autism awareness is still failing. - Marcia - 02-20-2011 03:03 AM Genesis Wrote: Wow.... was this in and around Glasgow?
RE: Article about how autism awareness is still failing. - Genesis - 02-20-2011 03:05 AM wow RE: Article about how autism awareness is still failing. - Marcia - 02-20-2011 03:13 AM I don't think those who came up with this policy set out to be cruel or harsh. They were well-intentioned, but misguided, and things did change. What is the saying? "The past is a different country" - even the recent past. RE: Article about how autism awareness is still failing. - Genesis - 02-20-2011 03:15 AM Hopefully there is good intentions for this Wired article to give people a clear light: http://www.wired.com/medtech/health/magazine/16-03/ff_autism?currentPage=all RE: Article about how autism awareness is still failing. - 142857 - 02-20-2011 04:59 AM 190 Wrote: Thirdly (and the one I seem to hate most) is that the AS community seems to equate giftedness with AS. How not true indeed.
RE: Article about how autism awareness is still failing. - d_olson27 - 02-20-2011 05:06 AM Genesis Wrote: Wow.... was this in and around Glasgow?
RE: Article about how autism awareness is still failing. - Genesis - 02-20-2011 05:10 AM d_olson27 Wrote: Genesis Wrote: Wow.... was this in and around Glasgow?
RE: Article about how autism awareness is still failing. - Marcia - 02-20-2011 05:56 AM 142857 Wrote: 190 Wrote: Thirdly (and the one I seem to hate most) is that the AS community seems to equate giftedness with AS. How not true indeed.
RE: Article about how autism awareness is still failing. - 190 - 02-20-2011 07:47 PM d_olson27 Wrote: d_olson27 Wrote: 190, you could say the same things about any minority rights movement. At first, it never seems like the majority is going to put in the time and energy to understand and connect with the minority in question. What usually ends up happening is the minority does most of the leg-work, and the majority ends up gradually seeing them as equal and valid human beings.
Alison Wrote: 190 Wrote: Thirdly (and the one I seem to hate most) is that the AS community seems to equate giftedness with AS. How not true indeed.
RE: Article about how autism awareness is still failing. - d_olson27 - 02-21-2011 08:55 AM 190 Wrote: d_olson27 Wrote: d_olson27 Wrote: 190, you could say the same things about any minority rights movement. At first, it never seems like the majority is going to put in the time and energy to understand and connect with the minority in question. What usually ends up happening is the minority does most of the leg-work, and the majority ends up gradually seeing them as equal and valid human beings.
RE: Article about how autism awareness is still failing. - Genesis - 02-21-2011 08:59 AM What about the Iron Jaw Maidens? The Women's rights activists in 1920s in America? RE: Article about how autism awareness is still failing. - Tank123 - 04-11-2011 05:17 AM So this is what is has led to...this is sick...this is pathetic. Parents who are seperating themselves and even killing their own children. This is what this campaign has led to. I still just remain so shocked as how people could, are capable of, and are permitted to attempt to deny a human being's right to exist. I am so disgusted by this that I am at a loss of words for this topic. |