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Activism against Autism Speaks? - Printable Version +- Aspies For Freedom (http://www.aspiesforfreedom.com) +-- Forum: Autistic Advocacy (/forumdisplay.php?fid=51) +--- Forum: Activism discussion (/forumdisplay.php?fid=66) +--- Thread: Activism against Autism Speaks? (/showthread.php?tid=20453) |
Activism against Autism Speaks? - Bloke - 09-23-2010 03:12 PM OK as a follow on from this thought.... Bloke Wrote: OK now here is how I see it
We could do a "silent" protest and all denounce WP and Autism Speaks. We could withdraw support and there is actual merit in that but yo me it is as effectual as the actions of the "Judean's People's Front" (watch Life of Brian"). Active and constructive in your face internet foray is slightly better imho. Work against them actively not passively. Expose their wrongs. Check. Brainstorm for weaknesses. Brainstorm how to expose those weaknesses. Actively go up hard against them in force and numbers cleverly. Counter their manipulative efforts and postive spin PR. Whittle away at their power base. Consider it thus. Let's equate Autism Speaks to the Roman Empire. In their time they spread far and wide and their numbers and influence and fighting tactics very hard to repel by conventional methods. They did spread themselves very thin though and in doing so their weakness exposed eventually. To much territory to manage and too many border to manage. Fallback behind these guys and expose and win back some territory. The clearest area is the origins of a anti-mercury immunisation rabble-rousers and that is the membership they built their existence on. They distance themselves from their earlier forays and thus turn their backs on the parents they sold their lies on. I think here we find an usual potential force against them. It is a thought. I think a foray into this territory IF we have something to offer these parents and IF we can show them the truth of what we say. Autism Speaks no matter how successful we are here will survive and may not feel it in a huge way BUT it is one (of hopefully many) angles of attack. Erosion of the things that bind them and when they finally split open enough to allow a decent fissure we insinuate strategic thought out efforts here. Go for the 1%'er plays until we have enough for the bigger plays.
RE: Activism against Autism Speaks? - dtx - 09-23-2010 04:45 PM Remember that we're disorganised (pathologically, to the extent that I feel odd saying 'we') and unfunded. Any actions would need to be impactful and available to individuals. http://en.wikipedia.org/wiki/Strategy_and_tactics_of_guerrilla_warfare RE: Activism against Autism Speaks? - Fnord - 09-23-2010 09:08 PM dtx Wrote: Remember that we're disorganised (pathologically, to the extent that I feel odd saying 'we') and unfunded. Any actions would need to be impactful and available to individuals.
http://en.wikipedia.org/wiki/Strategy_and_tactics_of_guerrilla_warfare
Are you advocating violent action against Autism Speaks?
RE: Activism against Autism Speaks? - skyblue1 - 09-23-2010 09:37 PM dtx Wrote: Remember that we're disorganised (pathologically, to the extent that I feel odd saying 'we') and unfunded. Any actions would need to be impactful and available to individuals.
http://en.wikipedia.org/wiki/Strategy_and_tactics_of_guerrilla_warfare
RE: Activism against Autism Speaks? - dtx - 09-24-2010 01:21 AM Sorry. Literalism, right. I play looser with words, my fault. I mean there is a wealth of experience with methods for countering a far larger opponent. Basically our exact situation. They aren't actually killing anyone, so we don't have to either. Proportionality is obviously important. The point is the methods (and their analogues) work. And that wikipedia article is pretty good. RE: Activism against Autism Speaks? - wendyl - 09-24-2010 03:44 PM What if everyone here, did something publicly, the same thing, on the same day as everyone else? You know, took an hour, out of their day, went to the mall, or in front of the busiest grocery store, or wherever they thought it would be noticed. With a sign, that all said the same thing on it? It wouldn't take money for that, but it would be significant that all these people, in all these different countries, cities, etc., did the same thing at the same time. Some sort of a sign with a statement about Autism Speaks, something everyone agrees on. I am terribly shy, but I would do it. RE: Activism against Autism Speaks? - Bloke - 09-24-2010 05:30 PM I am shy too. ![]() I say that this is actually not a bad idea at all Wendyl. What I was kinda hoping is to termite their previous efforts. Lots of little termites into their seemingly strong foundations and hopefully by the time they "spray us out" Their foundations vulnerable RE: Activism against Autism Speaks? - Fnord - 09-24-2010 06:50 PM wendyl Wrote: What if everyone here...
What if, instead of posting an idea for "everyone", we each actually did something ourselves as individuals, and reported it here? RE: Activism against Autism Speaks? - Bloke - 09-24-2010 07:51 PM Well done and yes I have done a talk to a conference of around a hundred people as a key note speaker (Scary as hell) on Asperger's. I have contributed to a research paper as part of a Researchers Master's thesis in respect to Autism. I have written countless letters in response to articles good and bad to applaud or denigrate them. I have given informal talks on invitation to Employment Agencies who specialise in people with disabilities. Is your comment trying to say that doing one ought to exclude the other or are you trying to say that the fact that I am suggesting ideas and trying to form some decent direction for group activity means that I have never done anything other than this? RE: Activism against Autism Speaks? - Fnord - 09-24-2010 10:37 PM Bloke Wrote: Well done and yes I have done a talk to a conference of around a hundred people as a key note speaker (Scary as hell) on Asperger's. I have contributed to a research paper as part of a Researchers Master's thesis in respect to Autism. I have written countless letters in response to articles good and bad to applaud or denigrate them. I have given informal talks on invitation to Employment Agencies who specialise in people with disabilities.
Now THAT is what I'm talking about! Bloke Wrote: Is your comment trying to say that doing one ought to exclude the other or are you trying to say that the fact that I am suggesting ideas and trying to form some decent direction for group activity means that I have never done anything other than this?
Neither. What I am saying is this: All this talk about what "We ought to do..." is ineffective. We are Aspies, not lemmings -- we're not group-oriented. Teamwork is not our modus operandus -- we don't work well that way. Thus saying "We should..." or "We ought to..." won't work well with Aspies, because the "We" implies coordinated group efforts. Our cause is better served if "We" act individually, and report our successes and failures. Sooner or later, someone will notice that our Aspie individualism is actually working in our favor. RE: Activism against Autism Speaks? - skyblue1 - 09-24-2010 11:01 PM Fnord Wrote: Bloke Wrote: Well done and yes I have done a talk to a conference of around a hundred people as a key note speaker (Scary as hell) on Asperger's. I have contributed to a research paper as part of a Researchers Master's thesis in respect to Autism. I have written countless letters in response to articles good and bad to applaud or denigrate them. I have given informal talks on invitation to Employment Agencies who specialise in people with disabilities.
Now THAT is what I'm talking about! Bloke Wrote: Is your comment trying to say that doing one ought to exclude the other or are you trying to say that the fact that I am suggesting ideas and trying to form some decent direction for group activity means that I have never done anything other than this?
Neither. What I am saying is this: All this talk about what "We ought to do..." is ineffective. We are Aspies, not lemmings -- we're not group-oriented. Teamwork is not our modus operandus -- we don't work well that way. Thus saying "We should..." or "We ought to..." won't work well with Aspies, because the "We" implies coordinated group efforts. Our cause is better served if "We" act individually, and report our successes and failures. Sooner or later, someone will notice that our Aspie individualism is actually working in our favor.
RE: Activism against Autism Speaks? - q w e r t y - 09-24-2010 11:40 PM Not liking working in groups is a personal value of yours and not an innate part of being autistic. Some autistic people do like working in groups. It's not unusual for cult like groups to take advantage of an autistic person this way. RE: Activism against Autism Speaks? - wendyl - 09-25-2010 12:08 AM Bloke Wrote: I am shy too.
![]() I say that this is actually not a bad idea at all Wendyl. What I was kinda hoping is to termite their previous efforts. Lots of little termites into their seemingly strong foundations and hopefully by the time they "spray us out" Their foundations vulnerable
RE: Activism against Autism Speaks? - wendyl - 09-25-2010 12:24 AM Fnord Wrote: Bloke Wrote: Well done and yes I have done a talk to a conference of around a hundred people as a key note speaker (Scary as hell) on Asperger's. I have contributed to a research paper as part of a Researchers Master's thesis in respect to Autism. I have written countless letters in response to articles good and bad to applaud or denigrate them. I have given informal talks on invitation to Employment Agencies who specialise in people with disabilities.
Now THAT is what I'm talking about! Bloke Wrote: Is your comment trying to say that doing one ought to exclude the other or are you trying to say that the fact that I am suggesting ideas and trying to form some decent direction for group activity means that I have never done anything other than this?
Neither. What I am saying is this: All this talk about what "We ought to do..." is ineffective. We are Aspies, not lemmings -- we're not group-oriented. Teamwork is not our modus operandus -- we don't work well that way. Thus saying "We should..." or "We ought to..." won't work well with Aspies, because the "We" implies coordinated group efforts. Our cause is better served if "We" act individually, and report our successes and failures. Sooner or later, someone will notice that our Aspie individualism is actually working in our favor.
RE: Activism against Autism Speaks? - Fnord - 09-25-2010 12:31 AM skyblue1 Wrote: ^^ all that comes with age and life experience.
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Which is why I hope that by relating individual experiences, younger Aspies won't have to make the same mistakes I made at their age; mistakes like trusting others uncritically, mistaking attention for interest and kindness for love, et cetera. q w e r t y Wrote: Not liking working in groups is a personal value of yours and not an innate part of being autistic. Some autistic people do like working in groups. It's not unusual for cult like groups to take advantage of an autistic person this way.
Not a personal value, but a general trait of Aspies. While some Auties people seem to like working in groups, it also seems that most Aspies are stressed-out by group settings. It is not unusual for any self-serving group (such as Autism Speaks or the Gay Rights Movement) to seek to exploit those who can not self-advocate. This is why I'm quick to ask questions of any person or group who wants to recruit Aspies and Auties, especially when there's money involved.
RE: Activism against Autism Speaks? - Fnord - 09-25-2010 12:52 AM wendyl Wrote: Just because you are not into being part of a group, doesn't meant that a lot of other people on here aren't.
Just because you may like being part of a group, does not mean that I have to. wendyl Wrote: I think this whole website is a "group".
This website is an inanimate website where people can correspond and share ideas and experiences. It is no more a 'group' that Facebook or World of Warcraft. wendyl Wrote: My suggestion was in response to a specific post about activism against Autism Speaks. I too, am very open with people about Autism and Asperger's, and I think I have made a small difference in how they think about it. HOWEVER, that is not going to make any headway against Autism Speaks, which what this post is about.
Open, co-ordinated activism may work, but it is not something that Aspies seem 'wired' for. Many of the traits that define us as Aspies may get in the way of a socially-organized group effort. wendyl Wrote: We are not Lemmings, we are individual human beings that are more than capable of making our own decisions. Why would you make a statement like that?
I said, "We are Aspies, not lemmings -- we're not group-oriented" because that seems to be one of the traits that defines us as Aspies. By the way, my statement is in agreement with yours, so you should have no objections about it. wendyl Wrote: How can we ever make a real difference against what is a common cause for most of here, if we don't work together?
By working separately and pooling our experiences. This whole "Groupthink" concept will not work with people who are unable to perceive another person's point-of-view and accept it as valid -- Aspie traits. wendyl Wrote: I think you should keep doing what you are doing, and if it's working for you, great.
[sarcasm]Oh, I am SO honored to have your approval, your Highness![/sarcasm] wendyl Wrote: And if other people on here DO want to work as a group, to make a difference on a bigger scale, then perhaps you should accept that that is their choice...
Certainly. If other people wish to blindly follow other people over a virtual cliff, that is their choice. I used to do that, too. It's what led to my time of homelessness, poverty and unemployment. But if that's what other people want for themselves, then don't let me stand in their way. RE: Activism against Autism Speaks? - q w e r t y - 09-25-2010 01:56 AM Fnord Wrote: Not a personal value, but a general trait of Aspies. While some Auties people seem to like working in groups, it also seems that most Aspies are stressed-out by group settings. It is not unusual for any self-serving group (such as Autism Speaks or the Gay Rights Movement) to seek to exploit those who can not self-advocate. This is why I'm quick to ask questions of any person or group who wants to recruit Aspies and Auties, especially when there's money involved.
RE: Activism against Autism Speaks? - Bloke - 09-25-2010 09:05 AM Fnord I am glad you explained what you meant and I agree to an extent but I also think that even in this respect that someone who when doing something self-directed gets half the effect as doing things but themselves working with 3 like-minded people will get more down purely as a mathematical equation. I DO agree with what you have said though. Don't get me wrong. I think that there is definitely room here for single forays and one person campaigns. What I would actually like is something just above bare minimum efforts from a handful of people IF well thought out initially and correctly applied. to lend significant enough volume of efforts concentrated over the long haul to give a sustained effort, hence the term "termite them". Over and above this I recognise I can well tell people to make these efforts their life's efforts and hell I would not want to. More other and above this I don't want this to be seen as much work or a bother. I think if someone can set it up right initially and spend maybe an hour a week over a long period of time and the rest of their life is theirs. It will require it is set up well initially. I am trying to gauge who is likely to be in or out and moreso who has thoughts in what they are up for or wanting to do. I have thoughts but I was hoping to hear from others. RE: Activism against Autism Speaks? - violet_yoshi - 09-25-2010 09:17 AM I think we should make a anti-Autism Speaks logo, people can add as avatars around the web. Like, something you could put on your Facebook or Myspace, then perhaps out of curiousity conversations can start. A handy website to link people to with info against Autism Speaks would also be a good idea. I think it should be similar to this site in format: http://www.bigfatfacts.com Then people could link there, and let people read about why Autism Speaks isn't a good organization, and form their own opinion. RE: Activism against Autism Speaks? - Bloke - 09-25-2010 09:18 AM Bloke Wrote: Fnord I am glad you explained what you meant and I agree to an extent but I also think that even in this respect that someone who when doing something self-directed gets half the effect as doing things but themselves working with 3 like-minded people will get more down purely as a mathematical equation.
I DO agree with what you have said though. Don't get me wrong. I think that there is definitely room here for single forays and one person campaigns. What I would actually like is something just above bare minimum efforts from a handful of people IF well thought out initially and correctly applied. to lend significant enough volume of efforts concentrated over the long haul to give a sustained effort, hence the term "termite them". Over and above this I recognise I can well tell people to make these efforts their life's efforts and hell I would not want to. More other and above this I don't want this to be seen as much work or a bother. I think if someone can set it up right initially and spend maybe an hour a week over a long period of time and the rest of their life is theirs. It will require it is set up well initially. I am trying to gauge who is likely to be in or out and moreso who has thoughts in what they are up for or wanting to do. I have thoughts but I was hoping to hear from others.
RE: Activism against Autism Speaks? - Bloke - 10-01-2010 06:55 AM OK this thread had to be put on hold obviously whilst Marcia was busy maligning my vcharacter and telling people I was not interested in activism. He is using AFF for his own ends, which seems to be the pursuit of a personal vendetta against Amy and Gareth, and me as well it seems. For some reason, he has decided to come back here and rake over things which happened two years ago. I don't think his reasons for being here are in any way altruistic and I don't think he is interested in activism. He is pursuing some agenda of his own. Rossco says I'm "righteous, moralistic and opinionated". I say he is a deceitful liar who thinks he is entitled to bully, harrass, intimidate and silence by smear and mockery those whom he dislikes or disagrees with. Now here is how I figure. Autism Speaks is bloody huge and there is NO one play that, as a one off, is going to impact them or reduce their influence. However sustained action in various forms will have an impact. They have been built on many levels and expand on many levels. For instance they win the game with political machinations, through grants allocation, through PR through event management and through Google search rankings. None of this is through accident and none of this is going to stop improving or diminish without any action. All of this won't be seriously changed through one action. For different ideas to add and to expand on I will open a new thread. This will be for the more constructive brainstorming whilst this thread will be for general talk about what action against Autism Speaks is a good one. RE: Activism against Autism Speaks? - Bloke - 10-01-2010 07:59 AM Here it is here http://www.aspiesforfreedom.com/showthread.php?tid=20530 RE: Activism against Autism Speaks? - 142857 - 10-01-2010 08:06 AM If I had a choice then I would support the view that autismspeaks are well-meaning but misguided. I don't think that they are evil, at least not by design, and I don't think that anyone will get very far by trying to convince austismspeaks that they are evil, or by trying to convince society as a whole that autismspeaks are evil. I can totally see how hard it would be for most NT parents to have an aspie or autistic child with behaviours that they simply cannot relate to. My son is like a more active version of myself at that age in many ways, and I find it hard to cope with him sometimes. I'll post later my ideas on activism. RE: Activism against Autism Speaks? - Bloke - 10-01-2010 08:42 AM 142857 Wrote: If I had a choice then I would support the view that autismspeaks are well-meaning but misguided. I don't think that they are evil, at least not by design, and I don't think that anyone will get very far by trying to convince austismspeaks that they are evil, or by trying to convince society as a whole that autismspeaks are evil. I can totally see how hard it would be for most NT parents to have an aspie or autistic child with behaviours that they simply cannot relate to. My son is like a more active version of myself at that age in many ways, and I find it hard to cope with him sometimes.
I'll post later my ideas on activism.
RE: Activism against Autism Speaks? - et - 10-01-2010 01:30 PM Things like organised protests are not a good idea IMHO. The main issue is credibility, if you do a protest and it goes wrong then you lose. Everyone who is on the Spectrum has problems in convincing people when meeting them in person, so any Aspie or Autie who stages a protest will risk convincing the NTs that they are weird in a bad way. The best thing to do is to mention your diagnosis in ways that can be associated with good things that you do. If you have a blog then mention your diagnosis so the people who like your blog content will know that people on the Spectrum are capable of doing good things in that area. Tell all your friends too. The more people there are who know that there is a huge number of people who are Autistic by DSM-V criteria who are successful and independent the less credibility Autism-Speaks will have. RE: Activism against Autism Speaks? - Bloke - 10-01-2010 01:49 PM YES!!!! I agree. The reason this matters is this. (Well how see it) What is the net effect they have on MY life. Next to nothing TBH. My son...maybe it will impact. They are fast becoming THE VOICE in Autism affairs. My children's children if they have any and if they too are on the spectrum...THAT is what I fear. So a world where Autistic forums that newly diagnosed are run or sponsored by Autism Speaks? Where the powerful government and religious bodies endorse their stance? Where scholarships and research grants are sponsored by them. Where all media runs through them solely. Where if we do nothing now we will be in a position only to say "Well what can we do now?" The resistant line will necessarily be dismiss and minimised and the flaws that hey have swept away in censor and the sands of time. I don't want that. Worth more effort than discussing it solely and not being brave enough to do something. I think it is worth some effort now even if we try our best and fail. I can live with that. RE: Activism against Autism Speaks? - Darth Sion - 10-01-2010 10:08 PM Autism Speaks does not represent the intrest of auspies or Aspies and we as members of the Autism spectrum should be active in an all-out attempt to shut down Autism speaks for their mission (if it sucseeds) will only lead to selective abortions. this represents a grave threat to a thriving autistic community.... perhaps the greatest threat we ever faced since the mental insitutions of the 1950's. RE: Activism against Autism Speaks? - Bloke - 10-02-2010 01:16 AM Agreed RE: Activism against Autism Speaks? - skyblue1 - 10-02-2010 01:31 AM Darth Sion Wrote: Autism Speaks does not represent the intrest of auspies or Aspies and we as members of the Autism spectrum should be active in an all-out attempt to shut down Autism speaks for their mission (if it sucseeds) will only lead to selective abortions. this represents a grave threat to a thriving autistic community.... perhaps the greatest threat we ever faced since the mental insitutions of the 1950's.
RE: Activism against Autism Speaks? - mels8780 - 04-07-2011 08:59 AM 142857 Wrote: If I had a choice then I would support the view that autismspeaks are well-meaning but misguided. I don't think that they are evil, at least not by design, and I don't think that anyone will get very far by trying to convince austismspeaks that they are evil, or by trying to convince society as a whole that autismspeaks are evil. I can totally see how hard it would be for most NT parents to have an aspie or autistic child with behaviours that they simply cannot relate to. My son is like a more active version of myself at that age in many ways, and I find it hard to cope with him sometimes.
I'll post later my ideas on activism.
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