Aspies For Freedom
How would you like your autistic online community? - Printable Version

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+--- Thread: How would you like your autistic online community? (/showthread.php?tid=19575)


How would you like your autistic online community? - Ivar T-wiki2 - 06-13-2010 10:01 AM

Discuss and edit the article:

http://ivartj.wikidot.com/autistic-online-community


RE: How would you like your autistic online community? - Ivar T - 06-13-2010 10:20 AM

For those who don’t recognise it – this is a wikified post. It is displayed through the signature of the user. Contributions to the article are very much welcome.

I’m interested in seeing an online community that is well-planned and which is effective at supporting autistic individuals on many different levels. I hope ideas for an online community could mature with time and exposure to different views through this wiki-article.


RE: How would you like your autistic online community? - adriant.esq - 06-13-2010 01:19 PM

lol Ivar T - you are brilliant! - i feel as if i have wandered into professor robotnic's flying machine - freaky!


RE: How would you like your autistic online community? - Ivar T - 06-15-2010 10:56 AM

Part of the reason why I start this article is that my previous attempts at starting an online community by and for people on the spectrum in Norway have been largely unsuccessful. I want my next push to be so that one can’t say that it wasn’t properly coordinated.


RE: How would you like your autistic online community? - Duckfetishgirl - 06-18-2010 07:39 AM

I would like it to be warm and fuzzy and inviting.


RE: How would you like your autistic online community? - Genesis - 06-18-2010 07:47 AM

Duckfetishgirl Wrote:
I would like it to be warm and fuzzy and inviting.


^
This is what I'm trying to explain to my mother.... something that's warm and fuzzy and accepts and not downgrades my intelligence to a 6 year old. (long story)


RE: How would you like your autistic online community? - Ivar T - 06-18-2010 07:31 PM

A question that I find relevant – what should be demanded from members?

Some people, myself included, would like to have as much output from reading posts per sentence as possible. I’m intrigued by the contrast between the culture on this forum, and what that is demanded from members on the Arch Linux forum. To summarise some of these contrasts:

  • Rants are highly discouraged, and tend to be deleted.
  • Threads that go off-topic are placed in “quarantine.”
  • Members are to avoid controversial topics.
  • Posts that merely state agreement with previous posters are classed as meaningless, and are discouraged.

I reckon such rules promotes a positive form of emotional detachment, which allows the community to focus on more informative discussion and keep it clean from quarrels. If an autism forum were to follow such rules and demand a high standard of quality in posts, I suspect it would either just die... or have posts with a quality more like that of scientific papers.

As the AFF forum in large part functions as a support forum for troubled individuals, enforcing such rules might not be appropriate, and might even be perceived as cruel. However, when such things as medical advice are asked for on an online forum, it becomes completely irresponsible to allow others to recommend potentially dangerous therapies based on unproven claims – something which has been done many times on forums for parents of autistic children.


RE: How would you like your autistic online community? - Fnord - 06-18-2010 08:38 PM

Firewall Wrote:
Content blocked
Reason: This Websense category is filtered: Social Networking.
URL: http://ivartj.wikidot.com/autistic-online-community

I don't like it at all.


RE: How would you like your autistic online community? - Ivar T - 06-18-2010 09:24 PM

I looked that message up on Google. It seems like your company doesn’t like you visiting social networking sites while at work and use WebSense to filter web pages. One blog post indicates that Twitter.com is inaccessible to you as well – is this the case?

Anyway, if you really wish to see the wiki article that currently only I have contributed to, you may try using some free proxy to circumvent the censorship.

Nice not living in China over here.


RE: How would you like your autistic online community? - Shnoing - 06-18-2010 09:55 PM

Ok, works for me. When anyone editing the page blocks it for 900 seconds, we might have to form a queue Big Grin!


RE: How would you like your autistic online community? - Ivar T - 07-06-2010 10:26 PM

I think it is important for autistic individuals to have an accessible platform on the web on which they will be taken seriously.

Picture this;

The idea is to create a website with high impact and a credibility similar to that of a newspaper. I imagine a blog with an associated wiki. The blog and the wiki has the only stated purpose of advocating and working for the interests of autistic individuals. It should otherwise welcome authors with diverse views.

The blog will take submissions for publications that are reviewed for quality. Beside such things as factuality and notability, your credibility to the reviewers may also be a factor in whether your piece will get published – it would help to have participated in offline meetups which other online identities confirm and if possible a verifiable official diagnosis.


RE: How would you like your autistic online community? - Ivar T - 07-06-2010 10:32 PM

Apparently Google News considers Age of Autism an online newspaper. If anti-vaxxers can do it, why not autistic self-advocates?


RE: How would you like your autistic online community? - skyblue1 - 07-07-2010 04:59 AM

I like the place the way it is ...an ever evolving work in progress...the sum of all its members


RE: How would you like your autistic online community? - Ivar T - 09-18-2010 10:48 AM

I am bumping this, as we now hear that there is quarreling on the WrongPlanet.net online community because of decisions made by an administrator, and that dissenting views have been censored on the website.

I believe many of the problems that arise in such situations could be avoided if the online community doesn’t depend on such a small set of individuals. An example of a type of online community that doesn’t depend on a small set of individuals is a blogging community which blogs link to each other and are hosted on different web servers. Perhaps a similar “alliance” of Internet forums could be created, to make our online community more resilient.


RE: How would you like your autistic online community? - AgentPalpatine - 09-18-2010 06:12 PM

Ivar, it would be good to have a stable enviroment to post papers* and other documents that explain some the concepts of Neurodiversity.  The FAQs on various sites do not seem to be working.  

* While a peer-review process might be unavailable at this point in time, a formal paper process might be useful.


RE: How would you like your autistic online community? - Ruby2010 - 10-28-2010 11:09 AM

The biggest problem that I tend to have with autistic online communities is unprofessional administration.  This is the only one I will use for that reason and should a major problem develop here I think I would give up on autism communities altogether.  *Some* autistics (read: not all) cannot effectively run a community professionally without their autism getting in the way (or other issues, for that matter.)  And it seems, at least in my experience, a lot of those autistics are in charge of major forums.  Tongue


RE: How would you like your autistic online community? - Roxie - 10-28-2010 11:29 AM

I'd like it well done, please.


RE: How would you like your autistic online community? - Ivar T - 10-28-2010 12:28 PM

Ruby2010 Wrote:
The biggest problem that I tend to have with autistic online communities is unprofessional administration.  This is the only one I will use for that reason and should a major problem develop here I think I would give up on autism communities altogether.  *Some* autistics (read: not all) cannot effectively run a community professionally without their autism getting in the way (or other issues, for that matter.)  And it seems, at least in my experience, a lot of those autistics are in charge of major forums.  Tongue

Of course, having the ability to establish an online community doesn’t necessarily mean that you are much good at running it. Though as I have mentioned earlier I think the best way to counter the associated problems would be decentralization of rights.


RE: How would you like your autistic online community? - Ivar T - 12-05-2010 02:40 PM

I rewrote the entire Ideals section, and added the History section. You can compare it with previous revisions through the History tab.


RE: How would you like your autistic online community? - Louise18 - 12-05-2010 06:04 PM

Ivar T Wrote:
A question that I find relevant – what should be demanded from members?

Some people, myself included, would like to have as much output from reading posts per sentence as possible. I’m intrigued by the contrast between the culture on this forum, and what that is demanded from members on the Arch Linux forum. To summarise some of these contrasts:

  • Rants are highly discouraged, and tend to be deleted.
  • Threads that go off-topic are placed in “quarantine.”
  • Members are to avoid controversial topics.
  • Posts that merely state agreement with previous posters are classed as meaningless, and are discouraged.

I reckon such rules promotes a positive form of emotional detachment, which allows the community to focus on more informative discussion and keep it clean from quarrels. If an autism forum were to follow such rules and demand a high standard of quality in posts, I suspect it would either just die... or have posts with a quality more like that of scientific papers.

As the AFF forum in large part functions as a support forum for troubled individuals, enforcing such rules might not be appropriate, and might even be perceived as cruel. However, when such things as medical advice are asked for on an online forum, it becomes completely irresponsible to allow others to recommend potentially dangerous therapies based on unproven claims – something which has been done many times on forums for parents of autistic children.


Hate all those rules, except the last one. Often the off-topic discussion is more useful and interesting than the suggested topic. Also AFF has a small enough community that wasteful posts aren't too much of a problem-which is probably what you should aim for. Also, when the context is disability/not and related politics and treatment for the children, avoiding the controversial issues would defeat the point of the discussion, it isn't like a forum about programming where you can just stick to the facts.

Even the scientific 'facts' about autism are usually unproven theoretical opinion.


RE: How would you like your autistic online community? - Louise18 - 12-05-2010 06:09 PM

Ivar T Wrote:
I think it is important for autistic individuals to have an accessible platform on the web on which they will be taken seriously.

Picture this;

The idea is to create a website with high impact and a credibility similar to that of a newspaper. I imagine a blog with an associated wiki. The blog and the wiki has the only stated purpose of advocating and working for the interests of autistic individuals. It should otherwise welcome authors with diverse views.

The blog will take submissions for publications that are reviewed for quality. Beside such things as factuality and notability, your credibility to the reviewers may also be a factor in whether your piece will get published – it would help to have participated in offline meetups which other online identities confirm and if possible a verifiable official diagnosis.


Ah ok, this is a somewhat different enterprise. I suggest you look at the f-word- it is a very well-run feminist blog that works on this basis (I don't agree with what they do and don' consider feminist, but they take a viewpoint, and get a reasonable variety of ideas within that.)

In fact there are some people there who blog about disability and feminism and also have their own blogs who might be willing to help you if you are clear about your aims.

The site has three areas-articles, reviews and a blog. Anyone can submit articles and reviews, but to blog you either have to be a member of the blog team or invited as a guest blogger. It works well, and offers more comment than a forum, but it is very very different from a support forum and would not achieve the aims of aff.


RE: How would you like your autistic online community? - Ivar T - 12-05-2010 07:37 PM

Louise18 Wrote:
Hate all those rules, except the last one. Often the off-topic discussion is more useful and interesting than the suggested topic. Also AFF has a small enough community that wasteful posts aren't too much of a problem-which is probably what you should aim for. Also, when the context is disability/not and related politics and treatment for the children, avoiding the controversial issues would defeat the point of the discussion, it isn't like a forum about programming where you can just stick to the facts.

I suspect the web forum on which AFF runs is very effective at bringing more exposure to writings that provoke quick responses when it displays the most recently commented threads the most prominently. I have seen several calls for attention on projects that could possibly help autistic individuals be neglected by this system. In hindsight I suspect a different system could be better at promoting them.

Reposted from the wiki article:

wikiarticle Wrote:
Favour content that multiple members want others to see
There are a lot of self-centered writings in autistic online communities, and it is usually the content that provoke quick responses, by concerning controversial topics such as religion or politics, that receive the most attention in web forums. In such an environment, actually important projects that may benefit autistic individuals often get little exposure. They are there, they are written about repeatedly, but they seldom get much or sustained attention by the frequenters of the community.

I think however, that there tend to be more visitors who want others to read about such projects than many other things. Even if someone is not committed to participate in a project, xe may still want to see it succeed, and would as such be willing to vote it up so that it receives more exposure.

There are a number of popular websites in which readers can vote on submitted content, such as Reddit, Digg, Slashdot and Less Wrong.




RE: How would you like your autistic online community? - Louise18 - 12-05-2010 09:19 PM

Ivar T Wrote:

Louise18 Wrote:
Hate all those rules, except the last one. Often the off-topic discussion is more useful and interesting than the suggested topic. Also AFF has a small enough community that wasteful posts aren't too much of a problem-which is probably what you should aim for. Also, when the context is disability/not and related politics and treatment for the children, avoiding the controversial issues would defeat the point of the discussion, it isn't like a forum about programming where you can just stick to the facts.

I suspect the web forum on which AFF runs is very effective at bringing more exposure to writings that provoke quick responses when it displays the most recently commented threads the most prominently. I have seen several calls for attention on projects that could possibly help autistic individuals be neglected by this system. In hindsight I suspect a different system could be better at promoting them.

Reposted from the wiki article:

wikiarticle Wrote:
Favour content that multiple members want others to see
There are a lot of self-centered writings in autistic online communities, and it is usually the content that provoke quick responses, by concerning controversial topics such as religion or politics, that receive the most attention in web forums. In such an environment, actually important projects that may benefit autistic individuals often get little exposure. They are there, they are written about repeatedly, but they seldom get much or sustained attention by the frequenters of the community.

I think however, that there tend to be more visitors who want others to read about such projects than many other things. Even if someone is not committed to participate in a project, xe may still want to see it succeed, and would as such be willing to vote it up so that it receives more exposure.

There are a number of popular websites in which readers can vote on submitted content, such as Reddit, Digg, Slashdot and Less Wrong.


I have noticed that at reddit what tends to get upvoted is the stuff that makes people laugh the most-that works at reddit because political satire does get people moving on issues like your granny getting her tits felt up by the TSA meanwhile a boat arrives with a bomb on it. However I don't think this would necessarily work on an aspie site because it relies a lot on comic timing.

As I said in my other post, you should check out the f word-they have historically been fairly good at getting sustained political projects accomplished including a book, and promotion of pro-active things like marches. I think their sort of model is something that would be better for the aims you are seeking to fulfill than a forum could be.


RE: How would you like your autistic online community? - Ivar T - 12-05-2010 10:33 PM

I am looking at it, but I haven’t managed to find any information on how it is managed yet.


RE: How would you like your autistic online community? - Ivar T - 12-05-2010 10:50 PM

Ivar T Wrote:
I am looking at it, but I haven’t managed to find any information on how it is managed yet.


Scratch that, I didn’t see the left margin menu on the About Us page.