Aspies For Freedom
Why I am on this board... - Printable Version

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Why I am on this board... - Vendaia - 09-07-2005 06:53 PM

About six months ago, I was sitting in the waiting room of my therapist's office. She was a member of a large mental health practice. Seated in the middle of the floor was a young woman, say 16 or so, who was rocking back and forth, and repeatedly picking at her T-shirt. Her eyes were closed, or nearly so. I watched her closely. Nearby, seated in chairs, were a man and a woman, whom I believe were her parents. They glared at me. I smiled back, and returned to observing the young girl, consciously putting on the kindest expression I could muster on my face. The parents seemed to relax, understanding (I hope) that I was not watching the girl because I thought she was a freak, but because I thought she was a human being - a person I wanted to understand. Inside that girl is a spirit, the same as mine. Inside her is a mind, one that works differently from mine, but probably not all that differently. When I went in to speak with my therapist, I immediately told her what I had seen in the waiting room. She told me, as I suspected, that the young lady was autistic.
I am a writer. As such, I am fascinated by people, and the stories of each person. As time has passed, I have tried to educate myself about autism. I learned a lot from Temple Grandin. Her words have opened up a whole world to me, given me a new and different way to see the world, and to view my own experience of it. And so I would like to write a story with the main character being autistic.
I need a lot of help. I need to deconstruct my own world view, and reconstruct one that is consistent with autism. Of course that is very hard, as autism is not one thing, but rather (1) a group of behaviors identified by professionals, and (2) a way of experiencing life and the world as a primary subject, which one or several of the aformentioned professionals has identified as autistic.
So I hope I can establish a dialogue, ask some questions, and hopefully not be regarded negatively. With the help of the good people in this virtual community, I may be able to craft a really good story that helps the world-at-large understand the world inside that young lady who so fascinated me. That world has value. I could feel it.


- Amy - 09-07-2005 07:32 PM

Welcome to AFF.


Thank you... - Vendaia - 09-07-2005 08:00 PM

I love the thing about the disabled dog. It made me laugh out loud!

Let me explain a little more about my post.

Stephen King said about how his stories arise that they all started with "What if...?"

My "What if...?" is this: What if someone won the Powerball Lottery four times in a row, and saved the earth from destruction by predicting the orbit of an asteroid, because that person had an extraordinary sense of numbers? That person would be wide open to hatred out of envy, and then adulation for saving the world.

Just as Stephen King, or any good writer, is able to get inside a character, and make people care about that person, so I need to get this character right.

When I was growing up in the 50's and early 60's, the words "spastic" and "retarded" were diagnoses. We never, ever, as children, saw a person in a wheelchair in school.

This grew out of a deep cultural bias against anyone with a physical or mental difference from "normalcy". The dominant notion was that if a person was physically imperfect, they were morally imperfect. That bias stretches back to antiquity.

Things are better today. But there is still a long way to go.

One thing is certain. The more people find out about each other - how much we are alike, the better we are able to not just tolerate, but appreciate the differences.

In reading posts on this board, I have found that many autistics have come to the same sin as NT's. Face it, the world is a mean place. For everybody.

The only help we have in this mean, mean place is from each other. Labels and biases keep us from joining hands in an effort to survive and flourish.

So I ask my first specific question.

How would an autistic person know whether or not his/her parents loved them?


Re: Thank you... - darkcode - 09-07-2005 10:14 PM

Vendaia Wrote:
So I ask my first specific question.

How would an autistic person know whether or not his/her parents loved them?

How would a non-autistic person know whether or not his/her parents loved them?


- chamoisee - 09-07-2005 10:46 PM

Quote:
How would an autistic person know whether or not his/her parents loved them?


Acceptance. It is very painful to feel that your parents would love you (or would love you more) if only you were 'normal'.

Secondly, I do hope you realize that the majority of auties are not savants?


- Bonnie Ventura - 09-07-2005 11:06 PM

Vendaia, you may find it helpful to read some stories that include, or are told from the point of view of, autistic characters.

I have a collection of such stories on Ventura33's Neurodiversity Page, and you can find more links on the Autism in Fiction page of neurodiversity.com.

As for winning the lottery, because the number combinations are totally random, no amount of mathematical skills would improve a person's chances.  (Best not to waste one's money on it!)


- Brightman - 09-08-2005 05:28 AM

How would an autistic person know whether or not his/her parents loved them?

As much as I would love to answer this I can't help but wonder what people here will get out of helping you earn a living, if that is the goal of your conquest?

I ask because after reading what Mr. Haddon did to his main character in his book 'The Curious Incident of the Dog in the Night-Time' where he gave all the romantic ideas that people have of Autism as the personality forgetting that there should have been a person in there too, I am left with the concern of what happens to those here who contributed to your work if you paint Autism in a bad light?


- Bonnie Ventura - 09-08-2005 03:26 PM

Brightman, it seems fairly clear to me that Vendaia is not a professional author, but a student trying to improve her writing skills and her understanding of autism.  That is to be commended.  Yes, she appears to have some romantic and inaccurate ideas, but when a person is making a sincere effort to learn, she shouldn't be criticized too harshly for ignorance.


What Stephen King says... - Vendaia - 09-08-2005 03:46 PM

...is that if you're writing fiction in the hopes of making money, you're in the wrong business. I write because I love creating characters and having them tell their stories to me. So the remark about making my living made me chuckle. And as for making autistic people look bad, in all my writing, I try to make characters as real as possible. How do I know if they are real? They start to talk and act "on their own". In other words, the story surprises me. It may not go where I thought it would go. It doesn't make any difference if a character is autistic, anymore than if she's a redhead. My basic assumption is that people are all pretty much alike in their capacity for emotion. The reason we care about characters in fiction, and each other in reality, is our sense that we are all alike on a basic level.

As for winning the lottery, and randomness.... I majored in physics in university. I have been fascinated by randomness since I came across a table of random numbers in the CRC Math Handbook. I could go on and on about randomness. But the basic fact is this: a random sequence of numbers has no discernable pattern. The key word is discernable.

How that figures into the story... well, just wait and see!

By the way, I live in a household with a seven year old boy diagnosed with Asperger's. I love him a lot. I'm sitting talking with his mom about his educational program right now.

Meanwhile, I am here doing research on how autistic people deal with emotion and emotional communication.


- M - 09-08-2005 03:59 PM

To answer one question:   How do I know that my parents love me?

I can answer for myself only.   It has to do with trust.  I know I can trust my parents even when they have made mistakes.

Are you a horror writer?


Knowing love and being a student... - Vendaia - 09-08-2005 03:59 PM

Dear Darkcode,

That's the question... But as an NT, I can make a good guess. The question I am all about here is emotional communication. Since it's tough for enough for me to figure out emotional states of others, I wonder how it is for someone who hasn't my ability to discern the semantic of body language and tone of voice.

As for being a professional writer, or a student... I could cite experience, but that's not the point. That I don't know stuff, shoot, I don't even know what I don't know! Finding stuff out is what get's me out of bed in the AM!


- Amy - 09-08-2005 04:26 PM

Vendaia to answer your question personally, how would I know my parents loved me - I wouldnt. They could/would say it, but it was just words.
It didn't really mean anything.


Re: Knowing love and being a student... - Bonnie Ventura - 09-08-2005 04:34 PM

Vendaia Wrote:
Since it's tough for enough for me to figure out emotional states of others, I wonder how it is for someone who hasn't my ability to discern the semantic of body language and tone of voice.


The difficulty goes both ways.  Autistic body language and tone of voice are often confusing to non-autistics.  Sadly, there are some parents who do not know whether their autistic child loves them, just because the child's voice and body language don't match the parents' assumptions about how a child shows love.


Horror writer? - Vendaia - 09-08-2005 04:35 PM

Dear M,

Nope. I am just a writer. Not that I haven't read my share of horror yarns.

My last completed work is a screenplay adapted from a novel "The Awakening" by Kate Chopin. It is currently in development by a production company.

As for your statement about trust... That's good. Can you tell me more about how that trust comes to be?

One of the things I've seen with Marshall, the 7-year old with Asperger's that I live with, is that his mom, who is great, talks to him a lot, and explains in words what she is feeling, and what others may feel. So it seems to me that she is decoding the emotional communications for him. I might note that he seems to have no trouble expressing his emotions. And too, friendly appropriate touch (patting) gets through to him just fine.

One of the "symptoms" of autism is that a child does not seem to respond to expressions of maternal affection as expected.

Now I'm guessing that a good analogy would be, say, red-green color blindness, to smile-frown expression blindness. In the case of color blindness, if I am expected to respond to traffic lights innately, and I run a red light, I could get a ticket, or even killed. But if I learn that the light on top means stop, and the one on the bottom means go, I'm cool. So I'm not keying my response to color, but rather position.

In red-green color blindness, both colors look gray. At least that is my understanding. So in the case of smile-frown blindness, what do those expressions look like? What is the alternative key?

Am I making any sense? Am I even close?


Thanks, Amy... - Vendaia - 09-08-2005 04:39 PM

So if it doesn't "mean" anything, does that imply that you do not feel the need to be loved? What about touch?


As for the "both ways"... - Vendaia - 09-08-2005 04:46 PM

When I started writing this story, I imagined the mom's emotional point of view. She felt abandoned by her child, since the child did not give her the responses she expected, that she needed.

Where I got stuck was the child's emotional point of view.

I wonder about this: suppose I can't hear any sounds below 20 kHz, but I can hear fine above that frequency. Could I hear my own voice? How could I speak to others?


- Amy - 09-08-2005 04:51 PM

I dont understand what you mean about 20khz, what does it mean, why would it matter, is it common?


To Chamoisee - Vendaia - 09-08-2005 04:57 PM

I do understand that most autistics are not savants. The reported incidence is 10%. And not all savants are autistic. I could make my character non-autistic.

But the essence of story is conflict. No conflict - no story.

My little brother and I used to joke about the structure of the novel:

First, everybody throws rocks at the hero, and he climbs a tree to get away. In a novel, at the four-sevenths point, the hero catches the first rock. The last three sevenths is him coming down out of the tree.

So terrible things have to happen to this character (his name is Ivor). I have to find rocks, I have to find a tree.


- Amy - 09-08-2005 04:59 PM

How can he be in a tree for the whole novel? Is it him thinking about his life in retrospect?
*confused*


Re: Knowing love and being a student... - darkcode - 09-08-2005 05:11 PM

Vendaia Wrote:
Dear Darkcode,

That's the question... But as an NT, I can make a good guess. The question I am all about here is emotional communication. Since it's tough for enough for me to figure out emotional states of others, I wonder how it is for someone who hasn't my ability to discern the semantic of body language and tone of voice.

As for being a professional writer, or a student... I could cite experience, but that's not the point. That I don't know stuff, shoot, I don't even know what I don't know! Finding stuff out is what get's me out of bed in the AM!


So tell me your guess on how you can tell weither your parents love you or not. Ignore nothing, paying as close attension to every detail as you can.  Keeping in mind theres many different forms of communications.  I'm sure its a difficult task to do turning that kind of information into meaningful words, but its a good starting point as any for a discussion on how autistics can tell.

I'd also like to point out not all autistics are body language and/or tone blind and some may have difficulty with recognizing faces.


Amy, and 20 kHz - Vendaia - 09-08-2005 05:13 PM

20 kHz is a reference to audio frequency. The normal hearing range is 20 Hz (abb. for Hertz, a physicist. Hz use to be cycles per second, abb. cps) to 20,000 Hertz. (20 kiloHertz, abb. kHz).

The human voice generates sound in the range of 200 Hertz to about 2000 Hertz.

All information in the physical world that we have observed so far is carried by vibration. That is from the physicist's point of view.

So I'm wondering, if I were deaf to sound in one frequency range, and could not hear my own voice, does that mean I don't have anything to communicate?

If I can't interpret signals of love from others, and can't express my own feelings in a way sensible to others, does that mean I do not have those feelings? Or do I even know what the feelings are if they cannot be shared?


Re: Amy, and 20 kHz - darkcode - 09-08-2005 05:33 PM

Vendaia Wrote:
So I'm wondering, if I were deaf to sound in one frequency range, and could not hear my own voice, does that mean I don't have anything to communicate?

If I can't interpret signals of love from others, and can't express my own feelings in a way sensible to others, does that mean I do not have those feelings? Or do I even know what the feelings are if they cannot be shared?


Talking isn't the only form of communication. Theres writing, panting, drawling, sign language, etc. The rest of your questions sound to me alot like the question "if a tree falls in the forest and no one is around to hear the sound of a tree crashing to the ground, does it still make a sound?"

If two people do send emotion/body signals, but each one sends it in a different language much in the same someone may speak french while another person speaks german.  Is the failer of the other person to understand it a sign that the signal isn't being sent or just that the signal failed to be recieved, processed, understood, and interperted?

Are feelings something one has and learns to express or are feelings something compleatly taught?


Amy, and the tree... - Vendaia - 09-08-2005 05:47 PM

I was just speaking of the progression of the story.

Ivor is, say, autistic, somewhere on the spectrum. This presents problems to him in his relationships within the world, because he cannot see/understand certain patterns. Ivor has a gift, though. He sees patterns where others cannot see them. Random to the rest of the world is not random to him.

My problem as an artist is in imagining the inner state of an autistic person. I sat in that waiting room watching that autistic girl, certain that there was a lot going on in her head. She was extremely "low-functioning". What does that feel like, I wondered?

So I am on this board because I want to get that character as right as I can. I could just "lurk" on this board. But I feel that's somehow dishonest. There's plenty to read, and I could just do that, and go about my business. But that just doesn't feel right to me.

I won't lie. I do feel a need to signify my respect for folks that say "I'm just fine, thank you very much." I have a deep suspicion of normative thinking. I have issues in my life that are rooted in that kind of thing.

It boils down to this: My value system says "All of us matter equally." And "It is my joyful duty as a human being to discern the value and goodness in everyone."

I don't think nature makes mistakes. People make mistakes.


Re: Amy, and the tree... - darkcode - 09-08-2005 06:20 PM

Vendaia Wrote:
I was just speaking of the progression of the story.

Ivor is, say, autistic, somewhere on the spectrum. This presents problems to him in his relationships within the world, because he cannot see/understand certain patterns. Ivor has a gift, though. He sees patterns where others cannot see them. Random to the rest of the world is not random to him.

My problem as an artist is in imagining the inner state of an autistic person. I sat in that waiting room watching that autistic girl, certain that there was a lot going on in her head. She was extremely "low-functioning". What does that feel like, I wondered?


Scientists have been trying to understand the inner state of people in general from a scientific point of view for centuries.  Not sure what words could be used.  Generally an autistic child like any child wouldn't concern themself with being different unless it becomes an issue, like parents who don't accept there child for who they are, or being bullied or teased by other children in school or adults saying nasty things about them in there presents, etc. People generally aren't aware of there differences until there made aware of the fact there is difference.  "What does it feel like?" Why would being autistic in of itself feel like anything, why would being non-autstic it on itself feel like anything?  Peoples attitudes tend to twords it is what causes people one way or another about it, but thats outside pressure.  Your the way you are that "feels" "normal" unless outside pressure changes that *shrug*.

Vendaia Wrote:
So I am on this board because I want to get that character as right as I can. I could just "lurk" on this board. But I feel that's somehow dishonest. There's plenty to read, and I could just do that, and go about my business. But that just doesn't feel right to me.

I won't lie. I do feel a need to signify my respect for folks that say "I'm just fine, thank you very much." I have a deep suspicion of normative thinking. I have issues in my life that are rooted in that kind of thing.

It boils down to this: My value system says "All of us matter equally." And "It is my joyful duty as a human being to discern the value and goodness in everyone."

I don't think nature makes mistakes. People make mistakes.


I hope you don't take what I say to be rude.  I'm not trying to scare you away or make you want to just lurk.  I've been trying to provide some useful information and a starting point to perhaps getting your first question answered.  Its a difficult question to answer that will take some back and forth discussion to have a meaningful understooding of the answer.  :smile:


Re: As for the "both ways"... - Bonnie Ventura - 09-08-2005 07:00 PM

Vendaia Wrote:
When I started writing this story, I imagined the mom's emotional point of view. She felt abandoned by her child, since the child did not give her the responses she expected, that she needed.

Where I got stuck was the child's emotional point of view.


I expect the child would, at some point, become aware of the mom's feelings of frustration or disappointment, and the child would also feel abandoned to some extent.  Even if the mom is careful to avoid saying anything negative, and even if the child can't read the mom's body language and tone of voice accurately, there may be some discrepancies in the mom's behavior and words.

For example, let's say the mom always tells the child that he is smart, capable, and will have a wonderful future.  Then the mom overly praises the child for some small accomplishment (such as tying his shoelaces neatly) that wouldn't be significant for the average child of his age.  The child starts to wonder if mom's expectations for him are really as high as she claims.

Vendaia Wrote:
My problem as an artist is in imagining the inner state of an autistic person. I sat in that waiting room watching that autistic girl, certain that there was a lot going on in her head. She was extremely "low-functioning". What does that feel like, I wondered?


I suggest that you read Ballastexistenz, a blog written by an autistic woman who has been described as "low-functioning."  She is an outspoken activist and has much to say about what it feels like to be treated as an object of curiosity by people who don't understand that she has feelings.  (Just to clarify, I'm not referring to you personally.)


Dear Darkcode... - Vendaia - 09-08-2005 07:05 PM

I don't take it as rude. As a matter of fact, I think everybody has been just fine, and I feel very comfortable.

I want everyone to know that you are not just helping me write some dum story, but also helping a 7-year old child who has been diagnosed with Asperger's.

I keep getting email notifications, so let me take a look-see...


Re: Amy, and the tree... - Guest - 09-08-2005 07:48 PM

Vendaia Wrote:
My problem as an artist is in imagining the inner state of an autistic person. I sat in that waiting room watching that autistic girl, certain that there was a lot going on in her head. She was extremely "low-functioning". What does that feel like, I wondered?

So I am on this board because I want to get that character as right as I can. I could just "lurk" on this board. But I feel that's somehow dishonest. There's plenty to read, and I could just do that, and go about my business. But that just doesn't feel right to me.

I won't lie. I do feel a need to signify my respect for folks that say "I'm just fine, thank you very much." I have a deep suspicion of normative thinking. I have issues in my life that are rooted in that kind of thing.

It boils down to this: My value system says "All of us matter equally." And "It is my joyful duty as a human being to discern the value and goodness in everyone."

I don't think nature makes mistakes. People make mistakes.


First off, I don't claim to speak for other Aspies. I can relate to your problem of how to depict an Autistic person's inner state.

I am an aspiring writer and I am diagnosed as high functioning autistic. I have struggled with the same problem of how to represent my inner state. A lot of people have said that my writing is publishable but then they often make the comment that I don't provide enough information about what is going on in the mind of the narrator as he or she interacts with other characters.  

I don't mean to sound egotistical by going on about my inner state in a long post, but I have had to think about what is the difference between my inner state and those of NTs and how to depict it in writing. I have come to think that I have been trying to tell stories from the perspective of an NT because that is the narrative model I have been taught.

It is difficult for me to narrate like an NT because as an Aspie I do not seem to centralize the mode of perception that would cause me to make my thoughts, judgements, impressions based on direct social interaction the central fous of my inner narrative.  I am drawn to what is happening in the moment, and must force myself to focus on the social interaction as it relates to dialogue or goal oriented activities because the verbal interactions and larger goal does not seem as compelling or important as my moment by moment sensory impressions. I tend to go through life like that. If I meet someone on the street I am entranced by my sensory impressions of the person I am speaking to and find it difficult to pay attention to the verbal flow of their conversation. I was at a social function once during the past ten years and had a hard time fitting in, although I was supported by close friends who were there - I caught myself at one point staring at the light patterns on the wall and realized with some embarrassment that I had been doing that too long than would be considered normal. But then my Aspergian pride kicked in, and I refused to feel embarrassed about it though I was surrounded by NTs. While I was staring at the light patterns I was processing information about the technical requirements to set up the lighting in the room and thinking about what it meant in terms of cost and production to the organization that was giving the event and what that meant to the social values of the organization  and how all of that impacted those people in the room. In short, I was focused on the meaning of the lighting system but processing all the information through an other than verbal way to myself. It would take some time for me to translate my compelling impressions into verbal language.

In that moment, although my mental process was not anything I could have communicated in words to anyone who might have asked me why I was staring at the wall my behavior was not that of a blank state. It had meaning, but I was processing information about the meaning imposed or produced through environmental stimuli through other than verbal means.  Meanwhile, all around me the NTs chatted and laughed easily with each other.  I then turned to my freind who kissed me on the cheek, and I felt warmth toward him and loved. So I was not detached from social life, just focused differently.

I think that if any NTs were watching they would have thought my focus on the lights was odd and unfriendly. No NT would sit there staring at the wall, rather they would be more focused mostly on what people were saying, the different social cues going on, and I believe their social interaction would be way more centralized to them than the way the lights danced on the wall were for myself.

I don't think that my way of processing information is superior to that of NTs. However, I don't think it is inferior either.  The advantages and disadvantages of my Aspie process is a whole other topic. However, I find that NTs are often disadvantaged  because they get things wrong based on the culturally imposed sameness of their perceptions and their inability to consider that other ways of looking or deciphering exist. Afterwards I found out that one of the NTs had privately asked another NT about what was "wrong" with me and that NT had wrongly been informed and had passed on information to others that I am a deaf person.


Re: As for the "both ways"... - Vendaia - 09-08-2005 07:50 PM

"I expect the child would, at some point, become aware of the mom's feelings of frustration or disappointment, and the child would also feel abandoned to some extent.  Even if the mom is careful to avoid saying anything negative, and even if the child can't read the mom's body language and tone of voice accurately, there may be some discrepancies in the mom's behavior and words.

For example, let's say the mom always tells the child that he is smart, capable, and will have a wonderful future.  Then the mom overly praises the child for some small accomplishment (such as tying his shoelaces neatly) that wouldn't be significant for the average child of his age.  The child starts to wonder if mom's expectations for him are really as high as she claims."

How is it that the autistic child becomes aware of the mom's feelings?

Decoding mom isn't a piece of cake for anybody.

But what "significators" would make the autistic child aware of those feelings? I like the "discrepancy" thing. That implies a consistency that the child expects. Like a piece of the puzzle doesn't fit.

I was just talking with Marshall's mom, Kim, about the connections he makes, and those he does not.

For instance, "Marshall, don't put your feet on the chair." Marshall does not take that to mean the class of all chairs. Just the particular chair he had his feet on at the moment.

This is consistent with what I have read about savants being in more direct contact with integer arithmetic. As NT's develop, that contact is swamped with classification. Rather like the night sky being swamped with scattered sunlight, so the stars disappear. Sort of.

One thing I would like to mention. A great deal of knowledge has been piled up with new medical imaging technologies. One study I heard about showed that emotional distress caused activity in the same region of the brain that becomes active due to physical pain. The same group of researchers showed that images of the physical suffering of other persons caused activity in that same region.

This would seem to imply that physical and emotional pain are physiologically congruent.

Now, if one cannot receive a message of the physical suffering of another person, say because of blindness, does not mean that if the image were visible, one would not feel it.

That is to say, the capacity for emotion exists, regardless of the capacity for communication.

Yikes. I hope I am clear.

The point I am driving at seems sort of stupid. It is obvious to me intuitively that autistic people have emotional life. But the ordinary forms of communication don't work properly. So there is misunderstanding on both sides.

The misunderstanding is easy for me to comprehend.

I am interested in the successes - the moments of understanding between NT's and autistics, and how those come about.

BTW, I find it a little ironic that Emoticons are available on this board.


- Guest - 09-08-2005 08:18 PM

I don't know if you can ever understand what it is like to be autistic. It might be better if you wrote about your efforts to understand the boy and successful interactions that you, as an NT, have had with him. Being autistic is not the same as being different because you have "redhair". That analogy is politicall incorrect.


What I have learned.... - Vendaia - 09-08-2005 08:22 PM

...is a lot in just the short time I have been conversing with you good folks.

As I have said, understanding the emotional communications of others is a challenge for anybody. It is for me, anyway. And since I was a child, I have been obsesssed with the question "Why do things fall down?" That has led me on a merry chase through the world of gravitational physics. I focus way too much, much to the frustration of my friends. Sometimes they make fun of me in cruel ways because I will go on and on about the camera work of Stanley Kubrick.

I have come to a tentative conclusion that we are just all right. I suppose I could self-diagnose as Asperger's. But what's the point?

I deeply identified with Guest's comments about the light patterns on the wall, and the long, beautiful train of thought that came along with it. I was at a party last Saturday (and I don't like parties... too much going on), and was bored to tears. I can remember standing in a backyard once, and seeing a peculiar color pattern, and tracking it down to the refraction of a strand of spider silk.

In short, I go off into my own little world a lot.

And I have a lot of trouble understanding why people don't see the same things, and ask the same questions.

I'm beginning to think that DSM-IV has a place for everybody. And I wonder whether there is anyone who doesn't have some sort of "disorder".

Maybe we're all in "One Flew Over the Cuckoo's Nest". The only question is who's the nurse and who's the patient. And maybe that choice is ours.

The only real problem we have is figuring out who's smiling. If they are, smile back. If they're not, ask "What's the matter?". And don't take "Nothin'." as an answer.


- Brightman - 09-08-2005 08:36 PM

Brightman, it seems fairly clear to me that Vendaia is not a professional author, but a student trying to improve her writing skills and her understanding of autism. That is to be commended.

She defined herself as a writer and said that she grew up around the late 50's, that suggested to me that she is a professional writer or author.


Yes, she appears to have some romantic and inaccurate ideas, but when a person is making a sincere effort to learn, she shouldn't be criticized too harshly for ignorance.

I made the comment regarding 'romantic ideas' about Mark Haddon's work. I wasn't criticizing her, I was asking her a question because my concern is genuine.


And as for making autistic people look bad, in all my writing, I try to make characters as real as possible.


This wasn't really what I was asking. I assumed, perhaps wrongly, that you are a proffesional writer for the above reasons, your work would naturally be accredited to you and light from your work may be cast on those who provided you with some of the background information to your research on Autism by your fans or critics, so my question was meant as what will happen if your portray Autism in a negative way (be it 'life with autism always sucks' or just define it inncorrectly), will the people here be held responsible for your lack of understanding? I hope that you will understand as to why such a thing could be trouble for AFF.


BTW, I find it a little ironic that Emoticons are available on this board.

Why? You've already been told that not all Autistics have a problem with body language.


I have come to a tentative conclusion that we are just all right. I suppose I could self-diagnose as Asperger's. But what's the point?

Do you think you have it? There may be a point to it if you stand to gain some control of your life from a diagnosis.


- Amy - 09-08-2005 08:51 PM

"BTW, I find it a little ironic that Emoticons are available on this board."

I find that emoticons help with understanding meaning in a post, particularly if someone is intending a joke.


Re: What I have learned.... - darkcode - 09-08-2005 09:01 PM

Vendaia Wrote:
In short, I go off into my own little world a lot.

And I have a lot of trouble understanding why people don't see the same things, and ask the same questions.

I'm beginning to think that DSM-IV has a place for everybody. And I wonder whether there is anyone who doesn't have some sort of "disorder".

Maybe we're all in "One Flew Over the Cuckoo's Nest". The only question is who's the nurse and who's the patient. And maybe that choice is ours.

The only real problem we have is figuring out who's smiling. If they are, smile back. If they're not, ask "What's the matter?". And don't take "Nothin'." as an answer.


I think Sigmund Freud started a school of unhealthy thought of perfectionistic ideals of what is healthy and what is not. I think people made a great mistake in trying to "fix" people in order to make them fit this ideal.  I agree with your comment that nature doesn't make mistakes, people do.  Sigmund Freud can't be fully blaimed tho, I think stigmas on how people should be existed before Sigmund Freud.  I think everyone could be catagoried ill and maybe everyone should be just to put to much weight on the boat and make it break, so this silly cycle can be broken and people can start becomming more accepting of differences.  As people come to accept differences, people won't feel so different after all.


- Vendaia - 09-08-2005 09:08 PM

Anonymous Wrote:
I don't know if you can ever understand what it is like to be autistic. It might be better if you wrote about your efforts to understand the boy and successful interactions that you, as an NT, have had with him. Being autistic is not the same as being different because you have "redhair". That analogy is politicall incorrect.


I think you might be right. None of us can ever understand fully what it means to be anyone but ourselves.

But I take profound exception to the politically incorrect thing. I am not looking for votes. I'm looking for help in understanding. I'm making an effort to get it right.

There may be no way I can write from the point of view of an autistic. But I can try.

Colleen McCullough wrote about Julius Caesar, from his point of view. Despite the fact that he slaughtered thousands of Gauls, I still wound up liking the guy. Go figure. I came to a better understanding of him as a human being, and the in which he lived. Colleen McCullough had done her homework. That's all I'm trying to do. I may not be a great writer. But I can try to be a good one.

A good writer is honest. Whatever she writes, it had better be honest. Otherwise it's tripe. There's no point in it, much less profit. And that's all I'm trying to do here - be honest. Whether I try to write the story from Ivor's point of view or not, I'm going to try to get it right. I'm going for honesty.

For the record: The label of Politically Incorrect is just some weak ***. I can't abide it. It's name calling, and obfuscating. Leave off the "politically" and I'm fine. Just "incorrect", "not accurate", "does not serve"... Fine. I can take that gracefully. But Politically Incorrect? Not for one second will I stand for it. That's just some Stalinistic chickenshit.

I think it is plain from my posts that I don't like labels or judgements. I grew up with Jim Crow. I've seen some Politically Incorrect stuff. I've experienced some of it because of my life path. What's Politically Incorrect is blaming folks who don't have wheels for not getting out of the way of the flood. And then patting yourself on the back for the way you handled the hurricane. That's Politically Incorrect.

And you don't even log onto the board with a name. You just come out of left field with no name, and label me. Bite me. You hear? Just bite me.


- betwixt - 09-08-2005 09:38 PM

Whoa.  Part of understanding austistics is understanding that a lot of things are not said or written by us to be nasty. I think you're taking Guest's statement the wrong way, and too personally. We usually approach things from a more logical, rather than emotional standpoint. (If I may speak for 'Us'.) We're often shocked when what we says produces a flareup in a non-autistic.


Brightman's comments - Vendaia - 09-08-2005 09:41 PM

Good stuff.

My comment about emoticon's...

One of the books laying about here on Asperger's uses emoticons as an index... And the printed word is, of course devoid of body language and tone-of-voice. But printed word seems to serve well.  :grin:

As for portraying life as an autistic as sucky...

I have no intention of coming at it that way. My take on life is that it is what it is. We are each challenged to make something of it. My experience of people is that the best of us are those who are supremely challenged, and who get up out of bed, and go do something, even if it's wrong. I have spent my life trying to figure out what in the hell the Universe is trying to tell me. My conclusion? The Universe is just trying to pass the time of day.

I figure everybody, at some level, is trying to Decode the Message. That's what all my writing has been about. We are all just trying to figure out What To Do Next. Like in the next ten seconds. So we do something. Then something happens. It could suck, or not.

And in the end, diagnosis doesn't make a whit. Labels are BS. But a flower? Now that's something...


- Amy - 09-08-2005 09:45 PM

Some autistics think in pictures, so pictures could portray something more than words.


Dear Betwixt... - Vendaia - 09-08-2005 09:48 PM

I hear ya.

Politically Incorrect is about the only thing a person can say that would make me go ballistic. If "Guest" had a name, I'd feel a lot more kindly.

But it's after my nap time. I'm a little cranky. And I've been thinking hard all morning.

See all of ya'll tomorrow.


- Amy - 09-08-2005 09:54 PM

People can post as a Guest in this forum, it doesn't mean they are saying anything they shouldn't.
Sometimes members forget to log in and post as a Guest by mistake.

In the past we have had some NTs that come here and want to understand, and are very eager. Sadly they can be quick to feel that their questions are not being understood, or that people are being critical, basically a misunderstanding.
It can then lead to 'you aren't being very nice to me, and all I wanted to do was understand you' type of posts.

If you do start to feel like that, take a step back and try and see it from our point of view.
If an autistic goes to an NT forum, we often don't get a welcome with open arms, and misunderstadings can lead to us being accused of being awkward, causing trouble, etc. So it works both ways.


- Brightman - 09-09-2005 01:43 AM

And in the end, diagnosis doesn't make a whit. Labels are BS. But a flower? Now that's something...

A daffodill won't get me help with filling out forms. A tulip won't keep my sensory overlaod at bay. A lily isn't going to help me recognise unfamiliar body language. A diagnosis will allow me to identify my problems so I can work on improving them and get access to any support services I may need. Our diagnosis may not matter a jot to you but it does to some of us, kindly show us a little respect in this matter`.


Could you please answer my question Vendaia?

I think, and again I'm assuming here because I do not know what goes on inside your head, that you are reading more into my words than is actually there and missing what I am actually saying altogether. I have gotten a lot of that on NT orientated forums that I use to frequent. Are you reading my questions as an attack on your ability to do your work? If so, you were wrong, I meant for the questions to come accross exactly as they are written.

I never did fully work out why NT's do that other than perhaps to avoid an issue they'd rather not talk about but it still upset them enough to reply in a non-constructive manner in order to derail the discussion. Perhaps you could tell me why you do it Vendaia?


- anandamide - 09-09-2005 04:35 AM

Vendaia Wrote:

Anonymous Wrote:
I don't know if you can ever understand what it is like to be autistic. It might be better if you wrote about your efforts to understand the boy and successful interactions that you, as an NT, have had with him. Being autistic is not the same as being different because you have "redhair". That analogy is politicall incorrect.


I think you might be right. None of us can ever understand fully what it means to be anyone but ourselves.

But I take profound exception to the politically incorrect thing. I am not looking for votes. I'm looking for help in understanding. I'm making an effort to get it right.

There may be no way I can write from the point of view of an autistic. But I can try.

Colleen McCullough wrote about Julius Caesar, from his point of view. Despite the fact that he slaughtered thousands of Gauls, I still wound up liking the guy. Go figure. I came to a better understanding of him as a human being, and the in which he lived. Colleen McCullough had done her homework. That's all I'm trying to do. I may not be a great writer. But I can try to be a good one.

A good writer is honest. Whatever she writes, it had better be honest. Otherwise it's tripe. There's no point in it, much less profit. And that's all I'm trying to do here - be honest. Whether I try to write the story from Ivor's point of view or not, I'm going to try to get it right. I'm going for honesty.

For the record: The label of Politically Incorrect is just some weak ***. I can't abide it. It's name calling, and obfuscating. Leave off the "politically" and I'm fine. Just "incorrect", "not accurate", "does not serve"... Fine. I can take that gracefully. But Politically Incorrect? Not for one second will I stand for it. That's just some Stalinistic chickenshit.

I think it is plain from my posts that I don't like labels or judgements. I grew up with Jim Crow. I've seen some Politically Incorrect stuff. I've experienced some of it because of my life path. What's Politically Incorrect is blaming folks who don't have wheels for not getting out of the way of the flood. And then patting yourself on the back for the way you handled the hurricane. That's Politically Incorrect.

And you don't even log onto the board with a name. You just come out of left field with no name, and label me. Bite me. You hear? Just bite me.


I showed up on the board as guest because although I thought I had logged in, I guess I didn't.

I agree with you that the term politically correct can be misused. Often I come across someone whose very strict about politically correct terms, but then, when I look at the way they live or make their money, their use of the term becomes relatively meaningless. In this particular case I was using the term to point out to you that being different because one has red hair is not the same as being different because one is autistic. Obviously having red hair is a cosmetic difference (racism against celts nonwithstanding) whereas being autistic is a much more profound difference.  By comparing us to people who are different because they have red hair you diminish the profundity of our difference. I live everyday of my life with cognitiveily different perceptions than others.  It feels quite diminishing to be compared to someone with a superficial cosmetic difference. You asked for information and I gave it.


Re: Brightman's comments - anandamide - 09-09-2005 04:54 AM

Vendaia Wrote:

And in the end, diagnosis doesn't make a whit. Labels are BS. But a flower? Now that's something...


I don't get the significance of the flower. Sure, they're pretty and all but can flowers be compared to balloons? Or how about graham crackers? I have to tell you that I think your use of symbolism is weak, you're not really writing to us with meaning. It's sort of this pretend crap. If you want to be a better writer you should become more honest with yourself and others about what it is you really mean to express.  Otherwise you're going to end up writing things that are dishonest and lacking in depth and when it comes to portraying auties this could have negative consequences for those of us whose lives you are attempting to portray.

Even your use of the symbol of a flower is incorrect in political terms. Postmodernism does away with grand narrative. We can't draw universal meanings from a flower.  One flower could be indigenous, another could be grown by some poor exploited person in some underdeveloped country for shipment to the West.  Therefore, the use of the generic flower as a symbol is not specific enough to hold any real meaning except to impose a meaning given by the dominant culture.


- chamoisee - 09-09-2005 07:27 AM

Quote:
I sat in that waiting room watching that autistic girl, certain that there was a lot going on in her head. She was extremely "low-functioning".


She actually may not have been....although it's hard to say. I have Asperger's and sometimes rock quite a bit and pick at things. Stress, nervousness, and unfamiliar surroundings or a change in routine can make this behavior more exaggerated.
------------------------------------

I said 'acceptance' before, but Amy's reply made me think. I haven't had much acceptance so I'm not sure...but what I can say is that I feel loved by very, very few people, and I'm sure that my family does love me somewhat. A lot of times when people say that they love me or care about me, it doesn't hit home, it's as though the statement just does not compute and goes flying off into a black hole somewhere. Hugs and physical affection can be the same- if I do not feel loved, they do nothing for me but make me feel awkward or touch aversive.

There is a book you might enjoy: The Man Who Loved Only Numbers. It's about Paul Erdos, a mathematician, true story. It doesn't say he was autistic but there's not a shadow of doubt in my mind that he was, after reading it.


Re: What I have learned.... - Guest - 09-09-2005 02:39 PM

Vendaia Wrote:
I suppose I could self-diagnose as Asperger's. But what's the point?


Could you? You threw out a metaphor comparing the progress of a protagonist to climbing a tree and having rocks thrown at you. One person on the board interpreted this literally. This seems to be quite a difference in perception to me.

Vendaia Wrote:
But a flower? Now that's something...

H. L. Mencken Wrote:
An idealist is one who, on noticing that a rose smells better than a cabbage, concludes that it will also make better soup.




- betwixt - 09-09-2005 02:55 PM

I like that Mencken quote.

Yeah, V, I think you're trying too hard to be how you think we are.  Just be yourself. I had great Geek NT friends in high school (maybe one was AS, if I think about it). A rose and a cabbage have value, Autistics and Non-Autistics have value.  Everyone is only who they are really as individuals anyway.


What I meant by the flower... - Vendaia - 09-09-2005 03:38 PM

This reference is to the "power" we feel we have when we name things, versus the real power in the Universe, that actually creates things. And to the fact that a diagnosis is not action. Moreover, a diagnosis is an opinion.

From the homepage of this website: "We view autism, not necessarily as a disability, or something that is negative for everyone on the autistic spectrum, but as part of who the individual is."

So "autism" and "Asperger's Syndrome" are symbols. They have no real power or reality. But you, and I, are real. Our bodies and minds exist independantly of any descriptions. If the descriptions disappeared, we would still exist.

Of the two statements "I am" and "I am autistic", which is more powerful?

Naming a thing gives it power, or takes power away from it.

This site declares that "We know that autism is not a disease."

But check out the definitions of "diagnosis". Every single one says basically the same thing - a diagnosis is an identification of the presence of disease.

Now some may argue that "pregnancy" is a diagnosis. I would reply that pregnancy is a condition, a description of a stage of human growth. Medical assistance is in order to make it more comfortable and enhance the probability of a successful outcome, but it is not a disease. And so pregnancy is not a diagnosis, but rather a description.

So accepting a diagnosis, or even a description, using it to describe yourself is like a fashion choice.

And someone once said: “Why take ye thought for raiment? Consider the lilies of the field, how they grow; they toil not, neither do they spin. And yet I say unto you that even Solomon in all his glory was not arrayed like one of these.”


- Bonnie Ventura - 09-09-2005 04:29 PM

Brightman Wrote:

Bonnie Ventura Wrote:
Brightman, it seems fairly clear to me that Vendaia is not a professional author, but a student trying to improve her writing skills and her understanding of autism. That is to be commended.

She defined herself as a writer and said that she grew up around the late 50's, that suggested to me that she is a professional writer or author.



You're right, Brightman, we were both jumping to conclusions, and mine didn't have any more basis than yours.

Vendaia Wrote:
I do understand that most autistics are not savants. The reported incidence is 10%. And not all savants are autistic. I could make my character non-autistic.

But the essence of story is conflict. No conflict - no story.


Vendaia, the need for a dramatic conflict does not excuse the careless use of cultural stereotypes, from the standpoint of either literary merit or social responsibility.  An autistic character does not have to be a savant in order to create a conflict, any more than an African-American character has to be a professional basketball player, or a Jewish character has to be a wealthy banker, or an Italian character has to be a mafioso.

Stereotypes are a lazy substitute for the mental work required to create a complex, true-to-life character and a meaningful plot with a genuinely believable conflict.

By the way, this is the reason why I assumed you were a part-time student taking a creative writing class.  A professional writer would know better.

As for this comment...

Vendaia Wrote:
I find it a little ironic that Emoticons are available on this board.


You may not have intended to be rude, but that's a prejudiced statement.  It implies that you think we shouldn't have emoticons because we're not capable of using them intelligently.  That is equivalent to a white person going into a forum for black activists and commenting that she's surprised to find ads for university courses.


Re: What I meant by the flower... - Guest - 09-09-2005 04:34 PM

Vendaia Wrote:
So accepting a diagnosis, or even a description, using it to describe yourself is like a fashion choice.


A description or label may be a fashion choice, but diagnoses?


Re: What I meant by the flower... - Guest - 09-09-2005 04:44 PM

Vendaia Wrote:
This reference is to the "power" we feel we have when we name things, versus the real power in the Universe, that actually creates things. And to the fact that a diagnosis is not action. Moreover, a diagnosis is an opinion.

From the homepage of this website: "We view autism, not necessarily as a disability, or something that is negative for everyone on the autistic spectrum, but as part of who the individual is."

So "autism" and "Asperger's Syndrome" are symbols. They have no real power or reality. But you, and I, are real. Our bodies and minds exist independantly of any descriptions. If the descriptions disappeared, we would still exist.

Of the two statements "I am" and "I am autistic", which is more powerful?

Naming a thing gives it power, or takes power away from it.

This site declares that "We know that autism is not a disease."

But check out the definitions of "diagnosis". Every single one says basically the same thing - a diagnosis is an identification of the presence of disease.

Now some may argue that "pregnancy" is a diagnosis. I would reply that pregnancy is a condition, a description of a stage of human growth. Medical assistance is in order to make it more comfortable and enhance the probability of a successful outcome, but it is not a disease. And so pregnancy is not a diagnosis, but rather a description.

So accepting a diagnosis, or even a description, using it to describe yourself is like a fashion choice.

And someone once said: “Why take ye thought for raiment? Consider the lilies of the field, how they grow; they toil not, neither do they spin. And yet I say unto you that even Solomon in all his glory was not arrayed like one of these.”


Yes, symbols do have real power and authority. Humans both construct meaning and apply symbols or codes to communicate that meaning to each other.  Naming is a powerful act that is often imposed by societal institutions. I believe the autistic civil rights movement aims to reclaim the diagnosis or description of autism so that  society is more inclusive of our issues so that we aren't pathologized and abused based on our difference.

Your argument is not coherent. First you argue that naming gives or takes away power, then you describe it as a fashion choice.

And if that quote is JC talking about Lilies, well at least he was referring to some indigenous plants and not miniature roses shipped from Mexico.

I don't have any more time to spend on this, but I have to say that your understanding of what it is to be autistic is quite limited.  You do seem to be trying to understand, but underneath I detect some anger. Where is that coming from?


- Vendaia - 09-09-2005 06:06 PM

"I don't have any more time to spend on this, but I have to say that your understanding of what it is to be autistic is quite limited. You do seem to be trying to understand, but underneath I detect some anger. Where is that coming from?"

I'll tell you where my patience is wearing thin: I came on this board to do research for a story so that I could accurately convey an aspect, one aspect, of a character I was thinking about. I said at the outset that I didn't know much. At each turn, when questioned, I have been honest. I have been kind except when I was labeled as "politically incorrect". I didn't take offense when I was labeled as un-professional. 90% of the reponse to my posts have been negative.

I loved this comment:
"Vendaia, the need for a dramatic conflict does not excuse the careless use of cultural stereotypes, from the standpoint of either literary merit or social responsibility. An autistic character does not have to be a savant in order to create a conflict, any more than an African-American character has to be a professional basketball player, or a Jewish character has to be a wealthy banker, or an Italian character has to be a mafioso.

Stereotypes are a lazy substitute for the mental work required to create a complex, true-to-life character and a meaningful plot with a genuinely believable conflict.

By the way, this is the reason why I assumed you were a part-time student taking a creative writing class. A professional writer would know better."
A part-time student... I should know better...
My writing career spans over thirty years.
"a lazy substitute..." Mentally lazy people don't get a bachelor's degree in Physics.
Let me tell you what the impression I have of "Aspies" is now, based on my experience on this board so far:
Angry, territorial, defensive, derisive, dismissive... I could go on.
Here's some copy from a lady advertising her coaching:

"Yes, there is light at the end of the tunnel! There are aspects of Asperger that you can use to your great advantage.

FOCUS
Your ability to focus on one objective over long periods of time without becoming distracted allows you to accomplish large and challenging tasks.
UNIQUE GLOBAL INSIGHTS
Your ability to find novel connections among multi-disciplinary facts and ideas allows you to create new, coherent, and meaningful insight that others would not have reached without you.
INDEPENDENT THINKING
Your willingness to consider unpopular or unusual possibilities generates new options and opportunities and can pave the way for others.
INTERNAL MOTIVATION
Rather than being swayed by social convention, other's opinions, social pressure or fears, you can hold firm to your own purpose. Your unique ideas can thrive, despite naysayers.
ATTENTION TO DETAIL
Your ability to remember and process minute details without getting lost or overwhelmed gives you a distinct advantage when solving complex problems.
3-DIMENSIONAL THINKING
Your ability to utilize 3-dimensional visioning gives you a unique perspective when designing and creating solutions.
CUTTING THROUGH THE SMOKE SCREEN
Your ability to recognize and speak the truth that is being "conveniently" ignored by others can be vital to the success of a project or endeavor.
LOGICAL DECISION MAKING
Your ability to make logical and rational decisions and stick to your course of action without being swayed by impulse or emotional reactions allows you to navigate successfully through difficult situations without being pulled off-course."

Is any of this true, or is this stereotyping?

And when it comes to stereotyping, I think I can be a little sensitive to that danger. I am a male-to-female post-operative transsexual. Riffle through your mental pictures. Any sterotyping going on? Want to go visit one of our Internet communities, ask a few questions in an effort to understand what that's all about? Care to try to write a story with a main character who's M2F post-op? Get inside her head? See the world through her eyes?

Any of you GD (Gender-Disadvantaged) folks want to make a comment?


- Amy - 09-09-2005 06:35 PM

I currently have no idea what this is all about.

Ven said "So accepting a diagnosis, or even a description, using it to describe yourself is like a fashion choice."

I find this very offensive, and I think you didn't mind if it offended as you even admit to being angry with us.
Did you read my post on a previous page, of how people can react 'I am being nice and people are being mean to me' type of thing.

We have no obligation to anyone, we are just here to post if we feel like it in general. People don't have to answer a certain way, or be messengers for the whole community.

You are very much misunderstanding us, and our honesty is being taken an negativity.

Please read this post -
http://www.aspiesforfreedom.com/phpBB2/viewtopic.php?t=1921&postdays=0&postorder=asc&start=30#22172


- Amy - 09-09-2005 06:42 PM

"Any of you GD (Gender-Disadvantaged) folks want to make a comment?"

This is also uncalled for, do you realise that more aspies than average have gender issues?


Dear Amy... - Vendaia - 09-09-2005 07:20 PM

First, I am not angry, I am a little irritated by assumptions and labeling on the part of certain respondents.

I came to learn. I am met with fear and hostility. Understandable.

Second, taking offense is a choice. Choose not to take offense. Just don't. I am not offended. Just irritated at the whole taking offense thing.

Third, I have experience with this business of diagnosis. I have given it a great deal of thought.

Fourth, I have a lot of experience with stereotyping. I fight it every day.

Fifth, you, and all, really, have been good sources of info, despite the very typical flaming that seems to spontaneously combust on every single discussion board on the net. These boards have a similarity to Brooklyn playground basketball games... tempers flare, players squawk "Yo, hey, foul!" But the game gets played, and everybody comes back and high fives, and the games go on.

Sixth, we are dealing in our household with a great kid who has been diagnosed with Asperger's. I personally find him delightful. We've got two single moms, four kids, and me. The age range is from 4 to 57. It's quite a melange! But we are all familial. We love each other, and struggle every day with a host of issues. I find Marshall to be delightful, smart, talented, and... well, just really cool. I am his champion in some ways. I would take a bullet for him. His talent is what has inspired my desire to try to write a whomping good yarn that features an autistic character.

So folks, if you feel so inclined, steer me clear of misconceptions, stereotyping, tell me something of yourselves, whatever you want to say. But don't take offense. I didn't come here to offend. When people ask me about myself and my situation, I don't take offense. I try to tell them what it is like, how it feels, what my life journey has been like. I try to build understanding.

And that's what I'm trying to do here - understand as best as I can what you feel. This is an opportunity for bridging, not a war. There are plenty of jerks in the world and on the net. I'm not one of them.

If you cannot understand that I am a compassionate, empathetic artist by this point in our conversation, then fine. Don't participate. But the last post on this thread will be one of mine. Because I don't give up.


- Amy - 09-09-2005 07:39 PM

"First, I am not angry, I am a little irritated by assumptions and labeling on the part of certain respondents.

I came to learn. I am met with fear and hostility. Understandable.

Second, taking offense is a choice. Choose not to take offense. Just don't. I am not offended. Just irritated at the whole taking offense thing."

Taking offense is not always a choice, is being irritated a choice?

"But the last post on this thread will be one of mine. Because I don't give up."

I find that very amusing, have you heard of autistic perseveration?


- Guest - 09-09-2005 07:40 PM

Amy Wrote:
"Any of you GD (Gender-Disadvantaged) folks want to make a comment?"

This is also uncalled for, do you realise that more aspies than average have gender issues?


Since Vendaia said that she herself is GD, isn't it fair for her to ask whether there are others here?

I disagree that a diagnosis is a fashion choice though. A careless self-diagnosis may be, but an official diagnosis is an external factor which a person may not have chosen.


- a-lite - 09-09-2005 07:42 PM

That post was by me (aspielite). The forum here seems to continually log me out.


Gender issues among Aspies... - Vendaia - 09-09-2005 07:42 PM

In a way, I'm not surprised.

One of my points is to compare "NT" and "GD" in a humorous light. Let's get beyond labels, diagnoses, stereotypes...

I have read a good deal of Balistexistenz. I'm going to where you point me.

My main point is that there is enough suffering in this world. I say again, our only hope in this mean, mean state we call existence is compassion and empathy.

There are so many choices we don't get to make in our lives. I do my level best every day to make my choices from a basis of compassion and empathy.

I cannot be any plainer than this.


- Amy - 09-09-2005 07:43 PM

Anonymous Wrote:

Amy Wrote:
"Any of you GD (Gender-Disadvantaged) folks want to make a comment?"

This is also uncalled for, do you realise that more aspies than average have gender issues?


Since Vendaia said that she herself is GD, isn't it fair for her to ask whether there are others here?


Read what she said again, she wasn't asking if others here had gender issues.


Who is GD? - Vendaia - 09-09-2005 07:44 PM

Oh, no. Persons who live lives in only one gender are Gender-Disadvantaged. Just as those who are not autistic are NT's.


- Gareth - 09-09-2005 07:49 PM

"Gender disadvantaged" - so are you saying anyone who is hetrosexual and has no desire to be another gender is somehow disadvantaged?

wrong

Sexuality is neither an advantage or a disadvantage (unless you look at homosexuality and the disadvantage that comes from being bullied from homophobes - but in that case the homosexuality itself is not the disadvantage, the ignorant bullies are)

The term NT stands for Neurologically Typical, essentially meaning "one with an average brain" - it is not the same as calling someone disadvantaged due to their sexuality.


Re: Who is GD? - anandamide - 09-09-2005 08:06 PM

Vendaia Wrote:
Oh, no. Persons who live lives in only one gender are Gender-Disadvantaged. Just as those who are not autistic are NT's.


I like that comparison. You know, because I am an Aspie I am compelled to be honest. When someone who is not an Aspie asks me what it is like to be an Aspie I do become apprehensive and defensive. This negative response is based on my experience that NTs are always looking for a way to enhance their own status based on the information that I give them.  For example, I am currently going through some court proceedings related to a financial crime that was done to my family. Through the process I must continually educate people about my autism. I generally get one of two responses, either the issue of autism goes ignored or it is used to profit some professional who believes that through the use of therapy or other means my issues can be resolved. I'll be more specific. I show up for an appointment with each of my shoe laces a differnt color. This makes sense to me, because why should I buy a new package of shoe laces just so that my shoe laces will match? It is logical to me that it is not necessary to have matching shoe laces. But NTs would see this as evidence that I am somehow mentally defecient. In fact, what I need is for others to realize that I am a whole person and not in need of any intervention. I need my identity to be recognized as a valid existence.  I think that there are all sorts of day to day judgements that are imposed on us as Aspies because we are cognitively different than NTs.  Does that help for you to understand? If you would like, I would even be willing to help in the developmental editing of your manuscript.  I'm an aspiring writer and I am quite good at giving feedback, but I might not always be able to express myself in ways that you would consider nonoffensive.


Dear Gareth... - Vendaia - 09-09-2005 08:08 PM

I have googled Neurotypical. I know where it comes from. I have visited the sites.

My use of GD is satirical and ironic.

As for your mixing up sexual preference and gender identity? Oh, my.

I could say terrible things about your lack of awareness, your lack of understanding of the issues. But I'm not going to. Nor do I choose to take offense. Your statement comes from a lack of knowledge.

Dear heart, were you to show up on a TS board, and make that confused statement... well, I don't even want to think of the flames...
I've seen it happen. It's not pretty.

Lack of knowledge is no sin.


- Amy - 09-09-2005 08:15 PM

The term NT means neuro typical, it is widely used. It is not an insult, even though it started as a humorous way of making a much needed point on how autism is seen.

I dont know why you keep bringing up, we should, or if we did, go to a Gender issues forum, its just adding to the confusion.


Dear Bamanda... - Vendaia - 09-09-2005 08:33 PM

I love the shoelace thing! That cracks me up!

And thanks for your offer! I really appreciate it!

You bet, I will call on you!

My conception of Ivor (the character I want to write about) is that he is a cipher to normative perception. But everything in his world-model in his head makes perfect sense. And he is puzzled, annoyed, and even angry, that the world is so illogical, so much nonsense.

And he wins. He beats the lottery four times in a row. He looks at "chaos" and sees pattern, and so saves the world from an asteroid impact.

The bottom-line message I want to express is that normative thinking isn't all it's cracked up to be. People on the margins of society might just be the most valuable of all. "Normal" people are the benificiaries of the "Abnormal" people.

Some say Einstein was autistic. Check out Isaac Newton. Great ideas, life-saving ideas, come from the really odd people in inexplicable ways.

In my education in mathematics and physics, I became fascinated by how wacky many of these people appeared to be. Just about every one of them had "issues". Yet today, their names are attached to theorems that make it possible to land on the Moon!

Yet today, we might label them with a "diagnosis". We might "treat" them. And where would we be? We'd be doing our laundry with rocks down by the river.


- Gareth - 09-09-2005 08:42 PM

Vendaia - sexuality and gender are linked, only a fool could deny that


- Gareth - 09-09-2005 08:44 PM

I should add that this post will be my last on this topic, it looks at risk of starting a flame war (no offence)


Yo, hey, Amy... - Vendaia - 09-09-2005 08:46 PM

No. Let's not go to a gender issues forum...

That wasn't the point of me bringing up my personal situation. I wanted to say something about my sympathy with the issues of stereotyping and diagnoses.

I'm trying to break through to a higher level of trust. I'm trying to say something about marginalization, and that I know how that feels.


- betwixt - 09-09-2005 08:56 PM

Gareth--unless someone is asexual, but can they really be--with sex organs?

Can we really be completely unbiased?  V, you use the words, 'wacky' and 'odd' --- aren't these terms that are subjective, subject to the person defining what is wacky or odd?  The shoelace thing is a perfect example.  Odd to one, logical to another. I was upset to learn that Rain Man was supposed to be an autistic, I thought he was retarded with a 'savant' ability.  How would someone who is 'retarded' view my statement and my point of view?  Or an autistic for whom I labeled as just having nothing in their head except their 'savant' ability? (Of course, I could blame this on the ones who made and acted in the movie for not portraying a person correctly, and instead making a facetless stereotype.)


- Amy - 09-09-2005 08:59 PM

Still somewhat confused, maybe you could clear it up.

"And he wins. He beats the lottery four times in a row. He looks at "chaos" and sees pattern, and so saves the world from an asteroid impact."

So is he in a tree for the whole book, or was that a metaphor as has been suggested? Is he winning the lottery, or is that a metaphor?
Does he save the world from an asteroid?

If the asteroid is not a metaphor, it seems a highly unlikely occurence, is the book science fiction?


Gareth, Gareth, Gareth.... - Vendaia - 09-09-2005 09:01 PM

"sexuality and gender are linked, only a fool could deny that"

Check out the fools at http://www.emedicine.com/PED/topic2789.htm

"The two terms sex and gender are often used interchangeably in the vernacular. However, in a medical and technically scientific sense, these words are not synonymous. Sex is defined by the gonads, or potential gonads, either phenotypically or genotypically. It is generally assigned at birth by external genital appearance. If an intersex condition is present, one sex is often chosen with the intention of making social interactions and rearing simpler. Gender, on the other hand, is defined by one's own identification as male, female, or intersex; gender is based on legal status, social interactions, public persona, personal experiences, and psychologic setting.

A person's sex is a primary state of anatomic or physiologic parameters. A person's gender is a conclusion reached in a broad sense when individual gender identity and gender role are expressed. An often-used phrase to point out the difference, while an oversimplification, has some merit when dealing with these definitions: sexual identity is in the perineum; gender identity is in the cerebrum. Increasingly, the more subjective sense of gender identity takes precedence in evaluating patient needs. In those instances where a discrepancy exists between sex and gender, compassion and empathy are essential to foster better understanding and an appropriate relationship between the physician and the patient.

Note that gender development and sexual development are not interchangeable terms. The sexual identity that emerges beyond childhood is very clearly a separate entity from gender identity. Aspects of physical sexual growth, eroticism, and eventual sexuality, although closely related to gender, should not necessarily be used to draw conclusions about a patient's gender definitions."

Hey, look, this is not about me. I would not presume to make pronouncements about autism or Asperger's. Don't worry about my issues. I am here to learn about autism and Asperger's. I am not here to hold forth on gender, sexuality, gender dysphoria, gender identity disorder, or any of that crap.

Just don't worry about it. I'm interested in your world view, your sense of life, your experience.


- Bonnie Ventura - 09-09-2005 09:13 PM

Vendaia Wrote:
Here's some copy from a lady advertising her coaching:

<snip>

Is any of this true, or is this stereotyping?


I'd describe that advertisement as exploitative flattery.

Vendaia Wrote:
And when it comes to stereotyping, I think I can be a little sensitive to that danger. I am a male-to-female post-operative transsexual. Riffle through your mental pictures. Any sterotyping going on? Want to go visit one of our Internet communities, ask a few questions in an effort to understand what that's all about? Care to try to write a story with a main character who's M2F post-op? Get inside her head? See the world through her eyes?


If I did so, and the members of your community told me that my character was an unrealistic stereotype, I would pay attention to their concerns and would proceed to revise my story accordingly.  I would not, as you seemed to be doing, respond with a dismissive lecture on the need for conflict in a story and insist that the stereotype was necessary for conflict.

Perhaps that was not your intent.  In the interest of avoiding a flame war, I am willing to give you the benefit of the doubt and to withdraw my comment about professionalism.


Dear Amy, re: the tree. - Vendaia - 09-09-2005 09:17 PM

The tree was a metaphor. It is a joking description of story structure.

I once was told by my therapist to knock off the metaphor crap and get to the point. I now think a new item should appear in DSM-IV. "Metaphorhiea" - the compulsive use of metaphor in interpersonal communication. That's my diagnosis of me.

Let me try to articulate the basic story premise.

Ivor is a medium-functioning autistic person. He has the ability to see patterns in numbers. His dad is an astronomer working on Near-Earth Orbit Objects. Ivor stims by reciting number sequences. His dad records these numbers, and finds that they fit the criteria established as random sequences. Ivor sees some of the numerical data describing trajectories of Near-Earth Objects. Ivor recites new numbers in these sequences. These conform to cleestial mechanical calculations for these objects. Well, almost. Ivor's numbers don't quite match up. Ivor's numbers predict a collision of a hefty asteroid with Earth. Ivor also gets hold of tables of Lottery winning numbers. Ivor's extensions of these sequences match new winning numbers.

Now what?


- betwixt - 09-09-2005 09:25 PM

Amy, in case V doesn't answer, I'll try and give an answer: they're metaphors.  Writers are always thinking in hypothetical stories or symbols.  The one about the asteroid is saying, imagine what someone could do if they had a special ability.  Picture someone saving the world because of their ability.  It's the idea of someone saving the world because of a special ability that's important but a fictional story to convey the idea is the writer's way.

The tree thing is to illustrate the fact that a story has to have conflict, something bad or a problem happen to the hero or it's boring.  If he does the same thing every day with nothing happening, no one wants to read it.  I'm sure someone can answer this better than me, but it seems that people want to have their emotions engaged--shock, horror, sympathy,  maybe have the main character go on a journey or accomplishes something--interest, excitement, and then have the situation resolved with a good ending--relief, happiness.  You set up the character so he's likable, make something bad happen to him (he has to run up a tree), he goes on a journey or accomplishes something (he catches a rock), resolution (he comes down from the tree).  A complete story.


- Amy - 09-09-2005 09:28 PM

Did you make up the term medium functioning? Or have you seen it somewhere? I have never head of it before.

I cannot see how he could predict lottery numbers, its random.

So a skill isn't involved.

The asteroid thing is possible I suppose, but very unlikely, dont know what else to say.


- betwixt - 09-09-2005 09:38 PM

Amy, look at it this way:  NTs sometimes need a made-up story to get a point across.  You can tell them something in a logical way and they don't get it or they get it but their emotions are not engaged so they don't care.  If you put it in story form, they get it and are engaged.  If you say:  an autistic guy with an ability with numbers could help the world be a better place, many people wouldn't listen, wouldn't get it or wouldn't care.  But if you make up a story about an autistic guy and you give him a personality and make him real to the reader and have him do something wonderful (though unlikely), people will listen and come to have some understanding and compassion for this guy (even though he's not real, but he's a symbol of a real person).  I think the problem is that if V doesn't get it right it will be another Rain Man and people will come away with the wrong ideas, yet again.


Dear Bonnie... - Vendaia - 09-09-2005 09:41 PM

Whoa.

"Drama is life with the dull parts cut out" - Alfred Hitchcock.

There's a great book out there called "Story" by Robert McKee. It's not everything there is to say about story. But it's good. I liked it. And McKee was featured as a character in "Adapatation", a film starring Nicholas Cage.

Look, I'm not going to engage in a seminar, class, discussion, or any other discursion, into the art of writing.

I came to this board for two reasons: we have an Asperger's child in our household, and I am interested in telling a story in which the main character is autistic savant. How autistic? I don't know. How savant? That I know.

If you are so inclined, help me get the details of day-to-day frustrations of dealing with the normative world right from the point of view of one who has been diagnosed as autistic/Asperger's. That's all I'm asking.

Theory of Story is a vast subject. There's lot's of stuff out there on it. Google it. I did, and learned a lot. Some of it I thought was good, some was so much bushwah.


- Amy - 09-09-2005 09:45 PM

"Look, I'm not going to engage in a seminar, class, discussion, or any other discursion, into the art of writing."

I see. Some of us may discuss it though, threads can often go off on a tangent if people get interested in one part of it.
Happens a lot.

Does the mother of the aspie boy have information for you that is helpful, or from observing the boy himself and talking to him you could find out the way he feels.


Betwixt, thank you, thank you... - Vendaia - 09-09-2005 09:48 PM

Exactly.

This whole "Rain Man" thing...

I saw that flick. What I came away with was that Raymond and his brother came to love each other. That's pretty much the message most folks came away with. It wasn't about autism or retarded or savant. It was about people connecting.

It was about humans.


- Amy - 09-09-2005 09:52 PM

I didnt get that at all.
I felt at the end that 'rainman' didnt love him, he preffered his routine and possessions. The brother seemed mixed up.


- MishLuvsHer2Boys - 09-09-2005 10:01 PM

Ok I think my main annoyance is why the focus on autistic savants and not just the rest of us that are normal or above-average that aren't savants? After all only about 10% from what I read of Autistics are Savants as well. It's like continuing with this "Rainman" image of Autistics that doesn't help us because they expect us to be all 'savants' or all 'low functioning'. What is with the 'romanticism' so to speak with autistics having to always be portrayed as savants or mentally challenged in books and film? If you really want people to understand those on the autism spectrum, don't limit to stereotypes. As I tell people and have been told myself, once you've see one Autistic/Aspie, you've seen just that... one person. Just from looking at that one person you can't portray those on the autism spectrum near effectively and accurately without putting misconceptions at play. You only end up effectively causing more damage than good. That's just my honest opinion.


Dear Amy... - Vendaia - 09-09-2005 10:22 PM

Yeah, I understand, I think.

I am beginning to see that metaphor is not a good way at all to try to say something on this board.

I need to be a lot more literal.

Let me spin out a little more in the way of characters.

Ivor - the son. George - the father. Kathleen - the mom.

George is the kind of person who can sit in the cold with a telescope, and look all night long at some celestial object. Kathleen is the kind of woman who wants a happy baby. Ivor likes to sit and rock and recite numbers.

Kathleen feels abandoned by her own child. George is happy to have him sit out on those cold nights. Ivor's behaviors make George laugh in delight. He has an intuitive understanding of Ivor's inner logic. Kathleen pushes for normative behavior. She doesn't get Ivor's sensibility.

Then there's the therapist. Help me out here. How stupid can a therapist be with respect to autism? Judging from what I've read so far, pretty damn stupid.

Now what drives the story forward is that George has the patience to listen to the numbers his son recites. George is the kind of person who can squat in a sling in a rain forest canopy for months, watching monkeys make eye contact, and cataloguing each eye-roll. He has the patience to decode his son's world. So he picks up on the whole number thing with Ivor.

So I ask the community: help me build a good Ivor.

A note: when I use the words "wacky" or "odd", those are value judgements from the normative perspective. Keep in mind that "normal" is a mathematical term. Nobody is normal. We are all wacky and odd. That's what makes us unique, and in my estimation, what makes people highly lovable.


To MishLuvsHer2Boys - Vendaia - 09-09-2005 10:39 PM

The story is not really all about autism. It's about randomness. I need a vehicle (character) that can see pattern where others don't. I could have a character get hit in the head with a hammer as a child. See "The Dead Zone" by Stephen King. Child suffers head trauma, turns into political assassin. Great story.

Now you can all beat me up for using autism as a means to my story-telling end. But there are models out there that say that we are all savants, but something gets in the way in the case of NT's, while autistics do not develop this obstacle. I find that interesting.

I am also fascinated by, and want to talk about, different ways of thinking. And that much-needed answers come from unexpected quarters.

So you might be autistic, and not savant. How do you know? My feeling is that every person on this planet is creative. But something gets in the way. See "The Artist's Way".


- Amy - 09-09-2005 11:08 PM

Aren't you worried that giving away so much detail of your book, that someone might take the idea and plagiarise it?
Any one can read this forum, except for the general/members section.


Re: Dear Amy... - anandamide - 09-09-2005 11:09 PM

Vendaia Wrote:
Yeah, I understand, I think.

I am beginning to see that metaphor is not a good way at all to try to say something on this board.

I need to be a lot more literal.

Let me spin out a little more in the way of characters.

Ivor - the son. George - the father. Kathleen - the mom.

George is the kind of person who can sit in the cold with a telescope, and look all night long at some celestial object. Kathleen is the kind of woman who wants a happy baby. Ivor likes to sit and rock and recite numbers.

Kathleen feels abandoned by her own child. George is happy to have him sit out on those cold nights. Ivor's behaviors make George laugh in delight. He has an intuitive understanding of Ivor's inner logic. Kathleen pushes for normative behavior. She doesn't get Ivor's sensibility.

Then there's the therapist. Help me out here. How stupid can a therapist be with respect to autism? Judging from what I've read so far, pretty damn stupid.



So I ask the community: help me build a good Ivor.

A note: when I use the words "wacky" or "odd", those are value judgements from the normative perspective. Keep in mind that "normal" is a mathematical term. Nobody is normal. We are all wacky and odd. That's what makes us unique, and in my estimation, what makes people highly lovable.



I can only speak for myself, but  in my experience NTs do not find me highly lovable. In fact, my perspectives seem to transgress some of their cherished ideals.  My perspective is that the "normals" are very possessive about their status and even my body language seems to threaten disorder.  Someone on these boards made the observation that NTs like to try to build consensus, even if that consensus is wrong.  Most times I have no vested interest in NT consensus because as an "oddball" I have little chance to benefit from such consensus. I was at a meeting the other day and everyone was eyes agog on the speaker, whereas I didn't see the significance of being there or following along with the crowd. During his speech I left the room and came back several times. Afterward I realized I had committed a social faux pas by doing that.  However, to my mind, there was no point in standing around listening to him reiterate information that I already knew.  I didn't mean to show disrespect, but unfortunately that is how I came across to some people who were there.  Also, it is very difficult for me to stand in a crowd because I can't maintain the posture that NTs use when listening to a speaker. I end up fidgeting or staring at the lights on the wall or twirling my hair and this becomes noticeable to the NTs who then react toward me as thought I am mentally defecient.  At such times it seems my whole existence is a threat to the status quo in many ways.  My point is, I think your character Ivor would likely be someone whose existence threatens the social status and values of the NTs.


- a-lite - 09-09-2005 11:36 PM

Amy Wrote:
Aren't you worried that giving away so much detail of your book, that someone might take the idea and plagiarise it?
Any one can read this forum, except for the general/members section.


Ideas don't make stories, writers do. Anyone can come up with an idea, but it takes much more time and effort to make it into a good book.


- becca - 09-10-2005 12:37 AM

I think the pattern of a seven year old boy thinking would be very different from the pattern of a thirteen year old, or a thirty year old. It would also change itself throughout the day. There may be sun and shadows of meaning. Is it not just a matter of degree of sun and or shadow?

I am liking your curiousity. I don't mind trying to figure out metaphors. I use a lot myself, so I use them for you. The story you write, Vendaia, will be a historical document for the mother and child you write for. But it could not be used to predict the future for the relationship. It would be interesting to make a word sketch now and in a years time, to make another. Watch the imperceptible changes. They will happen.  

Who knows what a persons emotional toolbox is capable of at any given time? What colours can be acertained? We assume we are born with the capacity to see the same colours as everyone else. But i learn from researchers, each of us has different ratio of visual receptors. Some have more/less of cones/rods. Such complexity we humans.

But I am still lost, because I do not know whether my mother loves me or whether i love her. But the knowing of this has come about very recently. The knowing is very important. No matter how many words I know, if i do not use the right ones so that somebody else hears what I MEAN, then i will not even know i am lost. This is a growing point. ouch.

That said, i would not change the tools i have been born with. And i do not want anyone to think i represent anyone other than myself. I am not typical. I hope one day the boy you know can tell you what you ask.
becca


- Brightman - 09-10-2005 02:11 AM

So folks, if you feel so inclined, steer me clear of misconceptions, stereotyping, tell me something of yourselves, whatever you want to say. But don't take offense. I didn't come here to offend. When people ask me about myself and my situation, I don't take offense. I try to tell them what it is like, how it feels, what my life journey has been like. I try to build understanding.

Any chance you could answer my question then?


- tenaciouscj - 09-10-2005 04:31 AM

Maybe Ivor could be a boy who is very happy in his own little world but resists rather strenuously being moved away from his favourite activities. He would therefore have a long attention span and probably a reading age far ahead of his chronological age.

The mother would probably feel that the husband and son were forming a relationship she was excluded from so she might take up drinking/going out a lot/getting heavily involved in some kind of parent's group.

I feel she might want to have another child but this would set up conflict in her mind as what if that child were autistic too?  On the one hand, she could get a baby who is neurotypical like her but she could also end up with one who is anywhere on the autistic spectrum as I would not be surprised if the father has Aspergers.

Over time, you would see some improvement in Ivor but it's possible the marriage would break up if Kathleen continued to feel isolated and that the situation in her mind would never improve.

I can see the parents having trouble finding suitable pre-school and school environments for their son and conflict developing between the parents about homeschooling him instead.


To Vendaia - Drifter - 09-10-2005 06:04 AM

Is the father supposed to be Asperger's. cause that character sounds like one.

Vendaia Wrote:
I am beginning to see that metaphor is not a good way at all to try to say something on this board.


That's not fair.  We know little about your story.we don't even know what genre is. for a comedy or a children book, having the protaganist save the earth would be be an acceptable plot device. for a drama it would be absurd.  

Vendaia Wrote:
The story is not really all about autism. It's about randomness. I need a vehicle (character) that can see pattern where others don't. I could have a character get hit in the head with a hammer as a child. See "The Dead Zone" by Stephen King. Child suffers head trauma, turns into political assassin. Great story.


That's too bad. Austism is the focus of many conflicts within the home and without (look around this site for one of them). Lot of material for a enterprising author interested in the subject. :wink:

Vendaia Wrote:

Now you can all beat me up for using autism as a means to my story-telling end. But there are models out there that say that we are all savants, but something gets in the way in the case of NT's, while autistics do not develop this obstacle. I find that interesting.


A lot of NT's are overfocused on Savantism IMO. It might be just positive thinking. but it might just be glossing over the difficultities Autism brings. I do not believe that the classic notion of a savant implies creativity though. for example though the savent pianist may be able to play mozart by ear they may not be able to compose new music.  The problem I have with this I think it can be apply to any ability of an autistic or aspie diminishing that ablity to a quirk of our disability.

I am curious as to what the main conflict of the story is?


Moving right along then.... - Vendaia - 09-10-2005 04:55 PM

First: Am I concerned that someone might steal the idea for my story? No. Not at all. Were I to worry about that sort of thing, I would be a very fearful, unhappy person.

For some info, if any are wondering, the article that gave me one of the ideas for the story:
http://www.centreforthemind.com/publications/IntegerArithmetic.cfm

There is also the case of Ramanujan, a mathematical prodigy. No one can say for sure whether he was autistic or not. He was a "prodigy".

As for whether George has Asperger's or not, that's a good idea for a conflict thread.

Brightman, is this the question you are referring to? "As much as I would love to answer this I can't help but wonder what people here will get out of helping you earn a living, if that is the goal of your conquest? "
I will address the "I can't help but wonder what people here will get out of helping you ..." part. Let us suppose that the story actually gets published in one form or another. Then "Thanks and Acknowledgements for Helping Me Understand..." would be in order, I think. Let me address  "the concern of what happens to those here who contributed to your work if you paint Autism in a bad light?" The bad light part is a subjective judgement on the part of readers. I have no control over what readers think. My intent is to make Ivor a sympathetic character, the protagonist in the story. It is a certainty that autistic people, like any other people, come in all shapes, sizes, and temperaments. It is also a certainty that bad things are going to happen to Ivor, and he is likely to not respond like Jesus in certain situations.
Let me give an example from my own perspective: http://www.glbtq.com/arts/transsexuality_film.html. Some get it way wrong, some get it right. And it does have consequences for people like me. Negative portraits up the murder rate for TS's.
Writers who actually do their homework do a more respectful and accurate job of portraying characters. So a lot of the quality of what I write about Ivor's autism depends on the quality of the information I get here, and from other persons who are diagnosed as autistic. I regard their stories as more accurate than any other sources.
Brightman, I wonder about your use of the word "conquest". Curious...
One thing that might make things a little clearer here... I, as a writer, do not write for the sake of money or fame. I write because I like writing. And I try to make the characters interesting. Interesting to me. I try to make them come alive and surprise me. This is not to say I am not interested in what happens to the work when I've more or less finished it. It's like having a child. A parent hopefully takes pleasure in the raising of the child, despite the difficulties of parenting. Once the child reaches a certain age, the parent hopes the child goes on to great things. Most of the time she doesn't. But the parent can be reasonably happy if the child makes her own way, and is happy if the kid doesn't wind up in jail or dead. And if someone says "Suzie is a great kid. You're a good mom." - well - that is a great happiness for a parent. But one thing I know, loving parents love to be around their kids, at every age. Same with a story for a writer.
So I hope that helps answer your question(s), Brightman.


- Brightman - 09-10-2005 06:45 PM

It does, thank you  :smile:


Re: Moving right along then.... - anandamide - 09-10-2005 06:55 PM

Vendaia Wrote:
It's like having a child. A parent hopefully takes pleasure in the raising of the child, despite the difficulties of parenting. Once the child reaches a certain age, the parent hopes the child goes on to great things. Most of the time she doesn't. But the parent can be reasonably happy if the child makes her own way, and is happy if the kid doesn't wind up in jail or dead. And if someone says "Suzie is a great kid. You're a good mom." - well - that is a great happiness for a parent. But one thing I know, loving parents love to be around their kids, at every age. Same with a story for a writer.
So I hope that helps answer your question(s), Brightman.


You have this all wrong. I think you have some sexist misconceptions about parenthood. Firstly, writing is a far more self centered activity than caring for young human beings 24/7. Childcare is very hard work and goes completely unpaid.  And, as a mother of three I am qualified to say that even loving parents do not necessarily love to be around their children. It can be a hellish lot of work to care for children. In fact, a large part of the time I'd rather be relaxing on a beach in Aruba...writing my novel.


Dear Bamanda... - Vendaia - 09-10-2005 07:27 PM

You say: "You have this all wrong. I think you have some sexist misconceptions about parenthood. Firstly, writing is a far more self centered activity than caring for young human beings 24/7. Childcare is very hard work and goes completely unpaid. And, as a mother of three I am qualified to say that even loving parents do not necessarily love to be around their children. It can be a hellish lot of work to care for children. In fact, a large part of the time I'd rather be relaxing on a beach in Aruba...writing my novel."

Every simile/metaphor breaks down somewhere along the line.

But I'm not the only person who has drawn the this similarity. A quick google of "writing parent metaphor" turned this up:

http://www.writerswrite.com/journal/jun04/twilson.htm

How to Parent Your Book: Six Rules for Writers
By Tarn Wilson

Writers often use the metaphor that writing a book is like giving birth. In truth, writing a book is more like raising a child: both require endurance, intuition, and patience -- and that difficult, delicate balance of focused attention and letting go. Of course, there are no absolute rules for good parenting or writing, but I think six principles govern both.

Principle #1: Your growing book needs your time.

In the beginning, you may think that you are giving time to your book when you think about it often, discuss it with friends, and imagine the awards it will win and how you are going introduce it on talk shows. But your book is too young to care about talk shows. It wants your time. It wants you to sit down with it and give it your full concentration.

Although naming yourself a "writer" sounds glamorous, the actual work of writing can be as dreary and repetitive as diapers and messy feedings: the days the writing plods, the computer breaks, and you must throw out weeks of work. Worst of all, you may be regularly assailed by a sense of how unprepared you are for this work, by how little you know, by the fear that, in your ignorance, you will irreparably damage your burgeoning idea. But it is too late to send your book back; you must work anyway.

The decision to write a book requires the willingness to make sacrifices. As with a child, your writing needs you even on the days you are tired, depressed, angry, or frazzled. To do the job well, you may need to cut back on other commitments: your volunteer work, work schedule, social obligations. People understand that your children must be your priority: give your writing a similar value, so that other people's cajoling and guilting -- and your own desire for mindless distraction -- cannot sway you.

Principle #2: Your book needs quality attention

Your book is sensitive to your emotional state. Irritability, anxiety, or drama can disturb your book and cause it to lose vibrancy and confidence. On the other hand, when you are well-rested and well-fed, when you are exercising, praying, meditating, or doing whatever else you need do to be healthy, your book will feel more confident and able to take risks. Therefore, the time required to take taking good care of yourself is not a diversion, but a gift to your work.

Your book will feel safe and relaxed if it has some sense of structure and order. Like children, different books require a different balance, but most books benefit, especially when young, from predictability: familiar rituals, familiar places, an expected routine.

But if you always approach your book with a serious sense of duty, it will imitate you and become serious and dutiful. If you always hold your book to a strict schedule and high standards, it may shrink under the weight of your expectation. Or it will feel the need to perform for you and become artificial and contrived. Or, knowing that it will fail to please you, it will rebel and will refuse to work at all.

Your book needs to play. It gets tired of always being groomed for some future reward it cannot imagine. It would like to take some wild flights of fancy together -- to stretch your imaginations to the edge of absurd, to surprise yourselves, to laugh -- to get your fingers in the finger paint and slosh wide, crazy swaths all over the paper.

Of course, what you know, but must not tell your book, must not tell yourself, is that during this play, you will begin to see parts of your book's identity you had not recognized before: its rich imagination, its depth of character, its unique rhythms and obsessions. When you ease your expectations, your greed for a particular outcome and are fully present in the play, you may find the very center of the book, which had been eluding you.

The only kind of attention your book should not have to endure is abuse. It will suffer if attacked with accusations of failure or blame for your suffering. It does not deserve to carry your fear or self-loathing. It is young and innocent and did not do anything to harm you. Your burdens are yours, not the book's, and until you stop your attacks, your book will be oppressed. Fortunately, though, your book has a healthy resilience and strong will to live: even when you neglect it, abuse it, abuse yourself, it will be waiting patiently for you to recover yourself.

Principle #3: Don't ask from your book what is not its responsibility to give you.

Your book has its own identity which exists in relationship to you, but is not you. It has been called into the world with its own purpose, which you are to nurture, but which you may not fully discern. It is not the book's responsibility to fill what feels empty in you.

When your relationships are sour or your life feels meaningless and you ask your book to provide for you a sense of companionship and worth, your book will try too hard to please you and become tentative and self-conscious. Or knowing it will fail to meet all your needs, it will resist beginning or will be exhausted by the strain. Your book longs for your attention, but it does not want to be your only purpose; then you will need too much from it.

You cannot ask your book to give you status, make you money, gain you popularity, pad your resume, impress your friends, vindicate you to your parents, or advance your career. When it fails to do all these things, which it certainly will, it will feel heavy with shame which should not belong to it. Your book's only job is to find itself, to tell its story as truly and well as it can. Anything else is an unnecessary distraction and burden.

Surprisingly, your book may begin to assert an identity that is different from yours. It may have different values, interests, and priorities. It may have different politics or religious views. It may be more or less tolerant than you -- or angry or sarcastic or intellectual or funny. But the book is not you, so you do not need to make excuses or be embarrassed. Certainly, you can inform it with your core values of love, respect, truthtelling, but you must let it find its own way, its own voice and truth.

Your book does not want to be compared to other books. It does not mind learning from others, but it does not want to be in competition with them. It has its own purpose which cannot be usurped by another. You may have grand hopes for your book, but you must not be ashamed if your book has a humble career. Perhaps excerpts from your book will be splashed across the New York Times Review of Books or anthologized in a college reader, but it may have been called forth to touch just a small group of quiet people. Do not despair that you have been called to give them a gift: those quiet people in quiet homes are as important as any others.

Principle #4: Let your book mature at its own rate.

For some of us, a strict writing schedule shields our book from inevitable dramas and distractions. However, you should not try to force your book to grow faster than it is able. Your book has its own rate of maturing. If it matures much more slowly than its peers or siblings, you will need to be patient. Fear, competition, and ambition may cause you to try to accelerate the creative process. We all want our books to grow in neat, predictable stages and can feel unsettled when brilliant flashes of maturity are followed by pages of toddler-dribble. But every book has its own pacing and some have much more difficult childhoods than others.

Principle #5: Make sure your book keeps good company.

Be careful about to whom you expose your book and when. When your book is an infant, it needs to be surrounded only by encouragement and love, by people who love it for what it is, expect nothing from it, delight in its every burp and sign of blossoming. At this stage, criticism will only stunt its growth.

However, a book which never receives correction or direction is in danger of becoming sloppy, vague, and self-satisfied. So in addition to clearly recognizing the book's strengths and praising them regularly, you and other well-chosen critics must point out whatever is holding the book back from its fullest potential.

But the criticism it receives should be in direct relationship to its maturity. The older and more developed the book the stronger its structure and sense of identity, the easier it will be to discern which criticism is destructive and which brings the work to a higher level of clarity and beauty. At all stages, you must protect it from those who are envious, competitive, or just plain dull-minded.

Principle #6: You must let your book go.

There comes a point when your book will be grown and you will have to release it. You must plan for this time so you won't cling. The book must move from your home into the world without guilt and without a sense of responsibility for you.

At this point, you must recognize that your book has it own unique purpose, now separate from you. Although you can encourage and celebrate its successes, you must not ask it to validate you with awards, wealth, prestige. At the same time, you must not hide your book from risk because you are afraid for it, because you underestimate it, because you want to protect it, and therefore yourself, from rejection.

When your book leaves you, it is getting married to its readers. It is going to have an intimate relationship with someone you barely know, or don't know at all. You have shared something important and profound with the book -- its conception and growth, but your book will never again belong to you in that same exclusive way. You may feel empty and weepy, but what the book has given you, the humility and growth it has called forth from you, cannot be taken from you.


--------------------------------------------------------------------------------

**Tarn Wilson is a high school English teacher and a freelance writer. Her essays have appeared in the Christian Science Monitor, Inlands, and the anthology Hard Love: Writings on Intimacy and Violence published by the Queen of Swords Press. She contributes regularly to the website Spirituality.com. She also teaches adult courses in personal journaling, nature journaling, travel journaling, memoir, and creative writing.

So, Bamanda, give me a break....


- anandamide - 09-11-2005 12:46 AM

This author has described a very idealist construction of parenting that diminishes motherwork both qualitatively and quantitatively. How can sitting in a quiet room creating a written work be compared with simultaneously doing five loads of laundry, cooking a meal, wiping the baby's bum, resolving a squabble, while being on hold to speak to transit information because as a disabled single mother you are too poor to own a car even if you could drive but can't because you have Asperger's? More importantly,  how is it possible to write a novel while doing motherwork? The author above has appropriated idealist principles of parenting to apply to her process as an author but the underlying ideology of her approach to the written text is sexist

There is a widely acknowledged problem in English literature which is that linear narrative is about conquest. The linear narrative is not as useful to others as it is to the unencumbered white male author because it assumes a whole range of resources that are not available to anyone considered "other". This is why most books are written by men, not only are women's lives too restricted by caregiving to allow much time for writing, but also the very way in which narrative has been structured in terms of linear progression and conquest sets up barriers for anyone who does not fit the slot of white unencumbered (nondisabled) male to tell their stories. The appropriation of motherwork in the metaphor that parenting is like writing a book is sexist.


- chamoisee - 09-11-2005 01:58 PM

OK, look. Do you want to spend endless amounts of time arguing nitpicky little things and defending your book, or do you want to really know what goes on in an autie's head and how we perceive things?  

Because I'll tell you something: an aspie can debate a subject for a loooong time, not out of malice or spite or even necessarily true disagreement. Some of us (and I fit into this category) just like the exercise of a debate. So don't take it personally if you feel attacked, because it isn't all that personal. Hell, I argue with books, I argue with myself, I argue even when I agree with the person I'm debating with, just to try out the other side for awhile.....

But I have doubts that this sort of exercise will be conducive to your original goal!  :wink:


- anandamide - 09-11-2005 05:43 PM

Thanks Chamoisee, very well put.  I did not debate you out of meanness, V.  I went off on that tangent to provide information to be helpful.

I am still learning myself the various dimensions of my aspie nature. I've kept it closeted my whole life until the last year during which I was diagnosed. I understand more about who I am now and this emboldens me to speak my mind.  I'm sure you can relate to that, can't you V?


- Brightman - 09-21-2005 10:42 PM

Did you finish your story, Vendaia?


RE: Why I am on this board... - tenaciouscj - 05-23-2007 02:32 PM

I don't know that Rain Man really caused people to come away with the wrong ideas. It seemed to me that there was a bit more going on in the family than just Rain Man having autistic savantism.

His brother and father also showed signs of autism - possibly HFA or Aspergers. They both seemed hyperfocused on certain subjects and had difficulties in expressing emotions.


RE: Why I am on this board... - Noetic - 05-23-2007 03:23 PM

tenaciouscj Wrote:
I don't know that Rain Man really caused people to come away with the wrong ideas. It seemed to me that there was a bit more going on in the family than just Rain Man having autistic savantism.

His brother and father also showed signs of autism - possibly HFA or Aspergers. They both seemed hyperfocused on certain subjects and had difficulties in expressing emotions.


I doubt his brother was on the spectrum but he certainly had traits, thanks for bringing this up - he seems to struggle with emotions and social things quite a lot too, just in a more "NT-friendly" way.


RE: Why I am on this board... - tenaciouscj - 05-23-2007 04:01 PM

That's fine. I also wondered if their dad had Aspie traits as he seemed to have a lot of trouble showing the boys affection, particularly the younger one. He was also very interested in his rose bushes and his car. I can't remember what happened to their mother or if much was said about her personality.


RE: Why I am on this board... - skyblue1 - 09-10-2011 12:57 AM

**bump**