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visual perception problems - gollymolly - 08-23-2009 03:18 AM

Hi there
I have 2 kids on the spectrum, th older one is 7 years old, and I have just had ahuge shock the other day realising for the first time that he has depth perception/visual perception problems. I am shocked that I never knew, and that he has had to deal with it without us understanding!
But now I know, I am trying to work out the next step - where to get physically assessed (what kind of doc), what this means for him, how to help him adapt to life with it. This is so new to me! Does anyone else know about this problem? Could you give me some pointers?


RE: visual perception problems - micgrace - 08-23-2009 03:25 AM

I presume you are referring to clumsiness? More than a few with aspies have some issues in this area. Or do they just need a proper pair of spectacles?


RE: visual perception problems - gollymolly - 08-23-2009 04:09 AM

micgrace Wrote:
I presume you are referring to clumsiness?


No, although it would cause clumsiness. I mean, he says he sees things in 2D - like a picture or TV. Anything further than 15-20 cms from his eyes looks flat. Therefore, a ball being thrown towards him looks like part of the background, just growing inexplicably larger. No wonder he couldn't catch a ball!

I'm therefore assuming a depth perception type of visual problem. I wondered if anyone had heard this discribed/come across it/has it themselves.


RE: visual perception problems - micgrace - 08-23-2009 04:21 AM

I think you need to see an optometrist as a first stop. This is probably an unrelated disorder and I can only speculate what to it may be. This article may shed some light.
http://www.educcomp.co.nz/ftp/Visual_Perception_Disorders.pdf


RE: visual perception problems - gollymolly - 08-23-2009 04:47 AM

Thanks, Micgrace. I have been trawling the internet, but it's hard to find info on something when you don't know what it is. I haven't read of anything like it yet in visual perception, but I'm going to read that article now.
My OT mentioned behavioural optometrists?? Never heard of that, but she'll find me a number and I'll pursue that angle too. I can just picture seeing the doc and them saying "huh? don't know what you mean". I feel like parents have to pull the various threads of info together.


RE: visual perception problems - gollymolly - 08-23-2009 04:50 AM

PS. His "eyesight" per se has always been 20/20.


RE: visual perception problems - micgrace - 08-23-2009 04:51 AM

I would get a refferal to a conventional optometrist first to rule out or in any conventional vision problems first, and they are legion. In OZ one doesn't even pay for the service, medicare does. Elsewhere? I don't know.


RE: visual perception problems - zoey - 08-23-2009 05:08 AM

It's okay, GollyMolly.  It can be a part of autism, and I have it too, no depth perception, 2D.  But there is nothing to worry about. Your child should by now have figured out how to use many other visual cues to judge depth.  He will function almost as well as any other kid.  Problems arise in sports with balls, but he can still play.  Slight difficulty with hand-eye coordination.  Driving eventually will be much harder, but it's best to teach your kid to stay conscious anyway while he is driving.  I am a very cautious but safe driver and have never had an accident, almost 30 years of driving with no depth perception.  He will need to adjust to each new car he has to figure out the car's dimensions for parking and needs to watch carefully for trucks with long poles or objects coming out.  Cover one eye with a patch from the drugstore for a day and you will see what it feels like.  

  The other visual perception usually connected with autism perception problems is a form of dyslexia which involves flashing and not being able to see where the next line is when reading.  One of our members has started her child on tinted lenses for a similar problem, so you might want to check into that as well.  That worked well for me.

    You can do a standard form of eye exercises to help with the depth problem if it's a question of the image from each eye being slightly different due to muscle weakness.  The doctors explained to me that the brain can't process both sides when the musculature of the eyes are different so it suppresses one side or the other and that's why there is no 3D.  Mine did not improve, but some people's do with home exercises.  Color blindness is more to worry about and people do fine with that.  But go to the doctor for sure in case the exercises work for him.  Good luck!


RE: visual perception problems - gollymolly - 08-23-2009 11:29 AM

zoey Wrote:
It's okay, GollyMolly.  It can be a part of autism, and I have it too, no depth perception, 2D.  But there is nothing to worry about. Your child should by now have figured out how to use many other visual cues to judge depth.  He will function almost as well as any other kid.  Problems arise in sports with balls, but he can still play.  Slight difficulty with hand-eye coordination.  Driving eventually will be much harder, but it's best to teach your kid to stay conscious anyway while he is driving.  I am a very cautious but safe driver and have never had an accident, almost 30 years of driving with no depth perception.  He will need to adjust to each new car he has to figure out the car's dimensions for parking and needs to watch carefully for trucks with long poles or objects coming out.  Cover one eye with a patch from the drugstore for a day and you will see what it feels like.  

  The other visual perception usually connected with autism perception problems is a form of dyslexia which involves flashing and not being able to see where the next line is when reading.  One of our members has started her child on tinted lenses for a similar problem, so you might want to check into that as well.  That worked well for me.

    You can do a standard form of eye exercises to help with the depth problem if it's a question of the image from each eye being slightly different due to muscle weakness.  The doctors explained to me that the brain can't process both sides when the musculature of the eyes are different so it suppresses one side or the other and that's why there is no 3D.  Mine did not improve, but some people's do with home exercises.  Color blindness is more to worry about and people do fine with that.  But go to the doctor for sure in case the exercises work for him.  Good luck!




RE: visual perception problems - Marcia - 08-23-2009 11:37 AM

Hi there, gollymolly! Smile  I have to go and get ready for church in a few minutes and will come back to this thread.

I took my son recently to a multisensory opticians and he now has green lenses which are helping him.  Coloured lenses can also assist with depth perception and I have read about something called linked prism lenses being used to help with issues such as this.

My son has been wearing glasses for a couple of years, but this new optician asked questions no one had asked before.  One was whether people looked "normal".  My son said, yes, then the optician asked if people sometimes looked as if they had two heads.  My son said, "Oh, yes, and one of the heads you can't touch"!!!  I had no inkling of this before.

Got to go now, but when I get back I'll see what information I can find.  I have a library book about the prism lenses and will give you info about that.


RE: visual perception problems - gollymolly - 08-23-2009 11:48 AM

Woops, I don't know what happened thereSad This is my reply...

Thanks guys for the input, I do appreciate it!

I'm really interested, Zoey, to hear from an adult what he's talking about. So he described it pretty accurately. He is learning to compensate, he has been working with an OT, and his ball catching is really coming along, but I just couldn't imagine what it must be like for him to see in that way. He gets stuck up in trees, etc that are not high because he can't judge the distance to the ground. Does it bother you on a day to day basis? Like perhaps making your eyes tired easily?

I'll talk to the OT about the eye exercises. The coloured lenses are Irlen lenses? I'll look into those too. I just feel sorry for the kid, having to deal with so many obstacles. Luckily I homeschool him, because he'd really struggle in school. Well, he was struggling, that's why I took him out. There just seems to be so many pieces of the puzzle to pull together - dyslexia, dysgraphia, dyspraxia. I believe I am on the spectrum as well, and have ADD, but I don't have any of the dys's, so I'm trying to understand his experience of life, especially as his teacher as well.


RE: visual perception problems - gollymolly - 08-23-2009 11:55 AM

Marcia Wrote:
Hi there, gollymolly! Smile  I have to go and get ready for church in a few minutes and will come back to this thread...

Got to go now, but when I get back I'll see what information I can find.  I have a library book about the prism lenses and will give you info about that.


Thanks so much, Marcia!


RE: visual perception problems - micgrace2 - 08-23-2009 11:55 AM

I looked at this site and found i am a prime candidate myself for the coloured lens treatment. I always have been hypersensitive to certain colours and glare and brightness. But my depth perception is excellent.
http://irlen.com/index.php


RE: visual perception problems - gollymolly - 08-23-2009 12:15 PM

Wait a second - are there two of you?

micgrace2 Wrote:
I looked at this site and found i am a prime candidate myself for the coloured lens treatment. I always have been hypersensitive to certain colours and glare and brightness. But my depth perception is excellent.
http://irlen.com/index.php


That was a good link, thanks, you have all been so helpful. I wonder how easy they are to get assessed for in New Zealand.

I'm also light sensitive, but I always wear sunglasses (this also helps with the whole eye contact ordeal). But this could help my boy.


RE: visual perception problems - micgrace2 - 08-23-2009 12:25 PM

The site lists these people in NZ. I must say, I am going to go along I found out something as well I wasn't entirely aware of.

Alison Goodall
City  Auckland – Northshore
Tel: 09-475-5330
Email:  readingsolutions@xtra.co.nz

Diagnostician David T. Wardell
City  Auckland – Pakuranga
Tel: 09-576-5390
Email:  david@irlenclinic.co.nz

Diagnostician John Anstice
City  Christchurch
Tel: 03-343-3909
Email:  j.anstice@xtra.co.nz

Diagnostician Mark Eagle, Dip Opt
City  Hastings
Tel: 06-876-3777
Email:  meagle@visique.co.nz

Diagnostician Clayton Riley
City  Invercargill
Tel: 03-214-4181
Email:  ckmec@watchdog.net.nz

Diagnostician Paul Prangley
City  Nelson
Tel: 03-548-2702
Email:  futureproof@xtra.co.nz

Diagnostician Mary Cubie
City  Rotorua
Tel: 07-348-8816
Email:  mary@irlenclinic.co.nz

Diagnostician Nyree Grigsby
City  Rotorua
Tel: 07-347-8280
Email:  warren_nyree@xtra.co.nz

Diagnostician David Aldridge
City  Wellington
Tel: 04-939-0505
Email:  aldridge.optom@paradise.net.nz


RE: visual perception problems - micgrace2 - 08-23-2009 12:28 PM

No, not two, one, just when one reaches ones post limits the alter ego kicks in.


RE: visual perception problems - gollymolly - 08-23-2009 12:41 PM

Hey, wow, thanks!

"No, not two, one, just when one reaches ones post limits the alter ego kicks in."

Oh! Well, I'm glad this discussion has helped you as well.


RE: visual perception problems - zoey - 08-23-2009 06:21 PM

Yes, in US they are Irlin lenses.  But the reason you probably wear sunglasses a lot is exactly the same principle.  Also the reason some of us like to read in the dark.  

  As far as what it's like, I have to admit, it does affect me every day.  Escalators are very, very hard.  Many stairs are difficult, especially when they have safety stripes on them.  Forget rock climbing and tree climbing, ladders are very hard.  Any hiking is hard.  All eye-hand coordination, sports, getting on a boat.  But I know someone who is blind, and also had a friend who was deaf, and this is easy compared to that.  So I never thought it as a bad thing.  It never stopped me from doing what I wanted to do, but sometimes I need extra help.


RE: visual perception problems - Marcia - 08-23-2009 06:53 PM

The optician my son saw didn't mention anything about Irlin lenses, but it would seem from what I read on that very interesting website someone linked to earlier, that that is what they are.  In fact, the optician wasn't very willing at all to explain what it was all about and how it worked.  I didn't like him very much and did find him quite patronising.  I appreciated that it would take too long during the appointment to explain everything to me, but he could have recommended websites or books for me to read later.  He seemed to enjoy his "expert" status and didn't seem to like me asking questions.  /rant! Smile

The book I mentioned earlier, which explains the role of prism lenses and vision therapy is Seeing through new eyes:  Changing the lives of children with autism, Asperger Syndrome and other developmental disabilities through vision therapy by Melvin Kaplan.  Published in 2006 by Jessica Kingsley Publishers.

This is an extract from the first chapter.

"Many hyperactive children, for instance, see the world as two-dimensional rather than three-dimensional.  Objects in their environment appear flat to them, and they can't visually 'feel' them.  When you look at a house plant or a vase, you can easily grasp its form and location, but a hyperactive child can't, and thus he or she has an overwhelming urge to grasp the object physically - often with disastrous results.  What looks like a behavioural problem - 'Johnny's out of control, he's like a bull in a china shop' - is actually the child's way of accommodating to a world in which shape and form are distorted.  Johnny can't locate objects with his visual system, so he uses his motor system.  He's not bad, or wild; in fact, he's being perfectly logical.

Hypoactive children, on the other hand, react to their visual problems by saying, in effect, 'I give up'.  Like a person simulatneously being told turn left, turn right, go straight and go backward, these children attempt to deal with a barrage of conflicting messages by doing nothing at all.  These are the wallflowers, the kids who sit in the back of the class and hope they won't be noticed, and the children who sit on the sidelines as spectators.  They're not lazy or obstinate; rather, they've learned that they're likely to fail or even get into trouble by trying to act on the distorted visual data they receive.

To autistic children, the world can appear even more alien and unwelcoming, because their visual systems are far more impaired.  Well-known autistic author, Donna Williams, for example, remembers how walls would ripple and shimmer when she looked at them.  Other autistic people experience 'white-outs' or 'black-outs', or say that looking at people directly is like looking 'through a bowl of jelly.'"


RE: visual perception problems - zoey - 08-23-2009 10:14 PM

Dr. Kaplan was my eye doctor in NYC.  I went through his program.  I had no idea he was now working with autism.  Thanks, Marcia, for this mention.  I will check out the yoked lenses.  I still never got 3D with his program, but maybe there is more available now.  It's been decades.  Irlin lenses were not connected with his work that I know of.


RE: visual perception problems - Marcia - 08-23-2009 10:28 PM

zoey Wrote:
Dr. Kaplan was my eye doctor in NYC.  I went through his program.  I had no idea he was now working with autism.  Thanks, Marcia, for this mention.  I will check out the yoked lenses.  I still never got 3D with his program, but maybe there is more available now.  It's been decades.  Irlin lenses were not connected with his work that I know of.


That's amazing, zoey.  It seems from the foreword to this book that he started working with autistic patients in the 1990s.

And you're right, he's not involved with Irlin lenses.  His area of work and interest is in prism lenses.


RE: visual perception problems - zoey - 08-23-2009 10:43 PM

I wish I had kept up on his work, but so glad you ran across this, Marcia.  I have found another site that talks about post traumatic vision syndrome that seems to describe a possible connection between some of our anxiety in high-stimulus environments with neurological visual problems.  If this can be reached through eye therapy, I would be very interested to try it.  

http://www.neuroskills.com/tbi/vision2.shtml

Here is an excerpt.  This describes my experience pretty well.  GollyMolly, it sounds like this can be worked with.  I am going to look into it for myself.  It's never too late.
------------------------------------------------------------------------------
Following a TBI, CVA, or other neurological event frequently individuals lose this ambient visual process and instead are left with a focal processing system that breaks up the visual world into isolated parts. This causes individuals extreme difficulty, not only with balance and movement, but also affects the person in other ways such as in the person's tendency to compress and limit their spatial world.

This creates experiences such as an inability to find an object on a shelf in a store. The compression of space causes a focalization process to function both centrally as well as peripherally. This has greater meaning when one thinks of what the experience must be like when all the bottles, cans, and boxes on the shelf is suddenly experienced as massive amounts of detail causing the person to be unable to isolate one detail from another.

Movement in a crowded environment also becomes quite disturbing because the ambient visual process is supposed to assist in stabilizing the image of the peripheral retina. Without this system the person internalizes the movement that he or she is experiencing in the peripheral vision. This become extremely disturbing and causes vertigo, and severe dysfunction. The authors have found that a combination of low amount of base-in prisms and binasal occlusion have been extremely effective in almost immediately offering increased stability to the ambient visual process, thereby reducing the symptoms and enabling the person to re-establish levels of independence that were otherwise not achieved.
-----------------------------------------------------------


RE: visual perception problems - gollymolly - 08-23-2009 11:34 PM

I'm so glad I asked the question - this discussion has been incredibly fruitful. Wow, Zoey, I hope you get some results too. This actually breaks my heart for my son way more than having autism in itself - when he was dx'd I wasn't upset because it's just part of him, the way he's made, and because I understand him being that way, being that way inclined myself, but a vision problem seems somehow different. Especially since he had a traumatic birth and was partly oxygen deprived, and my husband always feared he might have some damage from that. I always denied it, saying he's perfect. To me this just seems like something he doesn;t need to have.

I really appreciate all the input, bless you guys!


RE: visual perception problems - Marcia - 08-24-2009 12:01 AM

I'm glad you asked the question as well, gollymolly.  It's been a really interesting discussion and hopefully you've got a load new information now to help you find out what's going on with your boy's vision and get the right lens and/or visual training for him.

My son only got his green lenses a week ago yesterday, but within a day he was saying that they made him "feel better".  He also says that he can smell things now, which he couldn't previously.  Within an hour of getting them we went to a swingpark and he climbed up a high climbing tower and slid down the chute!  He was triumphant as he had climbed up it many times before, but couldn't bring himself to slide down and always had to climb slowly back down, sometimes needing help to do that.

I hope it all goes well for your son, and that you let us know how it's going. Smile


RE: visual perception problems - gollymolly - 08-24-2009 12:13 AM

Thanks, Marcia. I'm pleased you've had such success for your son! That's pretty amazing! How old is he? It must have been a shock when he said he had double vision. It's amazing what kids can live with, not knowing it's different from anyone else.


RE: visual perception problems - Marcia - 08-24-2009 12:51 AM

gollymolly Wrote:
Thanks, Marcia. I'm pleased you've had such success for your son! That's pretty amazing! How old is he? It must have been a shock when he said he had double vision. It's amazing what kids can live with, not knowing it's different from anyone else.


My son's 7, he'll be 8 in December.

It was weird hearing that he was seeing double like that, although when he also said that he could make it happen by choice a lot of the time I realised that I have always been able to do that and never really thought about it.  I also see double, not by choice, and when I do I move my head back and forward to fix it.  When we went to see my parents after the initial appointment my mother says she's the same.  My father felt like the odd one out! Big Grin

That's what's so fascinating about vision, or any sensory experience I suppose.  What you experience is normal for you and unless someone asks the right questions or shows you an alternative, you never know that your experience is unusual.


RE: visual perception problems - gollymolly - 08-24-2009 02:38 AM

"My son's 7, he'll be 8 in December"
Oh, our boys are the same age.

"I also see double"
That's amazing. Did you just think that was normal, and go on with life? I was quite surprised my son knew to comment that he saw in 2D - how did he know we saw things differently, I wondered.


RE: visual perception problems - Marcia - 08-24-2009 02:45 AM

Maybe he read something about it, or saw something about it on TV?  My son has spoken to me about things being 2 and 3 dimensional.  Maybe it's something children become aware of, or curious about at that age.

So did he just come out and tell you that he saw in 2D?


RE: visual perception problems - Marcia - 08-24-2009 02:49 AM

For a long time I've noticed that my son kind of flicks his eyes about, apparently not looking at or focussing on anything.  A friend commented that it looked weird but I had just assumed that he was "playing" with his eyes, because that's what thought of it as.  I still do it sometimes, but until I saw my son doing it I didn't know what it looked like to someone else, but I recognised it for what it was when I saw it.

The next time I saw him doing it, I asked what he was doing and he said, "I'm playing with my eyes!"


RE: visual perception problems - gollymolly - 08-24-2009 02:53 AM

Hm, maybe it was TV. He watches a lot of bug-related docos - perhaps they talked about this one seeing this way or that. I wonder if he'll remember, if I ask him.

He made some comment quite a while back, about things looking flat. I couldn't imagine what he meant, so I didn't know who to ask what. And I didn't know what to google. Actaully I did ask the man who ran our SPELL course, but he just shrugged and went "I have no idea". And then the other day he was playing with a ball, and said something which caught my attention and I questioned him about it. He was calling it seeing in 2D, like a picture or TV. He says it's disconcerting (not his word) that when he is up high looking down at us, we look like we have actually shrunk in size.


RE: visual perception problems - Alison - 08-24-2009 02:58 AM

gollymolly Wrote:
Hi there
I have 2 kids on the spectrum, th older one is 7 years old, and I have just had ahuge shock the other day realising for the first time that he has depth perception/visual perception problems. I am shocked that I never knew, and that he has had to deal with it without us understanding!
But now I know, I am trying to work out the next step - where to get physically assessed (what kind of doc), what this means for him, how to help him adapt to life with it. This is so new to me! Does anyone else know about this problem? Could you give me some pointers?


Speaking from personal experience, and from recent articles in magazines like "New Scientist", a lot of autistics have exceptionally good visual acuity.  I remember one article quoted that our eyesight rivals that of eagles, although there was some discussion here that the cause could have more to do with our hyperfocus than the eyes being more acute per se.

My own eyesight was 20/20 until a couple of years ago, although now old age means I need glasses to read clearly.  

I'd agree with micgrace and others who've posted on this thread that your son could have an eye problem that is separate to autism.

Alison


RE: visual perception problems - gollymolly - 08-24-2009 03:01 AM

Marcia Wrote:
 I still do it sometimes,... I asked what he was doing and he said, "I'm playing with my eyes!"


Interesting. Is it some kind of stim? I mean, does it have some kind of emotional payoff?


RE: visual perception problems - gollymolly - 08-24-2009 03:07 AM

Alison Wrote:
I'd agree with micgrace and others who've posted on this thread that your son could have an eye problem that is separate to autism.


It could very well be. Like I said, I'm not worried about the autism, but I am about his vision. As I said, he has always tested with perfect "eyesight", but I now know there can be other visual problems. I also hate that it could have been caused by his birth - if something is genetic, you can't do anything about it, but this feels like something that could have been avoided Sad


RE: visual perception problems - gollymolly - 08-24-2009 03:08 AM

Zoey, when did you realise you were seeing differently from other people?


RE: visual perception problems - zoey - 08-24-2009 03:33 AM

gollymolly Wrote:
Zoey, when did you realise you were seeing differently from other people?


  I knew there was something wrong from the eyeglasses, patch and exercises at about 6 yrs old.  But I didn't notice it for myself until about 7 years old, when my mother had an old-fashioned kind of 3D book where you put on cardboard glasses with one green eye and one red eye and the photos magically turned 3D.  Everyone else could see it so I asked why I couldn't and they explained what 3D was.  Also when I mentioned the flashing walls and the objects jumping around others didn't relate.    

  I play with my eyes to switch between right and left because it is interesting, a distraction, but not in front of others.  I can see double or not at will by doing a slight head turn.  I had to cock my head to focus on anything important until late teens work with Dr. Kaplan's technique.


RE: visual perception problems - gollymolly - 08-24-2009 04:56 AM

zoey Wrote:
  I had to cock my head to focus on anything important until late teens work with Dr. Kaplan's technique.


That must have been tough!


RE: visual perception problems - zoey - 08-24-2009 08:25 AM

gollymolly Wrote:

zoey Wrote:
  I had to cock my head to focus on anything important until late teens work with Dr. Kaplan's technique.


That must have been tough!



    I think it was a different era.  I guess as kids we weren't expected to be so perfect.  Parents were happy with ten toes and fingers, mostly.  No one was ever worried about me.  Every kid seemed to have their problems.  No one knew about autism or dyslexia or ADD.  It didn't occur to me that I had it bad.  A tilted head just wasn't a big deal then.  I think there is a little more pressure on kids now.


RE: visual perception problems - gollymolly - 08-24-2009 08:35 AM

Maybe we do have differnet expectations with medical technology being what it is, we expect everything to be "cured". I just think it must be hard to have to struggle to focus every day. But as you say, even in my generation, in the 70s, school life was hell for me, but again, no one noticed. You just had to suck it in. I didn't know any different either, didn't feel sorry for myself or anything. I don't really see it as pressure on the kids, though, well, not from me as a parent, anyway, and he's out of the school system.


RE: visual perception problems - zoey - 08-24-2009 07:34 PM

gollymolly Wrote:
Maybe we do have differnet expectations with medical technology being what it is, we expect everything to be "cured". I just think it must be hard to have to struggle to focus every day. But as you say, even in my generation, in the 70s, school life was hell for me, but again, no one noticed. You just had to suck it in. I didn't know any different either, didn't feel sorry for myself or anything. I don't really see it as pressure on the kids, though, well, not from me as a parent, anyway, and he's out of the school system.


  I can definitely sense that your feeling towards your son's issues are about caring and not about pressure.  And that is a really important difference that not all parents make.  He is lucky to have you.


RE: visual perception problems - gollymolly - 08-24-2009 10:09 PM

Thankyou, Zoey.


RE: visual perception problems - gollymolly - 08-25-2009 10:22 AM

Zoey, do you have any problems with reading?


RE: visual perception problems - zoey - 08-25-2009 11:12 PM

gollymolly Wrote:
Zoey, do you have any problems with reading?


Lots of problems.  But language is my best area, and I read like a maniac during childhood.  So if I am interested, I will do it.  I have dyslexia where I cannot retain on certain subjects no matter how often I relearn and cannot read instructions well, but I retain for a day or two to pass tests.  Reading is my favorite thing to do anyway.  Who cares about a little discomfort?  It's all gotten better over time.  What does your son have in terms of reading, or both sons, you have two, right?


RE: visual perception problems - gollymolly - 08-25-2009 11:42 PM

I have a 2 yr old daughter as well (also dx'd), but my son's reading comprehension is good, but he is just so reluctant to read I wondered what might be the problem - difficulty concentrating, yes, I can understand that, but I wondered if it could be related to the visual issues, maybe the text jumping around/seeing double??


RE: visual perception problems - zoey - 08-26-2009 12:31 AM

gollymolly Wrote:
I have a 2 yr old daughter as well (also dx'd), but my son's reading comprehension is good, but he is just so reluctant to read I wondered what might be the problem - difficulty concentrating, yes, I can understand that, but I wondered if it could be related to the visual issues, maybe the text jumping around/seeing double??


Sorry, gollymolly.  I got you.  Yes, text jumps around.  The main problem is not being able to see a line of text in a book as a straight line.  It is only straight if you look at a tiny portion of it.  The rest of the line is bouncy and angled.  Also for me, the white part of the paper flashes a little.  He may be seeing double, but he might be able to learn to tilt his head a little to help that.  The main thing that worked for me is I was read out loud to about a half-hour a night, from really interesting books a long time past the normal bedtime story age, so it allowed me to improve my understanding of language without the difficulty of reading and also reinforced the idea of how great reading is even though it's hard.


RE: visual perception problems - gollymolly - 08-26-2009 04:47 AM

That was good of your parents. So you got a love of language and literature. Yes, I read to my son, and write for him too Tongue (scribe). Since all this has come up, his OT is going to do afull assessment on him and see what that picks up, and she's also recommended doing a SPELD course. I'lll have to look up what that is, but to teach him, or even to guide future teachers, I need to know what all his difficulties are. Poor kid. This has hit me quite hard. It's just one more thing he has to live with on top of all the dys's. Still, he's physically healthy (no illnesses), which I think is the most important and I'm so thankful for that. The worst must be the terror for a sick child. Also, he's a really happy kid, that's the other most important thing.


RE: visual perception problems - gollymolly - 08-26-2009 07:12 AM

Micgrace, you mentioned practitioners in NZ, my OT has given me the following contact:

Evan Brown of Howes and Brown optometry. He is a Behavioural Optometrist, His email is:  evanbrown.handboptom@xtra.co.nz . His phone is 5284198. (He's on the north shore in Auckland.)

I'm not sure where you are, but if you're interested I suppose they could point you to someone in your area.


RE: visual perception problems - gollymolly - 09-22-2009 11:53 AM

For those who helped me out, this is just an update on my son's vision problem. He was tested by some behavioural optometrists, and it turns out his biggest problem is that his brain is ignoring info from his right eye (he is left eye dominant), so effectively it is like he is blind in one eye while both eyes are open, though when his left eye is closed, he can see out of the right one. It's called a convergence difficulty, or perhaps he has a convergence problem because of his brain ignoring the information from one eye. Anyway, the problem started way back, probably at his birth as there was some trauma then, and his brain decided it was easier to ignore some info, rather than put it all together and try to make sense out of it.

The simplest test for convergence problems is whether both eyes follow an object, like a finger, when the object or finger is brought towards the subject's nose. The eyes should obviously squint towards each other(convergence). If there is a convergence problem, the dominant eye looks at the finger, while the other eye tracks off to the side.

Anyway, they are going to put him on a programme of exercises to retrain his brain, hopefully. I have found 2 other people who have this problem and who has been helped by the exercises, so here's hoping.

Maybe this will help someone else, too.