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Autistic behavior puts parents, public in discomfort zone - energeia - 08-14-2008 04:37 PM

http://seattletimes.nwsource.com/html/nationworld/2008112638_autism14.html

Autistic behavior puts parents, public in discomfort zone
When a 13-year-old Minnesota boy was banned from church after parishioners complained about his behavior, it exposed a painful truth so politically incorrect that some people feel guilty just saying it out loud: Some autistic children can be annoying and disruptive in public.

By DAVE KOLPACK
The Associated Press

FARGO, N.D. — When a 13-year-old Minnesota boy was banned from church after parishioners complained about his behavior, it exposed a painful truth so politically incorrect that some people feel guilty just saying it out loud: Some autistic children can be annoying and disruptive in public.

The case of Adam Race and others like him has laid bare conflicted feelings — among both parents of these children and other people — over autistic youngsters in public places. And it has stirred debate over how much consideration one side owes the other.

In the case of Adam Race, a judge agreed with a priest in Bertha, Minn., who said the 225-pound teenager was disruptive and dangerous, and upheld a restraining order barring him from services. The priest said Adam spit, wet his pants, made loud noises and nearly ran over people while bolting from the church after services.

Carol Race, Adam's mother, said the congregation's claims were exaggerated. But in a letter to the Star Tribune of Minneapolis, JoAnn Brinda of Crystal, Minn., said the Race family should have shown more consideration for others.

"I don't understand why families that have a challenged child who becomes loud and abusive remain at a service where all participants are quiet and contemplative most of the time," Brinda wrote.

Similar cases involving people with autism have played out in public recently. A California man was kicked out of a health club for screaming. A North Carolina boy was taken off a plane before takeoff after having a meltdown. A South Carolina girl was ordered out of a restaurant by the town's police chief for crying.

Syndicated radio talk-show host Michael Savage added to the furor last month when he charged that doctors and drug companies are overdiagnosing autism, and said, "I'll tell you what autism is: In 99 percent of the cases, it's a brat who hasn't been told to cut the act out." Several major companies pulled their advertising from Savage's show.

Lisa Jo Rudy, who is the mother of an autistic child and writes and consults on autism, said Savage's words were "truly nasty and hurtful." At the same time, Rudy said the talk-show host has raised awareness of some of the frustrations of parents of autistic children and the wider public, too.

Rudy said there are times when parents should not put their children in situations where they may be disruptive. "Some of these stories really are the ones where the general public can absolutely identify with the other side of the story," Rudy said.

Jason Goldtrap of Davenport, Fla., said too many people diagnosed with autism are out and about in public because of political correctness. Goldtrap, 40, has two nephews, ages 3 and 21, with autism, and said the older one has become so violent at times that the police have been called.

"I certainly sympathize with all the families who are in this situation," Goldtrap said. "But when we got away from the concept of institutionalization in America, we lost an important element of trying to maintain civility. There is a place for mental institutions."

Goldtrap added: "If it were up to me, he would be in an institution. My brother doesn't agree, and that's his prerogative." He declined to identify his brother, saying, "I don't want to start another argument."



Autism is a disorder that inhibits a person's ability to communicate and can include a host of complications. It varies widely in its severity. Some people are well-behaved; others are prone to outbursts or self-abusive behavior such as biting or head-banging.

A recent study by the Centers for Disease Control and Prevention estimates that one out of every 150 U.S. children over the age of 8 is autistic or suffers from a related disorder. About 560,000 Americans under 21 are believed to have autism.

Many parents say their autistic children are largely misunderstood, that they can't help it when they act up, and that they need interaction with the public.

Barbara Coppo, whose 30-year-old son, Kenny, was banned from a Vallejo, Calif., health club for screaming, said Americans need to learn about living with autistic children.

"Autism may frighten people because so little is known about the disorder," said Coppo, who wrote a book about her son. "The cause has not been scientifically proven and the victims often act in ways society doesn't understand."

However, some parents wonder how much understanding can be gained in grocery stores, churches or other public places.

Nikki Wilmoth-Williams of Rockport, Texas, said certain high-traffic areas are off-limits for her autistic 14-year-old son, Zach.

"I'm an advocate for my child, but we all have to play on the same playground," she said. "It's not about clearing the playground so my child can be on it."

Rudy advises parents of autistic children to arrange forays out in public with care, which may mean five minutes in the grocery store instead of 45 minutes.

"Certainly there are cranky people in this world. If a mother glares at your child for something that's really pretty harmless, quite honestly that's her problem," Rudy said. "But if your child is going to have a meltdown, I don't think it's in anybody's best interest to bring the child along."

Joe Schmitt, a Minneapolis lawyer who has defended employers against claims they discriminated against disabled employees, said people who object to certain accommodations may be viewed as insensitive.

Schmitt said church officials in Minnesota knew they would be criticized for banning Adam, but took action after the two sides failed to arrive at a compromise.

"I'm not saying they were right," Schmitt said of the church. "But I would disagree with anybody who thinks they did that casually or it wasn't important to them."

Sandy Boyles, whose 18-year-old son, Walter, is autistic, said that when she began attending First Reformed Church in New Brunswick, N.J., she didn't bring him, because in other churches he would run up and down the aisles screeching.

"She was afraid of being ostracized. I told her, 'So what? Bring him anyway,' " the Rev. Susan Kramer-Mills said.

Eventually, the small congregation revised its services to Walter's liking. Worship used to start softly and build to a crescendo. Now, it starts with more noise.

"I have to be careful because sometimes he'll do a fast movement or run," Boyles said. "But the other members aren't as scared as I am."

Copyright © 2008 The Seattle Times Company


RE: Autistic behavior puts parents, public in discomfort zone - Pakrat - 08-14-2008 05:04 PM

Interesting points. I do agree that there are times when it would be better to keep autistic children out of situations which will stress them out and ditto with adults. I got put off a plane for crying because of a sensory overload with screaming kids right behind me. By the time I was put off, I'd been moved near the front and had calmed down.


RE: Autistic behavior puts parents, public in discomfort zone - ocampo - 08-14-2008 06:42 PM

I agree with certain points in this although its awful that they had to mention Savage possibly assisting with awareness of autism. I still maintain that if Adam Race had felt comfortable in the church, he wouldn't have been having meltdowns. I don't have predictable meltdowns in places I feel completely comfortable. Obviously I have had meltdowns in places I'm comfortable; but not consistently.

I also agree with the statement about playgrounds. Equality isn't about being treated better, its about being part of society. Ultimately we all have to share the same space. Just as NTs need to understand more about autism, I also believe that autistics need to learn coping mechanisms. And I stress the term 'coping' - its not about giving up who you are, and its not trying to be NT. Meltdowns are not pleasurable things for anyone, least of all for the person having them.

I always make a point of telling people I'm autistic. Or rather, I say 'I have Aspergers syndrome, its a form of high functioning autism'. I wait until I've been talking and then I drop it into the conversation. My attitude is that if they're thinking I'm an articulate, good-humoured person who is chatting away 'normally', I may have changed their perception of the autistic spectrum.


RE: Autistic behavior puts parents, public in discomfort zone - silky - 08-14-2008 07:42 PM

Here is a different angle.  If autistics have "safe space" granted them (such as is done now when there is a designated room to relax in at an autie event where only autistics are allowed)... then is it equally acceptable for there to be "NT only" areas?


RE: Autistic behavior puts parents, public in discomfort zone - Max the Bear - 08-14-2008 08:13 PM

The first thing I noticed about the article is that it's all about NT reactions to, opinions on, and judgments upon autistics -- and not a word from autistics.

The second is the particularly self-righteous and obnoxious quote from nonentity Jason Goldtrap, "when we got away from the concept of institutionalization in America, we lost an important element of trying to maintain civility."

Civility, apparently, means that people who annoy Mr. Goldtrap should be locked up somewhere so that Mr. Goldtrap doesn't have to see or hear them. I'm sure Goldtrap has a long list of "unacceptables" who should be locked up, silenced, invisiblized and otherwise erased from his Civil Society.


RE: Autistic behavior puts parents, public in discomfort zone - Luai_lashire - 08-14-2008 08:21 PM

silky Wrote:
Here is a different angle.  If autistics have "safe space" granted them (such as is done now when there is a designated room to relax in at an autie event where only autistics are allowed)... then is it equally acceptable for there to be "NT only" areas?


I don't think a quiet room should be either autie only or NT only.  It should just be "quiet only".  If you're being quiet and non-disruptive in it, then why should it matter whether you are autie or NT?  Some NTs need quiet time, too.


RE: Autistic behavior puts parents, public in discomfort zone - Max the Bear - 08-14-2008 08:29 PM

Luai_lashire Wrote:

silky Wrote:
Here is a different angle.  If autistics have "safe space" granted them (such as is done now when there is a designated room to relax in at an autie event where only autistics are allowed)... then is it equally acceptable for there to be "NT only" areas?


I don't think a quiet room should be either autie only or NT only.  It should just be "quiet only".  If you're being quiet and non-disruptive in it, then why should it matter whether you are autie or NT?  Some NTs need quiet time, too.


We've all been so well-trained by the right-wing corporate media, always on the look out for how people who already have all the advantages can grab a few more away from the people with damn few advantages..

Everybody would like a nice quiet place to hang out in. At large gatherings, that is a rare commodity and  it should be reserved for those who legitimately need the space..


RE: Autistic behavior puts parents, public in discomfort zone - Luai_lashire - 08-14-2008 08:52 PM

Max the Bear Wrote:

Luai_lashire Wrote:

silky Wrote:
Here is a different angle.  If autistics have "safe space" granted them (such as is done now when there is a designated room to relax in at an autie event where only autistics are allowed)... then is it equally acceptable for there to be "NT only" areas?


I don't think a quiet room should be either autie only or NT only.  It should just be "quiet only".  If you're being quiet and non-disruptive in it, then why should it matter whether you are autie or NT?  Some NTs need quiet time, too.


We've all been so well-trained by the right-wing corporate media, always on the look out for how people who already have all the advantages can grab a few more away from the people with damn few advantages..

Everybody would like a nice quiet place to hang out in. At large gatherings, that is a rare commodity and  it should be reserved for those who legitimately need the space..


I wasn't talking about "hanging out".  Autistics do not have a monopoly on needing quiet space.  It should be open to ANYONE who "legitimately" NEEDS it, which is by no means related to neurotype.


RE: Autistic behavior puts parents, public in discomfort zone - Max the Bear - 08-14-2008 09:11 PM

Google Surprise!

Jason Goldtrap is a fundamentalist preacher who also rants against gay marriage, illegal immigrants, and blames death of the victims of tsunamis on their failure to practice good old Republican free-market economics -- you know, the kind Jesus always spoke so fondly of.

Why was his opinion sought for this article?


RE: Autistic behavior puts parents, public in discomfort zone - Luai_lashire - 08-14-2008 09:16 PM

Max the Bear Wrote:
Google Surprise!

Jason Goldtrap is a fundamentalist preacher who also rants against gay marriage, illegal immigrants, and blames death of the victims of tsunamis on their failure to practice good old Republican free-market economics -- you know, the kind Jesus always spoke so fondly of.

Why was his opinion sought for this article?


Somehow I am not surprised.  The "institutions are great" mindset does seem to often go hand in hand with ultra-right wing fundamentalism.


RE: Autistic behavior puts parents, public in discomfort zone - Max the Bear - 08-14-2008 09:33 PM

Luai_lashire Wrote:

Max the Bear Wrote:

Luai_lashire Wrote:

silky Wrote:
Here is a different angle.  If autistics have "safe space" granted them (such as is done now when there is a designated room to relax in at an autie event where only autistics are allowed)... then is it equally acceptable for there to be "NT only" areas?


I don't think a quiet room should be either autie only or NT only.  It should just be "quiet only".  If you're being quiet and non-disruptive in it, then why should it matter whether you are autie or NT?  Some NTs need quiet time, too.


We've all been so well-trained by the right-wing corporate media, always on the look out for how people who already have all the advantages can grab a few more away from the people with damn few advantages..

Everybody would like a nice quiet place to hang out in. At large gatherings, that is a rare commodity and  it should be reserved for those who legitimately need the space..


I wasn't talking about "hanging out".  Autistics do not have a monopoly on needing quiet space.  It should be open to ANYONE who "legitimately" NEEDS it, which is by no means related to neurotype.


The question was about Autie events. If the quiet spaces are handed out to just anyone who says "I have a legitimate need for quiet" there would be no way of verifying those "needs" and the limited space would be taken up by people who are merely self indulgent.

People rationalize to get what they want, like people who think it's okay to park in hanndicapped spaces because "I'm only going to be here a few minutes" or "I have to carry heavy packages" -- and the result is there are no spaces for the legitimately handicapped. It's like a rich person saying "I have just as much right to food stamps as the poor."

No one has a god-given right to their own 24-7 personal convenience, but there are legitimate needs that should be prioritized and accommodated to a reasonable extent.


RE: Autistic behavior puts parents, public in discomfort zone - Callista - 08-14-2008 11:19 PM

Yeah, like the NT kids are perfect little angels in public all the time!


RE: Autistic behavior puts parents, public in discomfort zone - Ivar T - 08-14-2008 11:53 PM

I'm just going to nit-pick on the use of the word "quiet room" here.

From AUTISM NETWORK INTERNATIONAL: THE DEVELOPMENT OF A COMMUNITY AND ITS CULTURE by Jim Sinclair:

Quote:
We requested that the conference organizers provide a room for autistic people to retreat to during the conference, to take a break from sensory overload and from NT social pressures. We placed a lamp with an incandescent bulb in the room, and kept the overhead fluorescent lights turned off. We put some refrigerator boxes in the room. We originally called this room the "Quiet Room," but subsequently some ANI members who had experienced institutionalization pointed out that in many psychiatric institutions, "Quiet Room" is a euphemism for a room people are locked into for involuntary seclusion. We now call our Autreat break room the "crash room."

http://web.syr.edu/~jisincla/History_of_ANI.html


RE: Autistic behavior puts parents, public in discomfort zone - Max the Bear - 08-14-2008 11:57 PM

Callista Wrote:
Yeah, like the NT kids are perfect little angels in public all the time!


Yes, of course they are, hadn't you noticed? And the Indigo Chilren are the best of all. Big Grin


RE: Autistic behavior puts parents, public in discomfort zone - earthmonkey - 08-15-2008 12:28 AM

Max the Bear Wrote:
Google Surprise!

Jason Goldtrap is a fundamentalist preacher who also rants against gay marriage, illegal immigrants, and blames death of the victims of tsunamis on their failure to practice good old Republican free-market economics -- you know, the kind Jesus always spoke so fondly of.

Why was his opinion sought for this article?


I had a feeling we wouldn't get along, after just reading the article. Now I am more certain than ever...


RE: Autistic behavior puts parents, public in discomfort zone - micgrace - 08-15-2008 12:41 AM

This article reads like something out of the 19th century. Basically if someone is autistic they should be locked up to "save" society the embarassment of meltdowns. Disgusting.


RE: Autistic behavior puts parents, public in discomfort zone - Alias Pseudonym - 08-15-2008 12:57 AM

...why does it keep talking about autistic children and giving stats for people under 21 when there were several examples of autistic people over 20?  It almost gives the impression that they still consider the 30 year old a child.

On the other hand, it's a good point that, if taking your kid somewhere is very, very likely to lead to disruptive behavior, maybe you shouldn't do it, y'know?

Institutions, in other news, are not cool.  Not even a little bit.


RE: Autistic behavior puts parents, public in discomfort zone - earthmonkey - 08-15-2008 12:57 AM

Yeah...I remember being 13 and hearing a counselor talk to a psychologist about me getting placed in an institution, at a day when they kept calling my behavior "bizarre". I wish I had had an alphasmart then, as at these times I had the only option of contesting their treatment of me by physical resistance, which was taken as "difficult" and "unco-operative".


RE: Autistic behavior puts parents, public in discomfort zone - earthmonkey - 08-15-2008 12:58 AM

Alias Pseudonym Wrote:
...why does it keep talking about autistic children and giving stats for people under 21 when there were several examples of autistic people over 20?  It almost gives the impression that they still consider the 30 year old a child.

On the other hand, it's a good point that, if taking your kid somewhere is very, very likely to lead to disruptive behavior, maybe you shouldn't do it, y'know?

Institutions, in other news, are not cool.  Not even a little bit.


Word.


RE: Autistic behavior puts parents, public in discomfort zone - Alias Pseudonym - 08-15-2008 01:00 AM

...that was weird.  Earthmonkey, your post popped up below mine when I hit post reply.  To bad we can't see seconds; I'm willing to bet those two posts were sent at almost exactly the same time.


RE: Autistic behavior puts parents, public in discomfort zone - micgrace - 08-15-2008 01:08 AM

If some parts of society had their way we would all be locked up as socially undesirable since we may have a meltdown. The author of this article covers this in a round about fashion without coming right out and saying so. Very dangerous article if believed.

Naturally he doesn't mention what brings on a meltdown. Its an attempt to flee from a perceived hostile situation. Him.


RE: Autistic behavior puts parents, public in discomfort zone - Callista - 08-15-2008 04:07 AM

Nah, he's not worth a meltdown. I'll save the real fireworks for the passing motorcycles and unexpected hugs. Big Grin


RE: Autistic behavior puts parents, public in discomfort zone - Shrek - 08-15-2008 04:47 AM

Shop in 5 minutes not in 45.

Don't shop like an NT.  Shop like an OCD efficient Aspie or a Delta Force commando.


RE: Autistic behavior puts parents, public in discomfort zone - The Heretic - 08-15-2008 08:41 AM

Alias Pseudonym Wrote:
On the other hand, it's a good point that, if taking your kid somewhere is very, very likely to lead to disruptive behavior, maybe you shouldn't do it, y'know?


Agreed.  My first thought was, 'why would a parent subject a child to a situation that would make them have a meltdown, and then force them to stay there in the midst of it?'

It's one thing to want acceptance, but I have problems with the idea of preferential treatment.  I have two NT children and one with Autism.  I don't care which one of them was acting up in public (and trust me, the NT children could throw the occasional tantrum with the best of them), we left. I think parents who don't consider the circumstances (e.g., church, lecture, movie, wedding, funeral, etc...), and expect everyone else to tolerate disruptive behavior, are both selfish and disrespectful.  

Even if a child with Autism has little self control, that also applies to the crying infant I didn't want to listen to when I saw the Dark Knight.  I don't really care what the malfunction is -- there are some places it isn't appropriate.  Furthermore, anytime I've had a meltdown, the last thing I wanted was to be on public display.  Trying to embarrass a child into normal behavior isn't going to cure them, nor is forcing exposure going to automatically (if at all) desensitize them, and make them compliant citizens.

It can't be helped if a child or adult goes into a meltdown in a public place, but forcing them to stay there, and others to endure it with them, isn't really fair to *anyone*.


RE: Autistic behavior puts parents, public in discomfort zone - micgrace - 08-15-2008 10:33 AM

The fact remains you must take your children out so they can experience the wide world so they can adjust to it. Children are children and WILL act up in public whether NT or aspie or otherwise. The critical part is what to do? Take them to a nice quite spot away from the patrons who must have forgot what children can do. I cannot go anywhere without my children since I have no-one around to look after them apart from my wife so they must come. But either me or my wife will remove them if they play up and take them aside to a quiet spot away from the maddening crowd for a drink or something. The children have needs too, they are different.

But the person who wrote this article is not saying that. He says ban those with autism in public. That is unacceptable.


RE: Autistic behavior puts parents, public in discomfort zone - Lang - 08-15-2008 11:38 AM

micgrace Wrote:
But the person who wrote this article is not saying that. He says ban those with autism in public. That is unacceptable.


Yes, this is in fact the message I got from the article.  As it is yet another pile of garbage completely ignoring or unaware of the fact that meltdowns never "just happen."  The opposition to this was portrayed as merely dragging around your autistic family member/dependent as if they were baggage or some irritating pet (because when are we anything else?  Apparently some of us can't even sit through church! </sarcasm>Wink.  

The implication of political correctness stifling opinions should've been a dead give-away.


RE: Autistic behavior puts parents, public in discomfort zone - silky - 08-15-2008 02:34 PM

Callista Wrote:
I'll save the real fireworks for the passing motorcycles and unexpected hugs. Big Grin


That.  I'm preparing myself to attend a large convention where I'll be in strategic hug dodging mode.  I wish NT events had those cool badges to alert people that you dont want to interact with them.


RE: Autistic behavior puts parents, public in discomfort zone - micgrace - 08-15-2008 03:10 PM

Shrek Wrote:
Shop in 5 minutes not in 45.

Don't shop like an NT.  Shop like an OCD efficient Aspie or a Delta Force commando.

I call it smash and grab shopping. Get in, smash a trolley into other trolleys since they never go in a straight line and grab everything you need while on the run and dive to the least full checkout as fast as possible. How anyone can enjoy supermarket grocery shopping is beyond me. YUK. Even my NT wife hates it.


RE: Autistic behavior puts parents, public in discomfort zone - tenaciouscj - 08-15-2008 05:02 PM

silky Wrote:

Callista Wrote:
I'll save the real fireworks for the passing motorcycles and unexpected hugs. Big Grin


That.  I'm preparing myself to attend a large convention where I'll be in strategic hug dodging mode.  I wish NT events had those cool badges to alert people that you dont want to interact with them.

I'd have some mixed feelings about something like that. I'm not a person to give unsolicited hugs but would feel as if somebody with one of those badges was a bit standoffish.

It's not that I wouldn't repect such a badge but it would be as if the other person didn't even want to try and get to know anybody else which means it's not much point coming to such an event in the first place.

I don't want to start trouble but was told by a friend about an autism conference in Brisbane a few years ago where some of the people had those badges and I felt very uneasy about it.


RE: Autistic behavior puts parents, public in discomfort zone - tenaciouscj - 08-15-2008 05:03 PM

micgrace Wrote:
The fact remains you must take your children out so they can experience the wide world so they can adjust to it. Children are children and WILL act up in public whether NT or aspie or otherwise. The critical part is what to do? Take them to a nice quite spot away from the patrons who must have forgot what children can do.

I cannot go anywhere without my children since I have no-one around to look after them apart from my wife so they must come. But either me or my wife will remove them if they play up and take them aside to a quiet spot away from the maddening crowd for a drink or something. The children have needs too, they are different.

But the person who wrote this article is not saying that. He says ban those with autism in public. That is unacceptable.

I don't think most people expect kids to be completely silent but if the kids are screaming, they need to be removed from the situation to give them a chance to calm down. It's not fair for others who are wanting to relax to have to be subjected to very bad behaviour.


RE: Autistic behavior puts parents, public in discomfort zone - Wilhemina - 08-15-2008 06:03 PM

tenaciouscj Wrote:
I don't think most people expect kids to be completely silent but if the kids are screaming, they need to be removed from the situation to give them a chance to calm down. It's not fair for others who are wanting to relax to have to be subjected to very bad behaviour.


This has come up when I look at restaurant reviews and such.  People will say that a place was "ruined" by people with children.  Nope, it is ruined by inconsiderate people.  Inconsiderate people who breed.  


RE: Autistic behavior puts parents, public in discomfort zone - Marcia - 08-15-2008 07:09 PM

Years ago I was in a restaurant and the little girl at the table behind me kept banging the salt cellar really hard on the table.  It went on and on, but when I turned round to politely ask if she could stop I saw that she and her father were taking turns at it. Rolleyes I gave them a few hard stares, which had no effect, then asked loudly to be moved to another table as it was too noisy where I was.

I have a hand signal which I use with my son when he's getting too noisy.  When we're out somewhere for a coffee or a meal, I remind him that there are other people there and we have to respect them.  I tell him that these other people have come to a nice place to enjoy each others' company, have a quiet chat and something to eat - which they've paid for.  Sometimes I tell him that if these people wanted to eat somewhere with noisy children they'd have gone to Whale of a Time (the local soft play nightmare).  My son finds that idea funny and he does get that he has to be quiet.

I find as well, that if people see that I'm making an effort to make him sit quietly and not be disruptive then they are pretty sympathetic when he does get a bit overexcited and noisy.


RE: Autistic behavior puts parents, public in discomfort zone - Walden - 08-15-2008 07:47 PM

There are plenty more inconsiderate adults than children (autistic or otherwise).  Adults are supposed to know better and many do know better and choose to be inconsiderate (phones ringing, loud talking, offensive language (not fit for the well mannered child sitting nearby etc., )

RANT - on CLASS (anyone remember class war?)

The people in power are not uncomfortable with the fact that more and more the regular person is comfortable with being rude and ill-mannered. Less people to compete with for power jobs. (sorry if no one knows what I mean here - hard to explain)

Society (speaking about the US) has stopped passing on manners to children, regardless of neurotype.  Society has stopped expecting good manners and good behavior in regular every day places. TV is showing abborant behavior as the norm and those in power love that the masses are eating this up and letting themselves follow a poor example.  (note the usage of the word poor  - etymology, a class distinction)

(Speaking of people "breeding": the wealthy - which used to be called well-bred are the ones who expect and teach their children world-class (classy) behavior - like the behavior expected and needed in a fancy restaurant, which is the very same that is needed to deal with powerful leaders.)

My point:  Notice that the double standard is only placed (by the masses) on the "disabled" person or child, the minority, the autistic person/child.  In my experience, there are so many more instances on a daily basis of disruptive "average" people than all the people with "disabilities" combined in a years time, and more I dare say...

MORE opinion/rant:  It is helpful to those in power to allow and foster more fracturing and discontinuity between various types of people, poor, not poor, abled, disabled, republican, democrat, homo or hetero... autistic not autistic.

Sit back and watch them fight amongst themselves - over nonsense.

On my aspie sons restaurant behavior : It so happens that my son is blessed an lucky to be born into a family with enough means to allow him to learn proper behavior.  He is able to conduct himself in a very respectable manner while at restaurants etc., (he demands and enjoys respect) The restaurants that he practiced his manners as a child maintained atmospheres that were quiet, clean and orderly. We never forced him to be out against his best interests.  

I want to clarify that I don't think that any restaurants or society is ruined by inconsiderate people who have children. I think more people should have more children of varying abilities.  The more variation the better.  What we all really need is more individuality and less conforming to whatever new social constructs or mores of the day are in vogue.  Every person should try to avoid being pigeonholed by class or classification.  

However, I think that basic politeness is a skill that should be learned if one would like to be out in groups.  Social rules and conventions (manners etc.,) of generations ago suit myself and my aspie son better than todays lack of boundaries.


RE: Autistic behavior puts parents, public in discomfort zone - Max the Bear - 08-15-2008 08:17 PM

Very confusing, walden. Do feel conflicted about your economic class and your social expectations?

What I mean is that very statement you make is contradicted by another statement you make. I seems I agree with 50% of what you say, but you disagree with everything you say.

I get missed messages.  Sorry. Could you clarify what social behaviors you expect from people and what role money plays in that?


RE: Autistic behavior puts parents, public in discomfort zone - The Heretic - 08-15-2008 08:18 PM

micgrace Wrote:
The fact remains you must take your children out so they can experience the wide world so they can adjust to it. Children are children and WILL act up in public whether NT or aspie or otherwise. The critical part is what to do? Take them to a nice quite spot away from the patrons who must have forgot what children can do. I cannot go anywhere without my children since I have no-one around to look after them apart from my wife so they must come. But either me or my wife will remove them if they play up and take them aside to a quiet spot away from the maddening crowd for a drink or something. The children have needs too, they are different.

But the person who wrote this article is not saying that. He says ban those with autism in public. That is unacceptable.


I agree that saying children with Autism should be banned from public places is wrong.  All I was pointing out is that there are some places that it isn’t appropriate to be disruptive, regardless of the issue, age, whatever.  

I am not saying not to take the children/adults either.  All I am saying is that I think some parents are taking advantage of the situation, and they are making other parents look bad as a result.  This is when people start hating minority groups – when they start asking for “special” treatment, rather than the same treatment.  If a parent is purposely torturing their child to force socialization on them, or they are expecting public meltdowns (and I mean ones that stay all the way through the meltdown to the bitter end) to be considered acceptable in all situations, or they just want recognition for being some kind of martyr because they have a special needs child, I think that is just as sick as those who want them banned.  

Yeah, hold the guy who wrote the article accountable, but hold the parents who feel the need to make it an issue just as responsible.  It’s parents who don’t even try to diffuse the situation who make the rest look bad, and they give guys like him a platform.

I am also not even remotely suggesting that children stay locked in the house, to avoid experience life.  I personally don’t care if children scream through the store, park, Disney World, or the New York Stock Exchange.  In fact, I applaud parents who allow their children to tantrum rather than buy them everything they want to keep them quiet.  (And no, I am not referring to giving a child a drink away from the maddening crowd.  I am talking about parents will buy their kids toys and candy at every store, every shopping trip.  And to be totally honest, I really don’t care even if they do that!  I’m not the one who has to live with them when they are older . . .)


RE: Autistic behavior puts parents, public in discomfort zone - The Heretic - 08-15-2008 08:35 PM

Marcia Wrote:
I find as well, that if people see that I'm making an effort to make him sit quietly and not be disruptive then they are pretty sympathetic when he does get a bit overexcited and noisy.


I agree with this, and this is what I have found when I take my children out, as well.  I expect children to be normally fussy, or excited when they are in a restaurant, but it's the ones who are allowed to get totally out of control that irritate me.  Well, not so much the kids, but the parents of the kids, because they are the ones who are setting the standard for what is acceptable behavior.

As Walden mentioned, I have more of a problem with the adults in restaurants, than I ever do children.  We went out to a nice restaurant for my daughter's birthday, and there was another woman with a birthday at the table next to us.  Someone gave her a ringtone for her birthday, and she felt the need to keep playing it at full volume, over, and over, and over.  I didn't mind all the talking and laughing, and I didn't mind the ringtone being played the first couple of times, but by the 17th time we asked to be moved.  We couldn't even have a conversation amongst ourselves.  I expect some disruption in public places, but outright rudeness isn't necessary.


RE: Autistic behavior puts parents, public in discomfort zone - Wilhemina - 08-15-2008 08:37 PM

Many people who are not Autistic in the least are rude and inconsiderate, and can ruin a nice meal out at a restaurant.  They can also ruin a bus ride, a movie, a shopping expedition.  Anytime someone is not considerate of others, they will cause other people difficulty.  

Autistic kids cannot always conform to the rules of society.  They cannot always manage to "be considerate" of other people.  That is when their parents need to step in and realize that there is a REASON for their behavior.  Are they overstimulated?  Are you (as The Heretic said) forcing them into a situation where they are uncomfortable?

Whether or not a child is on the spectrum, if your child is being disruptive, you should take action to remove the child from the situation, deal with it, and return if possible.  

My child has never been given the option of tantrums in public.  When we are out in public she is incredibly polite and careful, and expects the same of others.  It is very hard to explain to her why she follows the rules, but many adults do not.  

We went to a public place, in fact it was a tour of an old mansion, a year or two ago.  There was a person on the tour who was disabled.  She was an adult, I would guess in her 40's, there with her family.  She had a difficult time with control, and was running into different rooms than were on the tour, and was really disruptive.  We just avoided her.  But then, she began to follow my daughter around.  She wanted to touch her and hold her hand.  My daughter was scared to death.  We ended up staying way back from the rest of the people as we could not leave the tour.  We paid a lot to go on a tour where we were trying to keep someone away from our child the whole time.  It was not like the lady would have harmed her, but my daughter does not like to be touched by strangers.  

Their lack of consideration was appalling.  It could have been taken care of if the family that was with her would have just taken measures to keep her with them, and would have talked to her about not touching others.  But they chose not to.


RE: Autistic behavior puts parents, public in discomfort zone - Max the Bear - 08-15-2008 08:47 PM

The Heretic Wrote:

 This is when people start hating minority groups – when they start asking for “special” treatment, rather than the same treatment. 


I would be fascinated to read some examples of minorities asking for "special" treatment and how that initiated hatred toward them.


RE: Autistic behavior puts parents, public in discomfort zone - The Heretic - 08-15-2008 10:16 PM

Max the Bear Wrote:
I would be fascinated to read some examples of minorities asking for "special" treatment and how that initiated hatred toward them.


Okay, maybe I need to clarify . . . some minority groups are hated because they are given preferential treatment, even if they didn’t ask for it . . . and yes, some just outright expect it.  There is no way, Max, I can even begin to get into this subject adequately, and just touching upon it is going to make me sound racist, which isn’t the case.  There are people of *all* races (or whatever) that will attempt to abuse a set system if they can get away with it.

As you were pointing out in another thread, there are those who dislike certain stereotypes within their own group, and in some cases those are the ones who abuse the situation.  One example of a problem is the American Indians who live in my state.  (My best friend of 20 years is American Indian, and she has a black son, so to imply that I am racist couldn’t be more wrong.)  Even my best friend is sick of them using the excuse that their ancestors had their land stolen from them, and were forced on to live on the reservation, so this gives them the right to harbor alleged murders and child molesters, and allow crimes on their own land to go unpunished, because the federal government should have no say in what they do on the land they were given.

I am as white and as English as they come, and I have absolutely no problem saying that I am personally disgusted and appalled by the actions of the early settlers with regard to the indigenous people, and those they kidnapped from other countries and enslaved.  I am disgusted by abuses of any kind.  That said, I also don’t agree with using things as an excuse to act a certain way, or be extended preferential treatment.

Why are only men expected to sign up for selective service?  If I move to Mexico I expect to need to know Spanish to get around, and I expect that my children will need to speak Spanish to be enrolled in their schools, so why do I need to accept America should be a bilingual country?  And, why should “Spanish” be the chosen language just because we have a higher Hispanic population than other ethnic groups?

I don’t think it’s necessary to discontinue several of the products I use to make room for a can of Nesquick that is entirely in Spanish.  I can understand the special products that we don’t normally carry in our country, but the freekin’ bunny looks the same in both languages!! They can buy the American version of Nesquick.  If this makes me racist, so be it.

And I am sure you will say I am stereotyping you, but if you were wondering in the back of your mind if I was referring to the rights of gay people to marry, that wasn’t what I was talking about.  To me that is a group expecting to be treated the same, and rightfully so.


RE: Autistic behavior puts parents, public in discomfort zone - windy - 08-15-2008 10:33 PM

Max the Bear Wrote:

The Heretic Wrote:

 This is when people start hating minority groups – when they start asking for “special” treatment, rather than the same treatment. 


I would be fascinated to read some examples of minorities asking for "special" treatment and how that initiated hatred toward them.


I would like all children to be given the "Special treatment" that I "ask" for my aspie son.

definition of special treatment:  Being held in esteem as a worthwhile individual.  Being respected for his/her ideas. Noone is allowed to bully a child at school (children or adults, physically or mentally). Each child should be taught to their ability.

If a "regular" kid is being noisy and disruptive in the hallways or in the lunch room (or in a restaurant) the reaction should be the same as if the child was autistic (asked to stop) In my opinion the standard of behavior is higher for diagnosed kids.....

I sowecifically am thinking of the "regular kids shouting and laugjing and banging the tables on a daily constant basis - bumping others in the hallways.. If my aspie son was as loud as others or he if he bumped into people on accident (where others do it on purpose) he would probably be removed from school.

Many small kids at restaurants - bang silverwear etc., why is it only a big deal if the kid is autistic?


RE: Autistic behavior puts parents, public in discomfort zone - windy - 08-15-2008 10:34 PM

typo
specifically....


RE: Autistic behavior puts parents, public in discomfort zone - silky - 08-15-2008 11:00 PM

tenaciouscj Wrote:
It's not that I wouldn't repect such a badge but it would be as if the other person didn't even want to try and get to know anybody else which means it's not much point coming to such an event in the first place.


Ah. But you see, that is not everyone's purpose or goal in being at a convention, to talk to people or hug them.


RE: Autistic behavior puts parents, public in discomfort zone - The Heretic - 08-15-2008 11:17 PM

atypical Wrote:
I would like all children to be given the "Special treatment" that I "ask" for my aspie son.

definition of special treatment:  Being held in esteem as a worthwhile individual.  Being respected for his/her ideas. Noone is allowed to bully a child at school (children or adults, physically or mentally). Each child should be taught to their ability.


I am in complete agreement with this statement, but if it were the norm then it wouldn't be special.  Smile

atypical Wrote:
Many small kids at restaurants - bang silverwear etc., why is it only a big deal if the kid is autistic?


To be honest, I don't think this is typically the case.  I think there are a couple of prejudice idiots out there trying to create a hate situation that isn't going anywhere.  Most people see these morons for what they are, and we have enough people who revere the despicable St. McCarthy the Centerfold Martyr turned Autism "expert" who serves to steer the attention away from the handful of anti-Autism proponents.


RE: Autistic behavior puts parents, public in discomfort zone - energeia - 08-16-2008 05:57 AM

Quote:
On my aspie sons restaurant behavior : It so happens that my son is blessed an lucky to be born into a family with enough means to allow him to learn proper behavior.


Now, this is incredibly classist.  What?  Did you send him to a high-priced manners school or something?  
[aside]You should hear my 85-year-old Mom rant about the country club culture she lives in that fosters "manners school."  She thinks its an abdication of parental responsibility.[/aside]

You don't have to have money to have true class.  Graciousness is an issue of character, not income.  Poor people are totally capable of conducting selves with decorum and teaching kids the same.


RE: Autistic behavior puts parents, public in discomfort zone - Wilhemina - 08-16-2008 06:09 AM

energeia Wrote:

Quote:
On my aspie sons restaurant behavior : It so happens that my son is blessed an lucky to be born into a family with enough means to allow him to learn proper behavior.


Now, this is incredibly classist.  What?  Did you send him to a high-priced manners school or something?  
[aside]You should hear my 85-year-old Mom rant about the country club culture she lives in that fosters "manners school."  She thinks its an abdication of parental responsibility.[/aside]

You don't have to have money to have true class.  Graciousness is an issue of character, not income.  Poor people are totally capable of conducting selves with decorum and teaching kids the same.


Amen Sistah!


RE: Autistic behavior puts parents, public in discomfort zone - Max the Bear - 08-16-2008 08:10 AM

energeia Wrote:


Now, this is incredibly classist.  


Yeah, this thread has taken a nasty turn -- classism, racism, xenophobia....

Can we get an anti-Semite and a misogynist and maybe a cross to burn?


RE: Autistic behavior puts parents, public in discomfort zone - Wilhemina - 08-16-2008 08:45 AM

Max the Bear Wrote:
Yeah, this thread has taken a nasty turn -- classism, racism, xenophobia....

Can we get an anti-Semite and a misogynist and maybe a cross to burn?



Favorite quote from O'Brother Where Art Thou that you just brought to mind:

Homer Stokes: This band of miscreants, this very evening, interfered with a lynch mob in the performance of its duty. 


RE: Autistic behavior puts parents, public in discomfort zone - Max the Bear - 08-16-2008 09:13 AM

Korrigan Wrote:

Favorite quote from O'Brother Where Art Thou that you just brought to mind:

Homer Stokes: This band of miscreants, this very evening, interfered with a lynch mob in the performance of its duty. 



That's hysterical! Hmmm... Band of Miscreants would be a good name for a renegade pack of internet liberals...


RE: Autistic behavior puts parents, public in discomfort zone - Wilhemina - 08-16-2008 09:14 AM

Max the Bear Wrote:
That's hysterical! Hmmm... Band of Miscreants would be a good name for a renegade pack of internet liberals...


Oooh, that is goooood!  I may be changing my signature.


RE: Autistic behavior puts parents, public in discomfort zone - Walden - 08-16-2008 03:57 PM

energeia Wrote:

Quote:
On my aspie sons restaurant behavior : It so happens that my son is blessed an lucky to be born into a family with enough means to allow him to learn proper behavior.


Now, this is incredibly classist.  What?  Did you send him to a high-priced manners school or something?  
[aside]You should hear my 85-year-old Mom rant about the country club culture she lives in that fosters "manners school."  She thinks its an abdication of parental responsibility.[/aside]

You don't have to have money to have true class.  Graciousness is an issue of character, not income.  Poor people are totally capable of conducting selves with decorum and teaching kids the same.


Hello, I'll clarify.  I feel that my family and I are blessed and lucky.  We have the means, (a roof over our head, we can afford food yes, sometimes even at nice restaurants) but I mean, a big, close family, strong core family values and the character to conduct oursleves how we see fit, not based on how others act.  We spend a lot of time around food, around the dinner table (mostly home, but also out) with good food, family, and conversation.  This is a positive, I feel lucky.

Also, it happens to be the case that our aspie son would be unable to tolerate much less enjoy a meal at some of the louder and (fact: less expensive restaurants, particularly when he was younger.  He wouldn't eat the food anyway as he is very particular.  I did not mean to make it sound like I was talking about money. Our kids just naturally behave politely (like kids not as mini adults) because they enjoy having a nice meal - no manners classes involved LOL!  We did have to be more careful with what and how we exposed our aspie son to restaurants as he is sensitive to smells and sounds etc., so yes we tried to be smart and we had the means to manage.

The rest of my earlier post was speaking about class a bit (another poster spoke of "inconsiderate people breeding" which reminded me of the term well-bred. (a rant and off topic) I happen to think that there are only two classes, (in the US) the top 1% and then the rest.  Also off topic, that society in the US is not conducting themselvs in general with good manners.... Mainstream has plenty of money but is modeling after TV.  Money has nothing to do with real class. Character does.  I agree with what you are saying energeia 100%.

I am more interested in the fact that there is a double standard for behaviors allowed based on ones minority status - making a big deal out of an autistic kid here or there that may be too loud, with parents that are trying, compared to oblivious parents who feel it is a right to be as loud as they want.


RE: Autistic behavior puts parents, public in discomfort zone - Callista - 08-16-2008 04:29 PM

I think autistic kids should be kept away from things that make them have meltdowns until they can learn to tolerate them. That means going to the grocery store for five minutes, leaving before it gets to be too much, repeating until it's more familiar and they can stay for ten minutes, and so on.

It has nothing to do with what the public thinks; it's just that when you're having a meltdown, not only is it unpleasant, but it's just about impossible to learn anything--plus, you start to think of whatever place triggered it as stressful and overwhelming. And it doesn't mean to keep your autistic kid closeted away. It does mean that it makes no sense to take him somewhere, public or not, that you know's going to force a meltdown.


RE: Autistic behavior puts parents, public in discomfort zone - energeia - 08-16-2008 05:34 PM

Thank you for clarifying, Walden.  

Callista--good point!


RE: Autistic behavior puts parents, public in discomfort zone - Walden - 08-17-2008 03:29 AM

Callista Wrote:
I think autistic kids should be kept away from things that make them have meltdowns until they can learn to tolerate them. That means going to the grocery store for five minutes, leaving before it gets to be too much, repeating until it's more familiar and they can stay for ten minutes, and so on.

It has nothing to do with what the public thinks; it's just that when you're having a meltdown, not only is it unpleasant, but it's just about impossible to learn anything--plus, you start to think of whatever place triggered it as stressful and overwhelming. And it doesn't mean to keep your autistic kid closeted away. It does mean that it makes no sense to take him somewhere, public or not, that you know's going to force a meltdown.


Yes, great point Callista. This is the kind of fantastic and seemingly common sense information that some of the great parenting books as well as autism books convey.  Wouldn't it be nice if all parents could be patient towards ALL children and wouldn't it be wonderful if ALL kids could be allowed to experience things at their own speed.

Life is awfully fast-paced and to me that seems unnatural to force all people to evolve so quickly from what was expected just a generation ago...

I agree that it is particularly true that my aspie son has never learned anything (positive) while overloaded.


RE: Autistic behavior puts parents, public in discomfort zone - Callista - 08-17-2008 03:34 AM

Yes, exactly. Even strategies for dealing with overload have to be learned when you're thinking straight. Probably, especially those strategies, or you'll just forget them when you need them.

I guess technically you could get somebody used to an overwhelming situation by putting them into it and refusing to let them back out; but this is something seriously traumatic, as bad as or worse than flooding therapy for a phobia. (Like forcing a guy with a fear of heights to go skydiving.) And with autism, you don't do it once to a consenting adult--you do it multiple times to a small child who may not even know why you're doing it.

Jenny McCarthy, unsurprisingly, describes using just this method to get her son to tolerate a grocery store--she refused to leave the store no matter how severe his overload. Eventually, it worked--but, I wonder, at what cost?


RE: Autistic behavior puts parents, public in discomfort zone - earthmonkey - 08-17-2008 04:57 AM

Callista Wrote:
I guess technically you could get somebody used to an overwhelming situation by putting them into it and refusing to let them back out; but this is something seriously traumatic, as bad as or worse than flooding therapy for a phobia. (Like forcing a guy with a fear of heights to go skydiving.) And with autism, you don't do it once to a consenting adult--you do it multiple times to a small child who may not even know why you're doing it.

Jenny McCarthy, unsurprisingly, describes using just this method to get her son to tolerate a grocery store--she refused to leave the store no matter how severe his overload. Eventually, it worked--but, I wonder, at what cost?


That sounds like going to school for me - the crowds, the noises, etc. The school counselors seemed to think that this method would work for bullying as well (hint hint: it doesn't, unless getting used to it means becoming pessimistic and suicidal).

Also there would always be some horrible scent in the car, that would turn out to be perfume or lotion or air freshener or something. However, in that case my mom would try to keep scents that bother me away from the car, but a lot of it she'd forget, so I had to deal with it for years and years, so nowadays while I still cough and it's unpleasant, I can manage without throwing a fit.

I could also tell at the end of the day when she picked me up from school, if someone who smokes had been in the car. It smelled strong enough to me that I thought she had smoked, even though she hasn't smoked in years, and then I asked if someone else had smoked in the car, and then I asked if anyone at all had been in the car who isn't in our family, and she said their name, and I asked if they smoke - and lo and behold, the person was a smoker! So while it didn't bother me too much, I noticed it right away as soon as I opened the door.


Walden Wrote:
I happen to think that there are only two classes, (in the US) the top 1% and then the rest. 


That assertion would probably be very difficult to back up. The difference between someone comfortably in the middle class and someone on the brink of poverty, or well immersed in it, have very different experiences.


RE: Autistic behavior puts parents, public in discomfort zone - EvilZakkie - 08-17-2008 01:16 PM

The Heretic Wrote:

Max the Bear Wrote:
I would be fascinated to read some examples of minorities asking for "special" treatment and how that initiated hatred toward them.


Okay, maybe I need to clarify . . . some minority groups are hated because they are given preferential treatment, even if they didn’t ask for it . . . and yes, some just outright expect it.  There is no way, Max, I can even begin to get into this subject adequately, and just touching upon it is going to make me sound racist, which isn’t the case.  There are people of *all* races (or whatever) that will attempt to abuse a set system if they can get away with it.


Actually, I'm pretty sure most people would read this statement & assume that you're racist - so you're probably better off explaining yourself.

Unless, of course, you actually are racist - then you're better off just avoiding the topic altogether in the future.


RE: Autistic behavior puts parents, public in discomfort zone - Max the Bear - 08-17-2008 06:11 PM

earthmonkey Wrote:

Callista Wrote:

Jenny McCarthy, unsurprisingly, describes using just this method to get her son to tolerate a grocery store--she refused to leave the store no matter how severe his overload.


That sounds like going to school for me - the crowds, the noises, etc. The school counselors seemed to think that this method would work for bullying as well (hint hint: it doesn't, unless getting used to it means becoming pessimistic and suicidal).


This has always p!ssed me off, and you're right, counselors and administrators use this bullsh!t excuse all the time. It is just their excuse for (at best) not having the guts to do something about the bullying or (at worst) masking their support of the bullies and their belief that all the weirdos deserve all the sh!t they have to eat.

The counselors and administrators hate it when I confront them directly on this: "So you're saying these kids need bullying? You think maybe there's a real danger that they're not getting all the bullying they need? Are you worried that some of the kids here are getting insufficient bullying? Not getting their daily minimum requirement of harrassment and victimization? Because I see a lot of kids at this school who never get bullied at all. Are we totally cheating them, educationally? Because some kids seem to be getting all the bullying and all the great benefits that go with it. Should we maybe set up a program where we could select some really big mean students and assign them to bully the chronically under-bullied? Because otherwise, those kids are missing out on the valuable experience of school being a living hell, day after day."

Most of the time, they get the point, but one assistant principal got angry and said, "I feel like you're bullying me right now." I said, 'Well, that's good, isn't it? You need that, right? Just like the kids need it. Shouldn't you thank me?"

Walden Wrote:
I happen to think that there are only two classes, (in the US) the top 1% and then the rest. 


earthmonkey Wrote:
That assertion would probably be very difficult to back up. The difference between someone comfortably in the middle class and someone on the brink of poverty, or well immersed in it, have very different experiences.

                          

Again, you're absolutely right.

There is nothing more obnoxious, condescending, and utterly false than someone in the top 10% talking to someone in the bottom 10% and saying "I'm not in the top 1%, so I'm just like you!" *pats the poor wretched creature on the head, then wipes her hand on her designer velour ® pantsuit*

It's like white people who say, "I, too, am a victim of racism because once I was in a Chinese restaurant and we were the only white people there! Oh, THE  H O R R O R !!" *sob, weep*

Another one that makes me throw up a little in my mouth is 'We are blessed."

It's such a smug attitude. All it means is, "God, in his gracious wisdom, realized that I deserve much, much, much more than people like you whom god, in his gracious wisdom, has given so little. Isn't God a swell guy? Let's take a moment and thank him for giving me so much and you so little." *folds hands in prayer and snickers*



It's especially nauseating because if there was anything Christ was clear about, it was his opinion of rich people. And hypocrites.


RE: Autistic behavior puts parents, public in discomfort zone - Wilhemina - 08-17-2008 06:24 PM

Max the Bear Wrote:
This has always p!ssed me off, and you're right, counselors and administrators use this bullsh!t excuse all the time. It is just their excuse for (at best) not having the guts to do something about the bullying or (at worst) masking their support of the bullies and their belief that all the weirdos deserve all the sh!t they have to eat.


Max, I am going to have to agree with you here completely.  This is so frustrating.  When I got the needed paperwork from the school counselor this summer for Little Korrigan to be assessed by an outside doctor, the counselor said, "She is just really sensitive."  I said, "Isn't that nice.  Most kids have very little.  I am thrilled that she is so sensitive and caring.  In fact, those are usually the two first qualities that people mention about her when they are talking about her strengths."  I am not sure she was expecting that.

Max the Bear Wrote:

Walden Wrote:
I happen to think that there are only two classes, (in the US) the top 1% and then the rest. 


earthmonkey Wrote:
That assertion would probably be very difficult to back up. The difference between someone comfortably in the middle class and someone on the brink of poverty, or well immersed in it, have very different experiences.

                          

Again, you're absolutely right.

There is nothing more obnoxious, condescending, and utterly false than someone in the top 10% talking to someone in the bottom 10% and saying "I'm not in the top 1%, so I'm just like you!" *pats the poor wretched creature on the head, then wipes her hand on her designer velour ® pantsuit*


Isn't that standard.  Stay at home Mom with 3 kids, 2 in private school, could be 3 if they did not want to take advantage of public school programs for the Aspie kid, with a big house and pool in New Jersey talking about class differences.  LOL.  


RE: Autistic behavior puts parents, public in discomfort zone - The Heretic - 08-17-2008 07:57 PM

EvilZakkie Wrote:
Actually, I'm pretty sure most people would read this statement & assume that you're racist - so you're probably better off explaining yourself.

Unless, of course, you actually are racist - then you're better off just avoiding the topic altogether in the future.


They already do think I am racist, and I have a feeling since I managed to annihilate my position so adeptly the first time, a second time of trying to clarify my position is only going to add more fuel to the fire.  I am not racist, but everyone's mind is already made up.  As I said, my best friend is Indian, and she has a black son.  One of my only other friends here that I've had for years is Hispanic.  Neither of these women are desperate for friendship, so if I were racist not only would they know, but they wouldn't speak to me.  

Since it is much easier to judge me, than actually get to know me, I doubt anyone will ever really know where I stand.  Best wishes to everyone regardless.  Smile


RE: Autistic behavior puts parents, public in discomfort zone - Max the Bear - 08-17-2008 10:04 PM

The Heretic Wrote:

... my best friend is Indian, and she has a black son.  One of my only other friends here that I've had for years is Hispanic.  ...so if I were racist not only would they know, but they wouldn't speak to me.  


First of all, I would like to testify that my best friend for the last 15 years, Karl, who was also my best man at my wedding is black and, unsurprisingly, so are both his kids, so I am undoubtedly right about everything I am going to say. Tongue

(Oh, and Karl thinks your post was incredibly racist.)


A blogger out there somewhere said this

Blogger Out There Somewhere Wrote:

It has always amused me how often someone will make an incredibly offensive comment about an entire group of people and then, when called on their opinions, that person will look at you in self-righteous indignation and proclaim, "I'm not a (racist/sexist/anti-semite/homophobe) some of my best friends are (black/women/jews/gay)" as if having a friend who belongs to the group that was just maligned somehow gives one some sort of moral get-out-of-jail-free card.

This tactic seems, to me, strikingly intellectually dishonest and more than a little repulsive. ... when I make friends from any individual group I've begun to believe stereotypes about, I don't automatically become immune to my own narrow-minded beliefs. Getting over prejudices requires a good deal of work...

And having a friend who happens to belong to the group you're prejudiced against just doesn't cut it.


Heretic, there is nothing at all unusual about a person having a low opinion of a particular group, yet still having a friend or two from that group. My second best friend is a Fundamentalist, and anyone here can tell you my opinion of Fundamentalism.

There is a profound cognitive dissonance when one has prejudices against a group and a friendship from someone in that group.

There are basically two ways to resolve that uncomfortable dissonance:

1. Overcome your racist beliefs, (Ooo! Hard, hard work!)or

2. Grant your friend an "exception" -- "Peggy is not like those Fundamentalists, so it's okay to like Peggy while despising fundamentalism."

Predictably enough, most people choose Option 2. It's so easy!

Another thing I would point out is that there is no shortage of minority members who have extremely negative attitudes toward their own group. Obviously, it's not uncommon for a black person who hates black people to seek out a white person who shares those views. This also has the benefit for the black person of associating them with the "superior" race and having a person of that "superior" group reassure them, "Oh, you're not like the rst of your people."

So it becomes a mutually rewarding dyad :

The white person who hates blacks gets support for their racist views and a "get out of jail free card" on the charge of being a racist. She gets to hear from a black person, "No, you're nor racist, you're right about those damn n*****s."

The black person who hates being black gets to be "an honorary white person." She gets to hear from the white person "You're not like the rest of those people -- you know what they're like and you have risen above them."

Racism is an equal opportunity employer -- you don't have to be white. White racists embrace black people who hate themselves.

Heretic, when you hold up your Indian and Latina friends and say "They agree with my racist views," that doesn't surprise me in the least. After all, they -- like you -- grew up in a world that says "white is better" in a million ways. Sadly, they internalized and never unlearned that prejudice against their own people. So they settle for crumbs from the table of Whiteness.

There are gays who have that sort of relationship with homophobes and homophobic organizations. There are Aspies who sneer at LFA's and say "I am indistinguishable from the NT's who hate you, and they are my friends."


===

You do a good job, Heretic, of splicing crazy-racist comments together with rational-sounding disclaimers. That's a common tactic, too. In trainings and workshops I've done on racism, I call those people "racist-butts" because they always say, "Now, I'm not racist, but..." And you know that whatever comes after that "but" is going to be off-the-hook racist. Always.

Those disclaimers -- from "I'm not racist, but..." and "Some of my best friends are..." to a dozen others you utilized in your posts, every one of those little verbal side-steps is just putting lipstick on a pig. It can't make something pretty out of an ugly, unmistakably racist ideology.

It's ironic, Heretic, that you closed with "...it is much easier to judge me, than actually get to know me..."

That's probably how any number of Latinos and blacks would feel reading your posts.


RE: Autistic behavior puts parents, public in discomfort zone - EvilZakkie - 08-17-2008 10:39 PM

The Heretic Wrote:
They already do think I am racist, and I have a feeling since I managed to annihilate my position so adeptly the first time, a second time of trying to clarify my position is only going to add more fuel to the fire.  I am not racist, but everyone's mind is already made up.  As I said, my best friend is Indian, and she has a black son.  One of my only other friends here that I've had for years is Hispanic.  Neither of these women are desperate for friendship, so if I were racist not only would they know, but they wouldn't speak to me.  

Since it is much easier to judge me, than actually get to know me, I doubt anyone will ever really know where I stand.  Best wishes to everyone regardless.  Smile


The reason your post sounded racist was because you specifically claimed that minority groups make lots of unrealistic demands. Unless you're talking about something specific, this is a fairly racist statement - this is why I suggested you talk about the specific issue, as a global statement about minorities will always appear racist. Unless, of course, you actually do have a universal belief that minority groups are unreasonable (i.e. a racist belief), in which case, it would have been better not to bring it up at all.

The fact that you may have friends from these groups does not make the statement any less racist - there's all sorts of reasons these friends may agree with or overlook racist sentiments.

At this point, attempting to justify your original post is going to fail - your original post was unreasonable and offensive. The only two options available are to state specifically what you were talking about, or to back away from the thread.


RE: Autistic behavior puts parents, public in discomfort zone - earthmonkey - 08-18-2008 02:43 AM

Max the Bear Wrote:

The Heretic Wrote:

... my best friend is Indian, and she has a black son.  One of my only other friends here that I've had for years is Hispanic.  ...so if I were racist not only would they know, but they wouldn't speak to me.  


First of all, I would like to testify that my best friend for the last 15 years, Karl, who was also my best man at my wedding is black and, unsurprisingly, so are both his kids, so I am undoubtedly right about everything I am going to say. Tongue

(Oh, and Karl thinks your post was incredibly racist.)


A blogger out there somewhere said this

Blogger Out There Somewhere Wrote:

It has always amused me how often someone will make an incredibly offensive comment about an entire group of people and then, when called on their opinions, that person will look at you in self-righteous indignation and proclaim, "I'm not a (racist/sexist/anti-semite/homophobe) some of my best friends are (black/women/jews/gay)" as if having a friend who belongs to the group that was just maligned somehow gives one some sort of moral get-out-of-jail-free card.

This tactic seems, to me, strikingly intellectually dishonest and more than a little repulsive. ... when I make friends from any individual group I've begun to believe stereotypes about, I don't automatically become immune to my own narrow-minded beliefs. Getting over prejudices requires a good deal of work...

And having a friend who happens to belong to the group you're prejudiced against just doesn't cut it.


Yeah, I'm an autistic lesbian who has been friends with people who are gay, female, or autistic and said homophobic, autiphobic, and sexist remarks. I'm sure I've said racist remarks too, and I have had friends who are black, Asian, and other races too that aren't considered "white". Of course at the time I didn't think of these actions and remarks that way, and my friends of the maligned groups didn't say "I'm not going to be friends with you because of this" or anything.

When another person has said these types of remarks, I have many times before stood by - because I knew they "didn't really mean it THAT way" (a common excuse that makes the provider of offending remarks feel not guilty about them), or because I worried that if I expressed to them that it was offensive, that they'd disregard me as "too sensitive" (a common way that people complaining about bigoted remarks are dismissed) or rejected from their friendship (which can be especially a tough one, as for autistics and people who are frequently rejected on basis of bigotry a friendship can be something you don't want to "throw away over some petty thing").

So, yeah, he's got some very good points, and self-hatred from, say a gay person, doesn't have to be so obvious as them saying "I hate gay people; I hate being gay." It's more likely to be MUCH more subtle, and may not even be vocalized ever. As I said homophobic remarks, I would also, when called gay before I was out, I would say: "I may not be gay, but even if I were that's no reason to make fun of someone." When I was about ten years old! And yet I still carried a degree of self-hatred, even as I would speak about "tolerance" and say homophobic things (but I didn't use the word "f****t", so it couldn't POSSIBLY be homophobic! </sarcasm>Wink.




RE: Autistic behavior puts parents, public in discomfort zone - Callista - 08-18-2008 03:22 AM

All TheHeretic basically said is that minorities do the same things non-minorities do. You don't have to have white skin to get stuck up and elitist and expect things to be better for you because you belong to some group. Some minorities expect preferential treatment. So do some white male heterosexuals. It's not like racism is exclusive to people who are never targets of racism.

I've seen a great deal of reactionary racism (i.e., "all white people hate black people" and other such nonsense, the assumption that any member of a certain group is prejudiced against you--even when most aren't.) You see it in the autism community too--Aspies who figure that all NTs are jerks who refuse to accept anyone who's different.

Racism, in my mind, is not some "one group versus another group" thing; it's something that's wrong with the thinking of one specific person, and has very little to do with what group he comes from. Being from a minority group doesn't make you immune to prejudice.


RE: Autistic behavior puts parents, public in discomfort zone - earthmonkey - 08-18-2008 04:59 AM

I screwed up the post somehow...

earthmonkey Wrote:

Max the Bear Wrote:
[quote=The Heretic]

... my best friend is Indian, and she has a black son.  One of my only other friends here that I've had for years is Hispanic.  ...so if I were racist not only would they know, but they wouldn't speak to me.  


First of all, I would like to testify that my best friend for the last 15 years, Karl, who was also my best man at my wedding is black and, unsurprisingly, so are both his kids, so I am undoubtedly right about everything I am going to say. Tongue

(Oh, and Karl thinks your post was incredibly racist.)


A blogger out there somewhere said this

Blogger Out There Somewhere Wrote:

It has always amused me how often someone will make an incredibly offensive comment about an entire group of people and then, when called on their opinions, that person will look at you in self-righteous indignation and proclaim, "I'm not a (racist/sexist/anti-semite/homophobe) some of my best friends are (black/women/jews/gay)" as if having a friend who belongs to the group that was just maligned somehow gives one some sort of moral get-out-of-jail-free card.

This tactic seems, to me, strikingly intellectually dishonest and more than a little repulsive. ... when I make friends from any individual group I've begun to believe stereotypes about, I don't automatically become immune to my own narrow-minded beliefs. Getting over prejudices requires a good deal of work...

And having a friend who happens to belong to the group you're prejudiced against just doesn't cut it.


Yeah, I'm an autistic lesbian who has been friends with people who are gay, female, or autistic and said homophobic, autiphobic, and sexist remarks. I'm sure I've said racist remarks too, and I have had friends who are black, Asian, and other races too that aren't considered "white". Of course at the time I didn't think of these actions and remarks that way, and my friends of the maligned groups didn't say "I'm not going to be friends with you because of this" or anything.

When another person has said these types of remarks, I have many times before stood by - because I knew they "didn't really mean it THAT way" (a common excuse that makes the provider of offending remarks feel not guilty about them), or because I worried that if I expressed to them that it was offensive, that they'd disregard me as "too sensitive" (a common way that people complaining about bigoted remarks are dismissed) or rejected from their friendship (which can be especially a tough one, as for autistics and people who are frequently rejected on basis of bigotry a friendship can be something you don't want to "throw away over some petty thing").

So, yeah, he's got some very good points, and self-hatred from, say a gay person, doesn't have to be so obvious as them saying "I hate gay people; I hate being gay." It's more likely to be MUCH more subtle, and may not even be vocalized ever. As I said homophobic remarks, I would also, when called gay before I was out, I would say: "I may not be gay, but even if I were that's no reason to make fun of someone." When I was about ten years old! And yet I still carried a degree of self-hatred, even as I would speak about "tolerance" and say homophobic things (but I didn't use the word "f****t", so it couldn't POSSIBLY be homophobic! </sarcasm>Wink.




RE: Autistic behavior puts parents, public in discomfort zone - Walden - 08-18-2008 05:50 AM

Walden Wrote:
I happen to think that there are only two classes, (in the US) the top 1% and then the rest. 


That assertion would probably be very difficult to back up. The difference between someone comfortably in the middle class and someone on the brink of poverty, or well immersed in it, have very different experiences.
[/quote]

Yes, the whole 1% thing, I agree, is merely a silly and useless opinion,  I am not asserting it.  That was more like a throw away line, just how I was thinking (sadly) at that moment.  The divide between the rich and the rest has been widening and I don't know what the end result will be... most moments I am more optimistic... Smile I am thinking now about perspective and how people in the different scenarios you mention might not care(and a bit about mobility...) but all besides the point ... but since you mentioned it earthmonkey I figure I'd reply.  It seems to me while I think about it, that the subject of class and minority status have some parallels with autism rights, as a group that faces both subtle and overt discrimiation.

I have been a bit (more) cynical about the prospects of regular americans (people - whatever socio-economic status they have) and how comfortable they really are of late.  (The last 7 years plus have not gone well for the US,except if you are in the top 1%) (forget money- the infrastructure of government is not working -schools, health care, roads, environment etc., etc., )

I agree it is not a fair comparison however, reality is often just perspective.  The perspective of what one is immersed in and the complications and trappings of being stuck in the middle (lack of health insurance, bankruptcy, foreclosures, collections agencies from maxed out credit cards, defaults on car loans etc., (people facing this are in all income brackets except the highest...) shouldn't really compare with the truly unfortunate.  Those who never feel the stability of a owning a home (different from many who choose not to) are discriminated against and get lower quality of health care, less educational options etc.,  (in the US) but lately everyone seems to have troubles. Many don't seem to have the time or energy to think about the fact that there is always some one with worse troubles. With all the sadness in the world these days - that is not much solace. It seems to me that too many are stuck on a hamster wheel....

Here is a short excerpt of an article about the US and wealth distribution.  The disparity between the rich and the rest (the top 1%) is back to the days of the robber barons right before the depression and stock market crash, these economic times are eerily similar and worse even...


"Early in the twentieth century, the share of total national income drawn by the top 1 percent of U.S. earners hovered around 18 percent. That share hit an all-time high in 1928—when top earners took home 21.1 percent of all income, including capital gains—then dropped steadily through the next three decades. Amid the post-World War II boom in higher education, and overall economic growth, the American middle class swelled and prospered, and the top 1 percent of earners took home less than 10 percent of all income through the 1960s and 1970s. Since then, the topmost 1 percent have seen their share rise again: it shot past 15 percent in 1996 and crested at 20.3 percent in 2006, the most recent year for which numbers are available."

Anyway, sorry to tangent - I hadn't thought that class was really an issue in the US for a few decades but there has been more talk lately about the widening divide. Pressure on the middle seems to be brining out the worst qualities in people.


RE: Autistic behavior puts parents, public in discomfort zone - earthmonkey - 08-18-2008 06:06 AM

I have seen this thing which rated the US in terms of the rich-poor economic gap, and the country rated (unsurprisingly) pretty low.


RE: Autistic behavior puts parents, public in discomfort zone - micgrace - 08-18-2008 06:15 AM

Even that rich poor class gap is beginning to raise its ugly head in Australia. It is so egalatarian here, or used to be. No-one used to care how little or how much you had, you just got on. You could just as easily have a meal with a billionaire or a pauper and no-one would even bother to comment. You were just mates and classless. Even living in the same suburbs, going to the same schools etc. This seems to be changing where the rich are setting up their own enclaves etc. Mores the pity.


RE: Autistic behavior puts parents, public in discomfort zone - Walden - 08-18-2008 06:44 AM

(trying to steer this back to autism rights and human behavior)

The 'haves' and 'have nots' time, I had not given much credence to.  I thought class was so "over", my age group had been relatively unscathed. Education was the key to mobility etc.,  Sorry that seems over cynical again - must stop posting in this topic too sad Sad I like to deny that it is human nature, but is it out of an old bad habit to try to keep down others that are different like people on the spectrum being easy targets.  Are people with disabilities the new second class? Do people find it easier to attack (belittle,discriminate, look down upon) because of status? Is that why there seemes to be a double standard? Is that perhaps why some in the spectrum take the tack of superiority - the best defense is a good offense?


RE: Autistic behavior puts parents, public in discomfort zone - micgrace2 - 08-18-2008 09:28 AM

Walden. I am an easy target for discrimination. I am very different to mainstream society members. Whatever is a social custom and easily learnt by an NT I cannot. I only learn it by intellect or close observation. Every interaction I  had to learn this way.

But I am irrepressible. If something doesn't work I try until it does. But I also have strong gifts in certain areas which my family love and bosses definitely hate. I can sum up very complex situations, come up with a simple plan of action that works while everyone flounders around. That makes one very unpopular if you are working for someone. There can't be two bosses. So I do my own thing. Uni, business.


RE: Autistic behavior puts parents, public in discomfort zone - Luai_lashire - 08-18-2008 05:13 PM

Getting back to the original topic of the post, I wanted to share one of my favorite bloggers' take on this article:


Joel Wrote:
I got through reading a bunch of comments to a news story, regarding whether or not people with disabilities should be able to be part of society (the “main” society, not some sub-part hidden behind walls). In the end, it was clear: there are two views. The first is that the human race has a duty to everyone to at least try to find a place for people that allows inclusion, not segregation, from society. The second is that this duty only exists while it isn’t upsetting or inconvenient. This second view is often justified on the basis of “safety”.

I am constantly amazed how non-violence acts can be treated as if they were violent, simply because someone says, “Well, they do scare me, and I have a right to not be scared.” Actually, no, you don’t have a right to not be scared. You do have a right to be safe, although that right isn’t a guarantee. Sometimes there is a difference between true safety and the perception of safety (in fact, people confuse “safe” with “familiar” - that is why flying on a plane feels unsafe to some people, why some city people feel uncomfortable in the woods when they hear an animal at night, or why another person might reach up to lock their car door when someone of another skin color is standing on a corner nearby). In other words, we (as people) get this wrong a lot of the time (we probably get it wrong most of the time). Unfortunately we typically can’t see that our own fear may not be based in reality - and so our feelings of fear, rather than an objective measure of safety - become the standard. Ironically, using this standard often misses true danger, while discriminating against people who are not a danger at all.

Listen closely the next time someone wants to keep someone from participating in society - how long does it take before “safety” is brought up, and is safety brought up in a logical, objective way or is it brought up in the context of feelings, stereotypes, and “personal experience” that can’t be argued against without bringing the discussion to a personal (rather than logical) level?  Certainly there are times and places where people must be segregated, but I’ll bet that the next time you hear this in the context of disability, you’ll see feelings of safety, not real safety, as the real issue.

And note: I’m not confusing “participating in society” with “participating exactly the same way as others do in society”. Clearly that wouldn’t be any more acceptable than the things I’m talking about here.I got through reading a bunch of comments to a news story, regarding whether or not people with disabilities should be able to be part of society (the “main” society, not some sub-part hidden behind walls). In the end, it was clear: there are two views. The first is that the human race has a duty to everyone to at least try to find a place for people that allows inclusion, not segregation, from society. The second is that this duty only exists while it isn’t upsetting or inconvenient. This second view is often justified on the basis of “safety”.

I am constantly amazed how non-violence acts can be treated as if they were violent, simply because someone says, “Well, they do scare me, and I have a right to not be scared.” Actually, no, you don’t have a right to not be scared. You do have a right to be safe, although that right isn’t a guarantee. Sometimes there is a difference between true safety and the perception of safety (in fact, people confuse “safe” with “familiar” - that is why flying on a plane feels unsafe to some people, why some city people feel uncomfortable in the woods when they hear an animal at night, or why another person might reach up to lock their car door when someone of another skin color is standing on a corner nearby). In other words, we (as people) get this wrong a lot of the time (we probably get it wrong most of the time). Unfortunately we typically can’t see that our own fear may not be based in reality - and so our feelings of fear, rather than an objective measure of safety - become the standard. Ironically, using this standard often misses true danger, while discriminating against people who are not a danger at all.

Listen closely the next time someone wants to keep someone from participating in society - how long does it take before “safety” is brought up, and is safety brought up in a logical, objective way or is it brought up in the context of feelings, stereotypes, and “personal experience” that can’t be argued against without bringing the discussion to a personal (rather than logical) level?  Certainly there are times and places where people must be segregated, but I’ll bet that the next time you hear this in the context of disability, you’ll see feelings of safety, not real safety, as the real issue.

And note: I’m not confusing “participating in society” with “participating exactly the same way as others do in society”. Clearly that wouldn’t be any more acceptable than the things I’m talking about here.


Joel's blog can be found here:  http://thiswayoflife.org/blog/


RE: Autistic behavior puts parents, public in discomfort zone - Max the Bear - 08-18-2008 05:50 PM

God, there's a lot of excellent stuff in that post, Luai.

My previous school had a "safety committee" -- which I would have assumed was responsible for making sure the fire extinguishers were in place and kids weren't falling out the windows.

It was amazing the complaints from teachers that came to us under the umbrella of "I don't feel safe when _____."

I don't feel safe when I see more than four students in a group.
I don't feel safe when boys are wearing their pants too low.
on and on...

Everything is about "safety" when in fact it's just "I am uncomfortable having those people around. I feel safe when everybody is like me."

The other word is "appropriate. Things (and behaviors and people) that are not "appropriate" must be eliminated. "It's just not appropriate" is the New Fascism. That one was used to beat down everything from goth garb to texting between classes.

Joel is right. It's an expectation that everything that is not familiar should be removed from sight. And "familiar" means "Just like me and mine, in the same form it has existed in since time froze for me."


RE: Autistic behavior puts parents, public in discomfort zone - hyke - 08-18-2008 10:05 PM

Beautiful quote Luai,

Impressive.


RE: Autistic behavior puts parents, public in discomfort zone - windy - 08-19-2008 02:31 AM

Luai_lashire Wrote:
Getting back to the original topic of the post, I wanted to share one of my favorite bloggers' take on this article:


Joel Wrote:
I got through reading a bunch of comments to a news story, regarding whether or not people with disabilities should be able to be part of society (the “main” society, not some sub-part hidden behind walls). In the end, it was clear: there are two views. The first is that the human race has a duty to everyone to at least try to find a place for people that allows inclusion, not segregation, from society. The second is that this duty only exists while it isn’t upsetting or inconvenient. This second view is often justified on the basis of “safety”.

I am constantly amazed how non-violence acts can be treated as if they were violent, simply because someone says, “Well, they do scare me, and I have a right to not be scared.” Actually, no, you don’t have a right to not be scared. You do have a right to be safe, although that right isn’t a guarantee. Sometimes there is a difference between true safety and the perception of safety (in fact, people confuse “safe” with “familiar” - that is why flying on a plane feels unsafe to some people, why some city people feel uncomfortable in the woods when they hear an animal at night, or why another person might reach up to lock their car door when someone of another skin color is standing on a corner nearby). In other words, we (as people) get this wrong a lot of the time (we probably get it wrong most of the time). Unfortunately we typically can’t see that our own fear may not be based in reality - and so our feelings of fear, rather than an objective measure of safety - become the standard. Ironically, using this standard often misses true danger, while discriminating against people who are not a danger at all.

Listen closely the next time someone wants to keep someone from participating in society - how long does it take before “safety” is brought up, and is safety brought up in a logical, objective way or is it brought up in the context of feelings, stereotypes, and “personal experience” that can’t be argued against without bringing the discussion to a personal (rather than logical) level?  Certainly there are times and places where people must be segregated, but I’ll bet that the next time you hear this in the context of disability, you’ll see feelings of safety, not real safety, as the real issue.

And note: I’m not confusing “participating in society” with “participating exactly the same way as others do in society”. Clearly that wouldn’t be any more acceptable than the things I’m talking about here.I got through reading a bunch of comments to a news story, regarding whether or not people with disabilities should be able to be part of society (the “main” society, not some sub-part hidden behind walls). In the end, it was clear: there are two views. The first is that the human race has a duty to everyone to at least try to find a place for people that allows inclusion, not segregation, from society. The second is that this duty only exists while it isn’t upsetting or inconvenient. This second view is often justified on the basis of “safety”.

.


Joel's blog can be found here:  http://thiswayoflife.org/blog/


Thanks for sharing... my favorite line was : " (in fact, people confuse “safe” with “familiar” - "


RE: Autistic behavior puts parents, public in discomfort zone - earthmonkey - 08-19-2008 05:31 AM

Max the Bear Wrote:
God, there's a lot of excellent stuff in that post, Luai.

My previous school had a "safety committee" -- which I would have assumed was responsible for making sure the fire extinguishers were in place and kids weren't falling out the windows.

It was amazing the complaints from teachers that came to us under the umbrella of "I don't feel safe when _____."

I don't feel safe when I see more than four students in a group.
I don't feel safe when boys are wearing their pants too low.
on and on...

Everything is about "safety" when in fact it's just "I am uncomfortable having those people around. I feel safe when everybody is like me."

The other word is "appropriate. Things (and behaviors and people) that are not "appropriate" must be eliminated. "It's just not appropriate" is the New Fascism. That one was used to beat down everything from goth garb to texting between classes.

Joel is right. It's an expectation that everything that is not familiar should be removed from sight. And "familiar" means "Just like me and mine, in the same form it has existed in since time froze for me."


Oh, yeah. I have "inappropriate" written all across my school records. Inappropriate gestures, inappropriate posture, inappropriate socialization (hey, I have friends - so WTF do they care?), inappropriate rigidity (which is actually just pressuring school staff to comply with federal law), etc. etc. I have unusual gestures, posture, socialization, and standards of rigidity - but to haphazardly apply the word "inappropriate" is, well, "inappropriate".


RE: Autistic behavior puts parents, public in discomfort zone - Lang - 08-19-2008 07:21 AM

atypical Wrote:

Luai_lashire Wrote:
Getting back to the original topic of the post, I wanted to share one of my favorite bloggers' take on this article:


Joel Wrote:
I got through reading a bunch of comments to a news story, regarding whether or not people with disabilities should be able to be part of society (the “main” society, not some sub-part hidden behind walls). In the end, it was clear: there are two views. The first is that the human race has a duty to everyone to at least try to find a place for people that allows inclusion, not segregation, from society. The second is that this duty only exists while it isn’t upsetting or inconvenient. This second view is often justified on the basis of “safety”.

I am constantly amazed how non-violence acts can be treated as if they were violent, simply because someone says, “Well, they do scare me, and I have a right to not be scared.” Actually, no, you don’t have a right to not be scared. You do have a right to be safe, although that right isn’t a guarantee. Sometimes there is a difference between true safety and the perception of safety (in fact, people confuse “safe” with “familiar” - that is why flying on a plane feels unsafe to some people, why some city people feel uncomfortable in the woods when they hear an animal at night, or why another person might reach up to lock their car door when someone of another skin color is standing on a corner nearby). In other words, we (as people) get this wrong a lot of the time (we probably get it wrong most of the time). Unfortunately we typically can’t see that our own fear may not be based in reality - and so our feelings of fear, rather than an objective measure of safety - become the standard. Ironically, using this standard often misses true danger, while discriminating against people who are not a danger at all.

Listen closely the next time someone wants to keep someone from participating in society - how long does it take before “safety” is brought up, and is safety brought up in a logical, objective way or is it brought up in the context of feelings, stereotypes, and “personal experience” that can’t be argued against without bringing the discussion to a personal (rather than logical) level?  Certainly there are times and places where people must be segregated, but I’ll bet that the next time you hear this in the context of disability, you’ll see feelings of safety, not real safety, as the real issue.

And note: I’m not confusing “participating in society” with “participating exactly the same way as others do in society”. Clearly that wouldn’t be any more acceptable than the things I’m talking about here.I got through reading a bunch of comments to a news story, regarding whether or not people with disabilities should be able to be part of society (the “main” society, not some sub-part hidden behind walls). In the end, it was clear: there are two views. The first is that the human race has a duty to everyone to at least try to find a place for people that allows inclusion, not segregation, from society. The second is that this duty only exists while it isn’t upsetting or inconvenient. This second view is often justified on the basis of “safety”.

.


Joel's blog can be found here:  http://thiswayoflife.org/blog/


Thanks for sharing... my favorite line was : " (in fact, people confuse “safe” with “familiar” - "


My favorite was “Well, they do scare me, and I have a right to not be scared.” Actually, no, you don’t have a right to not be scared.  Seriously, what's so special about them that only they don't have to feel fear?


RE: Autistic behavior puts parents, public in discomfort zone - Max the Bear - 08-19-2008 07:45 AM

ConLang Wrote:

My favorite was “Well, they do scare me, and I have a right to not be scared.” Actually, no, you don’t have a right to not be scared.  Seriously, what's so special about them that only they don't have to feel fear?


I loved that one, too. A writer once said, similarly, "You surrender your right not to be offended when you walk out your front door."

Both statements are perfect pictures of extreme privilege-overdose. People who say "The world and everyone in it must be arranged with my comfort in mind" obviously see themselves as the singular center of the universe and the rest of us mere devises to assure their perfect psycho-socio-cultutal homeostasis.

Never mind that that perfect arrangement may create fear, offense, pain, death and alienation for others. Those "others" don't matter. That's what you deserve for being an "other."

I thought a lot about this vis-a-vis gay marriage. Everyone knows there's not a single valid reason against it -- except that it "offends" They Who Must Not Be Offended -- and that over-rides fundamental cicil rights.


RE: Autistic behavior puts parents, public in discomfort zone - Alaras - 08-19-2008 10:11 AM

That, boys and girls, is why I try to offend at least 25 prudes every day, then dare them to find a way to force me to stop.  Nobody has yet found a way, as I have quoted that writer every time, and then accused them of hate speech for vilifying my differences.


mere existence of fat people - Shrek - 08-19-2008 03:57 PM

The mere existence of fat people offendeth the gods who expect everyone to be eye candy for them.


RE: Autistic behavior puts parents, public in discomfort zone - tenaciouscj - 08-19-2008 04:21 PM

silky Wrote:

tenaciouscj Wrote:
It's not that I wouldn't repect such a badge but it would be as if the other person didn't even want to try and get to know anybody else which means it's not much point coming to such an event in the first place.


Ah. But you see, that is not everyone's purpose or goal in being at a convention, to talk to people or hug them.

I can see why somebody at an autism might have a badge saying "please don't hug me" but saying "don't talk to me" is going right over the top as far as I'm concerned. I would be a bit insulted.


RE: Autistic behavior puts parents, public in discomfort zone - michele522 - 08-19-2008 05:53 PM

silky Wrote:

Callista Wrote:
I'll save the real fireworks for the passing motorcycles and unexpected hugs. Big Grin


That.  I'm preparing myself to attend a large convention where I'll be in strategic hug dodging mode.  I wish NT events had those cool badges to alert people that you dont want to interact with them.


Silky, I'm NT and wish I could have one of those Wink


RE: Autistic behavior puts parents, public in discomfort zone - Wilhemina - 08-19-2008 05:55 PM

michele522 Wrote:

silky Wrote:

Callista Wrote:
I'll save the real fireworks for the passing motorcycles and unexpected hugs. Big Grin


That.  I'm preparing myself to attend a large convention where I'll be in strategic hug dodging mode.  I wish NT events had those cool badges to alert people that you dont want to interact with them.


Silky, I'm NT and wish I could have one of those Wink


*Raises hand and asks for one, too.*


RE: Autistic behavior puts parents, public in discomfort zone - earthmonkey - 08-19-2008 11:27 PM

tenaciouscj Wrote:

silky Wrote:

tenaciouscj Wrote:
It's not that I wouldn't repect such a badge but it would be as if the other person didn't even want to try and get to know anybody else which means it's not much point coming to such an event in the first place.


Ah. But you see, that is not everyone's purpose or goal in being at a convention, to talk to people or hug them.

I can see why somebody at an autism might have a badge saying "please don't hug me" but saying "don't talk to me" is going right over the top as far as I'm concerned. I would be a bit insulted.


Having people talk to me can be quite stressful, and I will at these times visibly react, often repeatedly rubbing my ears or slapping myself. I think a badge indicating that I'm not in a position to talk or be talked to, would have less potential for confusion as to why I don't want to talk, than me running the other direction or reacting this way. Sometimes it's just way too stressful to interact with people.


RE: Autistic behavior puts parents, public in discomfort zone - earthmonkey - 08-19-2008 11:30 PM

Korrigan Wrote:

michele522 Wrote:

silky Wrote:

Callista Wrote:
I'll save the real fireworks for the passing motorcycles and unexpected hugs. Big Grin


That.  I'm preparing myself to attend a large convention where I'll be in strategic hug dodging mode.  I wish NT events had those cool badges to alert people that you dont want to interact with them.


Silky, I'm NT and wish I could have one of those Wink


*Raises hand and asks for one, too.*


That's actually a pretty common thing I think, for technologies and accommodations originally designed/intended for disabled people, also extending to benefit other people too (such as curb cuts and ramps also helping people with strollers in hand).


RE: Autistic behavior puts parents, public in discomfort zone - Flardox - 08-23-2008 07:39 PM

ocampo Wrote:
I agree with certain points in this although its awful that they had to mention Savage possibly assisting with awareness of autism. I still maintain that if Adam Race had felt comfortable in the church, he wouldn't have been having meltdowns. I don't have predictable meltdowns in places I feel completely comfortable. Obviously I have had meltdowns in places I'm comfortable; but not consistently.

I also agree with the statement about playgrounds. Equality isn't about being treated better, its about being part of society. Ultimately we all have to share the same space. Just as NTs need to understand more about autism, I also believe that autistics need to learn coping mechanisms. And I stress the term 'coping' - its not about giving up who you are, and its not trying to be NT. Meltdowns are not pleasurable things for anyone, least of all for the person having them.

I always make a point of telling people I'm autistic. Or rather, I say 'I have Aspergers syndrome, its a form of high functioning autism'. I wait until I've been talking and then I drop it into the conversation. My attitude is that if they're thinking I'm an articulate, good-humoured person who is chatting away 'normally', I may have changed their perception of the autistic spectrum.



I agree

unfortuantely In the case of Adam Race it was probably for the better he wasn't at the church as he apparently struck a few people and was also having meltdowns

I think I also heard that his parents bound him to the chair?

anyways

I kind of do the same

alot of people have thought I'm the sibling not the autistic one!


RE: Autistic behavior puts parents, public in discomfort zone - windy - 08-23-2008 08:31 PM

I was at the beach Thursday and there was a bunch of kids (under age 18) and chaperones? camp counsellors? from New Horizons in Autism there.  In total the group had about 15/20. Three or 4 large picnic benches were being used by the group.
I was standing on a long line to buy lunch and they were mostly sitting.  It was very loud and echoed a lot (there was an overhead roof) and some kids were stimming and clapping etc., (some were still waiting for their food so were not eating).

The point of posting here, is on topic. No one looked at them funny.  They were just another group there.  (There is often busloads of kids that visit that beach with their camps etc.,) No one I saw ( I was on line almost 30 minutes) was in the least bit uncomfortable.  There were many tables to choose from and the tables next to the group were occupied.  Just something I noticed. Smile


RE: Autistic behavior puts parents, public in discomfort zone - Wilhemina - 08-23-2008 08:36 PM

atypical Wrote:
The point of posting here, is on topic. No one looked at them funny.  They were just another group there.  (There is often busloads of kids that visit that beach with their camps etc.,) No one I saw ( I was on line almost 30 minutes) was in the least bit uncomfortable.  There were many tables to choose from and the tables next to the group were occupied.  Just something I noticed. Smile


I am glad that you continue to be able to read people's minds.  Or did you talk to everyone there to see how comfortable they were?  

You should not assume that because no one was screaming about how uncomfortable they were that they were not in fact uncomfortable.  Really, you have no idea.  


RE: Autistic behavior puts parents, public in discomfort zone - windy - 08-23-2008 08:46 PM

I think that it is within my rights as a human being to look for and find goodness and kindness in the world around me.  No one is arguing with anyone here, people sometimes have very little tolerance for differences and they often show it very clearly.

I will repost my post, as it is on topic and is not hurting anyone that I happened to experience something positive in my travels.  I like happy thoughts.

"Posted by atypical - Today 02:31 PM
I was at the beach Thursday and there was a bunch of kids (under age 18) and chaperones? camp counsellors? from New Horizons in Autism there.  In total the group had about 15/20. Three or 4 large picnic benches were being used by the group.
I was standing on a long line to buy lunch and they were mostly sitting.  It was very loud and echoed a lot (there was an overhead roof) and some kids were stimming and clapping etc., (some were still waiting for their food so were not eating).

The point of posting here, is on topic. No one looked at them funny.  They were just another group there.  (There is often busloads of kids that visit that beach with their camps etc.,) No one I saw ( I was on line almost 30 minutes) was in the least bit uncomfortable.  There were many tables to choose from and the tables next to the group were occupied.  Just something I noticed.  
******************************************


RE: Autistic behavior puts parents, public in discomfort zone - Marcia - 08-23-2008 08:57 PM

Body language and behaviour can provide guidance as to what people are thinking.  If people had been uncomfortable in the situation that atypical observed for 30 minutes then at least some of that discomfort would have been apparent in people's facial expressions, perhaps whispering and sideways glances, moving away from the group or choosing to sit down far away from them.

Atypical was commenting on what she saw.


RE: Autistic behavior puts parents, public in discomfort zone - Callista - 08-23-2008 09:08 PM

Quote:
unfortuantely In the case of Adam Race it was probably for the better he wasn't at the church as he apparently struck a few people and was also having meltdowns

Wait, wait. When I read the article, what I saw was that he tended to wet his pants, spit, make noise, and get out of his seat, and that he almost ran into an old woman once. I saw nothing of violence or meltdowns. Reference, please?


RE: Autistic behavior puts parents, public in discomfort zone - Mahler5 - 08-23-2008 09:37 PM

Marcia Wrote:
Body language and behaviour can provide guidance as to what people are thinking.  


This can be true-provided one can 'read' someone's body language accurately.

Sometimes body language doesn't match with 'thinking' though-especially if someone wants to hide what they are truly feeling/thinking and don't want to say anything or to show others that they think something may be considered 'inappropriate' to them..That's always most confusing.

Different venues have differing expectations for behaviour-one is 'allowed' to be a bit louder at the beach, for instance,- louder than in a church, I think.
Some churches 'allow' less noise than others, etc..

Of course, body language may be a bit more obvious if it's a clothing-optional beach.. Smile
 


RE: Autistic behavior puts parents, public in discomfort zone - Marcia - 08-23-2008 09:41 PM

Mahler5 Wrote:
Of course, body language may be a bit more obvious if it's a clothing-optional beach.. Smile  


Lol! Yes! Big Grin


RE: Autistic behavior puts parents, public in discomfort zone - windy - 08-23-2008 09:54 PM

Mahler5 Wrote:

Marcia Wrote:
Body language and behaviour can provide guidance as to what people are thinking.  


This can be true-provided one can 'read' someone's body language accurately.

Sometimes body language doesn't match with 'thinking' though-especially if someone wants to hide what they are truly feeling/thinking and don't want to say anything or to show others that they think something may be considered 'inappropriate' to them..That's always most confusing.

Different venues have differing expectations for behaviour-one is 'allowed' to be a bit louder at the beach, for instance,- louder than in a church, I think.
Some churches 'allow' less noise than others, etc..

Of course, body language may be a bit more obvious if it's a clothing-optional beach.. Smile
  

My aspie son was snickering (I had to speak with him to stop) because a kid's bathing suit on line was down too far and he could see - lol - too much crack....

I was watching closely for reactions of the crowd, because of my own three kids were not on line with me. They were across the open air room and I had an extra kid, not mine, with us. My aspie son started getting a little hyped up from the echoes and the crowd and was just plain happy.  He ran back and forth from where I was on line to the video machines (claw prize machine) with his mario and luigi plush charecters in hand a handful of times - having fun. He was doing just fine though. As an adult/mother I make sure the kids in my care aren't bothering anyone or bumping into people carrying food etc., I was also watching the extra child, a friend of my other son and I was checking to see how he would react to the group too.  Nice kid.

People were all so happy and relaxed - the beach does that for people.  There are often large groups at this beach 9as a mentioned in the earlier post) and it seems that the people were quite happy to see kids being kids, having fun etc., The people were very 'live and let live'. It was a nice bunch of people.

As I was there a long time and the accoustics were bothering my sensitive ears I knew why my son was stimming, a bit.  I specifically looked at the group of autistic kids to see how it was affecting them- otherwise, I wouldn't have taken notice of them in any detail. I also was watching the counsellors, I liked what I saw. Reminding myself to look up the group.


RE: Autistic behavior puts parents, public in discomfort zone - Wilhemina - 08-23-2008 10:46 PM

atypical Wrote:
I think that it is within my rights as a human being to look for and find goodness and kindness in the world around me.  No one is arguing with anyone here, people sometimes have very little tolerance for differences and they often show it very clearly.

I will repost my post, as it is on topic and is not hurting anyone that I happened to experience something positive in my travels.  I like happy thoughts.

"Posted by atypical - Today 02:31 PM
I was at the beach Thursday and there was a bunch of kids (under age 18) and chaperones? camp counsellors? from New Horizons in Autism there.  In total the group had about 15/20. Three or 4 large picnic benches were being used by the group.
I was standing on a long line to buy lunch and they were mostly sitting.  It was very loud and echoed a lot (there was an overhead roof) and some kids were stimming and clapping etc., (some were still waiting for their food so were not eating).

The point of posting here, is on topic. No one looked at them funny.  They were just another group there.  (There is often busloads of kids that visit that beach with their camps etc.,) No one I saw ( I was on line almost 30 minutes) was in the least bit uncomfortable.  There were many tables to choose from and the tables next to the group were occupied.  Just something I noticed.  
******************************************


Hey, what you saw was what you saw.  I just would not make the assumption that you knew how people were feeling, especially to the extreme of:

atypical Wrote:
No one I saw ( I was on line almost 30 minutes) was in the least bit uncomfortable.  


You cannot assume that they were not uncomfortable.  You were uncomfortable with the noise.  

atypical Wrote:
As I was there a long time and the accoustics were bothering my sensitive ears

Were you showing it in a way that someone who has never met you would know?

I was simply pointing out that we cannot assume that because we look at something from the outside, with people we have never met, that we can gauge accurately how they are feeling.  We can guess, we can estimate, but we cannot really know.  

This is something I have really learned as the wife of an Aspie.  After a long time of assuming that he was upset about something just by the expression on his face, which is a relatively normal way to read someone's feelings, I learned that he does not often have a very expressive expression.  I also cannot read his feelings by his body language, as it is often misleading, if you were to compare it to a lot of NT people in the world.  

I think that it is really dangerous to assume anything about how someone is feeling by their outward expressions, and that we should be really careful of this as Aspies/Auties/Friends and Family of Both.    


RE: Autistic behavior puts parents, public in discomfort zone - earthmonkey - 08-24-2008 12:57 AM

Korrigan Wrote:

atypical Wrote:
I think that it is within my rights as a human being to look for and find goodness and kindness in the world around me.  No one is arguing with anyone here, people sometimes have very little tolerance for differences and they often show it very clearly.

I will repost my post, as it is on topic and is not hurting anyone that I happened to experience something positive in my travels.  I like happy thoughts.

"Posted by atypical - Today 02:31 PM
I was at the beach Thursday and there was a bunch of kids (under age 18) and chaperones? camp counsellors? from New Horizons in Autism there.  In total the group had about 15/20. Three or 4 large picnic benches were being used by the group.
I was standing on a long line to buy lunch and they were mostly sitting.  It was very loud and echoed a lot (there was an overhead roof) and some kids were stimming and clapping etc., (some were still waiting for their food so were not eating).

The point of posting here, is on topic. No one looked at them funny.  They were just another group there.  (There is often busloads of kids that visit that beach with their camps etc.,) No one I saw ( I was on line almost 30 minutes) was in the least bit uncomfortable.  There were many tables to choose from and the tables next to the group were occupied.  Just something I noticed.  
******************************************


Hey, what you saw was what you saw.  I just would not make the assumption that you knew how people were feeling, especially to the extreme of:

atypical Wrote:
No one I saw ( I was on line almost 30 minutes) was in the least bit uncomfortable.  


You cannot assume that they were not uncomfortable.  You were uncomfortable with the noise.  

atypical Wrote:
As I was there a long time and the accoustics were bothering my sensitive ears

Were you showing it in a way that someone who has never met you would know?

I was simply pointing out that we cannot assume that because we look at something from the outside, with people we have never met, that we can gauge accurately how they are feeling.  We can guess, we can estimate, but we cannot really know.  

This is something I have really learned as the wife of an Aspie.  After a long time of assuming that he was upset about something just by the expression on his face, which is a relatively normal way to read someone's feelings, I learned that he does not often have a very expressive expression.  I also cannot read his feelings by his body language, as it is often misleading, if you were to compare it to a lot of NT people in the world.  

I think that it is really dangerous to assume anything about how someone is feeling by their outward expressions, and that we should be really careful of this as Aspies/Auties/Friends and Family of Both.    


Yeah, when I'm at school, a lot of times the special ed teachers would completely misread my body language, whereas I could read theirs (though I'm a bit better with reading the body language of most autistic people I've met), and yet I had to sit there and listen about how I can't read body language. Hey, I know I'm giving atypical body language, and I don't fault them for having difficulty reading me, but they are SO presumptive that they know exactly how to read me.

Heck, I am not so presumptive as this when reading other autistic people, even though I get it right FAR more often than most NTs I've seen. Really, from this perspective, watching (most) NTs interacting with autistic people, when the NT person presumes to read the autistic person correctly, then it is the NT who is utterly clueless. However, there are non-autistic people I've met who can read me pretty well (not sure how many of these would qualify as NT though - many of my friends are quite neurodivergent, though not all, and also some NT teachers have exhibited understanding of my body language).


RE: Autistic behavior puts parents, public in discomfort zone - micgrace2 - 08-24-2008 01:03 AM

I must say I have deliberately cultivated control of body language as an aspie. I certainly can detect others and modify mine to suit a situation.

This habit came from me having to learn it at an intellectual level to fit in after I left school. It didn't come naturally.

Some people (like a lot) think they can read me and get it wrong almost every time. I presume they are NT, so in fact, it could be possible to be better in this area than most since we had to learn it by intellectual means rather than picking it up via "osmosis".


RE: Autistic behavior puts parents, public in discomfort zone - JackNasty - 08-24-2008 01:08 AM

atypical Wrote:

I think that it is within my rights as a human being to look for and find goodness and kindness in the world around me.  I like happy thoughts.


And that is why your miraculous powers of Mass Mind-reading are particularly dubious. By your own words you're not remotely an objective observer. You "observe" with a proudly announced bias toward finding what you want to find.

It is certainly within your rights to look for goodness and kindness and to light a candle and to frolic with unicorns across the rainbow to CandyLand. But I don't expect to see it written up in any major sociological journals.


RE: Autistic behavior puts parents, public in discomfort zone - earthmonkey - 08-24-2008 01:13 AM

Actually, I picked up body language (both giving and reading it) pretty naturally - I know, this is an odd aspie. However, I really don't have the mental energy to keep it up - so if I'm giving typical body language, I'm probably hopeless at reading it from others, and if I'm reading it well from others, then I'm not going to be giving much typical body language.

So I picked up on it pretty naturally, but my actual real-time control of it, is not on par with NTs. My dad is quite similar in this respect. Much like how, I can tell what someone means when they use a particular tone of voice, but I can't always control the volume or tone of voice that I use, so I will speak too loud, weird inflection, stuff like that.


RE: Autistic behavior puts parents, public in discomfort zone - micgrace2 - 08-24-2008 01:18 AM

There is one thing I do naturally and unconciously and that is to mirror other peoples body language. So, if they show some interest by, say leaning foward slightly, feet pointed towards you, I mirror it. The same goes for eye contact. In fact that skill is far in excess of normal. My voice control and inflection tends to be along the same lines, although I have a problem with the volume and content.


RE: Autistic behavior puts parents, public in discomfort zone - micgrace2 - 08-24-2008 01:25 AM

I might add I tend to unconsciously mirror womens body language and seem to attract quite a bit of unwelcome attention much to my wifes annoyance. Which I did use to attact my wife in the first place. (NT) The guys tend to back off me quite a bit, maybe that makes them uncomfortable. (don't know, I am bi and that may be a bit hard for them to handle and was forced to prove I was hetero at school by despicable means) I haven't really thought about it though.


RE: Autistic behavior puts parents, public in discomfort zone - windy - 08-24-2008 01:44 AM

Posted by JackNasty - Today 07:08 PM

atypical Wrote:I think that it is within my rights as a human being to look for and find goodness and kindness in the world around me.  I like happy thoughts.

JackNasty wrote:"And that is why your miraculous powers of Mass Mind-reading are particularly dubious. By your own words you're not remotely an objective observer. You "observe" with a proudly announced bias toward finding what you want to find.

It is certainly within your rights to look for goodness and kindness and to light a candle and to frolic with unicorns across the rainbow to CandyLand. But I don't expect to see it written up in any major sociological journals."



It is amazing the things that will get picked over from a post.

I am sorry that it is so hard to believe when someone (me) mentions they were in a group situation and everyone was polite and kind. (having a nice time at the beach) Smile I know that you would believe my judgement if I said, people were rolling their eyes and telling their kids not to stare, looking obviously away or getting startled or annoyed by clapping and other outburts of a group of autistic kids.  Never did I say I was a mind reader.  Have we all not seen instances where people act that way? Seeing people roll their eyes, or gawk or look uncomfortable, people trying to establish eye contact with you so that you will sommiserate with them in their annoyance? How about when parents have to talk to their kids about staring?

I had to tell my kid to stop staring at the boy whose suit was droopy Smile  I was paying attention, I am an observer, always have been. Believe it or not, no big deal. The topic of the thread was that austistic behavior makes people uncomfortable - even to the point of asking people to leave, or get off a plane. Table manners and restaurants and public places were mentioned.  People can be intolerant, rude or mean, they can also be kind, easy going and mellow.

Pardon me JackNasty, with 10 posts, if you think I have a positive bias problem.  You don't know a thing about me.


RE: Autistic behavior puts parents, public in discomfort zone - Wilhemina - 08-24-2008 01:45 AM

earthmonkey Wrote:
Actually, I picked up body language (both giving and reading it) pretty naturally - I know, this is an odd aspie. However, I really don't have the mental energy to keep it up - so if I'm giving typical body language, I'm probably hopeless at reading it from others, and if I'm reading it well from others, then I'm not going to be giving much typical body language.

So I picked up on it pretty naturally, but my actual real-time control of it, is not on par with NTs. My dad is quite similar in this respect. Much like how, I can tell what someone means when they use a particular tone of voice, but I can't always control the volume or tone of voice that I use, so I will speak too loud, weird inflection, stuff like that.


I think it depends on the person, how much you are putting out, how much you are picking up, and on the situation.  I would think it is harder in a big loud crowd, or a stressful situation, than when you are relaxed and mellow.

I know my husband, specifically, thinks he is doing something in particular (smiling, in this case) and later I ask him why he was so glum, and he says, no, I was smiling the whole time.  I say, no you were not.  He says, oh, I thought I was.  Since we have learned more about things that are common to many Aspies (in this case, a lack of facial expression - NOT ALL ASPIES, but I hear it a lot) I totally "get" him more, and if I am confused, I ask.  I should have been doing this in the first place, but my incredible niavete was making the assumption that everyone showed their feelings outwardly with their facial expression and their body language.  He also has quite a "hard outer shell" of body language, and I think that tends to be a protective thing to keep "friendly strangers" out of his hair.

My husband is often mistaken on body language and expressions of others that are strangers.  However, he has a keen insight on people that we have spent any time with, and is amazing at telling what people are really thinking, like I said, if he knows them.  

I have learned a lot in the last few months about not assuming that I can tell what people are thinking and how they are feeling by how they look or carry themselves.  It can be very misleading.


RE: Autistic behavior puts parents, public in discomfort zone - Wilhemina - 08-24-2008 01:52 AM

atypical Wrote:
Never did I say I was a mind reader.  


You did not say that.  But you did say the below.  The point that was being made was that you do not know how anyone else was feeling, so you should not assume otherwise.

atypical Wrote:
No one I saw ( I was on line almost 30 minutes) was in the least bit uncomfortable.  




RE: Autistic behavior puts parents, public in discomfort zone - micgrace2 - 08-24-2008 01:56 AM

Is it full moon or something? General unrest between people is becoming common across threads. Chill out. NO MORE PERSONAL ATTACKS, EVER, SERIOUSLY< EVER. Just say I disagree with your [quote] and this is why and back it factually, not by fanciful statements.


RE: Autistic behavior puts parents, public in discomfort zone - JackNasty - 08-24-2008 01:58 AM

atypical Wrote:

Pardon me JackNasty, with 10 posts, if you think I have a positive bias problem.  You don't know a thing about me.


Now don't you get snippy with me, Little Missy with only 1,626 posts. I observed your post and I instantly knew all about you. You're not the only one around here with superhuman powers.

And I didn't say you had observational bias. You did. I'm just giving you the correct name for it.


RE: Autistic behavior puts parents, public in discomfort zone - windy - 08-24-2008 01:59 AM

Korrigan Wrote:

atypical Wrote:
Never did I say I was a mind reader.  


You did not say that.  But you did say the below.  The point that was being made was that you do not know how anyone else was feeling, so you should not assume otherwise.

atypical Wrote:
No one I saw ( I was on line almost 30 minutes) was in the least bit uncomfortable.  


Stop messing with me, my post/s on how it seemed that noone was at all bothered by the group of autistic kids does not need your commentary and  is not hurting anyone.  Find something else to nit-pick.  You promised Could be cousin and Evil zakkie that you would not speak to me directly or talk about me, or respond to my posts.  You have broken that promise repeatedly in the last weeks.  I have ignored repeated insults and mischarecterizations.  I also don't need you to point out any typos.


RE: Autistic behavior puts parents, public in discomfort zone - Ethel - 08-24-2008 02:04 AM

Just drop it.  The lot of you.  Snark, snark, snark, fight, fight, fight, it never ends.  

You know things have come to a sorry pass when you come back to AFF after a few days away and leave more grumpy and jaded with the world than when you arrived.


RE: Autistic behavior puts parents, public in discomfort zone - windy - 08-24-2008 02:13 AM

Ethel Wrote:
Just drop it.  The lot of you.  Snark, snark, snark, fight, fight, fight, it never ends.  

You know things have come to a sorry pass when you come back to AFF after a few days away and leave more grumpy and jaded with the world than when you arrived.


Hi ethel.  I have not posted any responses in more than a month, perhaps even two months.  I think that as my name and post were directly mentioned, my response was not snark.
I am not one who fights with anyone.  I am and have been nothing but polite.


RE: Autistic behavior puts parents, public in discomfort zone - earthmonkey - 08-24-2008 02:17 AM

Korrigan Wrote:

earthmonkey Wrote:
Actually, I picked up body language (both giving and reading it) pretty naturally - I know, this is an odd aspie. However, I really don't have the mental energy to keep it up - so if I'm giving typical body language, I'm probably hopeless at reading it from others, and if I'm reading it well from others, then I'm not going to be giving much typical body language.

So I picked up on it pretty naturally, but my actual real-time control of it, is not on par with NTs. My dad is quite similar in this respect. Much like how, I can tell what someone means when they use a particular tone of voice, but I can't always control the volume or tone of voice that I use, so I will speak too loud, weird inflection, stuff like that.


I think it depends on the person, how much you are putting out, how much you are picking up, and on the situation.  I would think it is harder in a big loud crowd, or a stressful situation, than when you are relaxed and mellow.

I know my husband, specifically, thinks he is doing something in particular (smiling, in this case) and later I ask him why he was so glum, and he says, no, I was smiling the whole time.  I say, no you were not.  He says, oh, I thought I was.  Since we have learned more about things that are common to many Aspies (in this case, a lack of facial expression - NOT ALL ASPIES, but I hear it a lot) I totally "get" him more, and if I am confused, I ask.  I should have been doing this in the first place, but my incredible niavete was making the assumption that everyone showed their feelings outwardly with their facial expression and their body language.  He also has quite a "hard outer shell" of body language, and I think that tends to be a protective thing to keep "friendly strangers" out of his hair.

My husband is often mistaken on body language and expressions of others that are strangers.  However, he has a keen insight on people that we have spent any time with, and is amazing at telling what people are really thinking, like I said, if he knows them.  

I have learned a lot in the last few months about not assuming that I can tell what people are thinking and how they are feeling by how they look or carry themselves.  It can be very misleading.


Yeah, one thing I have noticed is that my body language tends to be MUCH subtler than most people's. I was once in the middle of an interaction, then I turned at the mirror to check on what my expression looked like, and you could see it was a slight smile if looking REAALY close, but most people didn't pick up on it; it was too slight, and for most people would probably qualify as neutral or negative.

Much like, when I was young and feeling ill, I was often disbelieved because I didn't "look" like I was in discomfort or anything, and I'd get sent back to class. In a few years, I started to exaggerate my expressions to make them noticeable, but because I have difficulty moderating these things, my expressions looked FAKE to them, and the yard duties would tell the kids to ignore me when I fell and got hurt and couldn't get up.

That's something that anyone dealing with autistic people (especially kids) should keep in mind: their EXAGGERATED expression, could be their ways of trying to get noticed, when nobody noticed their subtle expressions, rather than a bid for baseless attention. I mean, if I had only a minor emotional or physical problem, my inclination was not to cry. However, nobody would notice me when I did subtler things, so I had to exaggerate just so somebody would see. THEN I got labeled as oversensitive, when before I exaggerated it was like I was totally invisible, and nobody would act as if I was even there. This has been going on at least since I was six.


RE: Autistic behavior puts parents, public in discomfort zone - Wilhemina - 08-24-2008 02:24 AM

earthmonkey Wrote:
That's something that anyone dealing with autistic people (especially kids) should keep in mind: their EXAGGERATED expression, could be their ways of trying to get noticed, when nobody noticed their subtle expressions, rather than a bid for baseless attention. I mean, if I had only a minor emotional or physical problem, my inclination was not to cry. However, nobody would notice me when I did subtler things, so I had to exaggerate just so somebody would see. THEN I got labeled as oversensitive, when before I exaggerated it was like I was totally invisible, and nobody would act as if I was even there. This has been going on at least since I was six.


That is similar for my husband as well.  He has now made more exaggerated gestures for many things, but he says he does it because it distracts from his more awkward gestures that people notice.  He said he would much rather be noticed because of an intentional gesture which he knows he made rather than an unintentional one that he did not know he made at all.  


RE: Autistic behavior puts parents, public in discomfort zone - Wilhemina - 08-24-2008 02:41 AM

atypical Wrote:
Stop messing with me, my post/s on how it seemed that noone was at all bothered by the group of autistic kids does not need your commentary and  is not hurting anyone.  Find something else to nit-pick.  You promised Could be cousin and Evil zakkie that you would not speak to me directly or talk about me, or respond to my posts.  You have broken that promise repeatedly in the last weeks.  I have ignored repeated insults and mischarecterizations.  I also don't need you to point out any typos.


atypical, I think you are taking this to a much different place than it was intended.  

My point was that the Autistic and Aspie community have had repeated issues with people assuming that you could tell what they were thinking and how they were feeling by their facial expression and body language.  When I read that you were making an assumption about how people were feeling, it brought to mind that this is a common misconception, and one that we really need to fight as a community.

None of us can read the minds of others and how they are feeling.  Many of the people of this community (my family included) have had repeated issues in life because of being misread by people who assumed that they could tell exactly what they were feeling by their facial expressions and body language.  I feel that it is important that we do not make that mistake, as I think it is a disservice to everyone.  

I am sorry that you took it so personally.


RE: Autistic behavior puts parents, public in discomfort zone - Alias Pseudonym - 08-24-2008 02:45 AM

I think Atypical has a point in that it is possible to judge the general feel of a group of people from their collective body language and actions, though.  If the people in her example had been bothered in a real way, what reason would they have had for hiding it?  They most likely would have started, edged away, rolled eyes, made comments to one anther etc.


RE: Autistic behavior puts parents, public in discomfort zone - Wilhemina - 08-24-2008 02:48 AM

Alias Pseudonym Wrote:
I think Atypical has a point in that it is possible to judge the general feel of a group of people from their collective body language and actions, though.  If the people in her example had been bothered in a real way, what reason would they have had for hiding it?  They most likely would have started, edged away, rolled eyes, made comments to one anther etc.


It is possible, but just as she saw it, and none of us are objective.  We all see things how we want to.  As she said in one of her posts, she chooses to see the best in everyone.  She saw it from her vantage point, which was one where she chose to see it a certain way.  

That is why eye-witnesses of a crime never tell the same story.  None of us can observe all of the subtle things about how people are acting, how they feel.  We all see things differently and should not judge how other people are feeling.  


RE: Autistic behavior puts parents, public in discomfort zone - JackNasty - 08-24-2008 05:55 AM

I thought Korrigan's post at #110 was very nice and very conciliatory. It clarifies that there was nothing personal in her response.

Atypical, you say you always look for the good, but it's three hours later and you seem to hav e lost all control of yourself. Please re-read what Korrigan wrote at #110 and I thin k you'll feel much better.


RE: Autistic behavior puts parents, public in discomfort zone - EvilZakkie - 08-24-2008 06:08 AM

Note: Walden's posts removed. These days, my tolerance for pointless flame wars has worn thin.

Also, if it's going to be used as a weapon, then I take back my request (not demand, request) for Atypical and Korrigan to keep out of each others way.


RE: Autistic behavior puts parents, public in discomfort zone - Max the Bear - 08-25-2008 06:56 AM

Alias Pseudonym Wrote:

  They most likely would have started, edged away, rolled eyes, made comments to one anther etc.


To be honest, I sometimes have that effect on the townfolk...




RE: Autistic behavior puts parents, public in discomfort zone - Shrek - 08-25-2008 08:28 AM

That bear is cute.   Those people are awed or fleeing.  Red necks?


RE: Autistic behavior puts parents, public in discomfort zone - tenaciouscj - 08-27-2008 02:08 PM

Nah, their necks look pink to me.


RE: Autistic behavior puts parents, public in discomfort zone - hyke - 08-27-2008 02:38 PM

Has anyone ever noticed how some parents hide behind their autistic offspring? The opposite of the discomfort zone I mean.

Some people talk so directly over the DX of their children. I know someone who has a DX herself. But if she wants to talk about autism, and she does that a lot, she'll allways refer to her children. Never to herself. It has allmost a martyrlike effect. See me; how I cope with my handfull of children with a DX.

The way a parent is embarrassed by the child also has an effect on how bystanders will react on the child. It's not all, I'm defenitely not saying that. But it does make a difference.


RE: Autistic behavior puts parents, public in discomfort zone - BardWolf - 08-29-2008 04:01 AM

Wow

this is was almost Tl:dr this being my general reaction to the whole thread
as you can see I am quite shocked

Before the **** starts up again I am going throw in few OT topic opinions.

Unacceptable behavior doesn't set on neurotype but humans have been using the disabled as a scapegoat for years. (Lol Lepers on a island anyone?) This artical is simply and example of human tribal mentality. Good thing they are not burying us alive anymore or dropping off in the woods to be raised by animals. (Victor anyone?)

This artictal was just nothing more then bunch of undignified NTs bitching about another socialital scapegoat.


RE: Autistic behavior puts parents, public in discomfort zone - Callista - 08-29-2008 05:20 AM

(just a side point; lepers were quarantined so the disease didn't spread--we now know it's not as contagious as they thought; but the primary aim wasn't prejudicial, even if the effect was.)


RE: Autistic behavior puts parents, public in discomfort zone - Johanna2 - 08-31-2008 05:41 AM

ocampo Wrote:
I agree with certain points in this although its awful that they had to mention Savage possibly assisting with awareness of autism. I still maintain that if Adam Race had felt comfortable in the church, he wouldn't have been having meltdowns. I don't have predictable meltdowns in places I feel completely comfortable. Obviously I have had meltdowns in places I'm comfortable; but not consistently.

I also agree with the statement about playgrounds. Equality isn't about being treated better, its about being part of society. Ultimately we all have to share the same space. Just as NTs need to understand more about autism, I also believe that autistics need to learn coping mechanisms. And I stress the term 'coping' - its not about giving up who you are, and its not trying to be NT. Meltdowns are not pleasurable things for anyone, least of all for the person having them.

I always make a point of telling people I'm autistic. Or rather, I say 'I have Aspergers syndrome, its a form of high functioning autism'. I wait until I've been talking and then I drop it into the conversation. My attitude is that if they're thinking I'm an articulate, good-humoured person who is chatting away 'normally', I may have changed their perception of the autistic spectrum.


A great statement indeed. There was a case made in the 1950s called Brown v. Board of Education. A lawyer said "separate facilities are inherently unequal." I also admire your courage in telling people that you are autistic. Personally, I'm in the closet about it with people that I know in school. This is because they perpetuate crap about autistics being "diseased." Sometimes, I go to bed crying because of what they say to me. I hope that God will give me the same courage that he has given you.