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Temple Grandin comments on the protests against ABA - Printable Version

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Temple Grandin comments on the protests against ABA - Amy - 05-24-2005 11:47 PM

"A recent story in The New York Times examined the conflicts
that occur between some people with autism, some of whom protest any
treatment, and their parents.[2]  Dr. Grandin: I've read those things, the
whole conflict about ABA -- applied behavior analysis. Those techniques are
mainly for very little children, for 2 to 5 year olds, to get language
started. They're not for high-functioning 8 and 9 year olds. And most people
in those protests are the more mild Asperger's types. We need to be working
on developing the talents those people have so they can have jobs and
support themselves."

http://lists.envirolink.org/pipermail/sareport/Week-of-Mon-20050221/000379.html

Does she mean that people who are against ABA generally have mild aspergers? or that aspergers itself is mild?


- Catffienated - 05-25-2005 12:58 AM

I got that she's saying people at the protests don't have jobs/support themselves!


- jerrynewport - 05-25-2005 04:19 AM

Catffienated Wrote:
I got that she's saying people at the protests don't have jobs/support themselves!


         I don't think that is what she meant. I do know she is not a fan of ABA and is one of the few peers we have who consistently says that there are other ways to help young people.

       As far as what she thinks of people at the protests, I think it is a stretch to imply that she thinks they are all bums. I have never heard her say that.

                                          Jerry Newport


- Catffienated - 05-25-2005 04:22 AM

I may have misunderstood her, Jerry. that's why I said my impression was. Here's what me think so: "And most people
in those protests are the more mild Asperger's types. We need to be working
on developing the talents those people have so they can have jobs and
support themselves."


- jerrynewport - 05-25-2005 08:41 PM

Catffienated Wrote:
I may have misunderstood her, Jerry. that's why I said my impression was. Here's what me think so: "And most people
in those protests are the more mild Asperger's types. We need to be working
on developing the talents those people have so they can have jobs and
support themselves."


        Well, one thing I take exception to is that Temple is quick to generalize without grounds to do so. Part of it is because as a PhD, she gets away with it. Part of it is because she was the first of us to really gain public recognition, officially diagnosed. She was the only one for a long time and she is not really used to being challenged.

      For example, she just assumed that I am not a visual thinker and told an audience that. I was in the audience and politely corrected her after the talk and she hasn't made that mistake again Smile

      So I doubt if Temple can say for sure what the makeup is of the protests. But I agree with her that if it is mostly aspies, their expression of autism is relatively mild compared to the full dose but that is another generalization which will not be completely accurate.

                                 Jerry Newport


- Bonnie Ventura - 05-25-2005 09:47 PM

The article wasn't very clear, but I thought she was saying that some very young, nonverbal autistic kids may benefit from ABA and that teaching social skills to older kids shouldn't come at the expense of career development.  She seems to be saying that ABA is inappropriate for older children and for those who can communicate.  I didn't get the impression that she was insulting anyone for not having a job.


- jerrynewport - 05-25-2005 10:09 PM

Bonnie Ventura Wrote:
The article wasn't very clear, but I thought she was saying that some very young, nonverbal autistic kids may benefit from ABA and that teaching social skills to older kids shouldn't come at the expense of career development.  She seems to be saying that ABA is inappropriate for older children and for those who can communicate.  I didn't get the impression that she was insulting anyone for not having a job.


          That is my take on how she feels, based on more dinners I have shared with her than I can count. Temple, however, does take a dim view of people she regards as "professional auties." In that regard, I think she tends to forget the breaks she had that most of us didn't enjoy.

    Temple was born filthy-rich, availed of the best services in her day, was mentored into a career and never really had to work a day of her adult life, thanks to the royalties her family continues to receive for the invention of a grand-parent ( one of her grand-fathers invented a transponder, used in aviation to help locate airplanes )

      However, Temple was wise enough to use those breaks. I just think she is a little harsh on some of the folks who have "gotten lucky" and found that life after their books etc was preferable to the relative misery of their lives before. ( and I am not talking about myself here Smile

                         Jerry Newport


- Amy - 05-25-2005 11:19 PM

Jerry said "Temple, however, does take a dim view of people she regards as "professional auties."

Well there must be only a handful of such people. I hope she doesn't feel that super able aspies are trying to prevent young kids getting help. As far as I am concerned we are against abusive therapies, and I include giving ABA for forty hours a week to kids of 3 in that.

I may be an aspie, but I was unable to finish college and can only ever dream of getting a PhD. Its all relative.


- jerrynewport - 05-26-2005 12:48 PM

Amy Wrote:
Jerry said "Temple, however, does take a dim view of people she regards as "professional auties."

Well there must be only a handful of such people.

          Jerry: I agree.  But both Temple and I became well known back when a lot of flakes climbed onto the autism bandwagon and some of them, frankly, were and still are a big pain.

I hope she doesn't feel that super able aspies are trying to prevent young kids getting help.

     Jerry: She is more concerned about super able aspies getting the guidance they need to find a profession and stay in it. I think she is finally getting it; that she had some breaks that most of us didn't have.

As far as I am concerned we are against abusive therapies, and I include giving ABA for forty hours a week to kids of 3 in that.

    Jerry:    I think she would agree about the forty hours.

                        
I may be an aspie, but I was unable to finish college and can only ever dream of getting a PhD. Its all relative.


   Jerry:     I got a college diploma with no clue what to do with it. I couldn't make it through interviews and had no useful help. I could get a PhD now but at 57, why bother?


- Kev - 05-26-2005 01:05 PM

I'm going to be totally honest here and state that I'm really not sure what ABA is or why its viewed negatively. Possibly once I know what it is, I'll know why its viewed negatively.

I'm aware of the Lovass version of ABA which definitely seems abusive to me but as I understand it, aren't there lots of different flavours of ABA these days?


- Amy - 05-26-2005 01:33 PM

Hi Kev, take a look at this site -
http://users.1st.net/cibra/

It seems that ABA therapists have tried to clean up their act and now many say that they never use aversives. However there are huge amounts of money to be earned, some parents go greatly into debt to pay for the therapy, $5000 a month sometimes :shock:

I have spoken to parents whose kids have suffered from ABA therapy recently, and some parents groups like to potray that if a child does NOT recieve ABA then they will remain LFA, speechless and dependant forever.


- Amy - 05-26-2005 01:46 PM

See also -

http://www.sentex.net/~nexus23/naa_aba.html

Michelle Dawson's Misbehaviour of behaviourists.


- Bonnie Ventura - 05-26-2005 02:01 PM

jerrynewport Wrote:
I got a college diploma with no clue what to do with it. I couldn't make it through interviews and had no useful help.


Same here.  When I graduated, I had no idea that the interviewers were going to discriminate against me because of my voice and body language.   I didn't know what was going on.

I'm not sure if the reason my parents didn't tell me was because they didn't know, or didn't want to upset me, or just thought I didn't need to work anyway because I was female.

After staying home with my kids for several years, I was able to figure out the workplace enough to get a reasonably good job, but I certainly could have avoided a lot of stress and confusion if I'd had some career guidance when I was younger.


- jerrynewport - 05-26-2005 10:08 PM

Bonnie Ventura Wrote:

jerrynewport Wrote:
I got a college diploma with no clue what to do with it. I couldn't make it through interviews and had no useful help.


Same here.  When I graduated, I had no idea that the interviewers were going to discriminate against me because of my voice and body language.   I didn't know what was going on.

         Jerry: Ditto.

I'm not sure if the reason my parents didn't tell me was because they didn't know, or didn't want to upset me, or just thought I didn't need to work anyway because I was female.

          Jerry: My dad was gone and my mom just didn't have the empathy to mentor me as he might have done.

After staying home with my kids for several years, I was able to figure out the workplace enough to get a reasonably good job, but I certainly could have avoided a lot of stress and confusion if I'd had some career guidance when I was younger.


     Jerry: Took me over twenty years to finally get a decent job. That was because a friend of mine, on the local ASA board, helped me get hired at UCLA. Temple has no clue how hard it has been for most of us and I remind her whenever I can, politely Smile


- Kev - 05-27-2005 11:25 AM

Amy Wrote:
Hi Kev, take a look at this site -
http://users.1st.net/cibra/

It seems that ABA therapists have tried to clean up their act and now many say that they never use aversives. However there are huge amounts of money to be earned, some parents go greatly into debt to pay for the therapy, $5000 a month sometimes :shock:

I have spoken to parents whose kids have suffered from ABA therapy recently, and some parents groups like to potray that if a child does NOT recieve ABA then they will remain LFA, speechless and dependant forever.


Yikes. Thats pretty uncomfortable reading. Thanks for posting that Amy.


- Lili Marlene - 05-31-2005 08:29 AM

jerrynewport wrote

Quote:
I got a college diploma with no clue what to do with it. I couldn't make it through interviews and had no useful help.

That's the story of my life!

You made a very good point that the quality of life for an autistic person born into the upper/middle classes can be a lot different to the average aspie/autie situation. The combination of autism and being working class can be a very unattractive scene.

When I read "Thinking in pictures" by Grandin I got the impression that she was very much an advocate of the autistic point of view, and a strong advocate of developing the strong points of autists rather than emphasizing developing the weakest points to a "normal" level, which is what most NTs seem to want to do. I also thought she is a fine example of how far an autist can go career-wise, given the optimal support and some lucky breaks.


- chamoisee - 05-31-2005 01:01 PM

Quote:
We need to be working
on developing the talents those people have so they can have jobs and
support themselves."


It looks to me like she is saying that there are some autistics who need therapy of some kind, so that they can become more independent. I don't think she meant to put aspies down.

I often jump from one thought to another thinking that the missing links are obvious or have already been stated. It confuses people, and I think that is what happened with Temple's statement. She was saying that even though mild aspies don't see any use for therapy, it can be of use for auties who are elsewhere on the spectrum. I think.....


- jerrynewport - 05-31-2005 10:27 PM

chamoisee Wrote:

Quote:
We need to be working
on developing the talents those people have so they can have jobs and
support themselves."


It looks to me like she is saying that there are some autistics who need therapy of some kind, so that they can become more independent. I don't think she meant to put aspies down.

I often jump from one thought to another thinking that the missing links are obvious or have already been stated. It confuses people, and I think that is what happened with Temple's statement. She was saying that even though mild aspies don't see any use for therapy, it can be of use for auties who are elsewhere on the spectrum. I think.....


      I think you are right about what Temple means. Too many of us see our own experience as defining the spectrum and that just isn't accurate no matter who we are. It is like parents who say, " if you aren't like my kid, you can't possibly be autistic or ever have been."

                               Jerry Newport


40 hrs a week: yikes! - tenaciouscj - 06-12-2005 04:39 AM

Apart from the financial impost of the treatment talked about here, how many parents could afford 40 hours a week to implement the therapy? Most families have two parents in paid work these days. Also, what about the siblings (if any) of the child? Won't they resent losing out on attention from their parents?

As an Aspie who writes far better than she talks, what is the big deal about making children talk? Is it because the people down the road don't approve of a child who doesn't talk. I think the main thing is that the child can communicate in some way, particularly with their own family.

I also think it rather despicable for the promoters of these treatments to raise the spectre of parents being forever "stuck" with their autistic child. The truth is, that due to the discriminations against autistics (even high functioning ones), some of them will always be at home.

I got a degree but during the time at university, was already suffering from a lot of depression due to my verbal communication difficulties (I can speak okay but just can't seem to get people to understand me sometimes) and social ineptitude. Thus, I didn't get the result I should have but still passed.

My mum always told me I would be "snapped up" by prospective employers due to being highly intelligent but this certainly didn't happen. I only got a job by doing the public service tests which relied on high IQ
and I wouldn't get into the public service now as they rely more on body language and "social intelligence". If I hadn't been diagnosed with AS 2 years ago, I would have lost the job as they were targetting people for redundancies if they didn't have good social skills.

Anyway, after years of being told "not to talk to strangers", my parents suddenly wanted me to start "doorknocking" prospective employers. I was only too happy to write them a letter and send my CV along to them but anyway, there weren't many jobs that I thought I'd like. Definately not door to door sales!  :roll: Toilet cleaning would have been preferable to me and I'm a person who is very sensitive to smells!

Anyway, I have digressed a lot. I don't know if Temple Grandin meant to be insulting in her comments. She does seem to have had advantages in life that some people haven't. I would also be very nervous of any kind of therapy that requires little children to spend some much time in therapy. For goodness sakes, just let them be children.

I guess it is a matter for the parents to decide after they have studied the matter as much as they can but they shouldn't let themselves be "buffaloed" by experts and their "BS". Parents are the ultimate expert on their own child as they know them better than anyone else.

Temple said something about "professional auties". I don't agree with that as these people are just trying to raise awareness of autism in society and that is a good thing.


- Lili Marlene - 06-12-2005 11:27 AM

wrote

Quote:
As an Aspie who writes far better than she talks, what is the big deal about making children talk? Is it because the people down the road don't approve of a child who doesn't talk. I think the main thing is that the child can communicate in some way, particularly with their own family.


Even now in the state of Australia were I live there is a barrage of advice to parents from the govt and various kinds of "helping" professionals that argue that deviations from "normal" development, including speech development, are caused by a poor environment for the child, even emotional deprivation.

We have had high-profile Australians (Fiona Stanley, Mem Fox, Mark Latham) pleading in the media for parents to read books to their kids, and they really do seem to believe that this kind of intervention prevents all literacy and language difficulties before they start. These people don't seem to know anything about dyslexia or SPLD or autism or any other neurologically-based condition that can delay or compromise language or literacy development, or else they assume that these conditions are too rare or unimportant to bother considering. So this gives rise to a common belief in the populace that kids who are a bit slow or different in development are being neglected or mistreated by their parents.


- Amy - 06-12-2005 11:49 AM

"Apart from the financial impost of the treatment talked about here, how many parents could afford 40 hours a week to implement the therapy? Most families have two parents in paid work these days."

Sadly many parents feel the pressure to get the therapy as their child is 'lost in autism' and they take out loans and get into debt to pay for it, we have seen numerous sob stories on how in debt some of them are. They also lobby their governments to pay for the therapy. There was a recent case in Canada that refused to fund it, they are appealing.

"My mum always told me I would be "snapped up" by prospective employers due to being highly intelligent but this certainly didn't happen."

My mum had that attitude about me, I suppose parents want to see the best in their child and think that others will see that too. When it became apparent that I was failing every interview, after about the 30th one, she became critical that I must be not trying, and when I eventually managed to get a very poor job, she was extremely critical that I 'could do so much better'.
As if I wanted to be refused so many jobs :roll:


That's right. - tenaciouscj - 06-12-2005 02:16 PM

Times have changed, too. When mum was 12, she had prospective employers wanting to hire her as she was dux of the school. She was one of the few children in her small town who went on to further education.

As for the interview thing, I could tell I would do badly in interviews after I'd had a few (it wasn't a matter of being negative but of being realistic). I couldn't put myself through that kind of thing. That is why I never apply for promotions where I work and am one step up from the base level in the Australian Public Service.


- Amy - 06-12-2005 02:21 PM

What is a dux?


Top of the class - tenaciouscj - 06-13-2005 03:06 AM

Dux: top of the class. That kind of thing doesn't seem to matter so much to prospective employers these days as it seems to be mostly about "social intelligence". The advice to kids to put their heads down and study to get really good marks only tells half the story.

I was brought up in a time when as long as you got reasonable marks at school, it wasn't too hard to get a job.


- violet_yoshi - 06-19-2005 05:16 PM

Kev Wrote:

Amy Wrote:
Hi Kev, take a look at this site -
http://users.1st.net/cibra/

It seems that ABA therapists have tried to clean up their act and now many say that they never use aversives. However there are huge amounts of money to be earned, some parents go greatly into debt to pay for the therapy, $5000 a month sometimes :shock:

I have spoken to parents whose kids have suffered from ABA therapy recently, and some parents groups like to potray that if a child does NOT recieve ABA then they will remain LFA, speechless and dependant forever.


Yikes. Thats pretty uncomfortable reading. Thanks for posting that Amy.


I have to say, for the people promoting ABA. I don't really feel I should include the parents, they might be conned into sending their kids to these programs, and just not know any better.

They're no better than Nazis.


Vultures - tenaciouscj - 07-10-2005 04:32 AM

So true, they are like vultures preying on the fears and doubts of parents.
I can think of worse things than having a child who doesn't speak - as long as they can communicate so they can be understood, that is the main thing.

I think having a child get cancer or get killed in an accident or have something else terrible happen to them like getting put in prison for life, would be far worse.


Re: Temple Grandin comments on the protests against ABA - darkcode - 07-14-2005 02:26 PM

Amy Wrote:
\"A recent story in The New York Times examined the conflicts
that occur between some people with autism, some of whom protest any
treatment, and their parents.[2]  Dr. Grandin: I've read those things, the
whole conflict about ABA -- applied behavior analysis. Those techniques are
mainly for very little children, for 2 to 5 year olds, to get language
started. They're not for high-functioning 8 and 9 year olds. And most people
in those protests are the more mild Asperger's types. We need to be working
on developing the talents those people have so they can have jobs and
support themselves.\"

http://lists.envirolink.org/pipermail/sareport/Week-of-Mon-20050221/000379.html

Does she mean that people who are against ABA generally have mild aspergers? or that aspergers itself is mild?



I think Temple means to her ABA is only useful for helping 2 to 5 year olds with language problems develope language skills, and anyone else would not benifit from ABA.  She also seems to believe those of us against ABA are more functioniing and that we would benifit more from developing are strengths like she did rather then focusing on our weeknesses like some of us do.  That by developing our strengths we could be able to get jobs and be able to support ourselvies like she did.

Or put another way stop focusing on such things as bad eye contact, inability to read body language and being the odd one out and start focusing on what you can do like for example develope complex thoughts in your mind, ability to focus on a single task for hours and hours on end, and develope these strengths to help you get a job like being able to save a company money by not haviing to spend so much time testing things because of your ability to test them out in your head and determ what will and won't work, and being able to last longer without needing a break which means being more productive which means more money for the company, etc.  At lest thats what I think an example of what Temple means.


Yes, but. - tenaciouscj - 07-16-2005 06:51 AM

Having a full time job and being an NT "clone" doesn't even suit many of the higher functioning people. Also, if there aren't enough jobs to go around even for people with no disabilities, how on earth are people with disabilities even going to get a look-in? Seems rather silly to me.


- ADoyle - 07-26-2005 09:16 AM

Lili Marlene Wrote:
jerrynewport wrote

Quote:
I got a college diploma with no clue what to do with it. I couldn't make it through interviews and had no useful help.

That's the story of my life!

You made a very good point that the quality of life for an autistic person born into the upper/middle classes can be a lot different to the average aspie/autie situation. The combination of autism and being working class can be a very unattractive scene.

When I read "Thinking in pictures" by Grandin I got the impression that she was very much an advocate of the autistic point of view, and a strong advocate of developing the strong points of autists rather than emphasizing developing the weakest points to a "normal" level, which is what most NTs seem to want to do. I also thought she is a fine example of how far an autist can go career-wise, given the optimal support and some lucky breaks.


I have yet to read Temple's book, but I can relate to not making it through interviews, but fortunately I'm getting the support I need after finally being diagnosed with Asperger's. I know that once I get a job, I'll be able to become fully independent, even if I never become as famous as Temple Grandin.


- Cindy - 07-26-2005 06:32 PM

Lili Marlene Wrote:
We have had high-profile Australians (Fiona Stanley, Mem Fox, Mark Latham) pleading in the media for parents to read books to their kids, and they really do seem to believe that this kind of intervention prevents all literacy and language difficulties before they start. These people don't seem to know anything about dyslexia or SPLD or autism or any other neurologically-based condition that can delay or compromise language or literacy development, or else they assume that these conditions are too rare or unimportant to bother considering. So this gives rise to a common belief in the populace that kids who are a bit slow or different in development are being neglected or mistreated by their parents.


I read books to all my kids, every day, every night before bed.  My oldest was reading on her own at 4yo.  My almost-8yo still cannot read (dyslexia).  I did nothing different in how they were exposed to words, books, and reading.


- Cindy - 07-26-2005 06:42 PM

ADoyle Wrote:
[quote=Lili Marlene]jerrynewport wrote

Quote:
I got a college diploma with no clue what to do with it. I couldn't make it through interviews and had no useful help.

That's the story of my life!


And of mine.  I went to college for two years, right from high school.  Full time, living in a dormitory.  I couldn't stand it.  Too many classes, too many people, too much noise, too much stress everywhere.  After the first semester (the school set the 1st semester schedule) I managed to arrange my schedule so that I had classes only from Monday evening through Thursday evening, and I escaped home every Thursday evening after class, returning only in time for my Monday evening class.  So half the time, my dormmate had our room to herself.  

After two years, I dropped out and got married.  Several years down the road, I returned (different college) but this time I went PART time, and commuted - I was able to completely focus on 2 or 3 subjects at a time instead of 5 or 6, didn't have to deal at all with the social dynamics of the dormitory or associate myself with the student body.  I excelled, and graduated summa cum laude.

I never sat for a job interview, and never earned a penny from my degree.  I use it every single day though, as I have been homeschooling my own children for 12 years.  I think of staying home with my kids as saving money rather than earning money, which to me, is pretty darn near the same thing in our family.


RE: - tenaciouscj - 11-21-2007 05:31 PM

Bonnie Ventura Wrote:

jerrynewport Wrote:
I got a college diploma with no clue what to do with it. I couldn't make it through interviews and had no useful help.


Same here.  When I graduated, I had no idea that the interviewers were going to discriminate against me because of my voice and body language.   I didn't know what was going on.

I'm not sure if the reason my parents didn't tell me was because they didn't know, or didn't want to upset me, or just thought I didn't need to work anyway because I was female.

This certainly strikes a chord. Despite being high enough functioning to cope with school without any interventions, I definitely needed assistance with finding work. Were I looking for my first job nowadays, I would not cope unless placed with an employment agency specialising in disabilities.

This might sound negative but it is the truth.


RE: Temple Grandin comments on the protests against ABA - Ivar T - 11-21-2007 06:03 PM

ABA sounds alot more different to me now than it probably did to those who participated in this thread 2 years earlier.


RE: Temple Grandin comments on the protests against ABA - redbirdny - 12-26-2007 09:30 AM

I think Temple is arrogant based on what I have read..........filthy rich and without a clue as to what it is really like out there.


RE: Temple Grandin comments on the protests against ABA - BardWolf - 01-04-2008 12:46 AM

^ That might an over exaggeration. I don't know much about Grandin...but we shouldn't make over assumtions


RE: - redbirdny - 01-05-2008 12:34 AM

tenaciouscj Wrote:

Bonnie Ventura Wrote:

jerrynewport Wrote:
I got a college diploma with no clue what to do with it. I couldn't make it through interviews and had no useful help.


Same here.  When I graduated, I had no idea that the interviewers were going to discriminate against me because of my voice and body language.   I didn't know what was going on.

I'm not sure if the reason my parents didn't tell me was because they didn't know, or didn't want to upset me, or just thought I didn't need to work anyway because I was female.

This certainly strikes a chord. Despite being high enough functioning to cope with school without any interventions, I definitely needed assistance with finding work. Were I looking for my first job nowadays, I would not cope unless placed with an employment agency specialising in disabilities.

This might sound negative but it is the truth.


It doesn't sound negative. It is taking care of what you think will help the most. NO shame in that.


RE: Temple Grandin comments on the protests against ABA - redbirdny - 01-05-2008 12:40 AM

BardWolf Wrote:
^ That might an over exaggeration. I don't know much about Grandin...but we shouldn't make over assumtions


I have read a lot about her. I was more interested in the struggles of my own grandmother who had autism........but didn't have a family full of money to help through. She was in and out of mental hospitals back than and forced into marriage to a man she didn't love all because her dad wanted to make sure she was taken care of. Her husband was seen as the kind of man who would not be insensitive to my granny. Autism was just the family secret noone talked about but we just knew. Granny saw and thought in pictures. She had quite a lot of abuse in her life. Including being left by so-called friends alone in the big city.......far from home. My parents were brutal to her as well. When Granny called them Chicago to say she was stranded, my dad told her to find her own goddam way home. Mind you we were all in New York.