Aspies For Freedom

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Sent to Starbucks on Tues. 7/24)

Quote:
Presently, the group, Autism Speaks is using your coffee cups to promote their agenda of working to find a cure for Autism.  They wish to wipe Autism from the face of the earth.  To many of my friends and family this is a scary thought.  Autism is not just something someone catches or gets like a disease, it is a part of who we are.  We have decided to boycott your establishment until Equal Time is given to give the POV of an Autistic person.

First of all let me mention that Autism is clearly part of my family.  I am on the autism spectrum, also a mother of an autistic son (yes, autistic children grow up to be autistic adults) and I have a young autistic grandson.   Autism Speaks only gives a one-sided view of Autism and act as if their opinion is the only option for parents of children with autism - no, I will not use their phrase - what I meant to say is parents with Autistic Children.  

Let me also state that neither my adult son or my grandson are "Cured" from autism.  There is no cure for neurodiversity.  Autism is a different wiring of the brain....not a disease...not a disorder, a different wiring.  Both my son and my grandson interact with the world, their surroundings and other people BUT they are not neurotypical, they are Autistic.

Autism is not a bad thing as Autism Speaks would have you believe.  Many great people have been born with autistic traits and have done great things in this world. Autistics greatest asset is that they think outside the box.  

Fear and ignorance of Autism is a huge problem in todays world. Many people are making big bucks on treatments that are not really necessary.  Education for autistics is important but strict ABA treatment (with punishments for not reacting appropriately) is not the way to go.  I cannot explain everything I wish to in this email but I beg you to please show the other side of Autism.  I mean, at least be fair in your advertising by giving equal time to Autistics themselves.  Many of them do not wish to see a cure for Autism.  Many of us feel that Autism Speaks does NOT speak for us.

I sincerely want you to speak to Autistic Adults themselves.  Please do not just show one side of the story.    

If you'd like more information and/or a contact person to allow equal time for Autistics,  please email me at whirledpeas_dot_us@yahoo.com  Thank you for your time.

Sincerely,
Patti Shepard


I'll let you know if I get more than a automated reply.  Please consider boycotting Starbucks too and perhaps writing a letter stating your disappointment & disapproval of their cooperation with Autism Speaks. Stress the fact that by doing this, they are giving the public a very one-sided & misguided view of Autism.

Cool done!
This is very disappointing to find out about Starbucks.  Until they cut the crap, I'll be getting my coffee at the nearest gas station.

Do any of you think it would do any good to extend the boycott to other businesses that host Starbucks inside their stores?

MolotovCocktail Wrote:
You have to keep in mind that not all people with autism are "aspies" or savants, not even close as a matter of fact.

For some people, especially for people at the lowest end of the spectrum, autism can be as crippling as cerebral palsy.


Please explain how you feel Autism is as crippling as cerebral palsy?  I understand that along with autism, other co-morbids can cause a few physical challenges but as for the autism itself, I am having a hard time comprehending your meaning.

My grandson is dx'd PDD/NOS and my son is NOT an "aspie" but was dx'd as "high functioning autism" (whatever the "high functioning" means).  Not my grandson, or my son and well, no one in my family (including myself) would be considered savants.  My grandson loves to read and can read (and comprehends what he reads) at a high school level but is not considered a savant because he does this.  We ALL have high functioning and low functioning days.  As I get older I have noticed my coping and social skills diminishing but we all do what we can.  

The only "disability" of autism that I have noticed is the frustration of not being able to do the things expected in this world that is set up primarily for neurotypical folks.  The worst of these areas would be the workplace.  Some day I hope to see more acceptance of those of us that are wired just a bit differently.  

By the way, why is Autism always put in the same category as diseases anyway?  Does this mean that my left-handedness is as crippling as parkinson's and that being a gay individual would be as devastating as a tumor?  Of course not!  I think we should view autism for what it really is....a Difference, NOT a disease.

JennaP Wrote:

erkolos Wrote:
Cool done!


nut jobs.


JennaP,
???
Is this directed at me, us or at something else?  I am not familiar with "nut jobs" being used as an answer.  I've only heard it used as a slander or a quick response from someone Trolling a forum.

Not that you are a troll....I don't know you personally any more than you know anything about who I am. Please elaborate/explain.

I'm not even that crazed about Starbucks coffee or hot chocolate. it is too expensive and isn't as good as Detrich or Peets. i'm really dissappointed that Starbucks bought out so many other coffee stores.

MolotovCocktail Wrote:
Oh, and Monastic, there are no "high-functioning days" or "low functioning days". You are either High Functioning or Low Functioning. Period. High Functioning means that you do not qualify for mental retardation. Autism also isn't as severe for people at the higher end of the spectrum.


I see by the way you've replied with the word "Period" that your convictions would not be swayed by anything I might say in opposition so I will not even try to convince you that High Functioning and Low Functioning (when speaking about autistics) means very little to me.  
We are autistics, one and all, and I will not apply a pecking order or hierarchy by using the "I'm higher functioning than thou" attitude.  Some days I have difficulty with social functioning and daily living skills to the point of it being impossible.  This is what I mean by low functioning days.  Those of you that have experienced this know what I am talking about.  If my son would have been dx'd in his younger life, he would no doubt have been dx'd low functioning.  Thank goodness his dx was when he was in his 20's.

You might want to check out this Wiki to understand how many of us see high/low functioning and what I have trouble explaining to you;

http://en.wikipedia.org/wiki/Controversi...m_spectrum

MolotovCocktail Wrote:
EDIT BUTTON!!!!!!!!

I forgot to add the link where the quote came from:
ht tp://ww w.autis mspeaks.o rg/naviga ting/asperg ers.php.


I'm getting a "Page Not Found" message with this link.

[edit] link broken [couldbecousin]

monastic Wrote:

MolotovCocktail Wrote:
EDIT BUTTON!!!!!!!!

I forgot to add the link where the quote came from:
h ttp://w ww.autis mspeaks.or g/nav igating/asp ergers.php.


I'm getting a "Page Not Found" message with this link.


Which is just as well.  I have broken the link anyway, as the admins prefer that we do not link readers to pro-cure sites from here.

Planet*Louise Wrote:
There aren't many Starbucks cafes where I live, but if I see one I won't under any circumstances go in there.
What shops sell Starbucks products?


Off the top of my head... there are:

- Barnes & Noble's (bookstore chain, always with a Starbucks inside)
- Target department stores (Starbucks inside by front entrance)
- Albertson's grocery stores (Starbucks inside near front entrance)
- inside various libraries, university commons buildings, airports, etc.
- I'm sure there are more.

I still shop at Target.  I just stay away from the built-in Starbucks.  I haven't gone into Barnes & Noble's or a stand-alone Starbucks since I first read this thread.  In place of Barnes & Noble's, I've been going to Borders.  (Incidentally, the local Barnes & Noble's is along the way to Border's, and I drive right past it.  The purpose of such visits being to read magazines and drink coffee, usually putting the magazines back instead of buying them.)

I actually like Starbuck's.  They're just going to have to cut this crap out if they want my business back.  So, until I hear that they've stopped supporting Al Cureda, my coffee will be either from my own kitchen or the nearest gas station.

But I like the Coffee in Starbucks >.> they do a lovely mild cappuchino.

my only gripe is that the male toilets in starbucks nuneaton are too small ;p

Ian

Neo Wrote:
Why do people not love Aspies for our abilities (which vary from person to person, just like with NT's), instead of focusing on our weaknesses (which vary from person to person, just like with NT's).


IMO, because people see the advantages as a threat.  It's that old story about trashing the co-worker who might "make everyone else look bad".  If people can find an "Achilles' heel" and exploit it", they will, if it means less competition.  That's not just limited to AS, but anything that can be used to pull down competition in a hostile workplace.

Now, I believe we were originally talking about Starbuck's.  Does anyone have an update?

MolotovCocktail Wrote:
The question still remains if it is even possible to cure autism because it is pervasive. There are both genetic and environmental triggers. The only objection I have against CAN is that they tend to sell hope.  

Kylo4 Wrote:
That is what Autism speaks is focusing on, still not really mentioning anything else on the spectrum.


No, Autism Speaks also focuses on the high functioning end too. Here is a quote from their website about AS:

"First, the good news: Your child will likely be able to live independently, earning a living and taking care of their needs. That said, social relationships may always be minefields, and as such, will continue to be a source of frustration and, for some, despair. With this in mind, it may be beneficial to have a therapist or counselor familiar with the condition be available to help your child as he ages and encounters increasingly complex relationships that give way to equally complex emotions and situations."

So its not all bad.


Oh, and Monastic, there are no "high-functioning days" or "low functioning days". You are either High Functioning or Low Functioning. Period. High Functioning means that you do not qualify for mental retardation. Autism also isn't as severe for people at the higher end of the spectrum.


Hm. You say that "there are no 'high-functioning days' or 'low functioning days'." So, does that mean that when I have a day on which I absolutely cannot talk to anyone, won't eat or drink anything, and things like toasters and idle chitchat give me sensory overload, I am still a high-functioning individual that day or week or however long period of time? What about the days I can deliver a speech in front of my class, even engage in spontaneous social interaction, and do not melt down when the fire alarm rings, and still have time to write proofs from my number theory book during AP calculus, then finish up a sonnet for Advanced Poetry? I was diagnosed AS, and due to IQ scores and relative adaptive skills, I am considered very high-functioning. But there are those days, sometimes even weeks or just small moments in time, that I fit the description of a lower-functioning individual. According to what you have posted, this would be impossible.

Also, Curing autism is vastly different from Helping autistics Adapt - even for "low-functioning" individuals. The only real distinguishing factor between Kanner's autism and Asperger's autism is that for Kanner's there needs to be a speech delay - that is why there is the category of HFA, to include autistics who are considered high-functioning, but not necessariy AS-diagnosed. Even though I did not have a speech delay, I do have an enormous difficulty with speaking oftentimes, especially if the speech is to be produced spontaneously, before writing it down first.

So where do I fit? To the Professionals, it is very clear that I fit in the high-functioning Asperger's category. To my experience, though, and to those who know me best, it is nowhere near that clear. This is why there are so many perils with labeling and categorizing human beings. Too often it creates unnecessary divides that confound more often than they clarify, which was their original purpose.

Yes, autistics with fewer self-help skills and such will need more support than an autistic who is considered more "high-functioning", but the issue here is not in supports to help an individual get along in society, but in the eradication of that individual's autism, which it is the latter that we anti-cure people oppose, and not the former. If I opposed all therapy and supports, I would be mounting a protest against the Director of Special Services of my school, as I am in speech therapy there, and they have loaned me use of an AppleSmart to help me type my thoughts prior to saying them - and these have helped me enormously. The fact that I, or anyone else, needing such supports does not justify the complete alteration or eradication of autism.

woman from mars Wrote:
Well said & comprehensive.
BTW I must be a tad oddWink I thought Starbucks was one of those alcohol drinks for the teens.Rolleyes
I don't like coffee, so will not be buying any.


They have a line of bottled coffee-based drinks that you can find in the cooler at most convenience stores, including a few of those weird "energy" drinks.  (Growing market... A big company can't be left out of the game, now can it?)  It's not alcohol in there, or they wouldn't be able to sell it to teenagers.  It's usually stuff like guarana and taurine.  (That's what's in the other brands.  Not sure what Starbuck's uses in theirs besides caffeine.)

Nevertheless, I will continue to avoid any Starbuck's product until I receive word their support of Al Cureda has stopped.

MolotovCocktail Wrote:
The question still remains if it is even possible to cure autism because it is pervasive. There are both genetic and environmental triggers. The only objection I have against CAN is that they tend to sell hope.  

Kylo4 Wrote:
That is what Autism speaks is focusing on, still not really mentioning anything else on the spectrum.


No, Autism Speaks also focuses on the high functioning end too. Here is a quote from their website about AS:

"First, the good news: Your child will likely be able to live independently, earning a living and taking care of their needs. That said, social relationships may always be minefields, and as such, will continue to be a source of frustration and, for some, despair. With this in mind, it may be beneficial to have a therapist or counselor familiar with the condition be available to help your child as he ages and encounters increasingly complex relationships that give way to equally complex emotions and situations."

So its not all bad.


Oh, and Monastic, there are no "high-functioning days" or "low functioning days". You are either High Functioning or Low Functioning. Period. High Functioning means that you do not qualify for mental retardation. Autism also isn't as severe for people at the higher end of the spectrum.


Ha! I'm diagnosed with Asperger's but certainly have days when I function better than others. Other people I know with similar conditions report exactly the same thing. One chap in particular has days where he can hardly get out of bed because of sensory overload but on other days, he can cope quite well.

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