Aspies For Freedom

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You have to keep in mind that not all people with autism are "aspies" or savants, not even close as a matter of fact.

For some people, especially for people at the lowest end of the spectrum, autism can be as crippling as cerebral palsy.

erkolos Wrote:
Cool done!


nut jobs.

monastic Wrote:

JennaP Wrote:

erkolos Wrote:
Cool done!


nut jobs.


JennaP,
???
Is this directed at me, us or at something else?  I am not familiar with "nut jobs" being used as an answer.  I've only heard it used as a slander or a quick response from someone Trolling a forum.

Not that you are a troll....I don't know you personally any more than you know anything about who I am. Please elaborate/explain.


I must apologize.  I did not write that.  I had a bunch of kids at my house yesterday and some of them were using my computer.  I will find out who was on this site and take care of it.

monastic Wrote:

Please explain how you feel Autism is as crippling as cerebral palsy?  I understand that along with autism, other co-morbids can cause a few physical challenges but as for the autism itself, I am having a hard time comprehending your meaning.


There are low-functioning Kanner's Autistics who cannot do any functions at all and are severely crippled. That is what Autism speaks is focusing on, still not really mentioning anything else on the spectrum.

Still, its good that you sent that letter. There was also a concert to Cure Autism taking place with big musicians performing.

The question still remains if it is even possible to cure autism because it is pervasive. There are both genetic and environmental triggers. The only objection I have against CAN is that they tend to sell hope.  

Kylo4 Wrote:
That is what Autism speaks is focusing on, still not really mentioning anything else on the spectrum.


No, Autism Speaks also focuses on the high functioning end too. Here is a quote from their website about AS:

"First, the good news: Your child will likely be able to live independently, earning a living and taking care of their needs. That said, social relationships may always be minefields, and as such, will continue to be a source of frustration and, for some, despair. With this in mind, it may be beneficial to have a therapist or counselor familiar with the condition be available to help your child as he ages and encounters increasingly complex relationships that give way to equally complex emotions and situations."

So its not all bad.


Oh, and Monastic, there are no "high-functioning days" or "low functioning days". You are either High Functioning or Low Functioning. Period. High Functioning means that you do not qualify for mental retardation. Autism also isn't as severe for people at the higher end of the spectrum.

EDIT BUTTON!!!!!!!!

I forgot to add the link where the quote came from:
ht tp://ww w.autismspe aks.org/naviga ting/asper gers.php.

[edit] link broken [couldbecousin]
There aren't many Starbucks cafes where I live, but if I see one I won't under any circumstances go in there.
What shops sell Starbucks products?

MolotovCocktail, cerebral paly was a poor example anyway. The strory of Tracy Beaker is a popular children's show, and one of the characters- a young girl called Layla- has it and suffers incredibly little- in fact, the only time I can think of it being brought up was when she had to miss her school play because of physio.

MolotovCocktail Wrote:
"First, the good news: Your child will likely be able to live independently, earning a living and taking care of their needs. That said, social relationships may always be minefields, and as such, will continue to be a source of frustration and, for some, despair. With this in mind, it may be beneficial to have a therapist or counselor familiar with the condition be available to help your child as he ages and encounters increasingly complex relationships that give way to equally complex emotions and situations."

So its not all bad.


And where is the good in that statement?  All I see is words like "despair" and "minefield".

I'm sorry that you believe that crap. The pro-cure groups sell way more than hope. They sell autism as some sort of curse.

I am not cursed... and there are at least ten very good things about being autistic that you can find on the '10 good things about being autistic" thread. And of course those good things (and the many others) are certainly NOT listed in your quote.

well done! i applaud your letter Wink

garmonbozia Wrote:

Planet*Louise Wrote:
There aren't many Starbucks cafes where I live, but if I see one I won't under any circumstances go in there.
What shops sell Starbucks products?


Off the top of my head... there are:

- Barnes & Noble's (bookstore chain, always with a Starbucks inside)
- Target department stores (Starbucks inside by front entrance)
- Albertson's grocery stores (Starbucks inside near front entrance)
- inside various libraries, university commons buildings, airports, etc.
- I'm sure there are more.


Thanks.

I don't think I need to worry, I think i'm in the wrong country for those shops. It looks like Britain hasn't decided to stick random Starbucks cafes in it's shops- not as far as I know anyway.

I'm still going to keep an eye out. It's only a matter of time.

kylo4 Wrote:

monastic Wrote:

Please explain how you feel Autism is as crippling as cerebral palsy?  I understand that along with autism, other co-morbids can cause a few physical challenges but as for the autism itself, I am having a hard time comprehending your meaning.


There are low-functioning Kanner's Autistics who cannot do any functions at all and are severely crippled. That is what Autism speaks is focusing on, still not really mentioning anything else on the spectrum.

Still, its good that you sent that letter. There was also a concert to Cure Autism taking place with big musicians performing.


has any one tryed to under stand them?

Same here. I have before compared being Aspie or Autistic to the situation in X-men; you might look human or not, but people seem to hate you anyway cuz you're different. I wouldn't take a cure for my AS and neither would my parents; it's part of me.
If I could have the cure I certainly would take it!

sderenzi Wrote:
If I could have the cure I certainly would take it!


The cure in X-men (going by the cartoon, not the film) made mutants into slaves of Apocalypse. In a way, I see that as how a cure would be in real life. But that's just my opinion.

Ian Wrote:
my only gripe is that the male toilets in starbucks nuneaton are too small


I'm tempted to say "use the ladies" XD Tongue

earthmonkey Wrote:

MolotovCocktail Wrote:
The question still remains if it is even possible to cure autism because it is pervasive. There are both genetic and environmental triggers. The only objection I have against CAN is that they tend to sell hope.  

Kylo4 Wrote:
That is what Autism speaks is focusing on, still not really mentioning anything else on the spectrum.


No, Autism Speaks also focuses on the high functioning end too. Here is a quote from their website about AS:

"First, the good news: Your child will likely be able to live independently, earning a living and taking care of their needs. That said, social relationships may always be minefields, and as such, will continue to be a source of frustration and, for some, despair. With this in mind, it may be beneficial to have a therapist or counselor familiar with the condition be available to help your child as he ages and encounters increasingly complex relationships that give way to equally complex emotions and situations."

So its not all bad.


Oh, and Monastic, there are no "high-functioning days" or "low functioning days". You are either High Functioning or Low Functioning. Period. High Functioning means that you do not qualify for mental retardation. Autism also isn't as severe for people at the higher end of the spectrum.


Hm. You say that "there are no 'high-functioning days' or 'low functioning days'." So, does that mean that when I have a day on which I absolutely cannot talk to anyone, won't eat or drink anything, and things like toasters and idle chitchat give me sensory overload, I am still a high-functioning individual that day or week or however long period of time? What about the days I can deliver a speech in front of my class, even engage in spontaneous social interaction, and do not melt down when the fire alarm rings, and still have time to write proofs from my number theory book during AP calculus, then finish up a sonnet for Advanced Poetry? I was diagnosed AS, and due to IQ scores and relative adaptive skills, I am considered very high-functioning. But there are those days, sometimes even weeks or just small moments in time, that I fit the description of a lower-functioning individual. According to what you have posted, this would be impossible.

Also, Curing autism is vastly different from Helping autistics Adapt - even for "low-functioning" individuals. The only real distinguishing factor between Kanner's autism and Asperger's autism is that for Kanner's there needs to be a speech delay - that is why there is the category of HFA, to include autistics who are considered high-functioning, but not necessariy AS-diagnosed. Even though I did not have a speech delay, I do have an enormous difficulty with speaking oftentimes, especially if the speech is to be produced spontaneously, before writing it down first.

So where do I fit? To the Professionals, it is very clear that I fit in the high-functioning Asperger's category. To my experience, though, and to those who know me best, it is nowhere near that clear. This is why there are so many perils with labeling and categorizing human beings. Too often it creates unnecessary divides that confound more often than they clarify, which was their original purpose.

Yes, autistics with fewer self-help skills and such will need more support than an autistic who is considered more "high-functioning", but the issue here is not in supports to help an individual get along in society, but in the eradication of that individual's autism, which it is the latter that we anti-cure people oppose, and not the former. If I opposed all therapy and supports, I would be mounting a protest against the Director of Special Services of my school, as I am in speech therapy there, and they have loaned me use of an AppleSmart to help me type my thoughts prior to saying them - and these have helped me enormously. The fact that I, or anyone else, needing such supports does not justify the complete alteration or eradication of autism.

Well said & comprehensive.
BTW I must be a tad oddWink I thought Starbucks was one of those alcohol drinks for the teens.Rolleyes
I don't like coffee, so will not be buying any.

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