Just thinking that there's a load of information out there that's all about 'So your child's just been diagnosed with an ASD'. What were you told when your child was diagnosed? What do you wish you'd been told?
By the time my only "Officially Aspergian" son received his diagnosis we already knew the score, we just wanted it properly recognised so that he would get help rather than censure.
Once upon a time eccentricity was regarded rather more leniently than it is these days - now the schools seem to want all the kids to be identical little robots.
We were told that : 1. our life would never be boring
2. That our son was so severe that he might well need
institutionalization
3. That regardless the severityof the autism, there was this small
window of opportunity up to age 5 when you might be able to do
something about it to give him a normal life.
I kind of appreciated the "your life will never be boring". The rest caused a "fix it" mentality to prevail for a long time. I wish they had sent us in the direction of Sensory Integration and TEAACH not ABA first because it turned out to be a wonderful assessment tool for purposes of learning how our son actually did process and learn . Understanding him, what and how he experienced things, was necessary to being able to help him.
Mom