Aspies For Freedom

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Wolfy Wrote:
Greetings,

This dosent really qualify as an autism site but it pissed me off anyway :-

http://www.socialanxietyinstitute .org/asperger.html

Would you mind explaining why? Do you object to the claim that AS is not defined by anxiety and that having social anxiety doesn't make one autistic?

Wolfy Wrote:
I object to the fact that it says anxiety is not a part of AS.  This is backed up by all the hyperactive amygdala stuff.

Anxiety is common but it is not an integral part of it and not required for diagnosis, so there is nothing wrong with stating that while Social Anxiety is defined by anxiety, AS is not.

Putting AS on the same level as a psychological problem that can be overcome with therapy and is based on mild paranoia and self-consciousness seems bizarre to me. There's already enough people with AS who get told they just have some psychological problem (rather than AS) like social anxiety - why should there be more?


Quote:
Plus - name me one person here who hasnt experienced severe anxiety as a result of their difficulties.  Name me 5 people here who havent expereinced SOCIAL anxiety as described on that page as a result of their difficulties.

Sorry, I have no social anxiety. Yes I find eye contact unconfortable but I don't worry endlessly about what others think of me, feel constantly self-conscious and worry about people thinking I am ugly, clumsy, incompetent etc. etc.

I couldn't care less about what others think of me to be honest and most of the time I am not aware of people or what they may or may not think of me.

I know several people with AS or HFA (some in real, more online) who are the same.

Amy Wrote:
I think social anxiety is not generally concerned with "what do other people think I look like" and that kind of thing. Maybe you are misunderstanding what social anxiety can mean.

I didn't only mention worries about what I look like, I included much more than that (it is worry about what others think of you, about having to perform etc.).

And I do know what social anxiety is (a German girl on an AS forum has both and I looked into this extensively at the time) and no I have none of those things. (I do have issues with experiencing emotion while being watched - like I can't feel enjoyment or surprise when opening gifts when being watched - but this is only with the very few people I am close to, because unless I am very close to someone I don't register them much in an emotional kind of sense)

Yes there are ways in which people can be "anxious about social encounters" for many reasons (including social ineptitude, multitasking, sensory issues etc.) but that is not the same as the diagnosis of "social anxiety". (See definitions below)

Quote:
Social anxiety is the fear of social situations and the interaction with other people that can automatically bring on feelings of self-consciousness, judgment, evaluation, and inferiority.

Put another way, social anxiety is the fear and anxiety of being judged and evaluated negatively by other people, leading to feelings of inadequacy, embarrassment, humiliation, and depression.

If a person usually becomes anxious in social situations, but seems fine when they are alone, then "social anxiety" may be the problem.

...

Specific and Generalized Social Anxieties

A specific social anxiety would be the fear of speaking in front of groups (only), whereas people with generalized social anxiety are anxious, nervous, and uncomfortable in almost all social situations.

It is much more common for people with social anxiety to have a generalized type of this disorder.  When anticipatory anxiety, worry, indecision, depression, embarrassment, feelings of inferiority, and self-blame are involved across most life situations, a generalized form of social anxiety is at work.

Symptoms of Social Anxiety Disorder

People with social anxiety disorder usually experience significant emotional distress in the following situations:

Being introduced to other people

Being teased or criticized

Being the center of attention

Being watched while doing something

Meeting people in authority ("important people")

Most social encounters, especially with strangers

Going around the room (or table) in a circle and having to say something

Interpersonal relationships, whether friendships or romantic

This list is certainly not a complete list of symptoms -- other feelings have been  associated with social anxiety as well.

The physiological manifestations that accompany social anxiety may include intense fear, racing heart, turning red or blushing, excessive sweating, dry throat and mouth, trembling, swallowing with difficulty, and muscle twitches, particularly about the face and neck.

Constant, intense anxiety that does not go away is the most common feature.

People with social anxiety disorder know that their anxiety is irrational and does not make "head" (i.e., cognitive) sense. Nevertheless, "knowing" something is not  the same thing as "believing" and "feeling" something.

Thus, for people with social anxiety, thoughts and feelings of anxiety persist and show no signs of going away -- despite the fact that socially-anxious people "face their fears" every day of their lives.

Only the appropriate therapy works to alleviate social anxiety disorder, the largest anxiety disorder, and the one that few people know anything about.


And:

Quote:
The Diagnostic and Statistical Manual of the American Psychiatric Association currently defines social anxiety disorder in the following way.  

Please note that while this definition of social anxiety is the most definitive and clear produced to date, there are several potential problems with this definition that will hopefully be addressed by the task forces, editors, and research coordinators of the association as time progresses.

The Current DSM-IV (Abridged) Definition:

A.  A persistent fear of one or more social or performance situations in which the person is exposed to unfamiliar people or to possible scrutiny by others.

The individual fears that he or she will act in a way (or show anxiety symptoms) that will be embarrassing and humiliating.  


B.  Exposure to the feared situation almost invariably provokes anxiety, which may take the form of a situationally bound or situationally pre-disposed Panic Attack.  

C.  The person recognizes that this fear is unreasonable or excessive.

D.  The feared situations are avoided or else are endured with intense anxiety and distress.

E.  The avoidance, anxious anticipation, or distress in the feared social or performance situation(s) interferes significantly with the person's normal routine, occupational (academic) functioning, or social activities or relationships, or there is marked distress about having the phobia.

F.  In individuals under age 18 years, the duration is at least 6 months.

G. The fear or avoidance is not due to direct physiological effects of a substance (e.g., drugs, medications) or a general medical condition not better accounted for by another mental disorder...[/b]


One BIG difference is that someone with AS will still have difficulty interacting with people even when the people are familiar (or the situation is familiar), whereas for someone with social anxiety, it is mostly strangers that tend to be a problem (because of the fear of judgement and scrutiny).

Amy Wrote:
Social anxiety does not have to be diagnosed though or follow any criteria. In the same way that sadnes does not have a diagnostic criteria or need to be diagnosed, people can just feel it, and find it unpleasant.

Yes Amy you can experience "anxiety in social situations" but the website Wolfy referred to deals with "Social Anxiety" according to the DSM, which is defined by worries about how you are perceived, performance anxiety etc.

You are free to make up your own definitions of social anxiety but please accept that when people are discussing what is commonly known as "Social Anxiety", you have to accept that what they say refers to this concept and not the concept you have decided to call "Social Anxiety".

It helps to make clear that you are not talking of *the* Social Anxiety when mentioning it, as this makes things a lot less confusing.

A woman once caused a lot of pain on a German forum because she, who has diagnosed HFA, hurt people by storming on there and declaring that AS was a severe personality disorder etc. etc.

Only weeks later did she admit that she did not understand what "Personality Disorders" were, but just defined PDs as "a personality that is a bit different".

If she had bothered to state this right from the start, she could have avoided a lot of hurt and anger.

Wolfy Wrote:
I didnt say anything about AS being defined by anxiety.  My argument is that anxiety is a PART of AS.  It is a 'secondary effect' if you will.  Only a tiny handful dont experience it.

I agree with that - but you listed a website that tries to differentiate AS from social phobia by stating that AS is not defined by anxiety as a "rotten autism site". And I'm sorry but AS isn't defined by anxiety, anxiety is not the central symptom in AS! Ergo, the website isn't wrong!

Wolfy Wrote:
"If a person experiences undue and irrational anxiety, then the condition is not likely to be Asperger's."

That is like saying that people with AS dont have anxiety.

Admittedly, they could have worded it better, but are you not perhaps just reading things into it because of your own experiences (of being told you don't have AS because you had OCD or anxiety or something - I don't remember exactly)?

If you look at that text in context they were discussing what is "at the center" of a condition, and with social phobia (as with all anxiety disorders), extreme and often irrational anxiety about social performance is the core common symptom, whereas AS is not defined by any type of anxiety, be that social or otherwise.

Because the gist of that page is still true - if a person's main symptom is chronic anxiety and fears about being judged by others, then it is more likely to be social anxiety than AS.

With AS most do end up experiencing some type of anxiety and some do develop social anxiety, but while many with AS EXPERIENCE these types of problems, AS is not caused by humiliating social experiences and low self esteem (and can therefore not be therapied away).

Perhaps it might be a good idea to E-Mail them to ask if they could clarify this statement, so they change it to "while people with AS can experience anxiety alongside with their symptoms, or as a result thereof, the syndrome itself is not defined by persistent anxiety states, and the social difficulties people with AS can experience are real and not founded on irrational worries".

Amy Wrote:
I was talking about social anxiety, and not the website Wolfy mentioned. I am not "making up my own definitions" anymore than someone is entitled to say how they percieve sadness, or happiness, we don't need a diagnostic criteria for every emotion.

Yes, but "social anxiety" is not an emotion, it is a term for a specific anxiety disorder, and that was the context in which both Wolfy and myself used the term.

"Social Anxiety" is defined by worries about how you are perceived and similar things, worries about being inadequate and so on. It is a diagnostic concept that describes a very specific type of anxiety disorder that is related to social encounters, in particular with unfamiliar people where you worry about being judged and about not being "good enough" for their expectations.

While some with AS also develop "social anxiety", the whole point of that page on the website Wolfy linked to is to point out that there is a big difference between AS and "social anxiety" (which is a common misdiagnosis for AS).

The big difference between the anxieties many with AS feel about social encounters, and Social Anxiety, is that the worries about social performance in AS tend to be founded on genuine social difficulties (and often linked to feelings of confusion, genuine difficulties in holding a conversation, in keeping up etc.), whereas with Social Anxiety they are usually based on exaggerated and sometimes imagined fears and imperfections a person may have.

A person with AS may have difficulty initiating or continuing a conversation, lack body language, become overwhelmed or confused in groups etc. but is not necessarily aware of this nor do they nexessarily need to be sad or anxious about these things (many get by just fine and just avoid those situations where they feel uncomfortable).

For example, a person with AS may attempt to hold a conversation with someone they don't know but struggle when the other person wants to do small talk.

A person with social anxiety disorder on the other hand may not even attempt that conversation because they believe they are not interesting enough, they are bad at talking to people or worry they will mess it up, people will laugh at them, make fun of them, they may dislike them, ridicule them and so on.

However, unless they ALSO have AS or similar, their "weaknesses" are imagined or grossly exaggerated and they are only uncomfortable doing these things with people they don't know (or where they don't know in advance that they will be liked). If they hold the same conversation with someone they are familiar with, they do very well and have no problems keeping up with the conversation, using body language, small talk and so on.

Amy Wrote:
You are talking about a disorder, social anxiety disorder, I have not used that term in my posts.

Yes I was, and so was the website Wolfy linked to, hence my use of the same term when discussing whether this is or is not the same as AS.

Since you responded to my post and told me I didn't understand the subject, I assumed you had based this judgement on the same terms in which we were discussing social anxiety, i.e. in the context of the condition discussed on the website and by Wolfy and me.

Lili Marlene Wrote:
Here's a quote from the site

Quote:
Judy has some AS traits, but like most children of parents with AS, cannot determine whether they are inherited or learned.


AS can be LEARNED? Then there's hope for us all!


Well it sounds more like they are unable to tell whether a few mild AS-LIKE behaviours or personality aspects are actually AS traits or are due to growing up with an AS parent. (As human beings - in particular NTs who are more likely to imitate etc. - learn things from their parents and pick up habits and behaviours, that is not all that irrational a thing to speculate on)

Lili Marlene Wrote:
When you have more than one child you discover how little influence family culture and values has on a child's personality and choice of activities, becuse they all grow up to be very different individuals from exactly the same family. We never taught any of our kids to watch tripe on TV such as "Neighbours" or "American Idol", in fact we heap shit on the kid when one of our children tunes in to this garbage, but it doesn't stop them watching!

That's one thing I dread about having kids! Wink

But back to AS traits - yes of course as you said tastes and suchlike (as in waht they watch on TV) are largely not something they "get" from parents, but surely there are some aspects of behaviour, and some habits, that you pick up from parents (even if they are not biological parents for example)?

Yes in this particular case (Singer) I must admit it is unlikely that it is down to nurture, but there are also many things that kids do pick up from their parents, or learn from them.

For example every family I have ever had dinner with has their own little idiosynchratic ways as far as dinner table rules are concerned, and this seems to carry through at least to some degree (for example people whose families have lax rules generally don't fuss about with eating at the table when they have their own household etc.) so I could well see that an NT who grows up learning more Aspie-type ways of doing things (or structuring things) could pick up some of these ways.

Of course spending a lot of time with other families (sleepovers etc.) can help to broaden this but I suspect some people with AS who don't like being around lots of people may not go to great lengths to deal with having children over or organising for their kids to spend time at other parent's homes, so perhaps this also increases this effect?

(Of course if it is too extreme then it can go the other way!)

Amy Wrote:
Peers can have a big influence on kids, especially with things such as popular tv shows and pop groups. If an NT kid feels pressure to fit in, they don't want to be the only one who hasn't watched the latest reality tv show.

Yeah definitely, but that's also partly something I think an AS parent (who is more likely NOT to agree with the "herd" thinking and perhaps more likely not to want other kids in and out the house all the time) might influence to some degree, partly because there is less understanding of why on earth someone would want to watch something "just because everyone else does", and partly because from what some Mums wit AS said/wrote, it seems there might be a trend to have less children over or be less involved in out of school activities.

So to some degree even NT kids of an AS parent might get less "branding" from peers - on the other hand though it is also possible the "go the other way" to counteract what they perceive as the AS parents "lack of being cool" (perhaps more so than with NT parents), although again one great thing I notice with "more alternative" (not necesarily AS, just more open-minded, green types, anthroposophic/Waldorf etc.) families is that there seems to be so much more self-confidence going. Kids seem happier to be who they are, and less ashamed of not wearing what everyone else does etc.

Lili Marlene Wrote:
I can think of one example of successful indoctirination of our kids with our beliefs. Our kids are all atheists, even more intolerant of religion than us adults are.

Well that's the odd thing with me, because both my parents are atheists (out of sheer disinterest and lack of need for religion more than anything) but they did briefly try to make an effort with me to give me a chance to make up my mind, i.e. they took me to church sometimes and a lot of our local kids' and youth facilities (such as summer camps etc.) are organised by the church and I was sent to a fair few of them. But even though until a certain point (I think it was when "the penny began to drop" for me as far as what religion was actually trying to make us believe!) I was quite "into" it as far as looking things up in the bible and answering questions from the bible etc., it never really stuck with me.

Mind you it was a very progressive vicar (we watched films about the Big Bang and got to debate whether evolution or creationsim made more sense etc.!) who organised most of these events, the only "bible bashers" that were around in that church were a couple who were quite young and rather over-eager with few facts to back up the things they so enthusiastically talked about.


Quote:
But I do not feel confident that this will stick for life, as I believe some scientists have found that religious belief is a highly genetically determined trait, but the genetic determinism effect kicks in at puberty, for some unknown reason. Maybe it is something to do with hormones interacting with the temporal lobes.

Yeah I read about that too, I don't think they have mentioned any particular region of the brain but they did find that there is a predisposition to strong religious belief. I wonder whether there is link between this and the strong belief in UFOs and extrasensory things?

If I remember correctly, Ursula has a brother she deems almost "crazy" who's into all sorts of conspiracy stuff, while she herself is religious. It would be interesting if there was a study looking at those two aspects, rather than just religious beliefs!

Lili Marlene Wrote:
V.P. Ramachandran wrote a chapter about the temporal lobes and limbic bits, and their connection with religious fanaticism and asexuality in his book "Phantoms in the brain" (not sure about the title). Richard Cytowic and other synaesthesia experts link temporal lobe epilepsy with belief in supernatural stuff and UFO abduction experiences. Pretty wild stuff.

I've read a shorter version of that before in an article, the title sounds right (at least it sounds familiar!). I'll have a look for that book as I've just run out of reading material AGAIN and will be in Sheffield (= BIG bookstores) this week.

Amy Wrote:
I haven't read it, does she only focus on adhd and autism though?


Edit: I was replying to a different thread/post by mistake.

The Book "The Autism-ADHD connection" focuses on Autism and ADHD, and links both with Bipolar.

I might be too stupid or literal to understand the book, but to me it simply reads like a huge pile of circular argumentation.

1) She believes they are manifestations of the same disorder
2) She "proves" this by equating aspects of Autism with aspects of ADHD (sans explanation why she thinks they are the same!) and expecting people to magically see them as 'the same' (which they are not!).

JSL Wrote:
Autism Awareness UK ebay shop

Quote:
Recent survery shows that 90% of pets wear ID, and less 1% of missing children with Autism wear one.


Are they comparing an Autistic child to a pet?

No they are not, they are implying that parents of autistic children who have a tendency to run away (some autistic children are wonderful escape artists and try to run away or break out of the house at any given opportunity, day or night) should make sure that their children have some form of ID on them so they can be returned if they manage to run away.

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