http://www.autismwebsite .com/ari/index.htm
Let it be said that I am not a believer in the theory that vaccines (or mercury poisoning) cause autism. But this site is particularly egregious, not only because it dwells on that theory, but also because it propounds the need to "prevent and treat" autism through an ancillary program, "Defeat Autism Now."
jmb (mom of Blue, 4 1/2, who thinks being autistic is way cool)
One thing that I find so thoroughly irksome about these autism web sites is the emotive language, the kind of language that conjures up mental images of someone wringing out their hanky. Does this particularly apply to autism, or are all web sites about kiddie disorders similarly overwrought?
I think it is pervasive in our public discourse these days -- everything feels like a "heartbreaking affliction" when you hold the expectation that everything in life should be perfectly aligned with societal expectations and directly under your control -- and that you are a victim if this is not the case. If it's not the "heartbreak" of autism, it's the heartbreak of deafness or food allergies or just about anything else you can think of.
And where do they find these TV newscasters who can seemingly summon tears to their eyes on demand, as they interview the parents of the poor afflicted autistic child (or the child with a club foot or a congenitally dislocated elbow or what have you)?
I wish all those people could understand that my autistic child is FABULOUS. The only time I felt afflicted was during the diagnosis period when for about a week, the doctors announced that they needed to rule out a brain tumor. The minute I found out that, no, it was "just" autism, I breathed a sigh of relief and got on with enjoying my weird, wonderful, magical, brilliant, different-from-everyone-else-on-the-planet child.
But even more importantly, I wish that across the board, we could stop being a society of eager victims, rushing to identify with the latest pathology or syndrome so that we can massage each others self-pity about it. What is that all about?
These sites are depressing me. It isn't my fault if people have/have had preconceived expectations of me that turned out to be unrealistic or unreasonable, and if they couldn't appreciate the strengths that I did have. :-/
Isn't there anything that can be done to counter them, aside from individual efforts which go completely unanswered and ignored? I had the naivete to email CAN and expect a reply....lol lol....
The statistic about 80% or more of us being retarded especially bothers me. How can this be accurate if you have a non verbal autie child, how would they accurately asess the kid's intelligence? My son (the as yet undiagnosed aspie) FLUNKED the preschool screening, even though he could have passed it easily. He simply refused to talk, cooperate, or respond. He is very bright....
I would like to be able to quit fuming and *do* something about the widespread ignorance!
Bad Asperger's websites
http://www.coachingasperger .com/index.htm
This woman claims to be a certified "coach". She charges $125/hr for over-the-phone consultations.
What is she supposed to do for people for $125/hr. Is the Psychic hotline cheaper? I bought my tarot cards for $30.
She says she coaches over the phone. This is what coaching consists of:
"WHAT IS IT LIKE TO BE COACHED?
First let me tell you what it isn't like. It is not me telling you what to do. Instead, I ask you questions that prompt you to consider alternatives you haven't considered, and encourage you to take new perspectives. My purpose is to get you to an "ah ha!" realization, a eureka moment. I ask questions until my clients exclaim in wonder, "I can't believe it never dawned on me ask myself that. Now I know what to do next." You come to new clarity about your life and purpose.
Then we really get down to business and design what to do next. Maybe you want to schedule time to pursue a new idea and cut some less important items out of your schedule. Or maybe you want to try a new tactic with a friend or colleague. Whatever it is, we will make sure you have all the structures in place so that what is most important in your life gets done each week."
So what she really does if help people prioritize their schedules. So most people with asperger's couldn't afford her to be their talking daytimer.
"Or maybe you want to try a new tactic with a friend or collegue."
I am beginning to believe that asperger's is becoming a new "glamourized disease". People read that Bill Gates and Steven Speilberg have asperger's (who knows that is true), they are rich and successful. Computer programmes all must have it, they falsely assume, and they are smart. They falsely think that people will think they are smarter if they have asperger's. I doubt that little shits who make all these computer viruses have asperger's. I have met some programmer whizzes who are just calculating sarcastic people, not aspies. They spend alot of time alone programming but they are not loners.
Once she gets someone dependant on her advice, maybe she gets them to sign over all their money. I had friends who used these types of therapists. They were always phoning their therapists to get advice and ask them "when he/she said that, what did they mean?"
What to ask a therapist: let me see your credentials, where did you get your training, what types of therapy do you do and how can you help me, what treatments do you offer and how long will it take, how much will it cost?
What didnt you like?
It made me angry at first because I thought she was including AFF as one of the support groups to avoid. After reading the site further I see that she is probably a member of this forum and doesn't see AFF as a support group.
I am not sure if she is a member of not, but AFF is not a support group.
I know she is a member of the autism assembly.
Many who come here seem to think it's a support group but I see that's it's not.
I like that idea of Amber Alert better. -That is any child who is gone missing will be looked out for.
I just sent this mailing about the site mentioned in an early post of this thread (
http://www.aspar.klattu.com.au/)
I have recently seen your website about AS parents of NT children and
find that you seam to feel that all AS people are bad parents to NT
children, in fact I can almost relate to everything you said on your
site in exact inverse that I felt many similar things with my own NT
parents as I am AS such as:
# Their constant attempts to involve me in social interactions I found
stressful, unproductive and throughly undesirable.
# Being forced to endure excessive amounts of cuddling and other
undesirable physical interactions.
# Constantly having them attempt to interpret my needs usually
incorrectly and mostly causing unwanted interaction.
# Having parents constantly springing up unexpected deviations in
routine and spoiling the order I was accustomed to and happy with.
# Put up with the general excessive noise of an NT household, then being
forced into unwanted social interaction when I became distressed at this
with them asking constantly what was wrong
# Have my own space invaded by general noise and unwanted distraction of
the NT parent.
# Constantly being confused and often depressed by the lack of
understandable rules.
# Finding all the time that the parent is unwilling or oblivious to the
fact I did not desire large amounts of physical and social interaction.
I could go on with this list all day but I wont, I was simply trying to
highlight a point that there is another side than the one you are
portraying.
I know for a fact that having discussed this issue with others with AS
both with NT parents and with AS parents that this situation is common
for people who are AS with NT parents and that most of those with AS
parents did not experience so much of this in the home environment
although as all AS people do they did have such problems outside of
home, I am quite sure that most NT with NT parents may be happier to be
with their NT parents than with an AS one however not all such homes are
happy homes.
Anyway the real point of this is to request that you at least stop
implying that AS instantly makes a person a bad parent because as I have
pointed out AS children are in general happier in AS homes so to imply
they are poor parents is clearly unfair. Also to suggest that AS should
be used against people in a custody hearing is really unfair, Let me ask
you something, how would you feel if you had a child who was autistic
that made similar implications about NT parents that you are making on
your site about AS ones.
Anyway, I would be surprised if I receive a reply to this letter but it
would be nice to receive one, however if not I hope my words will have
had some effect on your opinion of this matter and hopefully on your
opinions of AS peoples parenting ability.
---
M Joyce
I must have been one of the rare autistic kids who craved cuddles and affection but I know many don't like it. AS people should not be thought of as bad parents. Maybe some can be over-rigid but most are very conscientious and would do their very best to do the right thing by their children.
hating autism.blogspot. com
it's the site by the internet troll.
autism speaks is definley rotten, since they desribe hope as the end of our kind...that's terrible.
It's been mentioned before, that guy definitely has a screw loose. And anger problems. And a massive stick shoved up his a**.
Not to mention a possible hard-on for Hitler.
Vespars was referring to your use of the slur "Japs". There's something odd about you, there's no denying that either.
Has anybody heard of a site called I2? Apparently it is a harcore site for renegade aspies and is said to have all sorts of derogatory comments about women. Some people from it are also in WP and the comments they even posted on WP were a real worry. They also spammed a site which was an offshoot from WP (people trying to get away from them and set up a site where people could be supportive of each other) with porn.
Has anybody heard of a site called I2? Apparently it is a harcore site for renegade aspies and is said to have all sorts of derogatory comments about women. Some people from it are also in WP and the comments they even posted on WP were a real worry. They also spammed a site which was an offshoot from WP (people trying to get away from them and set up a site where people could be supportive of each other) with porn.
They sound like 4Chan rejects.
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