Aspies For Freedom

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Google Answers had this question http://answers.google.com/answers/threadview?id=180490

This is a post by someone who has been having these doubts for many years and is still seeking diagnosis after 9 doctors said "No": http://www.mnip-net.org/asperger/discuss...enDocument

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Is there something I could read somewhere that would tell the differences between Asperger's Syndrome and social anxiety disorder/avoidant personality disorder **without** AS? I realize that many Aspies can have these disorders as well as having AS, but how can somone tell that they have SAD/AvPD without AS?

I first learned about AS a couple years ago and some of the social things seemed to fit me. Also, I"ve always been very clumsy---unable to play sports with other kids, not very good balance, and have always been afraid of falling.

I've been to 5 doctors about AS so far, two of them experts on AS and autism, and none of the doctors feel I have AS, after asking numerous questions about my childhood. They feel things that happened to me as I was growing up combined to make me feel socially inept and to develop SAD & AvPD. They also said I have General Anxiety Disorder, which they say caused some of my extreme fears, such as of falling & swimming.

But many Aspies have a lot of anxieties as well. In fact, anxiety seems to be one of the diagnostic traits of AS, or at least a basis for many Aspies' self-diagnoses. Many Aspies that I talk to in forums on the Internet seem to have a lot of the same social anxiety characteristics I have. And most seem to be clumsy & bad at sports.

I can also relate totally to social anxiety and AvPD sufferers, and do feel I meet all the criteria for these 2 disorders. I can see where things in my childhood contributed and snowballed to where I got to be the way I am now. But there seems to be a different focus on therapy for SAD for a neurotypical than there is with social skills training for someone with AS.

Someone who is neurologically typical but has longstanding SAD is supposed to have the ability to pick up social cues and skills and understand social situations, but their understanding was clouded over the years by their anxiety so that they feel like many social situations have a negative meaning for them, i.e. they screwed up socially and will be rejected. Also SAD sufferers focus inwards on their anxiety, and while doing that they really aren't noticing what is going on around them so they really aren't learning how to accurately understand social situations. The idea in therapy seems to be, get rid of the anxiety, get the person's thoughts back on track so they don't see everything as negative and they will be able to handle social situations and perceive them accurately.

But in AS, the person usually really doesn't understand social situations well, even if they don't have SAD, and they don't pick up on many social cues and misunderstand some social situations. It seems like, if they develop SAD, it was based on some true perceptions that maybe their social skills weren't as good.

How can I tell which one I am???? I feel like I'm going to go through therapy for SAD/AvPD, only to find out I really don't understand social cues even though I might stop focusing on myself and start focusing outward and learn what's really going on. I'm afraid that I won't really learn what's going on, because I don't really have the capacity to udnerstand social cues, and will then hvae to go through the extensive social skills training for Aspies.

I have already been told by one therapist in my area that I really should go to the social anxiety groups rather than his social skills groups for Aspies, because I'm not an Aspie and hearing the word Asperger's will keep me thinking I am when I'm really not.

Could I have got so scared of being diagnosed with AS (and believe me, it still frightens me that someone, somewhere will tell me I must have AS--it's one of my social fears as a matter of fact), that I made myself seem more normal for the doctors? I'm female too, and I"ve heard it's harder for female Aspies to get diagnosed.

I really want to find out once and for all if I'm AS. I'm thinking of going to a third AS doctor, but don't know what will happen there and fear it might be a waste of money.

If I could read something on my own that would show the difference between an Aspie suffering from SAD and a neurologically typical person suffering from SAD, it might help me to decide which side I'm on. Does anyone know of anything like that? I know Dr. Thomas Richards mentions it on his Social Anxiety Institute homepage, but he mostly points to the fact that AS is not caused by anxiety, and that anxiety is not mentioned in the DSM-IV for AS, while it is in the DSM-IV for social anxiety.

Maybe it's not in the DSM-IV for AS, but it does seem to be a huge byproduct of AS, probably due to misunderstandings that happen in the Aspie's life. And many Aspies report ruminating and doing postmortems on their social experiences just like SAD/AvPD people do--in fact, some of them feel that social postmortems are unique to Asperger's! Some Aspies seem also to feel that neurotypical people do not experience much anxiety, and if they do have anxiety perhaps they are on the autistic spectrum somewhere.

There are also things like memory that I worry about--I have memories from before I was 3, and this seems to be an Asperger trait.

Another problem is "special interests"--I have always had hobbies and interests, especially since I've always been so shy and socially avoidant, I had to have something to fill the time and I had thought that hobbbies were a good thing. Where does a hobby leave off and an Aspie-like "special interest" start??

Batman55 Wrote:
Athlynne you may want to look into Schizoid Personality Disorder and Avoidant PD to make sure they don't define you better than AS.  I have ruled out Schizoid but I can't rule out Avoidant...


I am just curious, since your main reason for lack of social contact appears to be in your own words down to a choice to avoid people, and down to an intense fear of closeness, friendship and intimacy? Regardless of where this fear comes from (social skills problems, trauma etc.), that seems very classic Schizoid social behaviour to me.

ASDAdult Wrote:
Taking the more simple approach, isn't there something that explains how with Avoidant PD, a person gets really "suspicious" and anxious about someone's general everyday social questions.
...
Someone with Avoidant PD will talk to you, but will get overly anxious if you ask questions that they feel is of a more "personal" nature.  They will avoid answering you directly or might have a habit of saying "Why do you ask?". 


That sounds more like paranoid personality to me (suspicion about personal questions and people's motivations etc.) - as far as I'm aware with AvPD it's more a question of pervasive fears of beng judged negatively, being convinced that one's social and conversational skills, sometimes one's looks etc. are "below par" and being terrified of others discovering one's perceived flaws. (The lady I quoted in my first reply is classic there - she is obsessed with wanting an AS diagnosis because she is convinced someone will "discover" her social skill problems and confront her claiming she had AS - since 9 doctors including 4 or so specialists have said she does not have AS, it seems evident that the social skill problems are all in her head)

ASDAdult Wrote:
Yeah, but to go one step further with that, Noetic, how would the underlying AvPD be "presented" outwardly?  To cover for those underlying insecurities or fears, what would someone with AvPD say? 

You know, I was going to use my friend back home who is diagnosed with Borderline PD but who seems half-Borderline (she definitely has the "I hate you/don't leave me" thing and is constantly manipulating people and situations for drama etc.) and half-AvPD, as an example of my point.... but thinking about it, yes you're right... Darnit! Wink

She does indeed appear "almost" paranoid and is very very guarded and can be abrupt and "rude" as soon as someone gets "personal". ("They must want something, they must suspect something, why else would they ask?" etc.)

She is generally very guarded, not in the same way that I know I sometimes *appear* to be (because it often doesn't cross my mind to talk about certain things unless something sets me off/triggers a memory - it doesn't always seem obvious to me that others do not already know what I know, and it is too frustrating to communicate what is necessary as I tend to "have" to convey the full picture which quickly becomes fragmented and derails).

More that she, while she is obsessed with gathering dirt on other people, especially her neighbours whom she despises (it often seems like she is trying to deal with her own low self esteem by teaching herself that others are much worse - not a bad strategy if she didn't constantly start actual feuds with them!), seems to believe everyone else also seeks out dirt on her and thus is trying to protect herself from such observations by keeping her personality tightly wrapped up and hidden.

I used to wonder if she might have AS, especially when she told me about how she hated public transport. I thought maybe it is touch sensitivity and not liking sudden touch and so on (few things make me jump - and want to hit out! - more than someone occasionally gently touching my leg), but when she is out with her friends she has no such problems.

She will make a huge drama about how she "can't sit next to a stranger" on the train,

The way she dislikes closeness to people is different to the way I dislike touch too (cuddles and greetings with relatives used to be horrible for me sensory-wise especially the smell of their saliva, and even the smoothest facial hair felt like needles, although thankfully it is now only some forms of soft touch that offend my senses - I do enjoy firm hugs though, and nowadays hate polite kisses mainly because I never read the signals right and end up doing one too few or too many or hit the other person on the nose with my face etc.).

She *claims* to dislike touch and closeness but with people like myself, who frankly are too unaware of her small dramas, she is spontaneous and does not at all react with the usual "Oh no you can't touch me!" spiel.

I remember the utterly bemused look on our mutual friend's (she being my first real permanent friend I made, all because I "needed" someone to guide me at our tap dance teacher's birthday party - see below Re: "using" people) face after I had said my goodbyes to my BPD friend.

"She HUGS you?!"

You see, apparently said friend decided once upon a time (years after we first met I might add!) decided that she disliked people touching her, and me being one of the few friends she has who do not "read" her body language and her psychological cues, I had absolutely no idea!

I make a point of hugging everyone goodbye when I see them the last time before I go back to the UK, and in a way I guess she sensed that I don't "buy" (not even register!) her rejecting, avoidant facade and reacted naturally just as she probably would all the time, if it wasn't for her anxieties.

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Hey, interesting observation, previous to your last post, too, Noetic!  Is it theorized that autism in any form includes the "fear" of social interaction?

Not really a fear of social interaction as such, although that was originally part of one of those psychobabble theories that tried to explain autism as just "being afraid to get close" etc.

But there are newer theories and ramblings out and about (and in books) about "exposure anxiety" (Donna Williams coined that phrase and while some of the neurobiological conclusions are very illogical, it describes what I experience very well), about reactions that do not at all relate to conscious "fears of" (failure, embarrassment etc.) but about an inability to function while you are aware of your actions.

Being 'exposed' (confronted, scrutinised, watched) makes you more aware of what you are doing at the time, and this seems to often stop people from completing the action. (George in the book "Sam and George" is practically anorexic because he cannot make himself eat "for himself" - his mother has to talk aloud about how the food she is making is "for Sam" and then leave it lying unattended, with nobody else paying attention to George. Then he can connect and make the movements necessary to nibble at the food a bit)

For me even just the presence of someone whom I know well enough to register them as "a person", that takes up my focus and I often *cannot* pull my focus from "being with that person" towards an action I am supposed to perform, I cannot divide my focus.

Thankfully precious few people are "real people" in my memory, in the sense that I can feel close enough with them that I can fully hold that person in my attention and awareness though...

That was definitely something that I have experienced since long before I was really aware of people other than perhaps my parents, and judgement or embarrassment only occasionally came into it, in my late teens.

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I also lack the underlying "interest" in initiating "in person" social interaction the majority of the time.  I rarely accept any invitations to go anywhere with someone.  When I'm alone, I like it fine, and more often than not prefer being alone (or with one person who is close to me who also understands me completely, like my youngest son).

Me too... although I do sometimes like to go places as long as someone I know well is with me the first time - if it is a social event I often have been guilty of "using" people (although to be honest most of my few friendships developed from this) as a go-between that others would talk to, because I eventually realised that I seemed unable to think or react fast enough in most such situations to be able to respond without shutting down.

If it is something I want to do (and I mean I want to be very much consciously aware of what is going on and I want to remember it) then I almost *need* to do it on my own, because unless an impulse catches me unawares, it feels almost as if the other person's presence is physically pulling my focus towards them (literally it feels like something is pulling strings on my upper right back), causing me to lose all connection to what I actually want or intend to do.

The lady who diagnosed me (after referral by a neurologist who diagnosed "an Asperger like syndrome" - he had an odd way with words) put this in my report, most of it was more from her experience than from what I wrote to her though (I sent her a few dozen pages of different thoughts and memories, plus the document I'd originally sent the neurologist):

Mary Myers Wrote:
She finds it almost impossible to talk about her emotions, and one can safely predict that to be asked questions about them will blot out any clear thought for her. (Asking them on paper would be a different matter!)


(The bit I object to is that she refers to "emotions" - what she seems to label as such is not the same was what I attach value, meaning and emotion to. It's more the subject/object of my focus than "emotions" that I can't 'connect with' when expected to instantly talk about them)

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No other co-morbid conditions of any psychological or psychiatric nature exist with me.  I'm luckily spared there.  Now, additional co-morbid physical conditions, yes.  Gastro-intestinal, irritable bowel, fibromyalgia, blah blah, but nothing serious.)  You could almost say that someone like me would be a "pure" HFA/AS?  

I am too, although I do have attentional/memory issues as well - ADD meds do work for me because they help me block out things and stabilise my perceptions but the only ADD people I "resonate with" are ones, usually male and diagnosed past the age of Thirty, who also have an ASD.

ASDAdult Wrote:
No other co-morbid conditions of any psychological or psychiatric nature exist with me.  I'm luckily spared there.  Now, additional co-morbid physical conditions, yes.  Gastro-intestinal, irritable bowel, fibromyalgia, blah blah, but nothing serious.)  You could almost say that someone like me would be a "pure" HFA/AS?  

Btw, it is more and more acknowledged that those who have "pure" autism without any comorbids, especially without ones that cause particular behavioural issues such as aggression, are least likely to be diagnosed and end up included in research and case studies.

gemtnt Wrote:
chickens turning in a spit, etc.


Spit roast in case anyone is wondering... Damnit how do I stop the cartoon chicken in my head doing "breakdance" in a pool of spittle now? Cool

I think that you bring up some very good points, gemtnt. Although I'm sure that there's more to it than just those three things.

Batman55 Wrote:
Have you considered the possibility that Asperger's may be involved, instead of the thousand other possibilities you suggest?  Have you considered the possibility that I looked into Schizoid on my own and figured out it doesn't fit me?


Uh, yes that's why I asked. I was wondering why you mentioned Schizotypal did fit you but decided Schizoid didn't suit you.

I also have many APD traits but I also have a strange ability in solving technical problems. I can find problems in computer programs just by staring at the code and I fix all sorts of machines. I recently fixed my wachine machine and the air conditioning on my truck. That's how I have convinced my myself that I have AS and nothing but AS.

Pakrat Wrote:
But is this really helping anything? Surely the most important thing is for Batman55 to establish if he has Asperger's?

I was, as I stated clearly, curious. I'm curious and want to know how many things work, I'm sorry if that's a crime in your eyes.

Five Wrote:
Is this correct, are those early memories an Asperger trait? I have very early memories.


People who are visual thinkers (rather than verbal ones), as well as autistic people, who often tend to have strong sensory memories (as opposed to remembering abstractions of those sensory impressions), usually have memories going back to well before they could speak.

Most NTs on the other hand tend to remember only from an age where their thinking had become verbal (usually when they learned to talk).

Pakrat Wrote:
Not all Aspies are good at maths - that's a stereotype we really have to get away from.

In fact there is a huge overlap with NVLD and that usually brings with it specific LDs in maths as well.

Noetic, what is NVLD? I do not know what that means. This might be making it harder to isolate a diagnosis of Asperger's.

As for avoidant personality disorder, that description above fits me perfectly: however, I showed enough other symptoms of Aspergers to be diagnosed with it instead.

Batman55, I think the symptoms of Avoidant Personality on the surface look very much aspects of Asperger's. Asperger's people are usually very aware that they have issues with social interaction, wish to be liked and accepted, but don't know exactly how to achieve this. Even when they "copy" NT behaviours, it often seems rather stilted and formal.

Five Wrote:
Thanks Noetic. What I remember is labelling things as not interesting, before I could walk, and I walked around 1.


That's, um, interesting... Wink

Five Wrote:

Noetic Wrote:
That's, um, interesting... Wink

Big Grin You don't believe me!  


I do believe you!

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