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bravesj858 Wrote:
...i didn't want things like my name being on some registry because of this show and my life being ruined.
...


Would this be the "IAN" registry?  I heard about that on NPR this morning.  Creepy!

" I thought they did a very good job of dragging Autism through the dirt and mud, they didn't do much else than that.   "

AAAAAAAAUGH!! Exactly what everyone predicted.

PLEASE everybody -- hit the response page and kick some ***!

http://boards.oprah.com/WebX/.f151133
Well, I just tried to register but then it wanted contact info (actual e-mail address, to be verified).  Crap!  Forget that.  No wonder there aren't many people from here posting there.  (Terribly sorry, but I'm not "out" or even officially dx'ed yet.  Maybe one day...)

I was just going to tell "morbidcore" (message #934, "The ignorance of man...") that I liked her attitude, and that her post was a refreshing relief from all the drivel I had read up to that point.  And then, I was going to mention my RDOS score (AS: 123/200, NT: 77/200) and go into a rant about how I'm a successful IT professional with a master's degree, how it's not a "miracle" because I busted my @$$ for it like anyone else would have to, and how I did it all without the help of a bunch of bleeding hearts, curebies, or quacks.

If somebody who's already been posting on Oprah's site would please copy and paste this message there and tell "morbidcore" that she might like it here on aspiesforfreedom.com (if not already a member here, that is), I would really appreciate it.
Definitely on my to-do list. (Although I am skeptical about anything I post on there remaining.)

At the moment (Although I am reluctant to join any Oprah board, I will do anything for the cause!) I don't seem to be able to post there.
OK, I've said my piece on the forum... hopefully somebody reads it.

Quote:
I am one of the 50% of autistics who are high-functioning; and I do not want to be cured. I am a college student and I am happy the way I am.

I may be luckier than the low-functioning people this show focused on, but that doesn't stop me from being very disapointed that these children were seen as problems, burdens on their families, not-quite human... simply because they do not communicate efficiently.

Yes, raising a child with autism is hard. (It's hard on the child, too.) But raising ANY child is hard. We autistics are human; we have feelings and desires and thoughts, whether or not we communicate them. And, yes--we do love our parents, even though we might not know how to say so.

I'm tired of people focusing on autism as a tragedy. We're not a tragedy--we're people. Just as human as anyone; just as deserving of respect and love. Being told we're defective, being subjected to dangerous, unproven "therapies", being abused and put away in institutions... It's not OK, no matter how low-functioning we may be. Fundamentally, we're people. Just people. Just different.


By the way, if you aren't "out" about your AS, just lie about your name and location and whatnot and get a Yahoo e-mail account to verify your registration on the Oprah board. Completely anonymous. (In fact, so anonymous that Nigerian scammers use 'em! Heh.)

BRAVO, CALLISTA!

Here's the transcript from "The View"

http://abc.go.com/daytime/theview/images...script.pdf
It's a bit of an effort to slog through all of the posts on Oprah's message board; there are more than 1600 of them and only a few are shown at a time.

That said, I've noticed that the overwealming majority of posters are the parents of autistic children, telling us all about how awful it is to be raising their kids.  There are the stories about how vaccinations "cause" autism.  And there are all sorts of crackpottery, concerning mudbaths to cleanse toxic metals out of a body or cures that "they" don't want you to know about.

After about an hour of wading through this jungle, I had to give up and make my way back to the base camp.  It was just too much to take.  I no longer had any desire to post a message on the Oprah board saying that it was ok to have Aspergers and that I was able to get a degree from a top university and have a successful career.  My small, still voice would be lost in the noise and chatter of a thousand braying donkeys.
i want to but it wouldnt let me.
Okay, I'll get that Yahoo account ready for the next time we encounter something like this.  At this point, I think it would be futile for me to go to all the trouble for this one stupid Oprah thread.

Oprah's trashy show has been around since the 1980s.  (I even watched it a few times when I was in high school.  It's that old.)  Her name is synonymous with "trash TV", "tabloid TV", etc.  Basically, it's an insult for anything to go on that show, which is why I hope they don't manage to pull off an episode about HFA and Asperger's, like many on her message board had suggested.  Because, simply being mentioned on Oprah's show would be an insult to Asperger's.  But of course, if they do have an Asperger's episode, I guess there will be some attention-craving parents who drag their kids on the show (Watch this, I bet I can make little Timmy have a meltdown! </sarcasm> ) along with some curebie-fied adult Aspies.

What disturbed me most was when parents of Aspie kids, specifically, whined about how devastated they were.  What's the problem, then?  Okay, so little Timmy isn't going to play football and &%$* the cheerleaders.  What, they don't want to at least try to raise an eccentric genius?  Maybe those particular parents should give their kids up for adoption so they can be raised by an engineer or a quantum physicist or something.

Maybe we should plan LAN parties around stuff like this, so a dozen or so of us at each LAN party can egg each other on as we post.

Quote:
Posted by Acebrock - Today 01:06 PM
you really have to dig down through there to find anything from AFF. The parents are horrible though. When one person (I forget who) said they lives a mostly normal life, a parent asked if they smeared fecal matter on the walls when they were younger. *shudder*


That's a kick below the belt!  Since they're so interested in fecal matter, I'd love to find out where that parent parks their car, sledge out the windshield, and take a dump right on their dashboard.  (Sorry if I'm being obnoxious tonight, but that was some very good (and potent) ale I drank a little while ago.)

twokids3dogs Wrote:

momofaspie Wrote:
I didn't see the show, but as the mom of an 11 year old aspie, that would have made me angry too.  Aspie kids are NOT awful to raise!  The ONLY thing about my son that is difficult is how AWFUL the children at school are to him.  HE is delightful, smart, and kind.

It is the parents, teachers, and NT children who have the problem - not the aspie kids!  And you're right about all the crackpot methods of "curing" aspies; another way to make a ton of money off of people who already are stressed monetarily over services that insurance companies refuse to pay for!


I turned the show on and watched it for about 20mins and I had to turn it off. I am also the mom of a HFA 5yo boy.  And they didn't mention anything positive at ALL!!  My son in the 5 years that he has been in my life has taught me so much and has been a blessing.  They talk about a "cure" for autism.  They keep trying to make everyone "conform" to what is supposedly "normal".  Whats so great about being normal????  I said this before and I have to say it again Autism is not my son but a part of him which makes him extremely unique.  I was horrified and I actually understand now when someone finds out that my son is autistic they look at me with an extremely morbid expression and say "oh I am so sorry" or talk about him as if he were dead.  They watch shows like this and go to websites like Autism Speaks.  THERE IS NO REASON FOR ANYONE TO APOLOGIZE FOR MY SON OR ACT LIKE HE ISN"T ALIVE.  He is doing absolutely GREAT and will continue to do so!!!! He is so intelligent and sweet and has so much to offer the world if only people would give him a chance!!!!

Sorry for the rant but I started nd couldn't stop!!

Thanks


amen.

"They" will never find the cause because...
In Response to: Untitled message
Posted by: 3victoria9

Quote:
Posted on: 04/08/2007 at 12:34am (1960 of 1971)

Dear N.Seckert, How does something like this happen in sixteen years...from 1 in 10,000 to 1 in 150? Something has been introduced into the life of the children...it cannot be otherwise. Doesn't it make sense?

Please do not wait for "them or they" to find the cause or the cure. The cause is already known...and "they" are the cause of it. "They" being the pharmaceutical companies that make the vaccines filled with toxic mercury. "The Amish do NOT have a high autism rate, in fact their rate still sits at around 1 in 15,000 children, which by the way, was the rate in this country nationwide before the huge increase in our vaccination schedule in the early 90's." Google search to confirm the truth of this.

In the name of the Christ, I demand judgment on those forces that are causing our children to become autistic! Let the woes of Almighty God decend upon them! Amen, Victoria


Nutter?

This was one that made me go "Oh, puleeze!!!" Rolleyes

I mean, no offence to Christians, but keep Christ out of it!!! RolleyesRolleyes

Anyway. I went to the message board. I signed up. I dunnit. (posted)

VENI VIDI SCRIPSI Big Grin

RolleyesRolleyes Can't believe I'm now a member of Oprah.com. How sad is that? RolleyesRolleyes

And she really doesn't take into account how much the definition of "autism" has changed. I'd wager that even if there is a real increase, it is negligible.
Maybe we all ought to get Yahoo accounts, just so we'll be prepared to do things anonymously if we're still "in the closet", so to speak. I'm surprised some of you don't have anonymous e-mail accounts yet, really. I've probably had something like ten Yahoo accounts over the years, maybe more.

Herakleitos Wrote:
Wow, I got accepted into the parents' support group! I'll keep you guys posted on how it goes, if you're interested.


I'll be watching......WILL YOU?(sorry, just a little thing from this show I listen to. It's more funny if you know what it's from. And if you say it in a posh british accent.)

I saw this episode. Well, about 10 minutes of it. I had to turn it off because my brain was leaking out of my ears.
It was just the parents whining and crying about how horrible their lives are, and how they're "losing their children Sad ".

I gave it another chance later, thinking maybe they'll have a positive outlook later on in the show, but I was disappointed once more. All i got was the one father saying that "now I'm a better person after learning to have patience and after going through this ordeal"....

And they didn't even have an Autistic on there.
Maybe the type they were talking about wouldn't be able to deal very well with the giant crowd and bright light and having to talk about it and stuff.
But then again, that's not the only type of autistic.

I flipped the TV off a couple times. The ol' one finger salute.
They need my mother on that show. And me. I actually thought up a pretty good reply to that episode.
Maybe I should put it on their site?

Moon Baby Wrote:
Maybe I should put it on their site?


Good idea.

I was surprised some people replied to the post on the Oprah site and one agreed! That was cool. I would've thought that all the kind of people who post on Oprah site would be curebies. And lots of them were. (Lots more still think it's all to do with injections.)

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