Aspies For Freedom

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http://autismdiva.blogspot.com/2007/03/d...needs.html

basically, she talks about why autitsics need down time in their day, away from social interaction and away from constant orders of being told what to do.  she talks about aba and how that pretty much says to autistics that since you are not normal, you need to be controlled much like a dog to do exactly what others say.

there was a disturbing article she posted from a taca parent that you shouldn't give autistics any "down time", aka non theapy time, as you are failing to grow your child otherwise.

Quote:
FILL UP THE DAILY "DEAD TIME"

In planning your daily, weekly schedule for your child with Autism-Spectrum Disorder (ASD), you should make a plan to fill up the "dead-time" in your child's day.

Try an experiment for ONE DAY. Go through the entire "regular day" with your ASD child and actually count the number of minutes that your child is in "dead time". The result may surprise you.

What is "Dead-Time"?

1. Dead time is time OUTSIDE the ABA therapy sessions.

2. Dead time is sitting in a car going from one place to another. Typical children will look around, look out the window, comment on what’s seen, or just chat. Your ASD child will just sit, absorbing nothing of value - Your ASD child is in "dead-time".

3. Dead time is waiting in any lineup, supermarket, room, lobby, hallway, or classroom, as people around the child are either waiting for something or someone, or engaged in busy activity or conversation. Your typical child is usually having at least some fun (or making their own fun by getting into trouble), absorbing the new elements of a different environment. Your ASD child is in "dead-time".

4. Dead time also can be that late afternoon time (4:00 - 6:00 pm), when everyone is coming home from school/work, snack-time is on, then supper is getting prepared, maybe the house is getting tidied up a bit. Everyone is a little tired and getting ready for the last part of the day. Your ASD child just finished a therapy session, but no one is "on" him or her on a one-to-one basis. Your ASD child is in "dead-time".

5. Dead time is time that your child spends doing nothing while in transit from one place to another, waiting for something else to happen, or waiting for someone to arrive or to go someplace. Whether or not there are other family members around, there is no one focused on that child -- spending one-on-one interaction specifically and exclusively with that child. There is nothing in the child's hands on which to focus his attention and learning, even if only for a few moments.

ALL dead time is valuable time that should be filled with SOMETHING. ...

How can you fill the "Dead Time" with productive learning for your ASD Child?

1) Make every moment count. Everywhere you go, carry learning items and put those items in your child's hand. Talk or sing about them. Ask questions and if no answer (not able to), then prompt answers or give the answers yourself. If you are really busy, just tell your child to hold on to it, stand/sit down on the floor and look at it.

2) Take a PLAY BOX (toys/books/flash cards, etc.) everywhere - Put one in the car, for sure, but also take several regularly rotated items and put them in your purse or a special bag. The child will see the bag and possibly become familiar enough with it to seek out new items from you while waiting somewhere. This is fun for everyone. In driving long distances, it is hard for most children to be patient and "wait". Driving short distances is sometimes tough, too, and usually there are a LOT of these in a typical family's week. Put a toy or book or single flash card in your child's hands. Make sure that it is stuff that can easily require interaction from you but not be too distracting while you are driving.

3) Frequently change what is in the child's hands. Then s/he can't just get fixated on the item and/or totally bored. When driving and coming to a stop sign, take the item away and put another one in his/her hands.

4) Talk - talk - talk -- about what is in his hands, so there is always some form of communication going, no matter how basic or advanced your ABA Program is at any given moment in time.. While you are driving, talk about the item in his/her hands. Try to elicit a response - ask questions, etc. Ask questions and model the answers/statements so that the child practices language EVERYWHERE at every opportunity. Rotate the toys he/she has at every opportunity. At a stop sign, take that one away and put another one in his/her hands. Then talk about the new item. If there are other children in the car, get them involved in the discussion as well. If there are songs related to the item, sing them all together. Do not put the radio on and say nothing ANYMORE. ...

5) Get verbal interaction going with everyone in the car-- get him to repeat words, answer questions, ask him to point to body parts (or make a game with everyone in the car, someone in a line-up, etc. so that s/he can see and copy -- "OK everybody -- touch your nose, etc.)

6) ... Ask your ASD child "Look at that little girl - what color is her coat", etc. Or get them both to look at something and tell you what it is. This is peer interaction. ...

7) For those busy family times where no one is "on" your ASD child - Admit it. You can't do it, so get someone else on the job. If you have older siblings, assign a rotational 10 minute toy/ play task or some gross motor games (hopping, jumping, tossing). ...


i think that this view says that since we don't communicate and interact with the envoriment in the nt way (always using speech as your only form of communcation, saying things the nt way to get attention and talking, etc), we must be defiective and to correct that, we must be in stiumiaton of soical commuication every waking moment, and must talk, or otherwise we'll "escape to our own world" where they think we are doing nothing, but in fact, we are thinking about stuff (my parents knew this all the time when i went hours sometimes without saying a word).  i guess this means we need to be stiumlated to become nt otherwise we'll become lost or something.

for example, in the car, i would look out the window and think things to myself, about random stuff, sometimes i would say something, sometimes, i just don't, and there's no problem there.  just because you don't say something doesn't mean you're not in the real world or interacting with it.  speech isn't the only way to communcate.  have these people heard of message boards, im'ing, text messages?  those aren't speech based, but i guess nt socitey wants to disgourage those as pure and only talking is legit.

ugh...this is the kind of thing that gets me annoyed.  just because i talk doesn't mean i'm there?  i'm listening, and i have very good hearing, so if you say something rude, i will likely do something about it.

Is this is being done to highly intelligent aspie kids as well as other autistics?  If that's the case, it will be interesting to see how it affects the choice of nursing home when it's time to return the favor.  (Long-term memory, folks.)

Look, I did alot of staring off into space when I was a kid.  But my mind was quite active during those times.  (Refer to my "crisis around age eight" thread in the general forum.)  I needed that downtime.  Trust me, if that ABA crap had been pulled on me during that phase, the results would have been very ugly.  Quite the opposite, I wish somebody would have taught me meditation techniques.

Quote:
7) For those busy family times where no one is "on" your ASD child


<sarcasm>Yeah!  Get on that kid!  Show the little freak who's boss!</sarcasm>  Lovely attitude.

Quote:
Admit it. You can't do it, so get someone else on the job. If you have older siblings, assign a rotational 10 minute toy/ play task or some gross motor games (hopping, jumping, tossing). ...


Oh, nice!  Let an older sibling act like a third parent.  That's just messed up.  I was a younger sibling, and even without any weird "therapy" going on, there's nothing worse than an older sibling with a sense of entitlement.  (You know: bullying, pilfering your posessions, etc.)

I wonder if there's any way to get that ABA crap criminalized as a form of abuse.

That ABA article absolutely infuriates me!  I especially hate the idea of taking away the child's toy frequently and replacing it to prevent him from getting "fixated on the item and/or totally bored."  HELLO, fixation and boredom are opposite states, did ANYONE read this article all the way through before publication?!?!  *rolls eyes*  And I can think of nothing I would have hated more, as a happily solitary child in a contemplative mood, than to have my train of thought constantly interrupted by the relentless prattling of adults pointing things out to me, talking and singing about those things, "prompting" answers for me, babbling on and on, filling my mental space with their voices and their endless demands.  Parents, teachers, please, LET THESE CHILDREN THINK!!!  Let them dream, let them experience the world their way, do not assume their quiet time is time wasted!  *grrrrrrr*      
This is just mad. I was never made to do more "interesting" things, and if I was, I'm sure I would've hated every moment!

Whats strange, is this is the 2nd instance where I've heard an autistic spending their time on a swing. I remember when I used to swing on the one that was in our garden, I would swing sometimes for what felt like forever. It helped me a lot to calm down and think. Is this the case for Auties/Aspies then? Do we like movement from swings, etc to calm us and help us to imagine and dream?

Andy Kennett Wrote:
This is just mad. I was never made to do more "interesting" things, and if I was, I'm sure I would've hated every moment!

Whats strange, is this is the 2nd instance where I've heard an autistic spending their time on a swing. I remember when I used to swing on the one that was in our garden, I would swing sometimes for what felt like forever. It helped me a lot to calm down and think. Is this the case for Auties/Aspies then? Do we like movement from swings, etc to calm us and help us to imagine and dream?


i love swings,and i love spinning

I love swings (though I haven't been on one in years Sad ), and I love rocking!  Both have always helped me to think and dream, as Andy Kennett mentions.  And I LOVE quiet time alone, couldn't do without it.  Being forced to stay socially engaged all the time would feel to me like being forced to stay awake indefinitely, with similar effects upon my sanity.  If the author of the above ABA article is reading this thread, PLEASE rethink this siege mentality you think you need to bring to your work with autistic children.  How long could YOU endure being talked at every waking moment and never being allowed a private moment to think?!

silky Wrote:
...At that point they gestured, indicating the surrounding large room which was stacked with hundreds of bright toys of every description against every wall in large jumbled heaps...


That reminds me of when I read the thread about the Judge Rothenburg hellhole and then looked at all the nauseating rooms on its website.  Those were just little JPEG images and it was sickening.

I liked swings too when I was a kid, and yes you can do some serious dreaming in those.  Later on, I'd get the same satisfaction out of riding the bus in college, travelling by air, or riding "shotgun" on a road trip when everyone else in the car is quiet.  (Having my suspicions about people I've known, I think on a few occasions I've been on trips in which everyone in the car was an aspie.)

if I were that poor kid I would spend hours in the bathroom pretending to take a crap just to get them away from me. Or is that dead time too?! god that lady needs to be slapped for such idiotic ideas. An autie can probably be doing something more engaging just sitting there than an NT talking to someone. I mean whenever im not doing something in school like a worksheet im just day dreaming about my own magical world (magical as in it's really cool) making up dialog and story lines. I think thats more engaging than talking about what color someone's coat is.
This parent at least is not trying to slap or electric shock the autism out her child but what she is doing is almost as bad.
The reason I'm so good with expressing myself now is because I've had time to think all these things through over the years.

My "dead time" is filled with exploring new areas of my mind and creating new ideas.
I use it to make the details in my story too. If I were constantly being forced to be the center of attention I would never have made it as intricate and detailed as I have it so far, and I wouldn't have all my art looking as good as it does.

I'd probably still have the stick figures I made and since abandoned years ago.
Down time is not a bad thing.

I agree somewhat that the child should be stimulated by outside forces, but only to keep their minds obtaining new information and to fasilitate some social interaction. Never too much so that they feel they're being "grilled".

Always let them feel they can be themselves when they need, and feel that interaction can be "being themselves" as well.
my 'dead time' is during journeys,or when i am playing a game,i suppose,if dead time is time inn which i do not interact.

during journeys, i either just think, read or sleep.

garmonbozia Wrote:
...
I liked swings too when I was a kid, and yes you can do some serious dreaming in those...


I forgot to share a prime example with y'all.  I can remember being about 3 or 4 years old and on the swingset in the backyard.  (I'm 34 now, so for me that puts it in about the year 1976.  We lived in a row of duplexes next to a farm, so all the backyards put together made for a large space.)  It was mid- to late-afternoon and I was looking up into the blue of the sky.  I wondered if the blue just went on forever upward and in all horizontal directions.  I pondered the same about the land, if it just went on forever in all directions and if there was dirt and more dirt forever downward.  Credit to long-term memory.  I was thinking like that at age four.  A couple years later, I picked up an astronomy book and realized the blue sky and the earth didn't go on forever as a flat-earth, but that I was living on a spherical object and that the universe must be rather interesting in its entirety.

(Back on topic.)  Do you think I would have had a chance to ponder the earth and sky like that if there was somebody yapping in my ear the whole time?

garmonbozia Wrote:

garmonbozia Wrote:
...
I liked swings too when I was a kid, and yes you can do some serious dreaming in those...




(Back on topic.)  Do you think I would have had a chance to ponder the earth and sky like that if there was somebody yapping in my ear the whole time?


if you can shift your attention you cant

I value down-time as much as the stock market values platinum (right now, Pt is ultra valuable). If I don't get down-time, ( one hour minimum) I will start to be strung-out and basically become insane.

I wish NT society was less 'hustle-and-bustle' and people discover all of the benefits of having down-time. If more NTs did this, I think they would be amazed with how their quality of life would improve. We autistics/aspies could teach NTs a valuable lesson on the benefits of down time.

~CGK

CGKings317 Wrote:
I wish NT society was less 'hustle-and-bustle' and people discover all of the benefits of having down-time. If more NTs did this, I think they would be amazed with how their quality of life would improve. We autistics/aspies could teach NTs a valuable lesson on the benefits of down time.

~CGK


me too.  i observed this the past few weeks, as it seems like nt's are always rushing somewhere, cosuming every waking moment with something to do.  and they encourage kids to do the same in order to get to college, etc.  personally in high school, i was doing things almost every week, but it didn't fill up the whole time.  it was fun, and i also had my down time to do stuff i wanted to do.  i don't think i could do a life where i'm always running around with something to do.  i just want a simple life (compared to today's world), where i get some alone time each day and just relax for a bit.  i don't want to busyify myself with so many things i don't have room all the time, but enough so that i'm out and about, not confined to my space.

oh wait, we're supposed to be active all the time with interaction.  i would be taxed if i had to fill every waking moment with soical interaction, even for a day.  i would be taxed.

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