My 5 year old son was diagnosed with AS last summer. Until this point, I'd never heard of AS. Many children, I am finding, have been diagnosed with AS in my community and yet there are no support groups for the parents/family/friends. I know I could benefit and have decided to start a support group. The question is, what do I need to do to start one...
The best thing you could do is start a support group! i would advise you to perhaps ask your local church if you could use their rooms or a hall ( that way it will probably be free! ) and could just start off with perhaps a coffee morning! if you inform local schools they could pass the info onto parents for you - if you start small and get other parents involved you could then go on to raising money and organising better provisions in your local area for the children - hope thats been of some help - were abouts are you?