Hi all,
Just got an email back from the Autism Research Centre in Cambridge. I told them about the problem I had with my GP (won't refer me to anyone, doesn't think adults diagnosis is possible). They told me that they have just received charitable funding and can now assess adults for Asperger's for free. Furthermore, she recommended I ask my GP to refer me to them. Which I have.
Finally getting somewhere after banging my head against a brick wall for 6 months.
So, if anybody else is in the UK and in a similar position, you know what to do.....
Thankyou for that information. Is it true that you have to take one of your parents to the diagnosis?
A parent, a sibling or someone who knew you well during childhood. I just had the referal letter, after banging my head against the wall whilst they tried to label me as bi-polar, had a very bad experience but I'm almost on the way. See another GP do not let them do this to you. Its inhumane. I am seeking legal advice because I have been catatonic, into pychosis brought on by SSRI's, had genuine medical issues ignored - glue ear, audiotory processing problems, acute hyper sensitivity to noise. After two years of complaining about the later I have a referral for ENT and cannot leave the house or socialise much because of glue ear, I also have severe chronic sinitus, I have to wait until 27th March.
What is the address / telephone number / web-site ?
Yeah, what's the contact information? I have a Londoner on my forum who's banging her head against the wall, too, and could probably really use this.
Yeah, what's the contact information? I have a Londoner on my forum who's banging her head against the wall, too, and could probably really use this.
The weblink for the Cambridge autism research centre that has the Clinic for diagnosing adults with asperger's syndrome CLASS.
http://www.autismresearchcentre.com/arc/default.asp
For all those who have seen hope in Simon Baren-Cohen's clinic, note of caution they cannot assess without an informant who can give a reliable childhood history. However I contact I pychologist who found out some more information, one of the pychiatrists who works in the clinic does private assessments. You best ringing the NAT society for names of specialists. If you can get an informant for the clinic that the best way. I have had my questionaires and have filled them out, I am awaiting to see if they are going to other me as assessment. There is about a 3 month waiting list at the moment, due to christmas holidays, I think it will get a bit longer. This is a long drawn out process. I'd like to take part in their research if I obtain an official diagnosis, I think my case will be very interesting from a research point of view. Check out
http://news.bbc.co.uk/1/hi/sci/tech/635694.stm
This is the village where I grew up, my family had to move when I was 20 years old. I lived in the street of houses that were evacuated due to toxic waste seeping into the houses, I lived there until I was 8 years old, we moved to another part of the village. We ate veggies my dad grew from the garden, we breathed the air, I played on the barren fields unknowing that the toxic waste was underneath my feet.
Hi,
I hadn't heard about having to take an adult from my youth - that's going to be extremely difficult for me. Oh well.
I will wait to see what they write when they send a confirmation letter and post on here.
Andy, I am very interested to know how you get on. I would find it quite difficult to raise the issue with my mother but I think she would support me. I will wait to see what the Doctor recomends because she raised AS will me, I knew nothing about it. I understand the mechanics of anxiety and panic, but I'm struggling a bit with AS despite initially being 'excited' by it. I don't really remember being that different in childhood except very shy and reserved. In adulthood I work but I have not developed relationships and never left home. Its quite confusing, I need to understand it a bit more.
A parent, a sibling or someone who knew you well during childhood. I just had the referal letter, after banging my head against the wall whilst they tried to label me as bi-polar, had a very bad experience but I'm almost on the way. See another GP do not let them do this to you. Its inhumane. I am seeking legal advice because I have been catatonic, into pychosis brought on by SSRI's, had genuine medical issues ignored - glue ear, audiotory processing problems, acute hyper sensitivity to noise. After two years of complaining about the later I have a referral for ENT and cannot leave the house or socialise much because of glue ear, I also have severe chronic sinitus, I have to wait until 27th March.
Great i wish someone would label well not really i don't want anything but i think i may have bi polar 2 adhd and social anxiety or something rather then Asperger's
Are they collecting samples for genetic mapping or is it just a clinical diagnosis based on observations?
Its a clinical diagnosis based on questionaires and informal interviews. Its a specialist clinic for diagnosing adults within the Cambridge University Autism research centre. Its says in on the website that if you have a diagnosis you can apply to be a research subject. I know its contraversional but I would like to be a part of that. I am anti-cure, but I would like more understanding to help treat the real physical, neuroligical, gastro complaints and more understanding to stop adults slipping through the net. I had a fight to get the help I need and even after a diagnosis that is not really going to change that unless I fight for it and I will. I have a referral for a ENT that a start for my chronic sinitus and Glue Ear, I have a pychiatrist, but no OT, Social Worker or CPN. I see the dietician at my doctors surgery but she gone away, I want a referral for a dietician to check for food intolerances but as I am so far unofficially labelled as a mental hypocondriact by doctors and pychiatrists I will not be believed.
If you have an unsympathetic GP, then change your GP. I used to have a really crap GP who kept telling me she thought I didn't have AS.
I then changed to another GP (also because the previous GP messed up a referral for an operation for a different problem). My new GP was also initially sceptical and didn't think I had AS, but not in a 'I'm the doctor, I know best' kind of way. The new GP was prepared to engage with me and discuss the issues with me, about why I believed I had AS, and she made the referral for me, accepting that she wasn't a specialist and needed to see a specialist, even supporting me in getting approval from the PCT for an out of area referral.
Changing GP has made such a difference. I recently saw my notes from my old GP who had written to a psychiatrist suggesting that I might benefit from anti-psychotic medication (just because I had the audacity to disagree with her!).
My new GP is much more considerate and genuinely reflects on my opinion and takes it into account. It's made such a stark difference!
I might have been written off with a dangerously incorrect diagnosis if it wasn't for my current GP.
Its a clinical diagnosis based on questionaires and informal interviews. Its a specialist clinic for diagnosing adults within the Cambridge University Autism research centre. Its says in on the website that if you have a diagnosis you can apply to be a research subject. I know its contraversional but I would like to be a part of that. I am anti-cure, but I would like more understanding to help treat the real physical, neuroligical, gastro complaints and more understanding to stop adults slipping through the net. I had a fight to get the help I need and even after a diagnosis that is not really going to change that unless I fight for it and I will. I have a referral for a ENT that a start for my chronic sinitus and Glue Ear, I have a pychiatrist, but no OT, Social Worker or CPN. I see the dietician at my doctors surgery but she gone away, I want a referral for a dietician to check for food intolerances but as I am so far unofficially labelled as a mental hypocondriact by doctors and pychiatrists I will not be believed.