07-30-2007, 08:58 PM
Amy Wrote:
I think it's very appropiate.
That's exactly How I feel first thing in the morning!
I think it's very appropiate.
That's exactly How I feel first thing in the morning!
I'm sick of websites aiming their projects at families of aspies/auties rather than the aspies/auties themselves.
Autism speaks, for example, has no autistic people working for it!
When I was getting my Aspergers diagnosis the woman I was referred to annoyed me. I tell stories out loud to myself and this comes with an energy surge, so I usually end up walking or even jumping round my bedroom- more often than not with my ipod in.
Trouble is, this is usually at night, so my parents often get woken up.
The Doctor started talking to my parents and started on about boundaries, which are obviously needed, so I wouldn't have minded if she'd bothered asking
me why I did it - and if she had, then she would know it was a lifelong habit and coping mechanism that could not be switched off just like that. This would mean that whatever she reccomended, in whoever's favour, would have taken all the facts into consideration.
I totally agree with you! There seems to be some deal going on with defamation of character of people with AS and it comes to be approved by those at the top (otherwise they'd do something about it, right?)
I was born Autistic but didn't get a diagnosis until I was 35. I went to Uni, got married, had a family, then went back for a second degree - only because nobody's told me that I couldn't.
Then I get diagnosis of AS close in time with my oldest son getting the same diagnosis and suddenly my new GP asks me if I can tie shoe laces, wash myself and how did I cope with my first baby and was someone helping me? She spoke to me SLOWLY and patronised me and said things that she woudn't dare say to a "normal" person. Then I when I've made an official complained, she became hostile, shouted at me in her office, dismissed my medical condition as being "all in my head" (which was later diagnosed by a neurologist as epilepsy that he said I always had but became more pronounced during my second pregnancy), refused to prescribe my epilepsy meds on the basis that a GP can refuse a person with "mental health problems" and attempted to falcify information in my medical records. She stated that I have "profound deficiency in dealing with professionals" and now everyone in a practice gives me funny looks as though I'm crazy and may bite. All because she saw word Asperger's in my file!!! Of course, they closed ranks. Every time I go there because my babise are quite small and we need to go - I'm made to feel uncomfortable and people sometimes feel free to make derogatory comments about my "mental state" and "social problems" and "perception" issues, because I complained about that GP.
She also questioned I had AS because she said that the person who diagnosed me is "only a psychologist" and refused to include it in the reference letter for hospital neurologist implying I had a history of "being difficult" (the person who diagnosed me with AS is a clinical psychologist and a top specialist in Autism - I think GP just didn't want to inlclude his diagnosis because all the letters of recommendations he sent to the practice on how to treat a person with Asperger's implied that we're intelligent, honest and concerned with justice - the opposite of what she's tried to prove I was).
She was so bitchy and unpredictable that in the end I suspected I was threatening to her in some way. Particularly when I've told her that I'm as intelligent as she is so there was no need to patronise me and thinking that she'd accept me more I took a Mensa test and scored 155. But she didn't believe the letter from them was real and just rejected me completely.
I don't know what's the deal with straight NT females but they have been trying to make my life hell ever since I can remember. From the girls bullying me at school to being a grown woman - it's frustrating.
I feel much closer to males, especially AS males. I love being a woman but I do tend to agree that Autism is extreme mail brain because I do think like a man. But I'm straight as far as I know. I'm also a straight-shooter - I tell it how it is - and I don't accept social hierarchy - I believe everyone is equal and find sucking up really hard. Especially to people in authority who act insecure and bully. I don't defy them - I just don't accept unfairness and bitchiness (but it gets translated as "inability to work with professionals").
If anyone could shed some light on this - be my guest because I'm lost.
Roza