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Simen Wrote:
As everyone here is fond of reminding us, it can be a burden to carry in today's society. And would you be happy to find a website full of amateurs speculating that you were schizophrenic, psychotic, had Down's, dyslexia, or whatever?

Of course, the same doesn't apply to dead people. But in any case, it's mostly amateurs that have no qualifications to diagnose anyone, doing it on the basis of third-hand information, without ever observing the person or even speaking to someone who did, without ever going through the various methods used to assess whether someone really has AS. It's unprofessional, the claims are unjustified, and it's misleading.


I agree that it's unprofessional, but as long as we all agree that it's not professional diagnosis, and don't think of it as anything other than a fun game, I don't think it's a problem. I've seen some quite interesting discussions on the nature of Autism come out of these sorts of threads...

All this is just as long as we're not using the names outside these forums to justify debating points - that is counterproductive.

Well, as I said, I don't question that these people are excellent autism researchers, I don't question their ability to diagnose people, but I do question this far diagnosis. I don't think it's sufficient to look at written accounts or even video to diagnose someone. And, Archimedes and Newton?! They lived over 2000 years ago and four hundred years ago respectively! How in the flying F are you going to make an informed diagnosis based on that?!
Not intending to pick on you personally Smile

Paddy Wrote:
Hi All, I'm new to this forum. Do other Aspies, I wonder, ever dream of becoming Nobel Laureates by making great scientific discoveries, or is it just me?


Yes, I do. I'm constantly battling internally between the view that this makes me a sellout confirmist snob who wants to be great so as to achieve the benefits of greatness, and the view that this makes me noble for wanting to achieve good results or for enjoying the process of making or breaking good ideas. Probably, the answer is in between.

Paddy Wrote:
Jeeez, You're spot on, Simen. My first post and I come across as transparently shallow and boastful. Why am I such a prick?


You're not, and it wasn't my intention to portray you as such. Welcome to AFF. Your work sounds interesting, too Smile

Lili Marlene Wrote:
Simen, with regards the argument about whether schizophrenia could be mistaken for or AS or has some subtype similar to AS; I was rather surprised that the DSM criteria for schizophrenia are so liberal, but I still think any person who meets the FULL requirements for the diagnosis in the DSM should have something seriously wrong with them and should be insane or psychotic, in the strictest sense of the word.

So you think that a person, in order to fit the criteria, must also fit a criterion not in the official criteria? This reeks of special pleading. What I presented is the important part, nearly the full criteria; the other criteria do not state anything about being insane, psychosis, or anything like that, they simply restrict the number of additional/co-morbid diagnoses.

Go look it up if you like: the full criteria do not require insanity or psychosis.

Another thing is that you jumped all over me when I happened to mention mental health and autism in the same sentence, but you have no trouble saying that people with schizophrenia have something seriously wrong with them and are insane.

Just seems a bit inconsistent, being that schizophrenia, too, has a strong genetic component, and the neurotype that is predisposed to schizophrenia is very much integral to that person, just as much so as with autism.

Quote:
You keep complaining about amateurs diagnosing famous people with mental ailments. Does this really happen often? People love to gossip, but I don't know of any famous people who have been demonstrably incorrectly diagnosed in any well-publicized speculation.

What you need to look for is famous people who have demonstrably been correctly diagnosed in any well-publicized publication.

But anyway, I don't get your point. I see speculations about the mental health of celebrities everywhere. Online, in weekly gossip magazines, everywhere, and often with references to purported experts.

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I think you are deliberately ignoring the realities of public life when you complain about amateurs speculating about the minds of the famous. My big list is largely based on the writings of professors, some of them world-class AS experts, and other academics. It is also largely based on the writings of journalists. Journalism is not the same thing as the idle speculation of members of the general public (such as bored housewives etc). Journalism has some claim to represent the truth, and to seek the truth, and it's role is to probe and be nosy and to ask questions, directly to those concerned, and to other sources and witnesses. Journalism is regarded as a some kind of profession, and it has codes of conduct and standards. Journalists pry, and sometimes the famous are happy to reveal interesting things to journalists.


So, would you trust a proposal for a unified theory of physics from a journalist, on the grounds that "Journalists pry"?

If not, what is it that makes journalists qualified to be doctors and diagnosticians but not physicists? Do they not both require a long, extensive education?

When you mention that sometimes the famous are happy to reveal interesting things to journalists, of course, if they revealed a diagnosis I wouldn't have any trouble with it.

Quote:
You ask why one should respect the diagnosis of amateurs. There are two very good reasons why I respect amateur opinions about AS. Firstly, I repsect self-diagnosis, which is generally unqualified diagnosis. There is simply no person in the world who knows more about a person's mind and life history than the person who's mind it is. Parents can know about a person's history in early childhood, but parents can be biased and mistaken as well.


You're ignoring that there is also no one more biased than yourself. Self-diagnoses are notoriously unreliable in general. Not saying they're never right, just saying that they are unreliable. Often, they're wrong. Studies have shown time and again that people suck at evaluating themselves. Do you dispute this?

Further, I would have no trouble with the famous "coming out" about a self-diagnosis; or rather, I would urge people to be cautious as self-diagnoses can be unreliable, but I wouldn't mind anyone publicizing it.

But you're not talking about self-diagnoses. You're talking about the "expert diagnoses", from those very same experts you earlier sought to drag down from their pedestals, those same people you were so skeptical about earlier. And then there's the amateurs. They have every flaw the experts have, and the additional flaw that they aren't experts.

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Secondly, nothing can replace the insight and the amount and nuance of the observations of a person who has lived with another person for years. I will always know more about my spouse or child or parent than any clinician, who only gets to meet patients for minutes at a time in a clinical environment, could ever know. There is no way to compare those two different types of knowledge, they are completely different. You are so spectical about the idea of diagnosing the dead, while you are presumably happy to trust the decisions of the medical  profession, which is known (in Australia) for practicing what is called "5 minute medicine".


Exactly! Far-off diagnoses cannot possibly have this insight. Therefore, your own arguments show them to be unreliable.

You build a straw man when you bring up 5 minute medicine. Of course I don't trust that! Five minutes isn't enough for a correct diagnosis. But five minutes by an expert is often much better than hours with an amateur unqualified for the task. And it's a bit ironic that you bring up intimacy when you're trying to defend diagnosing people with whom it's impossible to have intimacy--long dead people, people on the other side of the planet whom you've never met!

Simen Wrote:
But five minutes by an expert is often much better than hours with an amateur unqualified for the task.


To expand/clarify on this. Let's return to the physics analogy. Who's more likely to get the right answer when asked to calculate, say, what would happen when two atoms interacted in a certain manner: an expert well-versed in the mathematics of quantum mechanics, or an amateur (journalist or not) who's only read pop-sci explanations?

And with regards to experts: who's more likely to get a correct answer when asked to diagnose someone: a practicing diagnostician with intimate knowledge of the person's health and having met and observed the person several times, having been able to run any questionnaires and tests he'd like, or an expert who had access to none of these things?

Simen Wrote:
To expand/clarify on this. Let's return to the physics analogy. Who's more likely to get the right answer when asked to calculate, say, what would happen when two atoms interacted in a certain manner: an expert well-versed in the mathematics of quantum mechanics, or an amateur (journalist or not) who's only read pop-sci explanations?

And with regards to experts: who's more likely to get a correct answer when asked to diagnose someone: a practicing diagnostician with intimate knowledge of the person's health and having met and observed the person several times, having been able to run any questionnaires and tests he'd like, or an expert who had access to none of these things?


False analogy - the true analogy would be this:

Who's more likely to get the right answer when asked to calculate, say, what would happen when two atoms interacted in a certain manner: an expert well-versed in the mathematics of quantum mechanics, or a person that has observed video footage, images, and other subtle associated effects of these particular two atoms for their entire life?

It's entirely possible for a person to see the statments written in the DSM, read the expanded and explained versions of these statements listed all over the internet, and apply them to their own life. It is much harder for a professional to do this, as they must make assumptions about the persons life based on very limited experience with the person (not to mention most professionals limited experience with aspergers - if I hadn't lived so near to Tony Attwoods specialist clinic, who knows what might have happened?). Also, there would be no real gain in a person pretending that they fit the DSM - thus, I usually trust a self-dxing person.

As to the diagnosing famous people, that I agree isn't usually very accurate. However, I don't really care - it's a fun parlor game, and should be considered as such.

Speaking of which, here's one I just discovered - David Byrne! (For those that don't know, he's the lead singer of Talking Heads).

I always suspected him of being aspie, and the thing that cinched the deal for me was that he actually stated at one point that he thought of himself as "borderline aspergers" (The exact quote being "I was a peculiar young man — borderline Asperger's, I would guess." - http://journal.davidbyrne.com/2006/04/41...tary_.html).

Besides which, how familiar a sentiment do these out-of-context words evoke?

You start a conversation you can't even finish it.
You're talkin' a lot, but you're not sayin' anything.
When I have nothing to say, my lips are sealed.
Say something once, why say it again?

EvilZakkie Wrote:

False analogy - the true analogy would be this:

Who's more likely to get the right answer when asked to calculate, say, what would happen when two atoms interacted in a certain manner: an expert well-versed in the mathematics of quantum mechanics, or a person that has observed video footage, images, and other subtle associated effects of these particular two atoms for their entire life?

The analogy wasn't meant to apply for self-diagnosis, but for far-diagnosis of celebrities. I see your point, though.

Quote:
It's entirely possible for a person to see the statments written in the DSM, read the expanded and explained versions of these statements listed all over the internet, and apply them to their own life. It is much harder for a professional to do this, as they must make assumptions about the persons life based on very limited experience with the person (not to mention most professionals limited experience with aspergers - if I hadn't lived so near to Tony Attwoods specialist clinic, who knows what might have happened?). Also, there would be no real gain in a person pretending that they fit the DSM - thus, I usually trust a self-dxing person.


I don't think anyone is pretending to fit any criteria. I just think they are often mistaken. I, too, trust self-diagnosing people, insofar as I believe their self-diagnoses are honest, and that they are absolutely convinced that they have the diagnose they self-dxed.

Quote:
As to the diagnosing famous people, that I agree isn't usually very accurate. However, I don't really care - it's a fun parlor game, and should be considered as such.


I get the feeling people are taking it more seriously than they should. If it's just a game and you acknowledge it, I have no trouble with that.

More likely to be famous? So far, I don't think anyone has said that, so there's no one for you to agree with. I'm having trouble seeing just why you might believe that. Care to elaborate?

Lili Marlene Wrote:
Simen wrote

"Another thing is that you jumped all over me when I happened to mention mental health and autism in the same sentence, but you have no trouble saying that people with schizophrenia have something seriously wrong with them and are insane.

Just seems a bit inconsistent, being that schizophrenia, too, has a strong genetic component, and the neurotype that is predisposed to schizophrenia is very much integral to that person, just as much so as with autism."

Where is the inconsistency? Mental retardation is often strongly genetically determined, but I don't think there's anything good about it at all. Some genotypes are @#$%ed, some are very valuable. Simple concept. Genuine schizoprenia isn't integral to a person's personality. One either has it or one does not. It has a definite onset of symptoms, and those symptoms can apparently be treated or may remit. People aren't born psychotic (as far as I know). I believe there is good evidence pointing towards vitamin D deficiency and virus infection as possible causes of schizophrenia, while I do not believe this is true of AS.

Isn't it obvious that there is a big, big, important difference between being insane (psychotic, schizophrenic) and being merely eccentric (AS)? I believe all insane, actively psychotic people belong in mental hospitals. I believe merely eccentric or unusual people deserve to live without harassment or negative labelling, as long as they can manage without imposing on others. There is no inconsistency in this. Just because I value AS as a way of being does not mean I have signed up to defend every conceivable form of human variation. I think there may be some fanatics who hold this position, but I am not one of them.


What is sane and what isn't is determined by society. Not too long ago being gay was being insane. Not too long ago, any form of mental or neurological variation was tantamount to insanity.

I agree about eccentric people, though.

Quote:
Simen wrote:

"Further, I would have no trouble with the famous "coming out" about a self-diagnosis; or rather, I would urge people to be cautious as self-diagnoses can be unreliable, but I wouldn't mind anyone publicizing it.

But you're not talking about self-diagnoses. You're talking about the "expert diagnoses", from those very same experts you earlier sought to drag down from their pedestals, those same people you were so skeptical about earlier. And then there's the amateurs. They have every flaw the experts have, and the additional flaw that they aren't experts."

If you'd bothered to actually read the references that support my list you'd see that most of the living people on that list are there because they have discussed their self-diagnosis witha journalist, or have discussed a professional diagnosis with a journalist, mentioned their childhood diagnosis to journalist, have described a typically autistic childhood and adulthood with two different journalists, or have had a biographer describe their childhood autism diagnosis in their published biography. Idle speculation by amateurs who do not know the person diagnosed,  or amateur diagnosis by hack journalists do not form the basis of any more than maybe a couple of the names in my huge list of 114 (soon to be 115) famous people. But why would you let the facts get in the way of a pompous rant?


Why do you even bother to defend idle amateur speculation if that's not what your list is about? You could've saved us both a lot of time by not writing things such as:

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I'll presume all I like Simen. I've been through a number of pregnancies and as well I've had plenty of dealings with the medical profession, and medical diagnostic errors happen more often than correct decisions. This is because many doctors work on the principle that the patient will just keep coming back if their first diagnosis and treatment is incorrect, and they are happy to keep bumbling on with trial and error till the patient stops complaining, either through death or healing. There is also plain sloppiness and blindness to details. One of our kids would very likely have been stillborn if not for the medical errors that my husband and I noticed.


(Following "As you can probably tell, I have no sense of awe at all for the supposed superiority of professional opinion compared to the opinions of well-read, objective, and educated amateurs" in a previous post. In context, I took this to mean you think amateurs are just as qualified, if not more qualified, to diagnose than professionals.)

And I stand by what I've said: amateurs aren't medical professionals, and they aren't qualified to act as if they are, either. Medical professionals are qualified, but they can't diagnose without having sufficient information. Dead people, celebrities they'd never met...It's speculation. From professionals, it's called "educated guessing". From amateurs, it's called "pure speculation."

Other than that, I won't repeat what I've said elsewhere. My position is stated in the quote in this post, and I agree with EvilZakkie on this, too.

Lili Marlene Wrote:
There's just nothing magical about the profession of psychiatry or medical doctors. The history of psychiatry is a sad joke.


That's true. We should be careful not to put too much faith in authority simply for being authority.

Rent the expanded version of "The Shining". In the special features section there is a video of Kubrick in action (a good 30 minutes) and I watched it recently and he didn't strike me as autistic or Aspie or anything.

PS The January issue of Vanity Fair has an article on British eccentrics....

I consider myself an NT eccentric in some ways myself.
Unsurprisingly, I agree with Batman55 on this one. I've never heard about Mary Lynn Rajskub, so I can't say anything about her, but for the others, I find it hard to imagine someone less likely to have AS.
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