Aspies For Freedom

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DM Andy Wrote:
I think that "consider it strange at best" sums up the whole discussion so far.  The NT world considers their way the best way and everything else is "abnormal".  But the only reason that my childhood was unhappy at all was because the NT world didn't want to accept my differences.  I am sorry if I appear defensive to you, but I've had enough of "why don't you just fit in?" pep talks to last me a lifetime.  


I totally agree with you.  I was talking to the Director where I work yesterday; we'd finished for the day and were just packing away a few toys, enrolment forms, etc and chatting.  (I trust her, so don't clam up like I tend to with some other of my colleagues.) She said that I communicate so well that if I hadn't told her about my dx she wouldn't have believed it.  She also said that maybe people shouldn't attach "labels" to each other as that only emphasizes differences.  I know she meant well, but it was difficult for me to get her to understand that I've learnt over the past 45 years to "pass NT"; but the effort required means that I'm not ever *me* in public, I'm just role-playing.  And the misery suffered in childhood/teenager/early adult years while I learnt to "pass" could have been so much more happy and profitable if others had just accepted that everyone has differences and let me get on with being me, rather than painfully learning to pretend.
Alison

GreenLion Wrote:
NTs need social interaction, warm feedback.  It hurts terribly when a child doesn't smile, doestn't coo and play, doesn't talk.


"NT's need..." Okay. But why can't we learn to coexist? Why do people think they have to change everyone into NT's?

I've cried over my parents. When I finally realized what has been going on my whole life, I cried for the very reasons you say. I thought about how hard it must've been for my mother to have a baby who didn't respond, or who cried, screamed, and pushed away from being cuddled.

But you know what? She learned to accept me and love me. When people stopped trying to force me to cuddle and socialize, I began to choose to. I'm sure not everyone does, but I did. Once I could feel like a loved person, instead of someone who does everything wrong, or a partial peson, I was inspired to continue growing and learning.

My parents never wanted me to change (maybe they did sometimes, deep down, when I was having tantrums, but they never ever let it show to me--the kids in this film of which we speak are SITTING RIGHT THERE hearing people say these horrible things about them), they just wanted to help me develop my strengths and cope with my weaknesses.

If being autistic is part of the person, and not a disease, then wishing for a cure is wishing that person to be someone other than who they are. That is wishing for the death of me, and for me to be replaced with someone who looks like me but acts "normal."

GreenLion Wrote:
I also apologize for hurting anyone's feelings by not openly stating at the outset that I sympathize deeply with anyone who has suffered as a result of autism, including autistic people who have had to endure cruel remarks or treatment from the outside world or even their own families.


When I suffer from cruel remarks or treatment from other people, I am suffering as a result of their cruelty, and not as a result of autism.

GreenLion Wrote:
However, it's well-established that autism is associated with genetic abnormality.


I'm pretty sure it's well established that autism is associated with a genetic difference. Some people in history thought that having brown eyes was associated with a genetic abnormality. When did biodiversity become something to fear?

I could quite easily take a video over a week with my preschool class and show: temper tantrums, food being thrown on the floor in a fit of pique, other children being hit/bitten/pushed, adults such as teachers and parents getting hit/kicked/screamed at, teachers being ignored (ie don't climb on the book case it will fall over...don't climb...CRASH!) full flat-out-on-the-floor spit the dummy type rages; in short, everything that was shown in that other video.  But apart from two kids in my class who are Aspie (and generally are better-behaved so long as they're *listened* to and their needs met!) the kids in the video would be all NTs!  My point is, *all* children act up at times, and all you need do to make a horror video is a bit of selective editing.  
Alison

GreenLion Wrote:
I am not connected to Autism Speaks in any sense.  But so what?  What if I were?   How does any of that make what I say more or less true?Truth exists independently of our personal circumstances and personal feelings about it.


Oh, I'm sorry, Greenlion!  I thought you were just giving us your personal feelings.  I had no idea they were the Truth. :roll:
Oh, well all us silly Aspies can stop attacking you now for sounding like a belligerent uneducated boorish troll!
Alison

GreenLion Wrote:
You should be the most fierce proponents ever for a cure for autism.


"Should" is a very loaded word. People should not tell other people how they should be.

Amy Wrote:
SOJAW said "If I understand correctly, most people on the autism spectrum would love to have a cure for their sensory sensitivities, most would like to be able to read facial expressions and body language as well as NT do, and most would welcome a pill that would instantly teach language and communication skills to children that are having trouble learning to speak. If I understand correctly, however, many of the people on this board see these problems as co-morbid conditions, rather than central aspects of autism.


Well you don't understand my perspective at least, it is way off. I can't say specifically for others.
If I changed my sensory sensitivities, it would affect how I perceive everything.
Your fingertips are sensitive, would you want them to become coarse so that you couldn't feel things the same way? They would feel pain less, but you would not enjoy touching things.
I can read facial expressions of my husband and son who are on the spectrum. I cannot read them/have great trouble with NTs.
I can detect autistic facial expressions where NTs can't. I never want to lose that, just because we are in a minority.
I assume that you do not think that NTs need a cure to be able to read autistic faces and body language.


Well said, as was the other stuff you said that I've deleted from the quote, because the sensory sensitivity issue was the one I was wanting to address. As well as it simply being the way I percieve the world (loved the fingertip example), my sensitivities have advantages. Some quick examples would be if someone dropped a sewing needle on the carpet, I'd be most likely to see the light reflecting off of it and be the first to find it. Or, at work, when I'm in the back of the store sweeping, I can hear someone come in, even if they were very queit and go greet them. Or, I can hear changes in the sounds the fridges or computers make and know that something isn't working properly. I'll admit that it IS annoying to have extreme anxiety, sometimes to the point of meltdown, because of certain sounds, but I think it'd be more accurate to say I'd like to find a way of coping with that. I would not want my perceptions altered.

Alison Wrote:

GreenLion Wrote:
I am not connected to Autism Speaks in any sense.  But so what?  What if I were?   How does any of that make what I say more or less true?Truth exists independently of our personal circumstances and personal feelings about it.


Oh, I'm sorry, Greenlion!  I thought you were just giving us your personal feelings.  I had no idea they were the Truth. :roll:
Oh, well all us silly Aspies can stop attacking you now for sounding like a belligerent uneducated boorish troll!
Alison


Some philosophy education should make it clear that "truth" may or may not actually exist. But, that's pointless to the discussion at hand.

GreenLion Wrote:

ConLang Wrote:

GreenLion Wrote:
I'm curious as to why any of that makes a difference.  Truth is truth, and falsehood false, regardless of who says it.


You are not going to have the truth if you never come into contact with it.  That is why it matters.


If you are right, then personal experience is the only way to know something.  Then language, the ability to communicate abstract and concrete realities via speech and writing, is pointless.  Recording technology should be discarded.

We shouldn't bother going to school, or watching or reading nonfiction, or talking to friends and others.


Am I the only one confused by this? Couldn't you come into contact with "the truth" by all of those things you mention discarding? I don't see how your response follows from what was said.

GreenLion Wrote:
I don't enjoy provoking or upsetting others.  I do value and even enjoy vigorous and spirited debate among intelligent and caring people who strongly disagree.  I came across the video and heard of Aspies for Freedom, as another earlier poster here did, as a result of a Wikipedia article.  While I knew of certain elements of the disabled community growing more militant and adopting identity politics, I was shocked at the idea that there would be a community that would actually attack the mothers of autistic children who were sharing their stories in hopes of inspiring efforts at a cure.  In fact, I was angry.  I visited Aspies for Freedom and read the thread on it.  I calmed down, but still wanted to impress upon the people here how strange it was to me that there was not an ounce of expressed compassion for these mothers until I challenged you to express it.


It shocks and angers me that people are so concerned with "curing" people like me, instead of promoting understanding, acceptance, tolerance, and being able to co-exist. It frightens me that people are frightened by diversity simply because someone acts and thinks in a way they don't understand. Many people act and think in ways that I don't understand, but I try to open a dialogue with them so we can at least try to see where each other is coming from (even if we don't ever end up aggreeing). I never think there is something wrong with them for their thoughts, opinions, and behaviours (although that might be from society convincing me at a very young age that there isn't anything wrong with the people that confuse me, but there is something wrong with me).

As for expressing not expressing compassion for those mothers (why no fathers?) until challenged to do so, I didn't really read much of the original thread you refer to, and I did, in this thread, express compassion for at least my own parents. Not because I was challenged, but because I was reading this conversation and not that one. However, you neglected to acknowledge my earlier posts...

To bring up an issue from the first few pages, you kept denying the comparison to racism (and did you deny a comparison to homosexuality? I can't remember.), but you've never explained why such comparisons are simply false. When other people brought them into discussions, you kept saying something like you've already addressed that issue, but you didn't actually explain how it was irrelevant (unless you did, and I miss it. In which case, I apologize).

Pikhq Wrote:

Quote:
If we marry as soon as possible and concieve immediately, our first child would be born when she is 35, the "magic age" at which risk factors for conditions such as autism begin to rise dramatically. She is also overweight, another substantial risk factor.


Neither of those are risk factors; you see, autism is caused by genetics. Neither age nor weight are likely to change the genetic makeup of any offspring. If you don't believe me, just go back to high school biology, and review meiosis.


Actually, if problems occurring during meiosis is the reason for the increased risk of Down's Syndromw with increased age of the eggs, then couldn't it be a risk factor for autism? Probably not if autism is like eye colour, but...anyway, just thinking out loud.

GreenLion Wrote:
For the 68,000th time, separate yourself from the remarks I make about autism.  Autism is a burden on society.  Don't personalize that and take it as an insult, that's pointless.


It's actually pretty hard not to personalize it coming from our perspective that autism is not a disease.

A= I am autistic and it is a part of who I am
B= Autism is a burden on society

A+B= I am a burden on society

Vespers Wrote:
Well said, WatsonSword.


I wanted to reply to the example of the autistic in church stomping his feet and such. I think it was an adult not a child, but egardless WatsonSword said it much better than I would've. My response was going to be "well, maybe his parents shouldn't force him to go to church."

---I apologize for my multiple posts and bringing up older stuff from the discussion. I was away for a week or so, and replied as I caught up.

Vespers: I don't know why I said it was pointless. I think I felt insecure about speaking up.

violet_yoshi: I'm sorry to hear about your experiences. I could be out of place here, but I think M actually meant that there must be something wrong with the therapy and/or therapist, not that there is something wrong with the child.
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