Aspies For Freedom

Full Version: Debate with a curebie
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Hello, GreenLion. I am new here, so you probably haven't seen any of my posts before. Before I say what I want to say, let me tell you that I am not angry. Perplexed, yes--because you and others seem to be talking at cross-purposes to one another, and because many people's emotions seem to be running away with their reason. But not angry.

You say,

GreenLion Wrote:
But you can't and won't guilt or intimidate me into denying reality and pretending that falsehood is true by threats that you'll call me un-empathetic.

Facts and reality exist independently of our most intense emotions and desires, and refuse to be held hostage by them.  


Although this statement is not self-evident, you assert it without proof.  Facts themselves may indeed exist independently of our thoughts about them (there is much philosophical and religious debate on this point)--but all we have access to are our own thoughts. When I look at this computer screen, for instance, what I see is not that screen, but a picture of it in my mind. That picture may evoke many emotions, which color my supposedly "objective" perception right from the start.

It seems as though your belief that we can access "reality" itself has led you to the further assumption that you, personally, have done so, and thus that what you believe is the truth. Others in this argument may share this assumption, believing that they have the "truth" rather than you. So, you and many of your interlocutors assert your/ther points rather than proving them. Yet, if we substitute repetition for reasoned debate, we won't get anywhere. Indeed, you and a whole lot of people in this thread seem hurt and frustrated by this conversation.

If I may, I find a quote from the Japanese Tale of the Heike particularly apt here:

"All men have minds, and each mind has its own way of looking at things. It may seem that someone else is right and we are wrong; it may seem that we are right and someone else is wrong.  But who can lay down a strict view for telling right from wrong? There are wisdom and folly on both sides of a question; we can no more separate the two than we can identify the ends of a ring. If someone shows anger against you, ask yourself whether you may not be at fault."

Finally, I am intrigued by your user name. Are you connected in any way with Green Lion Press? Are you connected to St. John's College/ do you live in Santa Fe, NM? I got my BA at St. John's and am currently purtuing their MA in Eastern Classics. We may have met.

Well said, WatsonSword.

crys Wrote:

Alison Wrote:

GreenLion Wrote:
I am not connected to Autism Speaks in any sense.  But so what?  What if I were?   How does any of that make what I say more or less true?Truth exists independently of our personal circumstances and personal feelings about it.


Oh, I'm sorry, Greenlion!  I thought you were just giving us your personal feelings.  I had no idea they were the Truth. :roll:
Oh, well all us silly Aspies can stop attacking you now for sounding like a belligerent uneducated boorish troll!
Alison


Some philosophy education should make it clear that "truth" may or may not actually exist. But, that's pointless to the discussion at hand.


I don't think that question is pointless, for GreenLion can only argue so vehemently and with such apparent resistance to compromise, from the basic assumption that truth exists, that we are capable of apprehending it--and that he has found the truth of this debate, and we are ignorant of it.

crys Wrote:
Vespers: I don't know why I said it was pointless. I think I felt insecure about speaking up.


That's cool. I feel insecure here often as well. You make pretty good points all around; I just hope GreenLion comes back to listen to us. (Especially if he actually lives in my hometown, as I suspect he might. If we sit down and have coffee with each other, he might see that people like us aren't as anguished as he thinks we are. He might be less afraid then {for his hypothetical children}, which might make him less angry, and less iron-clad.)

And calling for punishing a child for wishing that he sister were not autistic just leaves me speechless.
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well if a autistic child said they wished they didn't have a NT sister you would expect the autistic child to be punished. the reason this child should have been punished is because that is bigotry plain and simple no way of getting around it childre shouldn't be allowed to get away with it would think it fine. if this girl also said she said she wished that black people didn't exist would you punish her because what she would be saying is the same message as what she did say which was basically I HATE AUTISTICS.

also if you really like the idea of a cure and think that we are being selfish by apposing a cure think about this these pro-cure groups want to eradicate ALL autism not just the severe aspergers included without any of us getting a say in the matter at all.

Alison Wrote:

Ryuujin Wrote:
Autistics do seem to feel love and emotions differently to non autistics (They do have them, make no mistake), a lot of these mothers seem to want some kind of "love" from their kids, which I (And seemingly many other autistics) have little comprehension of, but neither can we understand why NT's get so worked up about the lack of it, being quite happy without it themselves.


I think NT parents want a child to run up to them, give them big sloppy hugs and kisses and generally otherwise tell them "I love you Mummy/daddy."  
Whereas speaking personally I know I love, I love my parents, sisters, husband and daughter.  But I show them I love them by doing things for them or just by being there for them.  I get uncomfortable verbalising my emotions, and anyway the NEED to keep telling them something they should know by the fact that I am still here with them just doesn't often occur to me.  I asked my mother the other day if she minded that I don't like the physical contact of hugging and kissing and she looked surprised and said that no, I'd always been like that, even as a child, and that's just the way I am; she said it would feel odd if I suddenly came over all cuddly and mushy.  Acceptance like that from an NT is priceless.
Alison


I understand this. My sister asks me "Do you love me?"(she looks hurt when she asks this, as if she believes I don't love her) Just because I don't say it whenever I see her doesn't mean that I don't love her.  I look at her for a while and say "yes." it always surprises me when she asks this, as if I've never done things for her, or tried to be the best big sister I can be to her. Personally, this hurts my feelings when she asks this, I sit there and think, "Why does she keep asking me this? Why should I have to tell her I love her all the time? Actions speak louder than words." I get confused because I'm unsure how to show her that I love her, I thought that she already knew that. hmm....I'm confused (How do I show her that I love her more than doing things for her? Can someone answer this?)

Ultra Magnus Wrote:
Yes, knowledge is a key word here. Knowledge on asd's: accepting their existence and learning what they are. But that begins with accepting (neuro)diversity as a whole, rather seeing the threat first in things unknown to you. Cause, hey, it may lead you to seeing things in another perspective and on top of that save you from doing harmful deeds to anyone or anything that actually weren't necessary.



This has been key for us. My skills as a parent were inadequate to provide the best childhood for my AS son. He didn't need to change, *I* needed to learn. I have no doubts at all that were my parents parenting my son 30-something years ago, their response to his behaviors/personality would have been to physically and metnally dominate him - to the point of "breaking" him if necessary. They would have accepted nothing less than compliance to their ideas of "normal". Lukily for them, they had 3 compliant, NT children. But their ideas and methods would have been an unmitigated disaster were they to have had a child like my son.

Having an AS child does not turn parents into selfless saints. I have no doubt that my parents ideas and approaches to raising children are alive and well today.  

SOJAW
[/quote]
To put the question another way:  what if I were to forget the labels "NT" and "autistic" and simply say that I will do my best to help any child I have to improve in areas where he or she is weak?
[/quote]

I agree with your POV to a great extent, but for me, my parenting philosophy is a little more hands-off and my threshold for "intervening" (for any of my kids) is really basic needs. Physical needs. Stress. Sleep. Apetite. Health. When those factors are affected, then I think "something" needs to be done to improve my child's health.   Finding the cause of the problem and learning ways to address them are life-long skills that my AS son will need. He doesn't "need" to interact better socially. But he *needs* to be able to sleep, and to not have stomach aches from stress, etc. If social interaction is the source of the problems, then we will address them - for the impact on my child and not for the sake of social skills alone.    
I think GreenLion needs to spend less time at NT dominated sites such as Autism Speaks. He is here to talk with us. That is a great start.
Where to start?

1. There is an attitude with some parents that having a child on the spectrum is somehow toxic or disasterous, and the trouble is that they let this define their entire relationship.

2. All kids need to know that even if they never throw their arms around their parents' necks and say "I love you" that they are loved and appreciated for who they are. This doesn't mean not challenging them to be the best people they can be. It just means that no matter what, their self-confidence needs to be nurtured.

3. There has been so much focus on families sometimes that it is really little wonder that people are reacting against that.
I think it's harder to parent many NT kids than many autistic kids. NT kids are vulnerable, because of their need for social contact and approval, to many things--peer pressure among the greatest of them. It really depends on the individual child.

I drove my mom pretty crazy as a kid; but I think, had I been neurotypical, my strong will would have caused a similar level of trouble for her. I would probably have been a more classical "rebellious teenager", rather than (as I did) having tantrums and trying to control my world (which of course included her). She still blames my autism on my "dramatic personality", refusing to believe it might be genetic.

GreenLion Wrote:
While I sympathize strongly with people who have been bullied, or who have heard painful things said to them or about them, I have heard not a scrap of sympathy for the people in this film and what the anguish that they have had to go through.


Why feel sympathy for somebody who talks about how much of a burden their innocent three year old child is to them, how much they cost, how they're never going to be good enough an how they wish they could kill them. If these parents were genuinely stressed and confused (as it must be trying to raise a kid with different neurological wiring to you) but didn't badmouth or undermine their children or play the pity card then I might feel sympathy for them.

Quote:
Mostly what I've seen instead, again is, total self-absorption, and ludicrous attempts to impart the worst possible motives for both the producers of the film, and of the people who share their feelings in it.


Do you not think the parents who were sobbing to the camera because their child wasn't going to be in a school sports team were self-absorbed and ignorant? How about te parents that blatantly said- IN FRONT OF THEIR AUTISTIC KIDS- That autistics shouldn't exist, and that it woud be a happy day when technology was found to wipe them out.

Quote:
One thing this film tries to do is break through that, to convey the reality that autism in a family extracts an ENORMOUS cost on everyone else in it.


It doesn't have to. Half the expensive therapies parents remortgage the house to have are unnecessary. In fact I believe the intensive stuff is downright cruel. Autistic children are still children, and should be allowed to have a childhood.

Most of the problem comes from parents who are obsessed with making their children normal. Wouldn't they be better off teaching their kids to be proud of who they are? Also autistic people often adapt to society on their own, in their own time.

And the parents in the film kept forcing their young kids to do things they didn't want to do for long periods of time- and then wondered why they got distracted or whiny. They blamed the autism.
Autism isn't the cause. I challenge you to get ANY toddler to sit down and do a jigsaw with you when they'd rather be doing something else.

Quote:
And the motive is NOT to make people with autism feel bad about themselves, but to impart a sense of urgency in researchers, donors, policymakers, and the general public about finding such a cure.


Most people on this site are against a cure for autism, so that argument just isn't going to hold any water. Why would we see your point of view if it's supporting a cause we don't agree with?

Quote:
Bizarre paranoia about mass-abortion plots does not reflect well on those who engage in it.


I agree that some people on here do panic a bit over this, but don't dismiss it. Many people are progressively working towards something that many of us see as genocide against us. Why wouldn't at least a few of us be worried?

Quote:
NTs need social interaction, warm feedback.  It hurts terribly when a child doesn't smile, doestn't coo and play, doesn't talk.  It hurts terribly when the high hopes that one had for a child are replaced with the grim realization that to get to the same place will require a mountain of effort. That's NOT "bigotry" or "ignorance" - it's an expression of a completely understandable pain at experiencing cruelly dashed expectations.


I understand that it must be strange, but bear in mind that it doesn't mean your child doesn't love you- they're just not that good at showing it. Try and work out alternative methods of communication- get into your child's mndset as best as possible.
The best way to get around the dashed expectations thing is to not have expectations for your child in the first place! It isn't fair on any child- autistic or otherwise- to feel that they have to live up to goals their parents set them when they were babies, and feel like failures if they don't.

You sound like you think a parents is well within their rights to think that their autistic toddler isn't good enough becasue they're unlikely to be in a sports team/may need to go in special ed/Stim.
A young autistic child may not be what you expected, but they haven't done anyhing wrong! They aren't being autistic just to spite you! It is unfair to traet them with contempt just because they didn't come who you'd expected them to. Children aren't dolls, after all!

Quote:
And calling for punishing a child for wishing that he sister were not autistic just leaves me speechless.


As other posters have said, replace 'autistic' with 'gay' or 'ginger' or 'left-handed' and you'll see where the problem is.

I do think punishing the child is a bit harsh though- she'd only young and probably wonders why her sister doesn't want to play with her. She just needs to be sat down and taught that there is nothing wrong with her sister, and get given ideas on how she can spend some time with her.

And another thing I forgot to add: (This forum needs an edit button- really) There is nothing wrong with using the phrases 'autistic kids', 'autistics', 'aspies' etc. We know that it doesn't completely define us- but it is a feature and gets treated as such.

If you have blonde hair, you don't say 'I have blonde hair' 'They have blonde hair', do you? You say 'I'm blonde' or 'They're blonde.' Of course you aren't saying this because your hair colour completely defines you as a person, you say this because that's how people normally talk about their traits.

Breeze Wrote:
Well coming from a mom of both a NT and an ASD child I don't see why sympathy is needed.  I dont need sympathy from anyone I love both my boys as is. I am often asked which of my boys is more "difficult" to raise and I say they are both the same.  They both have their good and bad things.  My son on the spectrum does not have Aspergers he is more affected and is nonverbal for the most part. I will tell you that he does love me . He kisses me and he hugs me and occasionally he'll say "I love you". I dont need to hear it all the time (My husband and I are NT).  I know my kids love me they dont have to say it all the time.
I will say I saw a disturbing Youtube video about vaccines and autism and it said "Autism is a hell some parents now have to live with". My first thought was my life is not a hell. I love my son why would they say my life is a hell. I dont feel that way. I love both my boys just as they are and would change NOTHING about either one of them. If I did change something they wouldnt be themselves, now would they?


Wow. Thanks for that story, Breeze. Big Grin

Gareth Wrote:
Funny enough, I have a few memories of exactly that. I also found out later from my dentist that the way my parents taught me to brush (back and forward until your gums hurt) is extremely damaging. Nice.


yeah well it probably grinds your teeth down to stumps by the time you're thirty something, eh.

Then again, all parents have been known to make mistakes.

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