Aspies For Freedom

Full Version: JRC: "A question of 'tough love' vs. torture"
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I feel sick. What the hell is going on that people find this acceptable?

Sick sick sick. The place needs shutting down and burning.
Massachusetts officials tried to close the school in 1985 after a student with autism died while being forced to listen to loud static through a helmet.

And doctors concluded the death was caused by the student's neurological disorder.


How is autism possibly fatal? And why would such a death occur coincidentally with being tortured?


currently half the students, including 77 from New York, wear electrodes so that teachers can shock them.

That is a lot higher than people have been led to believe.

The debate over the private residential school -- which costs local school districts and states more than $200,000 per student each year

I can see where the motivation is coming from to run this evil place, pure greed, at the expense of kids who need real help, not torture.

Spartichino now believes the electrodes, called ''gradual decelerator devices," turned her away from ''suicidal gestures" like banging her head until she was black and blue.

Small autistics kids, and NT toddlers can head bang badly, they would not be allowed to be given electric shocks.

That is a good article, that place really needs to be closed down. :cry:
It amazes me that the JRC hasn't been shut down by now. The very thought that such a place could exist...ugh.
As I read this (crying) it makes me wish I could place those electrodes very stratigically on the teachers, turn it on and walk away. :evil:
Don't they do this kind of thing in concentration camps. How can this kind of thing go on in a supposedly civilised society?  :mad:
I have thought every time I had heard of this place if it was in europe I would write letters, beg, harrass and otherwise presurise the european court of human rights to seek an investigation into the matter of the use of tourture tactics on persons the use of disbility as supposed valid grounds for such tourture as the use of tourture and prejudice against disibility would almost certainly have got their attention in time.

Does the US not have a similar court of human rights or something where people could file complaints allong with law makers and other political persons and appropriate agencies.

I also think it is worth pointing out here that should this have been a jail or other place where persons were held in custody Amnesty International would have come down on that place like a ton of bricks and some.
against aversives:

http://www.petitiononline.com/NYs6876/petition.html

if anyone knows of any other action sites, please mention!!
_______________

Please read all of this very important email, and then circulate far
and wide if you agree with it's purpose. It was written by a man
with AS who has a sister and a son with Autism.

(It's also cross posted for those of you who belong to other
forums).

At this time, they have not allowed JRC to open a center in
California, nor has the state paid for any children to be sent to
his centers for training, although there have been petitions from
parents and schools in San Diego - but if this law passes, it may be
where our children go for treatment if they have behavioral
problems.

Keep in mind, as well, that he is running group homes. My oldest son
is in a group home and I certainly do fear this happening to him
when I am gone.

Thank you - Sue

The purpose of this email is to inform concerned individuals about a
judicially protected facility that is blatantly violating the basic
human rights of severely challenged or disabled individuals.  Many
of the residents of the Judge Rotenberg Educational Center (
http://www.judgerc.org ) are people with Autism, some of whom are
non-verbal.

The Judge Rotenberg Center's main location and administrative
offices are located in Canton, Massachusetts, and it's 50 other
residential homes are located in several cities in Massachusetts.
The director of the JRC, Matthew Israel, is a devout student of the
late B.F. Skinner, a psychologist who was a strong proponent of
behaviorism, who formed many of his beliefs from experiments with
animals (from:
http://www.infoplease.com/biography/var/bfskinner.html)

The JRC uses level III aversive techniques to alter or suppress self
abusive behaviors or any other behaviors that staff members deem as
uncooperative or unfavorable.  Aversives used at the JRC, which was
formerly known as the Behavior Research Institute (BRI), include:
spanking, pinching, forcing to eat taste aversives (vinegar mix,
jalapeno peppers, or hot sauce), withholding food, forcing to smell
ammonia, spraying water to the face, forcing to listen to static
noises through specially designed helmets, and their trade mark
method, the use of the Graduated Electronic Decelerator (GED), which
simply put is a shocking device that delivers a jolt to the
student/patient of up to 65 volts of electricity through remote
control.  These aversives are sometimes administered while the
patient has their hands and feet restrained.

Two deaths at the Center raise serious questions regarding their
methods.
   On December 19, 1990, Linda Cornelison, a patient who was mentally
*** and non-verbal, died of causes related to stomach
perforations and
ulcers.  The Center failed to properly diagnose these apparently pre-
existing conditions, and failed to provide an appropriate diet and
treatment.
When symptoms occurred that should have provided an opportunity for
further examination, the JRC instead opted to punish her with a
plethora of aversive treatments, including 61 which were
administered on the very day of her death.  Linda, who had weighed
120 pounds when she began the Center's food program, weighed just 90
pounds at the time of her death, which was less than one year
later.  (Please see: http://normemma.com/lcorneli.htm )

On the 23rd of July, 1985, Vincent Milletich, a 22 year old student
with Autism, died at the JRC's (Then Behavior Research Institute)
group home in
Seehonk, Mass.  According to a New York Times article, "he (Vincent)
had been shackled, fitted with a helmet and forced to listen to
static noise
through earphones.  The Rhode Island medical examiner who performed
an autopsy on Mr. Milletich said the victim died of asphyxiation but
said it
was not known what cut off his oxygen supply."  The article goes on
to say, "Judge Ryan said Mr. Israel ''was negligent in authorizing
the use of this
helmet without having an expert in helmet construction design the
helmet or subject it to a safety inspection.''
   (http://query.nytimes.com/gst/fullpage.html?
sec=health&res=9B0DE0D7153BF93BA35752C0A961948260 )

On page 25 of Dick Sobsey's book, "Violence and Abuse in the Lives
of People with Disabilities: The End of Silent Acceptance?" Paul H
Brookes Pub. Co. (January 1994), the writer reveals, "Vincent
Milletich died after BRI workers `pushed his head between his legs,
cuffed his hands behind his back, put a helmet on his head with
radio static hissing into his ears and masked his face. He went limp
and was declared dead on arrival minutes later at Rhode Island
Hospital in Providence.'  The paragraph from the book goes on to say
that the courts found "no evidence of a link between the school's
treatment and Milletich's death."

According to Director Matthew Israel's own words, posted on JRC's
Website, "The cause of death (Vincent's) was ultimately determined
to be natural
causes related to his condition of tardive dyskinesia and not due to
the restraint procedure that had been employed."  The website for
the National
Institute of Neurological Disorders and Stroke (NINDS) does not
indicate any prognosis that would lead to death, or any symptoms
that should lead to
death.  Their website clearly describes the following common
symptoms: "grimacing, tongue protrusion, lip smacking, puckering and
pursing, and
rapid eye blinking. Rapid movements of the arms, legs, and trunk may
also occur. Involuntary movements of the fingers may appear as
though the
patient is playing an invisible guitar or piano." (see:
http://www.ninds.nih.gov/disorders/tardi..._is_the_pr
ognosis)
Is it possible that the JRC determined that these medical symptoms
of tardive dyskinesia were unacceptable, and they therefore deemed
it necessary to employ the use of their aversives?

It should also be known that the Center imposes a diet upon it's
student population that is high in wheat and other grains that have
high gluten (a protein) content.  Many parents and experts will very
quickly point out that gluten, and also casein (a dairy protein)
cannot be properly digested by some people with Autism.  The result
of eating such foods will often lead to hyper, uncooperative, or
confused behaviors.  The demonstration of such behaviors would
undoubtedly lead to aversive treatments being applied to the
students, yet the Center's, and Dr. Israel's philosophy is not
concerned with the cause of behaviors, only the cessation of them.

Many foes have arisen to oppose Dr. Israel's continued use of level
III aversive treatments.  The Massachusetts Office for Children
failed to stop him in 1985.  Since 1986, the Massachusetts
legislature has been unable to ban their usage.  Throughout most of
the 1990's the Massachusetts Department of Mental Retardation was
also unable to stop the aversives.

The courts have continuously favored the Center.  Matt Israel's
cause is also supported by a troop of parents who will always favor
keeping their children's behavior subdued, rather than seeking out
treatments that focus upon identifying the causes and meeting
developmental and other needs.

In 1994 Eye to Eye with Connie Chung attempted to expose the JRC,
but Connie may have found Dr. Israel to be far more clever than she
was prepared for.  Please click on the following link for more
details: http://query.nytimes.com/gst/fullpage.html?
res=9805E4D7103DF933A15750C0A962958260&sec=&pagewanted=all

Currently, New York  Senator Martin J. Golden has introduced Senate
Bill 6876, which if approved by vote, will prevent New York schools
from sending
students to the Judge Rotenberg Center.  If you live in the state of
New York please email, phone or write your local state senator and
plead with them to pass this bill.  Here is a link to the text of
the bill:
http://assembly.state.ny.us/leg/?bn=S06876&sh=t

This link will allow you to track the progress of the bill:
http://assembly.state.ny.us/leg/?bn=S06876

You will find email addresses for New York Senators at this link:
http://www.senate.state.ny.us/Senatorbio...mberEmail?
openform

Here is a link for contacting lower house members by email:
http://assembly.state.ny.us/mem/

If you are not a New York resident, it may still be worthwhile to
email your concerns.  You may also want to investigate whether your
state is sending children to the JRC.  If so, please contact them
and remind them that the aversive therapies used by the JRC violate
the Individuals with Disabilities Education Act, which requires an
extensive focus on positive behavioral interventions.  Please
contact the Federal Department of Education with any complaints
through this link:
http://www.ed.gov/about/offices/list/oig...tml?src=ct

It may also be helpful to contact the Food and Drug Administration
(FDA) and request a re-evaluation of their approval of the Graduated
Electronic Decelerator (Shock Device), which is manufactured by the
Judge Rotenberg Education Center, Inc.  It's registration number is:
1222743, and it is classified as an "Aversive Conditioning Device,
FDA regulation number: 882.5235.  Please inform them that this
device is being used on individuals with severe forms of Autism who
may be completely unable to associate the reason for the pain
(shock) with their behavior.  They may also suffer from sensory
related issues that increase their pain level far beyond what a
typical person may experience.  Even the aversive shock testing that
Dr. Ivar Lovaas  performed on people with Autism did not reveal any
lasting learned benefit.  This fact alone should clearly reveal that
the GED is not a suitable "conditioning device," since it's effect
is quickly lost once the device is no longer employed.  This reality
makes it evident that the so called "conditioning device" has become
an ongoing cattle prod or dog collar, which produces only pain, with
no educational benefit.  There are other non-invasive treatments
that are proven to have long term benefits.
  Please email the USFDA Center for Devices and Radiological Health
at this link: mailto:dsmica@... , or write to them at:
FDA/CDRH/OCER/DSMICA (HFZ-220)
1350 Piccard Drive
Rockville, MD 20850-4307 U.S.A
Phone: 1-800-638-2041 or 301.443.6597

Be sure to specify the GED's registration number. In conclusion, I
want it to be known that this message was originally written by a
person who has Asperger's Syndrome (A milder form of Autism).

My sister is severely effected by symptoms related to Autism, and
has been in institutions for 38 years of her life.  I have
personally seen many cases of self abusive behavior within the
hallways of these institutions.

With all that I know, and all that I have seen and felt, I would
never end my sister to such a place as the Judge Rotenberg Education
Center.

My little boy is also diagnosed with Autism.  He is the most
beautiful and innocent person in the world to me.  The idea of
someone purposefully shocking him under the guise of medical care
infuriates me.  Please read, hear and feel my words as being alive
and full of empathy for my fellow friends who live with Autism.
Yes!  It is possible for a person with Autism to have empathy!

crna_kuna Wrote:
against aversives:

http://www.petitiononline.com/NYs6876/petition.html

if anyone knows of any other action sites, please mention!!


signed...totally inhumane.  innoncent children should not be treated like demons from hell, like they are here and protyared in the media.

Amy, is it possible or allowed for someone to send this specific page to others?  I thought it would be a good page to send to send to some of my family.  Is it allowed?  If not why?  and if so, please tell me how, because I am completly computer stupid.
You would think they would pay close attention to the non-verbal behavoir of a mentally *** woman who is unable to speak in order to diagnose illness when and if it arises! this isnt rocket science!!
Thank you so much for your response.
Trollette, to copy a link to a specific post, right-click on the little icon of a piece of paper at the top left corner of the post, then choose "copy shortcut."

Then you can paste the link into an e-mail.
Thank you Bonnie.  Maybe instead of reading these forums I need to take a computer class. :roll:

I just didn't want to link this site without knowing if it was ok.  But I guess I will and just hope that my family can read it.
http://www.bosto n.com/news/local/massachusetts/articles/2006/05/29/canton_schools_shock_therapy_comes_under_fire____yet_again/?page=1

More news regarding the current challenge to the JRC. The third paragraph from the bottom of the second page says the state Senate passed an amendment banning shock treatments. Maybe it will actually get somewhere this time. I'm not entirely sure how proposed state constitutional amendments are processed, but I'm assuming it goes to the state's citizens once the state legislature passes it. I'm turning 18 next month, so if that is true, I will certainly vote and campaign in support of the ban.

At any rate, I still don't understand how the idea that shock treatment will prevent self-injurious behavior makes any sense at all. Why would someone who is causing himself pain stop because someone else is causing him pain? If he's unaware that banging his head against the wall will inevitably result in a headache, why is he going to realize that the same behavior will inevitably result in an electric shock? It's utterly ridiculous. Despite the JRC's statement that shock therapy is a "last resort", there are other ways of trying to solve the problem that I'm sure the JRC hasn't even attempted, like diet modification. It worked for Donna Williams, as she stated in her correspondence with AFF (that is, if my memory serves, and it should be obvious by now that it usually doesn't, so don't yell at me if I'm remembering incorrectly. Even if it wasn't diet modification that helped, it was still something besides shock therapy, that much I remember), so why don't they at least try it?
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