11-02-2005, 10:49 PM
11-02-2005, 11:32 PM
The registeries remind me of X-men and the mutant registery...equally as bad :mad:
11-02-2005, 11:45 PM
I agree with traditional organ donation, but the problem is NAAR has it set up so if I donate my organs, they get the brain tissue sample :/ How creepy!
11-03-2005, 01:26 PM
Thank you. I do not feel that I would like to donate my brain or any other part of my body for research, especially to them. I do not know if any of my organs could of use to anyone if I happened to die in an accident. I would leave that up to my family to decide.
From reading the article it sounds like they are asking the students to do volunteer work for them. They try to make it sound like they are getting great work experience. Basically, I am sick of being told that I should do volunteer work because it will give me work experience and it "could lead to paying employment". I used to believe that but I have my doubts about it now. If their genetic research leads to prenatal testing that will eliminate autistic people, it gives the image of using Jews to round up other Jews and put them in the big ovens. They told them they were taking a shower.
From reading the article it sounds like they are asking the students to do volunteer work for them. They try to make it sound like they are getting great work experience. Basically, I am sick of being told that I should do volunteer work because it will give me work experience and it "could lead to paying employment". I used to believe that but I have my doubts about it now. If their genetic research leads to prenatal testing that will eliminate autistic people, it gives the image of using Jews to round up other Jews and put them in the big ovens. They told them they were taking a shower.
11-03-2005, 02:20 PM
This is an abuse of basic human and civil rights and I hope that the UN Disability Treaty will legislate for this.
Are not austistic disabled people protected under the ADA and within the American Constitution of Rights then?
Colin
Are not austistic disabled people protected under the ADA and within the American Constitution of Rights then?
Colin
11-07-2005, 02:22 PM
I've just recieved the following reply by Mitzi Waltz, University of
Sunderland, through the Disability Research forum..............
Um, Colin, I think you may have jumped the gun on this one.
First, I am no big fan of NAAR, so I'm trying to defend them. It's just that you got some facts wrong. The press release describes three different programmes:
One (the first one mentioned) involves work for adults who currently live ingroup homes. Are they unpaid? Are they "forced" to do this work? I couldn't tell you--the press release doesn't say. It is entirely possible that they are volunteers, or that they are in fact paid. Without work experience, it is unlikely that adults living in group homes will find real jobs and live independantly, so unless there are elements of coercion or exploitation, this is usually a darn good opportunity.
The second part is about once-a-week work experience for secondary school students. I don't know any schoolchildren who get paid for work experience, but I do know there's usually fewer places on offer than there
are eager volunteers.
Finally, the third part is about workers with the ARC's Workforce programme, who are indeed paid and are certainly not "forced." This is a programme that helps individuals with intellectual disabilities (many of whom also have autism) find and keep paid jobs, and also places crews of paid temps who also receive on the job training. Here are a couple of web sites about what they do:
http://www.t-tap.org/indbarrierarc.html
http://www.communityinclusion.org/press/cnn.html
For people in the US, where there is no entitlement to government benefits or health care, access to paid work is just plain crucial. Although there are sometimes abuses with companies supplying workers with disabilities (Goodwill Industries has a particularly bad rep in some areas, for example...) they are really, really crucial.
Whether someone with autism would want to work for NAAR if they knew what kind of research they fund is another matter!!
Mitzi
Sunderland, through the Disability Research forum..............
Um, Colin, I think you may have jumped the gun on this one.
First, I am no big fan of NAAR, so I'm trying to defend them. It's just that you got some facts wrong. The press release describes three different programmes:
One (the first one mentioned) involves work for adults who currently live ingroup homes. Are they unpaid? Are they "forced" to do this work? I couldn't tell you--the press release doesn't say. It is entirely possible that they are volunteers, or that they are in fact paid. Without work experience, it is unlikely that adults living in group homes will find real jobs and live independantly, so unless there are elements of coercion or exploitation, this is usually a darn good opportunity.
The second part is about once-a-week work experience for secondary school students. I don't know any schoolchildren who get paid for work experience, but I do know there's usually fewer places on offer than there
are eager volunteers.
Finally, the third part is about workers with the ARC's Workforce programme, who are indeed paid and are certainly not "forced." This is a programme that helps individuals with intellectual disabilities (many of whom also have autism) find and keep paid jobs, and also places crews of paid temps who also receive on the job training. Here are a couple of web sites about what they do:
http://www.t-tap.org/indbarrierarc.html
http://www.communityinclusion.org/press/cnn.html
For people in the US, where there is no entitlement to government benefits or health care, access to paid work is just plain crucial. Although there are sometimes abuses with companies supplying workers with disabilities (Goodwill Industries has a particularly bad rep in some areas, for example...) they are really, really crucial.
Whether someone with autism would want to work for NAAR if they knew what kind of research they fund is another matter!!
Mitzi
11-07-2005, 02:41 PM
Hiya! Hey, I just realised I made a mistake in my reply--left out the word
"not". That second sentence ought to
say "I am no big fan of NAAR, so I'm NOT trying to defend them." <grin>
Mitzi
mitzi.waltz@sunderland.ac.uk
"not". That second sentence ought to
say "I am no big fan of NAAR, so I'm NOT trying to defend them." <grin>
Mitzi
mitzi.waltz@sunderland.ac.uk
11-07-2005, 11:42 PM
Bonnie Ventura Wrote:
The residents of these institutions are not paid for their work, are not free to leave, and cannot refuse to participate in any activity that is made a part of their behavioral program.
Is there a page that proves this. The link there says nothing about pay or terms of employment(big suprise there :roll
.
I wonder if these Adults are non-verbal or not.
11-14-2005, 05:37 AM
If they're paid with real money, have a chance to turn down the job and get another one, and understand what's going on so as to make a rational decision, well, that's real employment.
If they're paid in unredeemable tokens, and really have no choice as to doing it or not, and are kept "in the dark" so to speak, about how abusive that may be, I would say that's tantamount to slavery.
Having to do work for people who may well act against your best interests, and not get paid for it, to boot, seems particularly Godawful to me.
I try not to buy things made in Mainland China, suspecting that the workers who made them are also coerced in a slave-driving manner.
If they're paid in unredeemable tokens, and really have no choice as to doing it or not, and are kept "in the dark" so to speak, about how abusive that may be, I would say that's tantamount to slavery.
Having to do work for people who may well act against your best interests, and not get paid for it, to boot, seems particularly Godawful to me.
I try not to buy things made in Mainland China, suspecting that the workers who made them are also coerced in a slave-driving manner.
11-14-2005, 07:07 AM
People dependent on institutions don't have "choice" in the way that term is usually understood.
Stella
Stella
11-14-2005, 04:18 PM
Stella
I totally agrre with you that people within 'institutions' have 'no'-choices and are controlled by people who want thre 'power-over'.
Yours
Colin
I totally agrre with you that people within 'institutions' have 'no'-choices and are controlled by people who want thre 'power-over'.
Yours
Colin
11-15-2005, 05:12 AM
Bonnie Ventura Wrote:
I couldn't find any pages that mentioned pay or that corroborated Michelle Dawson's statement about the work being part of the residents' behavioral programs, but she is very familiar with the way autistics are treated in such places.
I am sure that she does, but that is not the same as proof. And proof is not going to be forthcoming on the web if this is true. too bad we just can't just ask the auties involved.
11-16-2005, 12:26 AM
Bonnie Ventura Wrote:
Now that's a good thought. Do we have any AFF members in the New Jersey area who would be interested in trying to interview some of the people involved?
Or does anyone know an investigative journalist in that area?
Or does anyone know an investigative journalist in that area?
I don't know if they will allow people to talk to a resident unless the resident knows the person. Even good places probably would not let this happen as a safety issue.
12-09-2005, 09:50 PM
A bunch of posts here but so far, hot air. I am not a fan of NAAR at all and have ten years worth of reason to say that.
BUT, just because NAAR is using people in group homes or institutions does not automatically mean they are unpaid, exploited etc.
Just because they work with creepy places like Eden Institute doesn't make them guilty.
Much as we don't like these jerks, they still deserve a right to be judged on evidence not on speculation.
I doubt if Amy Harmon will go near this story. She appears to have her nose solidy inserted into some orifice of GRASP and the GRASP BOD includes a former employee of Eden Institute and ally of Matthew Isreal named Peter Gerhardt.
Jerry Newport
BUT, just because NAAR is using people in group homes or institutions does not automatically mean they are unpaid, exploited etc.
Just because they work with creepy places like Eden Institute doesn't make them guilty.
Much as we don't like these jerks, they still deserve a right to be judged on evidence not on speculation.
I doubt if Amy Harmon will go near this story. She appears to have her nose solidy inserted into some orifice of GRASP and the GRASP BOD includes a former employee of Eden Institute and ally of Matthew Isreal named Peter Gerhardt.
Jerry Newport
12-10-2005, 10:49 AM
[quote="cookieman"]Well
as far as grasp goes they hold their meetings at the ACLD which runs group homes. They are not allowed to come to grasp.
Why is that? That sucks if true. One of the GRASP BOD members runs group homes.
Do they have telephone and computer access?? I tried to ask that on the grasp board but apparently this forbidden to speak about. I found a lot of the existing leaders have a lundry list of forbidden topics
Not surprised by that. It also has an all-white leadership. In NYC? Give me a break.
Jerry
]
as far as grasp goes they hold their meetings at the ACLD which runs group homes. They are not allowed to come to grasp.
Why is that? That sucks if true. One of the GRASP BOD members runs group homes.
Do they have telephone and computer access?? I tried to ask that on the grasp board but apparently this forbidden to speak about. I found a lot of the existing leaders have a lundry list of forbidden topics
Not surprised by that. It also has an all-white leadership. In NYC? Give me a break.
Jerry
]