Hi
One of the things that lacks most for autism is support for parents(and they are seldom the social elite), and you guys have lots of experience based answers from what is literally another world to an NT :oops: - could your advice to Autistic childrens parents help them cope better and avoid misinformed decision making for vulnerable kids :?:
What about a sharing of autistic typical perspectives with NT's
that will help improve often strained communications between the autistic child and their parents :cry: .
:idea: Let's just set up a system, My opinion is that it doesn't matter if you have political influence(although I know it helps sometimes), doting parents(although I know it helps sometimes). The important thing is that you can see a problem and identify how to do something about it. :grin:
The internet is worldwide and so has a potential reach of all computer literates, there's a huge probability that at least some of those people have been touched by autism, and of those there's a fair bet that some will want to help. :?
Another possibility is to get a 'neutral' distribution channel(like the red cross or similar) to seek out a few people in each country and act as a reference point to set up a network.
Things could start with a list of people who visit this site and who are capable and willing to put time in and are preferably autistic saying which country they are in. :idea:
In the mean time setting up a kind of lookup list of things that parents can do straight away that can help them get through to their kids in well known situations that are tough to handle and vice versa. :shock:
One thing I have seen that is probably useful is the categorisation for various gravities of autism - the most fundamental I've seen seems to be autistic with or without brain damage, the reason is that the help and communiations that are realistic are different and so too should be the advice - right? :oops:
Then there's the CARS etc although opinions may start to differ here? :?:
I live in Italy and I'm NT(and it's the 50% genuine talking :-)), the only people I know who are autistic are still a bit young for this kind of stuff(under 16).
I've found that vocal parents are a double edged sword although maybe the more open minded can have a useful contribution to make?(all parents have a useful contribution to make, but I'm talking about coordinating a localised help group and some parents may have their hands full already, others may make themselves a difficult choice through some social variants which others find hard to understand)
:?
Hi Amy,
It doesn't matter really, it's only important that parents who currently don't have advice at hand and who have autistic kids can be reached whereas at the moment they are not.
Money should not in my opinion be taken too heavily into consideration(our society is full of examples that demonstrate why), it is just a very innefficient medium to exchange 'value add' between entities, and given that inflation is a reality, I usually try and create things of value without money. - That said you almost certainly need it, and clearly where spent I'm in favour of doing so wisely.
Your right about the parents having to want the service, and without this demand the idea will never get off the ground, however as a parent to an autistic child and having spent time with other parents and on other autistic web sites(and having suffered the health service approach to educating me about autism), I'm sure that even in the occidental world there is a huge opportunity to help people who would jump at the information to try and help their kids communicate and live a happy life.
The real challenge to my mind is getting to people in places where there is no technology and typically therefore where poverty limits knowledge, education, and mentalities. Autism has only recently been accepted as a 'condition', and it makes you wonder what sorts of hell autistic children have tolerated in the past.
Quote from Schaffer Report The child apparently had an allergic reaction.
The mother says her son was doing very well as a result of chelation up until then.
She said that the results were so good that if she had to do over, she would still do some kind of chelation with her son.
This is like some horrible joke, 'everything was alright until they died'.
I just cannot imagine what these people are thinking.
Or if they are thinking at all. 
whoa,necrobump Pakrat
to be honest,i had completely forgotten this thread....
They've essentially poisoned a child to death in order to make themselves feel better about how different they are. I agree that this should be made an example - if the media will listen.
the ultimate price of vanity?
o.O when i first saw this, i thought it was recent..
It's just that there's a reference to this case in a recent thread. I was actually looking for another case that I thought was on an older thread but couldn't remember where it was.