Aspies For Freedom

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Carole, I am so sad to hear this tragic news about Debbie, I just can't beleive it. :cry:
My condolences to debbie's family. Don't really have the words to do her memory justice but i will say that from what i knew of her she was a wonderful woman. My deepest sympathy to her family.
My word, I am stunned to put it mildly!!!  We had a personal relationship with her and her family for some time!!!  I shall light a candle in her memory!!!  I have also posted this news on AI!!!

Peace
Greetings,

I am shocked and angered by what I've read here.  Unfortunately this is not the first time I have heard such a story concerning social services.  It happens all over the place and far too easily.  If you ever have cause to deal with them then I urge you to cover your back 24/7.

The neglect of the medical professionals is beyond belief.  This is also something that could face all of us.

I am deeply worried after reading this.
It's so terrible!
I can't tell you how much this touches me. Not only did I get to know Debbie as the bright and warm person she was (when people gave her a chance, without taking advantage, without taunts, without attacks), but this story is so similar to that of my godmother (no AS, just ignorant and nasty doctors) I cannot believe this still is happening in this day and age  Sad
The outrage I felt after reading that was immense!!  I can only hope that the old saying,  "What goes around, comes around!!" happens to those miserable bastards and bitches who are responsible for this happening!!

The last time we corresponded with Deb, was when my wife emailed a digital photo of our family to her.  She appreciated putting a face to the names.

I would really love some idiot to look me in the eye right now and tell me again how aspies don't feel emotion!!
All I can think of is those poor boys, to lose their mother like that after all they have been through.

Deb was always kind and understanding in her posts both here and on Aspergian Island.  She certainly didn't deserve to be treated like that.
If any members don't recognise Debbie's name, her name was davixen here.
She gave up her time to help Gareth and I with an issue, and spoke on the telephone, and sent e-mails to help us.

She showed her kindness to help us like that.
Even though I live in the US, because I'm a Registered Nurse and got myself thru nursing school.  She got me involved with Lazarus's effort to get into nursing school as well.  Except he was encountering obstacles because of his dx of Aspergers, from the school Admin.  I was more than happy to write my own experiences on how I found AS a positive aspect of being a male nurse.  I wrote them out and emailed them to her, I don't know what effect they had, but, she thanked me for them.  We  also shared our own difficulties with our daughter's school and the unfounded accusations that were levelled at me by the school bureaucrats.  She appreciated the fact that she wasn't alone in dealing with stupid injustice.
The treatment of her and her family by social services is absolutely disgusting. Unfortunately, social services in the UK are pretty good at messing with other peoples lives, so I suppose it really shouldn't be such a big shock. Nonetheless, it does stir a deep anger and hatred.
This is terrible news. It's no secret that Debs and I did not get along, but I always recognised and admired Debbie's intelligence and spirit. She appeared to have a lot of confidence and trust in her doctors. I'm very sad to hear that the service that they provided did not live up to expectations.

There is nothing uniquely British about the bad and appalling treatment that Debs and her family have experienced from government officials and the medical profession. Aspies in Australia are disbelieved, disliked, mistreated, misdiagnosed and misprescribed by medical professionals. I've seen it and experienced it first-hand. I personally know of two Australian aspies who are no longer alive because of the bungling/prejudice of a doctor.

What can we do about these problems? We need to have organisations that advocate for the rights of autistic people. I would also advise aspies to shop around till they find a doctor that is unprejudiced, knowledgeable and trustworthy.
Lili said "I would also advise aspies to shop around till they find a doctor that is unprejudiced, knowledgeable and trustworthy."

Sadly in the UK you have no choice over which doctor you see, you are lucky to get on a waiting list to see any doctor at all. Sad

Quote:
After the programme she joined our Campaign and helped us so much. It's a complete irony that at this very moment we have three parents on our Campaign Group who are going through what Debbie and her family went through. So we know that it is not a one off.


Its definatly not a one off, I remember we had quite a big discussion about my family experiances back in the early 90's via e-mail. I want to just copy what my initial reaction was on hearing the news on another forum:

I cannot exajerate how terrible this is. This is a very important development

Im not one for cliched dramatic statements, but we have lost a fellow aspie who was a real fighter for our corner. We really need people like her and its a crying shame she's gone, not to mention the human tragedy of leaving a husband and children to pick up the peices

When I was in the midst of my problems with Herts university she took the time out to help me with my situation, even with her own problems. Remarkable woman, I have nothing but praise for that lady.

Lazarus Wrote:

Quote:
After the programme she joined our Campaign and helped us so much. It's a complete irony that at this very moment we have three parents on our Campaign Group who are going through what Debbie and her family went through. So we know that it is not a one off.


Its definatly not a one off, I remember we had quite a big discussion about my family experiances back in the early 90's via e-mail. I want to just copy what my initial reaction was on hearing the news on another forum:

I cannot exajerate how terrible this is. This is a very important development

Im not one for cliched dramatic statements, but we have lost a fellow aspie who was a real fighter for our corner. We really need people like her and its a crying shame she's gone, not to mention the human tragedy of leaving a husband and children to pick up the peices

When I was in the midst of my problems with Herts university she took the time out to help me with my situation, even with her own problems. Remarkable woman, I have nothing but praise for that lady.


Lazarus, I couldn't agree with you more!!!  I will miss her very much!!

Peace

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