Good Luck, Korrigan.
We'll go to a similar meeting for our eldest one in one week.
He has surely traits of ADHD and AS.
Until the beginning of adolescence he and we managed with that somehow.
The last year in school was like hell for him, and we hope that after a proper DX we could demand from the school to provide a more suitable support.
Good
Luck
Korrigan!
I hope it all goes well, that there are no meltdowns and that you get the right answers!
All the best Korrigan! Hope it goes well tomorrow.
I'll be thinking about you all- *good luck hug*
I hope it goes well, Korrigan, and that you all learn interesting new ideas or possible coping strategies.
There was nothing you could have done to prevent this. Nor your husband and daughter. Sometimes the stress just gets past what we've got set up to deal with it, and things get to be too much. You are a family and you will get through this together, because that is what families do, especially when there are children. After this time, there is a time when things will be better, and if you wait you'll get to it, because progress through time is inevitable.
"Lightly on the spectrum"? Meaning Asperger's diagnosis, or just the good ol' "you have a few traits, but not enough to warrant a DX"?
This kind of stuff just really gets to me. My brother was told by a shrink, "you have some traits, but not enough to let [Asperger's] control you."
If it's Asperger's, give the diagnosis, don't keep them in limbo.
"Lightly on the spectrum"? Meaning Asperger's diagnosis, or just the good ol' "you have a few traits, but not enough to warrant a DX"?
This kind of stuff just really gets to me. My brother was told by a shrink, "you have some traits, but not enough to let [Asperger's] control you."
If it's Asperger's, give the diagnosis, don't keep them in limbo.
Interesting. When I was first referred to a psychiatrist I was told that I had traits of Asperger Syndrome but some traits weren't enough for a diagnosis - I had to have them to a severe extent to warrant being diagnosed.
This didn't sound right to me or to my support worker from a local organisation that helps people on the spectrum- after all it is called a spectrum for a reason!
I asked my doctor to refer me for a second opinion. The hospital bounced back the referral (presumably because the psychiatrist's ego couldn't take the fact that I wanted another opinion!) but thankfully my doctor was supportive and persisted until I was able to see a different psychiatrist who referred me for a diagnostic assessment.
I eventually saw the diagnostic team who said that I was definitely autistic! So looks like the original psychiatrist didn't know what she was talking about. I've since found out that she has said the exact same thing to other people who were subsequently found to be autistic.
Korrigan - I'm glad to hear that the clinic you attend have such a good system in place.
I would also vomit dinners on finals week from the stress, too.
Oh, my god, Korrigan. Are they not giving any symptomatic treatment for the vomiting? I can't imagine how rough that is on both of you.
Korrigan, does your daughter want to go to this summer camp? I think there needs to be a plan for her to go someplace quiet if the noise gets to her. I used to get stomach migraines as a child and sometimes vomit but wasn't anywhere near as badly affected as your poor little girl.
I have nieces and a brother who had the same thing. In all our cases, it was severe anxiety that was the culprit and it was usually over facing social situations or academic problems. Mum used to get really sick before examinations despite being a top student.
Exams didn't bother me a lot but if I didnt understand something straight away, I would panic and get a stomach ache. I'd also panic about stomach pains as I was severely phobic about getting diarrhoea after having an accident when younger and getting taunted by boys.
It's very common for anxiety and Asperger's to co-exist and I hope they will give your daughter a definitive diagnosis soon.
At my school (during the holidays) there was a day camp type thing; but I found these day trips very scary; and tried to avoid them when I could.
The digital watch is a very good idea; I also had trouble telling time so my parents got me a digital watch; and it does help. Being able to track the passage of time gives a feeling of control; a feeling of an end being in sight.
My son also has a tendency to vomit when anxious or upset.
Look after yourself Korrigan; sounds like you and your husband are doing a great job looking after your daughter.
Hugs to you all from me.
Such a lot of stress is hideous.
I really hope things improve.
I liked summer camp except for a few things. The main two were that I did not like being ordered around in what felt like military rituals (like the flag raisings). But the part that bothered me most was that nobody was allowed to go back to our cabins during the day. I suppose that was to prevent theft. But I needed some safe quiet space to be alone at times. Could the camp grant a little quiet place she could go to calm down while the other kids do some activity she doesn't want to participate in?
Your family sounds most fortunate to have you.