Aspies For Freedom

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I know some people hate reading long posts, so I'll apologise in advance: sorry.

The following is my attempt at an introduction mixed with an "am-I-an-Aspie" and "now-what-do-I-do" set of questions.  I tried following the layout of some similar posts on here, so it might sound a little familiar, if you've read all of them.

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A few years ago my college tutor had the class sit a "geek" test which suggested that I had some variant of Aspergers.  Two years ago a friend - studying for her final year in psychology - also came to the conclusion that I could have AS (she had me fill in quite a number of questionnaires and tests; AQ, EQ and SQ among them).  

I don't remember much about primary school at all, other than a vague recollection of being pulled out from under desks by teachers - apparently I preferred to do my work under there.  There's also notes on my report cards that I cried a lot for no discernable reason.

In secondary school, I didn't have much in the way of friends since I didn't get along well most of the other kids. I spent breakfast and lunchbreaks on my own in an empty classroom. I was the odd one, in the corner, who rarely spoke; some students used to offer to pledge money to charity if I'd stand up in class and speak.

I don't really like social interaction mainly due to the fact that I get overwhelmed very quickly if there's a lot of people around. I can't drown out any surrounding noise and I can completely lose the ability to progress through a conversation - as though my brain gets so overloaded that it can't figure out which sentence is supposed to come out in response to even the most basic of questions.  I just go completely blank.  Just stand there with the last phrase the person uttered repeating itself in my head.  It's not until I know someone that I can talk to them.

I have a somewhat photographic memory:  I'm great at remembering whatever I see/read, either in text or in picture format.  I can recall a particular paragraph - even down to its position on the page and the surrounding layout - in a book years after I've last read it.  

I'm overly-sensitive to light and noise. I can hear things no-one else hears and high pitched noises can drive me around the bend - not to mention some of them can be physically painful.  My brains seems to catalogue surrounding noise whether it's directed at me or not.  If there's seven different conversations going on in the office, or in the street, or on the bus, they'll all filter into my head and some of the phrases, or entire sections of the conversation, will repeat in my mind unendingly until another piece comes along to take it's place.

When I hear music it automatically gets split up in my mind - I can see which instruments are playing and when.  I can see the lyrics in front of me as though I was reading from a book.  I see which parts of each word is drawn out, which are shortened, which sections go up/down a few notes.  I seem to memorise the tone and pitch without conscious thought - of the instruments as well as the voices.  The rhythm of the bass, the drums, the different guitars etc.  I can tell impersonators from the real singers because I can hear the difference in the frequency of their voices.  If I hear a song played/sung by someone else, I know immediately that they've missed a drumbeat or that the fiddle skipped over some notes or how the singer didn't quite get the turn of phrase right on the third verse.  

This causes quite serious difficulties if I'm surrounded by chattering people in the office and someone turns on a radio.  The noise of the conversations take over everything, the lyrics from the radio appear in my minds eye and I cannot follow what's being said to me.  It's impossible.  I've had managers repeat questions four or five times while I just sit there and stare at their lips in the hopes of figuring out what they're saying.  I see their lips move, hear each individual word but they're completely swamped by everything else and nothing makes any sense.  It's as if I can hear the words separately but not get them to form into any kind of understandable sentence.

I have had more than one particular obsession that's taken up the majority of my time over the years.  I can move from one major obsession to another after years - decades even - of being completely and utterly focused.   If you asked a younger me anything about Elvis Presley you'd have been inundated with information until you lost the will to live.  I've forgotten most of it (or, at least, I'm not quite as sure of the details involved) now that my obsession has moved on. I tend to be somewhat obsessive regarding the positioning of things too; sorting and lining up books or ornaments, straightening pictures, or centring things.  

I'm very into patterns and symmetry.  

I've been told that I'm too much of a fussy eater; there's certain foods that I will cannot have on the same plate.  

I don't really like to make eye contact and I have to remind myself, in the middle of conversations, to look up into the persons face every now and then.  Having said that, I don't have any trouble making eye contact with either of my parents.

I fidget a lot. I try not to rock back-and-forth anymore as I was repeatedly told it made people around me seasick...but I still occasionally fall back into it if I'm alone.

I have to rehearse conversations prior to having them...especially when it comes to speaking on the telephone.  Even resorting to writing down what I want to say prior to dialling the number. I use a lot of automated/stock phrases. I distinctly remember my father taking me aside and explaining to me that when someone says 'this', you have to say 'that'.  Always.  I now have quite a number of memorised 'this' and 'thats' and, as a result, I find myself asking questions automatically even when I don't have any interest in the answers.

Being touched without warning makes me very uncomfortable.  There's only a few people in my life from whom I'll accept physical contact.  I hate being in elevators or standing in queues as other people get too close to me and trying to constantly adjust to stay away from them can get really frustrating - especially when they seem to think my moving away gives them space to move closer!  That said, I find that I can handle it in my weekly dance class as it's expected and doesn't last long (although the fact that you never dance with the same person for any more than three minutes was kinda stressful for me at first...but you're with people for such a short period of time that they don't get a chance to question you and there's no social niceties that have to be followed, other than the occasional "Hi").  

In addition, I can get visibly agitated if my routine is suddenly changed or interrupted.   I need to have things planned out and last-minute changes to them can really upset me.  And it won't just mean that I get teary-eyed and anxious, it can also mean that I get somewhat aggressive (depending on my frustration level).  

I just took the Aspie Quiz that's listed in this forum and it gave me:

Your Aspie Score: 140 of 200
Your neurotypical (non-autistic) score: 52 of 200
You are very likely an Aspie

Assuming all of this (tutor, friend and Aspie Quiz testing) comes under the umbrella of "self diagnosis", what I'm supposed to do to get a professional one?  Just turn up at my local doctor and request to see someone?

Is there a certain doctor out there (in the UK) who's knowledgeable about AS and capable of giving a decent diagnosis one way or the other - one in particular you'd recommend?  

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Thanks, Smile
-K-
Hello, Welcome - How are you, I hope that you are doing well.  I guess you finished college?  It sounds like your life has been pretty good! Anyway, I am not an aspie - but I wear aspie colored glasses and have an aspie son.  I don't know why people who are adults seek official diagnosis, unless you are not sure. I guess unless they are having new difficulites.  I would tend to think that YOU knowing that you are one and then reading a whole bunch and coming to a forum such as this really great one could do wonders.  You seem without a doubt to be aspie already, are you not 100 % sure yet?.  Is there something that you need help on that having an official diagnosis would help?  I say this and ask this for partially selfish reasons as I still am not sure that having our son diagnosed "officially" last year has been any help to him - or will be of help to him in the future.
Thanks for the welcomes, pikajedi4 and atypical Smile

atypical Wrote:
Hello, Welcome...I don't know why people who are adults seek official diagnosis, unless you are not sure. I guess unless they are having new difficulites...


To be honest, I just feel like I need to know for sure. I wouldn't want to change anything about the way I am even if I regularly get someone mentioning the words "freak", "oddity", "weirdo" or "robot" when referring to me (even in personal introduction scenarios).  I would, though, like the ability to say "Well, actually, it's a physical/personality thing - not something I can change and I can prove it" in response (even if it was just muttered to myself, for myself)...if that makes any sense! Tongue  

That part of it aside, my mother agrees that I might be Aspie...but tells me that she refuses to acknowledge it entirely unless a Doctor tells her for real!  She says I can't refer to myself as having Aspergers without professional backup.

-K-

Hi and welcome to AFF! Smile
Oh I see, thanks :O) Cool - you can say sometimes, Oh, I am an Aspergian - I tend to look at things differently than you.
ANecdote: I let my son go ahead of me into a Gamestop store last night - so he could buy a game with his own money - he was told $19.25 . So he proceeded to take out a couple of 5 dollar bills and a bunch of ones and hand it all over ($26.00) (we are in the US).  He has no idea about money - not for lack of practicing :O) the young guy behind the counter was smiling, my son was smiling, he knew he didn't have it right - he then said to me - Aspergians like me don't really get the idea of money at my age.
Welcome!!
he is 11
I have been "playing" with words with him - in the last couple of weeks. Like hey, that must be how they do it on the planet Aspergia?...he has been reluctant to classify himself -(actually he started out saying no way, they got their papers mixed up) he is not reluctant to identify with others though.  I was pleased during his purchase, that he was not stressed/flustered as he dropped dollars bills everywhere :O) (of course he was happy, he had just tracked down a 2001 used copy of a gameboy game - super mario advance).  He uses humor alot, I couldn't help but think that after more people really become "AWARE" of real life spectrum people - that in the future he may just run into a clerk that understands what he means if he mentions- Aspergia - understanding and accepting is the key - and the money thing isn't even necessarily ASD, in his case it is a comorbidity with Dyscalculia)
silky - Out of the mouths of babes!
Well, based on that description you're four or five times as aspie as I am, and some fool thought I merited a diagnosis; so you're pretty safe using the word to refer to yourself.  Welcome.
B"H

Welcome aboard ship!

All the best.

IlluSionS667 Wrote:
I´m planning to get a second opinion and (if my suspicions are confirmed) join a self-help group for people with Autism-spectrum symptoms as well as Mensa.


I would definitely get a second opinion if the diagnosis is important to you!  We sought help from a different place after a GP dismissed my husband as "possibly having severe depression due to a thyroid problem as he wears all black all the time."  Um, yeah....

KatieG Wrote:
Wait...I'm confused, sorry:  the Doctor thought that a colour somehow physically influenced your husband's thyroid and convinced it to make him depressed?  How did the thyroid gland figure out he was wearing black? Wink

I'm guessing you've switched Doctors permanently, right? Smile

-K-


Nope, basically that he wore black all of the time because he was severely depressed, and he was severely depressed due to a thyroid problem.  He was suggesting a blood test.  We were in asking for a referral to an Autism/Aspie specialist.  

My husband has NO depression.  I not only changed doctors, but also turned him in to the insurance company.

KatieG Wrote:
I didn't realise you could turn them into an insurance company - will that company give the doctor into trouble somehow?  


You can.  I did it because he refused to refer us to anyone, and because he suggested that we "check the internet" for a doctor who could help us.  His response was improper.  If he needed to research and get back to us that would have been fine, and I actually gave him that opportunity, but he still had nothing for us.  

The insurance company keeps a log of complaints.  I just wanted to make him feel some of the discomfort he caused us to feel as we were in there asking for help.

[I never planned to go to a psychologist on a steady basis anyway, so there´s no hard decision to make. I´m just disappointed by what seems to be a very superficial diagnosis. I´m planning to get a second opinion and (if my suspicions are confirmed) join a self-help group for people with Autism-spectrum symptoms as well as Mensa.
[/quote]


F.Y.I.   I have had 4 IQ tests, 154, when I was in 1st grade, 6th/8th grade 136/7 and 141 at age 18.  I was a member of mensa for one year - the meetings were few and far between and far away (in New York City) but I thought the people were not very inclusive sorts - I was 18 so I guess I was young.  Looking back some members were really nice and they remind me of my aspie son - some social awkwardness but honest and interesting.  But the general mood was not unlike other groups or cliques, they don't accept new people, like a sort of suspiciousness - I didn't enjoy it, I was only 18 but typically I tended to get along better with older people, not in that case.

I'll reiterate my position on IQ now, I think they are useless in general. My son does not test well and has number/math/counting isses but he is so smart, his IQ test came out only a bit over one hundred - he is way smarter than his test lets on.
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