Aspies For Freedom

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Hi and welcome!

You have pretty much described my own son!  We're still waiting for an official assessment, but I anticipate his being dxed as Asperger's.  We met with the community paediatrician in December last year, and when she said that she was going to refer him to Autism Team I was stunned, because I didn't associate my son's behaviour with was I now realise are, as Tigger points out, stereotypes of autism.

What I would say is, that my son is now 6 years old, two years older than your son and in Primary 2.  What could be seen in a 4 year old as not particularly unusual behaviour for that age group, becomes increasingly more out-of-step with their peers as they get older.  My son is also very sociable, but is finding friendships more difficult now as his friends move on to other interests.  His immaturity and tantrums, his determination to play *his* games, *his*way and his difficulty in sharing toys are making it very difficult and upsetting for him.

My son is also very confident around adults and will think nothing of walking up to "a staff" in a shop or museum and asking if they sell something he's looking for or questioning them about their exhibits.  He has great fun playing with children who are a couple of years younger than him - maybe because they are more likely to defer to him and also to be still interested in Thomas!

What I also put down to "selective deafness" creates more problems for a school age child as he has great difficulty following instructions given by the teacher.  My son started talking at 18 months, and like your son, hasn't stopped since!  When he was 3 his nursery suggested there might be a problem, and said we should see if he could be refered to a Speech and Language Therapist.  I can now see, with hindsight, that we made a mistake in thinking that because his vocabulary, pronounciation and sentence structure were very good that he didn't have any problems.  His pragmatic language skills are very poor.  He talks incessantly about his own interests, it's very difficult to attract his attention or keep his attention when you're talking about something else, and he keeps returning to his own topic of conversation.  He constantly talks over me when I'm speaking on the phone or to someone else and can't understand when he has to stop talking - for example, when he gets in the car he doesn't stop talking so that I can shut his door and get in the car myself!

I don't know if your son is at school yet, but it was when at school that my son's differences began to have an impact.  As far as reading, spelling, arithmetic are concerned he is well above average.  However, his writing is poor, his organisational skills pretty much non-existent and he is freaked out by loud noises.  I discovered only recently that he has had to be comforted or removed from the situation when drama groups have visited the school.

I know I'm going on a bit, so I'll stop soon - promise!

My son is wonderful - he's a smart, imaginative, creative, confident wee boy with a lot to say for himself and a lot to offer the world.  He also has problems, though, and the route to diagnosis is providing me with a means of getting support for him and continues to give me a greater understanding of how he perceives things.  I now have a better understanding of his picky eating and problems with using cutlery, of the fact that he cannot go a swing by himself, that some situations overwhelm him and that he is not (always!) being wilfully disobedient or difficult when he doesn't do what he's asked, when he's asked.

One last thing!  I've done a lot of reading and have now bought Tony Attwood's "The Complete Guide to Asperger's Syndrome", which I have found very helpful.

Please send me a private message or post again on this thread. Smile
Back again - there's a lot to be said and I identify very strongly with where you are.

I didn't get the thing about the eye contact - I kept saying that my son's eye contact is very good.  But, having thought about it more, and watched him more closely - he makes very good eye contact when he's talking about his interests, but eye contact tends to get lost when I talk to him about other things.  This might not apply to your son, but maybe worth thinking about.
I have realized so much about AS in the last few months, with a newly diagnosed husband and a daughter who I believe could fall somewhere on the spectrum herself, many of the things you are talking about are true to my situation as well.  

More than anything else, I have learned that you cannot lump Asperger's or Autism into a really small box of symptoms and personalities.  All people are different, and just because they are an Autistic or an Aspie does not remove them from the differences of who they are, as people.  

Does that make sense?  

Reading both your and Marcia's posts makes me even more convinced that we need an assessment for my daughter, in fact.  We have just been tackling the issues with my husband for now, and I want to make sure she has what she needs as well.  (For now, she just is categorized as having severe learning disabilities.)

I found relief in the diagnosis of my husband, as it made him easier to understand, and that is why I came here.  It removed much of my bad feelings about "why he did not do ______ like normal people."  I realize now I should have been more understanding and kind in the first place, but the differences were so hard to understand that I could not handle the reality of them for many years.  

I hope it gets better and congrats on having two wonderful little boys!  
I've found the details of the first book I read - there were loads of things in this which described my son and helped make sense of his referal.  

Leventhal-Belfer, L and Coe, C   2004     "Asperger’s syndrome in young children"   UK   Jessica Kingsley Publishers Ltd.

I think the penny finally dropped when I read in one of the case studies about a girl with AS who liked yoghurt, as long as it didn't have "bits" in it.  At that time, I had been pushing yoghurt through a seive for my son, because it had "bits" in it! Smile  These particular yoghurts had been on special offer, so I'd bought loads of them and couldn't face eating them all myself!

Marcia Wrote:
I think the penny finally dropped when I read in one of the case studies about a girl with AS who liked yoghurt, as long as it didn't have "bits" in it.  At that time, I had been pushing yoghurt through a seive for my son, because it had "bits" in it! Smile  These particular yoghurts had been on special offer, so I'd bought loads of them and couldn't face eating them all myself!


I have to laugh at this.  We have a rice mixture called "Rice a Roni" and it has carrot chips in the beef rice mix.  Tiny carrot chips.  I spent I have no idea how long removing tiny little bits of carrots for my husband and daughter, then I just started buying white rice.  LOL!

Lol! ;D

It was so weird reading that book - I got to that word "bits" and was just astounded!  My son just refuses to eat or drink anything with "BITS" in it.  Aaaargh!

Actually, a friend was there one of the times I started seiving the wretched yoghurt.  I think she thought I'd lost the plot.  She watched me for a wee while, then said very slowly, "What...are...you....doing?!"   I just said, "bits!", what more explanation is needed? Big Grin

honestjohn Wrote:
want to say that Robert Frost wrote a very great poem about the road not taken and the road less traveled - and that he was better for it.  Just becasue your childs path may not be the most typical path, it doesn't take away from the beauty of the journey.


What an awesome statement.

Marcia Wrote:
I've found the details of the first book I read - there were loads of things in this which described my son and helped make sense of his referal.  

Leventhal-Belfer, L and Coe, C   2004     "Asperger’s syndrome in young children"   UK   Jessica Kingsley Publishers Ltd.

I think the penny finally dropped when I read in one of the case studies about a girl with AS who liked yoghurt, as long as it didn't have "bits" in it.  At that time, I had been pushing yoghurt through a seive for my son, because it had "bits" in it! Smile  These particular yoghurts had been on special offer, so I'd bought loads of them and couldn't face eating them all myself!


aggh, bits! i have this habit of eating food in stages... i have to either eat the bits first or last, and i have to eat the layers in cake in an order, orange juice bits don't bother me... when  i have a chocolate bar i have to eat it in as many layer methoods as possible. Sontimes i try to ignore this habit, but then ignoring the layers becomes a methood. Having the food touching each other on the plate i would also prefer not to happen... but i don't wanna cause too much trouble so i ignore this.
Anyway, congratulations.  <(^_^)

Hi Melindi,
Welcome. Smile I also have a 4 year old diagnosed.  I remember when he was first diagnosed it was a bit tough.  I think its due mostly to the lack of accurate information.  I'm sure things will brighten up for you being here.

My son also exhibits a few of the traits you listed for your son. My son is obsessed with numbers and letters but he was able to read before the age of 2. He also has trouble with loud noises and prefers to be naked a lot.

melindi Wrote:
Hi, I'm a 29 year old Mum to two little boys aged 21 months and 4 years, and our eldest has just been diagnosed with AS.

Hi andwelcome,
When Josh was seen by the cahms ( child and adolescent mental health service ) service i was thinking he had ADHD-I was completly shocked for a second when she said she thought Josh had Autism-I cried-she apologised for upsetting me-i said it was ok, that she hadnt upset me-but there was a reason for this wild-and i mean wild behaviour, he was no longer a naughty little boy- he was labled as one in the nursery, now there was a definate route to finding out about this wonderfull little person who i had in my life, this was when he was in reception and no he didnt tick all the boxes-but he did tick a lot of them, its such a wide spectrum that some say were all somewhere on it( dont know if it is is true )-so here we are a few years on-josh is 7 now and has been diagnosed since 18th dec 2006-he has a sen statement and 2 full time teaching assisstants + a dinner lady all to himself, plus his class teacher-he does go to mainstream school with his sister Louise who is 8. He is the only child i know of to have been suspended from the nursery at age 3.
He continues to be Autistic and always will be, lack of eye contact, stuttering, cant read (only from memmory of what ppl have read to him previously in the same book ) cant spell, cant organise his day or be trusted to walk alone outside and a whole load of other traits that i would have to take a year probably to write down on here-but saying that he does have an obsession with dinosaurs, facts, figures, you name it he knows it, and he tells the kids in teh class and they look at him gormless, like hes from mars or something.
he is the most loving child i have ever known, he loves cuddles and kisses, squeezy hugs, he lays on the settee or floor mostly and watches the television and he loves dvd's, he does show affection, and likes to recieve it-he has to be tucked in at bedtime otherwise he will lay awake untill i do tuck him in, then we have to have a love and a kiss goodnight, he has started to get his own uniform on-whilst i sit on the stairs with a coffee telling him how great he is getting dressed alone.
some people have said when told that hes Autistic " oh poor thing "- and ill say " no, poor you for not knowing what autism is " some are so ill educated and even some teachers are-josh used to kick off in assembly-the head master had to phisically restrain him quiet a few times-all he needs now is a piece of blu tack in his hand and he will sit for an hour in there.
you will do well to read loads on autism-and some traits wont show for ages yet, and some may get better and some may get worse-NATIONAL AUTISTIC SOCIETY do loads of books im meaning to get some actually.
sarah

Natalie Wrote:

Alias Pseudonym Wrote:

IncognitoInnominate Wrote:

Marcia Wrote:
I've found the details of the first book I read - there were loads of things in this which described my son and helped make sense of his referal.  

Leventhal-Belfer, L and Coe, C   2004     "Asperger’s syndrome in young children"   UK   Jessica Kingsley Publishers Ltd.

I think the penny finally dropped when I read in one of the case studies about a girl with AS who liked yoghurt, as long as it didn't have "bits" in it.  At that time, I had been pushing yoghurt through a seive for my son, because it had "bits" in it! Smile  These particular yoghurts had been on special offer, so I'd bought loads of them and couldn't face eating them all myself!


aggh, bits! i have this habit of eating food in stages... i have to either eat the bits first or last, and i have to eat the layers in cake in an order, orange juice bits don't bother me... when  i have a chocolate bar i have to eat it in as many layer methoods as possible. Sontimes i try to ignore this habit, but then ignoring the layers becomes a methood. Having the food touching each other on the plate i would also prefer not to happen... but i don't wanna cause too much trouble so i ignore this.
Anyway, congratulations.  <(^_^)


I'm proud to say that I no longer retch at the idea of food with slimy texture or heterogeneous composition and am in fact capable of eating non-blended vegetable soup.  I pretend I'm eating pudding or something.

I still pick food apart, but I don't see a problem with that.  I also like food that requires a lot of pick-aparting to get at it. (<3 grapefruit.)

Food with "heterogeneous composition" is something I have never been able to get over. I can't think of any food I like that has more than three textures, and preferably they have two or less. I don't really count soup because I can eat everything in it separately - first noodles, then chicken, then veggies, etc.

Speaking of slimy food... A few years ago I was on a high school field trip in San Francisco and we stopped at some sort of giant dim sum dining hall for lunch. I knew I wasn't going to like anything there (I am the pickiest eater I know), but I supressed my urge to object to eating at this place to avoid sounding rude. When we got there there were like 300 other people in there speaking loudly, so I was kind of overwhelmed by that.

My friends ordered some beef dim sum, and told me it was just a dumpling with meat in it. "That's not so bad", I thought to myself, so I decided to give it a try. When I bit into it the "meat" had an absolutely revolting jelly-like consistency and tasted like crap. It was so horrible I almost started crying.

I also like foods you have to pick apart to eat. Walnuts, pistachios, and edamame are some of my favorites. It is enormously satisfying to peel citrus fruits like tangerines and oranges, but I don't eat too many of those.


Yeah, i don't like slimy foods either.
I can't eat greasy and/or slimy pizza... some ready meals are very slimy, and some juice is too.  I don't like things if they taste of chemicals.  In juice i don't like drinking some because it tastes of thus.  People just don't seem to taste food chemicals... guess their just used to it.  I would prefer plain food a lot of the time, and i don't see why things like beans have to be cooked they taste better raw, and without the sauce. (personal opinion)
One guy i know can't go near vinegar... physically as well as eating it.  if ketchup or somthing is on the table near him he gets kinda agitated.

what is "DS"?
taste...I can taste aerosols and gas.

anyway.

sorry, and I know how hypocritical this is, but that whole EM sensitivity thing is bull.

scientists took a group of "sufferers", stuck them in a room, and then proceeded to turn on microwaves, 802.11 devices, stuff that apparently sets them off. they couldnt tell if it was switched on or off. they got false positives when it was turned off, and false negatives when it was turned on.

its all in yer head, Mr Tweedy..its aall in yer 'ead.
by, "Electromagnetically sensitive", I assumed you were referring to those people who get sick around technology, btw.

melindi Wrote:
PS: Pikajedi, I LOVE your sig. Love the Aperture Science website too Wink I do get strange looks when my Portal ringtone plays. Seems so many people do not know what on earth it is. Sorry, completely off on a tangent, but then I seem to be good at that!


I was about to ask which bit! Big Grin

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