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Autism no longer an obstacle for students seeking college degree
Mentors, trained teachers help students to see success
BY ROBIN ERB • FREE PRESS EDUCATION WRITER • March 10, 2008

If college were purely academic, 16-year-old Cullen Kappel would have no worries.

But the mostly straight-A student who studies astrophysics just for fun knows his challenge at college will be in what happens between classes.

Cullen has Asperger's syndrome, a high-functioning form of autism. Like others with Asperger's, he tends to hyper-focus on topics, can be thrown off-kilter with a slight change to his routine and has a tough time deciphering conversation cues.

"I feel a bit socially challenged," said the junior at Clarkston High School.

Now, universities across the state and the country are reaching out to students with autism and related disorders as their numbers grow rapidly -- thanks to early treatment of the disorders in children.

The schools are setting up peer mentoring programs, having one-on-one interventions and working with housing officials, campus security and professors to help them understand why some students might seem quirky, rude or out of place.

Students with Asperger's syndrome are some of the highest-functioning among those with autism, many with above-average intelligence, "all the way to brilliant," said Jane Thierfeld Brown, director of student services at the University of Connecticut's law school. She's coauthoring a book, "Students with Asperger's Syndrome in Higher Education."

But the disorder also short-circuits the part of the brain responsible for executive functioning, making it difficult to organize and prioritize -- keys to academic success.

Physical idiosyncrasies -- hand-flapping, for example -- can make people with Asperger's appear eccentric.

And conversational cues -- plays on words, facial features, hand gestures -- pass by unrecognized.

So Brandon Goyings, a 22-year-old Oakland University student from Jackson, sometimes doesn't get jokes.

"I think more concrete, less abstract," he said.

And it's something that threatens academic success. An autistic student might not be able to read a professor's cues or decipher a lab partner's annoyance at his outbursts or quirky habits.

"College expects you to come with a certain skill set ... but this is a communication disability," said Linda Sisson, director of Oakland University's new peer assistance program for students with autism.

More students in college
Students with autism were graduating from college long before many of today's outreach efforts began.

But university disabilities offices say more of those students are heading to college than ever after a decade or more of early intervention, parental advocacy and federally mandated mainstreaming into regular classrooms.

Steven Schwartz, an associate professor of special education at Madonna University, noted that "15 or 20 years ago, the idea of including an autistic kid in a general education classroom was craziness. Now it's not only an expectation, it's the law."

The U.S. Centers for Disease Control and Prevention estimates that one in 150 8-year-olds has some autism spectrum disorder.

And in her survey of 80 institutions across the country last year, Thierfeld Brown said four-year schools had an average of 10 students who reported to their schools' disabilities offices that they had some form of autism. But she estimates the number is much higher because many students don't report their diagnosis.

Tailor-made programs
In Michigan, Oakland University has offered courses for years for teachers and other professionals who want to work with students with autism.

Now it's wrapping services around its students with the disorder, starting with a peer support program for students like Goyings.

To address the organizational challenges and the need for tangible direction, students with autism paired with other students and received a daily planner. They broke down a semester's worth of assignments into daily chunks and listed every task of the day -- sometimes even eating and exercising.

To hone communication skills, the students meet weekly to practice what they have learned about conversation intricacies -- from beginning a conversation to registering smiles and frowns.

Mia Evans, a 22-year-old political science and journalism major from Detroit, mentors a 22-year-old student with autism from Orchard Lake. Evans asks her mentee about classes and homework. She helps the student replay conversations, searching for clues that the student is faltering.

"We don't sugarcoat the campus experience," Evans said, but "we give them a reference point."

Success in school
Even universities that don't have programs tailored for students with autism have made adjustments for them.

Since they can get easily distracted -- or at the other end, fixated -- some disabilities offices work with professors during final exams week to find a quiet room for the autistic test-taker.

Tim Hull, a 22-year-old Grass Lake student with autism, expects to graduate from the University of Michigan this spring with a double major, but it hasn't been without plenty of challenges.

He has trouble parsing questions on a test or splitting a semester's project into daily tasks. He gave up on taking notes in class, finding himself consumed with writing instead of digesting the lecture.

He sometimes works on projects for several days straight with just a few hours of sleep.

"I tend to do everything full force or not at all," he said.

For others, the most pivotal battle is in building relationships. Because they can seem to be eccentric or rude, autistic students often are isolated, frustrated and ultimately depressed. It's a road map to dropping out of school.

At Grand Valley State University, Amy Matthews, the project director for the STate Wide Autism Resources & Training program, recruited students from her classes to invite an autistic classmate to movies and football games.

She and others who work with students with autism say they have gained crucial ground -- people are starting to recognize the disorder rather than reeling from it.

At the University of Connecticut, Thierfeld Brown said she recently explained to someone outside her school that she worked with students with Asperger's.

"He said 'Oh, my neighbor's kid has that,' " she said, adding: "Five years ago, it would have been 'Asparagus-what?' "
I'm not sure if "Early Intervention" refers to ABA, and how many of those who get higher education have had ABA.

Remember primary, was so such a bad experience that I sometimes think it would be better if I skipped it continuously.
The work load is so much that most students do physics and math problem sets in study groups and copy and share answers among themselves.  If you don't have friends that will invite you to a study group, you are going to barely pass.  Each problem set has a few questions on it, maybe 3 or 4 out of the 10 that are easy.  The rest are more difficult and take time to solve.  Unless you are really really brilliant, you are not going to have time to get them all.  This is one of the disadvantages of having the lack of social skills.

M Wrote:
The work load is so much that most students do physics and math problem sets in study groups and copy and share answers among themselves.  If you don't have friends that will invite you to a study group, you are going to barely pass.  Each problem set has a few questions on it, maybe 3 or 4 out of the 10 that are easy.  The rest are more difficult and take time to solve.  Unless you are really really brilliant, you are not going to have time to get them all.  This is one of the disadvantages of having the lack of social skills.

That's so weird. I never went anywhere near a study group (if indeed any existed at St Andrews or Oxford in the 1990s) and I still somehow managed to get a II.i in joint honours maths & philosophy and a masters in applied maths. That was before I was diagnosed, so maybe that only goes to show that's it's amazing what you can achieve when you don't know what you can't do!
(Aeolienne reaches for her flame-retardant coat)

I think I've it very similar to Luai.
The writer could have picked a better title for the article. I think I read somewhere on Attwood's website they people with AS are more likely to go to college.

Aeolienne Wrote:

M Wrote:
The work load is so much that most students do physics and math problem sets in study groups and copy and share answers among themselves.  If you don't have friends that will invite you to a study group, you are going to barely pass.  Each problem set has a few questions on it, maybe 3 or 4 out of the 10 that are easy.  The rest are more difficult and take time to solve.  Unless you are really really brilliant, you are not going to have time to get them all.  This is one of the disadvantages of having the lack of social skills.

That's so weird. I never went anywhere near a study group (if indeed any existed at St Andrews or Oxford in the 1990s) and I still somehow managed to get a II.i in joint honours maths & philosophy and a masters in applied maths. That was before I was diagnosed, so maybe that only goes to show that's it's amazing what you can achieve when you don't know what you can't do!
(Aeolienne reaches for her flame-retardant coat)

Actually I did go to one study group during my horrendous Erasmus semester in Stockholm. This was for the "teoretisk filosofi" course, which for me had consisted of sitting in seminars conducted entirely in Swedish which I couldn't understand. (Professor Pravitz's "helpful" advice: "You can always ask questions in English." Rolleyes) During each seminar there would come a moment when the Prof would say "en paus!" and all the other students would head to the lift without a word to each other, still less to me. At the final semester the Prof joined them for the break and - shock horror - invited me to come along. So I went to the coffee shop with them and sat there (im)patiently with my oh-so-English cuppa while they jabbered away to each other. Then as we left the Prof turned to me and told me in English that the other students were meeting up to go over the assessment exercise next week and I'd be welcome to go along. I wondered why they didn't ask me direct.

Quick_Duck

My father and I had similar specialist skills; he was good at carpentry and carving--I'm good at painting and sculpture. He had an interest in local history--I got a degree in archaeology. He wrote poetry--so do I. It's strange really because we seem to have developed these obsessional interests in isolation.
I have an interest in astronomy and science; but my way of thinking is far more arty; and I'm not brilliant at maths.

Quick_Duck Wrote:
My father and I had similar specialist skills; he was good at carpentry and carving--I'm good at painting and sculpture. He had an interest in local history--I got a degree in archaeology. He wrote poetry--so do I. It's strange really because we seem to have developed these obsessional interests in isolation.
I have an interest in astronomy and science; but my way of thinking is far more arty; and I'm not brilliant at maths.



Oh wow, oh wow...you'll never guess what I was before I had far too many kids!! :bounce: :bounce: :bounce:

I was a university archaeologist (specialising in Ancient Greek, specifically Minoan, archaeology)!!

What area were you interested in?

B Smile

Luai_lashire Wrote:
I'm now thinking about taking a year off after highschool to work, during which time I'll get diagnosed; after that, some friends want me to come with them on a year-long trip around Europe, and then the next year after that I'll go to college.

God, travelling around Europe with friends - more than I ever managed during my time at university - or maybe ever will... Sad Sad

Quick_Duck

bridie Wrote:

Quick_Duck Wrote:
My father and I had similar specialist skills; he was good at carpentry and carving--I'm good at painting and sculpture. He had an interest in local history--I got a degree in archaeology. He wrote poetry--so do I. It's strange really because we seem to have developed these obsessional interests in isolation.
I have an interest in astronomy and science; but my way of thinking is far more arty; and I'm not brilliant at maths.



Oh wow, oh wow...you'll never guess what I was before I had far too many kids!! :bounce: :bounce: :bounce:

I was a university archaeologist (specialising in Ancient Greek, specifically Minoan, archaeology)!!

What area were you interested in?

B Smile

Wow!!!…a bit of a coincidence there.Big Grin
I studied Minoan archaeology as part of my course. Which university were you attached too?
I have interests in osteoarchaeology, human evolution, pre-historic cave art and cognitive evolution; as well as Iron Age Europe and yes Minoan archaeologySmile

Quick_Duck Wrote:


Wow!!!…a bit of a coincidence there.Big Grin
I studied Minoan archaeology as part of my course. Which university were you attached too?
I have interests in osteoarchaeology, human evolution, pre-historic cave art and cognitive evolution; as well as Iron Age Europe and yes Minoan archaeologySmile


London Uni: I did my first degree at Westfield College (lost now sadly in some merger or other), and my MA at the Institute of Archaeology.

Then I worked at UCL and the Institute of Archaeology.

It all sounds more exciting than it was, as I'd only really started my career when *oops!* I had a baby, who turned out to have AS, Dyspraxia and ADHD so then I didn't work for 12 years as I was his primary carer until he went to a residential special school.

THEN I went back to work but at a local residential special school (severe epilepsy, ASD, MLD/SLd and other complex needs). I have finally found my 'niche', which is a world away from archaeology but I love it!

Fond memories of digging in Greece tho one summer many years ago! Big Grin

B Smile

Quick_Duck

bridie Wrote:

Quick_Duck Wrote:


Wow!!!…a bit of a coincidence there.Big Grin
I studied Minoan archaeology as part of my course. Which university were you attached too?
I have interests in osteoarchaeology, human evolution, pre-historic cave art and cognitive evolution; as well as Iron Age Europe and yes Minoan archaeologySmile


London Uni: I did my first degree at Westfield College (lost now sadly in some merger or other), and my MA at the Institute of Archaeology.

Then I worked at UCL and the Institute of Archaeology.

It all sounds more exciting than it was, as I'd only really started my career when *oops!* I had a baby, who turned out to have AS, Dyspraxia and ADHD so then I didn't work for 12 years as I was his primary carer until he went to a residential special school.

THEN I went back to work but at a local residential special school (severe epilepsy, ASD, MLD/SLd and other complex needs). I have finally found my 'niche', which is a world away from archaeology but I love it!

Fond memories of digging in Greece tho one summer many years ago! Big Grin

B Smile

I did my degree at the University of Bradford; but it took me a long while to get there as I failed miserably at school and so had to re-take my A-levels etc at college.
I have fond memories of digging on Shetland; in this excavation in fact http://www.shetland-heritage.co.uk/ameni...tness.html
The weather wasn’t quite as warm as it would have been in Greece. Lol Big Grin

Since leaving university I’ve got married and had two kids; and ended up working as an office administrator. I haven’t found my ‘niche’ yet; in fact if anything my current job plays to my weaknesses. Your job sounds very interesting though.Smile

Quick_Duck Wrote:
Since leaving university I’ve got married and had two kids; and ended up working as an office administrator. I haven’t found my ‘niche’ yet; in fact if anything my current job plays to my weaknesses. Your job sounds very interesting though.Smile



I think this is quite common for people with ASD?

It certainly took me until I was *whisper* 40 Tongue  to find my niche in a career!

I went back to work with additional needs because I had plenty of experience with my own DS and voluntary stuff done over the years with the family support charity we went to when he was little...and i desperately had to get a job!

For the first two years i worked part-time as day staff. I enjoyed the atmosphere, the kids and the other staff, but I really struggled with the lack of structure, the need to act independently all the time, the chaos and noise, too many people, etc, etc.

Then I changed to night staff, and everything fell into place for me! There is a very structured routine, which means I find it easier to react with intiative when emergencies happen (most of the kids have severe epliepsy) because the background is so structured, IYKWIM, and there are very few people about, etc. I was actually asked to apply for a post as a team leader (and my line manager knew about my AS), and I got it! I'm also an NVQ assessor for the night staff, which I really enjoy (all that meticulous cross-referencing, etc lol!).

My career doesn't 'match' my academic qualifications, and I don't earn anything like I would if I had gone into law or university work, etc, etc. BUT I know I'm good at my job, I'm accepted and supported by my colleagues ('Stop being so bl00dy autistic!' when I line up the folders lol) and I'm really, really happy in my job which i never thought would happen for me.

I think special ed. is a good place because the other staff are definitely not 'mainstream' themselves, so they are more accepting of difference, plus they have a good understanding of AS/ASD.

It is hard to find a niche though, so > Smile<

B Smile

Quick_Duck

It's great that you love your job so much;Smile I've been thinking of a career change myself--something more technical/practical perhaps--but it's hard. I'm worried that (what with my dyslexia/AS etc) I wouldn't get past the probationary period; and I'd make myself unemployed/unemployable.
Maybe when my wife goes back to work (which should be January) I can think about retraining in something.
But either way, I'm going to have to find a new job sooner or later. The contract I'm working on is up for renewal in 2010; and I don't think it's likely to be renewed; the customer can't really afford us.
I've thought a couple of time of getting into something related to special needs as I feel (because of my own experiences) I have some understanding in that area. I'm sure there's a niche out there for me...it's just a matter of finding it.Shy
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