Aspies For Freedom

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Officially diagnosed with Ankylosing Spondylitis (the 'other' AS!), Migraine Equivalent, Prinzmetal's (Unstable) Angina, Paroxysmal Atrial Fibrillation, Gluten Enteropathy - and that doesn't include the stuff that has been operated out of me. Tongue

Semi-officially diagnosed with Asperger's Syndrome.

silky Wrote:
What does "semi-officially" mean, as opposed to "official"


In my case, it means that the diagnostic team at the autsim society have told me that I meet all the criteria, but have not made a formal, written assessment; so I don't have to lie on insurance or job applications! However, it is written into my GP notes...

Officially diagnosed with anxiety, low mood, and social anxiety and asthma.

Unofficially - wheat and lactose intolerance - sometimes I think I have traits of attention deficit disorder - can't remember people names - inclined to make careless errors at work. Always harmless errors - but errors that get me into trouble - forever losing things.
Actually - not generalised anxiety - just social anxiety.
Officially - Asperger Syndrome / autism (depending which specialist you ask; what day it is etc.), clinical depression, OCD, GAD, dyspraxia, dyslexia, executive dysfunction, irlen syndrome, topographical agnosia, prosopagnosia, retardation

Physical: Gilbert Syndrome, ME, gluten intolerance, soft dairy intolerance, hay fever and allergic rhinitis, asthma, intestinal disorder, amblyopia, eczema, dysmennorhoea (combined with inability to spell it!), tinea versocolour, certain medication allergies - I think that's everything

Self-diagnosed: some food allergies - particularly to high potassium foods and certain additives (not officially diagnosed but the resulting sever abdominal pain and vomiting seemed pretty self evident!)
Oops, I forgot - diagnosed with Raynaud's syndrome, hypoglaecemia and low blood pressure.

Smile
and ADD / ADHD (again depending which medical professional you ask) okay, I really think that's all now.

Unless you add inability to actually remember all of my medical issues in one go!  Rolleyes
Officially, Aspergers

Semi-officially, seizure disorder (I've been to a doctor and have had ongoing problems with seizures, but they haven't been life-threatening or a serious disturbance on my daily living, so I haven't bothered to go back to a doctor about it - my yearly colds interfere more).

I might have ADHD, though I'm not so sure that I'd say I'm self-diagnosed. Possibly dyscalculia, the kind where I can't do calculations but can understand abstract math. I've had a host of other traits that could go towards a slew of diagnoses for the DSM, but neither me nor a therapist has endeavored to get me evaluated or write anything down about it.
You just reminded me beammeup - i came to the computer to pay a bill!!

Batman55 Wrote:

Wm Wrote:
Officially diagnosed:

Asperger’s Syndrome
ADHD predominantly inattentive type
Tourrette’s Syndrome
OCD traits
Impaired Executive Functions
Asthma (no longer existent due to years of shots)


I'm not diagnosed with anything except for asthma (no longer existent now), but wow, that looks almost exactly like what I have.  However, at least I have an informal diagnosis of ADHD predominantly inattentive.  And I don't have the full Tourette's, but I do occasionally have tics.


Interesting, I have tics too - both verbal and physical.
Although this is recognised by my specialist, he and I agree that in my case it is not enough for a diagnosis of Tourettes so it has been documented as a co-morbid of my autism.

Do you have both physical and verbal tics? (just curious as I am trying to understand more about tics Smile  )

Saint Wrote:

Tigger_the_Wing Wrote:
Officially diagnosed with Ankylosing Spondylitis (the 'other' AS!), Migraine Equivalent, Prinzmetal's (Unstable) Angina, Paroxysmal Atrial Fibrillation, Gluten Enteropathy -


Some of these conditions can actually be caused by medications, and not just psych meds, but the others as well. Atrial fibrillation as well as right or left bundle branch blockages can be caused by meds.

Don't become a statistic, become informed.


I have always hated taking tablets of any kind. I wasn't on any medication at all until I got the diagnoses. Whenever I was given strong pain killers (for the arthritis) or psych meds (for episodes of depression) in the past I always reacted badly, within minutes, to the first tablet, and had to cope as best I could unmedicated.

Here's a little medical history:

Ankylosing Spondylitis (the 'other' AS!) - general joint pain started in early childhood, severe lumbar pain started when I was 22; affected my eyes (iritis/uveitis) when I was 34; sent to Guy's Hospital in London and had a radioactive marker injected which enabled the diagnosis. I had kept myself mobile with a combination of exercise and very occasional use of NSAIDs during bad flare-ups, which I am now unable to take since being on warfarin for the pAF.

Paroxysmal Atrial Fibrillation (pAF) - started when I was 17, diagnosed last year at the age of 49.

Prinzmetal's (Unstable) Angina (PA) - started when I was thirty-nine, diagnosed by angiogram last year a couple of weeks after the pAF.

Migraine Equivalent - diagnosed this year by a neurologist after extensive tests (X-ray, CT scan, MRI, MRA) ruled out mini-strokes as a cause of my occasional paralysis and other weird symptoms. Probably linked to the PA - in both conditions some unknown irritant causes spasms of arteries/arterioles, depriving tissue of a proper oxygen supply. I've had symptoms throughout my life.

I have only been on regular medication since June last year; my health problems have been pretty much life-long. I take seven different medications every day in order to keep the worst of my symptoms under control.

honestjohn Wrote:
By the way, like Saint said, inform yourselves... SSRI's also Makes tourrette's syptoms.... we were given a preopnderence of evidence and a QEEG on our son supposedly showed that an ssri would help with dopamine levels for our son john and his supposed ADD.  within 4 weeks he was having impulsivity trouble (like when he was 4/5) and tourette like syptoms - just like the packing warned... not to mention a dark thought or too.  This from a kid who has a super sunny lookj on life - anyway - proof positive. we stopped and won't try anything again.  We disagreed with the diagnosis of ADD anyway, he can focus if he wants to, and hyper focus as well.........  He is asp, OCD, and supposedly ADHD non hyperactive type..


Interesting.
SSRI's don't really have an effect on my tics. What makes it worse is stress and being in unfamiliar environments. The only things that reduces it is taking tranquilizers as they calm me down (and pretty much reduce me to apathy) although they don't eliminate tics completely, they just become less frequent and tend to be simple rather than complex tics.

SSRIs do make my dyspraxia a lot worse though and they completely mess with my attention deficit issues and endocrine function - especially my liver funcion.

Fortunately, these things, for me are reversable and a couple of months after I've been off the SSRI's or have gone down to a really low dosage I'm pretty much back to normal.

It is only multiple reuptake inhibitors that really screw me up and cause permanent damage.

AS
ADD
Anxiety
Depression




I was diagnosed with Dyspraxia, Sensory ingretion dysfunction, speech disorder, autism.



I thought I was diagnosed with OCD but my mother said I never was. But it was in my records from my school.

Batman55 Wrote:

earthmonkey Wrote:
I might have ADHD, though I'm not so sure that I'd say I'm self-diagnosed. Possibly dyscalculia, the kind where I can't do calculations but can understand abstract math. I've had a host of other traits that could go towards a slew of diagnoses for the DSM, but neither me nor a therapist has endeavored to get me evaluated or write anything down about it.


I'd wonder about that one.  Most kids with ADHD I know aren't half as focused or committed in school as you seem to be.  At least in the US, one criteria for ADHD they look at is "history of poor academic performance..."


Well, one thing I've never been, is focused...at least not at school, home, work, or socializing. I had a heck of a time in school, and always dip from 'A's and 'B's to 'D's and 'F's. It was more the perception that I was bright (which mostly arised from advanced math and writing skills), that teachers usually overlooked the fact that I rarely finished anything.

In some other posts, I have detailed how things like speech and language issues and very obvious signs of being autistic have been overlooked through to ages 18 and 10 respectively, because of this reputation, and since I was quiet, never talking to other students in class (or anywhere), I was considered a good, shy little girl, and it was assumed because of this plus my reputation for brightness that I must be paying attention and understanding most things, even though this occurred very infrequently.

I can't concentrate on things like books or people talking for more than a few minutes, and have difficulty either understanding or summarizing things I've read in books very often, but since for some reason I score highly in reading comprehension tests, even when I don't remember what the story is about at all, it's taken for granted that I must be understanding (and, indeed, actually reading) when I try looking at a book. I've always loved to read, and have advanced vocabulary, but have always had trouble keeping attention to it.

Also, nearly every semester, I almost fail all my classes, but then somehow the grades get brought up by the semester. It doesn't matter how much I know on the subject, or how well I do in it; homework is something I either can't manage, or I can't find it. Fortunately for me, I'm better at testing than at homework, because tests usually demand less concentration than homework, though I wish I could have pacing breaks during exams.

Since I was starting going to school, the teachers would talk to my parents about how I would never focus, and rarely went along with what the class was doing, and so my dad would often come to school when I was in kindergarten and first grade and sit by my desk and keep my attention on the tasks and keep me focused, as I always got distracted and lost.

I had a terrible time keeping up academically in first grade, as well as most of high school because there's so much homework, so much to keep track of, and if I'm not prompted on each step I get distracted and end up sitting there not remembering what the heck I'm supposed to do, because I got distracted for over an hour staring at the ceiling, feeling a fabric, or looking or thinking about something.

Yeah, especially in elementary school, there were a heck of a lot of allowances made, though no one really tried to identify the problems or help me with it, because they heard the glowing recommendations of the last teachers and would think "oh, she couldn't possibly need help if she obviously succeeded in that environment". It's kind of like how my autism-related issues have been largely ignored, just because I have this reputation of being bright. And what frustrates me most, is how it's not until they did IQ testing indicating otherwise to them that they actually looked at my concerns! I mean, the same difficulties can exist REGARDLESS of what your IQ score is! Seriously, that psychologist needed some MAJOR paradigm shifts.

Batman55 Wrote:

aliengirl Wrote:
SSRIs do make my dyspraxia a lot worse though and they completely mess with my attention deficit issues and endocrine function - especially my liver funcion.


SSRIs of all things screw up your liver function?  That is not good news for me.

I have AS, and I was an alcohol addict for a couple years.. we're talking hard liquor here, every night..  I just hope that my sobriety has reversed the damage by this point.. seeing as I will be getting a blood test soon and liver function is one of the tests..

I have been sober, essentially, for almost a year.

Anyone have any ideas?


I have Gilbert Syndrome, so I don't know if this could be a factor in my liver function issues with SSRIs

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