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Hi,

This is my first post on Aspies for Freedom (or any other forum, for that matter.) I am a 43-year-old NT, and I have a 47-year-old brother, Pat, who has AS.

For most of his adult life, Pat had very limited communication with the rest of our family. I spoke to him about once a year. He might return my phone calls, or he might not. He was always clearly different and we always wondered how well he was making out, but he seemed to want to be left alone, so we respected his adultness and autonomy and we left him alone.

A little over a year ago, Pat contacted our oldest brother and shared that he had been unemployed for over two years, was three months behind on his house payments, had over $100,000 in credit card debt, was feeling suicidal, and wanted help. The oldest brother brought me in on the situation, and together we helped Pat navigate getting counseling and meds for his depression, filing bankruptcy, getting diagnosed with Asperger’s, applying for and receiving Social Security Disability, and finding an apartment that he could afford (his house went into foreclosure). In the process, I learned some things about AS but mostly by the seat of my pants: I was now communicating regularly with a brother who had been mostly a stranger for almost two decades, and most of the time I spent assisting him was focused on handling his financial and legal problems. I have a family of my own and, at the time, a full-time job. By the end of 2007, Pat’s bankruptcy was done, he was getting SSD payments, he was moved into his new home, and his depression seemed well-controlled by meds.

Now he has gone underground again. He has not returned my phone calls for the past month, and I don’t know why. Our last conversation was light-hearted and positive. I am really concerned about him. He lives 1500 miles away from me. He has always lived a very isolated life. When he was diagnosed with AS, he began attending a monthly support group for people with AS, but I don’t think he has any social contact other than that. I don’t think he gets together with any of the support group members outside of the monthly meetings. I am very worried that his isolation will or has led to a return of his depression. I have been suggesting for months that he find a part-time job or some volunteer work that will get him out of the house and interacting with people, but he expresses absolutely no interest. I feel sure that he spends his days holed up in his apartment, sleeping, reading, watching TV, and doing crossword puzzles. He doesn’t have any friends. It doesn’t seem like much of a life to me, and I’m surprised and disappointed that, even freed from the burden of working for a living, he doesn’t seem to have any desire to do anything worthwhile with his time.

After spending some time reading posts on this forum, I am hopeful that I can get some insight and advice from other Aspies about what might be best for my brother. What do you think about the fact that he spends so much time alone and idle? Do you think that it would good for him to find a part-time job or some volunteer work? His life seems so empty to me, and I’m worried that his depression and suicidal thinking will return if he doesn’t find a way to be involved with other people. I am concerned that he’s not really capable of living on his own without more structure and supervision than I am able to provide from this distance. I am considering asking him to move to the town where I live. (He currently lives in a major city, and I live in a small town. Life is slower here, and people are kinder and more patient.) He’s really hard to talk with on the phone… we do so much better in face-to-face conversation.

I’d appreciate any input!

Thank you.
Hi IdasSister,

It's always difficult to give "general" AS advice - there's such a wide variety of people with AS that it's difficult to say things that apply to everyone.

The first thing I can think of is not to take the phone call thing too seriously - For example, I've always hated phone calls, and I'll usually go a long way out of my way to avoid them. It doesn't really mean anything.

The next thing would be to make sure that he's actually depressed before taking any action. Take his words at face value - some people with AS actually don't want much social interaction, and shouldn't be pressured into it. I understand that a life without much interaction may seem very empty to you, but not everyone has the same values - forcing unwanted socialising may actually bring about depression, rather than the other way around...

If you wanted to get him interested in doing something, find out what his interests are, and go from there - and don't worry if his interests don't bring him in contact with other people.

Hope that helps...
It's hard to explain why phone calls are stressful to so many autistics- but they are so stressful that some of us will do practically anything to avoid them.  Writing, on the other hand, is probably the single least stressful way of communicating for most autistics, so your e-mail idea is probably a very good one.

Another obstacle is that many autistics are reluctant to ask for help, even from close friends or family.  That may be part of why it took him so long before he contacted your brother the first time to explain the trouble he was in.  He's obviously in a much better place now, but if something does go wrong again, he may have trouble communicating to you that he needs help.  You might want to ask him whether or not this is something he has trouble with, and if so, try to work out ways you can get around this barrier.  In everything you do, make sure you are trying to meet him halfway- there are going to be places where he can't change as much as you might want him to, and then you need to find other ways around a problem.
Hi Idassister
try a mobile fone for texting, i dont answer my fone, it has voicemail then i text people back. most people i know now just text me and only use the voicemail for longer things.
e-mail is great for long messages but texting is quicker and more imediate
idassister,
am recommend getting him a laptop or desktop computer [laptop would be better as he could have it in any place he wanted],there might be a charity that would give him one free.

Am have limited [free] speech when it's there,and for family to keep in contact,use texting from mobile phones like Toad,and also MSN on laptop,only have family on both of them as anymore than that is too overloading.
MSN would be good to have because it would not need credit like a phone,
and he might find the typing on a larger keyboard easier.

If he has problem with speaking on phone,there could be various reasons why,although it is a common problem with auties and aspies,theres many reasons for it,including the obvious speech issues.
But he could be bothered about not knowing what to say,silences,not being able to process the information as fast as what the other person speaks at,needs things to be predictible [which communication isn't],zoning out whilst listening so misses a lot of what is said,find it too noisy and overloading....

KingdomOfRats Wrote:
idassister,
am recommend getting him a laptop or desktop computer [laptop would be better as he could have it in any place he wanted],there might be a charity that would give him one free.

Am have limited [free] speech when it's there,and for family to keep in contact,use texting from mobile phones like Toad,and also MSN on laptop,only have family on both of them as anymore than that is too overloading.
MSN would be good to have because it would not need credit like a phone,
and he might find the typing on a larger keyboard easier.

If he has problem with speaking on phone,there could be various reasons why,although it is a common problem with auties and aspies,theres many reasons for it,including the obvious speech issues.
But he could be bothered about not knowing what to say,silences,not being able to process the information as fast as what the other person speaks at,needs things to be predictible [which communication isn't],zoning out whilst listening so misses a lot of what is said,find it too noisy and overloading....


Everyone who knows me knows the best way to get ahold of me is email.  Phone calls can be difficult for me.

I don't like asking for help because the other person might say "no".

idassister Wrote:
TheZach,

Does it bug you to get long emails, or do you prefer them short and covering only a topic or two?

idassister


For me, I tend to exchange many emails a day with many people (almost in the forms of conversations).  I like short and to the point but have learned to tollerate long and drawn out emails from the occasional wind bag.

I however can not tollerate those stupid chain emails.

Who can Tongue

TheZach Wrote:
I however can not tollerate those stupid chain emails.

For me it is important in written communication that the paragraphs are short and well spaced. I also like if it will be direct.

Pakrat Wrote:
I don't like asking for help because the other person might say "no".


another thing that you might want to take into account is the fact that sometimes, we can get into a frame of mind where we do not wish to communicate; particularly after a long period of intensive communication

It takes a lot of courage for me to ask for help but I want to do things for myself and so it is very dispiriting to then be told "do it yourself". If I could do it myself, I wouldhn't ask for help. I only ask when it is a really bad situation, even if others don't see it that way.

Pakrat Wrote:
It takes a lot of courage for me to ask for help but I want to do things for myself and so it is very dispiriting to then be told "do it yourself". If I could do it myself, I wouldhn't ask for help. I only ask when it is a really bad situation, even if others don't see it that way.


indeed.

i cant remember whos sig it is, but it reads;
"it is easier to beg forgiveness then to ask permission"

idassister Wrote:
This forum has been a real gold mine for me. I would like to do some reading on the subject of AS. I have read part of "Solutions for Adults with Asperger's Syndrome" by Juanita Lovett and found the vignettes helpful. Does anyone have recommendations?

idassister


some of the older threads here.

a potential goldmine of first hand experience,from OUR perspective

Books on Autistic Adulthood from Neurodiversity.com:  http://www.neurodiversity.com/books_adult.html
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