Aspies For Freedom

Full Version: What's the deal with autism cure?
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the thing is....if a cure was found, then it would be forced upon Aspies, either prenatally or, if they found a drug which could completely normalise us, then the existing population.

now, I am quite happy being aspie. it does not completely define who i am, but it has been in part a blessing for me.

and the overrulling opinion here, is that we dont want to be cured. and make no mistake, a cure would not be voluntary. (blargh, i am rambling in circles now).

as Michael said, it is a "throw away society", and...well, we are not exactly a popular bunch. DDoSing, slander, trolls, you name it, we've probably had it.

i have completely forgotten where i was going with this. gark.
why?

i would have to say because it is a apart of my personality, and it has given me skills.
Hi Lucario,

The biggest problem with cure research is that they are researching the genetic causes of autism, which means that a pre-natal test would be available long before any cure was found.

Given the deliberate negative publicity campaigns around autism, this would lead to autistic people being wiped out.

I think sometimes that when autistic adults wish for a cure, it is because they do not quite understand the full extent of what a cure would entail - you can't get rid of just the issues and leave everything else. The things you are interested in would change, the ways by which you experience the world would alter, and while you would have more ability to fit in with other people, people would also have more power over you.

That being said, it's entirely a personal choice whether you would support this or not - for the most of us here, though, we do not support a cure because we would have no say in a cure - society would force it on us.

Moo Wrote:
The view i have is that asperger's is not something i have but something that is part of me as a person. It is impossible to remove it from me because it is not a thing. If there was some magical way to take Autism away from me it would change my personality, my thoughts, i would most likey become less intelligent since Asperger’s (I am unsure about Autism as a whole) is very often associated with being very clever, especially in areas such as maths. If i was not Autistic then what would i have left of me? Surely things would need to be added to me otherwise i would not be complete. It think it would be a lot easier to make a nt person from scratch rarther than make an Autistic into a nt. I don't see the point (obviously i see the point with Autistics that are so low functioning they are only suffering but i see no way to be able define this accurately to make this judgement over someone)

Autism is a collection of behaviours that have been grouped by a human being and just because certain behaviours have been put under one group doesn't mean it is then suddenly something real. I realise i don't make a lot of sense but think of this, if one person says this is right and that is wrong, does that make that wrong? And is what the person just said real? It is only real if there are people around to define it as real. When those people are gone then it is obsolete. If we lived in a society that was mainly Autistic then those who are nt would have the disorder that needs curing. Just because there are less of us does not make us any less right or wrong.


yeah, that about sums it up.

Jay9 Wrote:
They should still pursue making a cure & it dosent have to be mandatory.  I know I would go straight for it but a lot of aspies wouldnt & I pay my respects to them.  But yeah we should not stop science, I dont want my kids to go through what I did.


and you honestly think it would not be mandatory?

get real.

anything which cures this "awful, misery causing, life destroying, expensive disease" is going to be rammed down our throat's/veins quicker than you can say "human rights infringment"

Jay9 Wrote:
I don't know about you, but if someone is diagnosed with low functioning autism, I think I would feel bad for that person & try to help him by finding a cure & letting him live a normal life.

Maybe we should just let our cancer & aids victims die slowly rather then try to save them.

The scientists are only trying to use their judgement to help as many people as possible.

It wont be mandatory because we need aspies for our computer programmers, technicians & all our other skills.

Once they find a cure & the dust settles, things will be better, I know it can be unusually hard to except a small change but its for the better.


really?

the Scientists are being sponsered by generimegapharmocorp. they are in it to make money.

and as for the comment about the LFAs?
i suggest you have a word with Amanda.

Jay9 Wrote:
He might definetly be right, but by going against a cure, hes putting himself in front of the very low functioners that want to be normal, sounds pretty selfish to me.

What about the severe ones that can't talk, do they have a say in this?


as i said.
have a word with Amanda.

she is non-verbal, but I must admit that at times I feel slightly threatened by her sheer intelligence and the way she can put an idea across very concisely.

and selfish?
perhaps. it is a possibility.
but its a surprising number of us that do not want a cure.
as far as i can see, you are here to post against the very core ideals of this forum.

"not talking is not the same as having nothing to say"

GnosisRoads Wrote:
Why would society force if on you? At most I could see government funded social services for people with disabilities being eliminated for Aspies and autists.


For starters, autistic traits would no longer be allowed for in the workplace - if a "cure" was available, the option for reasonable accomodation would be taken away.

Secondly, most parents would give an available cure to their children - probably while they were too young to understand what it meant.

Third, as you say above, funded social services would be taken away. For people unable to work, especially considering there would no longer be reasonable workplace accomodation, the choice may be between cure or starvation.

Fourth, those who were able to survive the other three points would still be ostracised by society for their choice, and placed under immense social pressure to conform.

GnosisRoads Wrote:
Why would employers no longer hire those with autistic traits? If autists are worth hiring in the present I do not see how this will change if a cure is found.


Right now, not modifying the workplace to reasonably accommodate an autistic person would be considered discrimination.

If the cure option was available, the behavior would be seen as the persons choice, and firing them for this behavior would no longer be considered discrimination.

It's pretty well established that the qualities involved in getting a job are entirely separate to the qualities involved in keeping a job.

EvilZakkie Wrote:

GnosisRoads Wrote:
Secondly, most parents would give an available cure to their children - probably while they were too young to understand what it meant.


Probably, though parents would be trying to do what they think is best for their child. Educating them to see otherwise should be the duty of Aspies, autistics, and their NT supporters.


It's true that parents do "what they think is right" for autistic children - unfortunately, parents can justify just about anything in the name of what they think is right.

I don't see this as merely an "our job to educate" issue - I believe that drastic alteration of neurology is unethical in and of itself, and as such, should not be permitted.

In any case, my original statement was that society would force a cure on us - and it seems that you have acknowledged that it would "probably" be forced on autistic children.

GnosisRoads Wrote:
Only those services available to those considered disabled would be taken away, and given my political ideology, social democracy, that would still leave a decent level of support for autistics. Also, given that they could find employment if they took the cure their unemployment staus could be seen as voluntary.


Many autistic people need specific kinds of support to survive. My point here seems to have been reiterated - their unemployment status would be seen as voluntary, thus creating the choice between cure and starvation.

It's great that your political ideology would still leave a decent level of support for autistics, but in reality this would not happen.

GnosisRoads Wrote:

EvilZakkie Wrote:
Fourth, those who were able to survive the other three points would still be ostracised by society for their choice, and placed under immense social pressure to conform.


Those with autistic traits are already ostracised to some degree already and there is social pressure for them to conform to NT standards.


Very true. Now imagine how much worse this would become if autistic people were seen to be choosing the way they act.



I should also point out that I believe that a real cure would be an impossibility - after all, autistic people have structurally different brains, not merely differing chemical levels.

Generally, when I debate the cure idea, it is because I believe the myth of the cure is damaging, not because I believe that the cure is going to happen.

The majority of autism fundraising money currently goes into cure research, rather than support services. If this could be redirected into something that would actually help autistic people, rather than aiming to destroy them, things would be much better for autistics.

GnosisRoads Wrote:
Autism is seen by the public at large as a disability. It is not considered unethical to cure someone of a disability. Unless public opinion changes if a cure is found it will be used and seen as ethical. In fact, parents who choose not to use the cure may be seen as bad parents.

GnosisRoads Wrote:
If their unemployment is the result of not taking the cure why can't it  be seen as voluntary unemployment?

GnosisRoads Wrote:

EvilZakkie Wrote:
Very true. Now imagine how much worse this would become if autistic people were seen to be choosing the way they act.

They would be, to some degree, be choosing the way they act.


It seems that you agree with most of what I have said - our only difference appears to be that you see no issue with someone being forced into personality altering surgery in order to gain basic human rights.

Reasonable accomodation in the workplace isn't really too much to ask, and it's also reasonable to disallow parents from authorising irreversable brain surgery on their children. Having the cure option available would make these two things impossible.

GnosisRoads Wrote:
A cure might be possible, though it would probably be necessary to change the physical structure of the brain. We're a long way from that. Research into finding a cure may help us understand the how the brain works, how NTs and Autistics differ and why, perhaps even how we could combine the benefits of autism and NTness.


It's true, but a much more effective way to help us understand how the brain works is to research how the brain works.

The ethical issue with removing "autism" via this kind of surgery is that it's core personality that is being altered. If it were merely skill levels, it wouldn't be ab issue, and research into "combining the benefits of autism and NTness" would not be such a disturbing concept.

Besides which, it's quite easy to combine the benefits of autism and neurotypicalism: Find one autistic person and one neurotypical person, then ask them to work together.

GnosisRoads Wrote:
Being forced by economic circumstances is a lot different from be coerced by the state.


True - the phrase I used was "society would force it on us". Economic forces are a part of our current society.

GnosisRoads Wrote:
Those employers who find reasonable accomadation profitable now will find it so if a cure is found. Letting parents authorizing irreversible is not controversial to the population at large. Parents of children with severe epilepsy often take out half the brain with no ill will by society.


It doesn't quite work that way - employers do not wish to make allowances for individuals, and will not do so without justification. If a cure was available, they could justify not making reasonable accomodations. As it is, they cannot.

And again, I agree that the autism cure is "not controversial to the population at large", and will bear "no ill will by society". That's the problem.

GnosisRoads Wrote:
Seeing how NTs and Autistic brains differ will give researchers different avenues unavailable to them otherwise. Also having a concrete goal probably helps with funding.


There's plenty of positive goals researchers could be funded to engage in, and no reason that a researcher couldn't examine the brains of NTs and Autistics regardless of what was being researched.

Some examples of positive research would be the cause of increased prevalence of seizure activity in autistic people, cognitive development strategies, etc.

GnosisRoads Wrote:

EvilZakkie Wrote:
The ethical issue with removing "autism" via this kind of surgery is that it's core personality that is being altered.

As a transhumanist I do not think that this kind of surgery changes the core personality.


This doesn't make much sense. Do you mean "As a transhumanist I do not have an issue with altering core personality"? Or possibly "As a transhumanist I do not believe in the existence of core personality"?

Autism influences every aspect of a persons personality. Remove autism, and you have a different person.

GnosisRoads Wrote:

EvilZakkie Wrote:
Besides which, it's quite easy to combine the benefits of autism and neurotypicalism: Find one autistic person and one neurotypical person, then ask them to work together.

Combine them in one person., I meant


I know - I was indicating that there's no need to do so.

Batman55 Wrote:
GnosisRoads is pro-cure.  As such, I will not be interacting with him on this forum, and hopefully others on here will follow my lead.


I don't really think that's necessary - if someone's open enough to talk, then we may as well talk to them. After all, we have to influence society somehow, and one person at a time is better than nothing.

Many people simply don't have all the facts, have never been exposed to the ideas before, or are simply in a panic about their children. These things can pass.

It's only the ones that are actually insulting about it that should be avoided entirely.

GnosisRoads Wrote:

EvilZakkie Wrote:
True - the phrase I used was "society would force it on us". Economic forces are a part of our current society.


Perhaps I have been debating politics for too long. Force is usually linked with government coercion in political debates.


That's fair enough - I was referring to society as a whole.

To clarify, I don't believe anyone will pass a law making a cure mandatory. I do, however, think that if one existed, society would find a thousand little ways to enforce it.

GnosisRoads Wrote:

EvilZakkie Wrote:
And again, I agree that the autism cure is "not controversial to the population at large", and will bear "no ill will by society". That's the problem.


My point was you will not be able to force parents not to use the cure unless you convince society at large that is it unethical.


True, but cut the research funding, and the problem goes away. I think it's entirely possible to convince parents that the funding is better spent on things that will actually help their children.

Also, as I mentioned earlier, I don't actually believe the cure is realistic - at least, I don't believe that that degree if genetic alteration will be available in our lifetime. The reason I debate against the cure is due to the dangers of the myth of the cure.

GnosisRoads Wrote:

EvilZakkie Wrote:
There's plenty of positive goals researchers could be funded to engage in, and no reason that a researcher couldn't examine the brains of NTs and Autistics regardless of what was being researched.

Some examples of positive research would be the cause of increased prevalence of seizure activity in autistic people, cognitive development strategies, etc.


The researchers think that the cure is a noble goal and I see nothing wrong with offering adult autists the choice to stay autistic or not. Also I doubt that those who fund the research would be as generous for those other goals as for the cure.


The original point that prompted this debate was that if a cure was available, society would force it on us. You don't appear to disagree with this.

Also, the fact that the researchers think the goal is noble is irrelevant. If a researcher has a point to add to the pro/anti cure debate, I'd look at it - but them merely thinking that they're right isn't worth talking about.

GnosisRoads Wrote:
I meant that someone is still the same person as they would be after the cure as they were before the cure. We are talking about identity here. I am taking the view that there is enough continuity between both selves to say that they share the same identity.


It all depends on how you define identity, I guess. To me, identity involves interests, methodology of thought, ethical systems, the criteria for evaluating other people... All these things would be drastically altered by switching neurotypes.

Granted, these things can evolve naturally - but each new thing is built upon the old, which makes it very different...

GnosisRoads Wrote:

EvilZakkie Wrote:
True, but cut the research funding, and the problem goes away. I think it's entirely possible to convince parents that the funding is better spent on things that will actually help their children.


Are parents of Autistics the main source of funding for Autism research?


Yep - or at least, they're a significant chunk of it. The other portion is government funding, which is also influenced by popular opinion.

GnosisRoads Wrote:

EvilZakkie Wrote:
The original point that prompted this debate was that if a cure was available, society would force it on us. You don't appear to disagree with this.


Everyone, whether NT or not is forced, to abide by the decisions of their parents when they are children and by economic realities when they are adults


As I've said many times over, this is exactly my point.

GnosisRoads Wrote:

EvilZakkie Wrote:
Also, the fact that the researchers think the goal is noble is irrelevant. If a researcher has a point to add to the pro/anti cure debate, I'd look at it - but them merely thinking that they're right isn't worth talking about.


That they mean well has no relevance to whether or not a cure is a good thing, but it does speak to the character of the researchers.


I haven't called the character of the researchers into question.

GnosisRoads Wrote:
If we can genetically engineer away the above disorders and poverty I do not see why that is a bad thing.


At the end of the day, the cure ideology is only dangerous if it would encourage others to also support the cure viewpoint.

GnosisRoads, it would appear that we are not going to agree, as the basic ethical precepts we are debating on are out of synch - it would be like having a health care debate with someone who believed that the economy was more important than human life. It can't be done.

Your basic precept is that genetically altering people to a state of "perfection" is a desirable goal. Our basic precept is that human diversity is a desirable thing. These two things do not mesh in any way, thus making further debate useless.

That being said, as per my first sentence, I do not believe that your ideology is a threat, simply because no-one is going to back the idea of replacing humanity with genetically altered super-people. In fact, a curbie reading your ideology may have to think twice about their own ideas of genetic supremacy - so it would be a great help if you were to head to the Autism Speaks forums and try to convince the people there...

In the meantime, I think this conversation has run its course...

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