Aspies For Freedom

I agree.  I'm leary of this sort of thing.  I mean are there names attached to the entries or is it just for purpose of statistics, etc.?  I am hoping that maybe someone will come along who has more information regarding it, but at any rate, I wanted folks to be aware.

If something like this is not handled correctly, it can have the potential to become a human rights violation.  I'm hoping that isn't the case here, but so far I haven't found much on this at all.  I just received the first article in my Google alerts today or I wouldn't have known anything about it.

There's more than just names:
"House Bill 263 would implement a statewide list, complete with medical histories, that would be available to researchers and families seeking resources. "

I'm not meaning to sound rude or anything, but I've seen discrimination happen even despite the ADA.  Its as simple as an employer's labeling of their reason for not hiring as something other than AS.

I certainly hope though that this would never become a problem.  I hope that  they would never keep a database of names that could be matched with the data.  That in and of itself would be my largest concern.

ADA has no teeth b/c due process is not spelled out.  IDEA is very precise and is therefore respected.  Every state (USA) has a disability law office that can help at no cost, but you can imagine their budget and weep.

This might be something the disability law office my want to spend their limited $$ on.  If not them, its right up the ACLU's alley.  Someone in that position could do a lot of good sueing!

IDEA my be respected by many, but you can find endless stories online where IDEA has not been enough to protect our children in the schools.  Actually, my youngest child is also AS, and we have a horror story of our own with respect to the failure of IDEA to protect and serve.  

I was told that there was nothing more that could be done for my child aside from "residential treatment."  This was a flat blatant lie given to me by a so called professional who did not desire to do the extra legwork required to learn about AS and help my child. Needless to say, I now homeschool and things are coming along very nicely.

That was one of my first thoughts regarding this as well.

At any rate, it is important that persons know and have the ability to accept or refuse whether or not to have their personal information used in such a database.  Furthermore, if minors are involved, their names should be in no way connected with the data that their parents allow for submission.  Also, there should be no other way to obtain their personal identities such as attached SS numbers, etc.  

Perhaps some good may come of the registry, but there is a lot of potential for abuse and those who dismiss that potential are not looking at all sides of the issue.  It is important that the Autistic community be aware of these types of things and that they be discussed among us.  Hence my posting of the article.  

I am curious, what exactly is meant by "*** chill?"

test4echoyyz Wrote:

I was told that there was nothing more that could be done for my child aside from "residential treatment."  This was a flat blatant lie given to me by a so called professional who did not desire to do the extra legwork required to learn about AS and help my child. Needless to say, I now homeschool and things are coming along very nicely.

Yes, but with IDEA, you can call the state ed dept or the disability law department and they will follow through.  If its serious enough, they will send you an advocate (at which time the school personell start wetting themselves).  I just had to do that with my son's team.  They were trying to push me around.  I don't know what parents who are not savvy do, however.

A section 504 of the ADA is as good a the team that supports it .  If they don't want to do anything (which is typical b/c schools do not get reimbersed through ADA - they do through IDEA).

We lived in a rural area and the ride to the school was over an hour away.  The running was literally wearing both of us out, he was extremely unhappy and he wasn't learning anything but he was losing his self esteem.  

That coupled with the fact that they were going to try to push me into placing him in a residential facility was enough. Thus, I decided to do what I thought was the savvy thing and take him out and educate him myself.

I'm glad that you have been able to get things straightened out for your son's team.

The ADA doesn't stop discrimination by employers, they can just make up a BS reason to refuse to hire you or to fire you and it's almost impossible to prove their actual motives. You can try to legislate discrimination out of existance but that doesn't mean you really got rid of discrimination.

Random Joe in the 1930s: "you're paranoid if you think Hitler wants to kill all the Jews."

Thank you.  I so agree with you.  I wish I had sued them.  I was just so overwhelmed and didn't have the energy left.  Instead I wanted to direct what energy I had towards helping my son.  It hasn't been an easy road, but I think it is definitely paying off.

I forgot to mention, I think your image there is awesome.  Does that say Co-exist?

Awwww Lol poor lil chickens!