Hi Josh,
Just wanted to let you know that there's quite a big distinction on this site between "treatment" and "cure".
It sounds like most of what you're talking about is treatment - which most of us have no problem with. This includes things like counselling, medical treatment for comorbid conditions, etc.
The reason we have particular issues with Autism Speaks is that it advocates for a "cure", while actually diverting funds away from treatments. A cure would be to literally make someone not autistic any more, rather than simply helping them with issues. Most of us here believe that autism is part of our personality, and we would not wish to alter this.
The other problems we have with Autism Speaks is that it funds research into pre-natal testing for autism, and that it deliberately promotes negative stereotypes of autism.
Hope this helps.
Hi EvilZakkie,
Thanks for the response. I can definitely understand the argument presented against a "cure" though I don't necessarily agree with it.
I guess what really piqued my interest is the number of posters who self diagnose and don't seek clarification or confirmation. I am aware the internet provides so much info that it seems like one can safely self-diagnose but I am left wondering why individuals with concerns regarding potential disorders do not seek opinions from mental health professionals. Additionally, it seems like many posters are skeptical of diagnoses they receive from professionals.
Thanks again,
Josh
Basically, the only reason to seek an official diagnosis is if you feel the need for counselling or support services. For many people, realising the diagnosis fits them has come long after they have ceased to need these services - for example, parents of autistic children often realise that they are autistic or aspie after finding out that their children are on the spectrum, but by this stage they may be in a relationship, have a steady job, and/or generally happy with their life - so no counselling required. Autism often has positives as well as negatives, and for many people, once their initial adjustment to the world is complete, they do not require anything more.
Also, some people only want the diagnosis as a tool for self-examination, so the effort required for a professional diagnosis is overkill.
There are also some people with real issues that don't seek services that they should, but these people are generally in the minority.
As far as disbelieving diagnoses recieved from professionals, the main issue is the difficulties in being able to see a specialist - quite often, to see a specialist, a referral from a non-specialist is required, but these people often do not have correct information. For example, people have been told they do not have aspergers or autism because they are in a relationship, because they made eye contact, or even because the psychologist "doesn't think the label is helpful".
Hi MomofHrick,
Please excuse my use of technical terms, I don't get to do much nontechnical writing nowadays. Since you brought it up, can you explain to me why posters on this board prefer terms like "autistic" and "aspie"? The reason I use terms like "mental disorder" or "individual with Asperger's disorder" is so that I identify relevant info without labeling the person as a diagnosis. The person always comes first.
As far as the autistic community goes, person first terminology implies that one thing can be seperated from the other (i.e. autism from the person). The reason "autistic" and "aspie" are used is that they are identifiers.
For example, I don't "have" aspergers, in the same way that I don't "have" maleness - I am aspie, in the same way that I am male.
The term disorder isn't really appreciated much on the site, as part of the purpose of the site is to state that autism is a natural neurological variation, rather than a disorder.
Just had a thought - this guys website may help you understand our position a little:
http://www.tonyattwood.com.au/
He's one of the leading specialists in aspergers syndrome, and he's also quite well-respected amongst the autistic community - the website may help you understand our position from a psychological point of view.
*grins* I think we've scared him off...
Hi everyone,
Thanks for the great replies. I appreciate all the unique perspectives presented.
I would like to respond to some individual posts that stand out to me. However, I am rushing to meet some obligations on the school front. I will reply as soon as possible.
Thanks,
Josh
Glad to hear it - take care!
Before I go, I do have to admit that I am still confused/concerned about the way self-diagnosis is portrayed here. I have noticed a number of threads with individuals tossing around psychiatric terms and asking others for advice regarding diagnoses. I respect the rights of individuals to seek out information on the internet and to identify with labels that seem to fit how they feel. Still, I would like to point out one important thing I have learned in my training; each individual sees the world, including themselves, through a filter that is composed of their thoughts, feelings, and memories. With this in mind, I would not even recommend for a diagnostician with years of experience to try and diagnose themselves.
Individuals should be very skeptical of taking diagnostic or treatment advice over the internet. Even online assessments can be misleading and incorrect. If you have any questions or concerns about how you are feeling I would suggest meeting with someone who has appropriate training.
Best,
Josh
I agree completely - except to say that for people that don't feel they require counselling, support services, or another form of psychiatric help, an official diagnosis can be "overkill". Many people just look into aspergers or autism as a form of self-understanding, and don't really need anything more than that.
If anyone feels that they need actual psychological or medical help with issues, the official diagnosis road is a much better one to take. Also, I second the above statement that people shouldn't take medical advice over the internet in lieu of actual professional help.
Even if you are only looking to self-diagnose, I wouldn't trust online assessments too much - they're very good tools to start asking yourself questions, but don't rely too much on the "final score" being accurate.
Did I chase him off Zacchie?
I agree with you about seeking out specialist help. I just got the feeling jos didn't listen and he made judgements that I felt were incorrect. People took the time to respond to him - but I feel he learnt little. Disappointing.
Nah, I don't think you did. I thought we'd scared him off the first time around, but it seems like it's more a case of him only checking in every week or so.
It sounds like he's pretty busy, so he probably read through the thread fairly quickly - I think if he ever gets the chance to sit down and digest it all, he'll understand what we're saying.
Let me start out by saying that I am a diagnosed aspie (just last year). As a child of the 1950s and 1960s, I was subjected to all sorts of mental treatments for my supposed schizophrenia (the most common diagnosis of aspies under the DSM-I and DSM-II). Today, I am a tenured college sociology professor.
Although I have no problems with "diagnosis," I think it primarily has relevance under the medical model, i.e., if one wants to receive some kind of therapy for being an autistic. However, the aspie construct works outside of the medical model, too, i.e., under (the social model of disability. It has helped a lot of people come to terms with their lives and biographies.
In other words, the medical model is not the only game in town.
It's why I'm pressing for a simpler assessment procedure based on the Cambridge AAA model for those who would like to 'know' rather than those who want to have medical/employment benefits or adaptations.
Not familiar with the term. Is the Cambridge AAA model Simon Baron-Cohen's Autism Quotient (AQ) test?
Thank you. The file opened in Excel fine, but the macros were disabled due to my security level. I would need to adjust it.
Yes I completely agree, but here we have 10 minutes with the GP everyone accepts this, but when I saw a psychiatrist last year for alleged depression, I was very shocked & surprised to find that after the initial 1/2 hour consultation... 10 minutes a session!
How can anyone learn about a person and make decisions based upon 10 minutes a month?
10 minutes are pretty standard for med checks. What I do is to always schedule hour appointments. (My initial consultation was 90 minutes.)
The problem is that most younger psychiatrists are poorly trained in doing psychotherapy. My psychiatrist is in his 60s, which I prefer.
I agree. My father is now, finally, being treated as an aspie by a psychiatrist. At my urging, he is receiving Lexapro (which I also take), which has radically transformed his behavior (for the good).
The part that saddens me is that my mother is dead. My father drove her crazy with his lack of social skills. She thought that my father was being that way on purpose. I think it would have enormously helped my mother to know that he is autistic.
Mark - I am curious to know - How has Lexapro transformed his behaviour?
He was extremely unhappy in the assisted living facility (including hitting staff who tried to help him), and he was behaving inappropriately toward women (both staff and residents). That is all gone. For the most part, he is back to his old self (such as it is).
One of the two psychiatrists who diagnosed me as an Asperger's autistic actually recommended against my receiving therapy. (The other was my old child psychiatrist from the 1960s, who originally diagnosed me with child schizophrenia, whom I still keep in touch with every few years.)