Aspies For Freedom

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Welcome to the Disability Community
January 2nd, 2008

Here’s a post, inspired by recent readings online…Please don’t think I’m talking directly to any one person (don’t you hate having to write disclaimers on anything that touches society’s deep prejudices?), and I’m not trying to insult people. But I’m frustrated at something I’m seeing over and over. This is written strongly because that’s my style and because I think that’s the only way to make my point clear. Once again: I’m not trying to hurt anyone! So, without any more disclaimer, here’s my piece:

To autistic self-advocates everywhere: Welcome to the disability community!

Yes, that’s right, you’re DISABLED. Yep, you can pick that word apart and tell me why you aren’t, but, trust me, you are. And, no, I don’t mean that you are less or more functional than anyone else. I mean that you are part of a community defined by society’s institutions and programs, a community formed because of our minority status and the fact that society expects certain strengths and weaknesses, and anyone who doesn’t have that same pattern of strengths and weaknesses is going to have trouble in this society.

Yep, that’s the social model. It’s not the “OH MY GOD, I AM SO BROKEN AND LIFE SUCKS AND I WANT TO BE NORMAL BECAUSE EVERYTHING WOULD BE WONDERFUL AND I WOULD HAVE LOTS OF MONEY AND A GIRLFRIEND AND A NICE CAR” view of disability. But it is recognition that we have trouble in society as it is currently set up. You’ll also notice that it is not a view that accepts society as a static, unchangeable, and morally good entity, but rather as an institution that can and should change - even when people have a hard time seeing how it could.

In addition to this, I want you to know that there is “nothing new under the sun.” You don’t need to reinvent disability theory, come up with a brand new way to fight prejudice, or even learn “how the enemy thinks”. What you most need to do is to look at what worked and why, for other disabilities. Just possibly, your philosophy of disability isn’t as fully as informed at it could be if you haven’t read general (non-autistic) disability literature - and maybe you should read that literature before you tell us your philosophy, especially if you don’t respond well to criticism.

Then take your identity, as a disabled person, and your philosophy, hopefully in-line with many other disability rights thinkers, and learn how to apply that to practical, everyday situations. Of course to do that, you might want to read and learn about how other disabled people managed to influence the world around them. So learn about it!

One example - although the victory isn’t yet fully realized - find out why there public transit has to at least make *some* effort at accommodation in the US. Yep, I know it still sucks, and there are tons of problems - I’m not saying anything different. But I can assure you of this: Without good advocacy, there wouldn’t be a wheelchair lift on any bus except one owned by a nursing home - and even that one might not have one.

Find out why people with cerebral palsy can go to US schools today, even if their natural speech is hard to understand, thanks to assistive technology and good law. Sure, schools, technology, and law aren’t good enough yet, but they are way better than they were 40 years ago. Why?

Better yet, learn how you can make a bus in your city more accessible both to yourself and to someone with a different kind of disability. Learn about your schools and what can be done to help others with disability. Not just autistic people, but people with all types of disabilities. Do you know what you will find if you do this? You’ll find out quickly that it also helps you, even if that wasn’t the goal of the movement.

For those of you who are already doing these things - thanks! It’s good for us to stop reinventing the wheel once in a while.

Posted in Advocacy, Social Model

  http://thiswayoflife.org/blog/?p=287

I do find autism to be a disability...........one which I have found ways to work around. But for me to say that NT's spend ridiculous amounts of time and energy on socializing is judgmental IMO. I don't have that ability or inclination. I am indifferent to what they spend energies on. I'm even indifferent to the priorities of family members such as parents or uncles,aunts and grandparents when they were all around. I just couldn't understand their needs for such close and frequent social contact. I was expected to act more emotionally involved than I was. For example it was not enough to say a polite thank you for any gift. I was expected to gush all over the place. I didn't see the point as I could see the gift giving was just done out of obligation and usually involved something used and stained. Or if I got inappropriately excited about something such as a trip to the beach or woods, I was also looked down on.

nathanww Wrote:

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But for me to say that NT's spend ridiculous amounts of time and energy on socializing is judgmental IMO.


That's exactly my point--it's possible to pick certain stereotypical qualities of either neurotype and then use that as a reason why that neurotype is a disability.


Yah I hear ya. I wouldn't ever want to speak to someone about them having a disability. I know my auditory processing issues and other sensory issues have widely narrowed the field of jobs that I can be successful at. I am not bothered by that. Yes I feel I have a disability in a society that is heavily dependent on auditory abilities.

Tigger_the_Wing Wrote:
I don't think that we can do anything here except 'agree to disagree'.

As to autists going off on our own path, ignoring the crowds of disabled who have done this already, well DUH!!! We're autistic, right? That's part of the parcel!

The 'wider disabled community' doesn't seem to understand that for us it is not a question of feeling superior to other disabled, just so different that we have to do things our way.

We may appear to be all here, in a group, at AFF - but in reality we are in our own little rooms, sitting at separate keyboards, thousands of miles apart.

You can't herd cats.

You sure can't herd cats..............only time my 4 cats can be herded is when it is wet food time............than they scatter afterwards.

As for a connection to the disability community, I fit in with several people of varying disabilities. Friends I have are either in that category or involved with someone who is. I had a close friend who was deaf and another who was blind.

erkolos Wrote:
I believe EvilZakkie is refering to Zoran.

I'm currently hunting for a simply explanation of what's the difference between disability rights movements and civil rights movements.

Funny how many autism organisations are listed in the wikipedia list of disability rights movements. Including AFF and Autism Network International.


Oops, yep, I was - I quoted Anbuend because that was the quote he failed to address in his latest post.

Zoran Wrote:
I've accepted the social model of disability. I've publicly acknowledged that I'm disabled. While I don't think I have ever considered myself better than other disabled people, I will try harder to not consider myself better than anyone else, since that's another failing anbuend has so helpfully pointed out.

I'm not really sure what else you want. I have agreed with everything that's been said and am trying to adjust my behaviour accordingly.

So, as I said, what do we do now?

Or are there still additional personal failings you wish to point out because I need to work on them?

If not, can we finally move on to discussing the ideas involved. Because I would really like to know: having recognised our far-ranging disabilities, what do we do now?

Regards,

Zoran


You may not have noticed, but I quoted Anbuend stating that the social model of disability was to do with "groups of people who've been disabled by society in a form that's been approached in a particular way -- largely a medical way" in my last post.

This is why I asked if you had been reading the thread, as you seem to have still included the "We're all agreed then that being a woman/black/gay/non-Christian/poor is a disability" statement.

erkolos Wrote:
Ofcourse it may be something great about labeling it as a disability right issue which I haven't heard of. To be honest I just have the feeling that disablity rights against autism discrimination would get less attention than civil rights against autism discrimination, but that may be prejudice.


The main advantage would be in strength in numbers. At the moment, with only 1 in 150 people diagnosed with autism, our numbers are pretty thin. By becoming part of the larger disability movement, our numbers are greatly increased.

Also, there's specific overlap with certain groups - for instance, I imagine that there would be Downs Syndrome advocates arguing against pre-natal testing, which is something we could join forces on. And there's plenty of non-autistic disabled people undergoing abusive "treatments", etc.

strangefairy Wrote:
I was serious, and did not intend to be hostile, when i said that i hesitated to join forces with Disablity Rights, because i had encountered(i would give some specifics if asked), once, a call for legislation that might require me to violate my religious beliefs, and some things i have seen where i agree with positions and goals but thought the tactics being used to get them wouldn't work,or arguements were presented that i thought wouldn't stand up to scrutiny.


I'm curious about this. Which legislation would require you to violate your religious beliefs?

As far as tactics and arguments go, if you think different tactics or arguments would work better, then I don't think many people would have a problem with you saying so... Besides which, disability is a pretty wide group, and I'm sure a huge variety of different tactics are used by different people.

strangefairy Wrote:
And i'll tell you why I'm a Nazi. A few years ago, my 85 year old mother , who was seriously ill and had had another of a series of strokes, was in a state where she was dying.My siblings and i were asked what we wanted to do.Because of her age, overall condition,and her own religoius beliefs and and what she had told us she would want for herself, we (not i alone, all of us),decided that she should be given no more treatment,and allowed to die and make the journey into the afterlife.Because i agreed to this, According to some Disability Activists, i must think it's ok to massacure disabled people.


I think again that it's important to remember what a big group disability advocacy is. Not everyone will have the same opinion.

I tend to think that euthenasia for terminally ill people is a publically acceptable idea for most people these days - especially if she had given you some indication that it's what she would have wanted...

Zoran Wrote:

EvilZakkie Wrote:
You may not have noticed, but I quoted Anbuend stating that the social model of disability was to do with "groups of people who've been disabled by society in a form that's been approached in a particular way -- largely a medical way" in my last post.

The criteria established in the original post were:

  • disability is unrelated to functionality;
  • it's being part of a community defined by society's institutions and programs;
  • that community has a minority status;
  • members of that community possess different traits (strengths and weaknesses) to those society expects.

Nothing about medicine there.

Are you now saying that the original post was wrong? Or at least incomplete? It would seem to be a major omission.

Yes, I am. I raised the point myself, had it addressed by Anbuends statement, and was satisfied. This is why I asked if you had been following the thread - the omission was corrected.

Zoran Wrote:
Well, let's see…
Has the inferiority of women been supported medically? Yep.
Has the inferiority of various racial groups been supported medically. Yep, again.
Has homosexuality been regarded as a medical condition? Oh, definitely.
Is religion regarded as a medical condition? Well, there have been a number of attempts to explain religion in psychological terms and religious experiences in terms of neurology and brain chemistry, so, yep, again.

All agreed. But these things are no longer approached from a medical point of view, and thus are no longer considered disabilities under this model.

Zoran Wrote:
So, like I said, apparently we're all agreed that being a woman/black/gay/non-Christian/poor is a disability. You certainly haven't said anything to suggest otherwise. You've just ignored the question.

And I'll reiterate that we have not - the point was addressed, the conversation has moved on. Given that I do not agree with your first sentence, I have ignored the question, and will continue to do so.

strangefairy Wrote:
My mother was not euthanized.We ended most of her treatment, but no action was taken to actively shorten her life. at that time, in that place, it was not legal.


Oops! Apologies, that was the wrong term to use...

strangefairy Wrote:
I just don't want a law that would not allow me to be allowed to die if my beliefs say it's the right time.


Fair enough - but "Not Dead Yet" are just one small group. Disability covers a very large number of groups, and no-one is going to agree with everything everyone says.

I tend to agree with you, providing that there's some indication that it's what they would want.

hmm true but theirs also just bullshit, AS is not a disability, but if we are accepted or not that doesn't matter,[one may concider it a social disability at most if ones desperatly inclined it is however not mental phyisical or non-abstractly, or accdemically, and with almost any verb a disability, despite why not have tolerance personaly cure bies remind me more of nazis then any other group in history even number 54 down on that list, were people who did mass murders].
O_o, go talk to a doctor not my sig.
Also I said socially it can be a disability.

johnH Wrote:
hmm true but theirs also just bullshit, AS is not a disability, but if we are accepted or not that doesn't matter,[one may concider it a social disability at most if ones desperatly inclined it is however not mental phyisical or non-abstractly, or accdemically, and with almost any verb a disability, despite why not have tolerance personaly cure bies remind me more of nazis then any other group in history even number 54 down on that list, were people who did mass murders].


The best you could say is that AS is not always a disability.

That being said, I'm just going to put out the older opinion - does it really matter?

People have different definitions of disability. AS may or may not be a disability depending on your definition of disability, and the particular expression of AS. This doesn't take away from the difference model of AS at all.

I hadn't seen this thread before - I've just read through it all.  I agree very much with the points made by Anbuend, not only in relation to learning from and collaborating with the disability community, but also in relation to the manner in which disability (rights) are discussed here.
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