01-04-2008, 05:58 AM
Quote:
Welcome to the Disability Community
January 2nd, 2008
Here’s a post, inspired by recent readings online…Please don’t think I’m talking directly to any one person (don’t you hate having to write disclaimers on anything that touches society’s deep prejudices?), and I’m not trying to insult people. But I’m frustrated at something I’m seeing over and over. This is written strongly because that’s my style and because I think that’s the only way to make my point clear. Once again: I’m not trying to hurt anyone! So, without any more disclaimer, here’s my piece:
To autistic self-advocates everywhere: Welcome to the disability community!
Yes, that’s right, you’re DISABLED. Yep, you can pick that word apart and tell me why you aren’t, but, trust me, you are. And, no, I don’t mean that you are less or more functional than anyone else. I mean that you are part of a community defined by society’s institutions and programs, a community formed because of our minority status and the fact that society expects certain strengths and weaknesses, and anyone who doesn’t have that same pattern of strengths and weaknesses is going to have trouble in this society.
Yep, that’s the social model. It’s not the “OH MY GOD, I AM SO BROKEN AND LIFE SUCKS AND I WANT TO BE NORMAL BECAUSE EVERYTHING WOULD BE WONDERFUL AND I WOULD HAVE LOTS OF MONEY AND A GIRLFRIEND AND A NICE CAR” view of disability. But it is recognition that we have trouble in society as it is currently set up. You’ll also notice that it is not a view that accepts society as a static, unchangeable, and morally good entity, but rather as an institution that can and should change - even when people have a hard time seeing how it could.
In addition to this, I want you to know that there is “nothing new under the sun.” You don’t need to reinvent disability theory, come up with a brand new way to fight prejudice, or even learn “how the enemy thinks”. What you most need to do is to look at what worked and why, for other disabilities. Just possibly, your philosophy of disability isn’t as fully as informed at it could be if you haven’t read general (non-autistic) disability literature - and maybe you should read that literature before you tell us your philosophy, especially if you don’t respond well to criticism.
Then take your identity, as a disabled person, and your philosophy, hopefully in-line with many other disability rights thinkers, and learn how to apply that to practical, everyday situations. Of course to do that, you might want to read and learn about how other disabled people managed to influence the world around them. So learn about it!
One example - although the victory isn’t yet fully realized - find out why there public transit has to at least make *some* effort at accommodation in the US. Yep, I know it still sucks, and there are tons of problems - I’m not saying anything different. But I can assure you of this: Without good advocacy, there wouldn’t be a wheelchair lift on any bus except one owned by a nursing home - and even that one might not have one.
Find out why people with cerebral palsy can go to US schools today, even if their natural speech is hard to understand, thanks to assistive technology and good law. Sure, schools, technology, and law aren’t good enough yet, but they are way better than they were 40 years ago. Why?
Better yet, learn how you can make a bus in your city more accessible both to yourself and to someone with a different kind of disability. Learn about your schools and what can be done to help others with disability. Not just autistic people, but people with all types of disabilities. Do you know what you will find if you do this? You’ll find out quickly that it also helps you, even if that wasn’t the goal of the movement.
For those of you who are already doing these things - thanks! It’s good for us to stop reinventing the wheel once in a while.
Posted in Advocacy, Social Model
January 2nd, 2008
Here’s a post, inspired by recent readings online…Please don’t think I’m talking directly to any one person (don’t you hate having to write disclaimers on anything that touches society’s deep prejudices?), and I’m not trying to insult people. But I’m frustrated at something I’m seeing over and over. This is written strongly because that’s my style and because I think that’s the only way to make my point clear. Once again: I’m not trying to hurt anyone! So, without any more disclaimer, here’s my piece:
To autistic self-advocates everywhere: Welcome to the disability community!
Yes, that’s right, you’re DISABLED. Yep, you can pick that word apart and tell me why you aren’t, but, trust me, you are. And, no, I don’t mean that you are less or more functional than anyone else. I mean that you are part of a community defined by society’s institutions and programs, a community formed because of our minority status and the fact that society expects certain strengths and weaknesses, and anyone who doesn’t have that same pattern of strengths and weaknesses is going to have trouble in this society.
Yep, that’s the social model. It’s not the “OH MY GOD, I AM SO BROKEN AND LIFE SUCKS AND I WANT TO BE NORMAL BECAUSE EVERYTHING WOULD BE WONDERFUL AND I WOULD HAVE LOTS OF MONEY AND A GIRLFRIEND AND A NICE CAR” view of disability. But it is recognition that we have trouble in society as it is currently set up. You’ll also notice that it is not a view that accepts society as a static, unchangeable, and morally good entity, but rather as an institution that can and should change - even when people have a hard time seeing how it could.
In addition to this, I want you to know that there is “nothing new under the sun.” You don’t need to reinvent disability theory, come up with a brand new way to fight prejudice, or even learn “how the enemy thinks”. What you most need to do is to look at what worked and why, for other disabilities. Just possibly, your philosophy of disability isn’t as fully as informed at it could be if you haven’t read general (non-autistic) disability literature - and maybe you should read that literature before you tell us your philosophy, especially if you don’t respond well to criticism.
Then take your identity, as a disabled person, and your philosophy, hopefully in-line with many other disability rights thinkers, and learn how to apply that to practical, everyday situations. Of course to do that, you might want to read and learn about how other disabled people managed to influence the world around them. So learn about it!
One example - although the victory isn’t yet fully realized - find out why there public transit has to at least make *some* effort at accommodation in the US. Yep, I know it still sucks, and there are tons of problems - I’m not saying anything different. But I can assure you of this: Without good advocacy, there wouldn’t be a wheelchair lift on any bus except one owned by a nursing home - and even that one might not have one.
Find out why people with cerebral palsy can go to US schools today, even if their natural speech is hard to understand, thanks to assistive technology and good law. Sure, schools, technology, and law aren’t good enough yet, but they are way better than they were 40 years ago. Why?
Better yet, learn how you can make a bus in your city more accessible both to yourself and to someone with a different kind of disability. Learn about your schools and what can be done to help others with disability. Not just autistic people, but people with all types of disabilities. Do you know what you will find if you do this? You’ll find out quickly that it also helps you, even if that wasn’t the goal of the movement.
For those of you who are already doing these things - thanks! It’s good for us to stop reinventing the wheel once in a while.
Posted in Advocacy, Social Model