Aspies For Freedom

Full Version: John Best. A credit to his son.
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wilky Wrote:
Autism, at it's most severe is a living nightmare for the individual child or adult, and advocating against a 'cure' is sheer ignorance and cruelty.

Amy and Gareth,
I sincerely hope that one day you will feel some shame for politicizing what is essentialy a serious debilitating condition, and indoctrinating your own belief system via propaganda and scaremongering vulnerable and troubled young adults and children on the autistic spectrum, who come to AFF for support and friendship from others like themselves.
Could either of you honestly say you have any real experience of living with profound autism?

This is a well thought out & deliberately very cruel post to people who should be commended & honoured for their efforts rather than maligned.

Have you any experience of living or working with profound autism?  Some of us have.

I believe that most AFF members ' live with ' some degree of autism or AS, be it themselves, as parents or both.

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I think you would benefit John Best's example. His relentless effort and determination to 'cure' his son's autism is commendable and is a credit to him.

Why 'cure' ? Does this have a different meaning from cure?

wilky Wrote:
Sarajoke, and everyone else commenting on this thread. I urge you to read John Best's latest post about his son.

If  John Best's post is so good that we are "all urged to read it", why hasn't it been posted for us all to see? I know that a link can't be made, but a quote can be as far as I'm aware.

EvilZakkie Wrote:

woman from mars Wrote:
If  John Best's post is so good that we are "all urged to read it", why hasn't it been posted for us all to see? I know that a link can't be made, but a quote can be as far as I'm aware.

The post she's talking about is about his sons self-biting activities, and how desperate he is to find a solution - I even tried to offer some advice, as I think compassion has to weigh out over anger.

Thank you for that information.

erkolos Wrote:
Biting oneself is a problem, no doubt about it, but don't you think that there are better ways to spend one's time, energy and money than in a seek for a cure... of AUTISM, not self-biting, AUTISM.
Is self-injury and autism the same thing?

I worked for many years in what was then called 'Mental Handicap', biting of hands was extremely common amongst many of the patients  all of whom were mentally handicapped, many had co-morbid mental illness & most of whom were NOT AUTISTIC..
Many mentally ill people self harm in one way or another, for some using their teeth is the only method they are able to use. This is & always has been problematic, but not insurmountable.


Simen Wrote:

EvilZakkie2 Wrote:

Simen Wrote:

EvilZakkie Wrote:
Secondly, finding a cure for autism would mean that autistic people no longer existed - hence her essentially stating "you all have no right to exist".

That's like saying a cure for cancer means people with cancer no longer existed. If you genuinely believe that autism is no different from cancer, a disease that can and should be removed to help improve the quality (or even prospects of) life, then I don't see how it's really so bad
Cancer is a life threatening disease, Autism is neither.
.


One of the tenets of autistic rights is that it's an inherent part of a persons personality. Remove it, and you're no longer the same person.
Exactly.


No one is trying to eradicate us anymore than treatments for cancer eradicates cancer-patients. It is my view that an embryo of some weeks is not a person, and deserves not the rights of a person, so I don't care much for non-persons aborted due to prenatal testing. And no one wants to kill off real persons, i.e., autists that have been born.
NO??? I take it that you haven't seen the Autism Speaks video where a mother states in front of her child, her wish to kill her !


They may or may not be misguided, but they are certainly not doing this to scorn or destroy autistics.

EvilZakkie2 Wrote:
Semantics - we're talking about brain alteration with the deliberate intent to alter a group of personality traits. A personality is the person. Replace it with a different personality, and you have a different person.

This isn't the same as a persons experience altering their personality over time, either - in this case, it's a personality that is a natural extension of the pre-existing personality. In the case of an Autism "cure", it is a deliberate, forced personality change by surgical or chemical means.

An actual cure for an autistic person is pretty much science-fiction for now, anyway. The more realistic form of "cure" is pre-natal testing, followed by abortion if the child turns out to be autistic.

In the meantime, we also have to deal with the negative effects of autism being seen as a disease, or as an entirely negative thing. This too is a deliberate thing, as you'll know if you've ever seen any Autism Speaks publications.

This means that Autism itself will no longer exist, and Autistic culture will be destroyed - essentially, genocide.

Simen Wrote:
Further, it's a bit silly that people will scorn Autism Speaks and so on, claiming that they shouldn't presume to speak for those who cannot speak themselves, when that is what those self-same people do: claim that they have a right and knowledge to speak for those they don't know or have any experience being or being with.
Many of us  indeed do live with those who cannot speak for themselves & find ways to help them to express themselves.


We have previously non-communicative people that are now able to communicate what they want. These people are being ignored.

You will notice that no autistic people are involved in the decision-making bodies of Autism Speaks - hence the claim that they do not speak for Autistics.

Simen Wrote:

EvilZakkie2 Wrote:
[quote=Simen]
I didn't realize this was a political movement. I thought it was an online forum geared towards asperger's and autism and the people who have to deal with it.


Gareth and Amy don't mind people coming on and using the forum for support and enjoyment, but the main purpose of the site is to launch the autistic rights movement. It's on the front page description of the site, and it's what Wilky was referring to when she talked about "politicising autism".


I see nothing of the sort on the frontpage. It says AFF is a hub for the online community around autism/AS, for "autism, offline groups, autism rights, legitimate therapies for comorbid conditions, diagnosis, employment and education and AS special interests".


It states the political viewpoints of AFF, including:

- We have the view that aspergers and autism are not negative, and are not always a disability.
- We know that autism is not a disease, and we oppose any attempts to "cure" someone of an autism spectrum condition, or any attempts to make them 'normal' against their will.
- We aim to strengthen autism rights, oppose all forms of discrimination against aspies and auties, and work to bring the community together both online and offline.

On reading again, it does not explicitly state that this is an Autistic Rights site, but the indication is there. Don't worry about debating this one with me personally, as Gareth will be able to actually tell you the reasons he set up the site next time he drops past.

Gareth Wrote:
Read again:

Quote:
We aim to strengthen autism rights, oppose all forms of discrimination against aspies and auties, and work to bring the community together both online and offline.

The name of this site is    *AFF.........ASPIES FOR FREEDOM*
I would have thought that the very name indicates the reason for the existence of this site.
merely from the title I certainly saw it that way & still do & I did at least take the time to read the site information.

I joined in order to contribute in any way towards the aims of AFF, also to help someone in the USA who has some similar ideas. (sadly I have been to busy to do the latter.) However I personally have gained a great deal in many respects from being a member & I resent any inference that AFF is not what it says it is or that the members are similar in any way to the 'curbie groups'.
.

Quote:
The name of this site is    *AFF.........ASPIES FOR FREEDOM*
I would have thought that the very name indicates the reason for the existence of this site.

Which is...what? Are you being held prisoner by evil anti-autists?

Quote:
I joined in order to contribute in any way towards the aims of AFF, also to help someone in the USA who has some similar ideas. (sadly I have been to busy to do the latter.) However I personally have gained a great deal in many respects from being a member & I resent any inference that AFF is not what it says it is or that the members are similar in any way to the 'curbie groups'


Where do you find this inference?

Also, no I haven't seen any videos of mothers that state they want to kill their children...But if there are such videos, I wonder why they haven't been used for identifying and apprehending the person. I wouldn't trust a child with a mother who has explicitly and publically stated her intent to kill it...would you?

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Many of us  indeed do live with those who cannot speak for themselves & find ways to help them to express themselves.


Trouble is, these "curbie groups" as you call them are often groups of parents--they do live with people who cannot speak for themselves and they also claim to find ways to speak for them anyway.

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                                       simen
im really sorry but i have to ask you this why are are you critisizing the name of the website when you could have joined another group without this title?

I wasn't. I was merely criticizing the idea that from the title alone, one would be able to infer what this site's goal and policies are.

Quote:
also no offence but you seem to be a little blind to how uninnocent these curebie's are

Oh yes indeed. It's difficult to find the bare facts, since most everyone (no offense) here only ever writes in opinionated, passioned styles. Is there a bare-bones, just-the-facts-I'll-provide-the-opinions-myself guide to the evils of these "curebies" somewhere?

Sorry, I can't mind-read. Could you tell me

(1) What you mean by "your response is exactly why you keep getting comments from other users"? Are you saying I shouldn't disagree with other users?

(2) What do you mean by, "can't reallt complain about it"?
I'm not really cynical, am I?

In this thread, I have only stated my opinions, plain and simple. If people take offense here, it's not because of form but content.
Could you point out the offensive parts, then?

Pakrat Wrote:
Well, I think it is offensive that you refer to unborn children as "blobs of tissue" and "non persons". It is now well known that even foetuses at 6 weeks gestation have recognisably human hands and feet with fingers and toes. If you do a DNA test on even a two-cell embryo, you would find HUMAN DNA, not dog dna or cat dna or monkey dna or fish dna.


So you find my opinions offensive? I am pro abortion in early pregnancy, and so I feel entirely comfortable with these terms. I didn't even think about it being possibly offensive, since where I'm from, there is virtually no one who disagrees.

And anyway, this is simply a disagreement, and I won't modify my opinions to avoid offending anyone. I find the idea of valuing primitive beings who are no more than a few cells just because they contain human DNA and maybe vaguely resemble a full-grown human baby, while devaluing more advanced animals, to be pretty stupid.

But I'm not going to defend my opinions on that in detail. This is not a discussion about abortion. I'll simply leave it at that: I was stating my opinion, not being deliberately offensive, and I don't consider it important to express myself in the most diplomatic way possible. I am as opinionated as everyone else here, so why would I put bounds on my opinions just so those who disagree shouldn't get upset?

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Simen! (with 10 posts) and Simon [sic] ( with 338 posts) - I am confused, are you the same person?
If so, why do you have two accounts?


Because there's a daily limit on how many posts you can have, and I may feel the need to defend myself and/or my opinions before that runs out. I'll add a signature to that account that states this clearly.

Batman55 Wrote:

Simen Wrote:
Sorry, I can't mind-read. Could you tell me

(1) What you mean by "your response is exactly why you keep getting comments from other users"? Are you saying I shouldn't disagree with other users?

(2) What do you mean by, "can't reallt complain about it"?


He's saying you are being so extremely logical that you are blind to the effect your words are having on other members.

Learn some decorum.


I'm not blind, however I see that I have underestimated how much some people on here take things personally. I wont withhold my opinions because of that, though. I stand by what I write--very rarely do I write anything with the intention to sound mean or angry. I simply disagree. Would you be happy if I put "Don't take what I write personally; if I think you're an idiot, I'll state it explicitly" to my signature? Probably not, because some people here can't handle disagreement and criticism.

tenaciouscj Wrote:
Simen, sorry to burst your bubble but whether or not your argumentative style is meant to be offensive, it is causing offense to some readers.


There's no bubble to be burst. I'm not blind, why do you think I keep responding? I hear people, I just don't agree with them.

In authoritarian countries, the opinions about democracy, human rights, free speech, and so on, are causing offense to the rulers. Don't you see that "causing offense" is not only dependent on the content of an uttering, but also on the receiver? Some people cannot handle dissent, so they take offense. Now, I can understand that someone takes offense at personal attacks--I do, too. But I cannot understand why people take attacks on their opinions as attacks on themselves. I don't think this board should become a mindless echo chamber like the government-controlled media in authoritarian countries, e.g., China. It isn't, currently, but with the way some people act here it might become one. So, unless there's an official statement to the effect that dissenting opinions are unwelcome here, I will continue to present them. If there is, I will leave voluntarily, recognizing that the priviledge of posting here is worthless.

tenaciouscj Wrote:
You're welcome to post as many dissenting opinions as you like but do expect them to be challenged.


Actually, there are those who think I'm not welcome to post dissenting opinions.

But anyway, of course you can challenge them; but if you can challenge my ideas, then I should be able to challenge yours. And that is what I'm reacting to: the criticism because I simply dear to say what is, round these parts, clearly controversial.

tenaciouscj Wrote:
It's controversial AND scientifically INCORRECT and that's why it is being challenged. It's nothing personal about you - just the ideas that are dodgy.


I don't think I've written anything about scientific issues in this thread--if so, then please point out the scientifically incorrect bits.

Also, again, people are attacking me as a person, not my opinions, and that is what I'm reacting to.

Er... I don't take offense that anyone disagrees with my opinions. It is not me who is offended by disagreements over subject; it is others who constantly bring me, as a person, into discussions I'm in, instead of concentrating on my opinions.

Lucie1 Wrote:
Wilkie's words were quite strident, but that's okay as long as no-one holds grudges. It is topic that stirs up deep emotions / feelings, it's not always easy to remain calm.  Beliefs should be challenged and talked about - there are always pressures to conform - I like to see ideas challenged, it's an open forum.


Finally a voice of reason! I agree completely.

As long as no one resorts to personal attacks, I think beliefs should be fair game.

EvilZakkie Wrote:
Also, as this thread has become somewhat a cure debate, I'll add in a few fun facts for parents that may be reading along.

For starters, the only form of cure that isn't science fiction is prenatal testing followed by abortion. In other words, pro-cure organisations will not help your child.

Pro-cure organisations say that they are raising money to help families, yet divert over 90% of this money into cure research rather than support services. They also lobby for government funding to be put into cure research, rather than support services. This leaves autism support service charities starved of funds. In other words, pro-cure organisations are the reason the autism support services you need are underfunded.

To push their agendas, pro-cure organisations have to promote an negative viewpoint of Autistic people. What this means is that pro-cure organisations are one of the reasons society will discriminate against your child.

Many breakthroughs are being made in facilitated communication and other methods of skills training for Autistic people – however the funds needed to supply these techniques are unavailable due to being diverted into cure research. In other words, pro-cure organisations may be the reason that your child is still uncommunative.

Food for thought.


You managed to state these without being overly preaching. See, it's not so hard! An example to follow, instead of the idea that one opinion is so obvious that it needn't be explained or justified.

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