Aspies For Freedom

Full Version: John Best. A credit to his son.
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Mahler5 Wrote:

quickduck Wrote:

sarahjoke Wrote:
I guess honesty is admirable...  I respect you quickduck, but don't understand this thread or your defending it.  Aspies are usually loyal and good friends and will assume that you are being a good friend.

You're right Sarah...I'm not defending the thread...I'm defending Wilky.


Defending her... statements? Her ideas that Amy and Gareth should be ashamed and that people here are troubled and are being brainwashed by 'ignorant and cruel propaganda'?
or just defending  Wilky the human being who is in need of support for being.. human? Like the rest of us? What?
Perhaps Wilky's friends could remind her that there is no cure for Autism, then.
Being angry isn't going to change anything. Blaming others isn't going to help her come to any kind of acceptance.
If Wilky isn't open to debate then why post such inflammatory statements on a public forum-such as Aspies FOR FREEDOM? I don't understand it. Why not simply PM the people she wishes to apologize to or to blame?


Really, what is this all about?  The original post does not sound like the wilky I remember--from earlier this year--at all.

Anyhow, wilky, this website is about acceptance and tolerance and your "now uncensored view" has no place here.

I find the fact that you were deceiving us all along a little bit disturbing.

Simen Wrote:
Sorry, I can't mind-read. Could you tell me

(1) What you mean by "your response is exactly why you keep getting comments from other users"? Are you saying I shouldn't disagree with other users?

(2) What do you mean by, "can't reallt complain about it"?


He's saying you are being so extremely logical that you are blind to the effect your words are having on other members.

Learn some decorum.

Simen Wrote:
Could you point out the offensive parts, then?

Well, I think it is offensive that you refer to unborn children as "blobs of tissue" and "non persons". It is now well known that even foetuses at 6 weeks gestation have recognisably human hands and feet with fingers and toes. If you do a DNA test on even a two-cell embryo, you would find HUMAN DNA, not dog dna or cat dna or monkey dna or fish dna.

I find the idea of curing us by exterminating more of us from being born very objectionable indeed.

I also don't know Wilky well but can't see what she hoped to achieve by her original post. If she cared to elaborate just what was so hard about having a LFA child, then we would find it easier to understand just what they have to cope with.

Lucie1 Wrote:
I tend to think chasing a cure is chasing false hope, but maybe when you are feeling hopeless, false hope is better than no hope at all.


I've been there! It's a way to get through the day. This was the case when I got my tinnitus 10 years ago. Horrible! How I chased and chased, day by day, clinging to the hope of a cure.

I haven't looked at the John Best site. Maybe it's all about anger management...

I do take your point though - there was a history here - that changes the balance of the situation.
I can see good in Wilkie's post - however strongly it was worded - the good was ... zacchie got to post some really good ideas - and the founding ideal of this forum was reiterated.

rossco Wrote:
Let? Do you believe any parent would let that happen. Do you believe that we know every interaction, thought or feeling John has towards his child. Timelord I know has him all "worked" out and has hypothesised to ridiculous lengths to know all about John Best and his likes/dislikes/intentions. Truth is we don't know.
My boy used to be constipated and toilet training was a nightmare. He used to be in pain and discomfort. He used to fear the toilet. Was I a bad parent? Timelord would probably think so but how many kids has he got?
Do not take Timelord's articles at face value. We don't really know him at all.

Remember too that people often have differences of opinions on things and reasons and experiences to back their judgement. Pro-cure and autism rights are polar opposites. There are fanatics on both sides of people "along the spectrum" of opinion.


It just seemed like a very ill-advised thread and why is she doing it now when the big kerfuffle was a couple of months ago? It annoys me that this silliness has started all over again.

quickduck Wrote:

quickduck Wrote:
But...

No I won't say anything lol Big Grin

The original comment that started this whole thing off was inane and was only posted four days ago. It annoys me that parents are given false hopes of "cures" that will never happen.

It also irritates me no end that Gareth and Amy were attacked for providing a valuable service simply because they don't agree with the aims and methods of "Curebie" organisations such as CAN and DAN.

Rossco, I'd read Foresam's blog about his boy being severely constipated. He probably should have taken him to the doctor but failing that, he could have got him a stool softener from the chemist eg. Agarol. Ironically, the chelation "cured" the constipation.

I can see how it would be awful to have a child who constantly hurts themselves and sadly, I don't know any easy solutions. Sedating the child might help but sedatives do have side effects, including constipation. Restraining them from hitting and biting themselves could be seen by some as child cruelty. It would be so much worse if the child was non-verbal.

But what angers me about organisations like CAN is they aren't trying to find out why autistic kids hurt themselves; they are too busy putting the money into pre-natal research which could easily lead us to the current situation with Down's syndrome, where the cure apparently is to wipe out the foetuses before they are born.

Lucie1 Wrote:

Just one little niggly thing, I don't like being the peacemaker zacchie.
kind regards to you and Bella

Lucie1, nobody's asking you to be the peacemaker and that's a role you've taken upon yourself. If it's stressing you, it would be best not to worry about intervening in arguments and just let them play out by themselves (as they always do eventually).

Thanks for your concern pakrat - I appreciate it. Cool
Don't worry about me, I 'm fine.  I don't set out to create any roles for myself on this forum, I simply speak my mind, as and when I feel inclined.

SoulSick Wrote:

wilky Wrote:
Autism, at it's most severe is a living nightmare for the individual child or adult, and advocating against a 'cure' is sheer ignorance and cruelty.

Amy and Gareth,
I sincerely hope that one day you will feel some shame for politicizing what is essentialy a serious debilitating condition, and indoctrinating your own belief system via propaganda and scaremongering vulnerable and troubled young adults and children on the autistic spectrum, who come to AFF for support and friendship from others like themselves.


Quote:
Could either of you honestly say you have any real experience of living with profound autism?


Considering I've lived with it all my life, yeah I know what living with it is... it means
1) being shunned by people who are sick and barbarically tribalistic
2) who believe in the stupidest *** imaginable (all the religions)
3) Being cut off from love, often for many years on end.
4) Not being able to intuitively infer or understand other peoples thoughts or feelings.
5) Not being able to know what to do next in social situations.
6) Constant rejection, prejudice and hate, for NO reason.

<snip>

Aspies are like children in adult bodies and because they have adult bodies no one sees the parts that remain stuck in childhood.

The real problem is the world itself and the lack of time that market capitalism creates, many aspies could learn to socialize if they weren't

1) Have their ego's and self-concept beaten into oblivion by NT's growing up which
2) Makes many of them cowardly because of what happened at #1

Ha, don't I know it! Wilky's parthian shot at Gareth and Amy and us was very ill-conceived but at least has sparked some relevant debate.

I still feel like a child in an adult's body and it has taken years to even reach the level of emotional functioning of a young teenager.

SoulSick Wrote:

GuessWho Wrote:
I am not really sure whether being heavy or being Aspie is the worse problem, or my problem.  

Yesterday I was visiting a super-church (thousands of people) near a West Virginia college campus (my home church has only 50 people, and every so often an elderly person dies).  Anyway, one man, one woman (on video screens!) were taking turns reading off a list of members' dreams like "fill the Sunday schools (words mine)" and "fill the food pantry [sky high (words mine)]" and I added, in the back of my mind.....

        "reach out to all the people whose only real problem is being rejected, including by some Christians"

I am convinced, though, that waiting seven years after college (with grad school and VR and a career change) for a career and still waiting for a relationship IS A PROBLEM.

Anything that facilitates that is a SOLUTION.

Other than that, Asperger is a gift we can offer if other people will take it, and take us.

We can agree on that, right?


Wow that was real powerful!!!


Yes Chris is a really good guy. Smart!!!!!!!! He thinks deeply - and he is very gentle. I like him heaps. My favourite online guy.

anyway - Chris, you asked about  kitty somewhere in this forum - my kitty is cheeky and lovely. We are learing to love him, he's precious. I will try and get a photo for you. Does you cat cope okay when you leave him on his own? We are wondering if we should get another cat  to keep kitty company when we are at work - or out and about. If we are to get another kitty we will need to do it soon.
sidenote: my asthma has been  so much worse lately, I don't know if it's kitty, seasonal or hormonal.

Lucie1 Wrote:

SoulSick Wrote:

GuessWho Wrote:
I am not really sure whether being heavy or being Aspie is the worse problem, or my problem.  

Yesterday I was visiting a super-church (thousands of people) near a West Virginia college campus (my home church has only 50 people, and every so often an elderly person dies).  Anyway, one man, one woman (on video screens!) were taking turns reading off a list of members' dreams like "fill the Sunday schools (words mine)" and "fill the food pantry [sky high (words mine)]" and I added, in the back of my mind.....

        "reach out to all the people whose only real problem is being rejected, including by some Christians"

I am convinced, though, that waiting seven years after college (with grad school and VR and a career change) for a career and still waiting for a relationship IS A PROBLEM.

Anything that facilitates that is a SOLUTION.

Other than that, Asperger is a gift we can offer if other people will take it, and take us.

We can agree on that, right?


Wow that was real powerful!!!


Yes Chris is a really good guy. Smart!!!!!!!! He thinks deeply - and he is very gentle. I like him heaps. My favourite online guy.

anyway - Chris, you asked about  kitty somewhere in this forum - my kitty is cheeky and lovely. We are learing to love him, he's precious. I will try and get a photo for you. Does you cat cope okay when you leave him on his own? We are wondering if we should get another cat  to keep kitty company when we are at work - or out and about. If we are to get another kitty we will need to do it soon.
sidenote: my asthma has been  so much worse lately, I don't know if it's kitty, seasonal or hormonal.


Now, if only Chris could drop the doom and gloom about religion, things would be even better still. I'm sure in real life, he is a gentle person on the whole. After all, he has a cat, and that usually says good things about a person.

Chris has severe depression, when you're got severe depression, thoughts become very black. If we all love him enough, we might be able to cheer him up a bit, we can but try. I guess also, it is good to let him know when his posts are getting a bit bleak and when he needs to leave out the doom and gloom.
I'm worried my last post might come across as critical - that's not what I intend.
I hope I don't embarass Chris. Sad
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