Aspies For Freedom

Full Version: Generation Rescue ... yet another cure group!
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I'm seriously thinking about a 'counter' parental organisation to provide the actual truth to other parents about autism. Its frightening how these misinformed groups can speak like this.

The big problem, I'm sure, is a lack of understanding of 'comorbidity' and what it means. Here's another group that have mixed up a possibly genuine medical issue (mercury poisining) and related it instantly to autism. They completely ignore the fact that ASD's are genetic in origin and ignore the very very strong possibility that non-autistics also suffer from mercury poisining.

I'm in the process of redesigning my blog and I think at the very least I'm going to start a 'parents pack' of facts/links and articles. I started off as misinformed and viewed Megans autism as a tragedy. It was only through talking to autistics and spending hours tracking down scientific facts that I realised how ignorant I was. Parents are at the crux of advocacy - we are responsible for the next generation of autistics, there must be some proper, accurate information put out for parents so the likes of these misinformed people are unable to mislead others.
That is a good idea, I'd like to see it when you're done.
1st thing first, there is a way to deleite certan messages from Adsence (the googe ad bar), by logging in, going to ad settings and then onto compettitive ad filtering. I have done it a number of times with anti autism groups.
2nd thing, why don't we sign them up to a fiew news letters, its perfectly legal, and somewhat fun... did a similar thing to my old IT teacher...
Badspyro

Quote:
The chelation therapies, extensive blood testing, extreme diets, force feeding kids huge doses of multivitamins, it is cruel and abusive. Children should not have to suffer those things as parents experiment in the hope of finding a miracle cure.


Test 1: Hair Elements
Clip some hair on the back of the head, no damage there.
Why? To test for potentially toxic elements and essential and other elements.
Result: I now know that mercury is the highest toxic in his body, I also know zinc and other elements are very low.

Test 2: CSA(Comprehensive Stool Analysis)
Didn't get results yet
No harm in "scooping poop" and putting it in a test tube
Why? To test digestion, nutrition of the gut, pH, microbiology, mycolgogy and parasitology, and gut immunity.

Test 3: Immune viral
Blood test - one jab - two vials
Why? Test for Measles (Rubeola), Human Herpes Virus-6 (HHV-6) and HHv-7, Gliadin Antibody, Casein Antibodies, Fibillarin Antibody, Dipeptidylpeptidase, MBP Antibody, Neurofilament Ab, and Metallothionein.
Result: Casein IgG is abnormal - need casein free diet for life
IgM Neurofilament Ab and Metals/medium con.ratio(Metallothionein) are both abnormal - evidence of mercury damage.

Test 4:IgG 90 food test
Blood test - same jab - two vials
Why? Test for food allergies/sensitivities
Result: Severe reaction to - milk, casein, and lamb
Moderate reaction to - beef, pork, banana, oat, rye, navy bean, pinto bean and ginger.
Severe leaky gut
Avoid casein and milk forever
Avoid gluten foods as they are moderate now that can change

Test 5: CHEM panel
Blood - same jab as previously - 3 more vials
Why? Test for checking kidney and liver etc
Result: Evidence of kidney stress, liver stress and HDL cholesterol is low
Need better diet and sups.

Test 6: ION panel
Blood - same jab(see above) - 2 more vials, and urine
Why? Check amino acids, Erythrocyte, Lipid Peroxide, Organix Comprehensive etc etc etc..
Result: Many amino acids extremely low, all minerals on low side, high calcium(could mean future high blood pressure), high LIpid Peroxides - oxidative damage, high 8-Hydroxy-2 deoxyguanosine - liver stress, low vitamin A and E, Trans fats high (diet)etc etc etc


Summary: 1 jab with the needle, one poop scooping, one pee in a test tube and one tiny bald spot(hair). Look how much I've learned...yes there's a whole lot of vitamins...but I'm one of the lucky ones, my boy readily and eagerly takes them with no problem. I don't think trying to help my boy with his bowel problems, infections, viruses, and possible migraines is cruel and abusive. I'd love to have enough money to test my NT daughter too and then myself.

For chelation I do the mud baths and they say there are no side effects - haven't seen any either
Still on the fence about going on the diet however, but I don't think it's too much to ask to take casein and milk out as now I have scientific proof these things are causing his body pain.
This is the reason why I did these tests was to see what he really needed and stop the guessing/experimenting.

Chelation.

Quote:
The parents of these children often claim that autistics are bad excretors of mercury. If this is true (and I don’t know if it is or it isn’t) then it seems that using Chelators can actually make the problem worse:

Quote:
It takes properly functioning excretory systems to then move the chelator-bound metal out of the body. So in order to get the heavy metals out of your body, you have to dislodge them from their present locations, and MOVE them so that your liver and kidneys can excrete them. Whenever you move a heavy metal, you risk increasing the damage it does to your body. Anywhere along the way, the chelator can lose its grip and drop the metal. If the excretory systems are not functioning well, you’ll be unable to excrete all the metal the chelator has mobilized. In either case, you’ll just do more damage.


Quote:
I went to another doctor and he said to keep doing the DMPS, that I had to push through to feel better. I had six more infusions with him, and he did neural therapy on my stomach and spine. I kept getting worse. I felt about ready to die, so I guess it didn’t matter. In addition to all of the headaches, gastrointestinal and endocrine problems and pain, I’m now hypothroid, have lesions in my colon, and a tumor on my liver. DMPS really devastated my life. Before DMPS I used to run 4-5 miles a day. Now walking short distances wears me out. DMPS has made my life hell. Today I am a vegetable trying to get my body working agai


The 'P' in DPMS by the way stands for 'Propane'.

Ok, I am curious but not curious enough to invest a lot of time dredging through all sorts of dreck and BS to find it: just how, exactly, do they think that *some* children acquire mercury poisoning while others apparently don't?

I am sick of hearing about vaccines; my little boy was never vaccinated, not even once. And honestly, he felt different even in utero and defintely from birth.
I guess I shouldn't be surprised by the responses.....oh well

Amy, you have been wonderful and I have learned from much from your patience and kindness, thank you.
Hoping not to offend anybody, but I think this generation rescue stuff is mostly a crock. You can't cure autism and that's that. By all means, if tests for digestive abnormalities pick up problems, that is a good thing but I have serious doubts about this chelation therapy and forcefeeding kids vitamins and the like is just idiotic to my way of thinking.

Mich Wrote:

thornycactus Wrote:

Quote:
The chelation therapies, extensive blood testing, extreme diets, force feeding kids huge doses of multivitamins, it is cruel and abusive. Children should not have to suffer those things as parents experiment in the hope of finding a miracle cure.


Test 1: Hair Elements
Clip some hair on the back of the head, no damage there.
Why? To test for potentially toxic elements and essential and other elements.
Result: I now know that mercury is the highest toxic in his body, I also know zinc and other elements are very low.

Test 2: CSA(Comprehensive Stool Analysis)
Didn't get results yet

... blah blah blah ...


Have the tests repeated by your PCP and see how the results differ.

I thought PCP was a type of chemical found in aerosol sprays.
Sorry, PCP = Primary Care Physician

In other words, "Family Doctor"
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