03-11-2005, 10:43 AM
I'm seriously thinking about a 'counter' parental organisation to provide the actual truth to other parents about autism. Its frightening how these misinformed groups can speak like this.
The big problem, I'm sure, is a lack of understanding of 'comorbidity' and what it means. Here's another group that have mixed up a possibly genuine medical issue (mercury poisining) and related it instantly to autism. They completely ignore the fact that ASD's are genetic in origin and ignore the very very strong possibility that non-autistics also suffer from mercury poisining.
I'm in the process of redesigning my blog and I think at the very least I'm going to start a 'parents pack' of facts/links and articles. I started off as misinformed and viewed Megans autism as a tragedy. It was only through talking to autistics and spending hours tracking down scientific facts that I realised how ignorant I was. Parents are at the crux of advocacy - we are responsible for the next generation of autistics, there must be some proper, accurate information put out for parents so the likes of these misinformed people are unable to mislead others.
The big problem, I'm sure, is a lack of understanding of 'comorbidity' and what it means. Here's another group that have mixed up a possibly genuine medical issue (mercury poisining) and related it instantly to autism. They completely ignore the fact that ASD's are genetic in origin and ignore the very very strong possibility that non-autistics also suffer from mercury poisining.
I'm in the process of redesigning my blog and I think at the very least I'm going to start a 'parents pack' of facts/links and articles. I started off as misinformed and viewed Megans autism as a tragedy. It was only through talking to autistics and spending hours tracking down scientific facts that I realised how ignorant I was. Parents are at the crux of advocacy - we are responsible for the next generation of autistics, there must be some proper, accurate information put out for parents so the likes of these misinformed people are unable to mislead others.